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2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation for children and youth with disabilities and special health care needs from traditionally underserved communities Laurie Glader, MD 206NR-S Presentation 4

2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

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Page 1: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

2011 OSEP Leadership Mega ConferenceCollaboration to Achieve Success from Cradle to Career 2.0

Opening Doors: Project Adventure

Inclusive mentored recreation for children and youth with disabilities and special health care needs

from traditionally underserved communities

Laurie Glader, MD206NR-S

Presentation 4

Page 2: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Opening Doors

Early Solutions: Ages 0-8 Identifying developmental and physical disabilities at a young age

Project Adventure: Ages 8-15 Improving health and well-being through community-based recreation

Opt4College: Ages 15-22 Focusing on transition to adulthood (with appropriate educational, rehabilitative, and medical services)

Opening Doors for Children and Youth with Disabilities and Special Health Care Needs: NIDRR Research and Rehabilitation Training Center

Page 3: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Why Project Adventure?

The Need: Children with disabilities and special health care needs are less likely to be involved in physical fitness programs

• Lack of opportunity• Need for supports

A Solution: Mentored, community-based inclusive recreation

• Any child or youth with disability and special health care need (CYDS)

• Trained volunteer mentor (“coach”) • Recreational activity of the child’s choosing• Community recreational facility

Page 4: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Project Adventure Research Study

Feasibility• Child-coach pairs met weekly for 6 months • Recreational and fitness activities chosen based on

child interests and goals• Community partnership: Greater Boston

YMCA Network• Support for family & coach memberships• Community facility staff versed in disability awareness

Impact• Children, families, mentors, community

Page 5: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Participants Children • 6-15 years • special health care need & disability• many from typically underserved groups

Screening for safety• Participation cleared by primary physician• Screened for motor issues requiring individualized

PT recommendations• Screened for significant behavioral concerns

Recruitment • Community Based Organizations• Children’s Hospital Boston and affiliates

Project Adventure Participants

Project Adventure Participants

Page 6: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Project Adventure Coaches

College and graduate students interested in careers in health sciences and related fields (pre-med, PT, OT, nursing, phys. ed., education, etc.)

Community members

Coaches:

screened In collaboration with

trained Partners for Youthwith Disabilities

supervised

Page 7: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Project Adventure: Results

75 child-coach pairs studied• Range of special health care needs and disabilities: Autism,

Down syndrome, spina bifida, cerebral palsy, etc.• Range of activities: swimming, basketball, weight- lifting, rock-

climbing etc.

Feasibility: Mentored recreation allows for successful inclusion of children with a broad range of abilities and backgrounds in community-based physical activities

Impact: Preliminary qualitative outcomes from participants indicate positive effects in all groups

Program development and sustainability• Training Manual• Manual for program development

Page 8: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Project Adventure Implications

All children benefit from recreationChildren with a broad range of abilities

and backgrounds can participate successfully in mentored recreation

Programming can be created which is safe and rewarding

Tools exist to assist with flexible program development

Page 9: 2011 OSEP Leadership Mega Conference Collaboration to Achieve Success from Cradle to Career 2.0 Opening Doors: Project Adventure Inclusive mentored recreation

Opening Doors: Project Adventure website

http://www.openingdoorsforyouth.org/let-the-fun-begin