Young Onset Dementia

(YOD) Worcestershire

Consultation and Review

Event

23rd March 2017

Plan for the afternoon:

- Young Onset Dementia in Worcestershire –

Where are we now? (Jo Scarle – YOD

Development Officer – Worcestershire)

- Talks from people living with YOD and family

members (Marji Plowright, Ashley Little,

Jane Twigg)

- The Young Dementia UK Network (Sarah

Plummer)

- Group Work

- Feedback

Young Onset Dementia in

Worcestershire – Where are

we now? Jo Scarle (Young Onset Dementia

Development Officer)

Awareness Raising/Education/Training

St Richards Hospice

Dementia Care Trainer (WHCT)

Dementia Studies

Foundation Degree

Dementia Awareness

Week

Psychiatrists Teaching Session (WHCT)

Lunchtime Training – GP’s Upton Surgery

Care Navigators Training –

South GP’s

Local MH Teams/ AHP’s

Training Package – Learning Disability

and dementia

Occupational Therapy Students

Supporting with the review of

Alzheimer’s Society Publication

Trust Youth Board Young-Onset

Dementia Conference

Special Interest Group - Young-Onset Dementia

• Supporting children when a family member is living with

YOD

• Supporting people experiencing communication difficulties

• Driving

• What’s it like to live with dementia at a younger age – a

review of the literature

• Behavioural variant frontotemporal dementia

• Learning disability and dementia

A Website: Information for people living with young onset

dementia and their families

http://www.hacw.nhs.uk/our-services/young-onset-dementia-

new

Services and Support

• Connection Point

• Dementia Voice

- A group for younger people living with dementia which meets

once a month. We have just secured a free venue

(Community Room, Waitrose, Worcester) and are using

Sharelink Transport.

• Family Voice

- A group for family members/ friends of someone who is

living with YOD. Meets 6 times a year during Connection

Point Meetings.

• Al’s Café’s

Worcestershire Alzheimer’s Society run 3 evening café’s for people living

with YOD and their families/ friends – Worcester, Redditch and

Kidderminster. These groups provide advice, information and an

opportunity to build peer support networks.

• Rare Dementia Support

Although not specifically for people living with YOD; it is recognised that

rarer types of dementia occur more commonly at a younger age.

Alzheimer’s Society have built on the success of groups they ran last year

to establish 4 meetings which will run during 2017 to support people living

with types of Frontotemporal dementia, Logopenic Aphasia and Posterior

Cortical Atrophy.

• Meeting Dem (Droitwich)

Which is open 3 Days a week is currently providing support to a number of

younger people living with dementia and their families/ supporters.

• Dementia Advice Service

The Dementia Advice Service offers information and advice to

people who are living with dementia, as well as their family

and friends. This service is also currently piloting a scheme in

some GP surgeries in the south of the county where a

Memory Loss Advisor is linked with some surgeries to

support people who may be living with dementia.

ConnectED Service

Offers 1-1 support to people living with YOD – helping people

to maintain or find new interests and activities to be involved

in.

Worcestershire Health and Care NHS Trust

“Young-Onset Dementia Champions”

Early Intervention

Dementia Service

Older Adult Mental Health

Services

Adult Mental Health Services

Admiral Nursing Service

Learning Disability Services

Speech and Language Therapy

Links with Worcestershire Acute NHS Trust

Employment Benefits

Advice Network Worcestershire

Disability Employment Advisor Service

Other local services currently supporting or keen to look

at options for supporting people living with YOD

Adult

Social Care (WCC)

Care Farms Care Home Providers

Fire Service

Headway Health Walks

Home Care Providers

Link Nurseries

Shared Lives (WCC)

Worcs Association

of Carers

Sharing Information

Database Newsletter Website

What are the Benefits of Delivering Support in this way?

Although we have no dedicated clinical team working

with people who are living with young-onset dementia in

Worcestershire, the role of Young-Onset Dementia

Development Officer does provide a local voice and

supports in raising awareness about young-onset

dementia. Having the opportunity to provide training and

to work alongside other colleagues in health, social care

and the voluntary sector to look at how we can all come

together to better meet the needs of younger people

living with dementia and their families is key to this role.

A final thought

My personal feeling about what helps things to work

in Worcestershire is team work (in the widest sense).

People living with young-onset dementia, their

families, health and social care staff and colleagues

in the voluntary sector all need to work together to

review what is needed, what is working and what

needs to change, being realistic of financial

constraints and making the best of the

resources that we have available to us.

Marji

Ashley

Jane

Film

https://www.youtube.com/watch?v=KXSrfKe-c1s

Young Onset Dementia

“Simply Life Giving”

Group Work

Next Steps

• A draft report about today’s meeting will be sent out to you

all by 7th April

• A final report will be issued by the end of April – this will be

shared with The Young Onset Dementia Steering Group,

Worcs Health and Care Trust Dementia Steering Group

and the group currently looking at the redesign of Older

Adult Mental Health Services in Worcestershire

• Outcomes will be used to inform the work going forward

• If anyone hasn’t been involved to date, but is interested in

supporting the work in some way please let us know!

• We welcome the support

Contact

Jo Scarle

Young Onset Dementia Development Officer

Early Intervention Dementia Service

Worcestershire Health and Care NHS Trust

F Block

Kidderminster General Hospital

Bewdley Road

Kidderminster

DY11 6RJ

Tel : 01562 828894

Mobile: 07776992349

Email: joanne.scarle@nhs.net