EUROPEAN DISABILITY FORUM Nothing about us without us Carlotta Besozzi

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EUROPEAN DISABILITY FORUM Nothing about us without us Carlotta Besozzi. Our history. HELIOS II ( 1993-1996 )- European Community Action Programme for people with disabilities creates EDF - PowerPoint PPT Presentation

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Nothing about us without us

Carlotta Besozziwww.edf-feph.org1Our history

HELIOS II (1993-1996)- European Community Action Programme for people with disabilities creates EDF1996 EDF established as an independent organisation by national councils and European NGOs & 2000-2003: non discrimination legislation & European Year of persons with disabilities with first action plan2004 2007 enlargement with 10-12 new national councils2007 - review of constitution:Review of EDF governing structures national members from all over Europe2002-2007 negotiation & adoption of the UN CRPD & COE action plan2008 1million4disability campaign2008- today Membership of IDA & international work2011-2013: EU concludes the UN CRPD & EU framework established

2Who are we?

human rights equal opportunities non-discrimination

MissionA society that includes pwd is a better society for everyoneVision guarantee fundamental rights promote active participation for persons with disabilitiesValues3Values on which our work is based

Self-advocacy: we are an organisation of persons with disabilities and their familiesInvolvement: nothing about us without usIndependence: we make sure that our organisation remains independent, and that our members decide upon the EDF work and positions.Visibility: we demand that the rights persons with disabilities are visible in all sectors of life.Inclusion: we fight for the inclusion of persons with disabilities in all aspects of the society. Solidarity: we work to build a stronger and more united disability movement. Partnership: we build alliances with other organisations which share our goals and help us to promote the rights of persons with disabilities.

4A strong network

Supporting a two-way communication flow in order to develop effective campaigns at EU and national level;Shaping work and campaigns at EU level through their ideas and experiences, and translating contributions into concrete proposals to the EU decision-makers;Supporting exchange of experiences and practices;Providing trainings on specific areas fostering cooperation among them;Providing regular information tools on the latest EU developments on disability issues (members mailing, publications, members only website etc) as well as communication tools, which can be used by EDF members in their own work;Developing capacity building projects to empower and structure disability organisations where needed.

5Our members

Our membersMore than 100 organisationsFull members : national councils from EEA & European NGOsComposed & run by a majority of persons with disabilitiesOrdinary members:European NGOs for persons with disabilities Observer membersNational councils from the rest of EuropeAssociate members: European, national, regional organisations

6Our members

Our structureFull members & Ordinary members FORM Annual General AssemblyELECT every 4 years: President, Board & procedural committeesThe Board elects the Executive Committee & appoints and supervises advisory bodiesObserver members attend AGA + Board & Associate members attend AGAAll governing bodies are chaired by the PresidentThe Secretariat implements the work

7What does EDF President do?

chairs the meetings of the General Assembly, the Board of Directors and the Executive Committee. Organises, on behalf of the Executive Committee, the representation of the Association at external meetings and events.Supervises, on behalf of the Executive Committee, the activities of the SecretariatTakes decisions on matters of urgency

8What does EDF EXEC do?

Is responsible for the daily management of EDFDecides on the representation of the Association at external meetings and events;Appoints and supervises Secretariat; Takes over tasks of the Board in between meetings in case of urgency;Has other powers that are conferred by the GA or Board and minutedChairs advisory bodies (except youth Committee)Has responsibilities in a number of policy areas (see EXEC committee report)

9What does EDF board do?

Acts in the common interest of the Association and of the whole membership of the Association. Is the key link with EDF constituencyDecides by consensus and meets 3 times a yearIs accountable to the General AssemblyPrepares the draft annual work plan;Prepares the draft annual budget and accounts;Supervises the daily management of EDF and manages EDF;Supervises the management of the finances of EDF in conformity with the budget; Supervises the work of the SecretariatSupervises the co-operation between the Association and third parties;Supervises the external relations of the Association;Decides on the membership of EDF to other organisations;Approves membership applications and excludes members;Is responsible for CommitteesHas all other powers given by the GA

10What does EDF Secretariat do?

