Support Meeting & phone support - MSA€¦ · Web viewThe MSA Coalition highlights the month...

In Person Support Meetings USA and Canada

THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION, INC.

9935-D Rea Road #212, Charlotte, NC 28277 USAwww.MultipleSystemAtrophy.org

Toll free: 1-866-737-4999 or 1-866-737-5999Contact Us or Find us on Facebook

DONATE NOW

“United to Defeat MULTIPLE SYTEM ATROPHY”

The Multiple System Atrophy (MSA) CoalitionTM is a 501(c)3 charitable organization(EIN: 74-2926378) devoted to a four pillar mission:

• Supporting patients and caregivers affected by multiple system atrophy• Educating patients, caregivers and healthcare professionals• Financing and facilitating research aimed to identify a cause and find a cure for MSA• Advocating for issues important to the MSA community, including creating greater awareness

SUPPORTThe Multiple System Atrophy Coalition offers a toll free support line staffed by former MSA caregivers.

Contact: Larry Kellerman Toll free US and Canada: 866-737-5999lkellerman@msacoalition.org

Please Visit our MSA Resources Page

EDUCATIONThe MSA Coalition hosts an annual conference for MSA patients and families (usually October) in a different US city each year.

See our YouTube Channel for past conference recordings. DVD’s of past conferences are available to order, just Contact UsDownload: “MSA - What you Need to Know”

RESEARCHThe Multiple System Atrophy Coalition is the leading nonprofit funder of global MSA research. Since 2013 we have funded over $1.25 million in research projects. Find out more here.

Patients please register in the Global MSA Registry

ADVOCACY & AWARENESSThe MSA Coalition highlights the month of March as MSA Awareness Month and October 3rd as World MSA Day. As a member of the National Organization for Rare Disorders and the Coalition of Patient Advocacy Groups we stay abreast of issues important to the MSA community.

This list is maintained by Pam Bower pbower@msacoalition.org Updated: May 22, 2017

BOARD OF DIRECTORS

Chair Cynthia Roemer Howell NJ USA 866-737-4999 x207

croemer@msacoalition.org

Vice Chair Don Crouse Charlotte NC USA 866-737-4999 x203

dcrouse@msacoalition.org

Treasurer Carol Langer Boston MA USA 866-737-4999 x205

clanger@msacoalition.org

Secretary Pam Bower Halifax NS CANADA 866-737-4999 x204

pbower@msacoalition.org

Patient Representative

Hadley Ferguson Missoula MT USA patientrep@msacoalition.org

Philip Fortier Detroit MI USA 866-737-4999 x206

pfortier@msacoalition.org

Larry Kellerman Washington IL USA 866-737-4999 x209

lkellerman@msacoalition.org

Steve Klisares Dunlap IL USA sklisares@msacoalition.orgNeil Versel Chicago IL USA nversel@msacoalition.org

Chair Emeritus Judy Biedenharn Grove City OH USA 866-737-4999 x201

jhbied@wowway.com

SCIENTIFIC ADVISORY BOARD

Chair David Robertson, M.D. Nashville TN USA david.robertson@Vanderbilt.Edu Thomas Chelimsky, M.D. Milwaukee WI USA tchelimsky@mcw.edu Phillip Low, M.D. Rochester MN USA low@mayo.edu Steven Vernino, M.D., Ph.D. Dallas TX USA steven.vernino@utsouthwestern.edu Gregor K. Wenning, M.D., Ph.D. Innsbruck Austria gregor.wenning@i-med.ac.at

Note: The following list represents support groups compiled by the MSA Coalition that are designated for individuals dealing with MSA and/or other related neurological disorders. In our effort to support MSA patients and their care partners everywhere, we are pleased to provide information and resources about MSA to all the groups listed. We

welcome friendships with all, especially groups and organizations that offer support to those diagnosed with autonomic and movement disorders. Every effort is made to ensure meeting times & dates are accurate, however

we do suggest that you contact the facilitator first before attending a meeting for the first time.

