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Dystonia is a neurological disorder that causes excessive,
involuntary muscle contractions. These involuntary contractions
force the body and limbs into abnormal movements
and awkward postures. Dystonia may affect a
single body area or be generalized throughout
multiple muscle groups. Dystonia affects
men, women, and children of all ages and
backgrounds. Estimates suggest no fewer
than 250,000 people in the United States
are affected. Dystonia causes varying degrees
of disability and pain, from mild to severe.
Although treatments exist, dystonia remains
a chronic disorder for which there is not yet a cure.
DESTINATION:CURE
MISSIONThe mission of the Dystonia Medical Research Foundation (DMRF) is to advance research for more effective treatments and ultimately a cure, to promote awarenessand education, and to support the well-being of affected individuals and families.
Dear Friends,
Dystonia is a journey, not only a diagnosis. Every year, individuals and families must find a way forward after dystonia turns the world upside down. The onset of symptoms is often
a transformative experience, requiring a complete re-imagining of one’s identity,lifestyle, and future—not only for the patient but also family members.
For more than 40 years, DMRF has guidedpeople through the dystonia experience while
advocating on their behalf and stimulating medical research to improve lives.
In neuroscience, a pathway is a network of interconnecting neurons. Nerve signals travelalong these pathways, sparking every function in the brain and nervous system. There are 100billion neurons—with 100 trillion connections—
in the human brain. Solutions to dystonia arewaiting in this vast neurological landscape, andwe are committed to finding them. Researchersare quite literally exploring the pathways respon-sible for causing dystonia and searching forpathways to the cure.
While research will supply the science behind a cure, every aspect of the DMRF mission helpsclear the way for its arrival. 2017 was a year ofcritical research advancements including excitingnew insights into the brain pathways implicatedin dystonia, discoveries in biochemistry, and anever-growing interest in dystonia in scientificcommunities. 2017 was also a year of intensecommunity outreach across the country and online. It was an essential year for health policyadvocacy to protect individuals living with chronicand rare diseases. Newly diagnosed patients looked to the DMRF for information, coping support, and opportunities to support research.
We are on this journey together. No one shouldface dystonia alone. Your donations power thetireless curiosity, drive, and compassion that propel progress in science and programs for patients and families. Our progress would not be possible without your support.
We vow to continue pressing forward until wereach the ultimate destination: a cure for every-one affected by dystonia. Until that time, we arepleased to share with you some accomplishmentsfrom the past year.
Sincerely,
Message from Our President & Executive Director
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Art KesslerPresident
Janet L. HieshetterExecutive Director
4
Neuroanatomical Substrates for Disrupted eIF2alpha Signaling in DystoniaNicole Calakos, MD, PhDDuke University
Myoclonus-Dystonia, A Study ofMotor and Non-Motor Symptoms: Is There a Role for Serotonin?Marina de Koning-Tijssen, MD, PhDUniversity Medical Center Gröningen (Netherlands)
Targeting Lipid Biology for DYT1Dystonia: Neuronal Lipidomicsand Lipin Activity AssaysRose Goodchild, PhDVIB Leuven (Belgium)
Tremor, Oscillations, Synaptic Plasticity, and Deep Brain Stimulation for DystoniaWilliam Hutchison, PhD, University of Toronto
Determining the Role of Torsin in Nuclear Pore Complex AssemblyC. Patrick Lusk, PhDYale University
Synaptic Plasticity in a MouseModel of Paroxysmal DystoniaAlexandra Nelson, MD, PhDUniversity of California, San Francisco
A Study of Non-Motor Symptomsin Myoclonus-DystoniaKathryn Peall, MDCardiff University (United Kingdom)
Targeting Lipid Biology for DYT1 Dystonia: Does Lipin Inhibition Rescue Striatal Neurophysiology?Antonio Pisani, MD, PhDFondazione Santa Lucia (Italy)
Investigation of Striato-PallidalConnections in a Mouse Modelof DYT1 DystoniaGiuseppe Sciamanna, PhDUniversity of Rome tor Vergata (Italy)
Dystonia-Associated Endoplasmic Reticulum Defects and the (De)regulation of NeurotransmissionPatrik Verstreken, PhDVIB Leuven (Belgium)
Identification of Neuronal Mechanisms of Agency in Myoclonus-DystoniaYulia Worbe, MD, PhDPitié-Salpêtrière Hospital (France)
RESEARCH CONTRACTS & GRANTS
Since 1976, DMRF has funded hundreds ofresearch investigations, each one an investment in expanding the dystonia fieldand ultimately making life better for thoseliving every day with the disorder. DMRF-funded scientists have tested therapies, dis-covered dystonia-causing genes, clarifiedorigins of dystonia in the brain, created toolsto help dystonia investigators design new ex-periments, and even defined what dystonia is(and is not).
Many of the world’s dystonia experts cite support from the DMRF early in their ca-reers as the reason they entered the field. Assenior investigators, DMRF funding recipients have passed the torch of dystonia research to the young scientiststhey mentor.
We funded 15 research projects.
5
“What DMRF has done, which no one
else has done, has been to get more and
more researchers working on dystonia.
They understand that when you invest
in young researchers and pilot projects
you aren’t just getting a single project
out of them—you’re getting a career’s
worth of work. And DMRF has
been doing this for 40 years.”
—Joel Perlmutter, MD, Washington University
Medical & Scientific Advisory Council
Among the many visitors to the DMRF’s exhibit booth at theInternational Congress of Parkinson’s Disease and MovementDisorders in Vancouver were Honorary Lifetime Director Stanley Fahn, MD (left); Medical & Scientific Advisory Council Member Mark Hallett, MD; and DMRF Co-FounderFrances Belzberg.
JAMES C. KILIK MEMORIAL RESEARCH AWARDS
Modulating the Functional Connectivity of the Cerebellum in Musician’s Dystonia Robert Chen, MD, PhD, Toronto Western Hospital
A Study to Identify Kinematic and Force Measures Capturing Impairment in Musician’s Dystonia among String Players and Improvement with Retraining Therapy Christine Kim, MD, Columbia University
RESEARCH FELLOWSHIPS
Role of the X-linked Dystonia Parkinsonism (XDP) Causative Gene TAF1 in the
Striatal Development and Maintenance Maria Cirnaru, PhD, Mount Sinai School of Medicine
CRISPR/Cas9 System Targeting Specific DYT1 Allele Mutation in Patient iPSCs: A Strategy For Phenotype Reversion In iPSCs -Derived Neurons Lilian Cruz, PhD, Massachusetts General Hospital
6Megan Wirts organized a comedy show to support dystonia research and shared her story in the Dystonia Dialogue.
50,000+ peoplelooked to the DMRF for information and programs
For more than 40 years the DMRF has worked to put itself out ofbusiness—for all the right reasons. Everything we do is dedicated tofinding a cure and, until then, helping people with dystonia live theirbest lives. We know the dystonia community depends on DMRF topursue innovative research opportunities, advocate on behalf of thecommunity, promote greater public understanding of dystonia, andconnect families to trustworthy information and peer support. We take this responsibility to heart, in all that we do, every day.
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A team of investigators led by William Dauer, MD at University of Michigan made new discoveriesabout DYT6 dystonia, which affects children. DYT6 dystonia occurs when the body cannot properlyproduce a protein called THAP1, whose role and function in cells is unknown.
Using a special mouse model, Dr. Dauer and colleagues discovered that THAP1 is essential for myelination,a process during brain development that forms a protective coating around neurons. This study establishes
a role for THAP1 at the start of the myelination process and implicates abnormal timing of myelination inthe pathogenesis of DYT6 dystonia.
The findings point to a direct link between myelination and childhood-onsetdystonia, providing new insights into how and why certain types of
dystonia might develop at specific stages of brain development.
Investigators discovered a dystonia protein helps protect neurons.
“I am so thankful for the Dystonia
Medical Research Foundation!
They are always there to answer
any questions I have about my
condition. They have been a
blessing to me and my husband.
Thank you for all you do, and
continue to do, for all of us.”
—Carrie Valiulis, DMRF Member
At the annual Medical & Scientific Advisory Council Meeting:(from left) keynote speaker Jesse Goldberg, MD, PhD; Scientific Director Mahlon DeLong, MD; Chief ScientificOfficer Jan Teller, MA, PhD; and MSAC member and grant awardee Rose Goodchild, PhD.
8
Scientific workshops are proven catalysts for new ideasand collaborations, and often inform areas of focus forcalls for research proposals. In May, DMRF supportedand participated in the 6th Biennial Meeting on Dystonia organized by Antonio Pisani, MD, PhD inRome, entitled Dystonia: The Link Between Hypo- and Hyperkinetic Movement Disorders. The purpose of this international meeting was to close the gap between basic and clinical neuroscience by examiningadvancements in dystonia and Parkinson’s disease.
In October, DMRF organized a meeting in partnershipwith Cure Dystonia Now and Duke University entitledEmerging Molecular Pathways, which was co-chairedby Nicole Calakos, MD, PhD and DMRF Chief ScientificOfficer Jan Teller, MA, PhD. The workshop focused onefforts to find commonalities among the multiplegenes associated with dystonia and the functions of the proteins encoded by each gene.
We gathered top experts to inspire new research.
Investigators discovered a new function for dystonia proteins.
One of the known causes of dystonia is the malfunction of a protein called TorsinA. TorsinA is found in human neurons and
other cells, and appears to be involved in many cell processes.A team led by DMRF grant recipient G.W. Gant Luxton, PhD at University of Minnesota added a new role to TorsinA’s expanding repertoire.
Experimenting in cell models, he and his team demonstratedthat TorsinA and its activator protein, LAP1, regulate protein
complexes that facilitate nuclear migration. Relocating the nucleus of a cell is required for processes like fertilization, muscle
development, and neuron growth. These experiments used fibroblasts(connective tissue cells), not neurons, so it is unclear at this time how relevant the discoveries may be to dystonia. However, other investigators have discoveredfibroblast abnormalities in human dystonia patients, and future experiments with this model may offer a new perspective from which to ultimately clarify TorsinA function.
