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Summer 2017
GATEWAY
CONNECTION
CALENDAR OF UPCOMING EVENTS
September 16, 23, 30 Inspiring Shots Adult Golf Clinic, Quail Creek 25 Tee Off for Hemophilia The Legends-Eureka, MO
October 1 Membership Meeting and Cardinals Baseball game
November 4 Trivia Night The Pavilion at Lemay
December 17 GHA Holiday Party Magic House
May 5 Hemophilia Walk Forest Park
Like us on Follow us on @GatewayHemo
WWW.GATEWAYHEMOPHILA.ORG
GHA’s 27th Annual Tee off 4 Hemophilia
Golf Tournament is coming soon!
When: September 25, 2017 Where: The Legends Country Club 625 Legends Parkway, Eureka, MO 63025
REGISTRATION DEADLINE IS SEPTEMBER 11! Join us at The Legends Country Club, a Robert Trent Jones, Sr. designed course, for our 27th Annual Tee off 4 Hemophilia Golf Tournament! This charity event provides crucial funding necessary to support GHA’s overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. In addition to a wonderful day of golf at a premier facility, we invite you to participate in our special contests, raffles, and both our silent and live auctions that will take place the day of the tournament. This year’s hole-in-one contest is sponsored by Mercedes-Benz of St. Louis and lunch will be provided by Pappy’s Smokehouse.
For more information and to register for this event, please visit www.gatewayhemophilia.org/events/tee-off-4-hemophilia/
Gateway Connection
is published by
Gateway Hemophilia Association
4976 Eichelberger St. St. Louis, MO 63109
314-482-5973 gatewayhemophilia.org
Email us at info@gatewayhemophilia.org
BOARD OF DIRECTORS
President Anne Parrott
Vice President Chris Schneider
Treasurer James Addie
Secretary Stephanie Bauman
John Carney Jim Causey
Tremika Conway Liz LaFlamme
Kari Moellenhoff Maria Mohler Scott Putnam Steven Staats
INDUSTRY ADVISORY
CHAIRS John Carleton Jessica Hurtig
EXECUTIVE DIRECTOR
Bridget Tyrey
COMMUNICATIONS AND PROGRAM MANAGER
Jennifer McNamee
2 GATEWAY CONNECTIONS SUMMER 2017
2017 Youth Golf Program
GHA’s free summer youth golf program, sponsored by CSL Behring, kicked off on May 25, 2017 with a BBQ and presentation by golf pro Perry Parker at Quail Creek Golf Club. Following dinner, the kids practiced their swing with the help of Perry and
program leader Luis Aguayo. As a “Green Light” sport, golf is one of the National Hemophilia Foundation’s approved sports for children with bleeding disorders.
The youth golf program continued twice a week for 4 weeks at Quail Creek Golf Club and featured lessons on putting, chipping, driving, and body alignment.
Participants in GHA’s 2017 youth golf program were also eligible to apply to CSL Behring’s Gettin’ in the Game Junior National Championship, taking place in Phoenix, AZ from November 3-5, 2017. This event includes educational sessions for parents and caregivers, clinics for kids, and a chance for kids to compete against their peers from around the country.
Special thanks to CSL Behring, Quail Creek Golf Club, Perry Parker, and youth golf leaders Luis Aguayo and Brent Miller.
Youth golfers showing their strength with
Luis Aguayo, Perry Parker, and GHA
Executive Director Bridget Tyrey
4 GATEWAY CONNECTIONS SUMMER 2017 SUMMER 2017 GATEWAY CONNECTIONS 3
4 GATEWAY CONNECTIONS SUMMER 2017
SUMMER 2017 GATEWAY CONNECTIONS 5
The U.S. Food and Drug Administration (FDA) has approved expanded labeling for Epclusa®, a combination therapy for adults with chronic hepatitis C viral (HCV) infection. Manufactured by Gilead Sciences, Inc., Epclusa® encompasses two HCV therapies (Sofosbuvir/Velpatasvir) in a fixed-dose, orally administered tablet. The therapy first received FDA approval in June 2016 with an indication for all six major genotypes of the virus in patients with chronic HCV, both with and without cirrhosis. The expanded labeling will now also include patients co-infected with HIV.
