Stroke Services BC Stroke Rehabilitation Collaborative – The Journey of a Hero

Stroke Services BC

SSBC Stroke Rehabilitation

Collaborative:

Advancing the Patient Voice

Introductions

• Angela Wright

• Bachelors of

Business Admin –

Simon Fraser Univ.

• Accel. MBA –

Queen’s University

• Leadership and

Strategy – Cornell

• Katie White

• B.Sc – Queen’s

University

• B.Sc.PT – McGill

University

• M.Sc – University of

Alberta

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Disclosure Slide

• No disclosures or conflicts of interest for today’s

presentation

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SSBC Stroke Rehabilitation Collaborative

• SSBC

• Past successes

• Time for rehabilitation

• Desire to increase patient involvement and

leadership

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Program Assumptions

• Patient-driven care and current system of care

are mutually exclusive

• Allow that discomfort

• Help people find new ways in existing structure

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Patient Partner Assumptions

• People aren’t really listening

• Sparking reflection

• Sharing experiences

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Program Source of Pride

• Embracing the role of patient partners

• Local teams, patient surveys, patient stories,

acting on suggestions

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Patient Partner Source of Pride

• Shift in understanding

• Small changes = big differences for patients

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Program Lesson Learned

• Have to be prepared to change course

• Be flexible and follow the solutions where they

need to go

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Patient Partner Lesson Learned

• A terrible thing can lead to positive change

– For the system

– For me

• The best lessons may be in the crunchy bits

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Program Ongoing Needs/Challenges

• Capturing and sustaining enthusiasm

• Partner outside health care system to improve

patient experience

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Patient Partner Ongoing

Needs/Challenges

• Get the word out

• Patient voice is valued and valuable

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Katie White: katie.white@phsa.ca

Angela Wright: angelawright@hotmail.ca