UNITED STATES

ALABAMA

CHICKASAWInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Janiece Naber Martindale 251-300-1196 janiecenjim@gmail.com

ARKANSAS

LITTLE ROCKInformation updated as of Dec 2016: For anyone affected by PSP, CBD or MSALocation: Alzheimer’s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021Meeting Time: 4th Thursday of every months from 1:00pm-2:30pmFacilitator: Randi Haley 870-703-6417 randirhaley@yahoo.com

ARIZONA

GILBERTInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Tandy King www.facebook.com/kingchtata

CALIFORNIA BAKERSFIELD Information updated as of Dec 2016: Anyone affected by PSP, CBD, MSA Location: Denny’s restaurant, Banquet Room, 8710 Rosedale Highway, Bakersfield CA Meeting Time: 1st Wednesday of every month from 1:00pm-3:00pm Facilitator: Cathy Nichols 661-829-5552 catman17rln@aol.com BURLINGAME

Information updated as of Dec 2016: No Meeting Phone/email Support Only

Contact: Candy Welsh 650-218-5858 cortez1us@yahoo.com

FOUNTAIN VALLEY Information updated as of Dec 2016: For family members and caregivers dealing with Atypical PD+ DisordersLocation: Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave, Fountain Valley, CA 92708Facilitator: Justin Aquines 714-907-0074 atypicalpdgroup@gmail.com

FREMONTNon-profit for MSACure MSA – Kathy Shih Memorial FoundationP.O. Box 15088Fremont, CA 94539 USAwww.curemsa.org

Contact: Lily Shih (Executive Director) 510-226-0453 lily@curemsa.org

FREMONTInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Sandy Bierman 510-656-6897 sandybierman@yahoo.com

Lily Shih 510-226-0453 liyshih1@comcast.net

GOLETAInformation updated as of Dec 2016: No Meeting Phone/email Support Only after 11am ESTContact: George Relles 805-683-4829 grelles@cox.net

IRVINEInformation updated as of Dec 2016: For patients, caregivers and families affected by Parkinson’s, PSP, CBD, MSA and other atypical Parkinsonian disorders.Location: Atria Woodbridge Assisted Living, 1 Witherspoon, Irvine CA 92604Meeting Time: Every Tuesday 10:30am -12:00pmLocation: Lakeview Senior Center, 20 Lake Road, Irvine, CA 92604 Facilitator: Don Perdue 949-552-0465 djperdue@cox.net

LIVERMOREInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Carol Dutcher 925-998-3656 califalck@gmail.com

LOS ANGELESInformation updated as of Dec 2016: The Los Angeles Parkinsonian Disorders Support for people with PSP, CBD, MSA, and PD and their family members & friends

Location: UCLA Medical Plaza Bldg. 300 in the Marisa Leif Conference Room on the 3rd floor, Los Angeles, Calif. Meeting Time: 1st Friday of every month from 2:00pm-4:00pm Facilitator: Loretta Mazorra RN, NP, MN, MA anlom@sbcglobal.netTo RSVP and for Further Information contact Dolly West dwest@mednet.ucla.edu or phone: 310-206-2154.

MODESTOInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Janeice Partridge elipartridge@att.net

NORTHERN/SAN MATEOInformation updated as of Dec 2016: Neurodegenerative movement disorder group (MSA PSP,

CBD, etc.) – caregivers only. Contact facilitator for more info.Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pmFacilitator: Robin Riddle 650-814-0848 robin.riddle@brainsupportnetwork.org

SACRAMENTO Information updated as of Dec 2016: For caregivers dealing with PSP, CBD, MSA and Parkinson’s

Location: Shriner’s Hospital on the UC Davis Medical Center Campus, 7 th Floor Board Room, 2425 Stockton Blvd, Sacramento, CA Meeting Time 4th Wednesday of every month 7:00pm-9:00pm

Facilitator: Edward Fargusson. He can be reached through the Alzheimers Association Sacramento Phone: 916-930-9080

SAN DIEGOInformation updated as of Dec 2016: For patients/caregivers dealing with Atypical Parkinsonian

Disorders like MSA, PSP, CBD, OPCA, SND, SDSLocation: University of California San Diego (UCSD), East Campus, Medical Center Modular 1 (MCM1) Room 140 (conference room) 9423 Health Sciences Dr, La Jolla, CA 92037Meeting Time(s): Third Monday of each month at 1 pmFacilitator: Darlene Gerow 619-806-9649 darlene.gerow@gmail.com

