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The beginning
I woke up in a semi dark room with lights and bleeping sounds, in my mind
only seconds before I had been standing at the top of an outside fire escape;
it had been a good day I had spent with friends so where was I now?
The topic of conversation over a game of chess that evening had been our
favourite, where did the human race come from, were we left here by another
race of beings and deep cosmological questions, big bang theories and does
god exist or is she/he just a fictional character developed over the years to
make humans think that sins are there to be forgiven. (I know we are sad but
there you are we enjoy a good debate.)
I could only move my eyes at this point and my vision spun me around for a
few seconds before I could focus on anything and if I leaned to either side I
spun like a top. (This I now know was due to Occipital lobe damage.)
All I could see when I did stop spinning was tubes and lights, which I may
point out looked the size of fire hoses.
My mind started to wander and then it came to a hell of a conclusion. That’s it
I had been abducted by aliens. I can’t tell you the panic that I felt on realising
my dilemma then I started to struggle, suddenly I was surrounded by beings
then it went dark.
Well as you can guess I had not been abducted at all, but I had fallen from an
outside fire escape come entrance, which just happened to be an old metal
one god knows how many feet up and knocked myself out in the process. I
sustained a three quarter fracture to the skull and lost copious amounts of
spinal fluid, which probably did not help the old grey matter one bit as once
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When I next became aware of someone or something next to me I noticed
that I had hold of something that was over my mouth. I was trying to tug it
away, then whoever, (or whatever), was next to me was trying to restrain me,
I pulled at whatever it was, and then it went dark again.
I now know that I had been on a ventilator and had been giving staff at the
ICU a right old time, so they sedated me quite a lot in order to stop me from
pulling out pipes, drips and whatever else I could get my hands on.
I felt better the next time I woke as the ventilator had been removed, however
I still assumed that my theory was correct and was quite confused when
daylight came as nothing I had ever seen before was right there in front of me
and I still feel like it today two years on but on a much smaller scale. I still
suffer from vertigo even today but with some easy exercises it stops for a few
weeks.
I remember hearing other people’s voices, the familiar sounds of human
speech. I remember thinking that they too had been taken by aliens and even
more confused when my partner turned up to visit. In fact I was beginning to
think that everyone had a part to play in this abduction theory. Perhaps they
were cloned or brain washed. (Oh my God!)
Acceptance and trust, apart from a cool head, is something any one in this
situation must have, but how and when you are ready to accept what you are
being told and trust the right people is very hard and takes an incredible
amount of time patience and energy.
Imagine waking up in daylight to see your ex-partner walking towards you as
you lay in bed. You know (think) you have not been involved for two or three
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years. Then bit by bit nothing makes sense. In reality you are told that you
had spent at the most a week apart, most confusing and that seven years
together was more like it, not three at all .
The flood of questions in my mind echoed from ear to ear. Did the aliens
really get me? Are these people real? What planet am I on and how the hell
did I get here? And why the hell me of all people?
The question of why me only began to open up once I had been taken back
home. I had wandered about the house and found a computer. I was told
that it was mine and that I had bought it when I did my degree, to which I
asked, what bloody degree? I could not remember doing a degree. I found
weeks later that I could turn the computer on. I sat looking through files and
documents that I had no idea about. I opened some files and to my utter
surprise found that I had a degree in Psychology with Astronomy and space
science at Glamorgan University. (Wow… I wonder how I did that.) To my
amazement I was shown a video of my graduation in the year 2000. I sat
there agog, I was speechless and bewildered. The person wearing the cap
and gown looked like me, but was it really? I felt that it was not.
I could not believe my eyes. Even today I still wonder if these are false
memories planted in my head, but why that would have been done I really
have no idea. The weird thing is I feel homesick and I want to go home, but
where do I go? Do I really belong here on this strange world?
(Reading back over this work, as I am now, a year on I realise now that I am
stuck here. Not much has changed in the emotional department I still feel
homesick (12/1204) and nothing feels real. My feet and hands feel as if they
belong to someone else and so does my face somehow,
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Today it is not a question of what I see per se but of what I feel. I really do not
know if something is real because I do not get the feelings that it is. Forgive
the vagueness of my explanations but this is new to me also.
The nearest analogy that could illustrate this feeling is like living inside a video
game, anything could happen at any time weird monster machines lunge
toward me from out of a wall. Lucky for me, I have had my partner with me on
many occasions who has reassured me, for example, that the coke vender at
Gloucester Royal wishes me no harm and it is plugged into the wall socket so,
no it can not go running about after me.
One particular event at the hospital involved such a machine. We had been
to the Neurology department, on leaving we had to pass through a reception
area where a Coke machine stood at the end right by the exit, I had not
encountered it on the way in as it was behind me and out of view plus I had
not turned around.
On the way back out however things took a turn for the worse. Suddenly I
saw it. It seemed to be a swirling mass of colour with long trailing arms
flowing out toward me, and boy did I panic. Then, unable to move I froze to
the spot pointing and blubbering about some strange creature. Logic and
reason had vacated my brain and so I was half dragged half coaxed down
toward the beastie with the waving arms and swirling things, I felt awkward
and embarrassed to find out that it was in fact just a coke vendor. It had
taken sometime to be convinced and I was showing physical signs of anxiety I
was starting to hyperventilate and sweating to the point that my shirt was
stuck to my back. I was scared for my partner, myself and all the other people
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in the room. I had felt helpless and still remember the fear in me, however, I
have no clear recollection about the event. The recollection that I have is only
the feeling, not as one may expect memories to be. For example when one
thinks of a white sandy beach and a clear blue sky images appear in the
minds eye. In my case I remember only the feelings that I had experienced I
have no images of what actually took place, just tabular Rasa (a blank slate).
I tend to think that this type of phenomenon could be a knowledge based
attempt by the brain to understand something of which it has no meaning for.
By this I mean, if I had been a god fearing individual would I have seen a
different pattern such as a demon if I had sinned or even a divine entity within
the mish mash of colour that I perceived as a strange creature. Who knows?
When our brains pick up on incoming information it automatically looks for a
familiar pattern to help it to understand what it is looking at. This is why some
people when looking at the patterns on their curtains and carpets they see
faces and other familiar shapes appear. Another example of this is cloud
formations that look like ships or sheep. If ships had not been invented, then
we would not recognise the ship like shape in the cloud formation.
From psychological studies of infants and neo-natal studies, it has been found
that our brains are genetically pre-programmed to look for a face. People will
tend to see, in other things, familiar patterns and the brain will pick out a
memory that will be the next best fit, and my brain picked out an alien
substitute image because my visual cortex and my eyes had both deceived
my memory due to the injury my brain could not make out the information
from the external world. Mmm, wonderful.
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This problem on its own is, in my opinion a bugger to deal with, however mix it
up with balance problems and you have another problem again but that is
another chapter and best kept for later.
Depersonalisation/reality displacement.
I searched for information about this disorder after being advised that the
feelings that I were having is possibly due to reality displacement. I asked my
GP and he suggested that it may be referred to as reality displacement or
some type of depersonalisation disorder quiet often associated with serious
head trauma.
At first I found very little under that particular heading. It was only by chance
that I found a link to a website called depersonalisation.com.
Perhaps it helps that I have a little knowledge of the psychological and
physiological workings of the brain, then again maybe not. I am not quite sure
if its good thing as ignorance seems blissful sometimes. I exhaust myself
searching for an answer in the hope that everything will turn out alright, but it
is a long hard struggle and I feel the effects badly.
I think it is harder to accept that I have had a brain injury rather than have
been abducted and thrown into another universe because there is hope that
one day I will escape and arrive back home, but if this is all due to brain injury
I feel I am stuck with it. Does that make sense?
This scenario reminds me of the drunk searching for dropped keys outside
under a lamppost, even though the keys may have been dropped elsewhere it
remains a more easier task to search under the light than in the dark, even
though that may not be where the keys are. Get it?
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I feel like a fish out of water and I feel the need to be with my own kind,
perhaps as time goes on it will become easier to cope with I really do not
know at this stage, perhaps I am dreaming lets hope that I wake real soon.
Micro lapses.
Accompanying this reality displacement and adding to the problem, is what I
can only describe as micro time displacements. To illustrate, my partner and I
had to visit the hypermarket at Cardiff gate. After travelling about fifteen miles
I became aware that I did not know where we were, I had no recollection of
getting into the vehicle let alone leaving the house.
I tend to think that these micro time lapses are due to a backlog of incoming
information being sorted in my brain as it seems to happen when I am in a
situation where there are various types of stimuli an example of such a time is
when I was taken up town shopping.
It was a sunny day; there were endless crowds of people, there were streams
of traffic, noise and bright sunlight and shadows. Shadows cause many
problems.
As any paint artist knows, if you want to illustrate depth you need dark
colours. Shadows usually mean stop there is a hole. In my case I cannot
afford to make any mistakes, if I fall down a hole I’m not going to be a happy
bunny, so what do I do? Quite simply I stop or step over most shadows,
which I am sure amuses most other pedestrians but it jars my bones when I
step down or up a curb that is not here.
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another way, if the car seems big I stay on the pavement, if its small in size I
run.
On other occasions we might meet people that want to stop and talk, this
irritates me beyond belief because sometimes I feel they are not familiar to
me and even worse if one person changes place for another, i.e. they swap
places whilst talking to me and I get distracted, I tend to think that the one I
was looking at has changed into someone else, and that is scary.
What is annoying is that people think that because I no longer have the palsy,
I am fine and back to my normal self. I know I am not, I am aware of changes
although I find difficulty in explaining all of them.
Another thing about conversing with people is that I find it hard to keep up
with what is being said and often people talk over me as I take so long to
answer. Sometimes people speak for me and finish of sentences. Often the
opposite of what I mean. A nice little example of how it sometimes goes for
me is the little story of three old women sitting on a bench outside:
First old biddy: Isn’t it windy?
Second old biddy: No, it’s Thursday.
Third old biddy: So am I lets have a cup of tea!
I have come to realise that if I close my eyes I can take in a bit more and get it
right, that brings problems within itself as it is considered rude to close one’s
eyes whilst being spoken too, and it is dangerous when walking and talking.
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Unlike the old biddies I am not deaf my hearing is finely tuned and if anything
is hypersensitive to sounds. You may be surprised to find out that people
tend to over emphasize words as they would to a deaf individual, this I do
tend to over look, as it is sometimes amusing.
I sometimes feel that I am like a bad egg, undetected on the outside and
rotten inside, you can’t tell until you see inside it. It is frustrating and
infuriating and just to recap nothing seems real, sounds and smells are
different sometimes to the extreme, I have this constant feeling that I should
be somewhere else, I try to believe what people are telling me but there
always seems to be doubt in my mind as to their veracity. Is there a plot?
Am I being controlled by something else? Are these people or a figment of
my reality? I can’t make up my mind on many issues. And the noises in my
head are awfully distracting as well as annoying.
Even going to the toilet and taking a bath has its problems. I mean to say
what if I think I’m in the loo and I’m not? What if I am sat on a shop display in
B&Q? (Stop giggling!)
Bathing has always been fun for me it is way to relax and unwind and play
with our animals with the bubbles etc. Now I dread the thought of getting in,
as it feels drastically unlike it did before. The bath feels hard and cold against
my skin and the water around me makes me gasp for air. Showering is not so
much a problem so its not like I have problems with hygiene as I will shower,
but I do have an awful problem staying in our bathroom upstairs, again I have
no idea why.
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Other things that make me uncomfortable are going up our stairway as well as
being in the upstairs bathroom. I find it difficult not to sit on the stairs and this
is something that annoys me and I cannot seem to stop it happening, for no
reason at all I will suddenly get a burning desire to sit on the stairs. I throw
my hands up in despair, why do I do these things? I also have bouts of
uncontrollable laughter. This has and could lead to all sorts of problems as it
is difficult to contain. It happens for no reason and is embarrassing especially
in a crowded place or inappropriate times. I find it impossible to control it and
become irritating after an hour or so.
Getting back to the sitting on the stairs, I would not mind if I was sat there
doing something useful or even trying to read but I just sit and stare listening
to the noises in my head.
Another strange thing is that I keep looking for our kitchen light switch in
another place. It is as if I am expecting it to be on another wall, very strange
do you not think? I keep wrenching our kitchen taps the wrong way so they
become jammed off, I can not seem to remember which is the correct way it is
to turn them on or off.
I might expect to do this if I had just moved house perhaps but not after living
in the same place for years. Parallel universe syndrome or is it this dreaded
symptom? I am beginning to wonder as many strange things are beginning to
emerge as time goes on in this strange new world I seem to have woken up
in, or perhaps I am dreaming, who knows?
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For a very long time the only real link with reality I had was old pictures and
the way that our animals reacted to me, still with the pictures I have this
nagging doubt in my mind that it is not really me in the picture even though I
am reassured by friends and family that it is me.
People I had once worked with I no longer know, again it is not so much what
I see but the feelings I have about them and now to combat remembering new
names I have to constantly go over them in my mind and hope that I
remember the face too.
Some time this week I went for a stroll through the park with our two dogs I
was feeling rather tired and suddenly forgot about the dogs when I became
interested in a bird that had flown low passed my head and swooped up into a
tree. After a few seconds in my time I walked off. I looked about saw no dogs
so I thought I had been to the shop, on realising that I had no shopping I
thought it strange that I was in the park without the dogs as I did not have a
need to be where I was without dogs or shopping as all my other places to
visit were in the other direction.
If it was not for the fact that a neighbour had been watching me for twenty
minutes and knew the dogs had wandered off I would have been stood there
still pondering my next move. She walked over and asked if I was okay she
brought the dogs with her, they had made their way to her house sniffing
about in the grass. Most people that know me are very kind in that respect
they keep an eye out for me and that is nice to know. However people that do
not know me tend to think I am intoxicated or just give me a funny look.
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I used to be quite active and most of my activities now are confined to safe
places and places I can be escorted. I no longer fish as it is near water and
there is the possibility that I may fall in have a seizure and drown.
I keep myself amused by logging new species of birds, trees and insects that I
have not seen before, even though I seem to have information about their
habitat and general bits of information which I recall after finding out what it is
that I am seeing. For example, I know that a butterfly lays eggs on our
cabbage plants, they do not bite or sting but I cannot remember seeing one
before now, but I must have seen one before.
Trees look so different to anything that I have ever seen before and I love to
watch them. Flowers look bright and even rain holds me captive for hours on
end. The floor feels strange beneath my feet, if I take off my shoes it feels
even stranger just as if the ground is moving around my feet. It is real difficult
to explain but discovering this sensation was and still is such a big deal to me
even today.
Everything feels different, it looks different and feels strange. I was most
amused by the feeling I got from chewing bubblegum , and I have to say that I
felt as if it was chewing me, so I have not had it since. I have developed a
strange desire to taste things these days but it is the texture that interests me
the most rather than the taste. It has been explained to me that this could be
dangerous, I try to resist the urge to taste things but sometimes I forget and
have a mini lecture from Jaci about the dangers of tasting things from plants
and why I should not pick things up from the floor.
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I spy
This game is a good one for focusing on independent items that tend to blend
in to other things. However, do not try this in a supermarket, as it will make
you feel ill.
A major problem with super markets is the many different types of lighting and
noises, people and different temperatures. Only recently have I noticed how
cold it is in the isles containing butter and cheese etc.
Okay so what? It is cold in all cold storage isles, ah yes but do we really
notice the difference, yes we do but I notice it to the point where I stop and
cant focus on anything else but escaping from it. This means a mad dash to
get my mission done. The utter loathing I feel for those particular isles is
extremely uncomfortable and for some reason I think of it as my fear factor
challenge.
Lights are another problem. The lighting in supermarkets are designed not
only to let you see, designer lights are specialised to create an environment
that will influence the shopper into purchasing more as are the packaging and
structure of the store itself. So shadows and lights again, lots and lots of
multi-coloured packets and tins and shining swinging bits and bobs come
shooting around my head as I blunder and stumble into shopping carts and
other things that come at me ninety to the dozen. How do I cope? I just go
slowly and let people dodge around me apologising as I go. It is all good fun I
suppose, but when it becomes just too much, I retreat to the safety of the car
and sit in silence or both Jaci and I leave the shopping until another day and
just go home.
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New adventures New tastes
One positive thing about all this is that I have had more new experiences than
I have had in a while. I have also found that many things I did enjoy I now
detest or am not bothered about.
It seems odd that I do not know if I like certain things such as my dilemma of if
I liked malt drinks or cocoa, I can never get it right it seems so I just ask over
and over again, but I do forget and I do not know how to stop this other than
write my opinion on my arm in pen.
I have been told that I do not like it, but while shopping I will insist that we buy
both just to try which one I like, but I do not like either and at one time we had
two lots of each in the bin, as they were not used.
There other such stories as you can imagine. Such as thinking that you like
Marmite only to find that you absolutely hate it Yuk!
It does seem funny though that some things I know I like and others I seem to
have lost the plot with. Pickled beetroot is another strange thing I have
developed a taste for, I have astounded many with this new trick of mine as
everyone has been telling me that I hated it before. I cannot argue with them
as I really have no idea if I did or did not, very peculiar.
I may add at this point that I am getting better at trusting my partner’s
judgements on things that I am not sure about. I have too, else our kitchen
would be full of things I do not like. Mmm not good
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Taste and smell
Since the accident my taste and smell has altered drastically. This is a
problem when cooking, as I cannot taste or smell it however this affects
others who have to endure my cooking, as I cannot taste it.
I cannot say that I have no sense of smell or taste because I have it is just
different. I smell onions from many types of food, even things that one might
not connect, such as onion odours coming from chicken pork and eggs.
Could it be that the reason I seem not to recognise some people is that my
smell leads me to believe that they are not who they say they are? After all
smell is important in relationships with people, if they don’t smell right but they
look familiar it is bound to be confusing I should think. (Or is that a bit deep?)
Cooking with chillies or curry tends to be a bit of a shocker. I know when it is
hot as the back of my head sweats and my partner runs out of the room to get
water. I am not usually allowed to cook unattended, as I tend to forget what is
happening next and wander off and do something else. Examples of this
behaviour is forgetting that the bath is running, that the dogs are outside, I
have no socks on or there is food cooking and I have been known to leave the
oven on over night and most annoyingly I find half consumed cups of tea
around the house, obviously me as I am the only tea drinker.
I have cut down on cigarettes too as they have gone out before I remember
that I have lit it or indeed which ashtray it is in. I roll my own too so that helps
as I am that slow at rolling it takes about ten minute per roll up.
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Another annoying thing about lack of taste is salt. Salt tastes weaker that it
did and as any chip eater knows oven chips needs salt as does Tomatoes.
But I can’t taste it so it piles up on my plate like the slalom slopes of Aspen.
I have found the answer to this problem it is called Losalt and it is low sodium
but high in salty taste.
I keep saying lack of taste, more to the point I should say alteration of taste,
most things smell and taste of onions as I mentioned earlier and I have no
theories as to why this should be as yet.
There is something positive about not having a good sense of smell though,
as we live around farms it makes cows smell nicer, but not chicken poo.
Between one thing and another my brain has placed me in a very strange
world.
Taste, smell, vision and balance all altered and alien although rather familiar
too. Many new fears and new things to learn probe and investigate. The
feelings that have me believe I should be somewhere else remain with me all
day, as does this constant feeling that nothing is real and this homesickness
is driving me insane.
Fatigue
Everyone has fatigue at some point, over worked psychiatric staff in Cardiff
down to basket makers in Africa. The feelings are the same, we feel drowsy,
sluggish and irritable. Attention and focus diminishes with tiredness and it is
not surprising as the body has many functions and tasks to be carried out
every second of the day, some we think about some we do not, such as
breathing or eating.
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I find it difficult to multi-task, my head hurts and becomes hot when this occurs
my judgment becomes confused and I lose the ability to walk in a straight line.
I have this constant feeling that I have a tightly fitted scull cap around my
head and this distracts me quite a bit.
Sometimes if three or more activities are going on around me I freeze or slow
down. It helps me to refocus my attention if I am able to close my eyes but not
for too long as I have been known to simply fall asleep.
It would seem that my daily capabilities are linked to how fatigued I am or
have been the day before and also the amount of stimuli that I have incoming
from my environment at the time.
To illustrate this I will tell you about my day out at Asda after my stint ( Little
visit) to the hospital. Thursday morning I swung myself out of bed, eyes shut
tight my legs are like lumps of lead and my throat is dry I have slept from
8:30pm last night without waking.
Finally after three hours of shuffling about trying to get dressed and find where
I have placed trainers, cups of tea, toothpaste and a huge range of other lost
items that I knew I had only just put down somewhere we are ready to visit the
post office and then Asda. My treat today for not putting my sport top on
backwards is a Big tasty from McDonalds (Keep the big tasty in mind here
okay)
I was sleeping before I got to the car, I tripped over two shadows and scared
next doors cat under a parked car, I miss judged the headroom getting into
the car and hit my ear on the side of the roof getting in.
Once in the post office queue I nodded off and slipped off the lottery stand
that I had perched my elbow on just missing a stack of beer cans and
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catching my funny bone on a door handle that I slipped passed much to the
delight of my local post master and assistant. Who ever called the funny bone
the humorous should be shot, it hurts like crazy when knocked.
Docile and battered I walked back outside to the car where my partner pointed
out that I had forgotten all of what I had to pay (Phone, gas electricity, daily
newspaper, lottery and student loan.) The ironic thing was I had a list in my
pocket I was so tired it was all I could do to say hello let alone remember what
I had to do. I slept from Raglan services to Asda at Cardiff gate, a journey of
approximately 48 miles I think.
When we got to Asda we decided that it would be a good idea to shop first
then go get my treat and a cup of tea (Mmm)
I was a wreck coming out of Asda after all the hustle and bustle and deciding
where to stand not to be in the way, we got the shopping done after about two
and a half hours as I kept getting lost and bumping into things and as we
neared the checkout my stomach was yelling out for a big tasty my mouth
watered. Packing done we paid the bill, I slugged my way to the car we threw
the bags in the boot, god how far is it around the corner? My stomach gave
out a nine point nine on the Richter scale as we pulled up to the booth and the
big tasty was at last in sight we got the bag and parked up I took one mouthful
and threw up. Be warned tiredness can kill and make you throw big time.
I was so exhausted I slept all the way home, without the big tasty. Ever had
one of those days?
