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2013 ANNUAL REPORT

2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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Page 1: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

2013a n n u a l r e p o r t

Page 2: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

join the movement @ msnewengland.org

Dear Friends:

For 28 years, it has been my joy and my privilege to lead the Greater New England Chapter of the National Multiple Sclerosis Society. After these many years, I made the decision to retire at the end December 2013. As I embark upon this next phase of my life, I will miss being part of the movement to create a world free of MS. Those who live every day with MS have truly inspired me to make our mission my life’s work.

It is amazing to look back and see the multitude of changes that occurred throughout our chapter, and the progress made for those with MS. In 1985, at what was then the Massachusetts Chapter, we served 10,000 families affected by MS. Our campaign income was $1.3 million, a fraction of what it is today. At that time, we were one of the first chapters to offer programs and services to people with MS. Today, we are a strong, four-state chapter that is part of a unified National MS Society, offering comprehensive support and direct services to nearly 19,000 individuals and their families coping with the challenges of living with MS.

I am proud in the knowledge that my work has helped to improve the quality of life for those living with MS. I am thrilled that during the time I worked for the Society, there were so many advancements in understanding the disease and in the development of treatments. I am proud that the Greater New England Chapter has been a major funder of this progress.

I am confident that I leave the Chapter in a strong position to move forward. And, I am very pleased that 11-year staff member Lori Espino will be the new Chapter President as of January 1, 2014. Her experience, skill, and dedication will lead the chapter to new heights.

I am grateful for the support and leadership that has always been provided to me by an exceptional Board of Trustees. I am very proud of the achievements of my team of staff and volunteers, and I am grateful for their commitment to be the best. I take satisfaction in the strong belief that people affected by multiple sclerosis have reason for great hope for a future when the world is free of multiple sclerosis.

Thank you for being part of the movement to create a world free of MS.

arlyn a. WhitePresident & CEO

Our mission is to mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

president’s letter

Page 3: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

The Greater New England Chapter and the National MS Society continues to gain momentum toward a world free of multiple sclerosis.

Dear Friends,

This 2013 Annual Report covers the fiscal year beginning October 1, 2012, and ending September 30, 2013. Our MS community in Maine, Massachusetts, New Hampshire, and Vermont is a vibrant collection of passionate individuals, who share an urgent desire to end multiple sclerosis forever.

Everything the National MS Society does is intended to help people affected by multiple sclerosis. In this report, you will read about the many ways in which we deliver on our mission, through MS education, emotional support, public policy advocacy, direct services, and research funding. 2013 saw yet another disease-modifying therapy approved by the US FDA; an oral medication, the third such treatment, offering patients and doctors even more effective choices.

Our work is made possible by the impressive fundraising carried out largely by thousands of individuals who volunteer their time and energy to walk, ride, run, and more, while connecting with their personal networks to ask for donations. Their Herculean labors, combined with generous corporate and individual support, yielded more than $12.6 million in revenue, for which we are eternally grateful.

The chapter takes great pride in its achievements, and in the outstanding leadership of our President & CEO, Arlyn White, who after 28 years of service, retired on December 31, 2013. Our expansion from Massachusetts to New Hampshire, then Vermont and Maine, combined with a continually increasing revenue stream and innovative ways of helping people affected by MS were all thanks to her brilliant stewardship. She will be deeply missed.

As Arlyn steered the chapter to growth and success throughout her tenure, she also helped chart a path for the future. We are excited for and confident in our new Chapter President, Lori Espino, who has been with us for 11 years as Executive Vice President for Resource Development. Under her direction, the Development Department has performed impressively during particularly difficult economic conditions. Her personal commitment to the Society’s mission is unquestionable, and her compassion for people who have MS is deep. Lori was the clear choice for the future, and she has the unqualified support of the Board of Trustees.

With the dedication of a robust MS community in Maine, Massachusetts, New Hampshire, and Vermont, there is no doubt that our connections will continue to expand and produce even greater results, moving us ever closer to a world free of MS.