The study was highlighted in Cell Biology with a special introduction by Daniel Starr, PhD and Lesilee Rose, PhD, a former DMRF grant recipient whose work has contributed important TorsinA findings.
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There is a shortage of physicians qualified totreat dystonia and an urgent need for trainingadditional movement disorder experts throughclinical fellowships. In response to this reality, the DMRF sponsors one-year clinical fellowshipsto train second-year fellow physicians in the diagnosis and treatment of movement disorderswith special competence in dystonia.
2017 Clinical Fellows and Mentors:
• Avram Fraint, MDRush University Medical Center Mentor: Cynthia Comella, MDResearch: Feasibility, reliability, and satisfactionof post-botulinum toxin injection telemedicineassessment in patients with cervical dystonia.
• Christopher Groth, MDUniversity of Colorado Denver
Mentor: Brian Berman, MD, MSResearch: Exploring possible correlation
between reduced GABA receptor availability in global pallidus and susceptibility todeveloping cervical
dystonia.
• Shabbir Merchant, MDNational Institute of Neurological Disorders & StrokeMentor: Mark Hallett, MDResearch: Investigating frequency of anxiety and depression in dopa-responsive dystonia.
• Lindsey Neimand, MDIcahn School of Medicine at Mount SinaiMentor: Rachel Saunders-Pullman, MD, MPH, MSResearch: Exploring differences in the patho-physiology of dystonia associated with complexregional pain syndrome compared to organicfocal hand dystonia.
The Clinical Fellowship Program was funded by grants from the Allergan Foundation and Merz Pharmaceuticals.
We increased the number of movement disorder specialists.
"Dystonia is a challenging disorder
to diagnose and treat effectively. It is only
the clinical examination that can diagnose
the disorder, and experience guides the
treatment plan. Patients need the expertise
of a movement disorder specialist. DMRF is
addressing an urgent need to prepare
additional physicians to care for this
special population of patients.”
—Cynthia Comella, MD, Rush University Medical Center
Medical & Scientific Advisory Council
Past DMRF Clinical Fellow Harini Sarva, MDhas supported the annual Bronx Zoo Walk and organized a dystonia educational meeting in 2017.
DMRF and Cure Dystonia Now jointly supported a research investigation to explore whether a drug called AZD1446 could
potentially provide relief for dystonia patients with fewer sideeffects than existing medications.
Although AZD1446 did not demonstrate therapeutic effectsin animal and cell models of dystonia, the investigationproduced valuable and important findings. Experimentsverified that dystonia is associated with abnormal neuronsignaling in the striatum, part of the basal ganglia, deep inthe brain. This abnormal activity causes an imbalance oftwo neurotransmitters critical for muscle control: dopamine
and acetylcholine. While the data indicate that AZD1446 isnot a particularly promising candidate for development as a
treatment, other nicotinic agents do have potential. The studysuggests that nicotinic agents should continue to be studied to
help better understand dystonia and identify new therapies.
The investigation was led by Antonio Pisani, MD, PhD of University of Rome Tor Vergata (Italy) and David Standaert, MD, PhD at University
of Alabama.
“Thank you for the opportunity to be part of
such a wonderful foundation over the past three
years. This has been a terrific experience for me
both scientifically and personally. Having the chance
to exchange with outstanding scientists in the field
of dystonia and, most importantly, the opportunity to
listen to the amazing stories of board members about
themselves or their loved ones who struggle with dystonia,
is something I will never forget.
“Being part of MSAC has enriched my knowledge about the
disease and provided me the essential elements to develop
a significant part of my research portfolio towards a deeper
understanding of this intriguing disorder.
“Be assured that I will never forget my time with DMRF, and
that I remain available to help you advance the Foundation
agenda for years to come. You’re doing an amazing job that
impacts the lives of wonderful people. You should be very
proud of yourselves.”
—Yoland Smith, PhD, Emory University
Medical & Scientific Advisory Council (2014-2017)
10
Investigators evaluated AZD1446 as a possible dystonia drug.
11
The Global DystoniaRegistry is a commu-nity-based research
initiative that depends on the DMRF for operational and administrative management. The Global Dystonia Registry supports future dystonia studies, including clinical trials,through the voluntary collection of patient data. To date, 5,200 individuals have joined.
The Dystonia Brain Collective is anotherDMRF-led collaborative effort among participating dystonia organizations. The purpose is to promote brain donation
registration in support of research and provide investigators with access to tissue
samples. Thirty-four dystonia brains have been collected, including four recoveries in 2017. DMRF is deeply grateful to the donors’ families for facilitating these invaluable contributions to research.
We collaborated to make sure investigators have data and samples for new studies. Investigators earned
$2.6M for ne w dystonia research from DOD.
The Department of Defense (DOD) has funded dystonia research since 2010, butonly because dystonia advocates push every year to make sure dystonia is includedin the DOD Congressionally-Directed Peer-Reviewed Medical Research Program.In FY 2017, grants were awarded to five outstanding dystonia investigators:
• Cynthia Comella, MD, Rush University Medical Center• Un Kang, MD, Columbia University Medical Center• Mark LeDoux, MD, PhD, University of Tennessee Medical Center• David Peterson, PhD, University of California, San Diego
12
In March, the Dystonia Advocacy Network(DAN) hosted Advocacy Day in Washington, DCto encourage Members of Congress to supportthe DAN’s legislative priorities. Advocatesasked that dystonia continue to be recognizedas a condition eligible for study through theDepartment of Defense Peer-Reviewed MedicalResearch Program and to provide the NationalInstitutes of Health with ample funds for the2018 Fiscal Year. The DAN also sought to preserve basic patient healthcare protections.
DMRF is proud to provide administrative support for the DAN.
The annual Douglas Kramer Young Advocate Award recognizesexceptional young volunteers who are giving voice to dystoniathrough advocacy. Recipients in 2017 were (from left) ShastaPartee, June Tritley, Scott Wood, and Anneliese Ornelis.
Advocates from New York and New Jerseymet with Congressman Paul Tonko.
Dystonia advocates held 119 meetings on Capitol Hill.
13
We created 4 new brochures.Incorrect information about dystonia is
easy to find, not only on the internet but in
media stories and even from sources that claim
to be authorities on dystonia. The DMRF stands
out as a credible source of accurate information
on dystonia, treatments, and research updates.
DMRF added four new brochures to the catalog of
free printed materials: Dystonia, A Movement Disorder;
Moving Toward A Cure; Generalized Dystonia; and
Functional (Psychogenic) Dystonia.
Traveling even short distances with dystonia can be challenging, so DMRF breaks down barriers of access and geography by offering free educational programs online.
A webinar entitled Overview of Cervical Dystonia with movement disorder expert Cynthia Comella, MD of Rush University Medical Center was DMRF’s most popular online event of the year, with more than 700 people registering to participate. Additional webinars were held in partnership with Allergan, Merz Pharmaceuticals, and Ipsen to highlight financial assistance programs to help dystonia patients afford treatment.
4 educational webinars offered direct access to experts.
DMRF provided thousands of people with the latest information on living well with dystonia by organizing or participating in free educational meetings. Locations included: Cleveland (OH),
Columbus (OH), Detroit (MI), Grand Rapids (MI), Hartford (CT), Lansing (MI), Long Island (NY),Nashville (TN), New York (NY), Philadelphia (PA), Pittsburgh (PA), Rochester (NY), and St. Paul (MN).
15 meetings empowered attendees with the latest information.
The volunteers who lead support groups and online forums are personally affectedby dystonia, often themselves coping with the disorder or caring for a loved one
who is affected. DMRF has programs and resources in place to support theessential work of these selfless volunteers. In 2017, DMRF offered a private
webinar for support leaders about mental health with Vice President of Support Karen K. Ross, PhD and Marc Oster, PsyD. A newsletterwas created for support leaders and a new brochure was developed to promote DMRF support programs.
The Shaughnessy family shared their experienceswith myoclonus-dystonia in the Dystonia Dialogue.
“I’ve been dealing with dystonia for
37 years now. I have nieces and nephews
that are fighting it. It makes me so happy
to hear about progress! The work you
do means the world to so many people.
I hope every day that I will see a cure
in my lifetime, and you are the
people we will thank for it all.”
- Billy Park, DMRF Member
Support groups and online groups provided information and connection.
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We supported our peer support leaders.
DMRF support groups provide local peer support in dozens of locations, offering the invaluable opportunity to gather with others who live and understand the challenges of dystonia. Online forums provide connection to thousands around the country, and around the world. The DMRF volunteer network is also made up of regional directors and individuals devoted to awareness, fundraising, and/or serving as area contacts.
15
The Dystonia Support & Advocacy Group of San Diego commemorated its 30th year of peer support, awareness, and fundraising.
Dystonia Moves Me is the DMRF’sannual awareness campaign. Efforts in 2017 focused on encouraging volunteers to asklocal medical offices to offer dystonia awareness materials intheir waiting rooms during DystoniaAwareness Month (September).Five hundred Dystonia Moves MeVolunteer Kits were distributed.Fifty medical offices new to theDMRF requested awareness materials.
We mobilized 500+ volunteers to promote awareness locally.
16
Team DMRF raised awareness at the TCS NYC Marathon.
In honor of those struggling with dystonia, Team DMRF hascompeted in the world famous TCS New York City Marathonsince 2013, literally running for those who can’t. In November,Team DMRF included Rita Aidoo, DO, MPH and Pat Brogan.Dozens of supporters cheered them from the sidelines.
17
Maddie Paolero and her BFF Reno were amongthe top fundraisers in the Virtual Dog Walk.
Dogs for Dystonia is an annual campaign toraise awareness while celebrating the specialbond between individuals with dystonia andtheir pets. Each February, dog lovers unite in aVirtual Dog Walk to raise visibility of dystoniaand the urgent need for research toward a cure.In 2017 the campaign included “Dog with aBlog,” featuring stories from participants.
32 dogs raised $10K+
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35 special events raised $367,800 for research.
The DMRF is proud to partner with volunteers and support groups around the country on creative and fun events that unite the local dystonia community, promote awareness, highlight movement disorder programs, and raise urgently needed funds for research.
