2013AnnualReport

Center for IndependentLiving of Central PA (CILCP)

Independence, Integration and Inclusionfor People with Disabilities

Mission Statement ............................................................................................. 2Our Vision .......................................................................................................... 2Message from the Board President .................................................................. 3Message from the Executive Director .............................................................. 42013 Board of Directors ..................................................................................... 5Living Well With A Disability ........................................................................... 5

SERVICES Living Well Independent Living Services .............................................. 6 Health & Wellness Services ...................................................................... 7 Home Services .......................................................................................... 8 Independent Monitoring for Quality (IM4Q) ....................................... 9 Specialized Services .................................................................................. 9

ADDITIONAL ACTIVITIES Living Well With A Disability Conference & Expo ........................ 10-11 Dedicated to the Memory of Mike Auer ............................................... 12 Services to Businesses ............................................................................ 13

Management Staff ........................................................................................... 14Direct Service & Office Staff .......................................................................... 14 2013 Financial Information .......................................................................15-17

Table of Contents

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The mission of the Center for Independent Living of Central Pennsylvania is to eliminate and prevent barriers that people with disabilities experience by providing ongoing advocacy and offering innovative programs and services.

The Center for Independent Living of Central Pennsylvania envisions a society where persons with disabilities are empowered to fully exercise their rights and fully participate in all walks of life that will enable them to Live Well.

The Center for Independent Living of Central Pennsylvania (CILCP) is committed to providing services, making referrals and taking employment actions without regard to age, ancestry, color, disability, national origin, race, religious creed, sex, veteran status or any other characteristic protected by applicable federal, state or local laws or ordinances.

The Mission Statement

Our Vision

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Message from the Board President

The untimely death of Mike Auer—our well-respected controller—upset the entire Center Staff and Board. The Pennsylvania Association of Non-profit Organizations (PANO) had asked Mike to share his financial policies and procedures to use as an example for other non-profits that were working toward accreditation of Standards for Excellence. PANO is very particular about the quality of information they share. Meeting their standards is no small feat.

While we are nowhere near the budget we had before the Governor closed all non-profits that were providing payroll services, we have really bounced back from the depression his actions caused us. We are making positive financial gains. Currently we are poised to make additional gains in discretionary funds that will enable us to increase the services we provide to our nearly 1,000 consumers.

It was a tough year for the Center. We were affected both morally and mentally. The reduced staff put a severe strain on the remaining staff. Stress was at an all time high. Soon, we hope to be able to begin building our staff to its former strength. We will continue to pull together, and we will pull through this dark period.

One of the year’s highlights was our organizing and sponsoring a statewide Living Well With A Disability Conference and Expo. This three-day event featured over 80 exhibitors with the latest and test proven hardware and software for people with disabilities. Nearly 900 people attended this independence-promoting event.

On another positive note, we recently learned that our Center is one of only 200 non-profits in the nation to achieve Standards for Excellence accreditation.

Tucker Hill, President CILCP Board of Directors

Tucker Hill, President Board of Directors

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Greetings,

It was the beginning of the New Year in January when the CILCP had its first all staff meeting. This is the time when I usually announce The Theme of the Year. I shared with my staff the exciting theme.

The Theme is “New Beginnings”. I then shared why I selected it. I explained to my eager staff what this theme meant to me. I shared that throughout all of the previous year’s difficulties and struggles that the agency had experienced that I had felt like a heavy weight was bearing down on me and I wanted to just give up. I shared with my staff that they too might of felt that way. We had gone through a lot in 2013, budget cuts, layoff of co-workers, loss of programs and the devastating death of a co-worker who we will miss dearly.

I then offered them new hope through a quote that had refreshed and renewed my energy and caused me to select the 2014 Theme. It is a quote by Louis L’Amour, “There will come a time when you believe everything is finished. That will be the beginning”.

The CILCP is forgetting about the past and moving full speed ahead towards, “New Beginnings”. We will re-examine ways to begin serving our consumers better by offering innovative programs and services, by truly connecting with our consumers and stakeholders in meaningful new collaborations.