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Home life and Relationships.
How do you know if something is real? I suppose if you hit something solid it
must be real but what happens when you know it must be real but nothing
feels real at all.
Memories tell me that reality had existed but now it may only exist when I feel
something solid such as another animal or something like a building or a car
etc, and then I can believe it because I have to believe it as I can now feel it.
Feeling that I should be some other place doing something else mixed with
the problem of not having a grip on reality is extremely hard to live with
especially when you feel as if you are not at home and with the person you
were with before an accident.
Can you imagine waking up in some other person’s life? Not knowing that the
computer in the study is yours and has been for four years? I am still vaguely
amused every time I turn my PC on that my name appears on a file or a piece
of work done sometime ago.
I read reports that I once prepared wondering who wrote it but knowing it was
I all along, how do I know it was? Because it has my name on it, other people
have told me that I did it. But what if they are lying to me? Then again why
would anyone take such actions and set me up in this way? I am only me
after all and there I rest my case. I think the F.B.I have bigger criminals to
chase than me. But that is what it feels like sometimes.
Even after consoling myself with such arguments I am still not sure.
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The pitch of the TV set has been muffled and I am working a lot better, faster
and accurately so. Go girl what a brilliant suggestion miss pigtails.
It strikes me as strange as I sit among other patients in the smoke room. I do
not know everyone of them but some I have become very fond of. I believe
that I get such a lift from these people and I have yet to realize just what it is
that they give me.
I can explain what I get from the staff and let me say here and now I
understand only too well what they experience on a day-to-day basis and it is
a very stressful choice of career and very demanding even to those that brag
they have become hardened. Rubbish!
I get support from the staff if and when I need it, that is how it should be and it
is. I recognise a lot of the time the support I do need and I go off and moan
and moan I use the staff like sounding boards and if the one is busy there is
another to help. In fact I like every one of them equally, each has their own
little idiosyncratic ways that makes each one special to me.
Right enough crawling my knees hurt now.
I am surprised to find when the smoke room fills up people open up and talk.
They do a fair bit of moaning, but it never seems to be about what they are
suffering from, however they do moan about the ward, the hospital, the staff,
the ambulance service, even down to the financial state of the health service.
But they never seem to moan about the cleaner on the ward or the fact that
someone has burned the carpet or defaced the walls or equipment, in fact one
would think that most of the day patients were prisoners being locked in the
building. It sounds just like a “them and us” scenario, I wonder if that is why
they bond so well in the smoke room? Oh no now I feel like 007, a mole, a
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Derealisation is said to be:
”A change in an individual's experience of the environment, where the world
around him/her feels unreal and unfamiliar. Again, this symptom is caused
by a change in the way senses perceive our surroundings due to sensitised,
anxious, nerve signals reaching the brain. It is completely harmless but can
be disturbing. The more you give it credibility, the longer it stays with you. As
anxiety levels are reduced, derealisation disappears. “
Hang on just a second is it just me or has that sentence just inferred that it is
all in the mind? So how come I feel like this permanently? I read that there
are other ways to become desensitised and one way is to take a nasty fall on
one’s head. I suppose that it could be a symptom more than a disorder, the
disorder being the harder to improve? I really cannot decide.
All I want is a way out of this state I know I was not like this before that fall
and that is what makes me so angry, it is frustrating to be slow and
incompetent. Even watching snow falling makes me giddy and tired. I feel
that my senses are turned up full and my brain hurts from the overload and
yet I find that under some circumstances I function a lot better, but, and this is
a big but, the world that I need to function in at 85% needs to be quiet and
slow, no rushed conversation or loud noises or other conversation, let alone
100% how can this ever be?
It is an impractical world that I look for in my search. I try so hard to be
normal I feel inferior and less able than I ever did. I make myself go outside
and continue to do so even today. I know it would be much easier to comply
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with my feelings and give in, stay safe indoors but if I do that I may as well
have died that night.
It is not only going out that has changed by the way of perception and
emotions, taking a bath is probably one of the most horrific events of my day
and I loath it beyond belief. The way it feels against my skin makes my blood
run cold and my bones feel as if they will poke through the sides. I hate the
way the water feels too, I get quiet claustrophobic some times and the water
feels quite weird. I know I am repeating myself but it does terrify me.
I used to be much more self-assured I mixed well with others quite the gig
animal that raved in laser lights until six in the morning and then gone to work
on the Saturday, no more of that for me I can only just put up with an indicator
light for a few seconds before I feel ill now.
I suppose it is good for me to have a moan, especially on paper as it saves
staff having to buy earplugs (haha). According to other research I have found:
A psychologist by the name of Dugus coined the term depersonalisation
disorder in 1898 also stating that it was a unique medical condition. Until
recently it has resided under the umbrella term of Disassociative disorders in
the Psychiatric Diagnostic and Statistical Manual (DSM) which is said to be
the bible of psychiatric diagnosis.
On one of the web sites that are dedicated to Depersonalisation disorder I
found this information. I cannot tell why it makes me feel a bit better but it
does. How bizarre. Oscar Janiger a Los Angeles psychiatrist who had
suffered with Depersonalisation disorder himself, apparently he was a former
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associate clinical professor at the University of California, Irvine, and treated
countless patients with Depersonalisation Disorder through out his forty odd
year practice.
I also found out that:
“Depersonalisation is the third most common psychiatric symptom and
frequently occurs in life-threatening danger, such as accidents, assaults, and
serious illnesses and injuries; it can occur as a symptom in many other
psychiatric disorders and in seizure disorders.
As a separate disorder, depersonalisation has not been studied widely, and its
occurrence and cause is unknown.” Patients have a distorted perception of
themselves, their bodies, and their lives, which makes them uncomfortable. A
person may feel as if he is an automaton or is in a dream. Often the
symptoms are transient and occur with anxiety, panic, or phobic symptoms.
However, symptoms can be chronic and persist or recur for many years. (Ah
ha sounds more like it, so I might be a D-person after all then) Patients often
have great difficulty describing their symptoms and may fear or believe the
symptoms mean they are going crazy. The patient often feels unreal and may
experience the world as unreal and dreamlike. “
“Some patients are minimally impaired; others become severely compromised
or even disabled. Although some can adjust to depersonalisation disorder or
even block its effect, others have chronic anxiety about their state of mind,
worry whether they are going crazy, or ruminate on the implications of their
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distorted perceptions of their bodies and their sense of estrangement from
themselves and the world.”
“Complete recovery is possible for many patients, (Oh good) especially those
whose symptoms occurred in connection with stresses that can be dealt with
in treatment (Oh no). Other patients do not respond well to treatment but may
gradually improve on their own. (Ah ha, that is one answer I had an accident
that is why my condition is not improving as fast as I had hoped, still Rome as
they say…)
“The feeling of depersonalization is often transient and resolves
spontaneously. Treatment is warranted only if the disorder is persistent,
recurrent, or distressing. Various psychotherapies (e.g., psychodynamic
psychotherapy, cognitive behaviour therapy, hypnosis) are successful for
some patients, but no one treatment has proved effective for all.
Tranquillisers and antidepressants have helped some patients. Other
psychiatric disorders, which are often associated with or precipitated by
depersonalization, must be treated. Treatment must address all stresses
associated with the onset of the disorder.
Diagnosis is made based on the symptoms. The physician must rule out
physical disorders, substance abuse, and other Dissociative disorders.
Psychological tests and special interviews are helpful.”
Okay so I have had tests and I am undergoing therapies of various kinds
some that I understand some I do not. If it helps lets do it I say. I am coping
better than I did last year I think. People tell me that I have improved in
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various ways. I suppose it’s like being born again but with a more upgraded
intelligence, for want of a better analogy, but in a different world on another
planet.
Perhaps I have been switched with a doppelganger from a parallel universe
and that is why it all feels so unfamiliar but so very familiar I really do not
know and now I have confused myself so much I have a head ache and the
sides of my head feels like two saddle bags filled with hot water, I need a
break.
During my break in the kitchen I realised that my functioning was slow in
reaction and it took some doing to get a simple task done. The task was to
get tablets into a weekly dosage box marked with the days of the week and
clearly numbered. I have left it on the table half filled and with the wrong
dosage again. Once again the variations in noise were too much for me I am
really annoyed with myself.
It would seem that different cycles that a washing machine goes through has
different frequencies of noise. When certain frequencies are sounding it really
inhibits my performance in basic tasks.
I remember something from newborn and infant studies years ago how babies
and toddlers were sent off to sleep by the noise of a car engine, this is not a
quote but I think the it had something to do with frequencies and tones.
Perhaps the noise inhibits the functioning of my brain because it is tired
anyhow so the noise lulls it, it’s a theory. Perhaps that has something to do
with it all, I do not know. Perhaps it would have been better to have not
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Oh no I feel a ditty coming on…
My Temporal lobes have been jolted, my parietals are still in a mess, the
visual cortex is buggered and my best thinking now done with a guess.
The world looks to me like I am dreaming, I feel alien and rather alone, at
least if I was a real alien, I would be able to go and phone home.
As it has been shown I can still string together a little rhyme, but I am in semi
quiet and it is directly internal, all I am doing is typing down my thoughts so
that is not as cognitively taxing as typing research from a book or another
secondary source and it has taken over an hour to accomplish and now yet
again I am in need of a break.
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Capgras Syndrome was named after its discoverer, the French psychiatrist
Jean Marie Joseph Capgras. The person’s main delusion is that an impostor
or an exact double despite recognition of familiarity in appearance and
behaviour has replaced a close relative or friend. The following information I
have taken from a web page.
“The patient may also see himself as his own double. Also known as
Delusional misidentification, illusion of doubles, and illusion of negative
doubles, misidentification syndrome, non-recognition syndrome, phantom
double syndrome, and subjective doubles syndrome.”
Delusions better known as false beliefs sometimes have bizarre content that
are held with strong conviction even in the presence of contrary evidence.
For individuals suffering from Capgras Syndrome they typically believe they
exist in a world of impersonators. This feeling in a delusional world of doubles
can be so alarming that it drives the Capgras sufferer to psychotic behaviour.
The syndrome typically has the following characteristics:
The person is convinced that one or several persons known by the sufferer
have been replaced by a double, an identical looking impostor.
The patient sees true and double persons.
It may extend to animals and objects.
The person is conscious of the abnormality of these perceptions. There
is no hallucination. The double is usually a key figure for the person at
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the time of onset of symptoms. If married, always the husband or wife
accordingly.
Associated Features:
1. Cerebral lesions caused by head injury, which are often located in the
posterior area of the right hemisphere, where face recognition is
performed.
2. Schizophrenic diseased conditions E.G. paranoid-hallucinatory
schizophrenia, but also in affective and organic-psychic disturbances.
3. Affects both sexes, but prevalent in women.
Differential Diagnosis:
Some disorders have similar symptoms. The clinician, therefore, in his
diagnostic attempt, has to differentiate against the following disorders
that need to be ruled out to establish a precise diagnosis.
Schizophrenia
Alzheimer’s Disease
Huntington’s Disease
Multiple Sclerosis
Traumatic Brain Injury
Substance-Induced Delusional Disorders -
hallucinogens and alcohol
Mood Disorders with Delusions - manic and
depressive types
Dementia
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Cause:
“It has been reported that the Capgras Syndrome and related substitution
delusions, that 35% have an organic aetiology. Some researchers believe
that Capgras’ syndrome can be blamed on a relatively simple failure of normal
recognition processes following brain damage from a stroke, drug overdose,
or some other cause. This disorder can also follow after accidents that cause
damage to the right side of the brain. Therefore, controversies exist about the
aetiology of Capgras Syndrome; some researchers explain it with organic
factors, others with psychodynamic factors, or a combination of the two.”
Treatment:
”Individual therapy may be best suited to treat the individual’s delusions.
Persistence is needed in establishing a therapeutic empathy without
validating the person’s delusional system or overtly confronting the system.
Cognitive techniques that include reality testing and reframing can be used.
Anti-psychotics and other drugs have been used with some success.”
Personally I think I am definitely more of a D-person, how about you? It has
been a busy week for me and now I am winding down. All this thinking and this
typing is killing me quietly and I need to sleep.
As I lay in bed this morning I could hear music playing away outside, our
neighbour was washing his car. The music was not loud but still I was aware
of my eyes jumping about in time to the music. I lay there just thinking about
my eyes, feeling the way they seem to move around in the eye socked
searching for light, jumping to every sound, they feel abnormally big to me.
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One of our cats had jumped upon the bed but I was concentrating so much on
keeping up with my eyeballs that I must have leaned my arm on top of her
back, she screamed and swiped at me just catching my arm. As soon as I
realised what I had done I tried to make amends but cats are hard creatures
to please and trying to explain that I was sorry was futile, until lunch anyhow.
This is something you can try yourself, just close your eyes and listen under
normal conditions we hardly realise that out senses are responding to every
minuscule bit of information whatever the source, just make sure that you are
not leaning on a cat at the time.
It is hard to explain just how hard it is to focus on something that once was an
automatic procedure. An example of this is falling over whilst watching clouds
go by or trying to walk in a straight line while carrying cups of liquid. Walking
upstairs whilst carrying the ironing and negotiating which foot goes where and
how high one should step.
Focus and attention is everything. If you are not focused then you will not be
paying attention and that is probably why I tend to throw away spoons, knives,
table mats, cartons of milk and other such things that I should not be throwing
away.
It is quite easy to take for granted all the things we do at one time, such as
making tea, coffee, and sandwiches whilst keeping up with the conversation
and with music playing in the background.
Another scenario could be at work. The noise of computers, the moving off
furniture as someone shifts about. Perhaps someone has a cough, someone
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and joy is now in gear and off we wiz in some direction at this point I am
holding my stomach as I chuckle away, I have parted with hard earned money
for a ride like this at the fairground in Barry Island.
I wait for a few minutes before I attempt to open my eyes let alone look out of
the window with the landscape and other traffic going by at strange angles
and speeds. My partner reaches over and rubs my hand to let me know I am
not alone. I am asked if I would like a sweet, I say that I would. I ask where
they are, I am told the glove box. You would think that this is a simple task,
but the sun is still shining and where I have had my eyes closed I still have a
trace of after image going around at a fair rate and I am now disorientated. I
find the sweets, take one out and turn to where I think my partner is sitting
open mouthed in readiness, but no, I threw it on the floor. Still laughing I tried
all ways to find it, so I dished out another but this time I just held it out for it to
be taken. The sun is flickering now and I am squinting into space as I am
feeling about on the floor. (And before you say anything the floor was clean
and the sweet was a smooth mint.) I thought I had found it, but with all the
focus taken from my sense of touch I grabbed the mint (Pebble) and popped it
into my mouth.
There are times to tell one’s beloved things and there are times that you do
not, this time was one of them. That pebble had obviously been in the tread
of my trainers. Oh no!
On a more serious note, noise and light is very taxing. I wonder if we actually
broke it down into percentages, which would be the most taxing senses? I
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time, night time too. It is a very strange concept because all it does is force
people to rush about and become stressed, but not me, not anymore anyhow.
When I worked I had to be there on time. It was pretty straight forward I got
up, I showered had a cup of tea, drove to work. Time for many of us goes
rather quickly in the morning especially if a family has a child to attend to that
is common knowledge. However what has happened in my life causes time
warps, sometimes worthy of Moulder and Scully investigating the strange
phenomena. I feel an illustrating story coming on. (Looks up, clouds and
wonky vision twig light zone approaches)
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Sometimes on a Monday evening I visit a close friend to play chess, it takes
approximately five minutes to walk from our front door to his.
Sometimes I have taken twenty minutes and I cannot explain why. This
problem is extended to making tea in the kitchen, dog walking and other
things.
Asking me to make a coffee is like asking a Greek waiter for one, you will get
it when it arrives, although I try to be as quick as I can. How long I take
depends greatly upon the amount of activity I suppose, however these lapses
of time have occurred when only myself has been present and the kitchen
was relatively quiet. Is it an overload, it may well be. I have always been an
active thinker. My mind will debate by its self all day. The content of the
debate could cover a thousand topics from cosmology to environmental
issues, scientific analogies to what does an insect think or even better what is
for supper and can I find a fag paper? There seem to be musical tones being
emitted from the central heating tank and it sounds like a repeat of Dido’s new
songs. No wonder I find it difficult to maintain my focus and attention as the
water system sounds like another song. Hey and even better, our refrigerator
sounds as if it just asked me for a water bottle. I would like to impress on staff
at this point I do not really believe it ok, I know they are just sounds just in
case you think I should be sectioned.
The therapy at the day unit will help me with this, I am hoping to see some
improvement in a while, I have no idea how long I have been attending but I
realise that it will take time.
There is a worrying aspect to all of this and that is the safety aspect.
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If left unattended in control of the cooking I tend to become side tracked and
often had burnt pans and set fire to the toast and such like accidental
happenings.
Other problems might sit at the other end of the spectrum. Over focusing
tends to be just as much of a problem than not focusing, for example in the
kitchen earlier I was pouring out a drink, in an attempt not to spill it or over fill
the cup I became suddenly aware hat most muscles in my body were stiff and
at peculiar angles. I was also biting down on my tooth into my lip, which was
quite sore afterward.
I mentioned this strangeness to some friends of mine and they told me that
they too had noticed. One pointed out that my hand would be held at an
angle and held there until I had finished doing whatever it was. They
described it in an analogical way; my brain seems to be acting in a similar
pattern to a printing queue on a computer.
When the system is full other programs have to close down and only when the
queue is systematically reduced will the program respond by spooling other
information.
That explains why I cannot any longer drink from a cup and walk as I did
before when I was in a rush. If I drink, I stand very still these days.
Touch is a very strange concept; it gives much information about our external
environment such as; when to put more clothes on when to take some off, it
gives direction of what is touching you for example, a stick touching your
back, a stone in your shoe and so on.
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The second headache is with me all the time that I am awake; it feels as if I
am wearing a skullcap. The feeling goes from the top of my nose up about an
inch and a half like a band. It travels around my head to the back and straight
up over the middle of my head back to the top of my nose in between my
eyes. This has varying degrees of severity and tends to be forgotten until I
am trying to focus on a task, such as typing or reading or keeping track of a
message on the phone among other things. Travelling in the car intensifies
the feeling greatly and quite often it fatigues me to the point that I have to
sleep else I am physically ill.
The third type is a banging thumping feeling that does not seem to originate
from any particular point of origin, it just arrives for no reason other than to
annoy me. It is sudden and electrical, it can last from seconds to almost a
minute perhaps I can not be sure, in real time it could be an hour, only I am
sure if this occurred for a noticeable length of time then someone would have
detected it by now?
The fourth type is not unlike a migraine effect. It attacks the sinuses and the
eyes. This I usually get from being anxious and being in the car does just
that. This usually I can half by taking prescribed painkillers of a fairly medium
dose.
It is accompanied by the feeling of blistering and has a buzzing feeling to it
usually around the top of my head about five inches in circumference.
All four of these happenings affect my ability to function correctly in many
ways as you may or may not appreciate.
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They reduce my output so I am slower in reaction in decision-making
especially if I am conscious of some other input such as when I am cold or
being rained on, all these distractions take up much energy.
To a person without these problems everyday tasks goes un-noticed as other
tasks are carried out time after time after time. Even as I am typing this I am
aware that an earplug is pressing upon my skin and it is annoying me to hell
and back. The out come is that I concentrate so much upon the earplug that I
start to make spelling errors and although when I type I use two fingers and I
dare not look elsewhere other than the keypad I still cannot get my fingers to
hit the correct keys.
My arms feel alien to me they feel as if they belong to someone else.
Have you ever seen demonstrated the party piece performed by two people.
The one stands behind he other their arms pushed under the person in front?
It looks like the person in front has really weird arms the one at the back
desperately trying to find the mouth of the person in front? This is usually
done with a pint of something just to add to effect and it looks hysterical to the
audience. A good analogy of how I sometimes feel about my limbs.
I know they belong to me but I feel that they don’t for example have you ever
been in the situation whereby someone you know goes away for a few years,
you miss them so very much yet when they get back you feel nothing? That
is how I feel about me, that has me worried slightly I have no logical
explanation and I am too tired to reason why.
There are many questions in my mind as there are stars in the sky and there
are as little answers as there have been contacted from alien life.
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I cannot state that I do not have a social life, but I can say that it has definitely
changed in a dramatic manner. In fact I see very little people then all at once
I may see many and have so many visitors that I fall asleep on them. But only
three of my academic friends have stuck by me Duncan, a former lecturer and
dear friend and my old mate Chris who got a first let me tell you and Mark who
got a first also.
I did have a phonebook full of numbers a network of people that I could rely
upon and they could rely upon me, whatever the task. Now they can no
longer rely on me I am no longer part of the collective so to speak and the rest
is obvious is it not?
The world seems to have little time for D- People. There I have said it I am a
D-person. I had an accident that has left me with an affliction known as
depersonalisation disorder among other things. And I do not like it one bit
although I seem to be coping underneath I am annoyed but patience is my
only collaborator while time is my Othello, my nemesis.
I am going to wage a war against my brain and I bet I lose. It is a lonely
planet but I like it quiet.
Most of my attention goes on focusing on the reality side of things. I am afraid
that if I let go that I may slip into an insane world with no way out while I battle
with the real world, as it seems to me.
I apologise if that makes little or no sense, there again perhaps one ought to
be worried if you should know what I mean.
There was a time I remember that I questioned my insanity but I cannot for
the life of me decide when it was perhaps it just then or perhaps a week ago,
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who knows and the more I sit here thinking about it I do not really seem to
care. It would seem that I am having a change of mood.
I think it has something to do with writing down my thoughts, I ramble away to
this computer as if it gives a stuff about my problems, but it is I suppose a
good sounding board as I have bound to have mentioned somewhere among
these pages.
I do not foresee a future in publishing, as I would bore the pants off of anyone.
But on a more positive approach it is good exercise for my brain and practice
makes perfect. Night time is the perfect time to write for me, it is nice and
quiet but I feel the cold and the heating has gone off on the timer.
Now I am faced with a problem that should be easily dealt with but no matter
how I try I cannot make up my mind what to do and in the process I am
freezing cold and slowing right down. So I hear you say turn on the heating,
ah but then my beloved upstairs in bed will roast, so I have one other option. I
have to turn on the portable gas fire. This mind you is at 2:52 and as you can
appreciate if it is cold and especially at night, sound travels faster and a
longer distance.