Among DMRF’s most popular community programs are Dystonia Zoo Walks, family-friendlyevents to raise awareness and to support DMRF.Eleven Zoo Walks attracted 5,000 participants in 2017.
The Cincinnati Dystonia Zoo Walk and Toss4Dystonia cornhole tournament each commemorated five years of bringing the community together and creating lasting friendships among families.
20
Stanley Fahn, MDLifetime Honorary Director
Samuel BelzbergChairman/Founder
Art KesslerPresident
Richard A. Lewis, MDVice President of Science
Barbara KesslerVice President of Awareness & Activities
Karen K. Ross, PhDVice President of Support
Rosalie LewisVice President of Public Policy
Dennis KesslerVice President of Development
Sandra WeilNetwork Liaison
Mark RudolphTreasurer
Frances Belzberg, Co-Founder, Director
John Downey, Director
Donna Driscoll, Director
Nancy Harris, Director
Marilynne Herbert, Director
Erwin Jackson, PhD, Director
Stefanie Jackson, Director
Diane Rudolph, Director
Paula Schneider, Director
Pamela Sloate, Director
Mahlon R. DeLong, MDScientific Director, ex officio
Billy McLaughlinAwareness Ambassador, ex officio
Janet HieshetterExecutive Director, ex officio
Board of Directors Medical & Scientific Advisory Council
Mahlon R. DeLong, MDScientific Director, Emory UniversitySchool of Medicine
Jesse Goldberg, MD, PhDCornell University
Mark Hallett, MDNational Institute of NeurologicalDisorders & Stroke
N. Charles Harata, MD, PhDUniversity of Iowa
Jill Ostrem, MDUniversity of California, San Francisco
Coro Paisan-Ruiz, PhDMount Sinai School of Medicine
Alvaro Pascual-Leone, MD, PhDHarvard Medical School
Joel Perlmutter, MDWashington University
Christian Schlieker, PhDYale University
Thomas Schwartz, PhDMassachusetts Institute of Technology
Kristina Simonyan, MD, PhDHarvard Medical School
Yoland Smith, PhDEmory University
Peter Strick, PhDUniversity of Pittsburgh
Michele Tagliati, MD, FAANCedars-Sinai Medical Center
Cynthia Comella, MD - ex officioRush University MedicalCenter/Dystonia Study Group
H.A. Jinnah, MD, PhD - ex officioEmory University/PrincipalInvestigator, Dystonia Coalition
Beth-Anne Sieber, PhDFederal Liaison
21
Susan Bressman, MDMount Sinai Beth Israel
Cynthia Comella, MDRush University Medical Center
Mahlon R. DeLong, MDEmory University School of Medicine
Stanley Fahn, MDColumbia University Medical Center
Hubert Fernandez, MDCleveland Clinic
Mark Hallett, MDNational Institute of NeurologicalDisorders & Stroke
Joseph Jankovic, MDBaylor College of Medicine
Barbara Kessler, ChairVice President of Awareness & Education
Ed Cwalinski
Paul Kavanaugh
Dee Linde
Diane Rudolph
Paula Schneider
Elizabeth Schultz
Todd Spotti
Clinical Fellowship Program Committee
Editorial Board
DMRF distributed 102,900 copies of the Dystonia Dialogue newsletter.
22
A complete copy of financial statements audited by Barnes, Givens & Barnes, Ltd. is available upon request from the Dystonia Medical Research Foundation, One E. Wacker Drive, Suite 1730, Chicago, Illinois 60601.
STATEMENT OF ACTIVITIESDystonia Medical Research Foundation | Year ending December 31, 2017
23
STATEMENT OF FINANCIAL POSITIONDystonia Medical Research Foundation | December 31, 2017
ASSETS
LIABILITIES & NET ASSETS
Special Events 13%
Bequests 17%
Awareness & Education
16%
Administration 6%
Membership & Support 7%
Advocacy 5%
Science 56%
Donations & Grants 70%
REVENUES
EXPENSES
Fundraising 10%
24
John AndersonTwyla ArnetteGladys BarnsPhilip “Sonny” BartusDavid BelskyErnest BersaniLaurel A. BradleyRichard BradleyRobert Dan BradleyPeter BrooksKingston BrownWillie Robert BrownJim BulmerKaren BurkeElizabeth ButeraAlfred T. Cahill, Jr.Ray CahillBarbara CaldwellDavid CampJane Meads CassinMelissa Anne CentrellaMel ChasenJudith ComellaPatricia Croley
Charles DavidMarisa DeGrayDiane DelaneyThomas DriscollEd DyeCarl EifertEleanor Louise
EstabrookShari Farber-TrittMarshall FinePatsy S. FlemingPriscilla Lydia FlynnRosemary FrassettoBrett FrommeJoyce Nelson
Gautier RichardsEmma GilbertJane L. GlynnDr. George GoldmanRosalyn GoodmanAl GradyBarbara GreenwaldTodd C. GunneRobert HaidDiane Hall
Letitia HaworthGeorga Harrington
HenrichsonSue HenriksenSusan HertelGladys HolmesMarshall IsaacsBlanche (Hall) JacksonPamela Jackson-BushPaul JonesDee Ann Jones
ReynoldsMiriam KimmelmanNatasha KnightMary KollsStephanie T. KopecDouglas Martin KramerGeorge W. “Bill” LaceyMoira Horan LagardeStephen LawsonFrances LehmanAdrianne LindenLucille LindenmanRose LiuzzaJohn Curtis Logsdon
Urma MainsRajnesh MalhiEugene J. MalsanJay L. Margolis, Jr.Kathie MarkeyVicki McKinneyBeverly MellonRichard “Dick” MillerMarland MontgomeryAlan MoyerJoel NachbarWalter NorvidBarbara OliverSandra OppermanGertrude OrnsteinSusan OwensRyan PareAleksandra PassarelloKathleen PerryBoris PestineGinny PetersonBrent PetriWilliam Pettway, IIIRichard Pollack
Tony PutzSylvia RadovAnnie RitschWilliam RobertsEdna RomeoEster RosenRoberta RosenbaumMilton RothsteinMargaret RyanBobby June SamuelGregory Santa AnnaMarion Joan SchaattJudy & Jerry SchwartzDr. Bertram SelverstoneArthur SilvestriJeanette SimmonsMatthew SimmonsAnita Gail SimonBruce SlepianMartin SloateMary Lou SmithSeymour SolopSophia StanichRenee Stockfleth
T. J. & Lavelle StoneOwen ThompsonVirginia ThrowerJosephine “Joy”
TriggianoPhyllis VignolaStephen Lynn WahlBob WallikiConnie WalterElaine WeinbergSusan Pitts (Weiss)Joan WhiteRosemary WiesnerLynn WilliamsBetty Williams HallGeorge Gilpin WillifordKathryn WilzochAllan WomacJerry T. WynneJeannie ZimmermanMoshe Baruch ben
Yakov obmRachel Gitel bas
Alter Meir obm
The DMRF wishes to acknowledge the generous gifts received in memory of the following:
THANK YOU 2017 DONORS
$50,000 or MoreAllergan CorporationAllergan FoundationEstate of Jocelyn BakerFrances and Samuel BelzbergBrown Family FoundationDystonia Medical Research
Foundation CanadaFamily Alliance FoundationWendy Bloom and
Arthur KesslerBarbara and Dennis KesslerEstate of Miriam KimmelmanRosalie and Richard Lewis, MDMerz North America, Inc.Estate of Barbara ParsonC. Northrop and A. Marder
Pond FoundationEstate of Dorothy StevensonSandra Weil
$25,000 to $49,999AnonymousDystonia Support & Action
Group of Greater Philadelphia/Southeast Pennsylvania Support Group/Philadelphia Dystonia Zoo Walk
Stefanie and Erwin Jackson, PhD/Pipe Dreams of Tallahassee, LLC
Pamela Sloate/Bronx Dystonia Zoo Walk
$10,000 to $24,999AnonymousAnonymous Baron Family/Providence
Dystonia Zoo WalkBlum Family FoundationChelsi Christman/Sarah
Ernstberger/Sunshine Fox/Hunt for a Cure
Mike Delise/$5Cure4DystoniaDMRF Central California
Dystonia Support Group/Fresno Dystonia Zoo Walk
DMRF Minnesota Dystonia Support Group/Twin Cities Dystonia Zoo Walk
DMRF Western PA Dystonia Support Group/Pittsburgh Dystonia Zoo Walk
Farber Family/Basket BashFlanagan Family/Cleveland
Dystonia Zoo WalkBenjamin Humphrey/
Cards Against DystoniaIndependent Charities
of AmericaIpsen Biopharmaceuticals, Inc.Joyce JenereauxDeborah and Roger Lebbin
Dee Linde/Portland Dystonia Zoo Walk
James Metherell/Toss for Dystonia
Ruth NussdorfRose and Arthur PerrinMelissa and Roger Phelps/
Cincinnati Dystonia Zoo WalkDavid M. Rudolph
Research FundCharles and M.R. Shapiro
Foundation, Inc.Karen Ross, PhD/Symonds
FoundationJune Tritley/St. Louis
Dystonia Zoo WalkWeinberg/Newton Family
FoundationDavid and Rae Wiener
Foundation Inc.Rosemary and Edward Young/
Detroit Dystonia Zoo Walk
$5,000 to $9,999Sandy and Wes AlumbaughVicki BermanMary Clark JanisThe Irving S. Cooper Family
FoundationCure Dystonia NowDrs. Mary and Mahlon DeLongFacebook, Inc.
