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The NOMID Alliance is a tax-exempt non-profit organization formed by US CAPS patients and parents in January of 2006. • We help people worldwide with autoinflammatory diseases to find needed care & treatment, and are working on increasing CAPS awareness.

NOMID Alliance

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Colleen's presentation at the Autoinflammation Congress Amsterdam

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Page 1: NOMID Alliance

The NOMID Alliance is a tax-exempt non-profit organization formed by US CAPS patients and parents

in January of 2006. • We help people worldwide with autoinflammatory diseases to find needed care & treatment, and are

working on increasing CAPS awareness.

Page 2: NOMID Alliance

INCREASING AWARENESS CAN LEAD TO EARLIER DIAGNOSIS AND TREATMENT THAT

CAN GREATLY IMPROVE PATIENT’S LIVES

• 2008: CAPS guidebook was first distributed to doctors, hospitals, and patients worldwide.

• Many patients have found our website, plus the CAPS guidebook PDF and call us for information.

• Patients take the guide to their doctors, then get diagnosed and onto medications for CAPS.

• Some new patients have suffered for decades undiagnosed, but many are infant diagnoses.

• Early diagnosis & treatment = better prognosis.

Page 3: NOMID Alliance

BEFORE AND AFTER STARTING TREATMENT FOR CAPS

Page 4: NOMID Alliance