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ADC Ed Core Alzheimer’s Association Update
Maria C. Carrillo, Ph.D. Vice President, Medical& Scientific Relations
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Global Research & Development Funding Trends
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Adapted from appropriations progress charts by the American Association for the Advancement of Science.
Cell 2013 Jul 3 154(1): 16-19
US Research Funding Trends
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570
study sites are listed on
TrialMatch
165
studies are listed on
TrialMatch
As of August, 2013
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Person with the disease or caregiver or physician or healthy volunteer completes a disease-specific profile via phone or internet
or
1 Unique profile compared to structured match criteria 2
From unbiased match results, individual selects trial matches & cities; and with permission…
3 Alzheimer’s Association Contact Center specialists speak to every matched individual
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Participant then calls trial site directly.
Profile Match Criteria
works How
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40,000+
people have completed a
profile
13,500+
people have been referred to a study site
As of September, 2013
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How does compare
• to the general population (especially those 65 and older)?
• to people with Alzheimer’s and other dementias?
• to caregivers for people with Alzheimer’s and
other dementias?
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? Who is
FY 2013 data
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Race/ethnicity
FY 2013 data
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Race/Ethnicity comparison Population aged 65+
U.S. Census Bureau data (2010) FY 2013 data
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Percentage of Americans with Alzheimer’s and other dementias
Facts & Figures, 2010
2.9 9.8
26.9
12.4
32.5
54.6
9.3
23.7
44.8
65-74 75-84 85+
White (Non-Hispanic) African-American Hispanic
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Gender comparison Population aged 65+
with Alzheimer’s
Facts & Figures 2013 FY 2013 data
Population aged 65+ with Alzheimer’s
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Education
FY 2013 data
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The next generation of TrialMatch will be:
• Smarter • Responsive & Engaging • Personalized • Diverse
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Person with the disease or caregiver or physician or healthy volunteer completes a disease-specific profile via phone or internet
or
1 Unique profile compared to structured match criteria 2
From unbiased match results, individual selects trial matches & cities; and with permission…
3 Alzheimer’s Association Contact Center specialists speak to every matched individual
4 5
Participant then calls trial site directly.
Profile Match Criteria
works How
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Person with the disease or caregiver or physician or healthy volunteer completes a disease-specific profile via phone or online
or
1 Unique profile compared to structured match criteria 2
From match results, selects trial matches and receives match info via TM online account
3 Every 2 weeks an automatic search for new trial matches sends an email alert if new matches found AND **New national trials will trigger automatic email alert to matched individuals
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Participant then calls trial site directly.
Profile Match Criteria
WILL WORK HOW
Traditional TM Service: Individual can request to speak to an Alzheimer’s Association Contact Center Specialist
18 alz.org
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