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The Children's Cancer Foundation NewsletterVol.53 2/2018

CONTENTS

Head OfficeRoom 702, Tung Ning Building,125 Connaught Road Central, Hong KongTel: 2815 2525 Fax: 2815 5511E-mail Address: [email protected]: http://www.ccf.org.hk

Family Service CentreNo.8-13, G/F., Lung Fook House,Lower Wong Tai Sin Estate, KowloonTel: 2328 8323 Fax: 2328 8369E-mail Address: [email protected]

Community Service & Rehabilitation CentreNo.1-5, G/F., Block 9, Pak Tin Estate, KowloonTel: 2319 1396 Fax: 2319 1696E-mail Address: [email protected]

Editorial GroupChief Editor: Lucille Wong Editor: Tommy Cheng Translator: Doris Lau Lesley Cheung

Features 28Four Years on Supportive Learning for Kids Retrospective and The Way Forward

Special Topic 32Blessing of My Life

Sunshine Corner 34The World of Japanese Patterns Explained by Sunshine Kid

It All Starts with the Family 36Embrace Love Embrace Grief

Updates on the Long-term Follow-up Programme 38Jinan Exchange – Let Survivors Explore their Own Path

Our Rendezvous 39Becoming a Budget Wise Little Chef!

Child Life … More than just Fun 40Crafting My Universe with Medical Art

Passing It On 42Passing Love On

Life's Opus 43Bereavement Club Ten Years Review

CCF Intelligence 44•Inspiring Stories of Cancer Kids – If You Were in My Shoes is Published!•A New Logo for Child Life Service!•Comic

Fund-raising Activities 45Patient and Hospital Services 48“Smile!” Photo Studio 51CCF Around the World Christmas Party 2017

Battling with cancer is a long and arduous journey full of obstacles along the way. Children at a

tender age are weighed down with the burden of cancer treatment, on top of which they have

to deal with their learning and social problems due to prolonged absence from school. These

children are not suitable to go to school due to low immunity and some of them are too young

to enroll in the Red Cross hospital schools. They ended up having to stay home being isolated

from their learning and social interactions with their peers. CCF saw the service gap and the

urgent needs of these kids in the support of their academic, social and emotional well-being.

CCF social workers often hear the lament of these kids: “I want to go to school! I miss my

friends so much!” Over the years, our Community Service Team has been using this as a point

of intervention in providing various educational services to ensure that these children could

continue to learn at home or at our centre and to have more opportunity to meet new friends.

“My son is receiving treatment; how is he

going to catch up with school work?”

“ I don't know what to do… my daughter’s grades seem to be

dropping.”

“My kid cannot go to school due to treatment and he is spending all day watching

television or playing computer games at home. How is he going to adapt to school life again? Will he be able to get along with other

kids?”

Four Years on Supportive Learning for Kids

Retrospective and The Way Forward

“My son has been absent for the entire

school term. Should I let him repeat the term or proceed to the next

grade?”

29Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Features

The mathematics tutorial is our longest-standing educational support service held at our Community Service and Rehabilitation Centre (CS & RC) .

Sir Tai has been the tutor for these kids in need for many years. “I used to teach Physics in secondary schools. After I retired in 2000, I did a lot of travelling. At an alumni reunion in 2002, I heard that CCF was looking for help. I thought that the time commitment was manageable, so I comply.” In fact, for the past 15 years, every Saturday, rain or shine, from 9 am to 1 pm Sir Tai is there to help the sick children.

Total number of classes: 118

Average attendance at each class: 7

(Data collected: November 2014 to October 2017 )

Centre-based Mathematics Tutorials

A room set up like a kindergarten classroom in our CS & RC is the “ Sunshine School ”. The school was established in March 2013 to provide a transitional pre-school education, including play groups and kindergarten classes, for children aged eight years or under who are undergoing treatment or in convalescence but not ready to go back to school.

“I ’m so grateful to Sunshine School for teaching and guiding my child so that he will not miss any learning opportunities in his debilitating conditions. ”

“We are grateful to the volunteers for their assistance at the graduation ceremony and outdoor activities. I will reminisce with my child over this experience and help him understand that life impacts life and life is full of hope.”

“Sunshine School is diverse in i ts programme, providing a transitional preschool learning opportunity for kindergarten aged children.”

“Prov id ing ch i ldren the opportunity to learn through p lay wi l l enhance the i r interest in learning.”

Sunshine School

Total number of classes: 343 Average attendance at each class: 3 - 4

(Data collected: November 2014 to October 2017 )

An Overview on Service Development

Features

30 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

One-on-one Home-based Tutorials

One-on-one Centre-based Tutorials

For upper primary and junior secondary school patients who are absent from school due to illnesses. CCF would engage tutors or committed volunteers to tutor them at home so they could continue their studies while staying home.

Total number of classes: 504

(Data collected: November 2014 to October 2017 )

These one-on-one tutorials are held at CS & RC targeted at cancer survivors who have just started primary school. Survivors at our centre will be helped by our volunteer tutors to check their homework, to see if they have any learning difficulties, etc. One of the tutors is a childhood cancer survivor herself and was once a beneficiary of CCF. She is currently reading English in university and would like to make use of her knowledge to help kids who are facing the same difficulties as she once did.

Total number of classes: 57

(Data collected: November 2014 to October 2017 )

31Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Features

Educat ion p lays an impor tan t ro le in ch i ld development. In light of that and coupled with its community-centric philosophy, CCF is totally committed to promote and develop the learning support services for young patients. In the near future, Sunshine School will expand to Tuen Mun Hospital and Ma On Shan, which means children stricken with cancer in the New Territories will not have to travel all the way to the Shek Kip Mei centre for classes. They will be supported in the community where they live.

Furthermore, CCF is actively recruiting volunteers to establish a robust team of tutor volunteers to provide “One-on-one Home-based Tutorials” and “One-on-One Centre-based Tutorials” for these children so that they could catch up with their peers at school. Last but not least, we will continue to explore how to further improve our “Back to School Programme” to provide a more diverse and relaxing classroom experience for primary aged kids undergoing treatment or in convalescense, to help them rebuild a pleasant learning experience and social lives.

Back-to-School Programme

As many young patients in convalescence will be returning to school after the summer vacation, CCF provides a series of summer workshops/classes, such as personal growth group, art therapy group and arts workshop so that they could make use of these two months to “warm up” and familiarise themselves with school life and to have a feel of what it’s like to be with friends before returning to school after the summer.

Through this programme, we also hope that the parents will understand more about the problems and adaptations that their kids will be facing when they return to school. In other words, both the “big kids” and the little kids will be fully prepared to face the challenges.