Farber Family/Hunt for a CureSara FlohrDeborah and James HarlowHelen HausmannHeymann-Wolf FoundationHumboldt Family FoundationConnie and Harvey KruegerIra A. Lipman FoundationMG O’Neil FoundationVictor MonteagudoNash Family FoundationChong Hui and Terry NevilleAbigail PetersonCarole and Doug RawsonDiane and Mark RudolphMaureen SheehanKay and Steve ShraibergThe Henry and Marilyn Taub
FoundationUS WorldMeds, LLC
$2,500 to $4,999Rita Aidoo, DO, MPH/
Dystance4DystoniaLouise Chazen Banon Family
Charitable TrustDeAnne and Dan BeanElaine BridgesPatrick Brogan/
Dystance4DystoniaMatt BurkeCanterbury Park
Entertainment, LLC
R. Barry CaslerDonna DriscollLarry Dubill/
Dystance4DystoniaSally and Maynard EngelTimothy EssonHarriett and Joel FarberKathleen and Timothy
FlanaganGannett FoundationSusan Gardner and
Brian Gardner/Putnam, CT Dystance Walk
Joshua HechtHeather and Martin HolfordBarbara and Edward
HoltvluwerGaidaa and Ayad KashatSheila Killham/Dogs4Dystonia
Dog WalkTricia and Brian LewisBinbin Wang, MD and
Aaron Lewis, MDMedtronic, Inc.Susan Miller and Daryn PakcykThe Mount Sinai School
of MedicineFrances and Jerry NewbergPayPal, Inc.Leslie RichmanFlorence K. Ferguson and
E. Michael Shine
Carrie Siu Butt/Dystance4Dystonia
Pamela Sloate/The Martin & Roberta Sloate Dystonia Research Fund
Carol Anderson Smith and Frederick Smith
Arlene and Robert SubinJoann Gerardi, PhD/
Alexandra and Martin Symonds Foundation, Inc.
Team Braden’s Brigade/Pittsburgh Dystonia Zoo Walk
Team Burke/St. Louis DystoniaZoo Walk
Team Chicken Wing… Ain’t No Thing/Philadelphia Dystonia Zoo Walk
Team Flanagan/Cleveland Dystonia Zoo Walk
Team Mount Sinai/Bronx Dystonia Zoo Walk
Anna Voytovich and Steven Rudolph
WellCare Health Plans, Inc. DBA Comprehensive Health Management
Jacqueline and James Cerqua/West Winds Cafe & Catering, Inc
Sherry and Douglas Whitley
25
$1,000 to $2,499Carole and Joel Steiger/
A.L. Levine Family Foundation, Inc.
Susan and Marino AguileraAmazon.comAnonymousAnonymousAnonymousAnonymousSandra Aresta and Michael
Katz/Stand Up for a Dystonia Cure
Barbara and Bruce AustinAnn BackerMary Ann and Richard BakerMichael BallantyneRita and Guido BattagliniDouglas BeachJennifer and Michael BeauryHoward BermanNancy and Jack BrittsJeffrey Brodsky, PhDJudith and Richard BryanVirginia Bryan/Dogs for
Dystonia Virtual Dog WalkLisette Bunting-Perry, RN, MScNDrs. LuAnnette and
John ButlerMichelle Callahan/Dogs for
Dystonia Virtual Dog WalkHelen Capparell/
Dystance4DystoniaCar-O-Liner CompanyMichele Carruozzo
CentraState Healthcare Foundation
Dale and Peter ClamanKay and James Cooksey/
Letter WritingDiddy and John CullinaneBarclay and Richard DardenArlene and Kenneth DavidsonJan and Charles DavisJanet and Roger DeBard/
DeBard Johnson FoundationDMRF South Carolina
Support GroupRobert DufaultRenee Ebbert/Dystonia
Moves MeHarold EggenspergerRobert and Barbara EngelBeth Farber and Steve LaserMarilyn FedakBeverly and Richard FitzgeraldLynn and Arthur FreedmanBarbara and Richard GayMarvin GoodfriendGoogle, Inc.Joan GordonBernice and Sam GreenbergPatrick GutierrezMarilynne HerbertJanet Hieshetter and
Eric GreenbergMaureen and Raymond HillerSusan and Jim HuserJohnson & Johnson Family
of CompaniesSusan Joseph
JP Morgan Chase FoundationUn Jung Kang, MDGloria and Milton KargmanNancy and Alan KesslerMichael Kilik Memory Fund
of the Community Foundationof New Jersey
Deborah Kilpatrick, PhD and Kacey Fitzpatrick
Kohl’s Department Stores, Inc.Jonathan Kovler/Kovler
Family FoundationKramer FamilyLenore KramerMr. and Mrs. Robert KramerBarbara and Harry LehrKaren and Ben LewisJohn LinnJacob MandelsonJane MarksEmily and Thomas
McNaughtonMedcanMercantile Adjustment
Bureau, LLCMicrosoft Giving CampaignHenry & Rose Moskowitz
1999 Family FoundationSuzanne and Brendan
MulshineHope Nightingale and
David EllisHenry NissleyFredelle and Martin OhlhausenLori and Joel Oxman, PhDMaddie Paolero/Dogs for
Dystonia Virtual Dog Walk
Neepa Patel, MDThe Pittsburgh FoundationLynn PombonyoKathryn ReKrista and Ronald ReedRiverhills Healthcare, Inc.Rochester Institute of
Technology Juggling ClubEllen and Gerald RodisRoisen Family Foundation, Inc.Rubens Family FoundationTammy and Robert SandersSusan SarilLauren SchleyerMichele SchusterCarol and Jeffrey SherrinSylvia and Donald SimonSociete Generale Employee
Charitable Gift Matching Program
Judy SoleySt. John Providence/Ascension
Health Ministry SVC CTRSt. Philomena School/
Dystonia Moves MeRise StenicoArlene and Joseph Taub
FoundationKay Stephens Taylor, MDTeam A Twist of Ed/Pittsburgh
Dystonia Zoo WalkTeam Cappolla/Bronx
Dystonia Zoo WalkTeam Columbia/Bronx
Dystonia Zoo Walk
Team Dawn’s Angels/Philadelphia Dystonia Zoo Walk
Team Dystonia Muse/Bronx Dystonia Zoo Walk
The E Team/Portland Dystonia Zoo Walk
Team Huser/Cincinnati Dystonia Zoo Walk
Team Joanna/Philadelphia Dystonia Zoo Walk
Team Kashat/Detroit DystoniaZoo Walk
Team Kavin/Detroit Dystonia Zoo Walk
Team Muck Family/PittsburghDystonia Zoo Walk
Team Olivia & Madison/Cincinnati Dystonia Zoo Walk
Team Omy/Bronx Dystonia Zoo Walk
Team Rachel/Detroit DystoniaZoo Walk
Team Twisted Troops/Pittsburgh Dystonia Zoo Walk
Nancy and Bruce ThayerJean and Dan ThompsonMary Lu TuthillUBS Employee Giving ProgramUnited Way of Youngstown
and the Mahoning ValleyUniversity of Pittsburgh
Medical Center (UPMC)Carrie and Stanley ValiulisJean and John WalterDaniel Weinberg
Elaine and Brian WeinbergSally WeinmanSherri and Mark WeinmanAndrea WeisbrotLeona Weiss McCargar and
Scott McCargarLinda and David WestfallWhole Foods MarketThe Women’s Group of the
Greens, Inc.
$500 to $999Mary Jo AbbottAdobe Employee Giving
Charitable ProgramDr. Ellen AirCarlene and Roger AlbinAndeavor Foundation Corp.AnonymousAvery Dennison Rec BoardBancroft-Tubbs Family Fund
at the Rochester Area Community Foundation
Phyllis BassMeredith BerkmanBenjamin BoyerMarjorie BrandenburgLisa BreedveldMichelle and Chuck
BreitsprecherRobin and Elliott BroidyJane BrownKaren BrownBernard BrownsteinDiane and Clyde BrownstoneDonna BuntenKay and Ronald Cabay, DDS
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Laura Anne Cahill and James T. Hemphill
Lisa and Stephen CartolanoCity of BrigantineSusan and Howard CodeGerald CohenPatricia and Kennie CombsConstellation Energy Group/
Exelon FoundationShirley CooperDaniel CopelandJerod Darnell DPM PLLCCarol and Joel DavisDDK Kitchen Design
Group, Inc.DiBuduo & DeFendis
Insurance Brokers, LLCMarcia and Richard
EisenbergCatherine EmeryAnn and Mike EricksonLawrence EricksonSally and Michael ErnstbergerDoris and Stephen FaberAnn and Joseph FalciJessica Feeley/Dogs for
Dystonia Virtual Dog WalkRhona and Leonard
FeigenbaumFirstGivingMr. and Mrs. J.M. FoxW. Robert Friedman, Jr.Barbara and Edward GartsideDenise Gibson/
Dystance4DystoniaDenise and Bill Gibson
Vicki and Ernie Ginter, Jr.Gerald GoldbergCarol and Peter GoldmanNancy and Joel GoodmanHoni and Dennis GreenwaldDiane and David GrossmanMartin GutenplanCory and Nicole Hall/Jace’s
Twisted RideRichard HammDelores and Gordon HansenHayes FamilyBrian HaysJanet Hieshetter/Dogs for
Dystonia Virtual Dog WalkJoyce HirschMichael HollowayTeresa and Ronald HortonKatherine and Benjamin
HumphreyMary Hurley Morton
and Gregory MortonInterpretations Dance
AcademyJulie KaiserSusan and Daniel KastenWendy and Leonard KayeTim KeeganSusan and Matthew KnightPhyllis and David LapinSusan and Howard LaskyLois LautenbergJessica LawlerMiles Lazerwitz, DDSLucy and Kenneth LehmanCarolyn and Arthur LevineElaine and Shaul Levy
Allison and Dan LondonCarol and Edward MaierLisa Majure/Majure LLCJohn Jay Mann
Foundation, Inc.Laura and Curtis McGiffinSarah McKenzieBilly McLaughlin/Dystonia
Moves MeEmily McNaughton/Dogs for
Dystonia Virtual Dog WalkArlene MeintzWayne MellonCindy and Thomas MetherellMethodist HospitalJosef MeyerMichigan State UniversityNan and Howard MillerGermaine J. Mulhern CPADeborah and Robert MymanNational Fuel Gas Company
FoundationCindy Neal/Rodan & Fields
Independent Consultant Christi NeeseNetwork for GoodNew Directions FoundationGale NolanMichael NovakJeanne and John O’ConnorRonald OliverStacey and Mark OvertonRamanlal PatelPathways Unitarian
Universalist ChurchClarence Pautzke
Jill PazolkaLisa PerrySusan PestineGloria and Ron PetriJoan and James PiedmontePatrice and Jeffrey PiercePittsburgh East Health
Center/The Foundation for Wellness Professionals
Margaret PowellNancy and Larry PresentDavid PrestonLisa and Jon ProvisorBrenda and Charles ReavisDavid RichRobert Wood Johnson
Medical School - Rutgers University
Susan and Eric RobinsonMarcia and James RohrbaughPatricia RoixRalph RoseMaxine and Gerald RosenPauline and David RutbergSusan and Samuel SandbergTyler SchaufenbuelMargaret SchlegelRonald SchwartzCharlene and Howard