Thank you for making your connection count,

Douglas e. Bryant Chairman of the Board

Chairman’s letter

Page 4: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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Join the Movement

About the Greater New England Chapter

TO CREATE A WORLD FREE OF MS

Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. Even teens and young children can have MS, which affects more than 2.3 million people worldwide.

The National MS Society helps each person address the challenges of living with MS. In 2013 alone, through our national office and 50-state network of chapters, the Society devoted more than $120 million to programs and services that improved the lives of more than one million people. To move us closer to a world free of MS, the Society also invested $48 million to support more than 380 new and ongoing research projects around the world. We are people who want to do something about MS now. Join the movement at nationalMSsociety.org.

In fiscal year 2013, the Greater New England Chapter spent 84 percent of monies raised on MS education, emotional support, public policy advocacy, direct services, and MS research for nearly 19,000 individuals and their families affected by multiple sclerosis. The chapter is governed by a dedicated volunteer Board of Trustees who work in partnership with a committed professional staff to advance the Society’s mission.

About the National MS SocietyThe vision of the National Multiple Sclerosis Society is a world free of multiple sclerosis.

What is MS

Page 5: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

Join the Movement

We partner with MS Clinical CentersThe chapter promotes access to comprehensive, coordinated medical care, and we know these highly-skilled physicians and other health professionals are making a difference. The chapter counts on MS Clinical Centers for expert coordinated care for people with MS. They count on us to spread awareness and to raise funds to support their work.

We educate, Support, and advocate for those with MSThe chapter is a reflection of the families who have been touched by MS. We meet them at educational programs and fundraising events. We see them at MS clinical centers. We talk to them over the phone, minutes after their diagnosis and throughout their lives. We honor our shared promise to provide these families with help for today and hope for tomorrow.

We Support researchSociety donors have seen their contributions launch breakthroughs in understanding MS and in developing new treatments aimed at stopping disease progression, restoring function, and ending MS forever. Since 1993, the US FDA has approved ten disease modifying drugs. And, there are more emerging therapies on the horizon, including a possible treatment for progressive MS.

Page 6: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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programs and ServicesWe develop, deliver, and leverage resources to enhance care for people with MS and quality of life for all those affected by the disease.Notable highlights:

P 17,440 people with MS subscribed to the Chapter’s MS Connection newsletter keeping people linked to the latest information on MS research, treatments, self-advocacy, and strategies addressing quality of life issues for all affected by MS.

P Chapter-sponsored in-person and teleconference classes helped 1,300 people with MS and their loved ones gain a better understanding about a myriad of topics from treating MS and its symptoms to employment and legal issues.

P Our MS Information Resource Center helped 1,748 individuals navigate the challenges of life with MS, connecting them to information, literature and valuable resources in the community.

P In addition, the Chapter staff provided more in depth consultation and tailored support for 776 people with MS to access the medical care they needed by partnering with leading centers for MS care, providing case management services; offering referrals to health providers with a special interest in MS, and providing financial assistance for necessary medical equipment and other medical needs.

P Accessing quality MS care can be difficult wherever you live. But, MS-related health care resources fall short the further someone is from an urban center. This year, the Chapter reached out to over 200 rural health centers, agencies, and health care providers in our rural communities across Maine, Massachusetts, New Hampshire, and Vermont to provide information and resources to improve health care delivery to those with MS.

P Public awareness and community health fair opportunities provided information to hundreds of people interested in learning more about multiple sclerosis and the National MS Society

P In order to increase our capacity to support our mission, conferences held chapter-wide prepared 50 volunteers to plan programs and public awareness events in their communities, complete site accessibility evaluations and advocate for public policy changes locally and at the federal level.

P We offered a wide array of customized health & wellness programs and exercise classes that encourage positive lifestyle choices, improve wellness and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their ability to manage life with MS. These programs included CogniFitness, Everyday Matters, ABC’s of Healthy Eating, Physical Wellness Reimbursement and MS specific-collaborative programming with YMCAs in eastern MA.

Page 7: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

P Our emotional support programs and services helped over 200 people cope with the emotional challenges MS can bring by connecting people to others through one-on-one peer support, 60 community-based self-help groups, and professional counseling services.