Total number of classes: 59 Average attendance at each class: 10

Total number of art therapy group: 12 Average attendance at each class: 9

Total number of personal growth group: 15 Average attendance at each class: 10

Other art workshop: 15 Average attendance at each class: 9 (such as painting, collage-making)

(Data collected: July – August 2014 to 2016)

The Way Forward

Special Topic

32 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Blessing of My Life

Two-year-old Cayden sends cheerful vibes all over the Centre, running around the corridors,

cuddling in his mother’s arms, and exploring toys and the surroundings with immense curiosity. If

you don’t look close enough, you won’t realise Cayden’s right eye is a prosthetic one. But whether

he has one eye or two, his mother, Mrs Lung, loves him all the same.

As early as in September 2016, when Cayden was a little older than one year old, Mrs Lung noticed

her son’s right eye showed signs of exotropia. She believed the squint was, as doctors said, a

common phenomenon among young children that would naturally improve as they grow older.

Over time, she however found the situation intensified, and consulted an ophthalmologist friend.

“He was the father of my elder daughter’s classmate, so I got to ask him about treating the squint

at a social event. He discovered something was wrong with Cayden’s right eye at once, and urged

me to take him to the clinic for a full check-up the next day,” Mrs Lung recalled. A tumour was found

under Cayden’s right eye. He was referred to the Hong Kong Eye Hospital and was diagnosed with

retinoblastoma the same day. The cancer had advanced to stage IV, and the vision of Cayden’s

right eye was presumably impaired or even lost. The tumour also forced the eyeball sideways,

which led to the impression of squinting. Young and inexpressive, Cayden looked and behaved

normally with his functioning left eye.

Believing her son just had a squint, Mrs Lung had no idea about eye cancer when she was struck

by the dreadful news. “I kept looking up retinoblastoma online, and I only knew then that Cayden’s

‘cat’s eye’ ( the right pupil turned transparent like glass ) at certain angles under the light was a

symptom of retinoblastoma called leukocoria. I had no idea and didn’t pay much attention.” Being

diagnosed with Stage IV cancer, Cayden needed to undergo enucleation very soon to remove all

cancer cells to prevent them from spreading to other parts of the body. Cayden’s life was the only

thing Mr and Mrs Lung wished for, so they decided that their son would do the surgery right away.

Special Topic

33Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

It was merely ten days from diagnosis to enucleation. Before the surgery, Mrs Lung

read extensively about eye cancer in young children online, which added to her anxiety.

“Fortunately, social workers from CCF showed me the facts and counselled me along the

way. A parent volunteer from the Child’s Vision parents support group also answered a lot

of my queries and even arranged for me to meet with her child who is growing up healthy

and happy after the surgery. I was much more relieved.” Mrs Lung was very grateful that

a parent volunteer from the Child's Vision stayed and waited by her side when her son

entered the surgery room. She was not alone in her journey against cancer.

The next step for Mrs Lung was to get a custom-made prosthetic eye fitted for Cayden.

“Placement of the prosthetic eye can only be done a month after the surgery when

the wound is completely healed. It was like getting contact lenses, with the prosthetist

preparing a mould for Cayden to make a perfect looking prosthetic right eye. Life has

returned to normal now, except when Cayden wipes his eyes and the prosthetic eye

comes off from time to time.”

“Cayden’s wound didn’t hurt too much and

recovered quite fast. He loves playing as always.

I was just still pained to see his eye wrapped

in blood-stained gauze. My mother comforted

me, saying that I would rather spend more time

playing with Cayden than crying in despair. We

have been very lucky actually. People around

us were supportive and offered the help we

needed to fight the battle. Now it’s time for us

to stay positive and live on. I also hope that all

parents know about this disease, and consult a

doctor right away when in doubt. Prevention is

better than cure,” Mrs Lung said.

34 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Sunshine Corner

even hired my great-grandmother as a domestic helper. My great-grandfather eventually

reunited with the family when my grandmother was around seven or eight years old. This

immersive culture, as well as my love for manga, fuelled my fascination with everything

Japanese. I also learnt to cook Japanese food and began studying their culture.”

Among all aspects of Japanese culture, Anson is particularly fond of patterns, as each type

is distinctive and significant. As we talked about these patterns, he took out his notebook

and flipped through those he had collected. Every time he comes across a new pattern, he

looks it up online and jots down its meaning in the notebook. “If I were to pick a pattern for

CCF, it would be ‘Asanoha’!” he said.

What does “Asanoha” mean? Let’s read his notes!

The World of Japanese Patterns Explained by Sunshine Kid

Every Sunshine Kid has a different story.

When I first met Anson Chu, a 15-year-old survivor of brain cancer, he was facilitating

a workshop on Japanese patterns and origami for other cancer survivors at our

Community Service & Rehabilitation Centre. He taught them to fold patterned paper

into kimono figures, and he dedicated the figures, as well as the symbolisms they

carried, to the participants’ parents. A lovely afternoon we had!

I asked Anson why he was so into Japanese culture, and he told me his family story:

“When I was small, my grandmother would travel a long way

from Kwai Fong to Tseung Kwan O every weekend and take me

to Japanese restaurants. I forgot if it was me or her who loved

Japanese food, but we enjoyed it all the same. One day, she told

me a surprising secret: when the Japanese invaded China, my

great-grandfather was enlisted and left my great-grandmother,

but she was pregnant at the time. She sought help from door to

door, and finally arrived at the home of a Japanese immigrant

in China. The Japanese family fed her and let her stay, took

great care of her until my grandmother was born. Later on, they

35Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Sunshine Corner

14 Japanese patterns

explainedAsanoha

Meaning: vigour, growthHemp is a strong fibre that grows rapidly. This pattern is usually worn by children, with the hope that they grow with the vigour and toughness of the plant.

Ichimatsu

Formerly known as Ishidatami (paving

stone) or Arare (hail), this pattern is

named after an actress in the Edo period,

Sanogawa Ichimatsu, who often wore it.

Suisen

Meaning: intellect

The graceful suisen symbolises the

refreshing elegance and decorum

of intellect. It is well-loved as an

auspicious flower for new year.

Kanoko

The fawn spot pattern is popular among young girls.

Kikko

Meaning: longevity

The pattern is formed by hexagons resembling turtle shells. It symbolises longevity because turtles live long.

Ume

Meaning: endurance , p r osp e r i ty , composure

Plum blossoms withstand the harsh winter and flower in early spring.