SchwartzLynn and Jim ShafferJoyce and Sheldon SilversteinMelissa and Joseph Sines/
Dystonia Moves MePamela SloateColleen Smith and
Alex Bahrke
Deborah SmithMargaret and Thomas SmithSouth Puget Sound
Neurology, PLLCSarah Spoto/Dystonia
Moves MeRonna Stamm and
Paul LehmanBarbara StewartDonna and Glen SuiterTakeda Pharmaceuticals
North America, Inc.Cindy and James TannerTeam Aidan/Hunt for a CureTeam Anderson Smith/Bronx
Dystonia Zoo WalkTeam BillyMac 2017/Twin
Cities Dystonia Zoo WalkTeam Cyborgs/Philadelphia
Dystonia Zoo WalkTeam Dancing With Dystonia/
Philadelphia Dystonia Zoo Walk
Team Daphne/Portland Dystonia Zoo Walk
Team Dee/Portland DystoniaZoo Walk
Team Jefferson/Philadelphia Dystonia Zoo Walk
Team Kathy’s Krusaders/Twin Cities Dystonia Zoo Walk
Team Kayla/Cincinnati Dystonia Zoo Walk
Team Keagan/Detroit Dystonia Zoo Walk
Team LuAnne/Fresno Dystonia Zoo Walk
Team Marching for Marianne/Cincinnati Dystonia Zoo Walk
Team Marisa/Fresno Dystonia Zoo Walk
Team Maureen/PhiladelphiaDystonia Zoo Walk
Team MGC Supports DMRF/Cincinnati Dystonia Zoo Walk
Team Mid-Michigan DystoniaGroup/Detroit Dystonia Zoo Walk
Team Movers & Shakers/Twin Cities Dystonia Zoo Walk
Team Rick and Friends/Pittsburgh Dystonia Zoo Walk
Team Schultz/Twin Cities Dystonia Zoo Walk
Team Scotty & Quintyn/St. Louis Dystonia Zoo Walk
Team SEP Dystonia Support Group/Philadelphia Dystonia Zoo Walk
Team The Bad Struts/Pittsburgh Dystonia Zoo Walk
Team The Red Baron’s/Providence Dystonia Zoo Walk
Team Tilted Theisens/Twin Cities Dystonia Zoo Walk
Team Wood/Providence Dystonia Zoo Walk
The Kroger CompanyThe Recovery ProjectJoyce ThielenTravelers Community Connections
Pieter Van VlietVermillion State BankConnie VickDeborah WarrenMr. and Mrs. Milton WarsawSandra WassermanDiane WebberJulie and David WeismanShawn and Lawrence WelshSusan and David WilliamsonLesley and Raleigh WillsonKaren WinterWolverine Packing CompanyPatricia and W. Dan WrightPriscilla WyckoffPatricia Ziner
$250 to $499Sylvia AdesFreyda and Jeffrey AlbinJohn AlfondAllegheny Health NetworkCharles AllenLore AloroTom & Danielle Aman
FoundationLorraine and Curt AnastasioJeanne AndersonLaurie and Joseph Anderson
Ruth AndersonJudy and Tom AronsonRene and Michael AverettDeborah and Richard BailineKim BangBank of America Charitable
FoundationDr. and Mrs. Irving BarasSister Patricia BassettShawn BeattyLeslie BeckRosemary and Thomas
BellaireRobert BencksZelda and Sol BergerPatricia BiedessBig Tree Fitness LLCAnn BikalesAnni and Henry BlackEsther and Charles BleyMichele and Ronald BlumShirley BradleyRegina BragaDavid BraunCindy BravetteCarole and John BrighamToby BrobergPatrick Brogan/Help Find a
Cure 4 DystoniaMary BrownAnne BryanBuddy Ehrlich Foundation -
United Charitable, Inc.Patricia and Thomas BurkeSuzanne and Frank
Calandrino/Dystonia Moves Me
Naomi CardLenora CohenJennifer and Paul ColoneThe Community College
of Rhode IslandKay and James CookseyLaura CrawleyPatience CrollCarolyn CruzChester CurtisDeborah and Douglas DarbyDeborah DavisSusan and Michael DavisSusan and Thomas DavisDMRF Central Pennsylvania
Support GroupChristopher DoffingElyce and Andrew DoffingDouglas DudgeonFlorence Duggan-BayneE & B Paving, Inc.Joy EasleyRae EdelmanRegina and Greg EitzenMargaret and Leon EllinHeidi EvansJean EvansMary Beth EvansFrances and John EversJanet FairbankAnna FaragunaArlene FeeMaurice FentonFirst Presbyterian Church
at CaldwellSusan Fishbain
Ann and George FisherCarol and Luther FlynnJulie and Steven ForneyFortune Fish & GourmetVirginia and Charles FosterFox RehabilitationKathleen and John FuegerKay GamoJudith GarberDenise and Greg Gaskell/
Dogs4Dystonia Virtual Dog Walk
Barry GeislerMary Kay GenzlingerJudith GibsonColleen GoldsteinJoyce and Ronald GreenbergMelissa Greenberg/Dogs for
Dystonia Virtual Dog WalkByron GregoryJ. Brian Greis, MDMarita and George HabermanJean HaidPamela HailDale HallNicole HallElizabeth HarrisThomas HarrisHarriet HartsteinCynthia and Norman HarwellHazle Azalea Fellowship
Lodge No 327Michael HerkoPeggy and William HermanPatricia and James HerrewigJulie Higgins
Coral Hilby, MDJodi HillJudith HomerScott HoppingVirginia and Timothy HornsbyKenneth HortopRichard HorwitzElaine IgelmanJean and John IsaksenSylvia and Bert IwanakaJanney Montgomery
Scott LLCFrank JansenKay JudsonPatrice KabramAnita and Michael KaplanJerome A. Kaplan and
Deena L. Kaplan Family Foundation, Inc.
Kelly KarasGail and Robert KatzRichard KelschPamela and Richard KilianyKaren KlausegerNorie Knezetic/K Creative
Group, Inc.Melanie and Randolph KraftRafa KraimGeorge KramerAndrea and Jeff KrugerSandra and Kenneth KuskaBrittany LakeGail LandeMichelle and Norman
LattmanRobin and Stuart LazarusMark LeDoux, MD, PhD
Kasey and Todd LeinbachLenny’s BarWilliam LentschLeonard and Sons Complete
Car CareTsao-Wei Liang, MDLaura and Mark LiebermanDee LindeKaren LunsfordAndrea and Steven LurieAnnette and Michael LynchMark Maglio/
Dystance4DystoniaMaria and Jack MannJennifer ManningDebra and Joel MargolisJoyce and Michael MaronSheldon MarsDebra MarshallJudith and Glenn MasonBarbara MayerShelley and Guy MaynardStephanie and Stephen
McCullaLinda McGlassonCarol and John McGrathBilly McLaughlinMichigan Head and
Spine InstituteBarbara and Richard MillerMiller Cooper & Co. Ltd.
Charitable FoundationPatricia and Michael MillerCarol and Jim MollerMichael MongonJulie MontoyaReta Moore
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Vicki and Steven MorrisBetty and Gordon MorrowLori Moss and Gary
Oltmans, PhDJanice and Len NachbarZita NathansMarilyn and John NewhouseLonnie and Jerry NicholsOcean State Power LLCMary and John O’DonnellJoan and John O’RourkeLynn OstermannGoly Ostovar and
Paul RickersonJohn PazolkaPepsiCo Foundation
Employee Giving ProgramsCarol-Ann and Joseph PeraltaGail PestineJamie and Matt PestinePetersen Pet Hospital, P.C.Russell PhillipsLaureen PrimmerStacey PrinceNancy K. Pruett, DDSR J ConstructionSally and Ronald RabinowitzLinda and James ReedDonna ReyesRiverview Surgery CenterRuth and Stanley RobertsTina and Sean RogersRonald RosenSusan and David RosnerCarol RowbergRoyal Wire ProductsGail Rudo
Betty and Edward RudolphRoberta Rudolph Salas and
Javier SalasMalerie SamonaMiriam and Theodore
SchiffmanDr. and Mrs. Arthur SegalShell Oil CompanyBernard SillinsLindsey SilvaBarbara SmithShirley Somora and
Frank OlsonLarry StahlSusan and Murray SteinfinkMyra and Jerry StemermanKirk StephenMilton SterenMary and John StoneIra StraffRebecca and Collin StuartMichael TabiszMichele Tagliati, MD, FAANAdam TattelbaumTeam #carsonstrong/
Cincinnati Dystonia Zoo Walk
Team #Jacobthebrave/Detroit Dystonia Zoo Walk
Team Alright Alright Alright/Detroit Dystonia Zoo Walk
Team Amanda/Providence Dystonia Zoo Walk
Team Anna’s Bananas/Cincinnati Dystonia Zoo Walk
Team Anthony/Pittsburgh Dystonia Zoo Walk
Team Chem Crew/ClevelandDystonia Zoo Walk
Team Cody’s Crusaders/Twin Cities Dystonia Zoo Walk
Team Cornell/Bronx DystoniaZoo Walk
Team Detroit Dystonia Debs/Detroit Dystonia Zoo Walk
Team Donna’s Dream Team/Cincinnati Dystonia Zoo Walk
Team Everything Electric/Bronx Dystonia Zoo Walk
Team Extreme Attitude/Pittsburgh Dystonia Zoo Walk
Team Hope for Dystonia/Bronx Dystonia Zoo Walk
Team I Spy/Hunt for a CureTeam King/Philadelphia
Dystonia Zoo WalkTeam Lisa Vrabel/Detroit
Dystonia Zoo WalkTeam Lueddeke/Bronx
Dystonia Zoo WalkTeam Maddy/Detroit
Dystonia Zoo WalkTeam Maglio/Philadelphia
Dystonia Zoo WalkTeam Monroe/St. Louis
Dystonia Zoo WalkTeam Paige’s Peeps/
Pittsburgh Dystonia Zoo Walk
Team Pat/Philadelphia Dystonia Zoo Walk
Team Reese’s Pieces/St. Louis Dystonia Zoo Walk
Team Rita’s Roses/Philadelphia Dystonia Zoo Walk
Team Riverhills/Cincinnati Dystonia Zoo Walk
Team Sara’s Squad/Providence Dystonia Zoo Walk
Team Sherri/Detroit DystoniaZoo Walk
Team Solstice Sisters/Philadelphia Dystonia Zoo Walk
Team SquareHead Brewing/Bronx Dystonia Zoo Walk
Team Treacy/Providence Dystonia Zoo Walk
Team Twisted Warriors/Philadelphia Dystonia Zoo Walk
Team Zooney/Cincinnati Dystonia Zoo Walk
The H Group, Inc.Joan and Paul ThomasSusan ThomasMelodee ThorwegenThrivent Financial for
LutheransTraci and Jamie TrappJune TritleyLaura Tubridy
United Way of Greater Philadelphia and Southern New Jersey
University of Iowa CommunityCredit Union
University of PittsburghPaulajean VickVizmeg Landscape, Inc.Erica and Robert VrabelJulie WagshalSharon WagshalMissy Walfish/Rushmore
ConcertLisa WalterMartie and Stephen WartalskiMarilyn and Jerome
WassermanChris WeigmanRoberta and William
Weinsheimer Naomi and Alfred
WeissenbergChristine Wente Von MetzschWet Nose Inc. Head To TailSusan WheelersburgLisa WhiteCindy and Don Whiting, MDAnnette WilsonMegan Wirts/Comedy
Fundraiser for DystoniaPeggy and Bill WiseScott Wood, Jr.Zausmer, August &
Caldwell, P.C.
