Sexual and Gender Minority Research Activities at NIH · Sexual & Gender Minority Research Office 18 Proportion of SGM-related Projects by Type of Training/Career Funding Mechanism,

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Sexual & Gender Minority Research Activities at NIH

Karen L. Parker, PhD, MSW (Pronouns: She & Her)Sexual & Gender Minority Research Office

Division of Program Coordination, Planning, and Strategic InitiativesOffice of the Director, NIH

September 1, 2017

SGMRO Update

3Sexual & Gender Minority Research Office

NIH SGM Strategic Plan

Goal 1: Expand the Knowledge Base of SGM Health and Well-being Through NIH-Supported Research


Goal One Progress to Date• Funding Opportunities

• Health of SGM Populations (PA 15-262, 8 participating components)• SGM Administrative Supplements

• FY 2016 (PA 15-329, 15 components)• FY 2017 (PA 17-098, 19 components)

• Other Related FOAs

• Health Disparities Designation• SOGI Data Collection

• Clinical Center Efforts• All of Us Program

Sexual & Gender Minority Research Office 5


Goal 2: Remove Barriers to Planning, Conducting, and Reporting NIH-Supported Research about SGM Health and Well-being


Goal Two Progress to Date • Department of Health and Human Services LGBT Committee

• Research and Surveillance Working Group• Federal Interagency Working Group

• Current Measures• Evaluations of Measures• Research Agenda

• Technical Assistance• Communications

• Extramural Community• NIH • Across Department



Goal 3: Strengthen the Community of Researchers and Scholars Who Conduct Research Relevant to SGM Health and Well-being


Goal Three Progress to Date

• Grantspersonship Workshops • NIMHD Summer Research Institute

• Presentation/Connections with Participants• Co-sponsorship• SGM research representation

• Training and Mentorship• Office of Intramural Training and Education



Goal 4: Evaluate Progress on Advancing SGM Research


Goal Four Progress to Date

• Developed Action Plans for Each Goal Area• Goal Subcommittee Chair Reports• Feedback from RCC

• FY 2015 Portfolio Analysis• RCDC Category Validation

• FY 2016 SGMRO Annual Report


Portfolio Analysis Findings

Source: NIH ReporterData reported by administering NIH Institute/Center/Office


$59,043,639

$32,278,080

$26,931,099

$18,057,038

$10,201,837 $8,279,332

$5,020,318 $4,465,457

$10,712,993

$0

$10,000,000

$20,000,000

$30,000,000

$40,000,000

$50,000,000

$60,000,000

$70,000,000

NIAID NIDA NIMH NICHD NIMHD NCI NIAAA NIGMS Other

Funding for SGM-Related Projects by Institute/Center/Office, FY 2016 (N=334)

*Other includes NIA, NINR, NIEHS, NIDDK, NHLBI, OD, FIC, and NIBIB


85

74

49 49

16 1613

7 7 64

2 2 2 1 10

10

20

30

40

50

60

70

80

90

NIMH NIDA NIAID NICHD NIAAA NIMHD NCI NIA NINR NIDDK NIGMS FIC NHLBI OD NIBIB NIEHS

Number of SGM-Related Projects by NIH Institute/Center, FY 2016 (N=334)


0.30%

0.30%

0.90%

1.80%

1.80%

3.30%

5.10%

6.90%

9.00%

16.20%

35.60%

41.30%

73.10%

0.00% 10.00% 20.00% 30.00% 40.00% 50.00% 60.00% 70.00% 80.00%

Teenage Pregnancy

Eating Disorders

Smoking and Health

Suicide

Obesity

Depression

Contraception/Reproduction

Alcoholism, Alcohol Use, and Health

Cancer

Sexually Transmitted Diseases/Herpes

Substance Abuse

Mental Health

HIV/AIDS

Proportion of SGM Projects by Disease/Condition, FY 2016 (N=334)


$141,332,327

$83,222,484

$44,067,370

$34,231,686

$20,411,751

$7,568,431 $5,605,139 $3,290,574 $3,019,232 $1,696,327 $1,095,444 $171,011 $58,794 $0

$20,000,000

$40,000,000

$60,000,000

$80,000,000

$100,000,000

$120,000,000

$140,000,000

$160,000,000

Funding for SGM-related Projects by Disease/Condition, FY 2016 (N=334)