Crane

Meaning: healing, wish

A Japanese legend has it that if someone

folds 1,000 origami cranes, a spirit will

be summoned to heal an illness or grant

a wish.

Sakura

Meaning: new start, good harvest

Sprouting in spring, sakura symbolises

the start of life. Inari Okami, the god of

grains, is also believed to live in sakura

trees, which lends the connotation of

good harvest.

Yatarajima

Yatarajima is a pattern of motley

vertical stripes. Three stripes with

designated intervals in between

constitute a set: the thick Bojima, the

thin Mekurajima, and the irregular

Yatarajima.

Shobu

Meaning: exorcism, victoryFrom the medical perspective, shobu dispels the cold, and was deemed to drive away evil spirits in the ancient times. “Shobu” in Japanese also sounds identical to “victory or defeat”, so it also carries the hope of winning.

Butterfly

Meaning: transformation, renewal, longevity, permanence

Butterflies develop from caterpillars and pupas, so they embody transformation and renewal. The word “butterfly” also shares its pronunciation with the word “long” in Japanese, so butterflies also come to stand for longevity and permanence.

Nadeshiko

Meaning: smile, elegance

Yamato Nadeshiko is the incarnation

of a virtuous woman in Japanese

culture, so the nadeshiko flower

symbolises the same.

Botan

Meaning: beauty, happiness

In Japan , b eaut i fu l lad i es a r e described in an idiom as “standing and s i t t ing l ike p e oni es , and walking like lilies.” Peonies are a symbol for beauty, and since they carry small buds which bloom into big flowers, they also stand for happiness.

Seigaiha

M e a n i n g : p e a c e a n d s t a b i l i t y ,

prosperity of the people

Surrounded by waters with abundant

marine resources, the Japanese people

made a living by the sea in the past.

With the sea as a national icon,

the regular wave pattern carries the

blessing of peace and prosperity.

It All Starts with the Family

36 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Embrace Love Embrace Grief

Parental love is unconditional.

The child patient’s long journey to recovery is fraught with challenges that parents must

overcome in spite of the great stress. The most heart-breaking thing is when the child’s

health made a drastic turn and life may flap to an end any time…

Tin Wing, nine years old, was diagnosed with cancer two years ago. After receiving

chemotherapy for 1.5 years, he was prepared for bone marrow transplant. The progress

of treatment looked good, and his parents started planning for new life when he could

finally leave the hospital. But his health condition drastically deteriorated, putting a stop

to the original treatment plan, and Tin Wing was urgently transferred to the Intensive

Care Unit. His mother cared for him by his side every day, concerned over his critical

condition.

While Tin Wing’s health condition fluctuated, a shimmer of hope was hardly in sight.

Having to meet with the medical team and to make painful decisions endlessly

together with the ever-changing circumstances and disappointing news, the stress was

unimaginable for the parents.

“Is the condition really irreversible? How come – I believe he can go home with

me one day. No matter how slim our chances are, doctors must find a way to

help Tin Wing!”

“He is in such tremendous pain. Should I let him go?”

“How am I going to tell Grannies about this? Can they bear seeing Tin Wing in

this shape?”

As their social worker, I joined the family meetings with the medical team and supported

them in receiving the shocking news. I helped them get informed, so as to give them

the time and peace of mind to think through the next steps, and offered emotional and

psychological support wherever necessary.

It All Starts with the Family

37Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Time and again, I listened to the mother’s hopes, and carried her woes, anxieties and fears. “I believe he will get

better!” She kept telling me. Unfortunately, the much-awaited miracle didn’t happen. As the battle wore on, the

little body of Tin Wing could not afford more treatments and his condition intensified. His parents were in greater

despair as there was nothing they could do while their dear child suffered from the agonising turmoil of disease.

One midnight, I received an emergency call from a doctor at the Intensive Care Unit. Tin Wing was once again

on the verge of life and death, and his parents tormented by the misery and fear of yet another struggle. When I

arrived, the mother was drenched in tears. Grief and despair descended upon the ward of the Intensive Care Unit.

“The pain is too much for him. I really can’t bear to see him suffer. I would rather endure all these for him.

The life of bare bones is too cruel for the little boy…… I don’t know if now is time for me to let go. If it is too

early, I will regret it for life; but he is suffering so much that I don’t want to extend his pain any longer……”

From midnight to daybreak, the mother held Tin Wing’s hands in hers, and stroked his face while she recalled

everything about her son, from his personality, his interests to his happiest moments. Affectionate memories were

the greatest connection between parents and the child patient, as well as the most beautiful expression of love. I

was very grateful that Tin Wing’s mother shared with me these special memories of theirs. Tin Wing’s father could

not make it to the hospital that night. I suggested the mother calling the father, so he could be by Tin Wing’s side

through the phone and talk to him.

“If you are weary, put down your worries and be a little angel! We know you have tried your very

best……”

Parents must love so deeply when they are reluctant to let go, but if the time has come, they have no way but to

accept and allow it. How courageous one must be to embrace love and grief! Burdened by unmet wishes, tangled

emotions and extensive strain, and knowing that they would part with their beloved child very soon, parents’

sorrows were indeed unimaginable. Physical, psychological and spiritual support at this critical moment helped

reduce the regrets they might have.

As a social worker alongside the family, I was grateful for their unwavering trust for me to go through the challenge

with them. May God bless Tin Wing, and this family of love and courage.

Kathy FongSocial Worker

38 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Updates on the Long-term Follow-up Programme

Last summer, our Founder Chairman Miami Wu, Services Director Keynes Wong, survivor Kiki and I were invited to Shangtung to attend the 2017 Biennail National Childhood Cancer NGO Conference in Jinan, to enhance our understanding in the development of childhood cancer support in the Mainland and to share our experience in service implementation in Hong Kong. We also had the opportunity to listen to the survivors’ stories on their personal growth and search for life purpose.

The two-day conference was held in Shandong Qianfoshan Hospital with over one hundred participants, including parents groups and service providers from 14 provinces and cities. The conference covered medical lectures, survivor long-term follow-up forum, introductions on some of the support groups and service providers, and also survivors sharing their childhood cancer experience; all of which have enhanced my understanding and discovery on the service development of childhood cancer in China.

At the medical lectures, other than learning about their treatment development, the current status of their survivor long-term follow-up programmes, we have also learned that the Mainland has already started to use the CAR-T cell therapy for the treatment of leukaemia which is even more advanced than Hong Kong. Even though they are still facing many obstacles and limitations and the number of child cancer patients have outnumbered Hong Kong by several hundred times, the recognition of the fact that medical services in China are progressing steadily and in line with international standard is worthy of a celebration. As for community support, organisations in different provinces and cities have launched a variety of service programmes to fulfil the needs of their own community: some have started home visits by volunteers, some have provided temporary housing to families from afar seeking treatments, and some have offered recreational activities for the sick children. I admired the way these parents and community groups enthusiastically and tirelessly feeling the stones and forging ahead one step at a time.

