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Cathy Ficker's presentation from TAI 2014
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Measuring Outcomes
What Really Matters
Cathy Ficker Terrill, CEO, CQL
Measuring Outcomes
What Really Matters
Cathy Ficker Terrill, CEO, CQL
o In the 60’s…….plantso In the 70’s and 80’s …treated us like petso In the 90’s …. Treated us like people
o And now its 2014, it is time to really listen ……
A Story from Dirk
o One Voice.o A voice to be heard by someone who cannot
speak a word.o We express our feelings in many ways, o by what we do and o what we say. o A voice that is heard is a voice that is true,o So lets all share our one voice, too! Source: In Our Words
One Voice by Doris Clark
Moving from process to outcomes Grants and staff activities
Data on Outcomes about people can:Inform person centered plansMotivate organizational changeDrive state policy
Collecting Information
Using data to inform:Strategic PlanBudgetPublic PolicyOrganizational Change
What data do you collect?
Personal Outcome Measures®
2003 2006 + or -
People Choose Services 47% 87% +40%
People Realize Goals 63% 100% +37%
Connected to Natural Sup. 52% 81% +29%
Different Social Roles 21% 50% +29%
People Have Friends 58% 81% +23%
Use their Environment 78% 100% +22%
Source: Ray Graham Association
OUTCOMES AND STORIES
oPersonally defined quality of life outcomes that people want in their lives.
oThe set of 21 POMs is a scientifically valid metric.
Personal Outcome Measures®
o It is only through interaction and exchange that we can begin to understand each person as a unique individual.
o Appreciative Inquiry: Listen and learn from everything the person says and does.
o If the person does not use words to speak, find the person who knows that person best. Observe the person in different environments.
First listen
How often do you listen to people with disability?
What data do you have from listening to them?
Is the data you collect reliable and valid? How do you use this data to inform your
state plan? How do you use this data to show your
impact at a person, local, and state level?
Listening on a regular basis
My Self: Who I am as a result of my unique heredity, life experiences and decisions.
o People are connected to natural support networkso People have intimate relationshipso People are safeo People have the best possible healtho People exercise rightso People are treated fairlyo People are free from abuse and neglecto People experience continuity and securityo People decide when to share personal information
21 Personal Outcome Measures®: Three Factors
My World: Where I work, live, socialize, belong or connect.
o People choose where and with whom they liveo People choose where they worko People use their environmentso People live in integrated environmentso People interact with other members of the communityo People perform different social roleso People choose services
21 Personal Outcome Measures®: Three Factors
My Dreams: How I want my life (self and world) to be.
o People choose personal goalso People realize personal goalso People participate in the life of the communityo People have friendso People are respected
21 Personal Outcome Measures®: Three Factors
20 years of data?
What do we know?
People Perform Different Social Roles
People Choose Where they Work
People Exercise Rights
People Choose Personal Goals
People have Friends
People Participate in the Life of the Community
People Interact with Other Members of the Community
People Use Their Environments
People Experience Continuity and Security
People Realize Personal Goals
People are Safe
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
32.5%
37.5%
40.6%
46.2%
49.8%
50.3%
51.3%
55.7%
56.3%
61.7%
70.0%
70.4%
72.2%
74.4%
76.7%
78.2%
78.5%
78.7%
82.7%
84.0%
86.5%
Personal Outcome Measures® January 2010 (N=7,879)
o Fewer than ½ of the people interviewed were exercising choices in a way that was meaningful to them.
o Participation and interaction in the community were present for about 70%
o 56% reported having friendso Less than 40% are fully integrated in the
communityo 8 out of 10 report being safe and free from abuse
and neglect
20 Years of Evidence Based Learning and Listening
o 70% experiencing continuity and securityo 70% Best possible healtho 50% report able to exercise their rightso 56% Treated fairlyo 70% Accessible environments available to
them
20 Years of Evidence Based Learning
When we listen we discover……people want:
o To be participants in their community
o To be empowered to make choices
o To do paid or volunteer work
o To participate in self-directed services
o To define their own quality of life with outcomes
o To be connected to friends & family
Cathy Ficker Terrill
President & CEO
For more information, visit:
www.thecouncil.org
CONTACT INFORMATION
A world of dignity, opportunity and community for all people
www.c-q-l.org
Cathy Ficker Terrill ([email protected])
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