Daniels Journey So Far

Daniel’s journey(so far!)

Viv Cooper The Challenging Behaviour Foundation

To cover..

Our familyDaniel’s pathwayRight support, right place, right time

What do we want for Daniel?

An interesting, happy life

Range of experiences

Fulfilling potential

Remember…….“People whose behaviour challenges have the same needs as everyone else, in addition to special needs for help to overcome the problems their behaviour presents. They do not surrender their needs for personal relationships, for growth and development or for anything else because their behaviour presents a challenge to services. They have the same human rights as everyone else.” Mansell 2, 2007

Early days…DiagnosisInformationBehavioursSchool & respite

Looking back – what was needed?

Access to local expertiseInformation and trainingA holistic approachPartnership workingLong term planning

Looking back – what happened?52 week school

275 miles from home

High cost

Planning - what next?

What do families want?Information

Good support

To be valued as partners

Their experiences…a lack of local expertise & capability in

understanding & responding to challenging behaviour

difficulty accessing services unless in crisisa lack of support and traininga lack of information to plan realistically, and

hopefully, for the future;not being included as essential partners Scoping report: McGill Cooper & Honeyman (2010)

Institutional care- policy & practiceGovernment policy:

Individualised and person centred

Local Outcome focused Value for money

Not institutional Community based Open

Winterbourne View:

× Not individualised or person centred

× Out of area× No outcomes× Generating profits for

private company shareholders (ave. fee £3500 per week)

× Institutional× Industrial estate× Closed

What works?A person centred approachWorking in partnershipStaff with knowledge and skillGood management & planningA focus on outcomes for the individual

“.. A successful service looks like an ordinary home or occupation, when…it is a carefully designed & organised service dependent on a great deal of skill & management.”

Mansell (2007)

Rents a bungalow (tenant)Staff support teamInteresting and active life!Close to familyExploring employment

opportunitiesCircle of support

Daniel now…

ActionsStop putting people in the wrong

types of serviceInvest in the development of quality

local support around the personSort out the fundingOnly register appropriate servicesStrengthen safeguarding

Quality monitoring…..“I want support providers to ask themselves:

‘would you like to live your life like this? Would this be good enough for you? For your son, daughter or relative?’ If the answer is no, then you need to change what you are you are doing.”

Parent

“Don’t keep asking me what my views are, or consulting me about this, that or the other or the latest new idea. All I want for my son is that he has a good quality of life, with good quality support and good quality services.”

Parent

“Quality means doing it right when no-one is looking.” Henry Ford

ContactThe Challenging Behaviour Foundation,

C/o The Old CourthouseNew Road Avenue

ChathamKent

info@thecbf.org.uk www.challengingbehaviour.org.uk

01634 838739info@thecbf.org.uk