After all, what touched me the most was the narratives shared by the survivors. “When I was little, someone would be heartbroken if I was hurt; someone would console me if I was down. Now when I run into problems, I have to learn to face it myself.” The lyrics of the song “My Way” by Cheung King Hin states viscerally the hopes and dreams of young people who yearn for independence and self-sufficiency, as they struggle their way to adulthood. This was also the song chosen by our survivor Kiki. She shared her story on how she suffered from the disease, the relapse after remission, the experience of her treatment process and how she, under the huge effort of the doctors and the care of her parents, walked from all the late effects, such as memory loss, to gradually finding her life’s goal. Her story deeply touched many parents in the audience.

Despite the differences in social environment between China and Hong Kong, with the continuous advancements of professionals and the selfless contribution of dedicated supporters, as well as the endeavour of parents of young cancer patients/survivors, the service providers from both Hong Kong and China have successfully developed the necessary and appropriate support services. I firmly believe that with the collective efforts of everyone, we can create a better environment to allow our cancer survivors to live a better and more wonderful life.

Chris NgCommunity Service Manager

Jinan Exchange – Let Survivors Explore their Own Path

39Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Our Rendezvous

Becoming a Budget Wise Little Chef!Budget Wise Little Chef? You need to manage money to cook? That’s right! The aim of this Families’ Club activity was not only to teach children cooking skills, but also impart the concept of budgeting. Unlike the previous cooking class, the instructor did not prepare any of the ingredients; instead the children were given a small sum of money to purchase ingredients collectively and cook party food enough for 20 people within a specified time. In the process, the kids had to communicate and work together with confidence, but for these children who rarely cook or deal with food, this could be a great challenge.

Ten kids participated in this two-day activity. On the first day, they received an assignment card telling them what they were supposed to prepare such as Honey-baked Chicken Wings, Flying Saucer Toasties, Spaghetti Bolognaise,etc., a total of eight different popular party food with various degrees of difficulty in preparation.

The group then discussed about the utensils and the cooking methods to bring these dishes to the table. Everyone talked enthusiastically and shared their cooking experience eagerly. When talked about what ingredients to get, they were bursting with ideas and diligently jotted down a list they needed. The focus and seriousness on how they handled the project was admirable, a scene comparable to what you would see in their classroom. At the supermarket they searched for the ingredients with opened eyes, some were responsible for calculation and others comparing prices, together there were

a lot of interactions and exchanges. During the process, everyone learned the concept of spending within a budget. After successfully accomplished their mission in buying all necessary ingredients within the $500 budget, they all jumped and shouted with joy at the checkout counter.

Some kids arrived early the following day to prepare the food and soon all of them got in on the act of cooking and prepping. The older girls started chopping and stir-frying away. Do not assume that boys did not contribute. They worked very hard watching the “fire” on the gas stove. Younger kids also paid their dues by stirring and mixing away and successfully made some Buttered Corn. After a three-hour battle, the kids completed all the dishes within the assigned time. Then it was time to invite parents to the table, to enjoy the fruit of their labour, in gratitude of all the care their parents have given them.

During the two-day activity, there were many amusing scenes such as the kids not knowing how to open a can or some didn’t even know what a can-opener looks like - tell-tale signs that they rarely go into the kitchen and know little about kitchen utensils or cooking. But children are by nature very curious and creative. Parents should take advantage of this and encourage their involvement in the minutiae of managing their daily lives so they may learn in the process. Even though the food the kids prepared could only be considered as party food, they have become the children’s signature dishes because some parents intimated that their kids had cooked the same food at home for other family members to taste and enjoy. I would think that if the same activity were to be done at home, the child would participate with equal enthusiasm. Sometimes all kids need is a space for them to express their creativity.

Tracy IpProgramme Officer

40 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Child Life ... More than just Fun

Crafting My Universe with Medical Art

Have you ever imagined that a syringe can turn into a pen, or a medicine bottle can be filled

with sand of different colours as a beautiful sand bottle? Dull medical items like medicine cups,

medical gloves and surgical caps can transform into an exquisite piece of artwork in the hands

of child patients. The making process is also beneficial to them. Why is that so?

What is medical art?Medical art is a common intervention method of child life specialists. As a

response to the stress of child patients in hospitals, medical art inspires their

curiosity and creativity, and encourages them to look for the extraordinary in

medical items, helping them to cope with the fear and uneasiness associated

with these items. Child patients in hospitals are stripped of the power over their

own bodies in order to receive treatments. Over time, the passivity deepens their

sense of helplessness, which adds up to become an emotional burden. Creative

arts empower child patients to think out of the box and overturn common perceptions of medical items, morphing

fear and anxiety into fun and self-autonomy.

From the experience of child life specialists, children handle and recover from adversities better than adults. In

the face of illness, it is intuitive for them to cry and resist, but it doesn’t mean they are weak. If their family can offer

a sense of consolation and security, and if the medical team trust them and let them express themselves, they

usually recover well emotionally, sometimes even faster than adults. Living in the moment and

leaving tomorrow’s problems until tomorrow, their cheerfulness motivates them through the

difficulties, and it is the work of child life specialists to bring out this inner strength in children.

Medical art values the self-initiative in children to creatively craft boring materials into innovative

artworks, and helps them rebuild their self-identity in the process of treatment. In the creative

realm, children have a say, and they can make their own decisions. Disassembling medical

items and reconfiguring them channels the frustration in the medical experience. Finishing an

artwork also brings a sense of accomplishment that beats the helplessness in a sickbed.

Child Life ... More than just Fun

41Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Is medical art a kind of art therapy?Medical art is not art therapy. The creative process of medical art does not seek to identify the underlying needs of children. The role of

child life specialists is to give children an opportunity to express themselves creatively, to appreciate their openness to communicate, and

to have fun with them. Child life specialists facilitate the play and encourage children’s creative juices to flow such that everyone enjoys

the fun of art!

The Children’s Cancer Foundation is publishing a Medical

Art Book, sponsored by the United Overseas Bank Limited

Hong Kong Branch and designed by the Handscript, with the

aim of introducing the applications of medical art. Our child

life specialists wish to inspire more children by bringing the

method to the Chinese society. Dedicated to child patients and

the medical staff, the collection gathers 50 works of medical

art that hopefully will bring more creativity to the ward!