SAN DIEGOInformation updated as of Dec 2016: For ONLY caregivers dealing with Atypical Parkinson Disorders (MSA, PSP, CBD, OPCA)Location: Conference RM Tri City Wellness Center, 6250 El Camino Real, Carlsbad, CA 92009 Meeting Time(s): Every other month on the first Wednesday from 11:00am - 1:00pm Facilitator: Judy Chamuler 619-788-3584 judychamuler@yahoo.com

SANTA BARBARA Information updated as of Dec 2016: No Meeting Phone/email Support Only

Contact: Suzanne Grimmesey 805-455-5194 sgrimmesey@gmail.com

COLORADO

DENVER/ENGLEWOODInformation updated as of Dec 2016: Neurodegenerative movement disorder group (MSA, PSP, CBD)Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113

Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers 4th Friday of each month from 10:00am-12:00pm for Caregivers only

Facilitator: Helenn Franzgrote 303-789-9900 jhfranzgrote@comcast.net

JOHNSTOWN/LOVELANDInformation: MSA, PSP, CBD Support GroupLocation: Northern Colorado Rehabilitation Hospital 4401 Union Street Johnstown CO 80528Meeting Time: 2nd Friday of each month from 1:00pm - 3:00pmFacilitator: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net

FLORIDA

JACKSONVILLEInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Shirley Snyder 904-207-5501 Gramme835@gmail.com

SOUTHEAST/DEERFIELD BEACHInformation updated as of Dec 2016: For patients/caregivers/families affected by MSA, PSP, CBD and related diseasesLocation: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064

1st Floor, Classrooms 7&8 (for directions only: 954-941-8300)Meeting Time(s): Contact Facilitator for more infoFacilitator: Paul Freeman 305-970-0805 freemanph@aol.com

SOUTHWEST/NAPLESInformation updated as of Dec 2016: For patients/caregivers/families affected by MSA, PSP, CBD and related diseasesLocation: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113

Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pmFacilitator: Cindy MacDonald 239-353-3960/239-404-4429 hotrdh@hotmail.comNAPLES Information updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Tenley Smith 630-337-1314 Tenswims@gmail.com

GEORGIA

ATLANTAInformation updated as of Dec 2016: For care partners only of those living with Atypical Parkinsonism’s, PSP, CBDLocation: Emory Brain Health Center. 12 Executive Park Dr. Room 331 C Atlanta, GA Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30amFacilitator: Lynn Ross 404-712-7091 slross@emory.edu

ATLANTAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Kathy Hansen 678-371-5139 Kathyhansen58@hotmail.com

ELLIJAYInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Paula Davis 706-669-1978 jimandpaula@ellijay.com

SMYRNAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Dan Gallivan gall63553@gmail.com

HAWAII

HONOLULU Information updated as of Dec 2016: PSP, CBD, MSA or Atypical Parkinson’s Location: Waikiki Banyan 201 Ohua Ave, Honolulu, HI 96815 Meeting Time(s): 2nd Saturday of each month from 10:00am-11:30am Facilitator: Ozzie Boyle 206-793-8648 ozzieboyle@gmail.com

ILLINOIS

CHICAGO AREA Information updated as of Dec 2016: MSA Support Meeting for Patients/Caregivers

Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Page or Contact Facilitator.

Facilitator: Pam Getz 847-414-5910 Mziklvrs@yahoo.com

NORTHWESTERN AREAInformation updated as of Dec 2016: For those with PD and other movement disordersLocation: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3rd Floor Room A(free parking at Huron/St. Clair)Meeting Time(s): 4th Thursday of every month from 1:00-2:00 pmFacilitator: Pamela Palmentera 312-503-4397 ppalment@nmff.org

INDIANA INDIANAPOLIS

Information updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Gary Huddleston 317-501-4899 garylovesjoyce@yahoo.com

KOKOMOInformation updated as of Dec 2016: For MSA Patients/caregivers Contact: Renate Sharp 765-453-5351 rsbreslau@yahoo.com Chris Markiewicz 765-513-5219 atacrew@aol.com Francie Hutton 765-453-9020 huttondf20@aol.com

WARSAWInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Terry Shepherd 574-267-1566 tellmenolies2004@yahoo.com

WESTERN IOWA AREAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Keryn Paul 402-813-7315 kmpaul@cox.net