The expanded FDA approval was based on data from the phase 3 AS-TRAL-5 study designed to evaluate 12 weeks of treatment with Epclusa® in 106 subjects with genotype 1-4 HCV infection who were co-infected with HIV and on stable antiretroviral therapy. The data showed that 95% of these patients (101/106) reached a sustained virological response by exhibiting undetectable hepatitis viral loads 12 weeks after completing therapy.
“HCV co-infection remains a major cause of morbidity in HIV-infected individuals. With this expanded use, Epclusa provides co-infected patients with a much needed one-pill-a-day regimen that works across all HCV genotypes and is compatible with widely-used antiretroviral regimens,” said David Wyles, MD, Chief, Division of Infectious Disease, Denver Health Medical Center; Associate Professor of Medicine, University of Colorado School of Medicine. “With Epclusa, physicians have an important new treatment option for their HCV/HIV co-infected patients.”
The updated label for Epclusa® also includes an FDA-imposed “boxed warning” specific to the risk of hepatitis B viral (HBV) reactivation in patients who had been co-infected with HCV/HBV. The warning advises that all patients with evidence of current or prior HBV infection should be screened prior to initiating treatment with Epclusa®.
The boxed warning coincided with an FDA safety announcement issued in October 2016 about the risk of HBV becoming an active infection again in any patient who has a current or previous infection with HBV and is treated with certain direct-acting antiviral (DAA) medicines (including Epclusa®) for HCV. The impetus for the warning were a handful of cases of HBV reactivation in patients treated with DAA drugs, resulting in serious liver problems or death.
The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council has also issued a pair of recommendations relevant to HCV treatment and screening. Access these documents on the NHF website:
MASAC Recommendations on Treatment of Hepatitis C in Individuals with Hemophilia and Other Bleeding Disorders
MASAC Recommendations on Screening for Development of Hepatocellular Cancer in Patients with Hepatitis C
Source: Gilead press release dated August 1, 2017
FDA Expands Labeling for Epclusa® to Include Co-Infected Patients with HCV/HIV and Warning for HBV Reactivation
For more info contact:
Bridget Tyrey: info@gatewayhemophilia.org or
314-482-5973
Mandatory Pre-hike meeting September 9, 2017 at 3:00pm after the GHA BBQ
6 GATEWAY CONNECTIONS SUMMER 2017
2017 TRIVIA NIGHT
FUNDRAISER
When: November 4, 2017
Where: The Pavilion at Lemay
305 Gregg Rd
St. Louis, MO 63125
Time: 6:00 p.m. - Doors open
7:00 p.m. - Questions begin
Cost: $200 per table of 8
Reserve your table now at www.gatewayhemophilia.org
SUMMER 2017 GATEWAY CONNECTIONS 7
GHA HAS JOINED THE ESCRIP
PROGRAM AT SCHNUCKS!
GHA gets $$ every time you shop!
There’s no cost to you!
1. Pick up a free Escrip card at your local Schnucks
2. Visit escrip.com to enroll
3. Give the cashier your Escrip card at checkout
IT’S THAT EASY!!
The National Hemophilia Foundation and Hemophilia Federation of America have partnered with the National AIDS Memorial Grove to provide the hemophilia community with the first permanent memorial honoring the tragedy of HIV/AIDS in the hemophilia community. This memorial will give family members a place to remember their loved ones and will educate visitors from around the world about the devastation caused by HIV/AIDS to the hemophilia community.
http://www.aidsmemorial.org/news/hemophilia/
8 GATEWAY CONNECTIONS SUMMER 2017
SUMMER 2017 GATEWAY CONNECTIONS 9
10 GATEWAY CONNECTIONS SUMMER 2017
_ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 11
GHA’s 21st Annual Family Education Weekend was held July 21-23, 2017 at the DoubleTree Chesterfield Hotel in Chesterfield, Missouri. Our largest FEW to date brought together 67 affected families, 46 industry members, and numerous volunteers and speakers, totaling 270 individuals who came together for a weekend of education, community, and fun.