Tammy LoyProfessional Services Manager

Child Life

The Medical Art Book coming soon!

42 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Passing It On

More than two decades ago, artiste Leslie Cheung donated HK$1 million to our Foundation

and ran “The R.E.D Card” fundraising campaign.

In the spirit of his compassion, his fans have been

organising events to raise funds for our Foundation

as well.

Passing Love On

We receive cal ls f rom executors of deceased taxpayers learning about our services,

as the deceased made a wish to donate their

funds to our Foundation. Knowing our work in-

depth helps the executors fulfil the last wishes of

the deceased to contribute to society.

A young girl passed away. The mother hopes to make a donation to the Foundation to support cancer-

stricken children and families, as the daughter used to

devote herself to volunteer work and helping underprivileged

communities, and was a child cancer patient herself.

Every year, people from all walks of life raise funds for our Foundation in various ways, like shaving their heads, holding charity

sale, going on round-the-island bike trips, or donating the royalties on their publications. Legacy giving is one of the more

subtle ways, and the stories behind are also the most touching to us. These gifts from heaven are more than a sum of money;

they extend the value of love.

Over the years, our Foundation has received enquiries about the particulars of legacy giving, especially from the families of

deceased donors. Paying due respect to the last wishes of the deceased, they inquire about our services and the uses of our

funds in detail, with the hope that every penny is well spent. We are greatly indebted to our honourable donors who sow the

seeds of kindness when they pass away, and watch over those battling with cancer through the tree of life they grow. Their

trust enables us to care for the everyday life of child patients and their families, and serve their physical and emotional needs

with the donations.

Regardless of the amount, we value every contribution. We do not actively organise fundraising activities, and we are not

subvented by the government, The Community Chest of Hong Kong and The Hong Kong Jockey Club. All donations come from

the public and organisations.

Humbled and thankful, we value the gift from heaven.

43Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Life’s Opus

The purpose of the Club is to provide a platform for the bereaved parents. Through a range of activities, they are able to get to know

each other, to share their feelings and to provide mutual support. In the past 10 years, there were over one hundred families joining

the Bereavement Club. Reaching its 10th year, with the current update on the Club’s memberships, there are over 80 families actively

involved.

The Club has been organising a varieties of activities, such as setting up grief support groups for parents in different hospitals or with

different religions, art therapy groups, handicraft groups, lectures, memorials, meditation classes, balloon twisting classes, sports

activities such as yoga, Wing Chun, etc., and also sightseeing and outdoor activities for the whole family.

On Mother’s Day 2017, the Bereavement Club organised a large-scale memorial at The Hong Kong Polytechnic University. Mother’s

Day is one of the saddest and most difficult days for the bereaved mothers. The memorial was held to let them know that they are not

suffering alone and there are others who understand their feelings.

The event allowed parents who have lost a child to mourn together. Besides the memorial, the Club also invited Mr Chan Chi Ho, the

Associate Professor of the Social Work Department of The Hong Kong Chinese University to give a talk on “Forgotten or Unforgettable?”

After the talk, a coach took over 80 attendees to the Tai Po Water Front Park and Nai Chung to release “Love Balloons” into the sky. The

balloons were all written with love messages on how they miss their child. They hope that their little angel in heaven will receive this

special gift from the family.

There are different methods and avenues to express and manage emotional pain, that is why CCF set up the Bereavement Club

in hoping that, other than the traditional one-on-one counselling, it can use a diversified approach to walk the journey with these

bereaved families to support and grow with them. Our way forward, the Bereavement Club will dedicate itself to continuously

providing innovative services to serve these families in need.

Molin LinConsultant

Children’s Palliative Care

Bereavement Club Ten Years Review

The Bereavement Club was founded by CCF 10 years ago.

The Chinese name “Fate Wind Rendezvous 緣風會“

was suggested by a bereaved mother. She said:

Fate brought us together in this realm

Yet, helplessly faded away like wind

Look forward to our rendezvous in heaven

CCF decided to adopt the name because it reflects the heartfelt wishes of the bereaved parents.

44 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

CCF Intelligence

What did you say? by Chris M.W

1 2

3 4

Inspiring Stories of Cancer Kids – If You Were in My Shoes is Published!Fully sponsored by WE Press, If You Were in My Shoes is a collection of

true stories about the journey of CCF cancer patients, parents, volunteers

and donors.

Content

- interviewing 13 cancer patients

and their parents, learning about

the i r ups and downs in the i r

journey of fighting cancer

- h e a r t - t o - h e a r t c o n v e r s a t i o n

with a group of loyal volunteers

reminiscing how they became

long-term supporters

- magnificent stories behind the ‘unsung heroes’ supporters of CCF

- members of our staff sharing their experience of 28 years of caring

service

If You Were in My Shoes is now available in all major bookstores at

HK$100. All proceeds from the sale of 2000 copies will be donated to

CCF. Get yours while stocks last!

A New Logo for Child Life Service!

A cloth doll dressed in superman's cape.

Isn't it lovely?

A plain white cloth doll is a unique tool for a child

life specialist: kids can draw on its face or body as

a medium to express themselves; together with

other medical items, it can turn into a useful

tool for explaining medical procedure. Using this

doll as a logo can truly reflect the essence of our

Child Life Service – to enhance the kids’ power of

resilience and to explore their inner potentials.

L e t ’s g i v e a r o u n d o f a p p l a u s e t o e v e r y

child's inner “superhero” !

Wow! These look

so delicious!

What did you say,

Jibanyan?

Meow! Meow! Meow!

Whisper,the

mouse ran

over them!Meow!

Did you

eat it?

BBBLLL...AAARRR...GGGHHH!!!!

Fund-raising Activities

* Repeat donor

45Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

May–October 2017

Date Donor/Organiser Event Amount (HK$) Remarks

2017

May Marco Polo Hotels–Hong Kong* Marco Polo Loyalty 900.00

Programmes

May-Jul Pacific Club* Charity Auction & 148,675.00

Raffle Tickets Sale

May-Oct The Castello Club Castello Generous 3,348.00

Exchange Square

May-Oct Hong Kong Commercial Share My Song Programme 5,884.83

Broadcasting Co Ltd*

May-Oct St. Baldrick’s Foundation* Head Shaving Event 1,292,911.49 The event was held on Mar 16,

May 12, 13, 17, Jun 15, Sep 1 and

Oct 27, 2017. The fund was

designated for childhood cancer

research.

