Genetic Diseases

• Achonddroplasia (Dwarfism)• Adrenoleukodystrophy• Albinism• Autosomal Recessive Polycyst

ic Kidney Disease• Cystic Fibrosis• Duchenne Muscular Dystrophy• Hemophilia• Hereditary Breast Cancer• Hereditary non-polyposis color

ectal cancer• Hunter Syndrome• Huntington’s Disease

• Krabbe’s Disease• Long QT Syndrome• Marfan Syndrome• Myotonic Dystrophy• Neurofibromatosis• Osteogenesis Imperfecta• Phenylketonuria• Prader-Willi Syndrome• Retinitis Pigmentosa• Scprintzen syndrome• Sickle Cell Anemia• Tay Sachs• Usher Syndrome• Waardenburg Syndrome• Frederichs Ataxia

Achondroplasia (Dwarfism)• Associations

– Little People of America

– Human Growth Foundation

– March of Dimes

• Books– Human Diseases and Conditions

– Diseases

– World of Health

• Resource File (a folder of information gathered from the Public Library’s database)

• Web pages– Short Stature

– Mayo Clinic

– MedLine Plus

– Web MD

Adrenoleukodystrophy

• Associations– The ARC of the United Stat

es– Australian Leukodystrophy

Group– CLIMB– ELA– Fight ALD– NIH Office of Rare Disease

s– United Leukodystrophy Fo

undation• )

• Resource File (a folder of information gathered from the Public Library’s database

• Books– World of Health

• Web pages– MedLine Plus– Leukodystrophy types– Mayo Clinic

Albinism

• Associations– NOAH

• Books– Diseases

– World of Health

– Human Diseases and Conditions

• Resource Files (a file of articles from the public library’s database)• Web pages

– MedLine plus

– Mayo Clinic

– Scientific American

– National Institutes of Health

Asthma

• Associations– Asthma and Allergy Found

ation of America– American Lung Association– American Academy of Aller

gy, Asthma, and Immunology

• Books– World of Health– Diseases– Sick– Coping with Asthma– Human Diseases and

Conditions

• Resource File (a folder of information from the public library’s database)

• Web Sites– National Heart Blood and Lun

g Institute

– MedLine Plus

– Web MD

– CDC

– Mayo Clinic

Autosomal Recessive Polycystic Kidney Disease

• Associations– ARPKD / CHF Alliance– CAGS– Rare Diseases organization

• Books– World of Health– Diseases– Kidney Disorders– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web sites:– National Institutes of Health– NIH– Web MD

Cystic Fibrosis• Associations

– Cystic Fibrosis Foundation– Boomer Esiason Foundatio

n– Kids Health– Canadian Cystic Fibrosis F

oundation• Books

– World of Health– Diseases– Sick– Genetics and Human

Health– Human Diseases and

Conditions

• Web sites– Medline– Mayo Clinic– National Heart lung and Blo

od Institute– Genetics Home Reference

• Resource File (a folder of information from the public library’s database)

Duchenne Muscular Dystrophy

• Organizations– Muscular Dystrophy Association

– Parent Project Muscular Dystrophy

– Your Genes your health

• Books– World of Health

– Diseases

– Sick

– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web Sites– Medline Plus CDC Mayo Clinic

– National Institute of Neurological Disorders and Stroke

Hemophilia

• Associations– National Hemophilia Organ

ization– Bleeding Disorders Associ

ation– Hemophilia Organization of

America• Books

– World of Health

– Diseases

– Sick

– Human Diseases and Conditions

– Genetics and Human Health

• Resource File (a folder of information from the public library’s database)

• Web Sites– Medline Plus

– National Heart lung and blood Institute

– Mayo Clinic

– E Medicine

Hereditary Breast Cancer

• Associations– National Breast Cancer Fo

undation– American Cancer Society– Susan G. Komen

• Books– World of Health– Diseases– Sick– Breast Cancer– The Cancer Dictionary

• Web Sites– National Cancer Institute

– Medicine Net

– Web MD

– Mayo Clinic

• Resource File (a folder of information from the public library’s database)

Hereditary non-polyposis colorectal cancer

• Organizations– Colon Cancer Alliance

– Colorectal Cancer Network

– Hereditary Colon Cancer Association

• Books– World of Health

– Sick

– The Cancer Dictionary

– Human Diseases and Conditons

• Resource File (a folder of information from the public library’s database)

• Web Sites– Cleveland Clinic National Institutes of Health

– National Cancer Institute Web MD Mayo Clinic

Hunter Syndrome

• Organizations– Rare Diseases

– Brave Community

• Resource File (a folder of information from the public library’s database)

