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FMD Chat Together 2013
Where Weve Been,Where Were Going
Sarah E. Kucharski
CEO/Chairman & Founder
@FMDChat #FMDAware
facebook.com/fmdchat
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Going
2/21
Visit FMD Chat at facebook.com/fmdchat.
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Going
3/21
Closed FB group = 214 members
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7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're
Going
4/21
Visit rareconnect.org >> Fibromuscular Dysplasia
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Going
5/21
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Visit fmdchat.org
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Going
7/21
Overall Pageviews = 33,738
Pageviews Last Month = 1,365
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8/21
Added to 37 lists including: Society for Interventional
Radiology, Mayo Clinics Center
for Social Media, CardioRad (Cedars-Sinai & UCLA), UVA
Health System, and
Boston Childrens
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Going
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Learn more about the Healthcare Hashtag Project at
symplur.com.
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Going
10/21
Visit FMD Chats YouTube channel via fmdchat.org >>
Connect
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Going
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Rare Disease Day
Feb. 28, 2013
Visit rareadvocates.org
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Going
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Histiocytosis Association of America
Jim & Leisa Greathouse
Alternating Hemiplegia of Childhood
Jeff Wuchich
FMD Chat
Sarah E. Kucharski
Rare Disease Day
Feb. 28, 2014
rarediseaseday.org
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Going
14/21
NIH Rare Disease Day
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7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're
Going
15/21
Visit nopw.org.
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Going
16/21
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7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're
Going
17/21
MedCity News ENGAGE
Washington, D.C.
June 5-6
medcitynews.com
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Going
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The Walking Gallery of Healthcare
@ReginaHolliday
reginaholliday.blogspot.com
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Going
19/21
Visit medicinex.standford.edu.
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7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're
Going
20/21
Visit bcrenalagency.ca.
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Going
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Goals for 2014
Participation in RDLAs RDD in DC & RDD at NIH Monthly chats
on Facebook and Twitter
Website redesign
501c3 status
NORD membership
Research funding
FMD Chat 2014 4th Annual US Conference on Rare Diseases and
Orphan Products