( Total amount raised in 2017 was

HK$2,402,574.89)

May-Oct Dr Peter Teo* Fund-raising Campaign 175,543.40

Jun 3 Tyler Photography 泰來攝影研藝坊3週年晚宴 12,540.00

—義賣 T-shirt籌款活動

Jun Diocesan Girls’ Junior School* Mini Bazaar 8,000.00 The event was held on Dec 20, 2016.

Jun Diocesan Girls’ School* Mini Bazaar 5,000.00 The event was held on Dec 20, 2016.

Jul 16 United Overseas Bank Limited The UOB Heartbeat 410,703.00 Sponsoring the Sunshine School and

Hong Kong Branch* Run/Walk 2017 Back-to-School Home-based Tutorial

Programmes for one year’s operating

cost.

Date Donor/Organizer Event Amount(HK$) Remarks

2009

Fund-raising Activities

* Repeat donor

46 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Date Donor/Organiser Event Amount (HK$) Remarks

2017

Jul Hong Kong Sanatorium & Walk for a Vision 2017 546,500.00 The event was held on Mar 26, 2017.

Hospital The fund was designated for Hong

HKSH Village Volunteers Kong Retinoblastoma Awareness

and Education Campaign.

Jul-Oct Great Eagle Holdings Limited* Great Eagle Casual Wear Day 33,490.00

Aug 6 Smiling Seed Education Centre* Charity Concert 13,790.00

Sep 30 Mr Tony Ho IRONMAN for Kids 242,032.00 The fund was designated for

Fund-raising Activity childhood cancer research.

Sep-Oct Mrs Gaylene Meeson* Charity Sale & Be Bold Go 28,177.40 The fund was designated for

Gold 2017 childhood cancer research.

Oct 31 Lick Hang Kindergarten Halloween Charity 4,560.00

Party 2017

Oct Hong Kong Baptist Convention Charity Events 10,391.50

Primary School

Fund-raising Activities

* Repeat donor

47Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Date Donor/Organiser Event Amount (HK$) Remarks

2017

Oct Yaumati Catholic Primary Charity Book Sale 23,447.00 The event was held between

School (Hoi Wang Road)* Sep 2016 and Sep 2017.

Special thanks to

(1) Ms Susanna Iu Shuk Ching for a donation of HK$1,536,000 for sponsoring the Drug Sponsorship Programme.

(2) BBG Magazine, HKTDC Enterprise, Modern Home and Sisters Beauty Pro for the free advertising space.

(3) The following organisations for placing the Foundation’s donation boxes on their premises:

Action Waterfall Kinetic Stretch Soho Kitchen

Backyard Llegend International Training Institute South China Athletic Association

Bright Diva International Limited Long Pig Daddy Kitchen Today Speed Photofinishing Centre

Eastrip Travel Co Ltd The University of Manchester V & B Cuisine Limited

Worldwide Limited

Galaxia Clubhouse Metropark Hotel Mongkok Victoria Recreation Club

Geodis Wilson Hong Kong Limited My Music Company W. Burger

Grand Waterfall Net Travel Welldone Learning Centre

Guangdong Hotel Oh! My Dog Wharney Guang Dong Hotel

Hebe Haven Yacht Club once upon A Babe

Holiday Inn Express Hong Kong Causeway Bay Park Hotel

A note of thanks is also due to the many unlisted individuals and organisations that have made generous donations/donations in kind

or have lent their support to the Children’s Cancer Foundation.

(The organisations above are listed in random order )

Patient and Hospital Services

48 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

May – October 2017

Sunshine School May – Oct 187 patients with 166 parents and 39 siblings attended 74 sessions.

Home-based Tutorial ServiceMay – Oct 159 patients attended 159 sessions.

Mathematics Tutorial ClassMay – Oct 59 children attended 20 sessions.

Other ActivitiesMay Two board games sessions were conducted for nine patients at Queen Elizabeth Hospital (QEH).

Seven Mother’s Day arts & crafts sessions were conducted for 24 patients at The Lady Pao Children’s Cancer Centre, Prince of Wales Hospital (CCC) and Queen Mary Hospital (QEH).

May 13 Six parents and eight children attended the Mother’s Day flower-making workshop at CS & RC.

May 14 Special thanks to the Department of Health Technology and Informatics, Faculty of Health and Social Sciences, The Hong Kong Polytechnic University for providing the venue and volunteers support. 54 parents and 21 siblings from 35 bereaved families attended a memorial to commemorate their deceased child. 11 bereaved siblings joined the small group activity. (Please see page 43 for details )

May 20 Special thanks to Chow Tai Fook Charity Foundation. 12 families including 23 children and 24 parents had a day of fun at the Ocean Park.

Five parents and seven children attended the Dragon Boat Festival dumpling-making workshop at CS & RC.

May 27 Five parents and seven children attended a parent-child vegetarian cooking class at CS & RC.

May 28 24 parents and 21 children visited the Tsz Shan Monastery.

Jun Five Father’s Day arts & crafts sessions were conducted for 23 patients at CCC and QMH.

Jun 11 Special thanks to the Hong Kong Philharmonic Society Limited. 11 parents and nine children attended the Ping Pong Diplomacy concert at the Hong Kong Cultural Centre. .

Jun 24 Special thanks to the Department of Ophthalmology and Visual Sciences, The Chinese University of Hong Kong for offering two sessions of eye screening programme for brain tumour patients/survivors and parents. 40 parents and 40 children participated in the screening.

Jun 25 20 parents and 18 children had an outing at Tai O.

Jun 26-30 11 patients of palliative/poor prognosis cases, each accompanied by one parent enjoyed a five-day trip to Tokyo and Hakone. Special thanks to Dr Yuen Hui Leung of QEH for his voluntary escort.

Jul A DIY slime group activity session was conducted for five patients at QMH.

A balloon twisting class was conducted for three patients at QEH.

Two board games sessions were conducted for six patients at QEH.

Three arts and crafts sessions were conducted for five patients at QEH.

A movie session was conducted for five patients at CCC.

Jul 8 Nine parents and three children from eight families attended the Brain Tumour reunion gathering.

Special thanks to New World Development Company Limited. 117 parents and 117 children watched the movie Despicable Me 3.

Jul 9 Special thanks to Goldman Sachs and their 15 volunteers; and special thanks to Kerry Hotel for providing the venue and sponsoring the lunch buffet for the children. 22 parents and 24 children attended an English Fun Day Programme.

Jul 20 19 children attended the Ocean Park Academy Shell Education Programme.

Jul 22 & 29 Special thanks to Ms Chim Sau Yee. Four parents and seven children attended a Zentangle workshop at CS & RC.

