Internet and Social Media in Research- Tools and...

Internet and Social Media in Research-Tools and TipsChristina Baggott, RN, PhD, PNP-BC, CPON

Assistant Professor Department of Physiological NursingChristina.baggott@ucsf.edu

September 11, 2012

My program of research..

• Symptom assessment – Demographic– Clinical – Genotypic

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My program of research..

• Symptom management

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Topics Covered• Social media research resources• REDCap• Qualtrics• CHR

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http://www.ucsf.edu/about/social-media-overview

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http://www.ucsf.edu/about/social-media-overview

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UCSF Privacy Issues

http://cpbc.ucsf.edu/how_to_buy/when_hipaa_is_involved

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Privacy and Security

• http://its.ucsf.edu/EIS/Names/MinimumStandards.html

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Pew Internet & American Life Project

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http://www.pwc.com/us/en/health-industries/publications/health-care-social-media.jhtml

pwc Report

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pwc Report

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REDCap

• Sanctioned by CTSA• Not just for data collection any more…• Easy communication with outside collaborators• If aesthetics are important, consider Qualtrics• Import data• Create graphs• Monitor usage/modifications• Validate fields• Use branching/skip logic• Create paper trail, if desired• Connect to other applications with API

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Collaborate Worldwide

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Instrument Bank

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Export Data-One Click

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Export: De-Indentified

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Export: Statistical Packages

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Report Builder

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Schedule Study Visits

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Upcoming Features

• Randomizer• Matrix responses for Likert scales

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REDCap Training

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• Intermittent courses– Register in

“Learning Center”– Visit booth at

lunch today

Qualtrics

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View Responses

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Export Data

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CHR Issues with Technology Research• REDCap and Qualtrics preferred tools

– Security– Privacy– Other platforms may be approved, but may require

additional scrutiny• TIME

• Pre-Testing is essential– Considered similar to other pilot research

• Maybe exempt if meets criteria

– Create stand alone application• Can be cloned for future research

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Exempt Research

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