$100 to $249Ronald AbelBeth and Larry AbneyTessie AckermanMary and Jim AdamsSarah AdamsAdoptions From The HeartAetna Foundation, Inc.Erdal AksoyDouglas AllemanDennis AllenShari AllenAltmeyer Funeral Homes, Inc.Lissa AmanVirginia and Robert AmesLorel and Sheldon AndersonJulie AnderssonAnonymousAnonymous Anonymous Anonymous Anonymous AnonymousAnonymousJessica Aresta-DaSilvaKerry ArmstrongCynthia and Ray ArnoldBarbara and Judy AsazawaLora AshcraftAT&T Employee Giving
Charitable ProgramBuzzy AugustMr. and Mrs. Henry AustinMuriel BaayEthel BakerCindy and Jack Balcolm
Susan Baldwin and Gary Gepner
Danielle BarberioJane Atwood BarlowJanice BarlowCynthia BarnhartSusan and Cliff BaronRay BassettBelinda and Ivaldo BassoSharon BattersonJennifer BaurleyDanette and James BeanRhonda and James BeaneChristine BeattieJames BeattieDana BeattyDavid BeckBelaCoop Animal Hospital
of North ParkSara and William BelkovEnid and John BellFrank BellMeocha BelleErica BenderLarry BenesiKeri BennittElyse BentonRayzella and Frederick BerkoJackie and Richard BernardCaitlin BerryCharles BienerMary and Larry BillberryScott BirdElizabeth BizicJull and Barry BlackerFrances Blackman
Karen Blacksburg and Leslie Blacksburg
Seth BlacksburgNatalie Blake and
Steven SchwartzTwila BlankenshipSusan BleichShirley and James BlueRosemarie and David BlumHarriet Blumencranz and
Paul WillenskyBNSF Railway FoundationJoseph BoardmanAlkesh BodiwalaDenise and David BoenteTodd BofingerStephen BorduaRoberta and Seth BorgSandra BoulayMary BoundPhyllis and Thomas
BouthillierCarolyn BowlesBarbara and Richard BradleyDianne and Marc BraerKristy BrainardJoyce and Robert BrassardJean and Lowell BraxtonSharon BrelloNorman BrennerOlivia and James Brissie, Jr.Marion BrodyRosemary and Gerald BroganKaren BronsonDorothy and Roger BrooksGail BrownGregory Brown
Janet BrownJanice and Gary BrownJeffrey BrownJo-Ann and John BrownJudy BrownKathleen and Kenneth BrownPia and Randall BrownRobert BruhnBernice BryanSharon BucheckIan BuckleyCrissie BuckwalterMary and Paul BuengerMargaret BulmerMarilyn BunnJeffrey BurjaJames BurkeKatherine BushnellLynne ButlerNicole ButlerCandace Buttacavoli-
WolkotteEstelle ButtsKathy and David BuyanskyMaria and Scott CalderwoodLorraine and Dale CalvertTommy CammElizabeth CampbellLorraine and Daniel CappioHeidi and Patrick CappollaTracy CarlsonDeirdre and Ronald CarlsonKaren and Dwain CarlsonDolores CarnahanSheila CarneyYvonne and Thomas Carney
Edward Carnvale, DPMBarbara and Donald CarowMaria Carrera and
Corey FaymanSusan and Paul CarrollYolanda and Thomas CarrollAnnette CatalanoSharon CatalloBarbara and Harvey CautinNancy CederquistJacqueline and James CerquaAbeldia ChampionAmy ChampionRoberta ChampionCheryl and Joseph ChamplinNeelam ChandWendy CheungVivian ChiangValerie and Darren ChildersEvelyn and Joseph ChoroserMuriel and Howard ChwattSusan CiolekAlison and Timothy ClancyClarence Middle SchoolAmy Clark and John WilburMarilyn ClemMarianne CoalsonKenneth CohenSuzanne Henley and
James ColeKathleen ColesiChristina ColoneMargaret and Frank ColoneRobert ColosiCommunity Physical Therapy
and Rehab at Stone’s Crossing
Christian CompetelloEllen, Caitlyn and
Marc ConnellyKaren and Charles ConwayGladys CookPatricia and Michael Cops
and Sarah FinchEileen and James CosenzaBarbara and Martin CotlerVivian and Gerald CoutinhoKerri CrakerNebra and Jacob CraneJohn CreppsPatricia and Curtis CriderElizabeth CrumpDiane CullenTerri and Barry CummingsKaren and David CunninghamJohn CurryMary and Gary CurtisMyrna CurtisMary and Edward CurveyEdward CwalinskiArlene CzopD&N Fence Co. Inc. Mary DadantMegan DaleyMona DallasSusan DanzigerStuart D’ArcyHelen and Charles DavidKatrina DavisMaria and John DavisSuzanne and Donald DavisCristina De La Ossa and
Hector Salazar
Karen and John DedonLori DehnAndres Deik, MDGregory DeiningerMike DeliseSamer DellyCatherine DeLorenzoBarbara DeLouiseJeanne DelSignoreReed and Beverly DelucaDempsey Carpet Cleaning LLCMarcia and Kenneth DenbergKathleen DennickSandra DererRoberta and Patrick DerosaShari and Ashland DeRossettRichard DeSalvoKlaus DeschnerDG Home ImprovementsNancy and John DickMark DicksteinLouis DiGiovanniJeanne and Albert DipronioDMRF Mobile, Alabama/
Gulf Coast Support GroupMarie DobsonLaurie and Patrick DoddDonald DodsonMichael DoehlaLaura Doerger-RobertsJeff DoffingDonald S. Lowitz
Memorial FundJohn DonovanAphrodite and John DoranPamela and William DotyMary and Keith Downey
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Mary Ann and Maurice Drimer
Judith and Sydney Dromgoole
Audrey and Lucio DrozdowskiHelen DubillKatherine DubillJoan and Dennis DuBoseAlan DubrowLeanne DufourMelanie DumasJacqueline and
Matthew DunnIrene DunnDebbie Durrer and
Richard FantozziDr. and Mrs. Stephen DvorinKristen Bolden-EdwardsJanis EilerNancy and Mike EisenstadtMartha and Brent EkvallStephen EliasJoyce ElingKenneth ElkingtonVanessa and Alexander
EllermannBetty EllinwoodDorothy and Edward
EngelkenKathy EnglandPat EnglebretsonSarah and Charles EnzorNicole and Robert EpplenIrene and Carl ErsingCarol and Donald EsselmanPatricia and Deni Evangelista
Carmela and Thomas EvankoWendy EvansExclusive Auto Body Inc.ExxonMobil FoundationAaron FaberAlicia FabianJeanne and John FadaleDaniel FalkJanet FalkVirginia FarleyMary and William FarrLinda and Ronald FaulRosanne FayKaren FederTim FeeleySuz FeelyFein & JakabSusan and Michael FeinsteinElizabeth and Pavel
FeldshteinToni and Joel FenchelRichard FensterCharles FergusonHoward FeroDebra and Dan FieldsOwen FieldsKara and Richard FingardDiane and John FioreJulie FireHeidi FischerMary and Kenneth FischlGrace FisherCharles FisherMonna and Danny FisherAlice Fishman and
Michael DipietroMyrna Fishman
Kim FitzpatrickGale and Tim FlanaganMargaret FlanaganBarry and Pamela FlanaganPatrick FlanaganTherese and Dennis FlanaganFlorence NewsomLisa and Michael FlorjancicKenneth FlynnAnita FordPeggy and Donald FosterMary Jo FowlerSunshine FoxBonnie FrancisJeanette Franco and
Alex MilhommeMarilyn and Irwin FrankBette and Louis FrankeLeanne and Steven FrankelFranklin County High SchoolWilliam FreeSharron FreemanRebecca FrelighElizabeth FreyMr. and Mrs. Irwin FriedmanLenore FriedmanSanford FriedmanRoberta and Charles FrischLynn and G. Jeffrey FullertonGables II Homeowner’s
AssociationJennie GalassoLeonard GalloThomas GalvinAmy GammillMelissa Ganley
Vendora and Arthur GappertDiane Garchow and
Madison WilliamsCheryl GarrNancy and Thomas GarsonDavid Gaudreau, ODRobert GebeloffMyra and Stephen GeffnerPaul GeihsJanet and Thomas GensertJacqueline and Andrew
GermanowAmy GewirtzBrian GewirtzDonna and Edward GewirtzHoward GewirtzNancy GewirtzRandi GewirtzDavid GierseBruce M. GilbergEmma and Robert GilbertBarbara GilbertPenny and Mark GilletteCindy and Neal GittlemanGive with LibertyPaul GlatleiderJoan GlennonJudith GlickmanBrenda and Howard GoffenIsobel Goldberg GoldmanStacey GoldenGail GoldmanJosh GoldmanJudith and Alfred GoldmanCraig GoldsmithNina GoldsteinDiane Goldstein
Doris and Bernard GoldsteinPatricia GollmerStephen Gollomp, MDJames GoltzRita and Howard GolubJill Renee GoodElizabeth GoodgionRobert GoodmanDawn and Glenn GoodnoShirley GoodnoDeborah and Michael GordonCarol GrayJames GrayJennifer GreenJudy and John GreenDorothy GreenbaumDavid GreenbergMary GreeneCheryl and Les GreenfieldZee Jay GreenspanMary GreulichCarla and Randall GriffinJennifer GriffinThomas GriffoNancy GroomValerie GroovenhoffGrouping, Inc.Daniel GrunbergNicholas GumasAmy GunsallusAbby and Neil GurevitzCarolyne GussElaine and Michael GuthrieJames GutierrezNancy GutierrezChristopher Gwynn
