社團法人中華民國乳癌病友協會 Taiwan Breast Cancer Alliance (TBCA) Impacts, transition...

社團法人中華民國乳癌病友協會Taiwan Breast Cancer Alliance (TBCA)

Impacts, transition and Impacts, transition and successfully cope with successfully cope with breast cancerbreast cancer

Lan-Yu SunPresident of TBCA

Breast Cancer in TaiwanBreast Cancer in Taiwan Breast cancer is the leading cause of cancer incidence

among women in Taiwan. Age peak of breast cancer incidence is at 40-49 years. More than 10 percent were diagnosed under age 40.

LanLan

Was diagnosed with breast cancer at aged 40. A housewife

Two teenaged kids

Most of chores handled by her

When she was toldWhen she was told

Helplessness and sadness

Isolation

Panic and Anxiety

Depression

Denial and lack of self-confidence

Fear

The Dimensions of ImpactThe Dimensions of Impact

Domain Screening Diagnosis During treatment Survivorship End-of-life

Informational V V

Physical V V V

Emotional V V V

Interpersonal V V V

PracticalV V

Informational DomainInformational Domain

Understand the pathology report.

Understand breast cancer and treatments required.

Understand the advantage and disadvantage of each treatment option

Physical DomainPhysical Domain

The management of side effects induced by the treatments

Follow-up care

Recurrence symptom management

Emotional DomainEmotional Domain

Rebuild self-confidence

Resolve the uncertainty

Cope with the frustration and distress induced by treatments

Interpersonal DomainInterpersonal Domain

Find family and social support

Communicate breast cancer to young children

Communicate with spouse regarding intimacy

Communicate with health care providers while receiving treatments

Practical DomainPractical Domain

Find a hospital and health care provider conforming to her needs.

Resolve financial issues with treatments. Undergo treatments while being on employment

Enable to balance family roles while undergo treatments

Informed Patient LecturesInformed Patient LecturesOffering breast cancer patients a variety of

courses in patients’ perspective.Inviting professionals to give joint lectures.Being an informed and smart patient.

Course No. of attendees

My treatment plan 415

All about hormone? 320

Never give up 367Total 1,102

Women’s Leadership Women’s Leadership WorkshopWorkshop

Providing survivors with an opportunity of joint study with TBCA core leaders for fostering their leadership and NPO management.

Topic No. of attendees

Establishment of an organization with a mission

48 leaders (from 36 Taiwan breast cancer support groups)

Love & Intimacy WorkshopLove & Intimacy WorkshopDesigning a workshop to help breast cancer patients

and their spouses work together to overcome the challenges accompanying breast cancer.

No. of attendees

5 couples

Personalized Support Personalized Support ServiceService

Employing the dimensions of impact To categorize survivors experiences with the

dimension.

To provide new patients with the information (in video or text) conforming to their needs by searching the database indexed with the dimensions.

Taking care of patients/survivors through Internet To be available at anytime and anywhere.

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~THANK YOU~~THANK YOU~