Caring for pwd

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Caring for Person with dementiaAmrita Patil -Pimpale

Trainer ,EHA ; Researcher Univ of Northampton UK

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Introduction :

Echoing Healthy Ageing (EHA) We are a social enterprise

providing consultation, education, home care support

for people with dementia and their Families.

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Dementia A term that doctor uses when someone has number of

problems with thinking and remembering. Problems interfere with person’s ability to do things

that they used to be able to manage.

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What is happening The brain is made up of billions of nerve cells.

Nerve cells are specially designed for their function. They are elongated with many tentacle-like projections called dendrites that make connections with the

cells around them.

Dementia is caused by loss of nerve cells in the brain.

Dementia Symptoms

Dementia Symptoms

Dementia Symptoms

Dementia Symptoms

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Old memories and New memories

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Practical Difficulties

•Reading /Writing •Preparing food •Driving or travelling alone•Getting dressed •Handling money

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Diagnosis of Dementia Complicated to get an accurate picture of what is occurring within the brain. Today dementia is diagnosed by: ‘Mini Mental State Exam’(MMSE) A cognitive

assessment tool which establishes mental impairment. A physical examination. This can affect when and what treatment is provided. Brain scans including MRI can detect signs of dementia in the brain.

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What do you think ?

person with DEMENTIA

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PERSON with dementia

Person’s brain is still there

Elizabeth Milwain - elizabeth@brainscapes.co.uk

Tom KitwoodA Person-Centred Understanding

D = N + P + B + H + SPPERSON with dementia, not

person with DEMENTIA

Neurological – nature of the underlying cause Personality – how we are, how we cope Biography – we are all shaped by our past Health – impact of other conditions Social Psychology – other people: help or hindrance?

What is the difference between a person with dementia and ourselves?

Think about cognitive function

Different Think about emotional function

Think about physical needs

Think about social needs

Think about psychological need

All the Same

What Do You Think ?

Psychological Needs by Kitwood(1997)

Adaptation is the key

‘Normal life’

• Information• Thinking• Goals• Complex• Fast• Remembered• Variety

‘Life in the moment’

• Emotion• Sensing• Experiences• Simple• Slow• Enjoyed• Consistency

Why do people turn away?

Feeling inadequate Can’t fix it

Frightening & upsetting

Might do ‘The Wrong

Thing’

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Recognition The person is acknowledged, called by name, eye contact or touch.

Negotiation The person is consulted about their preferences, being offered choice makes you feel you can still have an impact on the way things turn out. As human being we hate no being able to choose.

Collaboration Working with the person, not doing things to them. This is about sharing your power. Helping someone to get dressed is assisting them with the bits they find difficult, not taking over.

Play Having fun, enjoying yourself with the person with dementia/depression. If you are having a good time they probably will too

Celebration When the person achieves something celebrate with them.

Validation Acknowledging person’s emotion, taking it seriously and responding to it.

Facilitation Assisting a person to achieve something they would not normally do alone.

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Meaningful Activities and Therapies Alternate therapies

Music Gardening

Occupational Pet therapies Reminiscence

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Reminiscence Meaningful pictures The reminiscence bump Getting the conversation started -sight :family photographs -sound -touch -smell -taste

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Carer’s Role : Reality You feel you can help A sense of guilt for not helping your loved

one to maintain their quality of life Sense of increasing isolation and

commitment : More you do the more you are needed .

Caring can be hard, but it can also be rewarding.

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Answer these….

1.Am I receiving or likely to receive enough support from others in my own

life to help me be an effective carer?

2.Am I able to give the necessary time to help and support my loved one

experiencing dementia ?

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Your Well Being

YES. All well and Good.

NO. How can you get support and arrange

you time?

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Your Well Being

Making choices : Time. How much/Type?

Help from family members

Carers support groups

Find time for yourself

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Your Well Being

To be effective carer the first person you need to

look after yourself is ‘YOU’.

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Your Well Being

Look after yourself

Sleep

I am special

Positive thoughts

Meditation

Relaxation

Time for me

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Attitude

‘’This is what I have to do’’

‘’I am doing, what I am doing, because this is

what I want to do.’’

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Questions ?

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Email : amrita.p@echoinghealthyageing.com Phone : 91 58 65 66 65

Website : www.echoinghealthyageing.com/

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