We ask that all of our consumers, agencies, businesses and friends join us as we move ahead towards our, “New Beginnings”!

Thank you, Theotis W. Braddy, Executive Director

Message from the Executive Director

Theotis W. Braddy, Executive Director

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2013 Board of Directors

Living Well With A Disability™

Living Well With A Disability™ is an initiative established by people with disabilities, for people with disabilities to achieve goals, meet challenges, fulfill dreams and, ultimately, to live well! We understand that each person’s description of Living Well With A Disability is different. Whether a goal is to cook a big meal for the family, hike the Appalachian trail, participate in a wheelchair race, start an internet radio show, drive an accessible van, scuba dive all over the world, or fly a plane, Living Well With A Disability will work to find the resources to meet the need!

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Tucker Hill, President

David Reager, Vice President

Sarah Galbraith Laucks, Secretary

Jennifer Zampogna, Treasurer

Craig Bachick

Thom Glace

Ann Keiper-Smith

Vini Portzline

David Simonic

Frank Tomasic, Jr.

In 2013 the Living Well Program provided information and referral to 1017 callers. Information and/or referrals included: housing, home modifications, nursing home transitioning, attendant care, accessibility, transportation and assistive technology. 206 consumers received one-on-one services in advocacy, peer mentoring, attendant care, housing/home modifications, and assistive technology and 12 individuals transitioned from nursing homes.

Living Well Independent Living Services

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“I like being Free. You did a very good job and I really appreciate it a whole lot. I hope you can help other people like you and me.” — Gary, NHT consumer

“Yinz really helped me out”— Cathy NHT consumer

Health & Wellness Services

In 2013 the Fitness Center provided one-on-one training to 42 consumers and started a SilverSneakers Fitness Program in February. SilverSneakers was a great success growing from 5 to 25 participants the first year. The Fitness Center continues to offer healthy lifestyle opportunities by providing an encouraging environment that promotes independence, integration, and inclusion through physical fitness and socialization.

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The Housing Program continued the pilot program for a Home Modification Construction Officer, a grant administered by the PA Housing Finance Agency (PHFA). 88 modifications were completed through this grant with an additional 92 referrals. Funds were also received from the Stabler Foundation and Dauphin County Case Management Unit (CMU) with specific criteria to provide home modifications. In 2013, 28 jobs were completed, 38 new jobs were started and 18 new referrals were received for home modifications.

Home Services

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Independent Monitoring for Quality Program (IM4Q) is an “independent” program contracted to work with 6 counties in central PA. The program is independent of all providers and programs providing services or supports to individuals with intellectual disabilities.

A team of two independent monitors meets with the individual, their family members, staff and whoever else the individual chooses to be present. They work through a 75 point survey that is focused on quality of life issues related to the services and supports they are or might be receiving. With the individual’s permission the information is shared with the state, county, supports coordinator, provider, etc. to assist in helping to improve the quality of life of an individual with an intellectual disability. In 2013, we conducted 334 surveys!

Nursing Home Transition (NHT) Services are provided to eligible persons under 60 years of age living in nursing homes to coordinate their move into the community. NHT Services were provided to Adams, Bedford, Blair, Cambria, Cumberland, Delaware, Franklin, Fulton, Huntingdon, Juniata, Mifflin, and York Counties. During 2013, eleven people moved from nursing homes back to the community through this program.

CILCP continued providing Specialized Services and Durable Medical Equipment statewide to eligible participants who live in a nursing home. Services include training, assistance with moving, community integration, peer counseling and referrals for assessments for Durable Medical Equipment. In 2013, 438 consumers received Specialized Services and 2100 consumers received Durable Medical Equipment Services.

Independent Monitoring for Quality (IM4Q)

Specialized Services

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Living Well With A Disability Conference & Expo

In August 2013, CILCP presented the first-ever Living Well With A Disability Conference & Expo, a four-day event that brought together the disability community from the mid-Atlantic region. The only event of this kind in the region, it offered 6 main sessions, a selection of 35 concurrent sessions and a 2-day Expo with more than 80 exhibitors plus events and activities.