Now do I chance gassing myself? Or perhaps blow up the house. Even
worse still I could wake up sleeping beauty upstairs or chip the wood work as I
am in the study and it is in the lounge, behind the door which is at the side of
the surround sound unit and television which I am bound to bash into with the
fire.
Meanwhile back in the study my fingers are now turning blue and I am feeling
like I am made from steel as I trudge to get the fire. I have no reason for not
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bathroom, again I do not know why nor can I tell you just what it is that makes
me feel like this.
What I can tell you is sometimes I have a fear and loathing of that room so
strong I will not go in alone. I try to rationalise my feelings and even though I
realise the stupidity of my reactions I still find it difficult to cope with it. I have
become better at coping with the problem by opening the bathroom window
for ventilation in case it was just claustrophobia.
I do not have the door shut whenever I feel like this and I want a bath, if I
need to use the toilet I use the down stairs facilities. I have even just gone in
there to force myself, sometimes it works, sometimes I have to give in and get
out.
I cannot give explanations and I cannot really say one hundred percent I know
what I feel when it happens. I feel anxious about being in there and although
it does not happen that often, it still is a bother if I am on a cleaning task. I
tend to forget what I am doing as I just have blank moments then leave or just
feel the need to get out, so I yield to my emotions and try to leave slowly so
that at least I do not have to feel so bad about giving in.
I wonder apart from individuals that suffer from genuine phobia’s just how
many other people go through the same feeling about particular situation such
as I have experienced. Not in my wildest dreams did I ever think that I would
see life from the other side of reality, how strange everything appears, bizarre,
complex and loud. Sharp, dull and every other sense that I have seem to be
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What might have happened to me if I had been alone in town? Would I have
wandered off somewhere or just stood still? I have no answer to that and I
certainly do not wish to find out.
A little while later I sit trying to make sense of a conversation I am listening to
on the television, sometimes it takes while before I get over the symptoms of
overload. When I ask what was being said I was told that it was the weather
forecast, strangely enough I thought it was in Russian. That happens quite a
bit too. When trying to follow a conversation, sometimes the speaker will, for
a few seconds sound as if they are speaking far too fast for my brain to make
sense of what was said.
If you fast forward a tape by holding down the play button the noise that you
hear is recognised as speech but the bad streaming, so to speak, causes it to
be stretched and distorted into high frequency sounds this makes it difficult for
the brain to make any sense about the content of the sentence let alone
decipher any true meaning.
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It is the 10th of March today and I really had problems about going to the day
unit today. I really did not want to go. Yesterday was the same. It takes it out
of me travelling in the Ambulance car and I find it very difficult to function in
the mornings, however if I get up at 6am I tend to become more alert and by
the time I am dropped off at the unit I am tired but at least I can function.
On my toffee days I get irritable and tired easily. A Toffee days expends more
energy than I have and I have felt this toffee mode coming on over the last
few days and today is no exception.
Yesterday was a below average day today is just below that again. Once I
arrive I am usually okay and one cannot help but laugh at the things people
do and say, staff and patients alike.
On route to the physiotherapy room today I felt unsteady. I also went down
with another individual so between electric trucks whizzing about driven by
porters that just adore the horns on the trucks, doors that open out in front of
you, wonky flooring and someone going on about other things it is a wonder I
arrived there at all.
While trying to balance myself by holding my handout on a wall, I noticed a
silver coloured stem coming out of the floor, I thought it was just another
coloured tile and stepped on it, it was discarded rubbish someone had
dropped onto the floor a cigarette packet in fact. When I stood on it I
suddenly felt a foot hirer and tried to jump down from it, kicking the wall
instead and sending myself flying.
Sometimes that corridor can look menacing. It is, or seems to be a twenty
pence piece shape and it the light must reflect in all kinds of directions, this
prism effect can be immobilising at times especially if one becomes distracted.
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I say this in total earnest and believe it right now, but who knows what I will
feel like when another worrying thought comes to my attention.
After testing my blood sugar levels I find that they are quite high. I administer
my dose of insulin. I have found that since the accident I have little warning of
an on-coming hypoglycaemic turn. This means I need to replenish my
glucose supply else I blackout and go into a comer. I wonder why this is?
Usually I know by the usual signs, one becomes hungry, you begin to shake
and have cold sweats other diabetics will more than likely have their own tell
tale signs individual and unique to themselves but generally there are a few
common symptoms such as hunger and tiredness.
I just have to be that little more careful but it is difficult as I feel now that during
the day should I go out that I had best not take my morning dose just in case.
I feel much safer and it seems to work out nicely.
In the morning I have to visit Frenchay Hospital in Bristol to see someone
about something. I have been told many times today but I seem unable to
find the file from memory, so to speak. I think it is because today I feel run
down and fatigued. It has been cold and my functioning on a pretty low level.
I have been sat here wearing a sweatshirt seated next to the radiator and still
I am cold. I have the journey to Frenchay hospital tomorrow and I am not
looking forward to it much. My mind is buzzing with thoughts and I am really
just plodding along. I feel as if all I am doing is rambling and not making any
sense at all.
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the same event took place. How rude did he think I was, to make it even
worse the poor chap was obviously not well and had also had a head injury.
My partner was hysterical too as laughter is contagious, between trying to
shut me up and stop laughing there was little one could do but hope hat I did
not end up being confronted for being so rude or punched at least.
We had just seconds to calm down as Dr Bird walked around the corner I felt
that a quick explanation I felt was appropriate and tried to explain without
exploding into laughter again. I was hurting and out of breath at this point I
dare not look at my partner or her at me. Unperturbed at this Dr Bird took it all
in his stride.
I do not recall much about what took place, however I do remember being a
little confused as I thought at one point that we were in a police station or a
bank at the time I could not decide which so I did my usual and played it by
ear.
I have decided to send a copy of this to Dr Bird as he says that it would be
handy, I think it would probably double up as a sedative or comatose if one
reads it all.
I went straight to sleep once back home and I have had such a headache
since. It is the headache that feels like as if I have burnt skin on my head. It
feels as if there are red-hot needles, millions of then under my skin on my
head trying to burst out from beneath. My temples are throbbing and my eyes
are heavy I am confused and can hardly move. Once in bed I slept without
waking until the morning.
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changes. I still find myself holding my limbs at awkward angles while trying to
concentrate and I still am unable to cope with multi-tasking without getting
severe pains in my head. The confusion is still prevalent and toffee days still
occur, am I expecting too much?
Surely it is time that things altered; still I am glad that I can still write. I used to
research and write most of my spare time and I miss it, however this is good
therapy, am I repeating myself? I think so; in fact I feel as if I should pack it in
right now and have a long break. I am feeling rather blank and miserable and
unable to concentrate on what I am doing. Roll on tomorrow.
March the 18th
Now I am buggered, as I cannot for the life of me think how long ago it was I
wrote the last entry. It would seem that I have had a time laps again. So now
I am thinking, where the hell have I been and what did I do since I went to
Frenchay hospital.
It makes my head hurt just thinking about it. I have read back the last few
pages and I still cannot think what has happened since. Okay, now you will
see how brain injured patients recall memories. (Sits blankly looking at the
screen hands being wrung like old sheets)
So, what day is it? It must be Friday because yesterday I was asked to go
into the post office on my own, while my partner waited in the car outside and
get some electricity, gas and pay the phone and we always do that on a
Thursday. So what day did we go to Bristol for god’s sake? (Blinks in
disbelief)
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I am surprised at my success on the eye toy; I seem to be able to cope with
interacting with it more than using a keypad controller. I suppose this is due
to the fact that I am interacting as a whole and not just using my hands and
eyes. It seems to be giving me a lot more fun than normal exercising and
doing the same job.
Monday morning came and went and I slept through until late I think it was
about eleven thirty when I got up. It must have exhausted me yesterday on
the Eye toy and today I cannot keep awake, I had to go back to bed around
three and slept until six in the evening.
I have made many mistakes today and I have become aware of other
malfunctions, for example my speech seems to be slow and slurry and I have
been getting words muddled and giving sentences which are incorrect and
without meaning. I feel so lethargic my limbs feel heavy and I really need to
sleep. First I have to take a bath, I have put it off since Friday I think? I had
showers instead but I feel that if I give in to not taking a bath I will only be
making things more difficult. The problem with taking a shower is that my
favourite cat Spliffy will not come in to the bathroom and I dislike going in
alone.
Tomorrow I have to go to the hospital in Cardiff and I am not looking forward
to the journey. The car ride is taxing there has to be a way around this. I am
guessing but being shy of a good theory I came to the conclusion that I have
to cut down on incoming information somehow as I tend to think that most of
my problems occur due to some kind of over load in the sorting office in my
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head. I think I will have a chat to a staff member about this as they are full of
good ideas and bound to come up with something.
Tuesday morning arrives again, my alarm clock is screaming at me to get up
I have a strange feeling that things were going to feel odder than usual today,
as it was it turned out quite a day.
I got out of bed feeling miserable and irritable. I have been feeling rather
down as of late but I have become quite good at hiding it as I just feel as
though I moan considerably and probably do.
I know exactly what the problem is but it is another thing trying to put things
right and if one more person tells me how lucky I am not to have had
considerably more damage and that other people are worse off I will scream.
I was slow to get dressed my hair remained the same as the night before, just
a few prods here and there flick the front down and it is done a right mess but
quiet fashionable I convince myself in the mirror.
The ride to Cardiff was quite taxing as usual, however I had one of my
favourite drivers today and he has a very nice car.
I stared out of the window at the world whizzing by at a million miles per hour
wondering what was flashing by? It was another car. I can make out what
things are when they are moving away from me as they seem slower
somehow but it does not stop me feeling that nothing is real, I have a feeling
that it will never go away however I cope with it more these days.
Looking at the hills and mountains in the distance I have the feel that it is for
the first time I have experienced the wonderful scenery but I know better.
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The sensation of actually seeing it all moving is making me somewhat dizzy. I
feel as if I am seeing things in segments rather than as a whole also a strange
phenomenon that I now treat as normal. I did say it is just a feeling I have on
the actual eyeball, nothing really but the feeling is there sometimes, more so
when I become tired, I gaze back out of the side window.
There are the mountains in the background all moving the same speed then a
little closer the hills are moving just that much faster. The sky and clouds
above, they look like holograms and tend to seem either static against the
blue sky or non-existent if it is raining as the rain impairs my vision.
As things get closer they tend to blend into streams of blurry images. The
strange thing is I keep wondering and looking and next thing I recall is waking
up. It is all too much for my tired and battered brain to handle and so I sleep
away the journey.
This afternoon I have physiotherapy and after this morning’s journey it takes
half the day to revive so I am relieved to have a few hours to sort my head
out. I am not sure what else I did that day as I had left my daily personal
organizer (note book and pen) at home.
Sometime during this week my partner was called upon to set up a video
system for a neighbour. I not wanting to get in the way stayed at home, after
a while there was a knock at the door, reluctantly I opened it to find that our
neighbour’s husband looking rather sheepish, my partner needed some help
so I went around too.
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As I walked in the chatter between the three of them and the television set
was too much. I tried my hardest to listen but soon I became unsteady on my
feet, my speech started to slow down and become slurry.
I felt as if my head was going around in circles I had to get out, I made a
guess at the channel was out, made my excuses and bolted for the door.
Very much the same has happened at the bank. I thought as I was feeling
particularly well this one day I walked into the bank on my own to make a
deposit.
As I entered the bank I found there were many people the queues were
extremely long, there were children running about and screaming. There
were people talking quite loudly and I was being jostled about as people tried
to get passed.
I stood at the end of the queue waiting as best as I could without swaying too
much as there were no barriers near by to hold on to. I stood with my hands
slightly out so as to aid my balance when suddenly a child ran into my arms
spinning me around in a fashion that would have looked real good on a snow
board. I regained my balance but felt slightly shaken my head was starting to
burn up on each side of my head then my left eye started to burn, now I was
irritable and anxious and the bloody queue was still as long.
Suddenly there was a loud whining noise, which really drove me up the wall.
Someone poked me in the back I glanced around to be told to move down by
the person behind me but on turning back around the room started to spin and
I nearly toppled over. The comic behind me advised more water with it and
suddenly I wanted to smack him in the mouth, but I resisted, just.
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Walking back to the car was awkward and after realising that I had wished the
teller a Merry Christmas instead of good bye confused was an
understatement.
I was aware that people were staring as they went by. I could feel the heat
from my head as it turned crimson. I walked as carefully as I could and as
normally as I could too but I still managed to hurt my ankle as I misplaced my
foot on the curb. Another toffee hour approaches I told myself getting into the
car. My partner took one look at me and drove me home where I fell asleep
on the sofa for a few hours.
On my second visit to Whitchurch hospital last week I had written in my book
that I have a mission to fore fill. A fairly new group has been set up for people
with brain injuries called Neuro. It caters for many individuals that have head
trauma variously caused, it allows support and projects neuropsychiatry in a
much more positive light to the general public. There are days out organised
as well as safety issues which are distributed throughout the general
communities, hospital and other such establishments, my task for he group
was to inquire about a visit to the Science and technology Centre in Cardiff. I
had suggested a visit might be stimulating.
I made a telephone call and spoke with a very pleasant lady on the phone
who seemed to have quite an understanding of head injury patients. We
spoke for a while about noise levels and she suggested that a visit during the
quieter hours may suite the group better.
At the start of the conversation I detected her agony as she tried to tackle a
few problems, obviously approaching a delicate subject such as learning
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transition difficult. One minute they have full time care and support in an
ergonomically adjusted environment then they are released into the
community often with little support, it seems all or nothing although time, man
power and finances are hard pushed so an organisation such as this one is
well over due.
I admit that I may not be of much help at this time but I would be proud to
become a member and help build in any way that I may be of use. It will aid
myself in organisational skills, which I am useless at right now without my note
book. I tend to see this little book as my brain and I treat as such, oh look it is
almost blank just the same too.
I am hoping that in time I may return to work. My finances have become
greatly reduced and I find it difficult to think that I will be on this income for
ever, until my pension and then it will drop again. I find it hard to save enough
to take care of my partner and I after retirement age so something has to
happen. The other thing that makes me rather sad is the fact that I studied so
very hard for four years and now I cannot further my career as I had hoped.
I had many ideas of what I wanted to do, neuropsychiatry was but one area of
psychology that I found utterly interesting. I also would have liked to have
become a trauma counsellor but that too looks pretty far off now.
I have had sound advice from a lady psychologist I talk things through with,
she has suggested that I concentrate on what I am good at rather than
thinking about all the things that I no longer can do or now find difficult. I have
tried to think of what those areas are and I have come up with blanks so far.
It would seem to me that I am good at very little right now, except moaning
about this damned affliction.
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I have started to delve more deeply into Depersonalisation disorder via the
Internet. The links I found were few and far between, however I did come
across one site that held a few surprises for me even if it did not help.
Not to complicate things and tire me out I shall from here on in refer to
Depersonalisation Disorder as (DD) and a person suffering from it (DP).
Many of the case studies of (DD), it would seem has originated from severe
drug and alcohol abuse. Others tell of childhood trauma and abuse or shock
and there were some cases that originated from giving birth.
Many cases too were catalogued from early childhood and seem to stem from
a type of temporal lobe seizure (Temporal lobe epilepsy) and in a few cases
(DD) has appeared without rational cause as well as severe head injuries.
It would seem also that (DD) can and does exist as a symptom in many other
illnesses too, usually from a young age but sadly the most cases seem to
originate from substance abuse and alcohol.
The symptoms of substance abuse cases state that they feel as if they are in
some other persons body and that they do not have the feelings that they are
real. Personally I feel real and I know that my environment is real, it just does
not feel as it should.
I feel as if this is the first time for me to ever have visited Earth, and yet it
seems familiar. I suppose that the levels of severity and the individual
damage has much influence over the symptoms that occur, however I know
who I am, it is the others I have no idea about.
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In my search I uncovered the Cambridge questionnaire that gives the scale
for (DD) constructed by (Sierra & Berrios 1996).
I have decided to use this scale in order to analyse myself, how exciting.
The questions were set out so that answers were given rank priority, such as
often, all day Etc, I think I will just do it my way as it is easier for me as not all
the questions apply directly but could fit in slightly, if you know what I mean so
here is the list.
Out of the blue, I feel strange, as if I were not real or as if I were cut off from
the world. As far as this question goes I can only say that although I feel as if
the world is different I do not feel cut off from it, I feel very much a part of it
however strange it may feel.
What I see looks 'flat' or 'lifeless', as if I were looking at a picture. Well, that is
strange because I do see flat things that are not flat, but only under certain
circumstances such as dark back drops or shadows on steps in sun light.
Usually everything looks like a 3D effect that moves independently enhanced
with dark lines around them as if draw in charcoal.
Parts of my body feel as if they didn't belong to me was another question that
I had to think about as I know that my body belongs to me, however I keep
thinking that I remember them to be smaller or a different shape but when I try
to remember what shape I thought they used to be I cannot for the life of me
remember enough to give any description. One question that surprised me
was, I have found myself not being frightened at all in situations which
normally I would find frightening or distressing. This struck a cored as I
remember a few months after coming home from hospital I showed off
something cruel when my partner’s mother came to visit to go to the seaside.
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Reluctantly they agreed and we set off for the coast where I had another
major strop as I wanted to go on one of the rides that turned every which way
but upright.
As I sobbed like a three year old and just as I was about to throw myself on
the floor, reluctantly again they purchased me some tickets to have a go on
another more sedate ride. Actually I have to admit that I had agreed to this
but then as I had the tickets in my hand I made a dash and boarded the ride
of my choice. By this time it was starting to get embarrassing for them, so
they let me get on with it just praying that what ever brain cells I had left would
remain intact by the end of the ride.
The ride in question should have had me screaming and yelling as usual, not
a good choice for someone that had sustained head injuries such as I had
but, in the name of science, you know how it is nothing ventured nothing
gained. Actually the only thing that I was concerned about was that I could
not find where the car was to wave to my partner’s mother. It was something
and nothing, not at all what I remember the rides to like, what a bummer. But
it did teach me one thing, rides were a waste of money at least until my head
becomes better.
My favourite activities are no longer enjoyable was another question that I felt
was not pertinent to my condition as I enjoy a game of chess and I still enjoy
video games and being with friends.
There are other hobbies and interests that I no-longer pursue but that is
simply due to other symptoms such as being unable to look up in the air for
any length of time, this I suppose is because of Occipital and Parietal damage
sustained during the fall. And I become so tired after walking around what
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with one thing and another I no longer walk for miles at a time, but I do walk
around the park so that is not too bad at least I can get out.
My concentration is poor but this can be over come when playing chess as I
have a silent environment, but my major pastime was driving and that I can no
longer do because of many reasons not just because of the depersonalization
I think if it was just that I might be better off, I do not really know and can only
make suppositions at this stage.
Whilst doing something I have the feeling of being a "detached observer" of
myself. This question again I had to think about. When I am doing anything I
know it is me that is doing it, sometimes I do feel awkward but I tend to think
that this may be due to concentration.
I concentrate so hard that sometimes I find a limb such as my arm or my hand
is being held in an unusual position, for example my middle finger will curl
upwards as my arm sticks out at a slight angle. Lately I have become aware
of this but I have been doing it for quite sometime. I catch myself doing it as
the level’s of concentration needed are lowering as the task reaches
completion. I am also aware that my motor functions continue to dissipate as
fatigue conditions progress.
The flavour of meals no longer gives me a feeling of pleasure or distaste.
This is interesting tome as since the accident I have had problems with taste
and smell, which I assumed to be due to conditions altered by the damage to
the brain. I also have had to re-learn what I like as I could not remember
many of the foods or drinks such as whether I dislike malt drinks or not.
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When this happens the speaker sounds to me as if their speech has suddenly
speeded up. When this happened first I thought that the news was being read
in Russian. It still happens quite a bit but it has decreased in frequency, thank
goodness for that.
I have the feeling that my hands or my feet have become larger or smaller.
This sounds familiar to me as I feel that I remember my hands being smaller
and when I look down at my feet they seem some feet away, not the usual
vertically challenged view I remember .
My surroundings feel detached or unreal, as if there was a veil between me
and the outside world. There seems to be an amount of truth for me here as I
do feel that my environment is different and yet it seems so familiar. The only
analogy I can give is that I feel as if I have become born again in an
environment that is familiar but one that I have to be re-educated in.
I try to think of a better way of putting it, but I feel that I am unable to
encapsulate the entire sensation that I want to portray other than I feel as if I
have been off loaded here from another dimension or planet that was similar
but different from my own.
I am not quite sure if I ever will be able to and I am not sure if there are ever
slight changes as I forget from time to time the most ridiculous things let alone
subtle changes in environment.
It seems as if things that I have recently done had taken place a long time
ago. For example anything which I have done this morning feels as if it were
done weeks ago. Now this one is a definite yes and I am stating here and
now I remember not being like this before. I have always had an explicit
memory and could tell of chronological events as if they had just happened
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I have problems though as I have mentioned earlier, with the concept of time,
memories could cross and then of course cause all sorts of problems, for
example.
I was told by both my partner’s mother and my partner that we had visited a
shop up town and made a purchase, in my mind it was weeks ago and
therefore I argue that after having the purchase for weeks on end perishable
goods would not be exchanged, in truth it had been that morning that we had
been to the green grocers and bought slime filled lettuce, not as I thought
weeks earlier. I would hang an innocent man in a court of law if his alibi
depended on me placing him away from the crime scene on a particular date
or time. So yes I can safely say that I am like this 24 hours a day all week for
nearly two years now, I have the dates written down to remind myself, if I
could remember where I have placed them.
When in a new situation, it feels as if I have been through it before. No this
does not happen. Well it does, but not enough to say it has an unusual
frequency of occurrences everyone has the occasional déjà vu. It has been
suggested by many eminent scientists to be a disturbance in synchrony
between both hemispheres of the brain. Nothing alarming there or Para
psychological, next question then.
Out of the blue, I find myself not feeling any affection towards my family and
close friends. No this definitely does not occur. However I need more quite
and space these days and I do hide away a lot more but my feelings of them
are the same as I remember, I dislike them all equally. Another quip and not
true at all, so moving along swiftly.