P As MS progresses, the Chapter fosters quality of life across the continuum of the disease providing support to 150 people in partnering skilled nursing facilities at the Leonard Florence Center for Living in Chelsea, Mass. and the Boston Home in Dorchester, Mass. as well as B.Fit!, the Chapter-supported MS Adult Day Program offered in partnership with The Boston Home.

P We provided over $226,000 in direct financial assistance to 407 people addressing the greatest needs, including emergency rent, utilities, and food, durable medical equipment, home modifications, home care and more. In addition to its own financial resources, the Chapter leveraged an additional $120,000 in community financial resources and an additional $4,600 from the Society’s Stepping Stones assistance program to support individuals and families and fill the gap when personal resources fall short.

P 16 College-bound students who have MS or who have a parent with MS received scholarships totaling $31,500 to help defray the cost of their first year of studies.

P We served as a resource and provided a formal professional education program to 53 neurologists completing their formal neurology residency training program, and supported two medical student fellowships that provided focused exposure to treating people with MS.

P Our Partnerships with 8 MS Comprehensive Clinical Care Centers allows us to make available the comprehensive resources of the National MS Society to complement the multi-disciplinary specialty health care provided for people with MS.

Page 8: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

join the movement @ MSnewengland.org

researchWe are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever. our Funding Has Been Critical In:

f Creating tools and processes to quickly and accurately diagnose MS f Developing most of the approved MS disease-modifying drugs f Identifying genes that contribute to MS susceptibility f Demonstrating a link between vitamin D and MS risk f Recruiting, training, and retaining leading MS researchers making breakthroughs today f Discovery of the potential for neural repair f Getting more potential MS therapies in the pipeline than at any other time in history

The National MS Society continues to pursue all promising paths to uncover solutions for everyone with MS, wherever those opportunities exist, while focusing on the three priority areas of progressive MS, nervous system repair, and wellness/lifestyle. We continue to see the fruits of previous investments, and we are committed to growing our research funding over time.

Significant research progress occurred over the course of 2013, offering new leads that are driving efforts to stop MS in its tracks, restore function, and end MS forever. We now have a better idea of what’s causing MS damage and progression, understand more than ever the benefits of early and continuous treatment, and know more about what factors influence the body’s brain repair mechanisms.

To read about the significant research progress made this year, including links to details, go to nationalmssociety.org/research for a complete list of recent research progress and news.

LOCAL RESEARCH AWARDS 20 Research Grants $9,039,092

8 Post Doctoral Fellowship $1,965,563

5 Health Care Delivery/Policy Contracts $2,032,900

11 Pilot Projects $473,534 u Total Research Investment $13,511,089

The National MS Society’s commitment to MS Research: f Cumulative research funding exceeded $818 million since our first research grant was awarded

f We invested $47.6 million to support over 380 research initiatives during 2013

abt associates, Inc. Sarah Shoemaker, Ph.D.

accelerated Cure project Robert McBurney, Ph.D.

Beth Israel Deaconess Medical Center Igor Korainik, M.D.

Center for Social Innovation Ellen Bassuk, M.D.

Dartmouth College Heather Wishart, Ph.D. Lloyd Kasper, M.D.

Harvard Medical School Sze-Ling Ng, Ph.D. Dimitry Ofengeim, Ph.D.

Harvard School of public Health Alberto Ascherio, M.D., M.P.H.

Harvard university Jack Strominger, M.D.

Massachusetts General Hospital Eric Klawiter, M.D. Caterina Mainero, M.D., Ph.D. David Rintell, Ph.D.

Massachusetts Institute of technology Krystyn Van Vliet, Ph.D.

tufts university Carla Brodley, Ph.D.

university of Massachusetts, amherst Richard Van Emmerik, Ph.D.

university of Vermont Dimitry Krementsov, Ph.D. Andrew Solomon, M.D. Corey Teuscher, Ph.D.