The purpose of the Conference and Expo was to provide information, resources, education and encouragement to live well with a disability. While there have been 8 preceding statewide independent living conferences in Pennsylvania, the Living Well With A Disability Conference and Expo set the bar much higher. The event asked people to think beyond their basic needs and to identify their dreams and aspirations. It challenged attendees to not just exist within their current environment, but to live their very best life.

Key accomplishments for the event included:• Nationally known celebrity speakers with disabilities including

comedian Josh Blue, MasterChef season 3 winner Christine Ha, and Push Girls star Tiphany Adams

• Main sessions on Employment and Technology.

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Living Well With A Disability Conference & Expo

• First ever Expo introducing attendees to national providers of equipment and services such as Permobil, Rifton, Colours Wheelchair, CaptionCall, SleepSafe Beds and many, many more.

• Film series at the Conference, presented by filmmaker Narcel Reedus and screening 6 films as well as a session for attendees on creating their own film stories.

• Concurrent session speakers from the region and across the country giving attendees access to a wide range of education.

The event succeeded in broadening people’s thinking and opened the doors to new opportunities and resources that people may not have envisioned.

By the numbers, the event featured 6 main sessions, 35 concurrent sessions, a 2-day expo with 85 exhibitors, 800 adult and 80 children attendees at the expo, and 270 attendees at the conference.

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Dedicated to the Memory of Mike Auer

2013 saw many unhappy changes for the CILCP, the closing of the outreach office in Perry County, the downsizing of staff, and the uncertainty of funding. But the most devastating blow to CILCP came in August with the unexpected death of our Controller, Mike Auer.

Mike was employed at the CILCP for eight years and served as Controller for seven years. He was deeply engaged in the independent living movement and advocated for the rights of people with disabilities. Prior to working with CILCP, Mike had been the executive director at Life & Independence for Today (LIFT), executive director of PA Council on Independent Living (PCIL), and an active member and participant of ADAPT, a national grassroots organization. According to Mike’s wife, Pam, he really cared for the staff and consumers he worked with over the years. When things got tough that was a challenge he gladly accepted. Mike loved hiking, hunting, fishing, and gardening. His quiet strength is missed by all who knew him and worked with him.

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Dedicated to the Memory of Mike Auer Services to Businesses

CILCP staff continued to offer Disability Awareness training to business throughout 2013. As an added bonus to the trainings offered to

businesses CILCP had two staff trained as part of the ADA Leadership Network. The Mid-Atlantic ADA Leadership Network (ADA-LN) is a group of qualified trainers conducting ADA training throughout the Mid-Atlantic Region using the Northeast ADA Center at Cornell University’s Modularized ADA Curriculum.

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Theotis W. Braddy, Executive Director

Janetta W. Green, Director of Operations

Marilyn Zarreii, Controller/HR

Suson Akakpo-Martin, IM4Q Coordinator

Pam Auer, Director of Living Well

Margo Brown-Binder, Services Supports Coordinator

Patricia Burke-Dawson, Accounting Supervisor

Teresa Carrera, Nursing Home Transition Specialist

Jim Cavanaugh, Accounting Clerk

Robert Clapp, Services Supports Coordinator

Brittany Hall, Office Services Manager/Enrollment Specialist

Madeleine McMahon, Services Supports Coordinator

Ann Neimer, Director of Specialized Services

John O’Rourke, Services Supports Coordinator

Yolanda Quinones, Services Supports Coordinator

Alyx Robertson, Administrative Assistant

Shaun Robison, Services Supports Coordinator

Shelby Rome, Living Well Specialist

Lynn Stewart-Krieger, Director of Housing/Compliance Specialist

Jesse Swoyer, Director of Fitness

Sean-Ray Williams, Living Well Hotline Specialist

Management Staff

Current Direct Service & Office Staff

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2013 Financial Information

Temporarily Permanently Unrestricted Restricted Restricted TotalREVENUEGrant & Contract Revenue $ 412,172 $ - $ - $ 412,172 Registration & Program Fees 2,591,031 - - 2,591,031 Donations 51,112 - 1,200 52,312 Interest 4,197 - - 4,197 Miscellaneous 1,487 - - 1,487 Change in Value of Beneficial Interest in Net Assets of Community Foundation 3,326 - - 3,326 In-Kind 59,878 - - 59,878 Net Assets Released from Restriction - - - -

