Networker - PiNSA

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April 2014
Networker
“2013 was a great year for us. The year was marked with events such as the ASID conference,
in membership. Membership numbers increased by 16 to 107! The year ended :Z/WKW/ /WK W/ ^ W/ /W/WWE^ / encouraging to see so many doctors ^ W / chance of proper diagnosis and treatment ^ t'D
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The Luciano Vassalli Award was
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The Bob LeBien Award was
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INTERNATIONAL NETWORK
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The doctor did not seem to think that these further tests or treatment. When she was / a second set of grommets and she came down t this stage. She had stopped gaining weight t defects as she has a heart murmur. She was /s/' , t
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Our stories
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, idea why it was happening. The reasons given were due to the fact that he was d dd
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,/ ^, , referred him to Dr Monika Esser. Ethan was diagnosed on 3 September 2012 with ,/^
Ethan’s storyEthan’s story
Our stories
By Chantelle Richards
& t to guide us in these important decisions.
issues that have come up due to the trauma
of repeated admissions and everything that captures the hearts of those around her!
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was wrong or why this was happening we t him on maintenance therapy, which a day. Since Ethan was diagnosed he has , diagnosed.
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Q: ‘Subcut’ of ‘SCIG’ has become W/ in South Africa. What are its advantages?
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Q: Are all Subcut/SCIG products registered and will medical aids pay for their use?
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Q: Why is the PID Register so important?
A: W/ W/ & / W/^ W/ ,/sd t It is obvious from the current data that the are not being diagnosed and do not access W
New treatment
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South Africa
Medical FAQs
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©PiNSA 2014
Indemnity /WE^ WE^ from treatment, or treatment that may be suggested or prescribed for a member or non member by any other WE^
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Contribute to PiNSA’s
Networker newsletter
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South Africa at first
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Immunodeficiencies planned for Durban
You are invited to the tW/t
With talks by Dr M. Esser (Chair of the PiNSA Medical Advisory Panel) and
Dr P. Sinclair (Paediatrician).
Drinks and snacks will be served.
t>sW, Conference Room, Alexandra Road,
Pinelands, Cape Town

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