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I have to touch myself to make sure that I have a body or a real existence. If
this questions means did I ever have to question if my existence was real not
by validating my body’s veracity, then yes, but I have given up on that due to
the conclusion that I was indeed real and that nothing else was. By the way
did you know that if you pinch the back of your arm you feel a pin prick type
sensation on your side? See what I do in the name of research. Next
question for one hundred pounds, and no conferring.
I seem to have lost some bodily sensations (e.g. of hunger and thirst) so that
when I eat or drink, it feels an automatic routine. No, I enjoy trying different
meals and the one’s I know I like. I wonder if this encompasses change in
taste and smell? If it does then yes I suppose I have, but not loss of appetite
in fact it has increased but that is more than likely to do with the Epilim, I have
asked my consultant and he agrees that in some individuals it has been found
that Epilim can increase hunger. I am quite happy to blame the Epilim for my
love handles all twenty one of them.
And the last question is. Previously familiar places look unfamiliar, as if I had
never seen them before. I have this in reverse. In the early days I did get
quite lost in familiar places and still do now and again, especially if I become
confused due to crowds and noise. Again I regard this as information
overload as my senses are hypersensitive these days.
As I read through these questions I cannot help but think that they are
somewhat leading questions. However, the scale was constructed for, as
they worded it, normal people. I vaguely feel that any person having a
disorder that influences them to look for symptoms will have a field day with
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I feel slightly better knowing that there are other people that feel the same,
perhaps I should not be, but no one really likes to be that different that they
are a one and only, myself included.
While referencing from a psychology book I found that someone had written in
the back of the book. It says 19/09/97 start university at Glamorgan first year
student. It then goes on to say, well here I am second year student 16th of
November 1998, I made it back god this good. Then it says yes I made it
back again 12/10/99. Almost at the end what will I do I don’t want to leave.
Chris and I are about to sit our final exams. Graduation day is on the 20th of
July. Then I saw the message written almost in a frenzied scribble, it says
WE PASSED JUNE 2000, next the PGCE (Gluttons for punishment)
The next entry was less enthusiastic, it read NEW YEARS DAY 2001 START
TEACHING PRACTISE SOON I HATE IT AND I AM QUITING TO START
WORRK AS I CANNOT STAND IT ANYMORE AND FINANCIALLY IT IS NOT
WORTH IT IS TOO COSTLY AND THAT’S IT I AM OFF TO DO A MASTERS
BACK AT GLAMORGAN IN APPLIED PSYCHOLOGY BUGGER IT I
SHOULD HAVE DONE THAT FIRST. I AM GOING HOME TO DO A
MASTERS YEAH!
I felt so upset when I caught sight of my name, the hand writing looked so
different and even as I sit here typing this my eye is filling up, I have this
enormous lump in my throat and my nose is starting to run. Where is my cat?
I need a hug from her, ah sorted, there she is Spliffy come here.
That is much better, how does she know when to turn up, just as I say that in
walks one of our dogs, KC Dog is her full title and she is trying to console me
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a few things such as the level of paranoia directed at people that I should trust
and in my heart I did trust them, but not enough.
I realize that since the accident things have become more clear and fit in with
medical evidence that indeed I did have an accident and I was not abducted
by aliens or by the government and the remote viewing team at the C.I.A in
America (not the Cardiff International Arena I may add).
My friends are not covering up for them and neither is my family. I know
because I have been told by them a dozen times over in their attempt to bring
me back to reality. I nearly drove them all insane and at one point I am told I
had my partner in tears with accusations regarding my extreme paranoia. My
partner found it harder and harder to cope.
It was only when I started at the Neuropsychiatric unit as an out patient that
things started to unravel for me in that I could see for myself just how many
other people were in the same position as I was and most of them had
accidents in very much the same way.
The point is, when one feels trust in someone it is very hard to ignore that
feeling and there are a few main people at the unit that I trust implicitly. One
of these people visited my home. I remember sometimes and it gives me a
warm feeling and I feel quite choked up for some reason and every time we
meet on the unit and even if I do not feel like it I smile from ear to ear, perhaps
it is just his expression but he does radiate a warm and positive ambiance and
that has to be special and deserves my trust.
There are not many individuals on the unit I feel as if I would not trust totally
perhaps four or five but I like everyone and that includes the patients.
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So what is this paranoia then I wonder. Is it just because my first perceptions
after waking was that I had been abducted and the last thing I remember
conversing over was alien life forms and government cover-ups?
Yes, I think it could well be. It had crossed my mind but only lately I was far
too busy chasing remote viewing C.I.A agents that wanted me back in the test
room of some spaceship. Men in black and such like, perhaps it is real and
we are all bred for test purposes and being an astronomer and a psychologist
my brain might be worth looking into. (Okay, that was a joke put the white
coat with the shiny buckles back for a while anyhow)
I no longer think seriously about scenario’s such as those now but I have put
in much time researching into the areas of neuropsychiatry that I think may
help. As a psychology student one dances around such topics and there is
much I have learned from the research albeit at a snails pace with ear plugs
in.
One thing I had not realized is that (DD) can be divided into a disorder and as
symptoms, I had not thought about this up until now. I really think that this
area of research should be pursued as many people seem to suffer from its
symptoms in various ways. Until I started trying to find out what was wrong
with me I had not heard of anything such as this.
The Internet provides a plethora of case studies but one has to dig deep as it
was not easy trying to track information on a subject unknown, some of the
case studies have mind blowing accounts of (DD) and takes the individual to
the very edge of reality and beyond if they are to be given credibility, which I
think is probable as I have been through some of the symptoms caused by
brain injury and even in my case reality no longer exists as I remember it.
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Reading back over that last section it reads as if I have doubt as to the
veracity of some of the statements made by some of the individuals that are in
the case studies. I do not doubt what they are saying at all it quite the
opposite. On the other hand I could see why some individuals fail to
understand the concept and regard the account with uncertainty and
sometimes disbelief.
If one thinks about truth in human minds, one can only know what one
divulges. Before I had experienced the affects of the head injuries I have I
would have held some suspicion as to the veracity of some statements made,
particularly over a website. It was not long ago I suppose that I thought I had
taken leave of my senses and become totally insane. Direct experience is the
best method of receiving information about anything.
Night after night I have sat alone trying to put together a mind map of what
has gone on and how I became to be in such a place so I have complete
empathy and understanding of what others may be feeling.
I have drawn charts and tried to figure out dates and times and events all in
vain as until now and I feel more stable in myself and satisfied that I have had
an accident. I am less surprised if someone informs me that the work I am
reading is my own, although I am delighted to know that I had a history of
academic achievements. I am still a little amused by it all as I think I am quite
thick and show little common sense I am told.
I still remember doing things although it seems that it was someone else, I
cannot be more specific than that as I fail to find words to describe the
sensation.
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As he stood before his captured audience he gestured passionately to
illustrate and bounced about with glee as his story unfolded about an incident
that day in the refectory whereupon he had smelt the mushy peas being
prepared for lunch.
“Today” he announced to the students “I stood in the refectory and I could
smell the mushy peas cooking.” He sniffed into the air as his chest expanded
to illustrate the yummy and desirable order. “ when I smelt them cooking” he
charged on. “It elicited a memory from my childhood of my mother in the
kitchen and myself as a child waiting for my dinner to cook” he paused to
observe the crowd and re-sniff the air for added affect. “ Even as I think of it
now,. He sniffed again and then shot himself in the foot by saying. “ I can still
taste that pea ness in my mouth.”
Beware that memories of this kind will hang around like a bad smell for years
and I bet he still remembers too, poor tormented soul.
Memories can be false and if one cannot recall a memory without being
primed what is to say that the memories that are elicited from such prompting
are true?
I vaguely remember a case study from the past that required students to
watch a video. They were asked questions about the film such as did the
woman with the yellow hat drop a newspaper. Even if the woman that
dropped the paper was not wearing a hat there were people who were
adamant at first that no-one in the film was wearing a yellow hat , they were
persuaded that she was as confederates of the experimenters convinced
them so.
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though I threaten quite a lot. (And now, just to add insult to injury, my A drive
has buggered up on the computer, how bad can it get?) I am going to make a
cup of tea and cry into it for a while before I throw a wobbly.
During my tea making I thought about peoples definition of the word paranoia,
some tend to use the word freely to describe those that ask too many
awkward questions. I have come across this usage many times when I think
that the speakers tone is snappy perhaps I will ask if there is something wrong
and I am told not to be so paranoid. This disturbs me somewhat as this
affliction has sent my sensitivities flying out into orbit. The slightest sniff of a
tone that could mean I am for the high jump makes me cringe most of the
time and it is driving my partner crazy.
I cannot afford to ignore tones in speech, nor can anyone else that would like
social acceptance, as it defines reactions. Once taken the wrong way it could
start a war with some individuals, my nerves are slightly the worse for wear as
they are without the added taxation of offending people by accusing them of
talking down, or offensively to me without justifiable cause, not only that, a
twisted earlobe hurts and so does a poke in the eye.
As I see it, if one does not ask one does not know and I make no excuses for
needing to know if something is wrong. I suppose I do it a lot, so I can see
why some people become irritated by it. I suppose I could ignore some tones
but with the luck I have, that will be the time that I should have asked and will
repent at my leisure for it too, or am I just being paranoid?
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The human mind is a wonderful object it can play so many tricks but on who?
How can it trick me into acting strangely? Earlier today I was playing with one
of the cats on the dedicated work top by our front kitchen window when
suddenly someone appeared there and spoke to me.
It was someone I had not seen for a while, even so my reaction I think in
retrospect was strange.
He said that I had stared at him, then looked away after say hello and
addressing him by name and continued to play with the cat. I had thought
that it was my imagination and continued thinking to myself how bizarre this
was to have taken place.
I remember thinking that I would have to write the event down when he called
me by name and asked me if I was drunk. He was laughing and shaking his
head then he put his hand through the window and stroked Jess the cat and
suddenly seeing this made me realise that I had become so engrossed in our
playtime that I had forgotten about the open window and yes in fact there was
a real person standing there looking in at me.
What made me think that it was something worth writing down was the fact
that, I cannot remember the event taking place only part of it, such as thinking
how strange it was to have seen his face and that it appeared in my head like
a thought, not as some that was taking place in real time.
This happens a lot if I am concentrating, it does not feel like a day dream but
like switching channels on the television perhaps. The noise levels were not
that bad so what happens to cause such an event or is that quite normal
sometimes? Perhaps I analyse myself far too much or perhaps it is healthy.
At least I am keeping an active mind, wherever I am?
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me that it was either five past two or twenty five past two Am and that she is
probably in bed, I then must have blanked out as I remember no more.
After reading what I have just written here you would think that I would be glad
to see her at my bed side, and I apparently was until the day I signed myself
out. Yes that is correct I did sign myself out, what an idiot.
I had been under severe tension, what with all these men in black lurking in
the corridors and aliens flying about the solar system just waiting to get me. At
that point in time nothing made sense and the abduction theory would kick in
at the slightest cue. I had signed myself out because, I proclaimed, I would
be safe with her and that I would protect her and the animals (Yes I had
remembered them too) from the onslaught of aliens probably due to land in
Monmouth, only god knows what I was thinking at the time.
With warnings that I had to go home with and not anywhere on my own as I
was a risk to myself and other people, I was permitted reluctantly by the staff
to. They were not happy bunnies about this and they tried along with Jaci to
keep me there as long as possible, without tying me up, in the hope that my
mind would change, but no my mind was made up I was not waiting to be
made into an Cyborg, I was off.
The embarrassment that I caused Jaci was shameful, although we both laugh
at it now. She tells with amusement how, I would be pacing about getting all
flustered then as I approached yell abuse at her telling her in no uncertain
terms to go away and leave me alone as I knew she was an impostor,
probably a body snatcher in my mixed up little brain. The next minute I would
pass her by again as she sat patiently waiting the outbursts to cease and say
to her, hello Jaci and sit by her, next I would be off like a banshee striding
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along yelling at her to (ABUSIVE GUTTER LANGUAGE) go away. I have no
recollection of behaving in this way, I am so glad she understands.
After that was the journey home which I have no recollection just as with the
outbursts in the hospital. Jaci tells me that this was quite a journey and she
did not know if I would have another outburst so she was pleased when I
started to giggle then passed out.
Our neighbours were in their window as we pulled up and I have no
recollection of anything so I have had to rely on accounts from them and Jaci.
Our neighbours thought that I had suffered a stroke as I was hardly capable of
walking even aided and of course I had the palsy down my left hand side.
The other problem was my speech, I could hardly string a sentence together
and when I did it was often confused with misplaced meanings.
Her accounts of my behaviour were logged for a while so I had some idea of
things I did, for example I would eat things from the ground as a child does. I
would pick berries from trees and worry Jaci to death. I know I owe much to
her and credit where it is due, Jaci Thank you so much for looking after me
the way that you have, but it has been a laugh too although I only just
remember some things. It seems funny now because it seems that it was
someone else and not me. But it was me and there has been a vast
improvement since then and I seem to remember more happening even
though I do not know when. Jaci has me in stitches telling me what I did, she
is a good woman and has taken much in her stride, she did not have to but
she did.
It has been challenging, having to learn basic things again but second time
around is always much easier, or so it is said. Even as I am sitting here
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thinking about it, this depersonalisation disorder or reality displacement
torments me. There still could be a marginal probability that there is a
conspiracy and that we that have this disorder are being fobbed off, they sent
a man to the moon did they not? It never eases up and neither does the need
to be some place else, where ever that is.
I have not been feeling, for the want of an expression, my usual strange self
the last few days I think it might be. I try to keep track of days and times I
keep dates here and there, but that is the problem I become fatigued by all
the looking and finding and reading. I have tried to think of a way of stopping
this happening, I feel exhausted, semi-functional. The only thing I can think of
is that I have had a mild personal dilemma crop up and I have to think about
how to deal with it plus my solicitor has sent me a letter that made me think
that there is a problem and I cannot get these out of my head. Of course with
it come all the other symptoms such as anxiety, and odd feelings that I get,
such as not wanting to go out and certainly not travel in a vehicle, so I missed
out this week on two visits to the day unit and that is important to me.
I have promised myself that one Friday I will force myself to go, even if I have
to wear blinkers and take knock out drops.
The problem I am having typing is unbelievable, I am not the best in the world
however I am unusually bad today in that I am very slow. Noises are
distracting me and I noticed earlier how clumsy I was just drying a few dishes
and feeding the animals.
I think the amount that I have slept the last few days has improved on my
mental health as I played chess today, I did well actually, not bad. There
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Today just like many other days lately I have done nothing special apart from
hiding from the world or walking our dogs, bit of cleaning and gardening if you
call spraying them with… (I cannot for the life of me think of what it is called,
oh bugger.) it is an anti-fungal insecticide? That is the word I wanted, I used
an environmentally friendly one that will not kill wasps, bees or ladybirds and
I try to spray when the bugs are asleep so that there will be minimum pain I
hope so anyway.
I have slept quite a lot again lately. It goes like that I have noticed because I
have been keeping an events diary. I go over them now and again, I do not
know when the last time was exactly but I think it was recent.
When I find it I will have a look to see if there is a specific pattern developing
but there has not so far, as far as I know anyhow. However it does tend to
have a slight random pattern I suppose in that the same symptoms actually
reoccur and can be are accompanied by other symptoms, such as fatigue and
abnormal functioning on basic tasks, which is the random part. The
reoccurring part is that it goes from bad to good in circles. Clear as mud?
Good.
I am thinking that I am somewhat like a machine that needs topping up
something not unlike a cordless screwdriver I suppose. They are bloody
useless also. That statement means nothing though, it just restates
something that has been known for a long time. That does not help and it
does not make me feel any better.
Let me be rather candid here, what is the problem with me? Well let me think
at this time, as I have for god only knows how long, I have felt like an alien
from a very similar planet. My perception of the world has changed
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filtered some water into the kettle then switched it on. I can only hazard a
guess at how long I had been standing there waiting for the water to boil, I do
not remember it boiling or remember the noise it makes as I usually do.
I gradually became aware that KC was standing at my feet making low
throaty growling noises and she had her paw held up on my leg. My attention
was then drawn to my leg, it was scratched, bleeding ever so slightly but
burning like fire. I bent down and made a fuss of her to insure that she
understood that she was a good girl, I asked her what she wanted but she
turned around and walked off. I watched as KC left the kitchen her tail
wagging, I wondered to myself what she had wanted, usually this meant take
notice of me, but not today and why had I not felt KC clawing at my leg, then I
felt the kettle it was warm not hot it had time to cool down, perhaps I had
suffered a mild seizure and KC knew something was wrong. I can only guess
as to what she really meant to communicate but it would seem that as soon
as she got my attention and felt that I was fine, off she went to find her sister
Rizzo and the cats.
Odd behaviour is something that most of us display at some time in our lives,
every animal on this planet displays odd behaviour because we are all
individuals and unique unto ourselves very much of the way through evolution
and personal self, so at some point we all will carry out actions that others find
strange or what they assume to be out of character to individuals that they
meet or even know personally.
When an individual has a brain injury, it is possible to confuse odd behaviour
as a product of the injury and not the person. I have asked many people that I
know, such as close friends and family the question “I am displaying any
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something unique to your eyes only baby, and that’s cool so hang on to
it while you can.
9. When you throw a wobbly it’s like watching a three year old showing off
but its funny and it amuses me and everyone else that can see you.
You were not like this before.
10. It seems very odd that you have asked, you would not have
entertained the question of asking before. But you have always been
the odd one out, its you. Eccentric shall we say?
With friend like this I do not need enemies really and to put a finer point on it I
may as well ask the man in the Moon, so other than that I can report nothing
on any odd behaviour that I may have developed other than what I consider to
be a by-product of another condition, such as fatigue influenced by incoming
information that I am slow in dealing with.
I have noticed some changes that I feel I can only just keep control of, my
temper is one and my mouth the other. I have never suffered fools gladly and
I suppose that I never will, but since I came to land on this planet after the fall
I have one hell of an attitude problem with some people. I think the problem is
that my brain and mouth used to work together in harmony, a happy duo that
would battle with other brains and out of control mouths with ease. Now I feel
less confident at doing so, until I actually become so annoyed that it just
comes out what ever is on my mind.
Perhaps that is why it is said that I display such childish behaviour when I
think I should have my own way. Sometimes I cannot think quick enough to
defend my self verbally and I find it difficult to explain some things so I
become irate. I become frustrated quite easily then I lose the plot . Of course
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Cardiff International arena (where my nephew ice skates) or International
airport, but she argued that it had to be industries because international was a
newer word therefore it had to be Industries. This for some reason got my
back up, so I argued that even if that were true many younger people may not
know the label, to which she argued back that even today E.M.I is an ongoing
industry and the label would be known to which I replied, with my hand held
out to her, what ever. I then went to the study to sulk. Mmm how bizarre.
I have thought about this and although at the time I think nothing of it, in
retrospect it is certainly odd behaviour. I also think it strange that when asked
this has not come up. Although I get support in other ways I have no feed
back per se. I have to dig deep for conversation at the best of times but I
could do with a little help on keeping score sometimes, although she does let
me know when I have lost something or perhaps thrown something out that I
should not have. She frequently reports on how clumsy I am and how
confused I get, but nothing that helpful. It looks like I am going to further the
investigation, what can I tackle next.
News flash just in:
I was just asked a question to which I knew the answer it was something to do
with a river and which town stood on it. I answered correctly the Niger but the
reason I gave is that Timbuktu, (I can’t spell Timbuktu, hahaha and neither
can my computer which is funnier ), was in Canada which I know it is not.
The problem remains with me still I know that I knew where the Niger and
Timbuktu is but I cannot but help think that it is in Canada. Explain that one.
It is at times like this that the pattering of dogs and cats paws on the
laminated flooring annoys the hell out of me. The screen seems to have
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the nearest analogy I can arrive at. I enjoy it while it lasts, suddenly I start to
decline again. It seems as if there are four or five exceptional days where this
will take affect however over the next following days, depending on my
activities, duration time and how taxing the activities were influence the
duration of recovery. Or to simplify it, the number of Toffee days that I have
will depend on what I get up to during my good days. Where I seem to whiz
around like a ferret up the proverbial drain pipe, until I run out of steam again
et cetera.
I found written in my note book that a staff member said to me that I have a lot
of physical symptoms. I wonder what that means? Does it mean that not
many other patients have as many? Or was the statement just an
observation? Mmm I shall have to write in my note book to ask, I have no
doubt in my mind at all that I can ask this individual and get an honest answer
and it will not be a problem to ask either, this I have come to learn very quickly
and from the beginning, strange how one takes to some from the off.
This next entry is going to cause me problems at a later date as I have
travelled back in time to fill in some information I have found on head injuries
and seeing as I had last entered here about physical symptoms after head
injuries here it is. ( Information from Monday May 3rd.)
Cognitive symptoms caused as a result of a head injury may include:
slowed or reduced ability to process information
short or long term memory loss
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spatial disorientation
impaired judgment
reduced ability to concentrate
communication difficulties
Physical symptoms caused as a result of a head injury may include:
pain
seizures
muscle spasticity
headaches or migraines
problems with vision
balance problems
loss of smell or taste
speech impairment including slurring of words
fatigue or increased need for sleep
Emotional symptoms caused as a result of a head injury may include:
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one knows that it is bad behaviour, moreover, bad behaviour without
justifiable reason, which there usually is none, is unacceptable and most of
the time un-necessary. So why does it occur?
From personal observations, it is because I become annoyed at things. I think
at the time I am right, however in the face of evidence, sometimes, I am
wrong. I still say each time that Timbuktu is in Canada even though I know it
is not, but I cannot remember where it is and I know or have a deep feeling of
knowing, that I used to know.
Examples of such behaviour can be illustrated by scenario’s such as
arguments over when events took place, who was present at the time and
where items where placed as well as the irritating things that people do and
say. For example I might be getting along with potting up a few plants and as
far as I can tell I am completing the task correctly. A few minutes later and
some one intervenes just to let me know that I have done something
incorrectly and I will become hurt and irritated as I feel useless and totally out
of control of my life. I could at one time pot up tomatoes blind folded, but not
any more. You know, some feelings make me feel that I should be capable of
such things, so I ask Jaci, for example, “Did I used to be good at this? The
truth is I should not ask because if the answer is yes then I throw some right
wobblers. On the other hand is the answer is no, I suppose I feel less
inadequate and try harder. This posses another problem as I feel that my
ability to learn new tasks are slow and laborious, hence the feelings of being
worthless and useless.
