Disability Surveys in the Disability Surveys in the PacificPacific

A collaboration betweenA collaboration betweenInclusion International, Asia Pacific Inclusion International, Asia Pacific

RegionRegionNZAIDNZAID

&&participating Pacific countriesparticipating Pacific countries

Inclusion InternationalInclusion International

• Inclusion International is a Human Rights Inclusion International is a Human Rights worldwide agency of national non-worldwide agency of national non-government organizations (NGOs) working government organizations (NGOs) working in partnership at supporting, representing in partnership at supporting, representing & advocating for and with children and & advocating for and with children and adults with intellectual disability and their adults with intellectual disability and their families.families.

Inclusion International promotes shared Inclusion International promotes shared values of respect, diversity, solidarity, values of respect, diversity, solidarity, human rights and inclusion for all people human rights and inclusion for all people with disability. with disability.

BackgroundBackground

• 1998 – NZAID (then NZODA) identified 1998 – NZAID (then NZODA) identified Disability Issues as one of four key prioritiesDisability Issues as one of four key priorities

• 2000 –First individual disability Survey 2000 –First individual disability Survey conducted in Samoa for Min. of Educationconducted in Samoa for Min. of Education

• 2001 – Fiji meeting organised to progress 2001 – Fiji meeting organised to progress recommendations from 1998 – Samoa recommendations from 1998 – Samoa survey model sharedsurvey model shared

• 2001 – “Disability in the Pacific” project 2001 – “Disability in the Pacific” project initiated by Inclusion International, Asia initiated by Inclusion International, Asia Pacific with support from NZAID Regional Pacific with support from NZAID Regional Health ProgrammeHealth Programme

ProcessProcess• IIAP invited to share survey designIIAP invited to share survey design• Survey Advisory Committee establishedSurvey Advisory Committee established• Survey Advisory Committee adapt IIAP survey Survey Advisory Committee adapt IIAP survey

form, determine method of coordination, identify form, determine method of coordination, identify surveyors/enumerators and set & source a budgetsurveyors/enumerators and set & source a budget

• Interviewers/enumerators trained in cooperation Interviewers/enumerators trained in cooperation with IIAPwith IIAP

• Survey conducted & survey form completed for Survey conducted & survey form completed for each individualeach individual

• Survey forms entered into databaseSurvey forms entered into database• Data analysed in cooperation with IIAPData analysed in cooperation with IIAP• Next steps/priorities determined by key Next steps/priorities determined by key

stakeholdersstakeholders

CountryCountry PopulationPopulation

(based on (based on 2003 2003 NZAID)NZAID)

3% 3% Predicted Predicted PWDPWD

Survey Results Survey Results to dateto date

% to date% to date

Cook IslandsCook Islands 21,00021,000 630630 642642 3.05%3.05%

KiribatiKiribati 91,00091,000 2,8502,850 3,8403,840 4.2%4.2%

NiueNiue 2,1002,100 6363 report most in report most in NZNZ

SamoaSamoa 178,000178,000 5,3405,340 4,0624,062 2.2%2.2%

Solomon Is.Solomon Is. 500,000500,000 15,00015,000 9,000/ongoing9,000/ongoing

TokelauTokelau 1,4001,400 4242 1717 1.2%1.2%

TongaTonga 108,000108,000 3,2403,240 900/ongoing900/ongoing

TuvaluTuvalu 11,00011,000 330330 (scoping visit) (scoping visit) 4646

.4%.4%

VanuatuVanuatu 199,000199,000 5,9705,970 (pilot) 235(pilot) 235 .11%.11%

Some general benefits as a Some general benefits as a result of the survey….result of the survey….• PWD more visible and some new groups for people PWD more visible and some new groups for people

with disability have formedwith disability have formed• Parent support groups beginningParent support groups beginning• Teachers, health workers etc. receive training re: Teachers, health workers etc. receive training re:

disability issuesdisability issues• Cooperation between stakeholders to progress Cooperation between stakeholders to progress

resultsresults• Equipment needs identified and actioned where Equipment needs identified and actioned where

possiblepossible• Inclusive Education being developedInclusive Education being developed• Work & vocational options being developedWork & vocational options being developed• Advocacy work developing & dynamic!! Advocacy work developing & dynamic!!