KENTUCKY

LOUISVILLEInformation updated as of Dec 2016: Atypical Parkinsonian Disorders (MSA, PSP, CBD) Location: Parkisnon Center, 315 Townepark Circle, Suite 100Meeting Time: 2nd Tuesday of every month 6:30pmFacilitator: Dan Heins 502-216-4563 danheins@gmail.com

LOUISIANA

NEW ORLEANSInformation updated as of Dec 2016: Patients/families/caregivers with PSP/CBD/MSA & related diseasesLocation: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pmFacilitator: Shiela Grose 504-737-2614 groseshiela@bellsouth.net

FALMOUTHInformation updated as of Dec 2016: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDSLocation: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, MEMeeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info.Facilitator: Barbi Johnson 207-633-0881 rockyledges85@gmail.com

WELLSInformation updated as of Dec 2016: No Meeting Email Support OnlyContact: Gayle Gardner ggcpteach@comcast.net or nauticalmile102@gmail.com

MARYLAND

BALTIMOREInformation updated as of Dec 2016: For caregivers affect by Neurodegenerative diseasesLocation: Johns Hopkins at Greenspring station, 10753 Falls Road, Pavillion II, Café ConferenceRoom, Lutherville, MD 21093 Meeting Time 1st Thursday of every month from 10:00am-12:00pmFacilitator: Becky Dunlop, RN 410-955-8795 rdunlop@jhmi.edu

BEL AIR

Information: For caregiver affected by MSA, PSP, CBD & other neurodegenerative diseasesLocation: William McFaul Activities Center 525 West McPhail Road, Bel Air, MD 21014Meeting Times: 4th Thursday of every month from 2pm-4pmFacilitator: Bailey Vernon 410-616-2811

EASTONInformation: for caregivers affected by Parkinson’s PSP, CBD, MSA and other Neuro diseasesLocation: Eastern Shore Smile Solutions 29267 Erickson Dr. Easton, MD 21601

Meeting Time: 3rd Wednesday of every month from 3:30pm-5:00 pmFacilitator: Bailey Vernon 410-616-2811

LUTHERVILLEInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Beverly Gorman www.facebook.com/beverly.k.gorman

PRINCE FREDERICKInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: James Taylor 410-535-0780 jtaylor@guam.net

MASSACHUSETTS

BOSTONInformation updated as of Dec 2016: For MSA Patients/Caregivers Location: Boston University Medical Center; 88 East Newton Street, 2nd floor, Conf Rm C, Boston, MAMeeting Time: quarterlyFacilitator: Melissa Diggin 339-927-5468 m_diggin@hotmail.com

GARDNERInformation: For MSA patients/caregiversLocation: Heywood Hospital in Gardner, MA Meeting Time: last Wednesday of each month at 2 PM Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682

MICHIGAN

DETROIT Information updated as of Dec 2016: Non Profit for MSA Defeat MSA & The MSA Shoe29924 Jefferson AvenueSaint Clair Shores, MI 48082Email: DefeatMSA@gmail.comwww.DefeatMSA.orgTel: 586 246-1475

Periodic Meetings - Co-Sponsors: MSA Coalition & Defeat MSA

Location:Saint Joseph Mercy Oakland Hosp.44405 Woodward AvenuePontiac, MI 48341

Hosts:Dr Pratik Bhattacharya (Neurology, SJMO) & Philip Fortier (MSAC Board Member; Director, Defeat MSA)

ALMAInformation: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disordersLocation: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center (below chapel)Meeting Time(s): 4th Wednesday of every month Facilitators: Robbie and Keith Virgo 989-681-6321

DELTON Information updated as of Dec 2016: For patients, caregivers and families with PSP, CBD, MSA and other atypical parkinsonian disordersLocation: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot)Meeting Time(s): 2nd Saturday of each month (March thru December only) 2:00pm-3:30 pm Please contact facilitator if you plan to attendFacilitator: Mary Meagher 269-267-3117 mmeagher@mei.net

MINNESOTA

MINNEAPOLISInformation: For patients and families dealing with PSP, CBD, MSALocation : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pmFacilitator: Joan Hlas 952-993-6650

MINNEAPOLISInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Jean Wayne 612-419-2573 Mnnightrn@gmail.com

MONTANA

KALISPELLInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Gary Cuthbertson 406-257-4392 Grandmamt@centurytel.net

NEBRASKA

OMAHAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Keryn Paul 402-813-7315 kmpaul@cox.net

LINCOLNInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Susie Luxford 402-525-7367 susie.luxford@homerealestate.com

NEVADA

LAS VEGASInformation: No Meeting Phone/email Support OnlyContact: Marty Koppel 702-914-8041 please leave message if no answer

NEW JERSEY

TRI-STATE AREAInformation updated as of Dec 2016: Non profit support group covering the tri-state area MSA NJP.O. Box 773 Howell, NJ 07731 www.msanj.orgContact: Cynthia Roemer contact@msanj.org

Meets the second Saturday of the month 11 a.m. - 1:00 p.m.Overlook Medical CenterConference Room #1 Summit, NJOther Locations Considered

Email Support AvailableClosed Facebook Support Group for MSA NJ community only: www.facebook.com/groups/MSANJSupport

CAPE MAY Information updated as of Dec 2016: For caregiver dealing with Atypical Parkinson+ disordersLocation: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center)Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pmFacilitator: Bonnie Kratzer 609-463-4043 jkratzer@caperegional.com

MOORESTOWN (5 minutes from Philly and 30 from Trenton)Information updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Rachel Zambrano 856-316-6742 Rachelzambrano@comcast.net

NEW MEXICO

ALBUQUERQUE Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD Location: The Flying Star 10700 Corrales Road, Albuquerque, NM Meeting Time(s): 1st Wednesday of each month from 6:30pm-8:00pm until Sept. Note: Starting Sept meeting will change to the first Tuesday of each month at same time Facilitator: Roxi Padrid 312-485-9342

NEW YORK

Email Support AvailableClosed Facebook Support Group for MSA NJ community only: www.facebook.com/groups/MSANJSupport/

BUFFALO

Information updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Maureen Conley 716-627-7344 moe@moeconley.com

NEW YORK CITY METRO AREAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Kara Holisher 516-932-1696 kbhx2@optonline.net

BROOKLYNInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Caitlin Connelly 845-901-8411 cconnelly@me.com

SYRACUSE/CHITTENANGOInformation: For Anyone with Parkinson or SDS/MSALocation: Jim Marshall Farm Foundations Facility North Chittenango

Directions to the farm can be found at www.jmffinc.org/servicesMeeting times: 4th Tuesday of each month from 12:30PM-2:30PMContact: Wayne Hamilton 315-687-9014

SYRACUSEInformation updated as of Dec 2016: No Meeting Phone/email Support Only

Contact: Jackie VandenBerg jvanden1@twcny.rr.com

NORTH CAROLINA

CHARLOTTEInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Robert Lee 704-552-9198 sparrowln@carolina.rr.com

RALEIGHInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Joe Turner 919-971-3512 Jpturner2011@gmail.com Melissa Turner 919-741-9668 mrsmelissajturner@gmail.com

ADVANCEInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Tammy Hunt Hauser 336-998-2942 hausertammy@hotmail.com

HIGH POINTInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Amy Nissen acnissen@northstate.net

CLEVELANDInformation updated as of May 2017: For patients/families/friends/caregivers affected by PSP, CBD, MSALocation: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room

15C (basement level)Meeting Time(s): 2nd Sunday of each month from 2:00pm - 4:00pmDirections/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital.Facilitator: Dave Potter 440-263-5330 davepotter7@gmail.com Pat Beekman 440-234-0007(Group sponsored by CurePSP)

CINCINNATIInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Kathy Griffin 513-208-6621 kgriffin4412@msn.com

FAIRFIELDInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Brenda Reams 513-860-2912 calvelageb@yahoo.com Paul Reams preams1@yahoo.com

KETTERING Information updated as of Dec 2016: For MSA patients/caregivers Meeting Time(s): A get together is arranged in this area a couple times a year Contact: Susan Cervone 937-369-9531 FrankunSusan@aol.com

WESTERVILLE Information: For MSA caregivers Meeting Time(s): Occasional meetings are now being held Contact: Cathy Rapenport 614-403-1440 cathyrap83@gmail.com

OKLAHOMA

GROVEInformation: No Meeting Phone Support OnlyContact: Paul Nandico 918-786-4949

OREGON

EUGENEInformation updated as of Dec 2016: PD+ disorders (PSP, CBD, MSA, Lewy Body) and their care partners.