Jul 25 & 27 Special thanks to Sunshine Ambassador Anson Chu and his parent. Four parents and eight children attended an origami workshop at CS & RC.

Aug Six arts and crafts sessions were conducted for 33 patients at QEH and QMH.

Two balloon twisting classes were conducted for five patients at QEH.

Six board games sessions were conducted for 19 patients at QEH.

A hospital bingo session was conducted for four patients at QMH.

Two medical art play sessions were conducted for four patients at CCC.

Aug 5 Seven parents and nine children attended a Tie Dye Workshop at CS & RC.

Aug 8 & 10 Seven parents and 10 children attended the Budget Wise Little Chef cooking workshop at CS & RC.

Aug 12-13 32 parents and 34 children attended the Summer Camp at the Hong Kong Federation of Youth Groups - Jockey Club Sai Kung Outdoor Training Camp.

Aug 17 & 24 Seven parents and seven children attended the cooking class at CS & RC.

Aug 19 Special thanks to Henderson Land Development Co. Ltd. and their 10 volunteers. 10 parents and 20 children took part in the Let’s Music workshop at the MaD Good Lab.

Primary Tutorial ClassMay – Oct 29 children attended 29 sessions.

Youth Mutual Support GroupMay – Oct 52 survivors attended 9 sessions at Community Service and Rehabilitation

Centre (CS & RC).

Patient Services Regular Activities (based on number of attendance)

Patient and Hospital Services

49Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Aug 19, 29 & 31 One parent and eight survivors attended a running training programme at Kowloon Tsai and Sham Shui Po Sports Ground.

Aug 20, Special thanks to Hebe Haven Yacht Club. 18 survivors attended the Pico Training.Sep 3, 10, 17 & 24

Aug 30 Special thanks to Hang Tak Buddhist Hall Association Ltd. 10 parents and five children attended a Chinese Opera.

Sept A teen movie night was conducted for two patients at QMH.

Three ukulele classes were conducted for six patients at QEH.

Two board games sessions were conducted for six patients at QEH.

A scientific activity and learning session was conducted for two patients at QEH.

Two Mid-Autumn Festival lantern-making sessions were conducted for eight patients at QMH.

Sept 9 Special thanks to Hang Tak Buddhist Hall Association Ltd. 12 parents and six children attended a Chinese Opera.

Sept 11 32 parents and two siblings from 23 bereaved families visited the Tai Po Tsz Shan Monastery.

Sept 16 Special thanks to New World Development Company Limited. 17 parents and 19 children from 10 families had a day of fun at the Ocean Park.

Sept 17 25 parents and 23 children attended the Epicland Day at Discovery Bay.

Sept 23 Special thanks to Balance Bike Group Hong Kong. 14 parents and 16 children attended a balance bike trial class at SKH St. Simon’s Lui Ming Choi Secondary School.

Sept 30 11 parents and five children from 11 families attended the Brain Tumour reunion gathering.

Oct Four Mid-Autumn Festival lantern-making sessions were conducted for 18 patients at CCC and QMH.

Three arts & crafts sessions were conducted for 19 patients at QEH and QMH.

Four ukulele classes were conducted for six patients at QEH.

Three board games sessions were conducted for nine patients at QEH.

Oct 11 Special thanks to Hong Kong Breast Cancer Foundation. 13 parents and four children had a chance to watch the Prudential Hong Kong Tennis Open 2017 at Victoria Park.

Oct 21 Seven parents and eight children attended the Recycle Tote Bag Workshop at CS & RC.

Oct 21-22 15 patients participated in the Hebe Haven Yacht Club 24-Hour Charity Dinghy Race. Three Sunshine Ambassadors were twisting balloons at the booth and nine family members also participated in the event.

Oct 24 & 31 Six parents and six children attended the Sunshine Choir practice at CS & RC.

Financial AssistanceMay - Oct Financial assistance was provided for the following: (1) 13 drug sponsorships at HK$1,622,831 (2) one wig (3) living expenses (4) funeral expenses (5) travelling allowance (6) subsidy for home removal

Half-way HomesMay - Oct A total of five families used the Half-way Homes.

PublicationJul CCF Newsletter Vol. 52

Hospital ServicesSept 20 The quarterly Coordinating Committee Meeting with CCF and doctors from the five major public hospitals were held at QEH.

Medical EquipmentTuen Mun Hospital Four Bedside Monitors Four NotebooksQueen Elizabeth Hospital One High-back Chair Two Mattress Overlays

Medical Training May 10-12 Two doctors from The Hong Kong Paediatric Haematology & Oncology Study Group attended the 28th Annual Meeting of the International BFM Study Group at

Jerusalem, Israel.

Aug 11-13 50 doctors and nurses from various provinces attended The National Continuous Education Course on Paediatric Haematology and Oncology at Xinjiang, China, co-organised by the Shanghai Children’s Medical Centre and The Lady Pao Children’s Cancer Centre, Department of Paediatrics, The Chinese University of Hong Kong, Prince of Wales Hospital.

Research GrantsMay-Oct HK$1,289,784 for a three-year project: A Preclinical investigation on the role of CD9 as an inhibitor of paediatric acute myeloid leukaemia by regulating progression

and chemosensitivity conducted by the Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong.

Other SponsorshipsMay-Oct HK$9,600 including air ticket and hotel accommodation for an expert in neuroblastoma from Japan to present at the 13th Congress of

Asian Society for Paediatric Research (ASPR) held on October 7, 2017 organised by the Hong Kong College of Paediatricians.

Patient and Hospital Services

50 Children’s Cancer Foundation Newsletter · Vol.53 · 2/2018

Staff TrainingMay 10, 17, 24 A Social Worker attended workshops on Case Supervision Certification Course organised by The Society for the Promotion of Hospice Care.

May 17 All CCF professional staff attended a talk conducted by Dr Shara Lee, Assistant Professor, Department of Health Technology & Informatics, Faculty of Health & Social Sciences, The Hong Kong Polytechnic University on Medical Imaging and Radiation Therapy: The Basic.

May 24 – Jun 2 Three child life specialists attended four introductory courses on Paediatric Palliative and Hospice Care entitled The Bright Project for Medically Complex Children at the United Christian Hospital (UCH).

May 25-28 The Services Director, Professional Services Manager – Child Life and a child life specialist attended the annual conference of the Association of Child Life Professionals in Las Vegas, USA.

May 27 The Professional Services Manager – Palliative and Home Care Service, two nurse specialists and a registered nurse attended the Practical Paediatric Cardiology Course 2017 organised by The Hong Kong Society of Paediatric Cardiology.

