11 September 2015Irish Patients Association Stephen McMahon Catering Management Association of Ireland “Patients Perspectives” Davenport Hotel June 23rd

April 19, 2023 Irish Patients Association Stephen McMahon

Catering Management Association of Ireland

“Patients Perspectives”Davenport Hotel

June 23rd 2011

Stephen A. McMahonChairman Irish Patients Association Dublin



Our Aims

• World class, patient centred healthcare system that is built on Patients Rights, Responsibilities and Trust.

• Ensure that the patient remains at the very centre of healthcare.

• Key to that goal is Patient Safety


About Us

- 1995- Limited by Guarantee 1999- Advocacy Body - Not Lobby Group- Listen and Learn from Patients Experiences- Work in partnership

Education/Research/Policy- Main Funding HSE Service Contract ’11 +

some pharma

• Association


What we Do• Listen to Patients and or their families• Provide them with information of how to have

their grievances heard • Provide them with Moral and Physical Support - • Advocate for them individually / collectively• Attend meetings with them or on their behalf• Arrange for counselling• Prepare cases for Reviews. Regulatory Bodies and

or hospitals ALWAYS AT THE PATIENTS OR FAMILYS PACE


Involvement

Medical EducationRegulatory BodiesAdvisory GroupsHSEDOHAdvice when invited Work with MediaEngage other groups with system


Disempowered


Our Agenda begins and ends with the

concept Patient is the Key Person!



• Be treated with dignity• Have equitable access to services and medications and innovation

• Have quality and safety proactive management Programs

• Have access to meaningful information

• Informed Consent• Have Robust grievance procedures

Patients Needs

Irish Patients Association S McMahon


Present and Future Patients Need


April 19, 2023

Impact on Brands think Reputation !• 1. BP: The brand went from 1st to 7th (of 7) on our Loyalty Index when the well

exploded. UK’s YouGov’s polls indicated no negative affects to the brand. The financials suggest the brand has lost all of its value in one year.

• 2. Toyota: The recalls – and attendant negative PR re: allegations that top execs knew, but failed to do anything – and liability suits resulted in a loss of nearly a quarter of the brand’s value.

• 3. Johnson & Johnson: Recalls can kill a brand, especially when you’re talking about medicine for infants and children, having to shut down plants, and stop distribution of your biggest names. Harder to swallow is a brand hit of nearly 30%.

• 4. Blackberry: Once the darling of businesspeople and Wall Street, the brand has

lost out to the iPhone, Android-based phones, and Samsung’s and LG’s (very) smart phones. Bottom line: brand value down nearly a third.

• http://www.b2cmarketinginsider.com/branding/brand-disasters-of-2010-05408 accessed 22/01/2011 16:00

http://www.b2cmarketinginsider.com/branding/brand-disasters-of-2010-05408

April 19, 2023

Health Care is Also a Brand HSE – Hospital – DOH&C – Minister

• Breast cancer misdiagnoses, unopened GP referral letters, unreported x-rays, ED crises, unacceptable waiting times for diagnostic procedures leading to delayed diagnoses, Nursing Home Scandals – these are just some of the issues that have raised very real and serious concerns in relation to patient safety in our health service over the last five years.




PatienPatienttsupport

support

powerpower

Health Health SystemSystem

Patient Centered Health Service

Society

Inter woven relationships


Principles of patient centered care

•Access to health care services warranted by their condition

•Information that is appropriate, relevant and timely

•Involvement of patients and patient representatives in all decision making processes which will have an impact on

patients’ lives

• Empowerment / motivation of patients to take responsibility for their health care and be independent as possible and for

patients organization to be recognized involved and encouraged to take a leadership role


Domains of Risk

Clinical

Medication

Management

Inequality of Access

Your part


The Industry• “The food and drink sector

is Ireland’s most important indigenous industry. 230,000 jobs are linked to it through direct and indirect employment. Produces €20bn It exports over €7bn of produce and it accounts for almost 50% of the goods and services sourced in Ireland by the manufacturing sector. The full extent of the supply chain, from farm to fork, is located here in Ireland.

Nutrition Issues !• Nil By Mouth had to check with nurse.

• Solid foods instead of mixed.

• Taking Away food before its begun/finished.

• Problems with diabetes needing fed certain times.

• Hygiene drinking water touching all glasses.

• Gloves Hands from bed pan to butter bread. (This was a few years ago !)

• Dietary requirements not being adhered to. Depend on patient to advise what's right etc,

Meals in A&E

• Facilities can be limited when overcrowding. The situation can be better for trolleys on wards. However , in all cases, it is difficult for patients to safely eat there meals and there are, for example , no bed trays available. Nor could bed trays be safely used as their use and storage would represent an unacceptable trip and fall risk, Infirm patients are at risk of scalds etc when trying to eat and drink in these difficult circumstances.

• NIL BY MOUTH PATIENT DIES AFTER BEING FED PUDDING”

• Wed February 2,2011• “A HOSPITAL trust has

apologized after a “nil by mouth” patient died when nurses gave him a sponge pudding and custard”


Family Impact Statement• “ She had a quiet life and she adored her

nephews' and nieces and dearly loved by us all. Our sister went into hospital for new medication as her old one was discontinued by the company – Not once but twice she had adverse reactions and no one listened. Now she is dead!”

• 99 % hiqa redc poll 2010 )wanted to be informed if something went wrong in treatment and said that providers should take steps to prevent mistakes and ensure learning takes place across the system to improve healthcare quality.

Mullingar Case• Address by Ombudsman• Emily O'Reilly at The Adelaide & Meath &

National Children's Hospital Annual Nursing Conference Oct 2010

• “The journey from complaint to enhanced patient care”

• Mullingar Case

Ombudsman Findings• Failure by M.O. to sign referral to S.L.T. on Morning of

admission despite urgent need for swallow assessment• SLT failed to pick up referral from ward as she promised to do.• CNM failed to contact the SLT when she did not return to pick

up referral.• Nursing staff failed to provide adequate nutrition, fluid or

medication • While objected to syringe feeding would not allow other

daughter to do so.• Nursing documentation of nutrition, fluid and medication were

not an accurate account of what had actually been provided.• Could any of this happen on your watch ?

Take Away !• Is the patient as the centre

of all your decision making ?• Are you just happy to meet

regulatory requirements or exceed them?

• Do you create opportunities to listen to your patients / staff.

• What programs do you have in place to record and learn from error?


Where Patients concerned we are all interdependent – There are no second class health professionals !

© Stephen MCMAHON Irish Patients’ Association


Thank You !

For Information Purposes only no part hereof intended as advice.

© Stephen McMahon June 22nd 2011

Documents

11 September 2015Irish Patients Association Stephen McMahon Catering Management Association of Ireland “Patients Perspectives” Davenport Hotel June 23rd