Friday began with FEW’s first Advocacy Pre-Con, where GHA ambassadors sat down with GHA’s Executive Director, Joy Krieger, Executive Director of the Asthma & Allergy Foundation of America, and Deema Tarazi of the Hemophilia Federation of America to discuss legislation currently affecting the bleeding disorders community and ways to advocate for our community with legislators at a state and federal level. The advocacy pre-con was sponsored by CSL Behring.
That evening, attendees were welcomed by Bridget Tyrey and the GHA Board of Directors to the “Meet Your Board” and Major Donor Recognition Reception. At the reception, major donors from 2016 were recognized for their support and families explored the industry exhibit hall while enjoying drinks and appetizers. Thank you again to our 2016 Major Donors: Kitty Bauer, Jake & Stephanie Bauman, John & Suzanne Carney, Tony & Danielle Flores, Tom Guignon, Michael & Kristina Klein, Kory Kleppe, Paula Kurlowski, Andrea Metcalf, Brent Miller, William & Marian Miller, Michelle Parmentier, Dirk & Trudy Stringer, Chase Park Plaza, Colburn-Keenan Foundation, Grandma’s Cookies, JB Marine Services, Inc., Kohl’s, Midland Optical, MIDSCI, Scottrade, Smith Law Offices, LLC, Swink, Fiehler, & Co., Technicote Inc., and Winter Technologies.
Saturday morning began with a new presentation, “Products & Services on the Market”, given by representatives from 8 manufacturer companies, and moderated by Dr. Elaine Majerus. There were 35 breakout sessions throughout the weekend. Thank you to the following speakers/facilitators, who shared their expertise in a range of subjects with our members: Bill Berger, MS, MSW, Willow Beseda, Dr. Morey Blinder, John Carney, Dave Decker, Ivan Giron, Joy B. Krieger, Dr. Vanessa Lanier, Dr. Elaine Majerus, Cazandra Campos-McDonald, Anne Parrott, Abigail Plumley, RN, Dr. John Puetz,
21st Annual Family Education Weekend – “Bleeding Disorders in Our World” Roy Pura, Dawn Rotellini, Bob Sander, Darlene Shelton, Trudy Stringer, Deema Tarazi, Mary Kay Thrower, BS, RN, Bridget Tyrey, Carl Weixler, and Dr. Michael Zolotnisky.
At several times throughout the day, community members could also visit our Infusion Suite to learn about self-infusion from one of the wonderful infusion nurses who volunteered their time and expertise at FEW. Thank you to nurses Peggy Devoy, RN, BSN, CRNI, Lydia Johnson, RN, BSN, Kathy Logan, RN, BSN, CRNI, Sue Pardeshi, RN, BSN, and Becky Toman, RN, BSN, CRNI.
While the adults were busy enjoying the breakout sessions, the kids and teens had their own programs to participate in. Children age 12 and under enjoyed a fun-filled weekend full of activities tied in with our theme of “Bleeding Disorders in Our World.” For a full day on Saturday and the morning on Sunday, kids were treated to a variety of adventures “around the world” created by GHA board member, Darlene Shelton. This was supported by a team of volunteers: Danny Shelton, James & Sandy Addie, Pam Carleton, Judy Bagato, Rylie, Brett, & Alyssa Frizzell, Selena Flannigan, Tesa Martin, Travis Probst, Hanna Smith, Celina, Kari Moellenhoff, Kim Pustinger, and educators from The Humane Society of Missouri. Thank you to every one of these amazing volunteers.
GHA Advocacy Ambassadors
Kids learning in the Infusion Suite
Daycare Activities
cont’d on p12
12 GATEWAY CONNECTIONS SUMMER 2017
My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer free genotyping so that participants may gain a deeper understanding of their hemophilia today, while helping to advance the breakthrough treatments of tomorrow.
Testing for MLOF will be ending December 31, 2017. Contact an HTC to schedule your genetic screening before the deadline. The focus of the program is now shifting, as planned, to the utilization of the MLOF Research Repository. The MLOF Research Repository is now ready to support research and analysis to benefit the care of people with hemophilia, including carriers/women with factor deficiencies.