Brigham and Women’s Hospital Clare Baecher-Allan, Ph.D. Rohit Bakshi, M.D. Riley Bove, M.D. Philip DeJager, M.D., Ph.D. Murugaiyan Gopal, Ph.D. Samia Khoury, M.D. Vijay Kuchroo, D.V.M., Ph.D. Scott Lovitch, M.D., Ph.D. Lior Mayo, Ph.D. Sarah Minden, M.D. Francisco Quintana, Ph.D. Howard Weiner, M.D. Chuan Wu, M.D.,Ph.D. Zongqi Xia, M.D., Ph.D. Sheng Xiao, Ph.D.

loCal GranteeS

Page 9: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

advocacyMS Action Day at the

Massachusetts State House

We are all MS activists. Activism is an integral component of our organizational mission. Everyone who is affected by MS is called upon to be an activist. MS activists drive public policy by making their voices heard and by sharing their stories with public officials.

Action Alert NetworkThere are more than 6,700 registered Greater new england Chapter activists in the MS action alert network. A number of our activists also have appointments to local disability commissions, advisory boards, work groups, and councils.

State & LocalChapter advocacy activities included lobbying state lawmakers about MS issues during MS Awareness Week. In Maine, Massachusetts, New Hampshire, and Vermont, volunteer members of our Government relations Committee (GRC) help define priority issues and engage in legislative, regulatory, and private sector advocacy.

FederalOur chapter delegation attended the Society’s 21st Annual Public Policy Conference in Washington D.C. to advocate for continued funding for National Institutes of Health, the Department of Defense’s Congressionally Directed Medical MS Research Program and the Food and Drug Administration.

Individual Achievement John pierce of Vermont was inducted into the Society’s Volunteer Hall of Fame in the advocacy category. Sarah Jacoby of Vermont and robin Steinwand of Maine received advocacy recognition at the chapter’s annual meeting. Ken Jones of New Hampshire received the Governor’s ADA award honorable mention.

Legislative PrioritiesMaine Advocated for expansion of Medicaid eligibility up to 138 percent of the Federal Poverty Level.

Massachusetts Successful advocacy for state funding for the chapter’s MS Home LINKS care management program.

new Hampshire Advocated for expansion of Medicaid eligibility up to 138 percent of the Federal Poverty Level.

Vermont Advocated for improved public accessibility in Burlington and telemedicine outside a medical facility.

Public Policy Conference, Washington, D.C.

John Pierce

Page 10: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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DevelopmentWe develop and align human, business, and financial resources to achieve breakthrough results.

8 Bike MS rides $3.9 million raised

3,669 cyclists

2-day rides: Cape Cod Getaway -

Massachusetts, June 29-30 Green Mountain Getaway - Vermont, August 3-4 Great Maine Getaway - Maine, August 10-11 1-day rides:

Ride the Vineyard - Massachusetts, May 4 Ride Bar Harbor -

Maine, May 18 Minuteman Ride - Massachusetts, July 20 New Hampshire Seacoast Escape - New Hampshire, August 17

Bike & Hike the Berkshires - Massachusetts, Sept. 21

48 Walk MS sites

$2.45 million 12,596 walkers

Walk MS connects people living with

MS and those who care about them. It is an experience unlike any other — a day to come together, to celebrate the progress we’ve made, and to show the power of our connections.

Walk MS is not just a fund raising event; walk is about community and rallying around those living with MS.

MS Challenge Walk $987,990 817 Challenge participants

The twelfth annual MS Challenge Walk brought together an incredible group of 532 walkers, 204 three-day crew, and 65 one-day volunteers for an exciting and rewarding

journey on Cape Cod. 2013 was a two-day, 50K walk, with a three-day, 50-mile option. The weekend

featured moving personal testimonials plus an emotional candlelight ceremony that bonded walkers, crew, and volunteers. The Challenge culminated with an exhilarating finish on the

Hyannis Village Green.

The Greater New England Chapter conducts fundraising around four broad categories: mass market/endurance events, special events, community fundraising events (by private individuals), and traditional giving. The next two pages are fundraising events offered by the Chapter. Traditional giving, community fundraising, and corporate sponsorship are acknowledged in the list of donors on subsequent pages.