Deborah GwynnJeffrey GwynnAnne Marie HallDawn HamiltonSarah Hamilton and
Chad MostromShannon HamptonJeanne HandmanElaine and William HaneyJohn HarderBetty and Thomas HarlanEric HarrisKathleen and Michael HarrisPaul HartDenise and Stephen HarwoodJill HassebrockMichael HastingsDwain Hathaway/
ShowCase4DystoniaDawn HayesHayes Family Farms, Inc.Ellen and John HechtnerStephen HegnerDavid HennessyTreacy and Daniel HenryJustin HergerAndy HerrmanJune and Ron HershAnn Lois HerzogTeresa HessCarol HeynsPaula HigaDeborah HillPatricia HillLaura and Gerald HimakaCharles Hines
Patricia Coburn-Hintze and Kenneth Hintze
Leonard HirschPatricia HirschJames HitchBarbara and Brian Hoar, MDBridget and Brian HoffmanKaren HoffmanHeather Holland and
John JacksonJoan and Earl HollandKristina HollandRobin HollowayJoan and Steve HolzmanHattie Homan-SyvrudRona and Seymour HomerNancy and Albert HomiakDianne HornStephanie HornDavid HosfordSusan and Drew HostetterKatherine HowarthKenneth HowellRoy HowellNancy and Jack HowiePatricia and John HowlettTasha Hubbard and
Lonnie HubbardChristine and Kenneth
HudsonLinda and John HugginsJane HundNancy and Norman HyamsRuth HynesDeborah and John IaculliJudith Ingelido
Iris InsognaIntel CorporationFaith IrwinGloria and David IsacksonMellanie IsnerElizabeth and Michael IsselAllyn ItterlyMr. and Mrs. Terry JacksonCarol and David JacobsVanessa and Marc JacobsLawrence JacobsonNancy and Allen JacobsonAjit JainPauline JakobsbergJohn JamesJanis and Alan Menken
Charity FundBruce JaskulkeLisa JewisonJudy and Roy JohansenGretchen JohnsAmy JohnsonBarbara JohnsonBetty JohnsonMaurine and LeRoy JohnsonElaine JonesMarguerite and David JonesMargie and Ronald JoryJohanna and Merrill JurgensLee KainsCharlotte KaiserVictoria KammeierMiriam KapferDaryl and Charles KaplanDavid Katz, MDDiane KatzDyan Kaufman, PhD
Paul KavanaughConnie KeatingeNellie KeckCindy KehoeSusan KeithleySusan and Richard KelinMarcia and Howard KentJoyce and Donald KesslerMarilyn and Mark KesslerSharyn and Ronald KesslerRoslyn KestenAshim KhemaniMaureen KilcullenEsther KillhamSheila KillhamTammy and Les KinderJulie KingLaura KingStephanie and Gregory
KitchinDebra Kittay and Josh ParkerBonnie and Gary KleinElaine KligermanViolet and Chandis KlingerConnie and Dennis KnautzCourtney KnoxLaura KochLori Koetter and Alex KoetterRegina KoganMyra KoltonMelinda KontosKathleen KoopmeinersCassandra KopecRhoda KopyPhyllis and Martin KornCraig Koshkarian
Linda and George Koukourakis
Carol Ann KovicGary KrahnRosemary KrauseVirginia KreinerDawn KrejciMichael KrinerCarol and Robert KroahCarol and David KrootNorma KuehnElizabeth Kugel-WhetstoneEmily KuvinWray LacyLake Ridge Women’s ClubSteven LanderJames Paul LangCarolyn LangevinJudith and Deno LangisDonald LarsenSharon LarsenNancy and William LatimoreWendy LauchSerena and Dick LaVineMichael LawsonJeff LazarusAudrey LebedzinskiRobert LeeFran LeemingPaula LeichtBarbara and John LeschisinJane LevineKaren and William LevinePamela LevitreYe LiangShaynee and Michael
Lichtenstein
Debi and Cliff LiebermanTim LiesterDouglas LightboundNicole LimingLynda and Bruce LimpertLinch Family Charitable
FoundationDee Linde/Dogs for Dystonia
Virtual Dog WalkJudith LipsettLipsett Family Fund
Philanthropic FundLorena LittonBruce LoeserSylvia LogerquistCindy LoisPearl and Ronald LooneyAna LopezAnabel LopezA. and M. KoppenRobert LosikSusan and Thomas LotzBronlyn and Michael LouckBrenda LucasZach LuchiniNadine LuisBernita LundquistAnnette and Michael LynchDelana and Michael LynchBrian LysellHolly M. MachadoCathy MaddenPatricia MageeMark Maglio and
Dana MaglioDr. and Mrs. Arthur Mahler
Barbara MakerJanet MalsanThe Mandel FoundationAnita ManesRoger and Gina ManusovJon ManzanaresLinda and Gordon MappesSusan MargolisWendy and Howard MarinStacy MarkMarkle Gift FundPeggy Marquoit and
Margaret MarquoitLaura MarshErin Marshall/Dogs for
Dystonia Virtual Dog WalkJanis MarsicekKenneth Martin, Jr.Kristin MathewsSharon and T. Richard
MathewsRebecca MatteoAnnemarie and Larry
MatthewsAlisa and Edward MatushekJoanne MatuzasLisa and Dean MatzLucinda MayerEdwin MazoueJoe MazzoJacki MazzucaAnnette and Charles McAteerBrendan McCarthyDawn McCollumJudith McConnell
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Judith and William McCourtney
Rick McCrackenJames McCullaJohn McCullaKaren McCullaMargaret McCullaNancy and Eddie McCurdyJudy McEvittEllen McHughKathleen and William
McIntyreStacy McMinnDonna and Sharon McMyneMargaret McQuownRebecca McReynoldsSteven MedvinKimberly MeekerAlison MekeelClara MelmanGrace and Jonathan MeltonMary and Ronald MeltonLisa MenottiEllen MetherellMichelle and Wendell MetteyMarlene MeyerMara MicklovicSharon and Louis MilesAaron MillerEileen and Andrew MillerJanet and Douglas MillerJency MillerTammy MillerTimothy MillerCheryl and Michael MinikesMinneapolis Foundation
Marla and Robert MishlerEric MishloveMary Jo MiskeDeborah MitchellRenee and Chris MoehnMichael MolinoDavid MoltkehansenJeanne Moltke-Hansen and
Harry SchenkGloria Monahan and
John DonohoeMichael MonahanEllen and Bruce MondschainJanell and Gary MonettiJean MonigalNathan MonroeKatherine MontemaranoJessica MooreJo-Ann MooreSharon and Cyril MooreMaureen MoranDixon Morgan and
Claire MorganErnestine and Gary MorganMichael MorrisseyJay MorsteinGinger MoshofskyKaren MossMargaret MottoMarcella MuehlebachJames MulqueenJudith and William
MunshowerMary and Bob MunzenriderCorinne and Mark MurashigeGail and Thomas MurawskiJane and Mack Murphy
Michelle NaccaratiNachbar Family/Dogs for
Dystonia Virtual Dog WalkDeborah and Isaac NachbarJoyce NachbarLisa NachbarJessica Nadel and
Joshua FefferMadeline NagelRoy NathansSandra and Robert NathansJennifer NeeMaryRae NeeJanet and Mark NeutzBrenda and James NixPatricia NobsSheryl NoelteJill Norwood and Juan GobelJosephine OakleyPatty and Michael OaksCarol and Donovan
OberholtzerCheryl and Michael O’BrienEmma O’Brien and
Agatha O’Brien GayesShirley O’ConnellChristina and Jerry O’ConnorRebecca Olson and
James HainesBradford and Judith O’NealSharon O’NealPriscilla OnizukLisa OntiverosAnneliese and Jason
Ornelis/Dogs for Dystonia Virtual Dog Walk
Karen OrnsteinCarl Oshrain, MDMarc Oster, PsyDMary O’SullivanBarbara OvertonPatricia and John PaceCoro Paisan-Ruiz, PhDJulie PallachAnthony PassarelloDebra and Joel PasternackBharti and Raman PatelAlleyne and Edward PatrickJames PattonMary and Jerry PattonMary Lou and John PattonBarry PawelekJennifer PawelekRobin PearlVicki and Schuyler PeckJoan and Peter PerhachMichelle PerkinsPatricia and James PerkinsMarlene PeroutkaKaren and Steve PersingerGary PetrieBarbara and Thomas
PfendlerKathleen and Peter PflockMelissa and Roger PhelpsRosalind PhillipsWillard PhillipsGail PhippsMatthew PilarskiLuAnne Pinedo Madden
and David MaddenJane Piro
Barbara Pison and Judy Brown
Daphne Plaut and Jeffrey Showell
Joan PlessnerKaren PolahaCarol PollackLynn PollackArlene and Lee PollanAlice and John PorterNancy PorterBonnie PortnoySteven PortnoyJanis PowersNaomi PrellPamela and Raymond PresleySally and Frank PrestiDana and Marc PriceKaren and John PriceSharon PriceJanice and Kenneth PrintenPriscilla Chapter No. 64
