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Advocacy Big Event Conference 2013. Advocacy on the wards. How we began Macmillan Cancer Support 2011 “Walking into the unknown” Inequalities in cancer care. Sept 2011 Macmillan commission to: Receive cancer - older people awareness training Produce a national OPABC advocacy framework - PowerPoint PPT Presentation
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Advocacy Big Event Conference 2013
Advocacy on the wards
How we began
Macmillan Cancer Support 2011
“Walking into the unknown”
Inequalities in cancer care
Sept 2011 Macmillan commission to:
1. Receive cancer - older people awareness training
2. Produce a national OPABC advocacy framework
3. Provide specialist training for Macmillan helpline staff
4. Develop referral mechanisms for MSL
5. Carry out workshops with Cancer Voices to establish OPABC needs
6. Contribute to ‘Cancer & Older People’ publication Jan 2012
1. OPAAL’s Partnership Development Hub developed framework – 10 original members
2. March 2012 Macmillan commission to pilot the framework in four areas
3. PDH developed bid to Big Lottery Silver Dreams Fund
4. Identified five partner organisations to undertake cancer training and pilot framework in:-
Dorset, Sefton, Gateshead, and Stoke on Trent
Successful application to Big Lottery Silver Dreams Programme
Joint funded by Macmillan
From July 2012 to December 2013
Funders Aims.
1. Silver Dreams challenge: to pioneer ways to help vulnerable older people deal more effectively with life changing events
2. Silver Dreams 2013 – to support recipients to bid for extension funding worth £1,000,000 for up-scaling 2014
3. Macmillan 2012 : to pilot National OPABC Advocacy Framework in four areas
4. Macmillan 2013: to prepare up to 20 new organisations to deliver service in 2014 and to further develop SAM to support up-scaling
OPAAL’s Main Project Aims 1
1. To develop four different delivery models:-
• Service delivered by staff only - Sefton • Service delivered in Age UK organisation - Gateshead• Service delivered in joint partnership across county -
Dorset• Service delivered in small organisation – Beth Johnson
Foundation
2. 1 National and 4 local Cancer Champions Boards
3. Develop new training programmes for professional staff and Volunteer Cancer Support Advocates
4. Develop new cloud based System for Advocacy Management – SAM
5. Recruit and train 100 Peer Volunteer Cancer Support Advocates to support OPABC around care and treatment options and choices
6. Deliver Cancer Support Advocacy Service to 300 OPABC
OPAAL’s Main Project Aim’s 2
Project achievements to Feb 2013 – 1
1. Four delivery models in development
2. 1 National and 4 Local Cancer Champions Boards set up involving 34 OPABC
3. Two new training programmes developed
4. 50 OPABC trained as advocates 35 working as Cancer Peer Support Advocates
5. System of Advocacy Management- SAM implemented and being further developed
6. New local referral pathways set up with health e.g. CCG’s, social care and voluntary sector
Project achievements to Feb 2013 - 27. New Macmillan Cancer Support national referral pathway set up
8. 57 older people receiving advocacy support
9. Staff trained in social media skills we now have project twitter, facebook and our Blog http://advocacyonthewards.wordpress.com
52 posts, 2085 views and 65 regular followers
10. External evaluation report available April 2013
11. OPAAL secured specialist financial consultancy support from Big Assist Programme
12. Secured additional Macmillan funding to develop foundation programme
13. New partnership with Compassion in Dying – training in EOL
In short we have
Older people with new skills
Older cancer patients better informed
Older people designing and managing advocacy services for their peers
Lessons to date 1
1. 18 months too short time to demonstrate impact
2. No difficulties recruiting high calibre volunteers
3. Need programme of activities for volunteers awaiting referrals – e.g. shadowing, visits to hospices etc
4. Macmillan introduction to cancer training very useful
5. OPAAL training for volunteers and professional well received
6. Need to prioritise referral’s nationally and locally
Lessons to date 2
7. Further training needed by volunteers to help them cope with complex cases
8. More staff support needed by volunteers
9. Need to prepare health staff to understand advocacy, the new service and to develop referral mechanisms
10. Local Cancer Board Champions successfully influencing project direction
11. Partnership working locally and nationally brings many benefits i.e. shared learning and problem solving
Lessons to date 3
12. All sites feeling under resourced, we need to look closely at full costs recovery for future work
13. Having a paid advocate advantageous - rapid response, effective case load management, help with complex cases and continuity
14. OPABC benefiting from receiving advocacy support
15. OPABC benefiting from becoming advocates, acquiring new knowledge and skills making a difference
16. OPAAL needs more staff time to manage complex multi site national project
Next steps for OPAAL
1. Develop and deliver new Cancer Support Foundation Programme to 20 + new partner organisations
2. Develop new national costing models for advocacy services
3. Seek extension funding from Big Lottery £1 million
4. Explore potential for local CCG’s to fund partners
5. Support partners in local successful funding bids
Marie McWilliams OPAAL Development Officer
Tel: 07952 100034
Email: [email protected]
Kath Parson OPAAL Chief Executive
Tel: 07966 039797
Email: [email protected]
CONTACTS
