1

To shatter limitations and elevate aspirations of teenagers living with cancer and blood-borne diseases.

2

3

To help young people living with metabolic, mitochondrial and rare genetic disease develop leadership, advocacy and life-skills in order to achieve good health, positive behavior, socioeconomic success and civic engagement.

The Face Forward Project

4

“Absolutely loved the collaboration with other youth service providers in New England – the beginning of a powerful voice in the provider community for youth”

Youth Task Force

6

7

Morning – Large Groups

8

Break Out Afternoons

9

Workshop BDating and Relationships: Whether you’re single and ready to mingle orbrought a shrine to your significant other in your suitcase, this workshop is for you. Learn the basics of relationships and romance, and how to start planning for a family down the road. Love expert Sharon Lincoln will go over everything from prom to parenthood, teaching you how to have fun while preparing for the future.”

Break Out Afternoons

10

Workshop A: “Road Trip through the Medical World: Travel with experienced guides Bill Kubicek and Mallory Cyr as they help you navigate the often confusing process of medical care transitions while learning how to stay in control and independent of your medical needs.”

Pre conference

Post conference

Song.Studio

11

Outcomes: N=24Participation in Song Studio Jam Sessions= 100%Participated in Performance= 95%Performed an original piece or on a new instrument=62%

Social Time

12

Making Connections

13

Resonating Experience

14

Face Forward Moves Forward

Youth Suggested Topics for 2012Living @collegeDiet/grocery tactics for those with MetoHow to get a place to live/how to live on your ownDealing with ignorant peoplePublic transportation/resourcesFamily life/how to start a fam/having childrenExternal/perinatal nutrition Sex (with tube, lines, limited mobility, chronic fatigue ect.)NutritionStress

15

Youth Lens & Power Podcast & Song Studio

Album & More….

16

17