Jun 7 A social worker attended a workshop on Innovation in Social Work Practice organised by Department of Applied Social Sciences, The City University of Hong Kong.

Jun 15 The Professional Services Manager – Palliative and Home Care Service, two nurse specialists and two registered nurses attended a Paediatric Nursing Day seminar of Children’s Palliative Care Week at the Caritas Medical Centre.

Jun 16 The Professional Services Manager – Family Counselling and two social workers attended the Children’s Palliative Care Symposium – The Child’s Right to Palliative Care: The Next Horizon for Paediatrics organised by The Hong Kong Society of Children’s Palliative Care.

Jun 22 All Family Counselling Team social workers attended a workshop on A New Era in Childhood Brain Tumours: Can We Keep Up with the Changes in Diagnosis & Management? Neurocognitive Problems in Children with Brain Tumours - Local Experience, Neurorehabilitation for the Developing Brain organised by The Hong Kong Society of Child Neurology and Developmental Paediatrics.

Jun 29 Four child life specialists attended a workshop on the topic The Application of Play Therapy in End-of-Life Care organised by The Jockey Club End-of-life Community Care Project ( JCECC).

Jul 26-29 The Professional Services Manager – Palliative and Home Care Service and a nurse specialist attended the 12th Asia Pacific Hospice Conference 2017 held in Singapore.

Aug 9-10 Two nurse specialists, a registered nurse and a social worker attended the JCECC’s workshop on Specialised Bereavement Care: The Theory, Practise and Evidence of the Dual-Process Bereavement Group organised by the Social Science Faculty, The University of Hong Kong.

Aug 13 – Sept 1 The Services Director, Professional Services Manager – Child Life and Assistant Professional Services Manager – Child Life visited the child life programmes in three hospitals in the USA: Child Life, Music Therapy, and Creative Arts Department at the Huntsville Women’s and Children’s Hospital; Child Life Services at the St. Louis Children’s Hospital and Family Support Services at the Cook Children’s Medical Center for a training on Internship Supervision organised and sponsored by the Association of Child Life Professionals.

Sept 22 Two registered nurses attended a course on the Use of Bereavement Group in Supporting Bereaved People organised by the Centre on Behavioral Health, The University of Hong Kong.

Sept 25 The Professional Services Manager – Family Counselling, Assistant Professional Services Manager – Palliative and Home Care Service and a registered nurse attended a workshop on Demoralisation and the Application of Meaning and Purpose Theory in End-of-Life Settings organised by the Faculty of Social Sciences, JCECC, The University of Hong Kong.

Sept 27 All CCF professional staff attended a training at PWH on ALL Protocol, BMT and BMT Care conducted by Dr Vincent Lee, Dr Frankie Cheng and Ward Manager Ms Jeanny Cheung from PWH.

Oct 7 The Professional Services Manager – Palliative and Home Care Service, a registered nurse and four social workers attended the 14th Hong Kong Palliative Care Symposium organised by the Society for the Promotion of Hospice Care.

Oct 11-12, 23 A social worker attended the workshop on Uninterrupted Connection: Self-Reflective Journey in End-of-Life Care organised by JCECC.

OthersMay 9 The Hong Kong Children’s Hospital Commissioning Team visited the Department of Paediatrics and Adolescent Medicine of UCH, Dr Bill Chan and Professional

Services Manager – Child Life presented the Child Life Services.

May 15 The Professional Services Manager – Palliative and Home Care Service gave a service introduction at CS&RC to the nurses from QEH paediatric palliative care interest group.

May 25 The Assistant Professional Services Manager – Child Life gave a presentation on Child Life Service - Psychosocial Care to Hospitalised Children at the Post-registration Certificate Course in Paediatric Specialty Nursing organised by the Hospital Authority.

May 31 The Professional Services Manager – Palliative and Home Care Service gave a talk on Paediatric Palliative Home Care Service in Hong Kong to the nurses studying Paediatric Palliative Care Course organised by the Department of Paediatrics and Adolescent Medicine, UCH.

Jun 15 The Professional Services Manager – Palliative and Home Care Service gave a presentation on CCF Palliative and Home Care Service to the nurses working for paediatric patients in Paediatric Nursing Day seminar of Children’s Palliative Care Week at the Caritas Medical Centre.

Jul 22-23 The Founder Chairman, Services Director, Community Service Manager and a Sunshine Ambassador, Kiki attended the 2017 Biennial Conference organised by the Golden Ribbon Alliance at Jinan, Shangtung. (Please see page 38 for details )

Jul 27-29 The Professional Services Manager – Palliative and Home Care Service had a poster presentation on Ways to remember and leaving a legacy of love - The grieving process of bereaved parents who loss a young child at the 12th Asia Pacific Hospice Conference 2017 in Singapore.

Jul 27-29, Aug 1 The Services Director presented the service model of CCF at a conference on Social Services in Hospitals in Beijing organised by the New Sunshine Charity Foundation.

Aug 2 The Professional Services Manager – Child Life and a child life specialist presented at QEH paediatric department grand round, on their role in paediatric psychosocial care.

Sept 26 The Assistant Professional Services Manager – Palliative and Home Care Service shared the experience of her visit in July at the Star Pal (an NGO in Singapore which provides hospice care ) in the meeting of the Hong Kong Society of Children’s Palliative Care.

Sept 28 The Professional Services Manager – Child Life gave a lecture on the topic Child Life Service and Sick Children to the fourth year nursing students of the School of Nursing, The University of Hong Kong.

Public EducationMay - Oct Life Education Talks were given to seven secondary schools, with more than 1,898 students attended.

Great performance from our Sunshine Choir and Band!!!

“Smile!” Photo Studio

How can we not have Santa at Christmas~

Decorations are meticulously done👍

Great performance from our Sunshine Choir and Band!!!

Joy to the World …

governors singing emotively as the

Sunshine Kid’s fingers run freely on the

keyboard.

“Smile!” Photo Studio“Smile!” Photo Studio

So much funat the game booths!

Games are kids’ favourites!

Thanks to all staff and volunteers

for this joyful event

兒童癌病基金會訊.第53期.2/2018

CCF Comics / CCF漫畫廊

面對困難,你絕不孤單!

We are up against all difficulties together!

作者關慧芊是一名長期支持基金義工服務的康復者,希望透過漫畫將歡樂和關懷送給每位《童心》的讀者。

The cartoonist Tina Kwan is a survivor and a long-term supporter of CCF volunteer work. She hopes to bring laughter and to show concern to every reader of the CCF Newsletter.

27