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In my life at the moment words cut like blades. I could shrug off a comment
about the way I serve up in the kitchen, or the size of the portions I give Jaci’s
mum. It seems she never stops complaining about the way I go about things
and I try to explain about my perception but I am afraid that they think it is an
excuse. I find it so hard to feed the dogs let alone for two or three expectant
adults. I suppose it is my fault in a way as I wanted to do it because Jaci has
not been well lately and I feel as if I am of no help what so ever.
If I am not careful here this is going to turn into a moan rather then
observations but hey, I think I am long due a good moan.
I feel irritable right now actually, so lets get analysing. Over the weekend we
had quite a few visitors. I have not quite got over that and tomorrow I have to
go to Cardiff to the day unit at Whitchurch and the next day then on Friday for
Neuro.
I see by the clock it is 26th of April what happened to the 23rd and so on? Let
me try to think. Ah yes visitors. There were six people in the house over the
weekend plus the odd visitor that popped in and out, plus three cats and two
dogs. No wonder I feel drained. People are so taxing, noise is taxing
therefore I become tired and irritable. Then the inevitable happens and one
becomes less attentive to incoming information and before long the room is
spinning voices becomes white noise (Like hissing between radio stations)
and before you know it people are either trying to shake you or wake you
although more often than not, the brain closes down and the world takes
second place to trying to interpret the information that is already in place.
That is why perhaps I become irritable, but what about annoyances because I
feel that annoyances can be different and cause different behaviour, for
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It takes me longer to peel three medium sized potatoes, five carrots a small
suede, prepare a small cabbage and a small cauliflower than it does for me to
vacuum the lounge kitchen hallway landing and stairs.
I watch my hands go about the task of turning a potatoes in my hand as if I
were observing another species as it rolls the object around feeling its hard
and cold texture. It feels slimy thick and sludgy around where it and the skin
has made contact with the skin. I closed my eyes for a while and remember
thinking how much like potter’s slip it was but it did not feel smooth enough it
was abrasive and felt like soft sand among the sludge rather like textured
paint. My focus became drawn to the feeling that it gave me, it was not good
when I opened my eyes all I could think of was the horrible feeling of starch
and that wet potato feeling. I rushed to the sink to wash almost sending my
self onto the floor as the room spun round.
Every carrot every leaf of cabbage I felt and it felt as if I had to study each
one, texture and smell. In every sense of the word I was actually feeling what
I had hold of, not just holding it but my hands were inspecting it, feeling it and
they seemed quite happy, but slow and clumsy.
I suppose this all takes time and with a back log of incoming signals to be
encoded so there is no surprise then that when this happens to individuals
that have no idea what could be happening when they see themselves like
this and feel about themselves as they feel that they assume that they are
going insane. I feel lucky that my long-term memory did not become affected
in any way that would impair what I had learned from University, that would
have been such a loss and I none the wiser. As I reflect on that statement I
feel I should say that nothing I had learned could have fully prepared me for
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such as the ability to walk in a straight line, to feel at home some where, to
know what people are saying to you or even something as simple as drinking
tea and listening, which I find very difficult these days.
Today is Friday the 30th of April, I know that because I went to Neuro and I
checked before I went, as usual, on the computer before I had left in the
Ambulance service car, my usual mode of transport to the day unit.
The day went well as I remember, I look forward to going in another two
weeks time. I am feeling fatigued again today though and will more than likely
be in bed within the next hour or so. Then again I have some things that I
have to do, such as write this entry as I feel that today I let my mouth run
amuck and now the group think I need a relate counsellor.
For those of you that do not know, psychologists and psychiatrists have a
common goal but set out on varied and some times a very different pathway
to reach more or less the same conclusions, the therapies vary also and
where psychology will endeavour to prove that a problem comes from within
quite often a psychiatrist will say that the problem stems from the past. So I
have not really ever held bright views on group work and I for one can say
that telling my all to a group of strangers is not something I usually relish.
However, I think the therapy is starting to work on me as my mouth went into
over drive today.
I cannot believe I had a conversation about my private life and was so blunt
about it, that is not my style at all. And besides that if this ever gets back
home I will be dead and buried by next week. (Only joking) The only
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problem is I remember saying something, but I cannot remember exactly what
I said and what were just thoughts in my head. After all, I may just have been
dreaming and I will awake in the morning, get up, get in the car drive to work
and everything will be back to normal, in fact it is probably August and I had
better get the forms back off to Glamorgan this week some time and start
getting the applications out. So if I am dreaming, why the hell am I so tired
after doing anything?
Then never ending fear that the environment is unfamiliar, yet familiar has
become my Nemesis. Thoughts of combating it have become an obsessive
pastime. It has become a game of chess, on the one side sits my brain on the
other myself. But how can ones brain exist as a separate entity to ones mind
or as I had put it ones self? I do not understand, I make no excuses for not
understanding either as there are many complex faucets to the argument..
Psychologists and philosophers alike have battled through the ages in the
quest to find that same answer. Is the mind and brain separate entities that
can work as one and as totally independent components?
I suppose to really investigate one should start with a simple question, ah, but
such as what? What is it that I want to investigate about myself?
The question was, can the brain be separate to ones self? And the reason
why this question is being asked is because depersonalisation disorder calls
in to question the existence of self and reality, as well as the veracity of the
external world.
Carl Rogers (1902-1987), a psychologist based in client centred therapies
suggested that an individual will evaluate every experience in relation to that
individuals self concept. Not wanting to become to involved with these
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I can see by the clock that it is 1:47am and I am sitting here feeling rather
down and I find it very hard to settle down. I tried laying in bed but all I
managed to do was get all flustered and irritable, my eyes are irritable but I
want to go out, I know that does not make sense at all but it happens now and
again. It is like a rush of energy driven by an emergency to get out and be
somewhere else, as if I have been instructed to go somewhere specifically to
do some thing important, but I do not know where and I do not know what,
how bizarre is that?
I suggest that we all become a little like this now and again, but this has been
a persistent feeling since the accident that varies in severity and tonight it is
becoming a problem. I am tired but my heart is bumping about my ankle
joints and wrist joints are buzzing with electricity and my brain keeps planning
an escape route to god only knows where. Odd behaviour.
I have no clues to what catalyst left me feeling as I do but I do wish that it
would go away, it is driving me mad and earlier on I thought that I had lost my
appetite and found a donkeys. I ate a whole bag of marshmallows and I feel
sick and I just need to be out there, doing what ever.
I can imagine the state I would get into as it is raining, it is dark and I would
get lost or carted off to the cells by the police. Then they would have to bring
me home and ask Jaci to lock me up for safety, she in turn would ring
Whitchurch and before you know it, nice room over looking the Spar shop
across the road.
Ah I know, I could babble on about the awful dreams I keep having about the
staff of the day unit. I dream that when the other patients and myself are at
home sleeping, we are taken by the staff, who are really aliens from another
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that absences have something to do with Temporal Lobe epilepsy, that is
weird. I will have to investigate further and see what I can conclude from it all.
Good night.
Well here I am the second of May and I have just been informed that today is
not Friday but Sunday. Jaci has her son and daughter in law here to visit with
both their sons. The house is awash with noise and odours and to be honest I
am quite tired already and I wish my mate was home so that I could go and
hide around his place.
I have been outside until now re-potting tomato plants which I grew from the
seeds I dried from a tomatoes we bought from the store. I intend to grow
quite a few and sell them, ah my true potential has emerged, and I will
become a garden market grower and bugger the degree.
As I am sitting here I have my music on low in the background, there is
something about club and dance floor mixes that I find captivating. It is the
beat I think. If you think about it, even when in a foreign language people still
become engrossed in the beat, who needs words when you have a good beat
and a few simile faces, smiling is infectious and so is a good beat. Long live
Lisa Lashes and Dave Pearce, Faithless and the rest of them, not forgetting
the Judge.
I still have the feeling today that I need to be somewhere else, but it is not as
strong as it was last night, still I have been out with the dogs we went quite a
way today. All the way down the bottom of the park and I picked some
flowers for Jaci, aw! I felt quite unsteady today as I ambled along behind the
dogs, they are 13 years old now and it is showing especially on Rizzo, KCdog
still runs around trying to pull me over with the tug rope we have, I feel sad
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I keep pictures of all the animals in the study just to remind me that I am here
as they seem to be a big link to reality. If anyone reads this that has the same
thing happen to them let me give you some advice, you are not legally bound
to take but it is very worth the while to surround yourself with past
photographs of you and the people you left behind when you entered the
world of (DD).
My books on the shelf above the computer are beginning to distract me today
quite a bit, I feel the breeze coming through the window and I can hear the
birds singing, I do not wish the window to be closed as it is refreshing and as I
say I love to hear the birds singing. However I am distracted by this greatly
and I find it very hard to concentrate on what I am writing.
I have not felt so well after the seizure in the kitchen sometime this week, or
the weekend I can not remember when it actually was without asking.
The problem with the books is that they are picked up in the field of peripheral
vision and when my eyes are moving it makes it seem as if I am on board a
ship I do have problems with slight motion sickness, something again that I
have not experienced before. Even when I turn around to move or look at
some thing I feel as if I am being spun about, however this is something I am
assuming will never go as it has not improved much at all since I opened my
eyes the first time in intensive care.
That of course is not to say that the treatment I am receiving has not improved
my standard of living because it has. I find that the staff a tremendous team
and very caring, in truth, I would still be quite a mess if it were not for them. I
owe them such a lot and I am very grateful for their extensive help.
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Paul Davis and one of Richard Dawkins’s and all the edges in orange
bobbing around.
I have taken them away now out of sight. If this pile of junk ever becomes
published and I doubt that 99.99% I want the cover to be psychedelic pink
with lime green circles that spiral outwards so that all the head trauma people
have a wild time and fall over. Hahaha. Only joking people I know how
varying light shadings can affect ones eyes and brain.
Looking up is still very much a problem in that the fragments floating around in
the inner ear makes me giddy. I am becoming tired as I sit here putting my
thoughts into text. It is nearly 4pm and the new noises and smells are
becoming too much, I will be asleep before to long. I am in the study feeling
very fed up, irritable and again there is nothing I can do to alleviate this
feeling. I think the fact that it is cloudy and there has been very little Sun light
today has something to do with this creeping feeling of doom and gloom that I
know is coming, I can feel a pity party coming on, all for me.
It is at times like this, I feel, that one needs support from someone that will
understand, if you are lucky enough to have someone that you can ask for a
hug and know that it is meant.
If on the other hand you are unfortunate enough to have an ice king or queen
as a partner then one relies upon other things such as food, alcohol, not that
many of us drink as the medication so often dictates that alcohol is forbidden.
Bright lights are tools for setting moods. Go out and buy a Sun lamp one of
those table top ultra violet lights (UV rays are know to pick up moods by
feeding the body with much needed vitamins to keep the immune system
running smoothly.) I have not got one I have to admit but as soon as I can I
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will. You see, I have asked for one but I forget that I want one until the
subject crops up. Speaking of lights, you might be surprised to know that if
the lights are dim you feel dim, if the lights are bright you will feel light too or
am I just babbling the obvious now? I find that when the weather is bad and
depressing I turn on the halogen lamp and it brightens the room up making
me feel less gloomy.
Scents are said to have qualities that enhance ones mood, I have not tried it
myself but I can see where they are going with it. Memories can be evoked
from smells as I have mentioned before in the story of the lecturer discussing
such memories from his childhood and the smell in the refectory. (poor man,
could not have been cabbage on the menu that day could it, sods law.)
I have noticed lately that I look around quite a lot, this makes me quite dizzy
as I have probably mentioned time and time again. I think I keep looking at
things to check if they are still there and the same as before. I keep thinking
that they will change or something, I do not really know why I check it is at the
best a guess. What ever the motive it makes me quite giddy I try very hard to
move my head with my eyes, I sometimes feel quite robotic like robo cop or
some other droid or Cyborg. I hope it clears up one day, I suppose I will
become accustom to it before it goes of its own accord, one never can tell
with this type of injury I have been told.
The house is much quieter now but today has taken its toll and I am feeling
slow my speech is barely audible, the only thing I can do right now funnily
enough is type and that is because it is already in my head what I want to say
and I have only to find the right keys and I am away.
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doing anything. I do not wish to converse with anyone and I certainly do not
want to go out. The invisible band around my head has tightened up today
and I feel as if the temples each side of my head are filled with liquid. I grunt
around the house looking for something to eat as I have woken up with
someone else’s appetite just to keep mine company and together they will
munch the day away.
I would really like to go and sleep right now, so I think I will. It is now 14:48
pm and I have not lifted a finger today as yet, I am finding myself becoming
more and more fatigued and tomorrow is Tuesday and I have a long day
ahead of me so I think I had better sleep for a while
It is now 17:42 and as yet I have only been able to fall asleep in the car as
Jaci and her mum were bored. This meant that an outing in the car was
approaching and seeing that I have almost run out of excuses other than
contracting the plague I will have to go as I do not wish to seem rude. I did
not enjoy the journey I now feel totally knackered and very irritable.
I feel as if I am moving from side to side and unsteady. I really wish that I had
stayed here. I am off to bed.
It is Sunday the 9th of May. There has been no entry until today because I
have not been feeling the best and have stayed upstairs by myself quiet a lot
for the last few days.
I think I am suffering from mild depression and trying to shake the feeling is
almost unbearable. I could visit friends but I just cannot be bothered. I have
tried to read without much success, I just find it difficult to focus for even a few
minutes and I have this unpleasant feeling of dread, it seems just like being
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homesick. As a teenager to get away from my father I travelled to Kenya and
spent a good two years there I really missed being with my mother and sister
and the feeling I am going through right now is similar to that.
I even feel different about my life over the last few days I can not be bothered
to do anything and I am not concerned about anything, I even refused to walk
the dogs. Last night I sat playing on a few racing games then I fell asleep.
Pretending to be happy is taxing, last night I sat in bed in not saying a word
just staring into space letting my head do what ever it wanted, such as
thumping and banging noises, weird thoughts buffering around my mind like
films repeating over and over.
It is a lonely feeling, just sitting here not being able to communicate how one
is feeling. The funny thing about human beings is that they all inquire how
you are, but you know that secretly they are hoping that you do not tell them
and if you do all you get is ums and I get that.
I have been playing driving games in the hope that I can improve enough to
drive again. I am willing to try anything I in desperation over the fact that I can
no longer drive but, I would not want to injure anyone either, so I will have to
keep at it. It is taxing though and requires much sleep afterwards.
Today for the first time since the accident I went out for lunch, I had a starter
which consisted of a small, very small lamb sausage on a stick and a slither of
chicken on a stick with a pot of sour cream with some Nachos while Jaci and
her mother where eating their lunch, then, I had the ultimate chocolate
challenge Mmm how yummy was that, although I did share it with Jaci she
had only a small amount of the ice cream so I have pigged out today quite a
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head injury and my dreams represent the life I want to live and not the one I
have now, do I believe them or not?
What proof can anyone give me that what I am experiencing is not real? I feel
that nothing is really real anyway.
What is to say that I am wrong other than photographs and secondary
information, there is not one shred of evidence that tells me that I should not
be anywhere else and I certainly do not feel at ease in my environment,
perhaps I am just on a downer today but it is getting worse and worse I am so
fed up with it all. I think I will just go back to sleep.
The noise around here is tremendous today, children screaming skateboards
rumbling ice cream vendors all vibrating around my skull. Thursday had been
just as bad and as sods law likes it, I met up with a grumpy fart of a chap that
had a bee in his bonnet over a parking space that he assumed had his name
on it at the dental department, at another hospital in Cardiff.
Yesterday we had to go to Newport City the crowds of people in one place at
one time was a little more than levels of tolerance would allow. Becoming
claustrophobic and disorientated by the swaying and movement of the crowds
overwhelmed my senses so a hasty retreat to the car forced us to cut short
the shopping trip.
Thinking back over the feelings that I had experienced I was very relieved to
be outside, I had felt as if I could hardly breath. I could not swallow as my
throat had completely dried up and my pulse rate had shot through the roof so
had my tolerance levels hence the swift exit before I exploded. It is very
difficult lately to be patient with people.
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It is Wednesday the 12th of May today and I knew I would not be attending the
day unit yesterday evening. I could not go, full stop. I slept through the alarm
clock but would have been up in time to have gone, but I did not want too I
need to be left alone for a while. I need some where to go, but where? I visit
two friends that play chess. They live in a world of noise, I am in desperate
need of some quite. I feel very sluggish, when I walk the muscles in my legs
are tight.
I tried sitting over the park but the grass was being cut, and other activities
that folk carry out in the Sun shine interfered with my thoughts feelings and
other senses so I left. I feel the urge to think about something but I do not
know what.
I sit here now with ear plugs in, that has become irritating too. I can hear my
breathing and the noises in my head such as nerves banging and the Tinitus
bells and sirens going off ten to the dozen between whining and whistling.
Put a nice Ibiza beat to that and we are on to a winner. Shame about the
head ache though. I wish this feeling, that there is some important matter that
I have to sort out, would ease up at least.
I went to the day unit yesterday. I think I am quite good at hiding my feelings
and emotions now. I smile and listen and laugh, but today I could not have
coped I feel quite fed up with everything including the travelling. I get
extremely fatigued holding a conversation with anyone although I tend to
engage in conversation rather than sit in silence and seem offish with people
but sometimes it is too taxing. I also think that when I feel as I do I should
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so sure at all these days that I am not right but then again what is being
covered up?
It is the 4th of June and I am at the end of my tether. I feel quiet depressed
about it all. This feeling that I no longer belong, the feeling that nothing is
right is starting to get to me.
I need to be with my own kind, who ever they are and I have to find a way
before it is too late I know this seems very dramatic but I am becoming rather
desperate and I have no one to talk to about it.
It is now the 6th of July and much has happened since the last entry. I know
this as I have written it down but unfortunately, I failed to insert dates and
times. I feel no existence of time, I am oblivious to the time span that I have
waited in a queue or just how long I travel to and from the day unit. I suppose
that is one less thing to worry about, less taxing is a bonus.
I suppose it does present a problem in that some events will have taken place
at different times to what I write, so use that last sentence as my disclaimer.
At some point my medication was altered and I am still waiting for something
to happen. The medication is supposedly able to lessen the feeling I have
with the (DD). My Epilim stays the same dosage, although lately I have had a
few more seizure than normal, those that are noticed that is.
This new medication is replacing the Cipramil I had been prescribed and are
called Venlafaxine (Efexor). I was surprised to find that they come only in
37.5mg or 75mg. The chief whip ordered a 75mg dose to start with and see
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if things change, I hope it works I am desperate for it to work. I wonder if I
believe that these are some wonder drug will I have a placebo effect? One
never knows the brain can sometimes be fooled as I am aware.
One of the other things that has improved greatly is my balance, I find it much
easier to walk unaided in a quiet room now. It is just outside the problem
begins. I am much more stable than before I started at the physio-therapy
unit. I know that I still have a long way to go before I will be able to go very far
on my own, however this has much to do with external movements of my
surroundings rather than it being a physical problem.
The floor moves under my feet, so I have over come this problem by learning
how to walk with my feet and ankles lose rather than a tight step. It is difficult
to explain but if you think of a shock absorber that is as close as I can get. It
is not just a case of having floppy feet per se, but it is. Mmm.
My hands still feel out of proportion too, although I notice it more on the left
side as with my feet and nose. Also I feel as though I take too much notice of
things such as, noise I just wish it would go away. And, I feel so bloody
home-sick it makes me feel quite sad sometimes.
Actually I have just thought about something. The other evening Jaci’s
Daughter and son-in law’s cat caught an adolescent bat that could not fly,
after searching the net I found the number of the bat help line and as luck
should have it we were helped by two expert volunteers, one that came to our
rescue with a local number to ring (Collin) and the other (Ian) who dashed out
to our rescue. Snipping the story short, I was allowed to look after the bat.
The point is I have just realised that I had held the bat for feeding in my left
hand at one point and he seemed to be bigger. I have also noticed this
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feeling when trying to weigh something up in my hand, such as apples or
tomatoes, Mmm.
Slowly I am overcoming some obstacles by being positive, using other
individuals feedback and something’s I notice myself, such as being rather
lop-sided when walking. That is something that only occurs when I am
becoming fatigued.
I still have much to improve on and I know it is not going to happen over night
but I need to get back to normal, or where ever I should be? I am sitting here
rubbing my eyes and wondering what the hell is going on. I seem to have
these mini epiphanies explode into my head suddenly. For example, I may be
sitting in the garden and suddenly I just feel as though I am shocked at where
I am, I cannot explain why this happens and I do find it worrying and
embarrassing on times.
I suppose it is not unlike waking up to find that you are on the sofa rather than
the bed that you had assumed you were sleeping in before you had dropped
off to sleep. Sometimes it is quicker than others to fix the situation and pick
up on what was going on before the mini shut down took place.
Sometimes however it takes quite a few minutes to come around but usually it
is a few seconds. One such incident happened while I was in the kitchen
pouring out a glass of squash. For a few seconds I lost the plot, when I came
to I glanced around the room, looked down at my feet only to find KC one of
our dogs to be soaking wet (with squash). During those few seconds I had
lost all consciousness of my surroundings and I obviously had no idea that I
was pouring squash over the dog. It would be funny if it were not true but the
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consequences of this happening had it been boiling water from the kettle is
terrifying. I could have scalded her, point made?
While fumbling through a pile of papers earlier I came across a note that I had
written to my self about two men I met over the park playing ball with their
dog. I had our two dogs with me and as most doggy people do we speak to
each other, pet each others dogs and so on.
During the conversation I found out that they were both interested in the
U.F.O phenomena and other Para-psychological events and occurrences.
They began to tell me about sighting in the Cinderford area of Gloucester I
listened as I find all this interesting, not because I believe but it is interesting
stuff. The one giving the details of the events mentioned that he had been in
his bedroom listening to a CD suddenly he felt a vibration he looked about him
wondering what was going on. The next he remembered was the CD had
stopped. He went to investigate as he did so he glanced up at his wall clock
to find that an hour had passed.
He seemed genuine enough, his eye contact was appropriate for a truth teller
and his speech flowed without pauses errs and ums. He had nothing to gain
from this for all he knew I could have taken him for an idiot but he took the risk
of telling me and the strange thing is this. The approximate date that he gave
was around the 16/17 of August about two years ago. He remembered as he
had been out with friends to celebrate his brothers birthday.
