Upload
anton-gruss
View
114
Download
1
Embed Size (px)
Citation preview
Parents Cooperation
for Successful
JIA management
in HungaryPediatric Reumatology - 23th PReS Congress_
September 29_30_2016
Genoa, Italy
Content/Introduction
Objectives of JIA management in Hungary jointcooperation with ORFI Hospital
Recent parents initiatives
Social network to promote JIA recognition timely
Family Day
Future plan
Veronika Csillag Dr. Ilonka Orban Nikoletta Fekete
The objective of the parents network
is, to promote JIA among those
parents who’s children are impacted
and have difficulties to obtain timely
medical advice and support
By networking and sharing
information ensure early recognition
of the disease
Secure available medical consultation
Objectives of the JIA Parents Club
Sponsor of the parents Club is: Dr. Orban Ilonka Adjunktus
https://www.facebook.com/GyermekReuma
Facebook pages have been created to share information about JIA and the related events as of end of August
Currently close to 1500 like and comments achieved
Social network to promote JIA recognition
timely
Family Day
Family Day Program
Inspite of the widely promotion of the family day, the overall the
participation in the program did not meet the expectations
Normally, people who are facing with this health issues are introverted, so
we will continue to try hard to further promote our activities in the future
Family Day was organized in Budapest –
September 19, 2016
The event was posted on the social
network – in Facebook
Additionally around 250 recorded JIA
patients were contacted in person
Dr. Ilona Orban was available for
consultation the entire day
Family Day Moments….
Family Day
Moments….
Valko
Family Day Moments….
Family Day
Moments….
David Fekete (Singer)
Objective is the
easy moving…..
Future plans
Further enhance parents network by sharing information in social network pages
Organize open days with specialist doctors and physiotherapists
Organize events (independent or joint with other similar networks – Autoimmune Diseases)
Arthritis Day – October 12, 2016 in ORFI hospital – Budapest
Charity Day – to engage donations – November
Additional Family Days – ongoing
Transform the current club status into foundation to be able to manage budget supporting disadvantaged families to obtain the most recent biological treatments
Questions or any ideas?
Thank You!