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Richard P. Moser, PhDResearch PsychologistBehavioral Research ProgramDivision of Cancer Control and Population SciencesNational Cancer [email protected]
National Cancer Institute: Utilizing Survey Data for Cancer Prevention and Control
NCI: Established by congress in 1937, is the leading Federal agency and world’s largest organization solely dedicated to cancer-related research, training, and dissemination of information.
DCCPS: aims to reduce the risk, incidence, and deaths from cancer as well as enhance the quality of life for cancer survivors. The Division conducts and supports an integrated program of the highest quality behavioral, epidemiologic, genetic, health services, and surveillance cancer research.
“Much of the suffering and death from cancer could be prevented by more systematic efforts to reduce tobacco use, improve diet and physical activity, reduce obesity, and expand the use of established screening tests. The American Cancer Society estimates that in 2011 about 171,600 cancer deaths will be caused by tobacco use alone. In addition, approximately one-third of the 571,950 cancer deaths expected to occur in 2011 are attributed to poor nutrition, physical inactivity, overweight, and obesity.”1
1. American Cancer Society. Cancer Prevention & Early Detection Facts & Figures 2011. Atlanta: American Cancer Society; 2011.
.
Multi-level peer support,
consumers/clinicians, information, monitoring
Decision support, care coordination,
collaboration
Follow-up and decision support, care coordination, patient
engagement
Compliance, care coordination, collaboration,
reminder systems
Transition to 1o, surveillance, health
promotion, end-of-life
NIH: Tackling ‘Big Data’• Big Data To Knowledge
(BD2K) Initiative• Facilitating Broad Use of
Biomedical Big Data • Developing and Disseminating
Analysis Methods and Software for Biomedical Big Data
• Enhancing Training for Biomedical Big Data
• Establishing Centers of Excellence for Biomedical Big Data
• Common Data Elements (CDE) Site• National Library of Medicine
http://www.nlm.nih.gov/cde/
Surveillance Epidemiology and End Results (SEER)
http://seer.cancer.gov/PopulationChildren to adults
MethodData collected from cancer registries that cover ~26% of the US
population; follow-up with individual cases until deathContent
Cancer incidence, prevalence, and survival data; cancer site, stage, morphology, treatment; limited demographics (age, race/ethnicity, region)Data
100% of cancer cases in registries; Six million cases with ~350,000 added each year; 1973 to 2010;Note
Need specialized software to analyze (SEER*Stat or SEER*Prep) downloaded from website;
Must sign user agreement to obtain; limited to research purposes;Can be linked to Medicare data
PopulationNon-institutionalized adults (18+)
Method2003, 2005: Random digit dial (RDD)2007: Dual frame/dual mode2012-2014 (4 Cycles): Address frame/self-administered mail mode
ContentHealth communications trends and practices Cancer information access and usage Cancer risk perceptionMental models of cancer Health behaviorsNumeracy
Data2003 (n= 6,469); 2005 (n= 5,586); 2008 (n= 7,674); 2012 Cycle 1 (n=3,956)
Note* Cycle 2 data available summer, 2013; Data Users Conference October, 2013
*(pending approval)
http://hints.cancer.gov
http://riskfactor.cancer.gov/studies/tus-cps/
Population:
Adolescents/adults 15+ 1992-06; 18+ 2007-
Method: National HH address-based frame, 8 panels
Conducted every 3-4 years by Census for NCI
65% telephone (allows cell phone if preferred); 35% in-home
Translated into Spanish and 4 Asian languages
Content: Monitor, evaluate and conduct research on cigarette & other tobacco product usage patterns; Cessation: attempts, intentions, & treatment ; Policy: work, home, “real” price, attitudes & clinician advice
Data: ~240,000 U.S. respondents per cycle
Notes: National, state, sub-state estimates;
Health disparities (e.g. race/ethnicity; low SES, rural)
Economic aspects with CPS detailed occupational, & health disability data
Panel design links to other CPS data (e.g., ASEC, ATUS, Food Security, Internet Use)
Panel design allows for adding prospective Follow-Up (2002-03, 2010-2011)
Webinar September 17, 2013; Contact Julia Strasser for info: [email protected]
Linkage to outcome data (CMS, mortality and SEER data) through NLMS
National Health Interview Survey (NHIS)http://www.cdc.gov/nchs/nhis.htmPopulation
Households, families, adults and children
MethodFace to face interview
Content• Supplements
• Cancer (1987, 1992, 2000, 2003, 2005, 2010)• Immunization/vaccination usage (annual)• CAM (2002, 2007; yoga/acupuncture/massage etc.)• Arthritis (2002)• Health care utilization (2011)• Child mental health (2011)
Datan~40,000 households (~87,000 individuals)Initiated in 1957
California Health Interview Survey
PopulationAdult, adolescent and child questionnairesVery diverse racial/ethnic population
MethodTelephone survey (landline/cell phone) of all California counties
Content Health behaviors (Diet/drug use/sexual/sun safety)Health statusHealth conditions (asthma, diabetes etc.)Cancer history and preventionHealth insurance
Data 2001, 2003, 2005, 2007, 2009 data available ~40-50,000 respondents/survey
NoteMany latino and asian groups represented; oversamples of Koreans and VietnameseFielded in five languages: English, Spanish, Chinese, Vietnamese, and Korean
http://www.chis.ucla.edu
American Time Use Surveyhttp://www.bls.gov/tus/; http://riskfactor.cancer.gov/studies/atus.html
PopulationAdolescents/adults 15 and older
MethodSelf report telephone interview using 24 hour recall
ContentEstimates of activities people do (work, childcare, socializing,
exercising, eating, educational, sports and religious activities), whom they were with, and the time spent doing them by sex, age, educational attainment, labor force status, and other characteristics, as well as by weekday and weekend day.
Eating and health module.Data
n ~ 13,000 per yearData currently available: 2003-2011
NoteData files can be linked to Current Population Survey (CPS)
http://meps.ahrq.gov/mepsweb/
PopulationNationally representative household survey, with additional follow-up of their medical providers (doctors, hospitals, etc.), and separate survey of employers across the United States about health insurance
Household Survey MethodFive in-person interviews
ContentDemographics, health statusEmployment, insurance coverage and access to careHealth care utilization and expenditures
DataSubset of NHIS with N= ~40,000/surveyNew cohort initiated annually
NoteHas overlapping panel component2011 most recently available dataExperiences with Cancer survey available in 2013
http://meps.ahrq.gov/mepsweb/
http://cancerimagingarchive.net
Other Federal Surveys
National Longitudinal Mortality Studyhttp://www.census.gov/nlms/
National Hospital Care Surveyhttp://www.cdc.gov/nchs/nhcs.htm
National Ambulatory Medical Care Surveyhttp://www.cdc.gov/nchs/about/major/ahcd/ahcd1.htm
Medicare Current Beneficiary Surveyhttp://www.cms.hhs.gov/MCBS/
Medicare Health Outcomes Surveyhttp://www.hosonline.org/
National Survey of Family Growthhttp://www.cdc.gov/nchs/about/major/nsfg/nsfgbiblio.htm
Data Resources
• Univ. of Michigan Consortium for social research: http://www.icpsr.umich.edu/
• NCHS Research Data Center: http://www.cdc.gov/nchs/r&d/rdc.htm
• NCCOR Catalogue of Surveillance Systems http://www.nccor.org/projects/catalogue/index.php
Data Resource Contacts - NCI DCCPS
Behavioral Research ProgramAudie Atienza ([email protected])Richard Moser ([email protected])
Surveillance Research ProgramEric J (Rocky) Feuer ([email protected])
