Barriers to care and needs of patients with COPD

BARRIERS TO CARE AND NEEDS OF PATIENTS WITH COPD

Bart Thoonen MD,PhDRadboud University Nijmegen

Dept of General PracticeOn behalf of WONCA

Who is in charge of your COPD?

• Caregivers are not the only ones responsible for treating your COPD.

• It is most important for you as a patiënt to learn how to slow down the progression of COPD yourself and how to deal with your COPD.

Needs of patients?

COPD is disabling disease

From ‘Confronting COPD’

www.astmafonds.nl

The role of health professionals

Green Lanier D, Dovey SMLA, Fryer GE Jr, Yawn BP, The ecology of medical care revisited.N Engl J Med. 2001 Jun 28;344(26):2021-5.

Who’s in charge of your COPD?

• Patient

• Physician

• Self management

• Shared responsabilities

Self management - definition

• Patients explicitly make informed decisions on how to deal with COPD

• Physician should challenge patient

• To become more independant

• To explore own possibilities and limitations

• To take control

Self management – what is needed

outcomesbehaviourSelf efficacy

Skills

Knowledge

Earlier experience

PracticeFeedback

Earlier experience

PracticeFeedback

Proper actions

Integration in daily life

Proper actions

Integration in daily life

Improve QOLReduce

complications

Improve QOLReduce

complications

Self-management

Knowledge and skills

• Patients need to know and accept they have COPD

• Ability to monitor disease

• Ability to take proper action

The role of primary care

• Early diagnosis

• Continuity of care

outcomesbehaviourSelf efficacy

Skills

Knowledge

Earlier experience

PracticeFeedback

Earlier experience

PracticeFeedback

Proper actions

Integration in daily life

Proper actions

Integration in daily life

Improve QOLReduce

complications

Improve QOLReduce

complications

Self-management

Who is in charge of your COPD?