• Web Sites– A list of links

– Mayo Clinic

– Medline Plus

– Web MD

– Shire

Huntington’s Disease• Organizations

– Hereditary Disease Foundation– Huntington’s Disease Society of America– National Institute of Neurological Disorders and Stroke

• Books– World of Health– Disease– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web Sites– Mayo Clinic– Medline Plus– NCBI– Web MD

Krabbe’s Disease

• Organizations– United Leukodystrophy Foundation– Hunter’s Hope Foundation– National Organization for Rare Disorders

• Resource File (a folder of information from the public library’s database)

• Web Sites– Mayo Clinic

– Medline Plus

– National Institute of Neurological Disorders and Stroke

– University of Maryland Medical Center

Long QT Syndrome

• Organizations– CARE

– American Heart Association

– Heart rhythm Society

• Resource File (a folder of information from the public library’s database)

• Web sites– Mayo Clinic

– Cleveland Clinic

– National Heart Lung and Blood Institute

Marfan Syndrome

• Organizations– National Marfan Foundation

– A list of Associations from around the world

• Books– Diseases

– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web sites– Mayo Clinic

– Medline Plus

– Web MD

Myotonic Dystrophy

• Organizations– Muscular Dystrophy Association

– Mytonic Dystrophy Foundation

• Books– World of Health

– Diseases

– Sick

– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web sites– Genetics Home Reference

– Mayo Clinic

– NCBI

Neurofibromatosis

• Organizations– Acoustic Neuroma Association

– Acoustic Neuroma Association of Canada

• Books– World of Health

– Human Diseases and Conditions

• Resource File (a folder of information from the public library’s database)

• Web Sites– National Institute for Neurological Disorders and Stroke

– Kids Health

– Medline Plus

– Mayo Clinic

Osteogenesis Imperfecta

• Organizations– Children’s Brittle Bone Foundation

• Resource File (a folder of information from the public library’s database)

• Books– World of Health

– Diseases (Look under bone diseases)

• Web Sites– Medline Plus

– Web MD

– Net Doctor

– University of Maryland Medical Center

Phenylketonuria

• Resource File (a folder of information from the public library’s database)

• Books– World of Health

– Human Diseases and Conditions

• Web Sites– Mayo Clinic

– Medline Plus

– Web MD

– Rare Diseases

Prader-Willi Syndrome

• Resource File (a folder of information from the public library’s database)

• Organizations– Prader-Willi Association

• Books– World of Health

• Web sites– Medline Plus

– University of Michigan

– Mayo Clinic

– Rare Diseases

Retinitis Pigmentosa

• Resource File (a folder of information from the public library’s database)

• Organizations– Foundation Fighting Blindness

– Low Vision Organization

– American Optometric Association

• Books– World of Health

– Diseases

• Web Sites– Medline Plus

– Web MD

– Natural Eye Care

Shprintzen Syndrome

• Resource File (a folder of information from the public library’s database)

• Organizations– Coalition for Heritable Disorders of Connective Tissue

– Hydrocephalus Association

• Web sites– Genetics Home Reference

– CCDD

– Web MD

Sickle Cell Anemia

• Resource File (a folder of information from the public library’s database)

• Organizations– Sickle Cell Disease Association

– Sickle Cell Information Center

• Books– Sickle Cell Anemia

– Sick

– Diseases

– World of Health

– Human Diseases and Conditions

• Web Sites– Mayo Clinic Medline Plus Web MD

– Kids Health CDC

Tay Sachs

• Resource File (a folder of information from the public library’s database)

• Organizations– National Institute of Neurological Disorders and Stroke

– National Tay Sachs and Allied Diseases

– Rare Diseases

• Books– Diseases

– World of Health

– Human Diseases and Conditions

• Web sites– Genetics Home Reference

– Mayo Clinic

– Medline Plus

Usher Syndrome

• Resource File (a folder of information from the public library’s database)

• Organizations– Usher Syndrome Foundation

– American Council of the Blind

– Foundation Fighting Blindness

– Helen Keller National Center for Deaf-Blind youths and Adults

• Web Sites– NIDCD

– Genetics Home Reference

– National Institutes for Health

– Web MD

Waardenburg Syndrome

• Resource File (a folder of information from the public library’s database)

• Organizations– National Organization of Rare Diseases

• Web Sites– Medline Plus– Web MD– Rare diseases

Frederichs Ataxia

• Web sites:– Mayo Clinic– Medline Plus– Web MD

• Organizations– The Frederichs Ataxia Research Alliance– Muscular Dystrophy Association