Location: Parkinson's Resources of Oregon-Lane County at Eugene Mindworks Meeting: the 2nd Wednesday, 1:30-3:00 (Usually every other month) Facilitator: Gordon & Lori Robertson 541-997-2876 lorigordonr@yahoo.com Please contact Gordon & Lori about the next meeting

BENDInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Nena Close 541-419-6408(cell) nena.close@gmail.com

PORTLANDInformation updated as of Dec 2016: For MSA and PSP Patients /Caregivers Location: Marquis Care Center, 319 NE Russet ST, Portland, OR Meeting Time: 3rd Saturday of each month 10 am to noon Facilitator: Pat Robertson 503-310-9085 bookmole@comcast.net

PORTLANDInformation updated as of Dec 2016: For families & caregivers of people with PSP & CBD also welcomes MSA Locations: OHSU River side building Room 12181 3303 SW Bond St. Portland, OR 97239Meeting Time: 1st Thursday of each month at 5:30pm Facilitator: Hallie Bradley htbradley@netscape.net

PENNSYLVANIA

Email Support AvailableClosed Facebook Support Group for MSA NJ community only: www.facebook.com/groups/MSANJSupport/

N.VERSAILLESInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Carole Barber 412-678-8948 barber.carole@juno.com

PHILADELPHIAInformation: For persons with movement disordersLocation: Pennsylvania Hospital Movement Disorder Center, 330 S. 9th Street, 2nd floor conference room. Philadelphia, PA 19107Meeting Time: 3th Saturday of each month from 1:00pm to 2pmFacilitator: Christin Salemno 215-829-2347

YORK Information: No Meeting Phone/email Support Only

Contact: Thomas Fitzgerald 717-840-3830

PUERTO RICO

Information updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Alexis Brewer 787- 510-4690 alexis_brewer_200@yahoo.com

SOUTH DAKOTA

SIOUX FALLSInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Dawn Koenig 605-759-6740 dkoenig@pompstire.com

TENNESSEE

TULLAHOMAInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Marilyn Morris 913-455-3108 mgm12@lighttube.net

FAIRFIELD GLADE Information: PD & Movement Brian disorder Support Group (PD,MSA, ET,PSP,CBD)

Location: Christ Luthern Church Fellowship Hall 481 Snead Dr. Fairfield Glade, TN

Meeting Time: 1st Tuesday of each month at 2:30 pmFacilitator: Gary & Sally Dixner 931-484-0193

HOUSTONInformation updated as of Dec 2016: For patients/families with PSP, CBD, MSA, LBDLocation: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional

Building IIMeeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pmFacilitator: Karen Kennemer 281-358-2282 kmk1224@aol.com

DALLASInformation updated as of Dec 2016: For PSP/CBD/MSA patients and caregiversLocation: Texas Health Resources University (THRU) building, Room 111Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30amFacilitator: Kathryn MacDonell 214-908-4793 kathmac@linkrd.com

SEYMOURInformation updated as of Dec 2016: For patients & caregivers affected by MSA, PSP, CBD & Atypical PD+Location: Baylor Country Extension Building 500 N. Main Street Seymour TX 76380Meeting Time: 3rd Monday of each month from 4:00pm-5:30pmFacilitator: Sis Hammack 940-889-6638 Bradnsis@swbell.net

SAN ANTONIOInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Sharon Sutton 210-296-4619 saksutton@aol.com

Candice Hernandez 210-912-4530 cleo0308@yahoo.com

VERMONT

BURLINGTONInformation updated as of Dec 2016: For caregivers of Parkinson's with mild cognitive impairment and Parkinson's Plus syndromesLocation: Varies; contact facilitator for infoMeeting Time(s): Varies; contact facilitator for infoFacilitator: Janice Clements 802-862-7464 janclem25@gmail.com

VIRGINIA

AMISSVILLEInformation updated as of Dec 2016: Will meet with people if they want to travel to Amissville or will meet at other’s home if accessible and can arrange a time and date to have a meetingContact: Bill Werre 540-937-6092 rwwerre@comcast.net

VIRGINIA BEACHInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: James (Jim) Alvaro 757-430-2237 jimalvaro@verizon.net

WASHINGTON

SPOKANEInformation updated as of May 2017: No Meeting Phone/email Support OnlyContact: Amy Mitchell 509-939-2370 Mitchelljak@comcast.net