The teens participated in the “Teen Track” led by Dan and Kristin Shelton. The teens’ breakout sessions included Advocacy in the Streets and Kinesio Taping, followed by a scavenger hunt at the Taubman Prestige Outlet Mall, swimming, and a Teen Lounge.
Thank you to the following volunteers for making the “Teen Track” a success: Dan and Kristin Shelton, Deema Tarazi, Josh Swanson, Tony Flores, Danielle Flores, Scott Putnam, and Steve and Jennifer Staats.
That evening, everyone gathered for the Awards dinner where we recognized some of the amazing people who have given so much to forward the mission of GHA. Angela Brown was awarded the “Daniel V. Tyrey Volunteer of the Year” award, in recognition of all she has done and continues to do for the bleeding disorders community, including the time, thought, and care she puts into Camp Notaclotamongus. GHA also recognized Trudy Stringer, whose tireless work in advocacy has advanced the causes of the
Teen Breakout Session
Volunteer of the Year Angela Brown
21st Annual Family Education Weekend “Bleeding Disorders in Our World” bleeding disorders community for decades. Finally, the community recognized our 2017 Scholarship recipients, Joe W., Rieley S., Joe G., Jordan S., and Ariel M. After dinner, attendees were treated to dessert and a movie at the pool.
Sunday morning began with a Remembrance Ceremony and continued with final breakouts for adults and teens.
Thank you to all of the volunteers whose hard work made this event a success, including Stephanie Bauman, Liz LaFlamme, and Trudy Stringer.
Thank you to our exhibitors: Accredo HHS, Accurate Rx Pharmacy, Aptevo Therapeutics, ARJ Infusion Services, ASAP Pharmacy, Bayer, Bioverativ, Cotrill’s Pharmacy, CSL Behring, CVS Specialty, Diplomat, Genentech, Grifols, Hemophilia Federation of America, Heritage Biologics, Inc., Matrix Health Group, NCHS, Novo Nordisk, Octapharma, Pfizer Pharmaceuticals, Shire, St. Louis HTCs, Superior Biologics, and Washington University.
Thank you to our Session Sponsors: CSL Behring, National Hemophilia Foundation, Washington University, Cardinal Glennon, Novo Nordisk, Shire, and Bayer.
Thank you to the following sponsors: Aptevo-Packet Sponsor, ARJ Infusion Services-Saturday Break & Teen Lounge, Cotrill’s Pharmacy-Saturday Beverage Station, Octapharma-Friday Reception, CSL Behring-Advocacy Pre-Con, and Bayer-Sunday Breakfast.
Thank you to our FEW planning committee: Andrea Metcalf, Darlene Shelton, Lydia Johnson, and Bill Berger.
SUMMER 2017 GATEWAY CONNECTIONS 13
Choosing the Factor Replacement that is Right for You - by Morey Blinder, MD
Making choices is something we do every day. Supermarket
shelves are stocked with similar products. Ice cream parlors
offer dozens of flavors. Retirement funds provide a menu of
options to invest money. It is not surprising that we may reach
a point of choice overload in which whatever choice we make,
we worry that another choice would have been better.
Making decisions about our health can be even more difficult.
The information needed to make better choices is often
lacking or of poor quality so we depend on others to help us
with these decisions. While it is critically important to have
guidance and support in medical decision making, it is also
important for individuals and their families to have an
understanding about treatments that affect them. Rarely in
medicine do we find disorders with more treatment options
than in hemophilia and von Willebrand disease. Currently, 15
factor VIII replacement products are available for hemophilia
A, 10 factor IX replacement products are available for
hemophilia B and at least 5 products exist for von Willebrand
disease. What follows is a guide to highlight the choices for
bleeding disorder patients to help make the best decisions on
your factor replacement.
Source material
An important distinction to be aware of is to know the source
material used to make the factor replacement products.