Total Revenue 3,123,203 - 1,200 3,124,403

ExPENSESProgram Services 2,675,854 - - 2,675,854 Supporting Services Management & General 217,818 - - 217,818 Fundraising 7,703 - - 7,703

Total Expenses 2,901,375 - - 2,901,375

Change in Net Assets 221,828 - 1,200 223,028

Net Assets, Beginning of Year 59,871 74,075 5,007 138,953

Net Assets, End of Year $ 281,699 $ 74,075 $ 6,207 $ 361,981

Grant & Contract RevenueRegistration & Program FeesDonationsOther

Grant & Contract RevenueRegistration & Program FeesDonationsOther

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2013 Financial Information

SUPPORTINg SERVICES

Program Management Services & general Fundraising Total

Advertising/Web Page $ 11,890 $ 1,784 $ 1,189 $ 14,863Conference & Meetings 122,736 12,274 1,363 136,373Contracted Services 254,964 26,913 1,416 283,293Dues, Subscriptions & Memberships 12,492 3,123 - 15,615Employee Benefits & Taxes 295,146 32,794 - 327,940Housing Renovations 772,507 - - 772,507In-Kind 47,902 11,377 599 59,878Insurance 13,372 3,343 - 16,715Interest 666 167 - 833Miscellaneous 29,651 1,492 62 31,205Moving Expense 8,758 815 - 9,573Postage & Shipping 5,825 874 582 7,281Printing & Publications 21,534 5,114 269 26,917Rent & Utilities 137,756 18,394 391 156,541Salaries 806,468 87,815 1,792 896,075Staff Training 4,023 548 - 4,571Supplies 18,158 1,977 40 20,175Telephone 21,157 1,114 - 22,271Travel 90,849 7,900 - 98,749

TOTAL ExPENSES $ 2,675,854 $ 217,818 $ 7,703 $ 2,901,375

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2013 Financial Information

CILCP is a 501(c)3 organization. The official registration and financial information of the CILCP may be obtained from the PA Department of State by calling toll free within PA, 1-800-732-0999. Registration does not imply endorsement.

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Advertising/Web PageConference & MeetingsContracted ServicesDues, Subscriptions & MembershipsEmployee Benefits & TaxesHousing RenovationsIn-KindInsuranceInterestMiscellaneous Expense

Moving ExpensePostage & ShippingPrinting & PublicationsRent & UtilitiesSalariesStaff TrainingSuppliesTelephoneTravel

Advertising/Web Page $ 11,890 $ 1,784 $ 1,189 $ 14,863Conference and Meetings 122,736 12,274 1,363 136,373Contracted Services 254,964 26,913 1,416 283,293Duend Memberships 12,492 3,123 - 15,615Employee Bene�ts and Taxes 295,146 32,794 - 327,940Housing Renovations 772,507 - - 772,507In-Kind (Note 7) 47,902 11,377 599 59,878Insurance 13,372 3,343 - 16,715Interest 666 167 - 833Miscellaneous 29,651 1,492 62 31,205Moving Expense 8,758 815 - 9,573Postage and Shipping 5,825 874 582 7,281Printing and Publications 21,534 5,114 269 26,917Rent and Utilities 137,756 18,394 391 156,541Salaries 806,468 87,815 1,792 896,075Sta� Training 4,023 548 - 4,571Supplies 18,158 1,977 40 20,175Telephone 21,157 1,114 - 22,271Travel 90,849 7,900 - 98,749 Total Expenses $ 2,675,854 $ 217,818 $ 7,703 $ 2,901,375

207 House Avenue, Suite 107, Camp Hill, PA 17011-2308(717) 731-1900 • 1-877-TO-LIV-WELL • 1-800-323-6060 • Fax: (717) 731-8150

TTY: (717) 737-1335 • TTY: 1-800-829-7404 • www.cilcp.orgThis publication is available in alternate format upon request