Okay, it could be coincidence but you have to admit I am in a hole here and I
need some rope to get out of it but I think that clinging to this line of theory
could have me locked up in a nice white coat with nice shining buckles. Who
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He was taken to a hospital, had signed himself out as he was sure that
something was not right. This was confirmed by the other three.
I asked what made him so sure that the government was behind this and
although I did not fully understand his logic listened all the same.
The story goes thus, the military and the government are swapping sick
people and those sub-citizens (his words not mine) for highly classified
information regarding psychological warfare and that aliens from another
galaxy were willing to swap this information for people from Earth. The point
is, am I one of those people?
The woman with them told me that although it sounds incredible all I had to do
for proof is look on the internet and I will see that there are many other people
looking for an answer to the same problems that I described to them and all
four of them had given up their lives to travel the country looking for the truth
in the hope that their symptoms can be eradicated for good.
One of the men told me that his mother and father had been mind controlled
for years and that through a fateful error he had found this out. Apparently his
brother had fallen from the roof while replacing a broken tile. On seeing his
son fall from the roof, his father had used a shock technique to help his son
land safely (by telepathic control kind of thing) again his words not mind.
He went on to say that a few people saw this and questions started to pile up,
after a day or so his father had died. There was no apparent reason for this
as he was a very fit man for his age. I asked him if there had been a coroners
report? To which he answered yes there had been but nothing was found, not
even a suspected heart attack. (oh boy, here we go again what the hell do I
believe?)
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After a good while I said that I would have to get back home as I had no idea
how long I had been out and seeing as KC was pawing my leg I figured that
we had been sometime and that Jaci would be worried about me.
I said my good byes and be safe warnings as I turned to leave they told me
that they were leaving on the 20th, which would be a Friday and if I wanted to
go with them I could meet them at the garage at 2pm.
As soon as I returned home I wrote the time, date and place on my computer.
I went to bed early that day as I had much to contemplate but unable to
concentrate on one idea I went on line and searched for the websites that
they had told me about, and guess what I found? Millions of conspiracy
theories ranging from the down right absurd to the possible.
I kept thinking that if I went with them I would not feel like I do, home sick and
isolated. Perhaps they are right, what if some how I found out the truth
behind this supposed accident, I mean to say I remember nothing about it at
all. If no-one else around me knows about this government mind exchange
program and lets face it would you believe it until something happens to you?
No of course not, however science always catches up with science fiction
does it not? We have space exploration and remote viewing used by the F.B.I
to locate missing persons Etc, so who am I to judge? I am but a porn.
(Wow…Drama)
Struggling with ones mind is cognitively taxing and it has shown as I have
slept for hours and hours this week already after all this going on in my head.
Then came the worse nightmare, shopping day.
I hate shopping, there are people and trolleys colours and lights. Trying to
stand up is a challenge let alone dodging oncoming shoppers that seem to be
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blind to the fact that they have just clipped you or jabbed ones arse with a
basket.
We usually shop in Cardiff Asda, but today we went to Cwmbran. I have not a
clue as to why, but there always seems to be a zillion people travelling at 50
mph in all directions. I found that I could not cope and after becoming rather
aggressive, was sent to the car by Jaci before I felt the need to massacre a
few shoppers just to thin out the numbers.
I swayed my way outside to find that I could not remember where we had
parked. I sat for a while on the pavement thinking about how we arrived here,
which way were we facing and what bloody colour the car is.
I watched a small bird land on the curb across from where my sad backside
had slumped down and guess what, there was the car. (Hey hey magic)
I slept most of the way home and slept all evening on the sofa, then I went to
bed and crashed out until late the next day.
By then my head was exploding, should I meet those people or not? If I stay
will I kick myself for evermore? I decided that I needed help on this one and
seeing that I had asked the audience and spent my 50/50 I decided to use my
phone a friend and rang the neuropsychiatry day unit at Whitchurch. So you
see I am still logically thinking about all this.
I was not quite sure who to tell or ask but Fran seemed a good idea as for
some reason I quite trust her. Leon answered and seeing that I suspect him
of being an alien opted for my first choice and asked for Fran.
I did not really know just how to start this conversation and I felt a little stupid
but it is a psychiatric unit so if I seem a little crazy, so what?
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I got the impression that Fran’s head fried after I babbled down the phone to
her (poor sod), she in turn passed me on to Michelle a very good cognitive
psychologist that is familiar with my case.
After spilling the beans I thought to myself, well that was stupid, what if I am
telling the wrong one here, but not being able to process too many things at
the same time I just babbled away as best I could. Needless to say I am still
here and have not run off on a quest just yet, however there is still time I
suppose. (just joking).
I do trust her judgement as I have no reason not to trust her and she has one
of those faces that looks trusting and friendly so what the hell. I have taken
advice from Michelle before and as yet there have been no adverse impacts
so why should not trust her.
It is amazing how many thoughts can enter ones head while trying to decide
whether to run away with Moulder, Scully and crew.
I think that I was right, in retrospect, to take Michelle’s reassuring advice to
stay put, but earlier on today I could not help but wonder about what might
have been had I gone along with them.
I remember my mother telling me as a child not to wander off with strangers
and I suppose in today’s society who knows what could have happened I
may have been raped beaten or killed or worse all three. Or on a more
happier note I could have been taken home, where ever home is.
Yesterday I slept quiet a lot I think I spent about four hours awake and today I
feel much more able. I have noticed that the imaginary bulges at the sides of
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my head feel huge today as they did yesterday but the one side feels smaller
than the other.
My left side feels bigger all over in fact and I have had quite a problem getting
around the door frames as I tend to wander sideways as if on a slope. I have
not given this much thought as I tend to deal with problems that occur in
levels of severity and environmental topographical issues stand at the back of
the queue when your life seems unreal and run by aliens from another
dimension. I have a bruise on my arm where I bumped into the hand rail on
the stairs and a bump on my leg from launching myself off the wardrobe door
as I ricochet across the room. I must have tried three or four times to get
around it, why the hell did I not just close the bloody thing?
I have had strange dreams lately. I usually go back to the same place with
the same individuals just as if I have a life else where but lately they have
began to get real weird and consist of people that I interact with at the day
unit, for instance I dreamt that Fran and I were at a wedding and stealing
wedding cake. We were stuffing bags and bags of cake that we had pinched
into the boot of Jaci’s car. I woke myself laughing and sniggering away. (I
raise my eyes skywards, where will it all end? Sectioned I reckon in a nice
white jacket with shining buckles, something to keep me warm I suppose) .
27th of August
I have had a bad few days and I had a visit from the police after being
involved in a scuffle over the park. In fact I went wild on a guy in his fifties
over a black Labrador. He was beating and kicking her. I had warned him on
a number of occasions. Today, I just flipped I pushed him away from the dog
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propensity to sting than a person wishes to punch another for being nice to
them. Another close friend asked me what happened to my old self once and
I did not understand. I was told that the old me hated wasps, perhaps the old
me died. Was I that awful?
It has crossed my mind a few times that I am dead, that wasps are alien ships
controlled by tiny alien beings and that most things on this planet are only
there because people put them there. Animals are better off in their natural
environment and that the human race is a virus rather than an animal as it
kills off its host just the same as we collectively do. I also tend to wonder
does everything serve a purpose quite frequently trying to piece together what
purpose being brain injured could serve. Then after much thought and
deliberation I usually fall asleep.
I wonder why I wonder about such things, other people I ask, what do you
think about tell a very different story. Perhaps I have nothing better to do? I
tend to think it is because I really do wonder why many things happen
because it is all relatively new to me. And to quote the best math teacher in
the whole of the Royal Forest of Dean College’s history, “clear as mud?” Yep.
Not to put so finer point on my dilemma, I am stuffed. I fail to find it amusing
anymore and I want to wake up from this nightmare.
I want to find that I belong in this world after all. I would like to get bored with
trees just like the people I integrate with daily and remember my old route
home from town. I no longer want to be amused by my mates speaker but
even as I write this, I cannot remember what it looks like or where it is placed
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all I have to remind me of it is a small piece of paper telling me that this is a
problem that I should include in this work.
I would love to think that it was me that got that degree and it is me on the
video that I cannot watch. I hate the fact that I am not sure that it is me.
I did see the film once just to prove a point but it made me paranoid and ill for
weeks. It brought with it nightmares week after week, the same scenario. I
had been replicated and forced to work for a bunch of psychologist that had a
hidden agenda a plot enfolded by the CIA and FBI to use remote viewing and
psychological warfare to take out the Middle Eastern countries for the oil. (OH
MY GOD) If I could write it down it could be a seller you know.
The reality of it all produces night sweats, sleepless nights and restlessness
throughout the next day until fatigue clicks in and I fall asleep, usually on the
sofa because I fear going to bed, and I have no clue as to why that is either as
when I am in bed I usually hate getting out. (Mmm strange)
Today is the 21st and it has been a rotten night to follow a rotten day and it
has just got worse. After watching the news last night I could not sleep, the
pictures of an American hostage being decapitated by Iraqi’s were more than I
could stand. My brain tormented me with thoughts of his family and what his
final moments were like. What drives these people?
The next blow came while walking our dogs. I met up with a close friend’s
partner looking for their cat, they had both been looking all day and after
phoning around the vet nary surgeries in the area found that their cat was
dead. I hate seeing them so upset, I keep crying too. She was a very special
cat and they both doted upon her. I loved her too, such a chatty little thing.
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Think if it were the other way around, would you see your loved one eat things
from the floor? No, you would try to put a stop to it. Or perhaps laugh at them
when they wear their knickers on back to front? Of course you’d bloody
laugh. The point is, we all share emotions and when you love someone and
care for them, sometimes one can become overly bossy. The fact is, we are
all bossy at sometime, however it will seem worse to us that have
depersonalisation because everything is magnified and sometimes way out of
prospective, is that not correct?
Admitting that one is wrong takes a lot of grimacing and hugging of ones soul.
Saying sorry to some is an easy way out of much. For those of us of rare
usage, it takes far longer to heal I can tell you. If I say sorry, then I am.
I have never been one for handing them out like pills. However since I have
been going to Whitchurch I seem to be handing them out a good deal. The
question is why?
To answer that I must first propose that it my recovery that is influencing this
as bit by bit I have been proven wrong on many things, such as arguing a
point that I suppose is justified only to find that I was completely, barking, at
the time to even suggest such a thing.
That may seem quiet harsh on myself, however I have to learn to rationalise a
little more before I drive everyone around the twist and alienate myself from
this world I have become trapped in. I cannot do this quantum leaping around
through these bloody parallel universes any more. I am far too old for this
even at forty one years old.
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After weeks of going to the day unit I think it is about time to assess just how
well I am doing. I like to think that I have undergone changes for the good
and I am sure that I have.
First of all physically I am a lot more able. I also feel that I no longer require
physiotherapy. I manage well these days although in crowds I falter and
become quite sea sick still after so long.
I think it was Thursday that Jaci and I went up town. The winter sun shine is
far more harshly blinding than the summer sun. Something to do with the
amount of ice particles and much thinner air I suspect. Any how, I was
ejected from the car opposite our bank with an amount of money to pay in
along with our account book. Fine. I closed my eyes slightly trying to focus
on vehicles going by, trying to judge just how far away and at what speed they
were travelling towards and away from me. The problem that I still have is, by
the time I have looked to my left I often forget that I have looked and
sometimes stand there for minutes trying to decide if I have checked both
ways. Just another point in the same category is the fact that I quite often
behave in the same way when checking to see if the heating is on, or, did I
turn it off?
Three times I walked up and down the stairs before Jaci asked me what was
wrong. I explained my dilemma. She suggested I write it down on paper in
the kitchen and bring the paper up with me so as to clarify. Leaping with joy I
bolted back down to the kitchen, checked to see if I had turned off the heating,
which I had done (probably on the first go). I searched for a pen, wrote a
note, ran up to our room and guess what? I had forgotten to switch off the
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have had to keep reminding myself that I did psychology and other things I
would be a millionaire by now, but, what else do they do?
I am not really sure, I try to think about the applications of occupational
therapies but draw a blank. So if I studied how come I fail to recall that
information? Medical staff, consultants and other like minded individuals
including my partner tell me that it is due to the extensive injuries caused by
the accident. I can not stop analysing still. I beat myself up over ideas and
theories that run riot through my head each and every woken second, it slows
me down physically but mentally I am enthused to let it wash over me, then I
remember nothing at all.
I have learned to recognise when I shut down. Just as a machine closes
down I shut off when overload is pending. Where I go I cannot say. This is
simply why, it is because I do not know.
To illustrate my explanation of events as they occur to me is simply best dealt
with by a familiar television program called, “Quantum leap”. I had been
flicking around sky trying and cure a bout of negativity and decided to watch
Quantum leap. For those unfamiliar with the program, Sam id a guide that
helps a chap that somehow is I need a guide like Sam to let me know what is
going on when I leap into someone else’s place.
Perhaps it is not as bad as the program because normally I know the people
around me but it is the only analogy I can think of. However I still get feelings
of this nature but they do not appear to worsen so I remain unworried (ha
bloody ha) and chilled as usual about it and just let the thought go wild
around my head. Until I meet with the cognitive psychologist on Tuesday for
our usual hour of brain storming and things.
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She is my tow rope through a lake full of pig shit. Cognitive therapy, ever
heard of it? Let me explain with the use of a book I found among my
belongings.
Its title is “The Blackwell Dictionary of Cognitive Psychology”. From what I
can make out it from the introduction cognitive psychology is probably as
young as 20 to 25 years old and has limited applications in various ways in
that individuals using this therapy would only investigate specific age and
gender in short, there selection seems limited rather by a large margin.
In the introduction it, suggests to me, that because of this rather small sample
of subjects there came criticism from many other psychologists from various
schools of practice, thus the false ideology that cognitive psychology had little
or no use in real life situations and was until more recent times not given the
credibility that it should have been given.
So what does it mean exactly and how is it going to help me with
depersonalisation and derealisation? I could say that cognitive therapy helps
me to recall memories in my past, however sometimes I feel as if I could have
been wrong, I feel very aware of the falsifying of memories and how easy it is
to elicit a memory from even a smell or someone else’s perspective. I would
rather not become too technical as I find complexities fatiguing.
I become confused rather easily when having to research my correctness on
a subject I feel I should know well. This time I feel as if I should really know
how to explain cognitive therapy and how it is applied in my case, but it fails
me right now and I think perhaps a rest is in order.
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After an hour or so of closed eyes on the bed just doing nothing but resting
and eating chocolate digestives of course they were eaten for the feel good
factor, purely medicinal you understand, err um.
I used my time to try and understand what it is I am trying to explain here and
what the hell brought me to babble on about cognitive psychology. The point
is cognitive psychology or cognitive psychiatry, when ever cognition is
mentioned you can be sure it has all aspects of the mind involved including
focus and attention, re-learning how to use what you already know to uncover
what you may have forgotten how to remember, got that?
I suppose it is like uncovering a secret level that opens a platform to
information you assumed lost forever.
With the help of a cognitive councillor one can achieve and attain basic goals.
So what have I achieved since I have been undergoing therapy? Honest
opinion, I have not the foggiest idea without reading back over this. I suppose
it could be argued that I have learned to listen more. This sometimes is
difficult as there are so many things going on in my mind that it is difficult to
converse with direct links from one idea to another and I often become
confused about where to start. On the other hand some days I get along fine.
It depends on the distractions and what I have been doing or if it has been
quite cold.
Today is Monday the twenty second of November. I have noticed a change in
my behaviour and I feel as if I have been on fast forward for the last few
hours, something strange happened earlier on today. I realise that my
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sleeping patterns are out of control but today I feel as if I cannot settle and
must stay awake but I am absolutely shattered.
I slept earlier in front of the TV as usual as of late but this sleep was different
as I knew I was asleep but also felt awake, does this make any sense at all, to
anyone out there? Hello, help me!
I failed to keep track of events passed history seems to be there one moment
then gone the next. Yet another slap in the mouth for me as I admit another
symptom of brain damage that I have now come to over look as, normal
behaviour for me.
I hurt like fuck inside, please excuse the colourful phrase. For me to think that
I may be like this for a long time to come is killing me. Each and every second
of my life seems to be consumed by this strangeness that I have no
explanation for. I have tried to come to terms with the fact that my thought
processes are slower and my reactions to external stimuli awkward and out of
character with every day, behaviours. The fact is I feel as if I have so much to
deal with I just cannot cope.
My head hurts most of the time, I become fatigued still which does not help
my sleeping patterns either. This often leads to comments I wish not to hear
from certain quarters and so I become anxious if I have slept in the day time
due to a genuine fatigue attack: which I hasten to add could happen through
the strangest and trivial of events or happenings.
Is it that I took so much for granted in a passed life? That is exactly how I feel
about who I am, where I am and what I am here to do. (The passed life, of
course, being my life before falling down the fire escape.)
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I had always wanted to write perhaps this was the final kick up the rear for me
to do something with my degree or something, who knows. Who cares?
Why is life so complex here, suddenly I feel as if I can not shut down, it is
unbelievable because I am really tired and want to go to bed, but something
will not let me go.
I do mean such as an entity or strange alien phenomena but just a feeling
from no where. It is twenty passed seven. I have been awake since
approximately eight to eight thirty and probably went to sleep about three in
the afternoon. This I remember because I had been invited to watch the
football at Al’s but I phoned him to say that I was too tired and was going to
sleep. I remember lying down but I drifted in and out of sleep as if I was
micro-sleeping, but for a long time.
Now I am worried that if I go back to bed I will sleep until late and then Jaci
will be a bit annoyed I think as she is an early bird. This sleeping for days on
end then not being able to sleep, it could be argued, is due to a lack of
stimulation both mental and physical.
In my case I fail to see the connection as I get very much of both but I agree
that it is mental stimulation that is half the problem and the physical activity
comes in short bursts which burn me out. The mental aspects of having
depersonalisation or derealisation, is that one finds everything stimulating and
it is extremely hard to cope with: especially with the compulsions that
accompany such fascinating incoming stimuli. Here is one such occasion
such as being compelled to type every thought that I am having right now, and
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that, is why I am babbling I suppose. Well, at least it is constructive. No point
in writing something that gives no insight is there?
I am thinking of going to bed now as I can hardly keep awake but as soon as I
get up there one of our cats will start crying to have the end cupboard door
opened and the dogs will get up and walk around and I will disturb her and
that will be that, oh god lets go for it. Shit, it’s eight in the morning it is light
and I feel as if my head is going to explode. And now I need to go to sleep
and guess what, I should stay up, but I am hopeless at staying awake lately
and we have to go up town today. (Oh my god)
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20th of December today, I have just looked at the calendar. It has been quiet
frustrating lately. I am trying again to tackle the problem of cold weather. It
inhibits my functioning.
I get real slow while out and about no matter what I seem to wear the cold
gets into my head and turns my grey matter into ice slush.
We went to the Christmas party today, well I thought Jaci was going to bust a
gasket laughing.
She probably realises now just how fatiguing it is being with the other patients
let alone carrying out therapies and physiotherapy. By the time I get home I
am absolutely bushed and ready for bed, more often than not I sleep on the
way home in the car.
This evening, while waiting for the return of Nadia our wandering Bat (Alias
Houdini) I reflected somewhat upon the event
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It is the 23rd of December today. I have no real idea of what is going on
around me. I think I am having a toffee day today, bit by bit over the weeks I
have been slowing down.
The worst part of slowing down is that it does not happen over night. It is
quite a long winded shut down effect. I have no idea if there is a variation in
the length of time it takes me to get to the lowest point from my highest.
I thought I had kept a diary but I have searched most places and it does not
appear to be the case.
Today was horrendous my energy has been used up trying to combat mad
shoppers, twinkling lights, and demented lunatic children. The wind was quite
cold but the Sun was sharp and hurt my eyes. I tried to make out what I was
looking at but it was difficult to see with all the lights and shards of laser lights
coming at me from all angles.
The swinging signs in the shops is enough to put me promptly on my
backside, however I am much better than I used to be, so I am told by all that
know me here on this strange new world.
I started to get irritated by the sea of bodies that I seemed to be swimming in
all around the store. I had no clue to why we were there, my speech went
slurry and I felt it was time for a breather.
I could see my partner becoming concerned but we had reached our third
destination and I was buggered if I was going out tomorrow, so I had to see it
through. I hate Christmas.
I see no relevance in Christmas if one shares no religious beliefs and to add
further who the hell is Farther Christmas, no one knows do they!
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similar in part to the effects of which I am left with in that he too thought he
had been abducted after he came around. He though, was on life support for
ten days apparently. I wonder if he realises just how many people are left like
that or even worse.
I feel bad for him and all others in the same boat as I know what it is like. I
still look at the world through new perspectives. The world has changed, but I
cannot understand why it is taking so long for me to adjust, or for something
just to feel real would be nice. It failed in the story to say if his symptoms are
persistent or not. He says that he had problems with noise.
I hear noises that no one else hears when I ask if they can, I feel things that I
cannot explain, or that no one else understands. For instance, when it
becomes cold I feel as if a tight rubber suit has been put around me, then
slowly I become slower in speech and movement.
The next stage is confusion and the next stage is a complete blank most of
the time and the only reason I know this is because of other peoples accounts
of what I am like or I have woken up hours later only to be told that I had
commented how badly I needed to sleep and went out light a light.
The consequence of such behaviour is just another thing that stops me
getting behind the wheel of a car. Even with epilepsy it is still possible to
hold a licence, good control and a year free of seizures. If for a second I
stopped responding due to fatigue or even caused by distraction and caused
an accident in which a death occurred then I would be nothing short of a
murderer. Constantly having to clarify the external world is a continuous
drain on my resources thus follows bouts of fatigue and sleep.
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If I were to be driving in heavy traffic I just wonder how long it would be before
I was parked in a shop window or a field or even in some one else’s car.
How well we function depends upon how multi-tasked we are. For example
how many times a day do people multi-task, lets see. Oh I know, all the
bloody time. In fact we multi-task subliminally. We eat, breath, keep tabs
upon our body heat, up-grade cells and fight bacteria without even noticing
that these functions are being performed, even whilst asleep.
On a more conscious level we drive, listen to a CD, smoke and engaged in
conversation while competing with other motorists to get where we are going.