Plasma-derived products, available for more than 40 years, are
pooled and processed from donated plasma. While the
earliest products were often the source of viral infections such
as HIV and hepatitis, advances in science since 1987 have
allowed for the development of methods to insure that these
infections are no longer transmitted. Recombinant products,
first available in 1992, are produced in cultured cells that have
had the human gene for factor VIII, factor IX or von Willebrand
factor inserted to make the product. Notably, both plasma-
derived and recombinant products are treated to remove any
contaminants and sources of infection.
Product Characteristics
Other features that vary among the replacement products
are the “shelf life” (storage time prior to reconstitution), the
product stability after reconstitution called the “half life” and
the presence or absence of additional proteins to stabilize the
product known as the “generation.” It is unlikely that any of
these characteristics become a deciding factor in product
choice but they may be important under certain
circumstances. For example, a product that is infused
infrequently may “expire” on your shelf before it is used and
so having products that have the longest shelf life might be
best. Lastly, products are available in a variety of vial sizes and
this may be important in some situations to achieve the most
precise target dose.
Effect of Products on Inhibitor formation
One of the most important considerations is understand the
risks of inhibitor formation. While several factors seem to
play a role in the development of inhibitors, including the
number of treatments received as well as the specific genetic
mutation that is identified, the type of factor that is infused
may also contribute to the risk. Most notably, the SIPPET
study published in 2016, suggested that inhibitors were less
likely to form in patients receiving plasma-derived compared
to recombinant products.
Extended Half life Products
Over the last 3 years, another important development is the
use of extended half- life of products for both hemophilia A
and B. These products are all recombinant and offer the
potential of fewer infusions to maintain safe levels of factor
replacement. While these products offer modest
improvements in hemophilia A, they are particularly helpful
for hemophilia B patients, decreasing the number of infusions
needed over time to maintain good prophylaxis.
Summary
Choosing wisely involves identifying your needs and
preferences and working with your providers to optimize
treatment decisions with the currently available products
while keeping informed on the future developments.
Dr. Blinder reports no relevant financial conflicts of interest
14 GATEWAY CONNECTIONS SUMMER 2017
SUMMER 2017 GATEWAY CONNECTIONS 15
Insights from NHF’s 69th Annual Meeting - by Bridget Tyrey, GHA Executive Director
NHF’s 69th Annual Meeting was held in Chicago, IL
August 24-26, 2017. This was an amazing opportunity to learn about the latest innovations and products in the bleeding disorders community along with approximately 3,000 people from all over the country. Community members took advantage of opportunities to meet new friends and catch up with old, as well as choose from a selection of 9 different tracks consisting of three days full of educational sessions, networking opportunities, and access to the exhibit hall. At Opening Session, Val Bias, NHF CEO stated,
I asked a GHA member who attended NHF, what their biggest take away was from the Annual Meeting. Tyler K. said,
“NHF 2017 was my first conference, as well as the first time ever visiting Chicago. NHF was a fantastic way to network and be able to see all of the available resources for people with bleeding disorders, from ultrasounds to gene therapy. There is truly something to be learned for everyone. I could not believe the amount of people that are affected by bleeding disorders all in one place. The opening session really helped bring it together to make everyone feel like there was always an "us" instead of me or I.
I have taken away many things from my first NHF.
1. Medic alerts are very important! I only used to wear mine for long trips or vacations; I am now looking into ordering one to wear all the time.
2. Another thing I learned is just because your joints aren't bothering you doesn't mean you may not have a bleed. Micro bleeds are very common and can wreak havoc on joints.
3. I also spoke with a representative of the factor I take and found out more options for their dosage which included different vial sizes.
4. One of the most important things I’ve learned is to be an advocate for yourself and the community. Know your options for treatment and explore and research for yourself and discuss these other alternatives with your doctor. I used to always just rely on my doctor for information and after attending NHF I feel more informed than ever. At the end of the day it is your health that you must protect.
I hope I will be able to attend many more NHF’s in the future to keep learning and networking with those in the community.”
This year eight families received scholarships to attend NHF within the GHA community. When I asked Lori M. why she would recommend that families attend NHF, she stated, “We would recommend NHF for the fun, fellowship and some of the BEST classes we have attended. We met new families that are in the same boat as our family. We received some new tips on how to deal with bleeding disorders. We learned how big of an organization NHF is, that they REALLY do care about each one of us.”
