Affiliate:

Empowering and enabling charities to

become trusted partners in the

commissioning process

Charlie Peel

Project Manager

Neurological Commissioning

Support

• A unique partnership of three neurological organisations:

a broad commitment to effective commissioning

– MS Society

– Parkinson’s UK

– MND Association

• Work extends to other conditions

– 2011 - affiliate partnership with Epilepsy Society

– Ad hoc partnership work in locality projects

• A consultancy service to health and social care

• Wide expertise – customise services and transfer

‘solutions’

Neurological Commissioning

Support

• Enabling commissioners to have access to core resources

for neurology commissioning

• Empowering professionals, volunteers and service users at

a local level to work together for the benefit of the

neurological community

• Promoting cross-sector working and partnerships

• Highlighting areas where service

improvement and efficiencies could be made

• Redesigning services for better quality and

value BUT from a service user perspective

NCS…

– Reactive – as consultancy to commissioners

wanting help to redesign neurology services

– Proactive in areas of poor performance

providing solutions for engagement with

commissioners

– Demonstrating innovation with DH IESD

grants

Discussion

• What do you think of when someone says

‘commissioning’?

• Is it a familiar concept to your organisation, or not?

• What, if anything, have

you done within service

development, influencing

or commissioning in the past?

• Do you feel ‘up to speed’ with

the changes in health and social

care commissioning?

We help commissioners through

the maze of commissioning

neurology services

What we provide

• Time limited consultancy

for H&SC commissioners

• JSNA with local public

health department

• Mapping, audit and gap

analysis based on user

opinion

• Interpretation of findings

• Mining data and

interpretation of finding

• Service redesign that

might include de-

commissioning

• Unbundling neurology

spend

• Project management to

facilitate change

• All from a service user

perspective

Case study: Cornwall

Can-do Island

To this

Un-united States of Care

From this

Case study: Cornwall

Gaining understanding: • QN audit of services

• Examination of data

• Unbundling of spend

Resulting in: • Educational events – at

capacity

• Design and rollout of info

booklet

• Appointment of 2 x Neuro care

advisors

• Jointly commissioned service

for Huntington’s

• Targeted exercise programmes

• Neuro hub on Isles of Scilly

Inputted into by: • CAN-DO local service user group

• Health and social care

professionals

• Local and national voluntary sector

• Existing evidence of service

efficacy

Prompting further

investigation: • Use of telehealth for neuro

patients

• In-depth NICE audit for epilepsy

• ‘Get it on Time’ audit for

Parkinson’s re medication

management in acute

Case study: Surrey

Prompting further investigation: • Identification of ‘complex’ patients and

using telehealth

• In-depth NICE audits for Parkinson’s

and epilepsy

Gaining understanding: • QN audit of services

• Examination of data

• Unbundling of spend

Resulting in: • Development of JSNA for

neurology

• Design of integrated plans for

people living with MND

JSNA sets out: • Level of need juxtaposed with available services

• Evidence base – what works and what doesn’t

• Areas of unmet need

• At risk groups within demographic

• Key recommendations for further investigation

• Key recommendations for commissioning

The tools

of our trade…

Voluntary sector innovation

• Headway Cornwall set up a rehabilitation programme dramatically

aiding recovery

• Diabetes UK have produced an simple app to help people log levels

of blood glucose, carbohydrates and calories

• The James Parkinson Centre in Cornwall is enabling self care and

better access to information

• Voluntary organisation Gloucestershire Neurological Alliance

created a booklet that captures all local neurology service

information in one place

• An intervention from Epilepsy Society has significantly reduced

seizure rates.

• The PSP Association have researched and created a care pathway,

guide and educational material for PSP and are rolling out a

masterclass to improve professional understanding

Voluntary sector innovation

• The Mental Health Strategic Partnership, a collaboration of a number of mental health charities has produced a series of leaflets for the different bodies involved in localised commissioning:

‘No Health without Mental Health’

There are leaflets for each of the

following:

• Clinical Commissioning Groups

• Directors of Public Health

• Health and Wellbeing Boards

• Local Authorities

• Local Healthwatch

• Overview and Scrutiny Committees

VSCS programme

• Voluntary sector has so much experience and expertise

currently untapped

– Not used effectively in health and social care commissioning in

the past

– Shift towards localised commissioning provides real opportunity

to change that

• NCS historically worked ad hoc with individual charities

• VSCS programme designed to provide (individual/partnering)

charities

– Mentoring and shadowing

– Support and training

– Resources and guidance on tool creation

– Professional links and opportunities

VSCS projects

Individual charities:

Groups of charities: • The Rheumatology Commissioning Support Alliance

• The Spinal Injuries Coalition

Why do it?

• People affected by a given condition are the true

experts

• Giving service users choice and control over their own

treatments and consulting them in decision-making

leads to improved outcomes and greater service

efficiency

• Charities are:

– one of the strongest vehicles to service user

involvement

– Repositories of qualitative data, best practice

evidence and innovative ideas

So what do you have to offer?

• What are the different groups/bodies you could engage with

• How could you engage with them – what do you have to

offer?

• Are there other voluntary sector agencies

you could partner with to increase your

influence – either in a formal or informal

arrangement?

• Do you have a ‘commissioning toolkit’

or tools which could be geared towards

commissioners?

What will be your first step into commissioning?

Affiliate:

Thank you

charlie.peel@csupport.org.uk 07803 504125

For more information on the VSCS programme, and to access our

resources visit www.ncssupport.org.uk