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Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author

Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

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Page 1: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life

Susan Senator, Parent and Author

Page 2: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Who Am I? Why Am I Here Today?

Mad Elephant Mom

25 years of advocacy

Autism Author

Optimist

Page 3: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

What Constitutes a Successful Life?

1. Money?2. Employment?3. Fun/Growth?4. Community?5. Stability?6. ????

Page 4: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Realities of Post 22

• Little Funding

• Few Safety Nets

• Inadequate Transition Help

• Uncertain Paths to Follow

Page 5: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

On the Bright Side…

• Less Structure = More Freedom!

• Pioneering = Creativity

Page 6: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

PLUS…you already have the skills

• Getting services

• Identifying quality programs

• Envisioning

what should be

Page 7: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Adult Life’s Essentials

• Work

• Fun

• Quiet Time

• Community

Page 8: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Your Steps

• Regular Resume

• Deep Resume

• Others’ Lives

• Current Possibilities

• You

Page 9: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

1. Regular Resume

Page 10: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Resume Exercise

• School

• Skills

• Experience

• Passions

• Something special

Page 11: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

3. What Do Others Do?

Juniper Hill Farms roommates at the Farmers’ Market

Page 12: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Others: Find Your Peeps

Page 13: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Where to Find Community

• Special Olympics sidelines

• Workshop attendees

• School parents

• Facebook and support groups

• Neighbors & friends who get it

• Others on the Spectrum

Page 14: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

4. Current Possibilities

-Traditional Day Program

-Community & Traditional College

-High School Job Sites

-Arcs, service providers

-Volunteering

-Cottage industry

Page 15: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

5. What Do You Want?

• Work

• Play

• Quiet Time

• Community

Page 16: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

What Do You Like?

• Obsessions

• Stims

• Activities

• Achievements

• Company

• Down time

Page 17: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

6. How?

HELP is NOT a bad word!

• Ask Others

• Attend Conferences

• Explore – Partnerships

– Funding streams

Page 18: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

From Perseverating To Persevering

• Pete’s Petstones• Made By Brad• The Teaching Hotel• Stefano & Duck Tours• Sri & the Hospital• Scott’s Poetry• Rising Tide Carwash• Nat’s Day Program• MUSE

Page 19: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Going BigRising Tide Carwash

• Money to invest

• Place to practice

Page 20: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

The Teaching Hotel

Advocate Dad + Local Arc + Perseverance = Jobs for Thousands w/ Disabilities

Page 21: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Made By Brad

• Legos + Love

Page 22: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Scott, Poet & Activist

Page 23: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Pete’s Petstones

Page 24: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Sri at the Hospital

School job + Teacher Advocacy = Post-22 Career

Page 25: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Stef on the Duck Tours

• Start with the Passion

• Utilize Connections

• Go to the Source

Page 26: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Nat’s Day ProgramBakery????

• Utilize all skills

• Foster community connections

• Find possible partnerships

Page 27: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Social Life!!• Bonds from Before • Adaptive Sports• The Arts• Social Groups• Geek Groups• Special Camps

Page 28: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

MUSE: A Role Model

A Special Ed TeacherA Violin LessonA Home ConcertTwo BandsGigsPartiesCommunitySelf-Directed Day Services

Page 29: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Remember: Cultivate Experts/Partnerships

• Other autistic people• Autism families• State agency• Service providers• Local public schools • College and grad Students• Artists, musicians• Therapists, counselors

Page 30: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Most Important:Dream. Ask.

Page 31: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

What We Still Need:

• Social interaction experts

• Sexual safety training

• Employer training

• Better public funding & supports

To get all of this…Vote! Register, Lobby, Become an Advocate!

Page 32: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Keep Growing

LARPer

Rock StarWorking Man

Public Speaker

Page 33: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Success and Happiness: You Define It!

Page 34: Autism Adulthood: Stories, Strategies, and Insights for a ... · Autism Adulthood: Stories, Strategies, and Insights for a Fulfilling Life Susan Senator, Parent and Author. Who Am

Questions?

[email protected]

• www.susansenator.com

• My Books: Visit Shambhala.com, and SkyhorsePublishing.com, Amazon, B&N