Implements the broad policy decisions made by the governing bodies. Performs the day-to-day tasks/administration;Coordinates and implements the annual work programme;Coordinates and implements the decisions of the Executive Committee;Assists the Executive Committee, and in particular the President;Organises the meetings of EDFRepresents EDF within specific tasks.Is accountable to the Executive Committee.The Director coordinates the work of the Secretariat and represents the Association externally in its daily management

11What does EDF Secretariat do?

Director: Carlotta Besozzi: Community based services Deputy Director: Javier Gemes : International Cooperation and IDAVirginie Niyonzima: assistant to the Director (& Executive Committee)Etienne Cuche: Parliamentary Officer (Youth)Simona Giarratano: social policy Officer.An-Sofie Leenknecht: Human rights officer (women)Marie Denninghaus: Mobility & TransportAlejandro Moledo: New technologies & Research Officer (Nadge Riche)Lila Sylviti: Communication OfficerMuriel Da Via: Finance OfficerAnn Vervaecke: Event Officer

12 monitor EU initiatives to mainstream disability rightspropose new legislation and policies Provide expertise to decision makersPartner with organisations

How do we work?

EU institutions

13EDF Work priorities 2014

EDF is currently running 4 top campaigns:

Observatory of the crisisUN CRPD Campaign on Freedom of Movement European elections

EDF Work priorities 2014

Observatory of the crisisThe Economic crisis in theEU is having devastating effects on persons with disabilities. EDF has created the EDF observatory on the impact of the economic crisis on the rights of persons with disabilities. The Observatory monitors, through collection of examples by EDF members, measures taken by EU member states, European Union institutions and International financial institutions.EDF Board has also issued recommendations to the EU institutions on a Social investment packEDF has made the crisis a central issue of the European Parliament of persons with disabilities in December 2012top campaignsEDF Work priorities 2014

UN Convention on the rights of Persons with disabilities

Full enjoyment of all Convention rights by all persons with disabilities in Europe is the overarching objective of all EDF work. The letter and the spirit of the Convention guides our strategy, annual work programmes as well as individual policy areas and projects that we promote.

Our work on the UN CRPD is fivefold:

1. Work within the EU framework the independent mechanism that has been created at EU level, in compliance with article 33.2, to promote, protect and monitor the implementation of the CRPD. Following a successful advocacy, EDF has ensured that it is a full a full member of the Framework. EDF has recently been nominated as Chair of the EU Framework.

top campaigns

EDF Work priorities 2014

UN Convention on the rights of Persons with disabilities

EDF is advocating for a full and unconditional implementation of the UN CRPDThe EU must change the way it deals with Human rights policies, enacts legislation and policies and manages its own institutions. EDF had a first meeting with the Director-Generals of European Commission services on the CRPD, and is looking at a similar meeting with the Council of the EU. EDF is also pushing for the creation of a task Force on the CRPD at the European Parliament. EDF is constantly lobbying to make sure that individual CRPD articles are taken into consideration by the EU while designing and implementing legislation, programmes and policies. For example, EDF relies on Article 9Accessibility and 19 Living independently and being included in the community during its advocacy work on the European Structural Funds,. top campaigns

EDF Work priorities 2014

UN Convention on the rights of Persons with disabilitiesEDF is supporting its members in their efforts to implement the Convention at the national level. EDF organises capacity building, trainings and seminars to improve members understanding of UN CRPD and facilitate their exchanges with the UN CRPD Committee using expertise from members.EDF is also working on a parallel report to the UN CRPD Committee for the implementation of the Convention by the EU.

top campaigns

EDF Work priorities 2014

Freedom of movement and web accessibility

EDF advocates for the removal of barriers that prevent persons with disabilities from being able to work, establish themselves, study and travel and have easy access to goods and services across the EUEDF has engaged in intense advocacy work on:the European Accessibility Act, the proposed directive on the accessibility of public sector bodies websites the European Mobility Card.In 2012, EDF has produced