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DDICC Overview:
biomedical and healthCAre Data Discovery Index Ecosystem
Lucila Ohno-Machado, MD, PhD
UCSD Biomedical InformaticsNIH BD2K Joint Kick-off Meeting
Rockville, MD, Nov 3-4, 2014
2
Aims Task Forces
Pilot Project$
• Call for Collaborators to Work on Pilot Projects• Yearly RFA for New Pilots
Administrative Supplements Organization
3
Aims
1. Help users find accessible data By disease, data modality, demographics, etc.
2. Assist data producers on how to publish data for maximal discoverability
Assess of impact of disseminated data
3. Train data producers and data users Tools related to biomedical data sharing
PubMed of Data = DataMed
Steering CommitteeChair: Ohno-Machado
NIH: Ian Fore, Jennie Larkin, Ron MargolisDawei Lin, Alison Yao (program officers)
Task Force and Community Engagement leaders
Taskforce 1: Data Shop UT Houston: Xu
Pilot Projects
Ontologies and Standards
Taskforce 2: Data Showcase
U Michigan: Alter
Pilot Projects
Visualization and User Needs
Taskforce 3: Data Market
Oxford U: Sansone
Pilot Projects
Incentives and Publishing
Supplements
Collaborating PIs
NIH-funded projects
Data and Expert Knowledge
Management
UCSD: Mahera (general)Farcas (technical)
Community Engagement
UCSD: Martone
Data Shop
Linking Data to the Literature
Ontology-Based
Discovery Tools
Data Showca
se
Meeting User Needs
Intelligent Search and Visualizatio
n
Data Market
Publishing for Reuse
Citation Networks
and Incentives
1 2 3
Task Forces
6
Administrative SupplementsCOHEN, TREVOR
UNIVERSITY OF TEXAS HOUSTON
Using Biomedical Knowledge to Identify Plausible Signals for Pharmacovigillance
KLEINSTEIN, STEVEN H. YALE UNIVERSITY
Computational Tools for the Analysis of High-throughput Immunoglobulin Sequencing
WAGER,TOR D.
UNIVERSITY OF COLORADO fMRI-based Biomarkers for Multiple Components of Pain
WINSLOW, RAIMOND L
JOHNS HOPKINS UNIVERSITY The Cardiovascular Research Grid
LIU, HONGFANG MAYO CLINIC NLP for Clinical and Translational Research
MATTINGLY, CAROLYN J
NORTH CAROLINA STATE UNIVERSITY
Generation of a Centralized and Integrated Resource for Exposure Data
O'MALLEY, BERT W
BAYLOR COLLEGE OF MEDICINE A Hub for the Nuclear Receptor Signaling Atlas
HRIPCSAK, GEORGE M.
COLUMBIA UNIVERSITY Discovering and Applying Knowledge in Clinical Databases
7
Data Shop Pilots Year 1
Linking Publications and Underlying Data Using NLPHua Xu, UT Houston
Rating Relationship in Imaging Reports: Machine vs. Crowdsourcing ApproachesRicky Taira, UCLA
8
Data Showcase Pilots Year 1
Recommendation System: Machine Learning and CrowdsourcingXiaoqian Jiang, UCSD
Intelligent Search and Visualization of DataTodd Johnson, UT Houston
9
Data Market Pilot Year 1
Citation and Data Access Metrics for a Molecular Data Bank and Related ResourcesPeter Rose, UCSDChun-nan Hsu, UCSD
10
Timeline
11
Thank you!
Questions?