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Bienvenido, WelcomeLatino Health Riverside
Research 101Center for Healthy Communities
&Office for Research Integrity
December 10, 2016
Why would your organization partner with researchers?Ninfa DelgadoRiverside Community Health FoundationJuliet McMullin, PhDCenter for Healthy Communities
Questions we can answer together:Identify research questions that matter to the community
Learn about community priorities, assets, needs, and capacity
Conduct research projects to address community priorities
Evaluate the impact of programs and interventions
Provide community-based research training for community, students, fellows, and other early career researchers
COMMUNITY-ENGAGED RESEARCH WITH COMMUNITY-BASED AGENCIES & ORGANIZATIONS: A RESOURCE MANUAL FOR RESEARCHERS – UCSF http://ctsi.ucsf.edu/ce
Research Process and Community EngagementAnn Cheney, PhDCenter for Healthy Communities
Collaborative Research and Joint Decision-making
Development of research designResearch questions, plan, methods
Implementationprogram delivery, data collection, data analysis
Disseminationpublications, presentations, reports, networking
What is the role of community and academics in this process?
Barbara, 2000; Nicolaidiset al., 2011
Others Forms of Community EngagementCommunity Review Board (CRB) participation
One-time meeting to obtain meaningful community input
Community Advisory Board (CAB) participation
Routine meetings throughout projectParticipant recruitment
During data collectionData collection and analysis
CRB: Research Development StageObtain meaningful community input on research design and implementation plans
Provides opportunity for community experts to review and provide immediate feedback on the research project prior to implementation
An Example: Engaging Vulnerable Latinos in Substance Use & HIV Research
How do we connect to this community?How can we approach the topic with community members?
Sensitive topics, gender?What kind of methods should we use? Focus groups, one-on-one interviews?How much should we remunerate participants?
CommunityAdvisoryBoard (CAB)CAB Members
Represent key stakeholder groupsGuide ProjectProvide key input
Community and campus stakeholdersCommunity members and students in recovery, students, directors of substance use and student health programs, and researcher
Work to increase awareness of students in recovery
one way is through community-engaged researchPhotoVoice Project
UCR Collegiate Recovery Advisory Board
Participant Recruitment
Addressing Mental Health among Rural African Americans in Arkansas’ Mississippi Delta
Tri County Rural Health Network
Community ConnectorsLived in the communities“insider” understanding of the communityTrusted community leadersRecruited participants through their social networks
Data CollectionWhat did they do?Selected community leaders who:
Participated in deliberative methods training programCo-facilitated framing sessionsFacilitated community forumsWrote forum report
Latino Health Riverside Facilitators
Types of Research and Research DesignDario Kuzmanovic, MHScDirector, Research Integrity
Comparative Effectiveness ResearchGreer Sullivan, MD, MSPHDirector, Center for Healthy Communities
What is “Effectiveness?”
Definition: Producing a definite, decisive, or desired effect in a “real world” setting
To show effectiveness you must have A specified, clearly defined intervention or treatment Careful measurement of appropriate outcomes
• A treatment (medication, psychotherapy, diabetes management program, etc.) is tested in a “real world” setting, using
• Randomized controlled trial (RCTs) with specific outcome measures.
• After many trials, evidence begins to accumulate for or against effectiveness.
• When preponderance of evidence shows effectiveness, the treatment becomes an evidence-based practice.
What is “Effectivness Research?”
What is Comparative Effectiveness Research?
Research that compares two or more treatments or interventions known to be effective (that is, evidence-based practices)
Comparisons often include many different kinds of measures: clinical outcomes, acceptability, feasibility, cost
Questions to ask when partnering with researchers
Irene Martinez, Executive DirectorFiesta Educativa, Inc.Christina Reaves, MPHDeputy Director Center for Healthy Communities
Questions CBOs may ask researchers
How will the research benefit our agency and community? Is your idea already funded? If not, how long will it take to secure funds?Have you collaborated with CBOs before?What resources will support our participation?
Questions CBOs may ask researchers
Are there funds to support sustainability?How will we share in recognition from the research findings?How will we handle any impact the results have on our community (or clients we serve)?What rights will we have in case there are disputes about the use of the results?
Questions researchers and funders may ask CBOs
CBO letter of support for the proposal
Often drafted by research teamNot a formal commitment Names grant, researcher & funderDescribes CBO & role on grantEndorses the intent of the proposal
Questions researchers and funders may ask CBOs
Memorandum of understanding between CBO and university
Describes proposed project – specifically timelines and deliverablesIdentifies responsibilities of the CBO and universityBoth CBO and university signs
Questions researchers and funders may ask CBOs
Sub contract
Scope of workTimeline for deliverablesBudget – personnel, equipment, overhead, etc
Process for CBO to invoice university
Prior to executing sub contract, university may ask for:
Registration, incorporation (non-profit status)Organizational bylawsList of individuals authorized to sign Audited or prepared financial statement for past 3 yearsCurrent fiscal year budgetOrganizational chart; mission statement; Board of Directors
Questions CBOs may ask themselves
Is the Board of Directors supportive of this project?
How will the project impact our other work?
Do we have the infrastructure to manage a sub contract?
Reporting, invoicing, providing back up
Gracias, Thank you
¡Felices Fiestas!Happy Holidays!
From the staff & faculty at the Center for Healthy Communities
and Office of Research Integrity
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