Page 11: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

Special events $2.76 MillionFashion plates - Boston, Ma

Boston Volvo Village 5K road race - Boston, Ma

Climb to the top - Boston, Ma

Women on the Move luncheon - portland, Me

Marathon Strides against MS - Boston Marathon®

MileStones Gala - Boston, Ma & orono, Me

Muckfest MS - Devens, Ma

MS plane pull - portland, Me

link up for MS - Ipswich, Ma

MS Harborfest - portland, Me

Dinner of Champions - Burlington, Vt

labor Day 5K - taunton, Ma

Page 12: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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VolunteersWe are leaders in the worldwide MS movement, mobilizing millions of people to do something about MS now.

Volunteer Recognition 2013 Awardees

THE CHAPTER MOVES FORWARD BECAuSE OF VOLuNTEERSVolunteers lead the Chapter into new directions and help to expand the impact of the MS movement by fully integrating volunteer talents and skills Society-wide and by developing new and enhanced community collaborations and partnerships.

In 2013, the Chapter worked with over 3,500 individual volunteers who filled over 5,500 volunteer positions. They gave 65,000 hours of their time, talents and expertise. All of the Chapters volunteers are always relentlessly positive about their passion for our mission.

Laura Palasciano .................................. Vermont Self Help Group LeaderSandy Scruton .................................... New Hampshire Self Help LeaderGrace Clement ......................................... Maine Self Help Group LeaderLori Race ..................................... Massachusetts Self Help Group LeaderT.J. Kelly ........................................................................MS Vacation WeekPauline Ellis ..................................................................MS Vacation WeekStephanie Annichiarico ..............................................MS Vacation WeekDorothy Wideman ...............................................Multicultural OutreachGlory Wideman-Hughes ......................................Multicultural OutreachKellee Lee ..............................................................Multicultural OutreachMelanie Morris .....................................................Multicultural OutreachSharon Froston .....................................................Multicultural OutreachRicky Jones ............................................................Multicultural OutreachBernadette Johnson ..............................................Multicultural OutreachRobin Steinwand .............................................................Maine AdvocacySarah Jacoby ................................................................Vermont AdvocacyWanda Getchell ..................................................................Direct ServicesBob Ottavi .................................New Hampshire Community ProgramsMax Michaud ...........................................................................Alida CampCharlie Neudorfer ........................................................... Youth Volunteer

Maryann Luongo .............................................................Office VolunteerDorrie Riley ......................................................................Office VolunteerLinda Austin .....................................................................Office VolunteerAdam Pinkney .....................................................Massachusetts Walk MSJason Carrier........................................................Massachusetts Walk MSJim Bradley ........................................................... Massachusetts Bike MSDan Young .......................................................New Hampshire Walk MSPeg Dennehy ..................................................... New Hampshire Bike MSEvan Sivo .......................................................................Vermont Walk MSSusan DeMay ................................................................. Vermont Bike MSKevin Allcroft ............................................. Walk MS Special RecognitionThe Hershey Family .................................. Walk MS Special Recognition Jeff Ponkey ...........................................................................Event SupportTyler Ponkey .........................................................................Event SupportBrenda Neary ...................................................................CommunicationsMarsha Harris ..................................................................CommunicationsGary Gilman ............................................................... Teno Gaudin AwardCCG Portland Division Naval Sea Cadets ......Rising Stars Youth AwardMS Plane Pull Committee/FedEx and Portland Jetport ..Beacon AwardKelly Nieuwejaar .......................Jean Gannett Hawley Memorial Award

Page 13: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

National MS Society, Greater New England Chapter ∫ Annual Report ‘13

Chapter FinancesEighty-four percent of monies raised directly supported the Society’s mission.