A plain or a bird may fly over head and you might glance up and say,
“Hey look at that bird”, you will not even notice just how much energy you
have expended by the end of your journey. This is because it is done every
day and it is second nature. However, to someone with a brain injury it could
be very different.
To illustrate a point I will take you on a journey and narrate from my brain and
other body bit’s point of view just for a laugh if nothing else.
Imagine we are heading down toward the seven bridge. On a mission to
retrieve Jess who is Jaci’s mother (remember this is an illustrative account, I
no longer drive). Imagine a long narrow winding country road. The Sun is
shining through the winter sky and the trees are swaying in the cold hard
breeze. Rabbits in the hedge rows and birds on the wing looking for food.
Shadows fly by and the external world feels so different it is very off putting.
Brain: OK don’t panic. It is just shadows, I think?
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Body: you are kidding right? I mean you do know what that was, right?
Brain: What is there to worry about everything wonky as usual just keep to the
right hand side and all will be well dear body.
Body: Hell bells and buggery what is that? (Car swerves to the left, then right,
then left and right)
Brain: That’s the hammer.
Body: What?
Brain: Just relax. Delegate the work.
Body: What time is it? It looks like as if it is morning, but I get the feeling it is
much later, kind of afternoonish.
Brain: You don’t need food or sleep, just shut up and drive.
Body: Picking on me now, I got all this energy to expel and I am empty you
obnoxious lump of jelly.
Brain: Shut it will you this is fun, where are we?
Body: Oh My God, any one would think you’re a worker, look at a map or
something. Is the heating on I am freezing, hey hands keep that wheel
straight will you back side sent a message, those pot holes are getting pretty
big and ear lobes listen up, I’m sorry the heating is not working but try not to
go too blue, it clashes with the clothing.
Brain: hehehe I can’t wait till Christmas.
Body: Give me strength. Feet what are you doing back side says all this
jumping about is making it feel sea sick.
Brain: “I wont go down with this ship, I wont hold me hands up and surrender,
there will be no white flag above my door…….lalala…deedaa daa!”
Eyes: We have a problem body.
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Brain: the fuzz? Quick let’s get out of here.
Eyes: No sorry not police car, does a police car have green stripes or orange?
Body: The only fuzz around here brain is you, now start sorting messages and
this time get it right.
Brain: I want to go home I am fed up and I want to go home I am sure those
trees are fake, in fact so too are all the other cars on the road. What Van?
Eyes: Will someone slap brain.
Body: Hands slap brain will you.
Hands: Roger, will do, over.
Mouth: OW
Body: Thank you hands now what are you doing.
Hands: trying to unwrap a sweet.
Body: Feet stop twisting will you, you’re going to hit the break.
Car skids and judders to a stop. Land rover just misses rear end and yells
obscenities out of exhaust pipe.
Eyes: Oh Pooh.
Backside: Shush now.
Body: Lungs stop sleeping, just breath will you.
Lungs: Sorry, dozed off there for a while. Brain is not helping at all really
keeps forgetting to let us know when to move, I mean I been doing this job
now for forty years I should know what to do, but if others fail to partake,
duties will fall.
Brain: I heard that you old bladder. Who lives in a pineapple under the
sea….sponge bob square pants. Absorbent and porous and yellow is he.
sponge bob square pants. What was that last message??? Who said that?
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Hey was that another car or a rocket ship, looks like a clowns face now don’t it
eyes?
Eyes: Err nope.
Body: I think I may be shutting down, all these messages from eyes are
getting mixed up with hands and feet and now mouth is dry and brain is well
away with the fairies, earlobes have shut down and feet are trying to unwrap
sweets, Oh Dear and it’s getting colder.
Sentinel: Pull over. Stop this car immediately and go to sleep.
Nose: I need a tissue.
Body: At last some sense from some where, sentinel I will pull in soon. Eyes
what can you see?
Eyes: We have detected a pull in about two miles away, do you think we can
make it?
Body: Brain send signals to feet and hands we need to change gear and
prepare to pull in.
Brain: Oh look, a plane.
Body: Brain come in brain.
Brain: What? Yeah yeah sheep I know seen them before. I wont go down
with this ship I wont hold my hands up and surrender….
Body: Feet and hands try to remember the procedure and prepare to crash
land, is it me, or is it colder now?
All other parts in unison: it’s getting colder.
Ears: I just went pop
Big Toe left foot: I am turning blue if that’s anything to go by.
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Jaci: Ocean? For Christ sake listen will you. Large or small portion? If you
had a large then you wont have enough, where did Ocean come from?
Mouth: I will.
Jaci: No…No you wont. Listen to me.
Ears: Okay, let’s try again.
Mouth: OK
Jaci: Go and ask if you had a large portion if so here is a pound if not you tell
her that she made a blunder ok?
Head: silently nods
Body: God its getting cold.
Satiation centres: Keep the battered jumbo, don’t give it back.
I walk in and hand over the pound forgetting what to say I thank the woman
and go back out and we drive off park up and eat the chips while walking the
river bank.
Feet: one two three four, one two three four, trip.
Knees: Oww
Mouth: chew chew chew chew stop.
Nose: I can smell chips.
Satiation centres: What about the sausage?
Brain In a melodic childish tune: Feet and mouth is fighting. Feet and mouth is
fighting.
Brain: I am sailing, I am sailing through the dada dadadadaaa dee dee dee.
Eyes: Whoosh did you see that bird on the water.
Feet: oh no chew chew chew trip.
Knees: Oww
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Mouth: one two three four march two three bite tongue.
Tongue: OH THE PAIN.
Mouth: Oww.
Body: Ok, OK stop…STOP.
Mouth: Chew chew chew chew.
Toes: hehehe we keep moving, don’t know why.
Jaci: Hey, how come you got a battered sausage as well? (Ping light bulb
comes on), That’s why you didn’t have enough money you pig fancy having
fish and sausage no wonder you are putting on weight, I don’t believe it what
a Pratt.
Face: who put that dirt and grass in the sky?
Feet: Sorry!
Mouth: Thought I was a foot for a while.
Reading back it sounds like life’s a ball, however the implications of not being
able to multi-task is so frustrating and a few days like this can lead to a deep
depression which leads to me sleeping for the uk. On good days it is hard
enough but on bad days it does not matter as bad days mean no going out
anyhow.
The partial grin and bemused look on my face portrays as if I am having fun,
however it is there because I am usually amazed, dazed and confused by so
much and bewildered by so much more.
Life rarely ceases to amaze me as there are always new feelings to get used
to and many things to see even though I may have seen them before each
time feels like the first time, so is that a bonus?
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here I want to be with her. (strange how the mind works as I do have
memories from our past and my past)
Most of the time my emotions are balanced apart from the bouts of anger
caused by frustration and the feeling of being a burden. I feel a sense of
grieving and I have not the slightest idea why. Unless it can be explained by
saying that I am morning my own demise or death, for the want of a better
way of putting it. But why, I have fun and being me seems all good, I have it
real good in comparison to many others. Although being unemployable and
not road worthy is not good.
Most of the time I am quite happy although rather mystified by it all. I am
quite happy to sit and let it all wash over me most of the time I think. Despite
feeling as if I have just fallen in from the next parallel universe, I know in my
heart that I am not really from another world and I realise that no matter what I
feel inside, it is my brain that is giving me the problems. That must be the
correct answer as anything else would be as illogical as there being buildings
on Mars, right?
The point is, how do I over come it? I need all the energy I can muster just to
function normally on a day to day basis but it is exceedingly taxing when one
is locked in mortal combat with ones own mind, testing, verifying, recording
new smells tastes sights and sounds, feeling the wind and rain on my skin. It
all adds up to ineffectual functioning. Trying to cut down on external
environmental stimuli is a big problem, but that is exactly what is needed, but
how?
The problem of derealisation is always there, however it can be ignored in a
way but only to a point. I tend to just go along with it, just as if it were real.
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People that I feel I do not know I act as if I do, but the ones that I genuinely do
not remember I ask and if you are wondering how I can tell the difference
between feeling that you know someone and not remembering them, believe
me the difference is noticeable. For instance if I meet someone I feel I do not
know I vaguely remember them albeit sketchy but if I do not recognise them,
there are no feelings of vague recognition I just do not remember them.
Sometimes it is possible to treat the environment that I am in as normal. After
all, I’m here and can’t get away, I think it referred to as helplessness. After all,
if I cant change the environment I have to adapt. Easier said than done but
possible. (where is Darwin when I need him?)
I noticed the other day as we walked along up town that the roads feel
different and look different but I couldn’t say how. I suppose it is similar to
having been asked a simple question that you know you should have the
answer to and it is on the tip of your tongue but you cant get it out. Buildings
seem different too again I don’t know why, it is just a feeling.
Tomorrow I go to the day unit in Cardiff again. It will be the 30th of January
tomorrow and guess what? It still means nothing to me. People keep
reminding me about the year, date and time. However, I still forget. I really
do not give a monkey’s, why should I? I am not going anywhere.
Today has been one of those days whereby my body thinks that it is walking
through treacle.
I suppose what I have written here makes tedious reading. I have failed to
read back what has been written as I fall asleep easily so I assume other may
have the same applied to them as they read.
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hard blue plastic thing I waited to see if it did anything. It did nothing of it’s
own accord. Suddenly the individual that owned it asked of me what I thought
of it. I stood there looking at it spluttering something about nice colour. Then
to my relief the owner said that due to it being new he would have to install
the software so he would have to go. Such a happy bunny, he bounced off up
the road toward his home leaving me there thinking, I wish I had asked what it
was as perhaps my pc would also like one. I hunted online, in books and
asked those I thought might know, alas nothing.
I know it was an eye pod now as I have it written down in front of me, although
when I was shown another I still asked what it was. The point is, I can
remember if I practise hard enough but it takes hundreds of times for
recognition to take place, even though I know now I have seen them before as
people tell me that I have seen theirs. For more than six months now I have
been consciously repeating in my mind what an eye pod is, looks like and
does. I know how long it has been as I kept records of the test I set myself
and it has worked.
The process of learning new things is very frustrating, however they are still
functioning albeit slowly. A prime example of this I suppose is the way I have
slugged it out with a new play station game I had after the accident. I think
Jaci got it for me in the hope it would aid my development, well, it did and I am
so very proud to announce that I am the owner of Road trip adventure and
after two years or more I have finally visited all the houses in peach town and
got a fan club and I can keep the car on the road. I have my own team of
racers and we got placed third, second and third in four of the races. Not bad
going for two years, EH????? Is it me or am I easily pleased?
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Music, getting back to moods and music, can alter a persons day and I think
that the way I feel reflects what I am listening too rather than the other way
about.
The reason I say this is that if the music was affecting the way I think I would
feel pretty down, however that is false. The truth is I just feel lost, homesick
and very determined to get better, or get home which ever happens first.
I find most of Anastasia songs inspirational as do a few of Natasha
Bedingfield, although I have no idea why I listen to Kevin Lyttle’s song Turn
me on, actually I think it is a well sexy song and only helpful in non
psychological ways. (Er, Hum)
White Flag by Dido is a brilliantly placed together song and I do like that one
very much and the words I again can associate with. (Private blunder
enforces memories from the Amygdala, I wish I could it out some times.), and
I am in love and always will be. And to end this might of philosophical rabble I
will say good night as I think I have over done the stimuli. Goodnight.
20th today and I slept well I think as I feel quite alive today, physically though I
am sluggish and tend to shuffle around wondering what I am supposed to be
doing. I wonder if I am going to have a toffee day soon or is it just an effect of
the strenuous day I had yesterday?
Listening to music and writing is usually something I fail to do well, let alone
have a beer with it. I enjoyed it and I think now and again will not hurt, if it
helps now and again to heighten my mood.
Earlier on while sat at the table drinking a coffee I realised that I should be
focusing on rebuilding my life in a more positive way. I need to be employed
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and as we all know being on benefits makes one feel inadequate both
financially and as a provider for ones family.
I usually cut Jaci’s hair and today she looks as if she needs to be clipped so I
went for it and guess what, she was over the Moon with it, perhaps I should
go to college and become a barber. Is that a positive move or is it just settling
for second best? I dare not drive so multi-drop is out as is taxi driver bus
driver etc. I would like to have a web site but I am struggling with the
computer as it is. So what then? I think I am losing the plot now so let us get
back to living with derealisation.
As I mentioned before I became engrossed in music and memories, ah I just
thought feelings and memories. How do I know if the feelings of memories
are correct or just elicited from the music? Oh no, not again.
How do I know which feelings are correct? I do not know so I have to depend
on many other things. I have to trust other people and sometimes if the
situation is not placing me in danger I reverse my decision Usually if I feel
something is not right, such as this is not a boat, I go through what I think a
boat should look like and if it fits I ignore the feeling that it is not. A worse
scenario is the feeling of not being in the toilet. One mistake here and it could
be such a problem.
Which feeling is right and wrong is a good game but it becomes tedious after
playing it every day. I hope I have chosen the correct feeling and go with it,
that is why I have so many problems and funny looks. To illustrate a point, on
a day that we have to go up town if there are a lot of people and it is cold I fail
to function correctly and trying to string a sentence together is so demanding
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Here’s how it is sometimes:
Ears: That bloke said good day
Brain: What?
Mouth: Whay.
Eyes: Err…yellow thing approaching at high speed.
Brain: Mouth what does whay mean?
Mouth: Don’t know.
Brain: Then why say it.
Eyes: Sixty foot hole in sky and its gone.
Brain: Huh?
Nose: Hey smell that food cooking.
Brain: Shut up or else…
Satiation centres: We know already.
Feet: We are losing control up here.
Body: what do mean up here?
Satiation centres: We need sustenance, food, get something to eat.
Brain: Sun shine, clouds, shop window with lights…thingy and something
else.
Fingers: Getting cold out here.
Eyes: We are shutting down can’t take it any more.
Knees: Ow
On days like this I am so glad to get back home and sleep. Life happens in
between dreams and the waking hours become shorter by the day and there
is nothing I can do when I feel like this.
It does not matter where I am, if I need to sleep I usually do.
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Today is the 8th of April. For the last few days I have slept for hours on end
and it has been noted that my movements are slow and clumsy. I shuffle
about bumping into things such as walls, door frames, dogs and other people
while outside.
We went to see my GP today because I have had vertigo (an on going
symptom from the head injury) for the last week or so and it was getting
worse. He gave me some exercises to carry out and to my relief it is slightly
better, although at times it seems to be worse than others
There is a choice of two treatment exercises on the sheet that I have been
given, there is a third but that is for more severe bouts by the look of things as
it says to use the Brant-Darof exercise if the other fails.
The first is a long-winded version referred to as the Semont liberatory
manoeuvre and the second called the modified Epley manoeuvre.
The symptom’s full title is benign paroxysmal positional vertigo (BPPV for
short) and by using these simple therapies debris in the inner ear moves to
another position that does not affect the balance.
It all seems very complex and the best advice I can give is either seek medical
advice or down load a copy from Infonet.com
The date today is the 20th of April. I fail to notice the days going by and I have
also failed to make correct entries into this document. I noticed that the dates
are a bit mixed up, I think. It is hard to keep reading back and inserting notes
from outings and the like.
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My notes are in need of tidying, however, I feel quite good today so perhaps I
will endeavour to file things up, correctly. While shopping last week I drove a
shop mobility cart around some bollards at Asda superstore. Jaci waited at
the car for me to go get it.
Now that may sound trivial to some people, however to me it is more like a
200 mile drive. I managed to steer it around quite well and not bump into
anyone, however in the shop I paid the price. Running on a low battery I
shuffled around the shop bumping into everyone and most things that was not
tied down. I sent loaves of bread tumbling to the floor and nearly dropped a
few dozen eggs, but that is how it is.
I found another Internet site too. It is called dpselfhelp.com. There you find
many people with depersonalisation and Derealisation.
Most of the people on the site have depersonalisation/Derealisation through
drug abuse and some have had it from a very early age and one or two
including myself from an accident.
After carrying out some intense research I have finally found out if I have
Derealisation or depersonalisation. I have Derealisation. And the difference
seems to be people that suffer from Derealisation feel that they are real but
their surroundings are not, people that have depersonalisation feel that they
are not real but their surroundings are. This is probably a very general
account here and probably there are more differences than that, but that is all
I know so far.
How I feel towards the world today is that it feels unreal. I am real but
everything else feels unreal. The feeling that people that know me are being
duped kills me, I want to say to them,
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“Hey, you know what, I am not the real Jill and what’s more I fell in from the
parallel universe next door.” But I think better of it and keep quite as I feel that
they will have me locked up, and I know it’s not true. It just feels like it due to
the accident. If I keep reminding myself about this I am sure these feelings
will die away.
It seems that many individuals with Depersonalisation Derealisation or a
touch of both can benefit from prescribed drugs such as Seroxat,
Clomipramine Risperdal and Fluoxetine (Prozac) Topiramate (Topamax)
Paxil Lamictal Neurontin Klonopine and of course ciprimil (Citilapram)
Information of all the above can be found on the Internet on sites such as
druginfonet.com / Lamactil.com / rsdalert.org / rsdalert.co.uk / drugs.com/
cipramil.com / benzo.org or RxList Monographs.htm. There are many other
sites that have information regarding side effects of the drugs and what they
are prescribed for. If you type in the name of the drug there will be plenty of
links and information on each drug when you hit the page
My favourite search site is info.Co.uk. I have listed a few side effects and
reasons of application for each drug I have mentioned, however there is
nothing like delving into the unknown, so have a read for yourself on the
Internet if you have access. And do not forget that although some people
report these side effects, everyone is different and in many cases the side
effects may not manifest their selves in the same way, in many cases side
effects are miniscule, and in some cases side effects are zero.
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Seroxat: Also found under the heading of Paxil: Deroxat: Paroxetine.
This medication is prescribed for depression.
The known side effects are/could be:
Sweating: Asthenia (weakness): Nausea: Decrease in appetite: Dizziness:
Insomnia: Drowsiness (somnolence): Yawning: Decrease in libido: Tremors:
Nervousness: Ejaculatory disturbances: Other male genital problems: Dry
Mouth: Female genital problems (i.e., Dryness): Constipation.
In less common cases it is said to cause skin sensations(Paresthesia): blurred
vision and flatulence.
Seroxat has withdrawal symptoms and anyone taking this medication
should consult their doctor before they consider stopping their medication.
The withdrawal symptoms are said to be:
Dizziness: Vertigo: Nausea: Fatigue: Headaches: Insomnia: Stomach cramps:
Chills: increase in dreaming: Agitation and Anxiety.
The ill effects of Seroxat were highlighted on the BBC documentary
Panorama and can be viewed on the BBC website.
Clomipramine: Also found under: Anafranil.
This medication is prescribed for bi-polar disorder (manic depression) and
Anxiety among other things.
The known side effects are/could be:
Common side effects of Clomipramine: (Anafranil)
Dizziness; drowsiness; dryness of mouth; headache; increased appetite (may
include craving for sweets); nausea; tiredness or weakness (mild); unpleasant
taste; weight gain.
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Less Common Side Effects:
Diarrhoea; heartburn; increased sweating; trouble in sleeping (more common
with Protriptyline, especially when taken late in the day); vomiting
Less Common again: Blurred vision; confusion or delirium; constipation
(especially in the elderly); decreased sexual ability (more common with
combined dosage of Amoxapine and Clomipramine); difficulty in speaking or
swallowing; eye pain; fainting; fast or irregular heartbeat (pounding, racing,
skipping); hallucinations; loss of balance control; mask-like face; nervousness
or restlessness; problems in urinating; shakiness or trembling; shuffling walk;
slowed movements; stiffness of arms and legs.
Rare Side effects: Anxiety; breast enlargement in both males and females;
hair loss; inappropriate secretion of milk - in females; increased sensitivity to
sunlight; irritability; muscle twitching; red or brownish spots on skin; ringing,
buzzing, or other unexplained sounds in the ears; seizures (more common
with Clomipramine); skin rash and itching; sore throat and fever; swelling of
face and tongue; swelling of testicles (more common with Amoxapine); trouble
with teeth or gums (more common with Clomipramine); weakness; yellow
eyes or skin.
Clomipramine has become the first “human” drug given approval by the Food
and Drug Administration for use on other animals such as dogs and cats that
have anxiety. For example dogs and cats that show stress when separated
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from their owners (families). It has also been administered to aggressive
animals. The vet nary brand is Clomicalm Anafranil.
Fluoxetine (Prozac): This medication is prescribed for anxiety
The known side effects are/could be:
Anxiety or nervousness; decreased appetite; diarrhoea; drowsiness;
headache; increased sweating; nausea; tiredness or weakness; trembling or
shaking; trouble in sleeping.
Less common side effects are:
Abnormal dreams; change in sense of taste; changes in vision; chest pain;
constipation; dizziness or light-headedness; dryness of mouth; feeling of
warmth or heat; flushing or redness of skin, especially on face and neck;
frequent urination; hair loss; increased appetite; increased sensitivity of skin to
sunlight; menstrual pain; stomach cramps, gas, or pain; vomiting; weight loss;
yawning.
More Common: Decreased sexual drive or ability; inability to sit still;
restlessness; skin rash, hives, or itching
Less Common: Chills or fever; joint or muscle pain
Rare: Breast enlargement or pain; convulsions (seizures); fast or irregular
heartbeat; purple or red spots on skin; symptoms of hypoglycaemia (low blood
sugar), including anxiety or nervousness, chills, cold sweats, confusion, cool
pale skin, difficulty in concentration, drowsiness, excessive hunger, fast
heartbeat, headache, shakiness or unsteady walk, or unusual tiredness or
weakness; symptoms of hyponatremia (low blood sodium), including
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confusion, convulsions (seizures), drowsiness, dryness of mouth, increased
thirst, lack of energy; symptoms of serotonin syndrome, including diarrhoea,
fever, increased sweating, mood or behaviour changes, overactive reflexes,
racing heartbeat, restlessness, shivering or shaking; talking, feeling, and
acting with excitement and activity you cannot control; trouble in breathing;
unusual or incomplete body or facial movements; unusual secretion of milk, in
females
Risperdal: This medication is prescribed for psychosis. Risperidone is an
anti-psychotic medication. A wealth of Information can be found on
drugs.com.