Cook IslandsCook Islands• National Policy on Disability National Policy on Disability

developeddeveloped

• Special Education Policy & Special Education Policy & AdviserAdviser

• Students with disability Students with disability attending regular schoolattending regular school

• Equipment deliveredEquipment delivered

• Disability Action Team Disability Action Team coordinating coordinating implementation of the implementation of the Policy Policy

• Visiting specialists using Visiting specialists using database infodatabase info

Cook Islands…..Cook Islands…..

SamoaSamoa• Survey Committee now Survey Committee now

Disability Task Force – Disability Task Force – cabinet paper to cabinet paper to recommend desk in the recommend desk in the Office of the Prime MinisterOffice of the Prime Minister

• MOH & MOE collaborate to MOH & MOE collaborate to do Epilepsy brochure for all do Epilepsy brochure for all teachersteachers

• Family Empowerment Family Empowerment workshops conducted & workshops conducted & parent support groups parent support groups startedstarted

• Equipment needs identified Equipment needs identified and some equipment and some equipment delivereddelivered

• People First group ( for People First group ( for people with intellectual people with intellectual disability) started by NOLAdisability) started by NOLA

• Inclusive Education Inclusive Education developingdeveloping

• NUS – compulsory IE for all NUS – compulsory IE for all teacher traineesteacher trainees

• Early Intervention Team Early Intervention Team establishedestablished

• Samoan sign language Samoan sign language developed and taught in developed and taught in villages (manual written)villages (manual written)

• Samoa assisting Tonga Samoa assisting Tonga with Surveywith Survey

• Samoa census now Samoa census now includes disability includes disability identificationidentification

Solomon IslandsSolomon Islands

• Survey Committee Survey Committee formed (DPSC)formed (DPSC)

• Cooperation between Cooperation between Statistics & CBR for Statistics & CBR for SurveySurvey

• Teacher training in Teacher training in Special Education at Special Education at SICHE being deliveredSICHE being delivered

• Red Cross school Red Cross school promoting Inclusive promoting Inclusive EducationEducation

• Equipment needs Equipment needs identifiedidentified

Solomon Islands…Solomon Islands…

TongaTonga

• Survey Committee Survey Committee formed (DACTION)formed (DACTION)

• People with Disability People with Disability group formedgroup formed

• Being supported from Being supported from Samoa by NOLA Samoa by NOLA

• Pilot survey begunPilot survey begun

• Students with disability Students with disability being included in being included in school sports etc.school sports etc.

TongaTonga

VanuatuVanuatu• Pilot carried out in Tafea Pilot carried out in Tafea

district – national survey district – national survey being organisedbeing organised

• Fieldworker training Fieldworker training held and manual held and manual developeddeveloped

• Special Education Special Education Adviser appointedAdviser appointed

• Special Education Special Education training at Teachers training at Teachers CollegeCollege

• Equipment needs Equipment needs identifiedidentified

Vanuatu….Vanuatu….

KiribatiKiribati• Survey Committee Survey Committee

have completed the have completed the national survey.national survey.

• Workshop held with Workshop held with key stakeholders to key stakeholders to discuss survey results discuss survey results and set priorities. and set priorities.

• Te Toa Matoa, hosted Te Toa Matoa, hosted survey & continue to survey & continue to develop acting & develop acting & music talents, music talents, development of development of WWD, vocational WWD, vocational centre centre

• Equipment needs Equipment needs identified & sent over identified & sent over

• Rehabilitation Unit Rehabilitation Unit establishedestablished

Kiribati….Kiribati….

So…how have/can the survey results been So…how have/can the survey results been used to benefit people with disability and used to benefit people with disability and their families?their families?• PlanningPlanning

– Education – How many cwd? How old? Education – How many cwd? How old? What are their needs? How many What are their needs? How many teachers do we need? What kind of teachers do we need? What kind of training do they need? How do we use training do they need? How do we use specialists? How do we involve specialists? How do we involve parents/family/community in the parents/family/community in the education process? How do we use this education process? How do we use this info to promote Inclusive Education?info to promote Inclusive Education?

– Health - What kinds of health issues are Health - What kinds of health issues are emerging? What can be prevented? emerging? What can be prevented? Who needs surgery? Medication? Who needs surgery? Medication?

– Social Welfare, Access, Community Social Welfare, Access, Community Participation, etc.Participation, etc.

Using data to coordinate….Using data to coordinate….– DonorsDonors– EquipmentEquipment– ProjectsProjects– Visiting specialistsVisiting specialists– EventsEvents

Promoting PWD….Promoting PWD….– As role modelsAs role models– As teachers/trainersAs teachers/trainers– As policy developersAs policy developers– AdvocatesAdvocates