Order of the Eastern StarCarolyn PritchardDiane and Robert PritchardJane ProsnitBarbara PryorCarol and David PurdyHope and Robert QuinnSandra QuinnRuby QuirinRuth RabernKaren and Daniel
RaffenspergerHeidi RamosBarbara RamseyChristopher Rask
Jeffrey Ratliff, MDLinda RawlinsLaura RayKaren RayzorS. and W. ReeseLynda ReevesJudy ReillyAnita and Bruce ReismanMaria ReyesJanet ReynoldsJoseph and Anna RichardBarbara and Carl RichardsLinda and Clark RichardsMark RichardsonTeresa RichardsonCarol RichhartNancy and Sandy RichmanMichael O. RobertsLeslie RobinsLaura RobinsonLaura RobinsonMatt RobinsonShirley and Mark RobinsonMelinda RochaDonna and John RochonPatricia and Jack RodgersShana RomancheckDebra Ronning/Dogs for
Dystonia Virtual Dog WalkRoslyn RosenEsther RosenbergRichard RosenbergGina Rosendall-SaucedoEugene RosensweetMichael Rotay
Cheryl and Brian Rothman Charitable Fund of the AycoCharitable Foundation
Ellen Rothschild-Taube andMitchell Taube
Joyce and Walter RoubaRoyalton Hills Lions ClubWilliam RozenwaserMerton RubensClaire and John RubinKelsey RushMelissa RussellCarol RyanTimothy RyanKathryn RyndersSAI-Med Partners LLCEric SalasJody and Joseph SaltamashiaHoward SaltzmanBruce Sams, MDKathleen SamuelMarilyn SandlerBryant SantosJoanne and Richard SavitzSusan and Joe SchackmanSteve Scharrer and
Nathan ScarrerDonald SchaumbergerJoanne Schiffman and
Nicholas GumasMarian SchindlerBradley Schlaggar, MD, PhDErin SchmidtAnn SchmitShanna and Brad SchmittEileen Schnier
Pamela and W. Winslow Schrank
Elizabeth SchultzErin SchwartzLinda Schwartz-ChiLilian ScottDavid ScoulerMaria Scrivani and
John LipsitzLoredana and
Stephen ScrobeSally SeekinsArline and Warren SeidemanGail SellegRoberta and David SenzelRachel ShackeltonNeal ShahSurekha and
Nrupendrarai ShahKimberly ShappsSharon SheesleyRuth SheidlowerMichele ShepardSheridan Hill Elementary
SchoolDena and John SherryEugene ShifrinDeborah and Alfred ShinerSarah ShortCarol and Norman ShubertChristos Sidiropoulos, MDSamantha SiebertRadienne and Frank SikorskiGerald SilbermanMichael SilverbergJeffrey SilvermanJune Simmons
Arlene and Charles SimpsonSue and Steven SimringJohn SincockLisa and Jack SingerCarrie Siu ButtCheryl and Frederick Siu ButtDavid SkeldingMitchell SlepianAlan SloateKenneth SloatePamela Sloate/Dogs for
Dystonia Virtual Dog WalkGeorge SmithGeorgia SmithJoanne and John SmithLaurie and Carl SmithLinda SmithRheta SmithRichard SmithGail and Jeffrey SmoulderNancy SnidemanLynn and Eric SnyderPaula SogardJames SoineIneabelle SolaMaria and Mauricio SolisTom SonnenbergVince SottosantiSteve SowkaJoyce and Carl SpitzTamela SquiresChristina St. JohnKaitlyn StapletonKaren and Eric StarkTaisiya and Dimitry
Starominsky
Patti and Dan SteinLaura Harrington and
Irving SteinfinkSharon and James StephensFerdinan StevensonSophia StewartRoberta Stillin-DowmanMarta Stoeckel-Rogers
and Tim RogersMarilyn StoknesEleanor and Scott StolerJohn StonerRoberta StrasburgPhyllis StraussPamela StrawgateLaurie Strawgate-Kanefsky
and Paul Kanefsky Esq.Elizabeth Stuart and Brian Doyle
Arlene SturmSuzanne Stutman and Jon Wilkenfeld
Candus and Mark SuppelsaSupply New England, Inc.Judith and Douglas SwagerPeggy and Jim SwartchildAnne and Ronald SwitzerJane and Robert SylvesterTaurus Financial Services, Inc.Joanne TaxChristopher TaylorMichael TaylorScott TaylorTeam #dystonia/Hunt for
a Cure
Team Adult Neurology Center/Pittsburgh DystoniaZoo Walk
Team Aidan/Cincinnati Dystonia Zoo Walk
Team America’s Majestic Miss/Cincinnati Dystonia Zoo Walk
Team Aunt Karen/Philadelphia Dystonia Zoo Walk
Team Brain Modulation Lab/Pittsburgh Dystonia Zoo Walk
Team Bravette +/PhiladelphiaDystonia Zoo Walk
Team Cathy Strong/Bronx Dystonia Zoo Walk
Team Champion/Fresno Dystonia Zoo Walk
Team Cincinnati Children’s Hospital/Cincinnati Dystonia Zoo Walk
Team Cosplay it Forward/Pittsburgh Dystonia Zoo Walk
Team Cris/Fresno Dystonia Zoo Walk
Team D.B.S./Detroit DystoniaZoo Walk
Team Donna’s Dream Team/Hunt for a Cure
Team Dystonia with Dystonia/Philadelphia Dystonia Zoo Walk
Team Finder’s Keeper’s/Hunt for a Cure
Team HOPE for Cure/TwinCities Dystonia Zoo Walk
Team Jen’s Walkers 4 Hope/Cincinnati Dystonia Zoo Walk
Team Jessica Osborne/Hunt for a Cure
Team Meltons & Friends/Bronx Dystonia Zoo Walk
Team Moving for Mandi/Providence Dystonia Zoo Walk
Team Oz/Hunt for a CureTeam Paula/Providence
Dystonia Zoo WalkTeam Poppybear/St. Louis
Dystonia Zoo WalkTeam Sarah’s Storm
Stompers/Detroit Dystonia Zoo Walk
Team Seismic Activity/Twin Cities Dystonia Zoo Walk
Team Shana/Detroit DystoniaZoo Walk
Team Speak Out for Ms. Deb/Providence Dystonia Zoo Walk
Team The Quinn’s/Bronx Dystonia Zoo Walk
Team Troy/Pittsburgh Dystonia Zoo Walk
Team Twitchy/Twin Cities Dystonia Zoo Walk
Team Washington Hospital School of Nursing/Pittsburgh Dystonia Zoo Walk
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Carol and Steve TepperRosemary TerminiThe Arch Community League,
Chapter NYSARC, Inc.The Frempreneur Network LLCThe Friedman Family
FoundationWilliam ThierfelderMichaelene ThillmanRandi ThistlethwaiteCharles ThomasDebra and Jeff ThomasEdward ThomasGale ThomasNatasha ThompsonCynthia and J. Frederick
ThornettKathryn TierneyJanice and Richard TillisTODOSO OrganizationJohn ToffefsonTower Properties Co.Mollie and Ken TraubIra TrittLisa Troub/Dogs for Dystonia
Virtual Dog WalkAnita Ann TrudellVanessa TsuiTuesday at Ten Bible StudyWayne TunisKaren and John TuozzoloWendy and Jeffrey TurkGary TurnerSusan and Terry TutenPauline and Irvin TysonUnited Way of Greater
Capital Region
United Way of Greater Portland
United Way of Southeastern Pennsylvania
Cheryl VaiknorasJim VailBrenda Van IdenBilly VanceRuth VanderburghShannon and John VanzandtTeresa VaughanMarla and Jeff VaughnMary VeetBlanca VelascoAudra VellucciMelissa VercilloKim and Guy VerronaVillage Grande Hadassah
Executive BoardDeborah VisusDavid VitaleJames WagnerEmily and Steven WagshalNancy and James WaldoCharlotte and Jackie WalkerJeannie WarmbrodtIrvina and Sherwyn WarrenPhyllis WarrenBarbara WarrickGregory WasLauren and Jeff WaxmanMarjorie and Michael
WaxmanAnne and Randy WebberMiranda WebberTracy Weber
Marilyn and Frederick WegnerSarah and Paul WegnerDiana WehnerAdrian WeigartDonna and Jason WeighleyRobin and Michael WeintraubSharon WeintraubNina Weisbroth and Jill and Arnold WeissCarina Welch/Game Night
for DystoniaGail and Gerald WellsNicole WellsSusan WenselLinda WernerJudith and Alan WertheimerGail WestMarcia and Richard WestRollin WestrumPatrick WheelerHuntley WhitacreKathryn WhitfieldDarlene WiczerBarbara WigginsThomas WilkinsonFrances WilliamsMartha WilliamsCynthia and Dale WilsonMary Ann WilsonZulma and Jake WilsonJill Fink and Jerry WiseAnn WolffAnnette WomacAmber WoodEmily WoodSusan Wood
Nancy and Jeff WorthingtonCarol WyattAmit and Henry YaffeGail and Morris YamnerRobert YandtAnne YatesOma YearyYMCA of Metropolitan
ChattanoogaRosemary and Edward YoungRhoda and Bernard YuchtAmy YurchisionVivian and Marc ZacharyDiane, Stephanie and
John ZaiaJoni and Michael ZavisErin ZehringerTonya ZeiglerKathy ZennerLi ZhouElizabeth ZimmermannKaren and Seymour ZivanMarie Zuidema
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