“We are more than our bleeding disorders. We are people who work, go to school, play sports, have kids. We are people first. We are lucky to have access to so many nurses and doctors, PTs and social workers, who don’t view us as a collection of symptoms. They see us as people. Our commitment to access to care is not just about public policy, and it’s not just about research. It’s about investing in people who care for us.”
From L to R: John B. Cunningham, Executive Director of the National AIDS Memorial Grove, Val D. Bias, NHF CEO, Jeanne White-Ginder, mother of Ryan White, and Kimberly Haugstad, President and CEO of HFA
16 GATEWAY CONNECTIONS SUMMER 2017
Austin H. was asked what he learned from the meeting. He stated, “The cure for hemophilia talk to the stigma of AIDS is such a variety of topics. My most memorable part of NHF was learning about the people and their families that went through the AIDS epidemic, which showed that we can't forget the ones we lost. Some of the stories shared were very memorable and we can learn from them. It was beneficial and very interesting learning about gene therapy and the cure for hemophilia. I believe our technology is advancing and I will definitely keep an eye out for the new advancements.”
Insights from NHF’s 69th Annual Meeting (cont’d)
I attended NHF this year as the Co-Chair, which was an honor to meet so many wonderful individuals working to better the world of bleeding disorders. This community continues to inspire me. It was a pleasure on behalf of GHA’s Board of Directors to accept the NHF Partnership Chapter of Excellence Award. GHA scored in the top 15% of all chapters reviewed in this category. For this award, we received a travel scholarship to the 2018 NHF annual meeting in Orlando, FL. Included in the scholarship is registration fee for one person, airfare for one, and 3-night hotel stay. Stay tuned for more scholarships to NHF’s 2018 annual meeting in Orlando, FL. AIDS Panel at NHF
__ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 17
__ GATEWAY CONNECTIONS SPRING 2017 18 GATEWAY CONNECTIONS SUMMER 2017
On August 17, 2017, over 160 wine lovers gathered at Farotto’s Pasta & Pizzaria in Rock Hill to raise money for GHA’s Matthew Wilson Memorial Scholarship Fund. Event-goers were treated to beautiful weather, a selection of wines donated by PRP Wine International and Bommarito Wines, delicious hors d’oeuvres from Farotto’s, a silent auction, and live music. For an additional donation, attendees could partake in a special cigar and liquor tasting.
Thanks to the generosity of our donors and sponsors, GHA will be able to award $9,000 in scholarships to college students with bleeding disorders for the 2018-2019 school year.
Wine Tasting Funds Another Year of Scholarships!
THANK YOU TO OUR SPONSORS!
Bachelors of Science Bayer
Novo Nordisk
Associate Degree ARJ Infusion Services
CSL Behring CVS Specialty
Midwest Valet Parking Shire
Washington University Center for Bleeding and Clotting Disorders
THANK YOU TO OUR VOLUNTEERS!
James & Sandy Addie Silvia Albanez Judy Bagato
John & Pam Carleton Danielle Flores
Barb Love Kari Moellenhoff
Anne Parrott Chris Schneider
Dirk & Trudy Stringer Tiffany Wofford
__ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 19
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2017 with
general donations, Honorariums, and Memorials.
$7,000 - $9,999
CSL Behring
$4,000 - $6,999
Aptevo
Bayer
Bioverativ
Pfizer
Shire
$1,000 - $3,999
Accredo
AccurateRx
BriovaRx Infusion
Cottrill’s
CVS Specialty
Grifols
Novo Nordisk
Option Care
Redchip of Nevada
$500 - $999
BioEthics Advantage
Grandma’s Cookies
JB Marine Services, Inc.