SEATTLEInformation updated as of May 2017: For Atypical Parkinson's (includes MSA) patients and caregivers. Location: Swedish Cherry Hill Medical Center, 500 17th Ave, Seattle WAMeeting Time: 4th Monday of every monthContact: Suzanna Eller 206-320-3494 suzanna.eller@swedish.org

WEST VIRGINIA

BECKLEYInformation updated as of Dec 2016: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disordersLocation: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West VirginiaMeeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pmFacilitator: Jean Johnson 304-573-3284 grammy44@suddenlink.net

MARTINSBURG Information updated as of Dec 2016: No Meeting Phone/email Support Only Contact: Shelli Hannon Kuhn 717-830-6199 shelli.kuhn@jetsndt.com

WYOMING

JOHNSTOWN/LOVELAND (COLORADO) Information: MSA, PSP, CBD Support Group

Location: Northern Colorado Rehabilitation Hospital 4401 Union Street Johnstown CO 80528Meeting Time: 2nd Friday of each month from 1:00pm - 3:00pmFacilitator: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net

~~~~~~~~~ End of USA In-Person Support Groups ~~~~~~~~

CANADA

ALL PROVINCES

Information updated as of May 2017: No Meeting Email Support OnlyContact: Pam Bower pbower@msaawareness.org or pbower@accesscable.net

ALBERTA

EDMONTONInformation updated as of Dec 2016: No Meeting Phone/email Support Only - Contact for the northern region of Alberta Contact: Iris Kirschner 780-792-7732 ikirschner@shaw.ca

CALGARYInformation updated as of Dec 2016: For patients, caregiver and families with PSP, CBD, MSA and other Atypical PDLocation: Servus Credit Union- Creekside Branch 12662 Symons Valley RD NW , Calgary ABMeeting time: 3rd Saturday of every month from 12:00pm -2:00pmFacilitator: Kelly Clapham 403-803-3307 claphamk@telus.net

BRITISH COLUMBIA

SURREYInformation updated as of Dec 2016: For anyone affected by PSP, CBD, MSALocation: Elim Village, Oasis Building, Meeting Room, 2nd Floor; The address will get folks there, but because the address is difficult to access using 158 Street, I advise new people to use: 'GPS' to 9045 - 160 Street, Surrey, BCVillage signage will direct them to Oasis building, and the meeting room.Meeting time: 10:00 am to 12:00 noon (We do NOT meet in December)Facilitator: Bob Brett 604-930-8150 curepspbc@gmail.com Robyn Heppner 604-584-7587 x2020 rheppner@elimvillage.com

SIDNEYInformation updated as of Dec 2016: No Meeting Phone/email Support OnlyContact: Ann Jeffrey 250-656-9799 island.view@shaw.ca

NOVA SCOTIA

HALIFAXInformation updated as of May 2017: No Meeting Email Support OnlyContact: Pam Bower pbower@msaawareness.org or pbower@accesscable.net

ONTARIO

HAMILTONNo Meeting Phone/email Support OnlyContact: Bonnie Information: Llewellyn 905-979-8254 llegs369@live.ca

BURLINGTON Information updated as of December 2016: For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disordersLocation: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ONMeeting Time(s): Last Monday of the month from 1pm-3pm Facilitator: Kimberley Adrovez kimberleyadrovez@yahoo.com

KINGSTONInformation updated as of Dec 2016: For patients and families affected by PSP, CBD and MSALocation: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and handicap accessible)Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm Facilitator: MJ Overby 613-531-2685 hopematterspspkingston@gmail.com

TORONTOInformation updated as of Dec 2016: For care partners of PSP/CBD/MSA patients; hosted by Parkinson CanadaLocation: 4211 Yonge Street, Suite 305, Toronto, ONMeeting Time(s): 3rd Wednesday of every month from 6:00pm – 8:00pmFacilitator: Robert TerSteege 416-227-3372/ 1-800-565-3000 x3372 robert.tersteege@parkinson.ca

~~~~~~~~~ End of Canada In-Person Support Groups ~~~~~~~~

MSA COALITION MODERATED FACEBOOK GROUPS

Moderator: MSA CoalitionStaff www.facebook.com/MSACoalitionStaff

PUBLIC DISCUSSION GROUP (5000+ members): www.facebook.com/groups/MSACoalitionPublicGroup/