Proportion of Projects by NIH Grant Program Type, FY 2016 (N=334)

Research (R), 204, 61%

Research Career Activities (K), 39, 12%

Cooperative Agreements (U), 39, 12%

Program Projects and Centers (P),

23, 7%

Fellowships (F), 20, 6%

Intramural (Z), 5, 1%Institutional Training and Director

Program Projects (D), 3, 1% Training Grants (T), 1, 0%

Sexual & Gender Minority Research Office


Proportion of SGM-related Projects by Type of Training/Career Funding Mechanism, FY 2016 (N=60)

Research Scientist Development Award (K01), 19, 32%

Predoctoral Fellowship (F31), 14, 23%

Mentored Patient-Oriented Research Career Development Award (K23), 13, 22%

Postdoctoral Fellowship (F32), 6, 10%

Clinical Investigator Award (K08), 4, 7%

Academic/Teacher Award (K07), 1, 1%

Midcareer Investigator Award in Patient-Oriented Research (K24), 1, 1%

Career Transition Award (K99), 1, 2%

Institutional Training (T32), 1, 2%

Sexual & Gender Minority Research Office


94%

6%

Proportion of Projects With New/Early Investigator, FY 2016 (N=121, 120 RO1s and 1 DP2)

Not New/Early New/Early

Number of SGM-Related Projects by Location, FY 2016 (N=334)



NIH Sexual & Gender Minority Research Timeline


Portfolio Analysis SummaryFY2015

301 Projects $161,297,200

FY2016

334 Projects$174,989,793

Nine percent increase in number of projects from 2015 to 2016

Since 2010, 44% increase in projects (232 versus 334)

Legislation

21st Century Cures Act

• Signed into law by President Barack Obama on December 13, 2016.

• Passed with broad bipartisan support.• Made provisions focused on the FDA and NIH.• Contained SGM-specific provisions.


Public Health Service ActSEC. 404N. [283] POPULATION FOCUSED RESEARCH

The Director of the National Institutes of Health shall, as appropriate, encourage efforts to improve research related to the health of sexual and gender minority populations, including by:• facilitating increased participation of sexual and gender minority

populations in clinical research supported by the National Institutes of Health, and reporting on such participation, as applicable;

• facilitating the development of valid and reliable methods for research relevant to sexual and gender minority populations; and

• addressing methodological challenges.


Planned Next Steps

FY 2018 Plans—Feedback from RWG

•Measurement Workshop•Best Practices in SGM Research Manual •Regional SGM Research Workshops•NIH SGM Early-Investigator Award•Review of NIH SGM Research Strategic Plan


Measurement Workshop (Goal 1)

Goals• Review current data collection efforts at the national and

state levels• Identify gaps in SGM-related measurement literature• Develop a 5-year research agenda to promote research on

improved measurement


Best Practices in SGM Research Manual (Goal 2)

Goals• Assist investigators engaged in SGM health research to

develop competitive applications • Educate NIH peer reviewers who evaluate SGM-focused

applications • Support CSR staff who develop peer review committees

and communicate with applicants about review• Provide NIH staff resources to help plan new SGM-related

initiativesSexual & Gender Minority Research Office 29

Regional SGM Workshops (Goal 3)

Goals• Increase understanding of NIH structure and grant

processes• Develop mentoring relationships within the extramural

research community• Enhance capacity to design, conduct, and report on SGM

research


Early Investigator Award (Goal 3)

Goals• Recognize early-stage investigators who have made

significant, outstanding research contributions to SGM health research

• Promote and encourage SGM health research among early-stage investigators

• Raise awareness about SGM health research


Review of Strategic Plan Progress (Goal 4)

Goals• Release an RFI about the public’s perceptions on progress

made on the NIH SGM Research Strategic Plan• SGM RWG to conduct a mid-course review of progress on

the SGM Research Strategic Plan, taking into account public feedback

• Develop a report with recommendations to the Council of Councils on any suggested course corrections


Questions?


NIH…Turning Discovery Into Health


Documents

Sexual and Gender Minority Research Activities at NIH · Sexual & Gender Minority Research Office 18 Proportion of SGM-related Projects by Type of Training/Career Funding Mechanism,