Kohl’s
Larson Exteriors of Missouri
Queen of All Saints
$100 - $499
Affordable Auto Credit
Marnie Agne
Arthur J. Gallagher
Foundation
Athletico Physical Therapy
Judy Bagato
Roger Barrow
Diana Baum
Kristen Bernreuter
Lisa Beven
Terry Bieller
John & Pam Carleton
Robert Carpetis
Allen Clark
Andy Copeland
Chase Cornett
Dairy Queen
Todd Daube
Liam Decker
The Deere Family
Nancy Desoge
Lana Diggs
Kevin Ellebrecht
Carrie Ellis
Robert Eschbacher
Janice Evans
Lynda Evers
The Filyaw Family
Anthony & Danielle Flores
Diane Gonzales
Edward Gross
Lee Gute
Patrick Gute
Erica & Liam Gutelius
Kathleen Hargrave
Christine Heneger
Emily Hentschel
Bruce Hilmes
Donna Hilmes
Timothy, Sheila, Landon &
Chloe Hoelscher
Dan & Linda Hoffman
Michelle Hoffman
Hot Shots-Arnold
John & Caroline Huff
Donald Johannes
Linda Johnson
Bob & Genise Kiehl
Betty Jane Klein
Kristina & Michael Klein
Joyce LePage
April Littrell
Alan Love
Tabby , Rick, Jesse Mayhan
Mary McCoy
Jim & Patty Meile
Patricia Miers
Tim & Debbie Milhauser
Jennifer Miller
Veronica Miller
Lynn Nestor
Promotions Pronto
Angie Psihramis
John & Rita Ruckman
Lisa Sakuvich
The Stewart Family
Marykay Thrower
Cindy Tinsley
Mya Tyler
Suzanne Weiss
James Wilson
$50 - $99
Debbie Adamkin
Tom & Tia Aguilera
Ashley Arnold
Kari Atkinson
The Bernard Family
Bioscrip
Theo & Robert Bockhorst
The Brennecke Family
Jay & Amanda Brueggeman
Audree & Dick Bueckman
Kristin Casey
Holly Clausing
Stacy Cleary
The Copilevitz Family
Silvi & Steve Cox
Gerald Cruz
Sarah Daley
J. Paul & Clare Deaton
Robert Degraffenreid
Kim Donnelly
Kory & Lori Drury
Mary Ellen & Jack Fox
Dee & Dale Gerstenkorn &
Family
Suzanne Gibson
Judy Gindling
The Harper Family
Erin Harris
Carla Herrington
Susan Hiatt
Margaret Hilmes
Vicky Howard
Sharon Hubbman
John & Donna Hunn
Mike Ift
Tim Jarvis
Charla Johannes
Amy Johnson
Kevin Johnson
Tom Joseph
Katy Keller
The Klein Family
Lindsay Kopp
Curt Lambdin
Cyndi Langen
Cinthia Larrew
Katie Lauman
Valerie Law
The Lawlor Family
Daniel Lawrence
Rachelle Mansholt
Tim & Deb McNamee
Lola McShane
20 GATEWAY CONNECTIONS SUMMER 2017
SUMMER 2017 GATEWAY CONNECTIONS 21
22 GATEWAY CONNECTIONS SUMMER 2017
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2017 with
general donations, Honorariums, and Memorials.
Kathryn Metcalf
Meredith Moore
Bill & Courtney Morillo
Meredith Moyer
Diane Nanney
Vicki Oberkrom
John Pearson
John & Candace Peterson
Karen Price
Colin Putnam
Chuck Reynolds
The Rhoads Family
Shirley Roesch
The Ruwe Family
Mike Schneider
Thelma Seebeck
Jeff Shrout
Janet Sims
Luke Smith
Thomas James
Colleen Underwood
Amanda Walker
Ashly Walls
Newt Webb
Alexander Welch
Edie Williamson
Chris Zittel
$1 - $49
Sue Agers
Amazon Smile
The Ambrose Family
Jennifer Anderson
Catherine Armbruster
The Barletta Family
Stephanie Becker
William Berger
Joe Berringer
Anne Bollinger
Billie Bradley
Kay Breitbarth
Meg Brown
James Brumfield
Chenoa C.
Carlo C.