USA REGIONAL FACEBOOK SUPPORT GROUPS (Private discussion groups):

EAST COAST

MSA Coalition - New England (ME-NH-VT-CT-RI-MA)www.facebook.com/groups/MSANewEngland/

MSA Coalition - Middle Atlantic (NY-NJ-PA)www.facebook.com/groups/MSAMidAtl/

MSA Coalition - South Atlantic (DE-DC-FL-GA-MD-NC-SC-VA-WV)www.facebook.com/groups/MSASOATL/

CENTRAL STATES

MSA Coalition - Northeast Central (IN-IL-MI-WI-OH)www.facebook.com/groups/MSANECentralUS/

MSA Coalition - Northwest Central (IA-KS-MN-MO-ND-SD-NE)www.facebook.com/groups/MSANWCentralUS/

MSA Coalition - Southeast Central (AL-KY-MS-TN)www.facebook.com/groups/MSASECentralUS/

MSA Coalition - Southwest Central (TX-OK-LA-AR)www.facebook.com/groups/MSASWCentral/

WESTERN STATES

MSA Coalition - Mountain States (AZ-CO-ID-NM-MT-UT-NV-WY)www.facebook.com/groups/MSAMountainUS/

MSA Coalition - Pacific States (CA-OR-WA-HI-AK)www.facebook.com/groups/MSAPacificUS/

OTHER ONLINE SUPPORT GROUPS

MSA Canadawww.facebook.com/groups/MSACanada/

Multiple System Atrophy (MSA)www.facebook.com/groups/48942097968/

Multiple System Atrophy (MSA) Buddieswww.facebook.com/groups/MSABuddies/

MSA: A Caregiver’s Journey – Caregivers onlywww.facebook.com/groups/168770156602557(Private group - you must request an invitation to join - contact moderator)Moderator: Kym Thompson kymcrowe39@gmail.comwww.facebook.com/omgkymModerator: Susan Cervone FrankunSusan@aol.comwww.facebook.com/frankunsusan

MSA: A Patient’s Journey – Patients only www.facebook.com/groups/MSAPatients(Private group - you must request an invitation to join - contact moderator)Moderator: Vera James fvjames@aol.comwww.facebook.com/vera.jamesModerator: Pam Bower pbower@msaawareness.orgwww.facebook.com/pam.bower

YAHOO SUPPORT GROUPS

Shydrager Online Support Group for MSA (2000 members, worldwide)Founded in 1995 by Vanderbilt University Autonomic Dysfunction Center staff and currently hosted at http://groups.yahoo.com/group/shydrager

WEBINARS

Online Discussion webinar - For MSA Care Partners

When: 1st Monday of each month

Time: 8:00 pm - 9:00 pm EST

Register: https://www2.gotomeeting.com/register/977578139

Online Discussion webinar - For MSA Patients

When: 3rd Monday of each month

Time: 8:00 pm - 9:00 pm EST

Register: https://www2.gotomeeting.com/register/759482131

Support Meeting & phone support - MSA€¦ · Web viewThe MSA Coalition highlights the month...

Documents

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MSA BOSCH DISHWASHER - Marcone Servicers …members.msaworld.com/.../sites/3/2015/12/MSA-Bosch-Dishwasher-… · MSA BOSCH DISHWASHER Presented by: Rick Kuemin, MSA Training Director

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FEA ANALYSIS: FEA ANALYSIS OF THE BASE PLATE AND MSA SUPPORT UPRIGHTS:

In support of LGBT history month, Tower Hamlets Local ... · LGBTQ+ History Month In support of LGBT history month, Tower Hamlets Local History Library & Archives ran a photography

Support Alzheimer’s Awareness Month

Medicaid Annual Reviews - dmh.mo.gov...Family Support Division Annual Review Process In the month prior to the review month, the Family Support Division (FSD) mails an annual review

OCTOBER is BREasT CanCER awaREnEss MOnTh · 2019. 1. 17. · 6 University Health Care System | SUPPORT GROUPS Arthritis Support Group Last Monday of each month Monday, Oct. 27 •

KISUMU CANCER SUPPORT GROUP PROFILE BACK GROUND … · cancer month National cancer prevention month Colon Cancer Month Esophagieal Awareness month Skin Cancer Month National Cancer

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