Use caution when driving, operating machinery, or performing other
hazardous activities. Risperidone may cause dizziness or drowsiness. If you
experience dizziness or drowsiness, avoid these activities. Avoid alcohol or
use it with caution. Alcohol may increase drowsiness and dizziness while
taking Risperidone. Avoid becoming overheated in hot weather and during
exercise. Risperidone may increase the risk of heat stroke. Do not mix the
liquid form of Risperidone with cola or tea. Risperidone is used for the
treatment of schizophrenia and mania associated with bipolar disorder. But
has other applications such as severe depression.
Hyperglycaemia (increased blood sugar ) has been reported in patients treated
with atypical anti psychotics including Risperidone. Talk to your doctor if you
experience any signs of hyperglycaemia including excessive thirst, frequent
urination, excessive hunger or weakness.
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Risperidone (Risperdal) orally-disintegrating tablets contain phenylalanine.
The 0.5 mg tablets contain 0.14 mg phenylalanine, the 1 mg tablets contain
0.28 mg phenylalanine, and the 2 mg tablets contain 0.5 mg phenylalanine.
Individuals with phenylketonuria may need to monitor their intake of this
additive.
It is not known whether Risperidone passes into breast milk. Do not take
Risperidone without first talking to your doctor if you are breast-feeding a
baby.
Contact your doctor immediately if you experience fever, sweating, severe
muscle stiffness (rigidity), confusion, fast or irregular heart beat. These could
be symptoms of a potentially fatal side effect called Neuroleptic Malignant
Syndrome (NMS).
If you experience any of the following serious side effects, stop taking
Risperidone and seek emergency medical treatment or contact your doctor
immediately:
An allergic reaction (difficulty breathing; closing of the throat; swelling of the
lips, tongue, or face; or hives); uncontrollable movements of the tongue, face,
lips, arms, or legs: muscle spasms of the face or neck: severe restlessness or
tremor: severe drowsiness or fainting: irregular or very fast heartbeat.
The less serious side effects are:
mild restlessness, drowsiness, or tremor: insomnia: blurred vision: dizziness
or headache: nausea and weight gain.
There are many drugs that have an affect on the way Risperdal works and
you should tell your doctor if you take any of these:
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Carbamazepine (Tegretol) : Clozapine (Clozaril); medicines used to treat
Parkinson's disease such as Levodopa (Dopar, Larodopa, Sinemet, Atamet,
or other drugs for the treatment of Parkinson’s). Any medicine used to lower
blood pressure.
Talk to your doctor and pharmacist before taking any prescription or over-the-
counter medicines, including vitamins, minerals, and herbal products.
Topiramate (Topamax): This medication is prescribed for so many things
some of which are Epilepsy, Anxiety, (tests in control of diabetes)and bi-polar
disorder.
The known side effects are/could be:
Back pain; chest pain; constipation; heartburn; hot flushes; increased
sweating; leg pain and weight loss. It is advised that the patient increases
their intake of water to combat the onset of kidney stones.
Also, Topiramate may cause a change in your sense of taste.
More Common side effects: Burning, prickling, or tingling sensations;
clumsiness or unsteadiness; confusion; continuous, uncontrolled back-and-
forth or rolling eye movements; dizziness; double vision or other vision
problems; drowsiness; generalized slowing of mental and physical activity;
memory problems; menstrual changes; menstrual pain; nervousness; speech
or language problems; trouble in concentrating or paying attention; unusual
tiredness or weakness
Less Common: Abdominal pain; fever, chills, or sore throat; lessening of
sensations or perception; loss of appetite; mood or mental changes, including
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(Lamictal) Lamotrigine : This medication is prescribed for Epilepsy and Bi-
polar disorder among other things.
Lamotrigine is an anticonvulsant that is chemically unrelated to any other
anticonvulsant or mood regulating medication.
Lamotrigine has recently been reported to be a useful treatment for some
people with post-traumatic stress disorder (PTSD) and/or borderline
personality disorder (BPD).
The known side effects are/could be:
In rare cases, Lamictal has been associated with severe and/or life-
threatening rashes and hypersensitivity reactions. Seek emergency medical
attention or contact your doctor immediately if you develop any skin rash;
fever; hives; swelling of the lips, tongue, or face; sores in the mouth or around
the eyes; or swollen lymph glands.
Lamictal may cause drowsiness, dizziness, blurred vision, or poor
coordination. Do not drive, operate dangerous machinery, or perform other
hazardous activities until you know how Lamictal affects you. If you
experience drowsiness, dizziness, blurred vision, or poor coordination, avoid
these activities.
Do not stop taking Lamictal without first talking to your doctor, even if you feel
better. It is important to continue taking Lamictal to prevent symptoms from
recurring. Stopping Lamictal suddenly may result in increased seizure
frequency or a return of symptoms of bipolar disorder. If the medication needs
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to be stopped, your doctor may need to lower the dosage gradually. This
information can be found online at drug.com
Serious, even fatal, rashes have occurred while using this medication.
Neurontin: (gabapentin) treats nerve pain that follows shingles in adults (post
herpetic neuralgia) and also treats partial seizures in adults and children.
http://www.neurontin.com
This medication is prescribed for pain, Epilepsy and Bi-polar disorders among
other things.
The known side effects are/could be:
Blurred or double vision; dizziness; drowsiness; muscle ache or pain; swelling
of hands, feet, or lower legs; trembling or shaking; unusual tiredness or
weakness.
Other more common side effects: Clumsiness or unsteadiness; continuous,
uncontrolled back and forth and/or rolling eye movements.
Less Common: Depression, irritability, or other mood or mental changes;
loss of memory
Rare: Fever or chills; cough or hoarseness; lower back or side pain; painful or
difficult urination.
Overdose Effects - Notify Doctor:
Double vision; severe diarrhoea; severe dizziness; severe drowsiness; severe
slurred speech; sluggishness
Here is the link for more in-depth information.
http://bipolar.about.com/cs/sfx/a/sfx_neurontin.htm
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Klonopine (Clonazepam): This medication is prescribed for
The known side effects are/could be:
http://www.whatmeds.com/meds/clonazepam.html
Ciprimil (Citilapram): This medication is prescribed as Psycho-analeptics
(antidepressants) in the treatment of: Depression and prevention of relapse:
panic disorder with or without agoraphobia And the treatment of obsessive
compulsive disorder (OCD).
The known side effects are/could be:
Commonly:
headache, sweating, asthenia/fatigue, tremor, weight loss/weight gain,
dizziness
Less commonly:
Circulation:
palpitations: sleep disturbances, Paresthesia, restlessness Gastro-intestinal:
nausea, constipation, diarrhoea, dyspepsia, dry mouth
Less common: malaise, yawning Central nervous system:
agitation, confusion, impaired concentration, decreased libido, ejaculation
disorder, mania .Gastro-intestinal: salivation Skin rash: nose congestion:
Very rare:
Convulsions, hepatitis, serotonin syndrome, Neuroleptic malignant syndrome
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From what I have gathered the symptoms of DP/DR are mainly caused by
anxiety and stress, so taking prescribed mood stabilisers and enhancers such
as Prozac may stop depression, anxiety Etc, however, my frustration anxiety
and depression all derive from the Derealisation Etc.
To illustrate my point, if a car had petrol starvation problems and lets say it
was ,dirty petrol etc, it would be fine to use a petrol cleaner such as Redex,
for example, (A liquid petrol cleaner poured into the petrol tank) however if the
petrol problem turned out to be a hole in the tank, no amount of petrol cleaner
would do, see my point? Am I being over cautious and just plain crazy or am I
right in thinking that taking these medications as “Suck it and see” Just is not
a good idea?
As a psychology student I found that psychiatric methods sometime rubbed
me up the wrong way, however we did not enter that field in depth as we are
different departments. I am not a condoner of pill popping. Is that why I find it
all so hard to accept? If is does help, will I become dependant upon them? I
know what long term damage some of them do from reading case studies at
University. I am not impressed and not happy to turn what might be left of my
brain into mushroom soup.
April 24th today and it has been one of those days. I find motor functioning
slow and cumbersome. I have difficulties when multi-tasking and \although I
feel absolutely shattered I cannot sleep for love or money.
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I went researching Derealisation, asking people how they perceive their lives
now, or whilst in the throws of dp/dr. I managed this by interviewing a few
willing victims in the chat room online at dpselfhelp.com.
There were quite a few people in there for the first time since I found the site,
and I have to confess I rather enjoyed it.
It felt like being with my own kind at last, I was at home, in my universe and
they were in it too.
I could not believe what I was reading for a while and even wondered was this
all a trick? Had I been set up? These people we telling me just how I feel
without knowing me or my situation. They told me. And they were correct.
Some individuals get dp or dr from an early age.
Some causes are stress and anxiety related, some from alcohol or substance
abuse and of course me, head injury. I have yet to find another head injury
patient that has been left with dp/dr, however I am assured by a few people
that I chatted with that it can and does happen.
Going by definition of depersonalisation, it would seem that I am affected by it
only in my hands and feet. (How ODD). The Derealisation is the problem that
holds the greater percentage.
I would like to know for sure why this is, however, it is probably down to pure
chance of where the injury are. Seems logical I think.
Communicating with others from all over the world and just reading
conversations taking place was overwhelming for a few of us first timers. I felt
pangs of some emotional state that says “don’t go”, every time someone left
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the chat room. It was fully detectable in the way other people said good night
and wished them well, not one person in that room failed to respond in that
manner. We were all new to each other, so why was this? We all had a
common denominator, dp/dr or both.
If I had a penny for every time some other person in that room gave exact
accounts of how my life is, I have enough to go on a very long vacation with
Jaci and have spending money over.
There were people suffering from mental fatigue all over the world caused by
their condition. Memory problems and epilepsy by the shed load. So many
people, all the same and yet, so different.
One striking aspect was the amount of creative people that suffer from dp or
dr. One supposes it may be due to genius running aside an extremely thin
parallel to insanity, some times the old adages are the best.
Noises too were mentioned many times. I have thumping, banging, hissing,
whistling and other non-speech noises due to tinitus, but I also have higher
sensory input perception now. Everything is heightened and this is true of
many other people I communicated with online.
So what causes the higher output? Is it that our nervous system has been
switched up a notch or two? Surely if this was so, it could be registered on
some kind of machine somewhere on this planet? A hospital might be a good
place to start, or is it that the finances will not allow? There needs to be much
more research into this vast and un-chartered territory.
Time was an issue too. People with dr/dp seem to be timeless. They can sit
for hours thinking it minutes. Which is just as well if one suffers with anxiety
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or depression. Me? Well I just don’ t give a shit anymore. I just let it happen
and go with it. I only travel in one direction. Forwards.
I have been told that there is a book titled “House of leaves”. This book, it is
suggested has the most perfect description of dp/dr. I am off up the Library
come Monday to see if I can get hold of a copy.
I have never wanted to become a literary critic, however I shall give it a go
and report back.
The last few days have been quite hard. My hands and feet feel slightly less
cooperative that usual. I swear my right hand is out to get me. It keeps
stabbing me with a fork. I have learned to compensate for this by moving my
head onto the fork rather than bring my hand up to my mouth, stops me
getting a sharp prodding in the side of my mouth.
I nearly smashed another cup today. I have been careful not to rush while
doing things such as washing up or drying, but today I had a few near misses
with some crockery.
A friend and neighbour walked to the shop with me. We took the dogs too,
they are quite slow and not much of a problem. I tried very hard to
concentrate on walking and talking but somehow things just got the better of
me and I started to become irritable. I think that most of Monmouth was
outside cutting their grass. If I had realised I would not have bothered. It was
a nice day, birds were singing, traffic whizzing about people distracting me
with pointless greetings, because I did not have a clue who half of them were.
Then we got to the shop. I become fatigued and slow and soon it was
apparent that I could not control the dogs on their leads.
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On the way back I kept tripping over them. It was not their fault, just me being
clumsy. My hands felt awkward as I held the leads and I could not decide
which way I wanted to hold them. The dogs soon become anxious they could
tell that something was awry and started to wander back and forth in front of
me as I kept crossing over the leads. I did not feel confident about keeping
them safe at all and found the whole outing a bit of a nightmare.
The only thing I was looking forward to today in fact was going back into the
chat room on dpselfhelp.com.
It has been a funny week. I know Jaci is on her way home and that excites
me. However I have had so much company this week what with one and
another popping in to see how I am, it is as if she never left.
I have cleaned the house on a daily basis, cleaned up the after the animals
and walked over to the shop with a friend, twice this week. I even did some
washing and ironing. (ironed in more creases than ironed out), but I failed to
burn myself which is quite an improvement.
I have to admit though my nocturnal habits went unchecked and left to my
own devices went to bed around 3 or 4am most nights, 6 o’clock on another. I
have been in the chat room on dpselfhelp.com. I feel so comfortable there, it
gives me a high to know that at last I have met others with similar problems. It
really is stimulating and refreshing. I think that by talking about what is going
on in one’s life helps tremendously because, using other people as sounding
boards and reading what they have to go through makes you realise that
there are others out there with worse problems than oneself, also I feel as if I
have at last some self autonomy and that is what is missing from my life at the
moment.
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Talking with other people about their medication helps too. I have started to
research some drugs that are said to help dr and dp. I was amused to find
that anti-psychotic drugs are being used widely to help people with dr and dp,
although I see little reasoning for this as some of these drugs have irreversible
side effects.
There are a few theories on why depersonalisation occurs. One suggests that
it might be induced by overwhelming anxiety or an early traumatic event.
In these circumstances, becoming detached from one's body may seem a
useful means of distancing oneself from the trauma, but in some people, the
depersonalisation then becomes autonomous and a problem in it's own right.
Neurological theories include a disruption or neurotransmitter imbalance in the
parts of the brain that integrate oncoming sensory information with our internal
representation of the Self (the temporal lobes). A specific part of the temporal
lobe, the amygdala, which is responsible for processing emotion, may play a
crucial role in Depersonalisation and Derealisation.
Still the point remains the same for myself as it all happened as a result of an
accident so, will medication help me or hinder the situation from recovery?
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Topamax might be prescribed on its own, or in addition to another medicine
for controlling seizures, although it is prescribed for other reasons. Always
remember; never be afraid to ask your doctor if you have any questions about
why this medicine has been prescribed for you.
Although Topamax sounds like the all singing all dancing hope for the future it
does not make coffee or the bed and it might affect you like this.
• Unusual tiredness, drowsiness, weakness, dizziness
• Decrease in appetite or weight loss
• Headache
• Unsteady or abnormal way of walking
• Tingling and numbness in fingers and toes
• Nausea, diarrhoea, increased saliva, altered sense of taste, stomach
pain
• Difficulty in controlling emotions.
• Difficulty with concentration or attention; confusion
• Difficulty with memory and/or thinking
• Depression, mood problems, abnormal thoughts
• Agitation, unusual nervousness
• Co-ordination problems, tremor or slow reaction
• Speech or language problems
• Effects on eyes or vision (e.g. double vision)
• Frequent infections with symptoms such as fever, severe chills, sore
throat or mouth ulcers.
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I realise that many, if not all prescribed medications, have a side affects list
but that does not mean to say that one will be affected, however someone
that experiences speech problems any how, will not be able to make the
connection. So how can you tell if it is the affect of the drugs or just a normal
every day slurry speech or will it become worsened thus detectable?
After talking with quite a few other dp’s and dr’s I have come to realise that
speech slurring and poor concentration is symptomatic. What I am wondering
now is, is it connected with temporal lobe epilepsy or temporal lobe damage?
Something else that has come to light is the fact that many people have
mentioned that they feel inhibited when communicating with others. I.e., they
fail to make connections during a conversation or they just cannot be
bothered as chatting takes much concentration and that’s where they come
unstuck. I tend to shy away from conversation but I find it easy to
communicate by letter or text such as when I am in a chat room. I do become
flustered by all the lines of text, but quite often I speak in private to one or two
people. The noises from my pc I can block out with ear plugs so that is not
too bad.
It is May the 16th today I have just realised that tomorrow it is the anniversary
of my mother’s death. I miss her very much, but as they say time makes it
easier to accept. I do not feel sad, but I remember at one time I could not
mention her name without being in floods of tears.
I have not made an entry in this project for a while. I am going through a
period of feeling fatigued and depression is setting in. I get so fed up with
how things are. Looking back through the pages it seems that I have not
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made any real improvement now for some time. I still feel homesick and
isolated. I am plagued by the noise from inside my head and the external
world sounds so loud it hurts my head.
I still feel lost in familiar places and hate the thought of going to new ones or
places I am unsure of. I still am not able to drive for various reasons and I am
still in the process of finding strange new things in this strange new world I
find myself in.
I still want to taste things and investigate my surroundings. I can walk straight
now though, that is one good thing and I cope well with getting about without
bumping into things, except on bad days. And I still have panic attacks.
Things are slow and even though I find that investigating derealisation,
depersonalisation and various types of epilepsy interesting and rewarding,
researching is exceptionally tiring.
I have also found out that there are types of epilepsy that originate from
occipital and parietal lobe damage as well as the temporal lobes which could
create symptoms such as I suffer from. If a simple seizure originates in the
temporal lobe, quite a wide variety of symptoms can occur. This is because
the functions of the temporal lobe are quite varied. As with all types of
epilepsy, each individual is different and straightforward comparisons are not
always possible. Not everyone is going to have the same symptom as
symptoms vary so much.
Someone having a simple partial seizure originating in the temporal lobe may
experience an intense feeling, for example, sudden fear (Panic attack)or
happiness (Is this the uncontrollable or inappropriate laughter I experience).
They may have an extremely vivid memory flashback or strong sense of déja
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vu. Unpleasant smells or tastes and an unpleasant sensation in the stomach
are also possible symptoms.
These symptoms are often called an ‘aura’ and can act as a warning for
people with complex partial seizures. During simple partial seizures, the
person remains fully conscious and the seizure is usually very brief. Often it is
only the intensity and suddenness of these feelings that differentiates
between someone having a usual déja vu experience, for example, and
someone having a simple partial seizure
The parietal lobe deals with our bodily sensations and simple partial seizures
beginning in this part of the brain cause strange physical sensations. A
tingling or warmth down one side of the body is typical. Because the parietal
lobe is closely associated with the frontal lobe, people sometimes experience
movement too. Known as ‘sensory seizures’ the after effect can be a period of
numbness which wears off after a while.
Another starting place of a simple partial seizure is the occipital lobe. The
occipital responsible for our vision. So it would make sense that the symptoms
of these seizures are to do with the way we see things. Flashing lights, or
strange colours are typical symptoms. It is suggested by research that this
occurs in the opposite side of the body to the lobe where the seizure
originates.
These three parts of the brain I mention here are the three parts that I
damaged during the fall, so it is not surprising that I have so many problems
with one thing and another.
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therefore alerting you to the fact that something has gone off preserves
oneself.
It does seem to follow then that memories of old help protect us from the
future. In a way I suppose it does. However, sometimes the horrors that an
individual has gone through, such as chronic mental childhood abuse could
be elicited from memory, provoked by an innocent situation which is powerful
enough to activate chemicals in the brain that can bring on seizures or chronic
depression and anxiety or stress.
The emotion centres in the brain can activate stress or act as a mood
enhancer. Imagine these two very different scenarios.
First imagine that your child or a loved one has been impaled on an iron
railings. They are alive and suffering, there is nothing you can do to help
them. If you picture this in your mind you will start to feel an emotional
response, similar to grieving. Now imagine how you would feel if you had just
been given ten million pounds tax free with a free house and car. Two very
different situations, two very different emotions that come from chemical
secretion in the brain. The biggest part of emotional response is said to be
set up by a part of the brain called the Amygdala.
For sometime now scientists have carried out observational studies on the
automatic wincing that may take place when someone else suffers a pain or
injury, and also the opposite studies of how infectious smiles are.
Dr. Marco Iacoboni, is a neuroscientist affiliated with the UCLA (University of
California, Los Angeles) Neuropsychiatry Institute and the UCLA Brain
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I suppose that there are many ways to introduce good chemicals into the
brain without the aide of illegal substances such as eating a well balanced
and healthy diet.
Brain food
The type of fat consumed is very important for a healthy functioning brain.
60% of the brain's solid matter is composed of essential fatty acids. Omega-3
fats found in cold water fish make up a large portion of the communicating
membranes of the brain. Brain cells must endlessly energize themselves with
a new supply of fatty acids. DHA is a particular omega-3 fatty acid found in
fish that appears to boost brain development.
Another interesting read I found this week was about some American
researchers that have reported an animal and human study that found by
eating one-cup of blueberries a day the chemicals in the fruit helped reduced
aging-related damage in the brain.
Blueberries also appeared to prevent mental decline in mice genetically
engineered to develop Alzheimer's disease. Blueberries are an excellent
source of antioxidants. Products of normal metabolism known as free radicals
can injure brain cells. Antioxidants found in fruits and vegetables neutralize
free radicals before they can harm cells. The researchers believe that
blueberries protect the brain through their antioxidant and anti-inflammatory
action. Something in the Blueberries also seems to manipulate the way brain
cells communicate with each other.
Iron-rich Foods
Studies show that iron deficiency anaemia is a risk factor for poor school
performance in children. Iron is needed to carry oxygen to the brain cells and
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much change for a long while. I have been taking the Venlafaxine prescribed
by my Dr at Whitchurch hospital and it seems to be helping. Also I think my
cannabis smoking days are well and truly over as I have gone right off it. I
have not smoked a joint now for a little over two months. I think it is the mood
stabilising Venlafaxine that has done the trick for me, even though I kicked
and screamed about it in the beginning. To tell you the truth I am thinking
along the same lines now as the staff at the hospital. I have tried my way and
tried to overcome this depersonalisation and derealisation myself, but it is still
here and it is not going away. I cope a little better everyday I suppose
because everyday I become a little more used to the way things are and I
have become more used to the unusual world around me. I suppose it is the
same for a young child learning the ways of the world, except they did not
know of a world before. The world I knew and the world I now live in are very
different although they are similar in some ways.
I have been taking the Epilim for the seizures regularly and can say that I
have not noticed any absences for quite some time now, so that is a bonus
and I am hoping that I will be able to drive one day in the next year or so.
Although I have to combat the other problem of chronic fatigue, hand and feet
coordination and multi-tasking.
I still get panic attacks and become dazed and confused by lights and signs in
shops. Nose is still a major problem and is still disabling to me as is the cold
and rain. My focus and attention has improved slightly but not to the extent
that I can have a conversation with the radio on or read a book in a room
where other people are talking or music playing. And I still become fatigued
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