Nikki Carman
Tina Charpentier
Manny Chavez
Tamara Christian
Mary Concannon
Christine Cook
Davis Corey
Leslie Cosmano
Kendra Cress
Jessica Crews
Allan & Sally Crowder
The Darr Family
Judith Davies
Janelle Davis
Katie Davis
Angela Dickens
Sarah Dobecki
Elizabeth Dougherty
Tracy Earll
Nathan Ellis
Kristi Elwood
Hillary & Josh Esser
Gino Fantozzi
Julie Fantozzi
Cianah Faust
Lana & Kent Fiedler
Christine Finck
Jen Forester
Ryan Frese
Erica Fridlin
Carrie Fussner
Jo Gaal
Elizabeth Gravitz
Roberta Greenwood
Carolyn Gross
Derek Hamilton
Melissa Harris
The Heaney Family
Nichole Herbert
Louise Higgins
Bailey Hilmes
Lauren Hilmes
Marla Hilmes
Natalie Hilmes
Kirstie Hilty
Natalie Hoernig
Kerri Holmes
Kathryn Hurd
Implen, Inc.
The Jaeger Family
Stephen Johannes
Rachel Kaminski
John Kennedy
Brittany Kerr
Andy Ketter
Kristie Klable
Kacie Kleissle
Cheryl Krystoff
Linda L.
Gary LaFlamme
Krista Larkins
Mimi Law
Brenda Liesen
Deanna Litzenburg
Makayla M.
Kathryn MacKay
The Madiger Family
Carly Magee
Charlotte Matthews
Kristin Mayer
Kyle Mayer
Lindsey Mayer
Dawn McAtee
Tina McCormack
Jennifer McNamee
Daniel McNeill
Paul Meisner
Mary Meyer
Nick & Nancy Milhauser
Scott Moellenhoff
Maria Mohler
Michael Montgomery
Wilnellys Moore
Mt. Vernon Spine & Disc
Center, LLC
Pat Nassif
Rachel Nave
Amanda Nehemias
Thomas Nestor
Marci Newsom
Christine Oak
Stacey Oakes
Angela O’Hanlon
Monica Ou
The Patton Family
Richard Pezzillo
Benjamin Proctor
Jessica Proctor
Keith Proctor
Kim Pustinger
Brianna Regan
The Reissing Family
Kathleen Rieken
The Riggs Family
Cindy Roland
Joan Roland
Rocio Rossi
Kim Sansegrew
Tina Saputo
Troy Scheske
Lisa Scholz
SUMMER 2017 GATEWAY CONNECTIONS 23
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2017 with
general donations, Honorariums, and Memorials.
Sue Schroeder
Nathan Schultz
Johnny Schuppe
Colleen Seematter
Sara Seematter
Ashleigh & Corbyn Settle
Jan & Les Shenberg
Cindy Shrout
Stephanie Siegmund
Kathy Smith
The Smith Family
The Snarey Family
Julie Snelson
Kara Spalding
Brandy Stafford
Trudy Stringer
Amanda Swann
Jeanine Talbot
Heather Tate
Brittany Taylor
Joe Tonnies
Megan Tooley
Bridget Tyrey
Jake Vontill
James Vyeda
Cynthia Wachtel
Becky Warner
Teresa Welch
Jim Werner
The White Family
Deseray Whitten
Tracy Whittingham
Tiffany Williams
Kate Yemm
Jess Yount
Shannon Yung
Kristian Zack
Luna Zhang
IN MEMORY OF
Donald Wentz
Joseph Dittmaier
Ruth Dohack
Gail Egbert
The Epling Family
Anna Herbst
Lester Koelling
The Kruep Family
Rita Mosblech
Theresa Stuart
The Sutherlin Family
4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org
Presort Standard US Postage
PAID St. Louis, MO
Permit No. 221
Email us at: info@gatewayhemophilia.org
Join us for GHA’s Fall Membership Meeting! GHA’s Fall Membership Meeting will be held on the parking lot outside Kilroy’s, 720 S. 7th
Street, St. Louis, MO 63102 on Sunday, October 1st. The event starts at 11:30 a.m. and includes an light breakfast, an update on GHA, education, and community. Immediately
following, attendees of the meeting will receive a complimentary ticket to the St. Louis Cardinals vs. the Milwaukee Brewers at Busch Stadium at 2:15pm.
RSVP by September 15th to 314-482-5973 or info@gatewayhemophilia.org
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