Complete, audited financial statements are available on request.

revenue

Walk MS ...............................................$2,450,754

Bike MS ................................................. $3,897,983

Challenge Walk MS ................................$987,990

Special Events .....................................$1,963,903

Contributions ......................................$2,814,543

Government Grants ................................. $75,000

Legacies .................................................... $194,406

Other Revenue ........................................ $220,082

u total revenue ...........................$12,604,661 Less Benefit to Donor ................-$1,579,909

Net Total Revenue .............$11,024,752

Walk MS19%

Bike MS31%

Challenge Walk MS

8%

Special Events

16%

Legacies>2%

Grants>1%

Other Revenue 2%

Contributions22%

National Programs

17%

Research23%

Client Programs

20%

ProfessionalEducational 3%

Community Programs 11%

Public Education 10%

Administration2%

Fundraising14%

expenses

Research ............................................... $2,322,100

National Programs ............................$1,667,364

Client Programs (ME,MA, NH & VT) ....... $2,032,457

Community Programs .......................$1,089,836

Public Education ............................... $1,000,812

Fundraising .......................................... $1,381,065

Professional Education & Training ........... $331,128

Management & General ...................... $240,764

u total expenses ................ $10,065,526

Change of Net Assets .................. $959,226Net of Benefit to Donor

Page 14: 2013 - National Multiple Sclerosis Society · and independence. These life-changing programs helped 100 people optimize function, overcome challenges and feel more confident in their

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We are grateful to all of our friends who support the Greater new england Chapter of the national Multiple Sclerosis Society through their energies, talents, and gifts. this list represents those who have made individual contributions of $1,000 or more to our annual Fund, our fundraising events, or in honor or in memory of another. thank you for this significant outpouring of assistance. We could not continue to move forward without your participation!

Donors - Golden Circle

premier $25,000+ff CF & MS Fund Foundationff The Donald C. McGraw Foundation, Inc.ff Friends of Metrowest Clinic, Inc.ff Ms. Claudia Goldinff Mr. & Mrs. Robert Keeleyff Mr. Jonathan S. Lavineff Massachusetts Department of Publc Healthff Mr. Robert L.W. McGraw & Mrs. Elizabeth H. McGraw

ff Medical Information Technology, Inc.ff Mr. Scott Randellff R.H. White Companiesff The Claudia & Steven Perles Family Foundationff Mr. & Mrs. Richard Slifkaff Yawkey Foundation

Visionary $10,000 - $24,999ff Acadian Asset Managementff Anonymousff Ms. Jan Brett & Mr. Joseph Hearneff Camp Burt-Tetlow Foundation, Inc.ff W. Clement & Jessie V. Stone Foundationff Mr. & Mrs. Arthur J. Colliasff Community Health Charities of New Englandff Mr. Eric Dunphyff Mrs. Sandra & Mr. Paul Edgerleyff Mr. & Mrs. Joseph Fallonff Mr. & Mrs. Peter Galliganff Mr. & Mrs. David Gladstoneff Mr. & Mrs. Leif Jacobsenff Mrs. Charlotte Kaitzff Mr. Jeffrey Katzff Mr. & Mrs. Eli Lipconff Maine Community Foundationff Mr. Thomas Martin Charitable Trustff Robin & Peter Matt Charitable Fund

ff Mr. & Mrs. Eli A. Rubensteinff The Barbara Epstein Foundationff The Boston Foundationff The Honorable Mitt & Mrs. Ann Romneyff Mr. & Mrs. Paul Van Houtenff Mr. Arthur K. Watson, Jr.

leader $5,000 - $9,999ff Mr. Cesar L. Alvarezff Anime Bostonff Mr. Steve Barnesff Bloomberg LLPff Mr. & Mrs. Douglas Bryantff Mr. & Mrs. Louis Caputoff Ms. Christine Carberryff Mr. Gary Carlstonff Mr. Paul Caseyff Mr. Richard Cashinff Mr. & Mrs. Douglas Clarkeff Ms. Katherine Coakleyff Dr. & Mrs. Martin J. Cohenff Community Health Charities of Maineff Mr. John Connaughtonff Mr. John E. Crowleyff Mr. John W. Cullenff Ms. Marge C. Curryff Dr. David M. Dawsonff Mr. Michael F. Gossff Mr. Richard & Mrs. Jean Harringtonff Ms. Gail Kelly-Sheehanff Mr. Demos Kouvarisff Mr. Michael Krupkaff Mrs. Kathleen LaCroixff Ms. Lynne J. Lipconff Mr. John M. Luceyff Mr. David J. Lyonsff Mr. Karen Marinellaff Marjorie W. Sloper Charitable Foundationff Ms. Susan R. Martinff Ms. Elizabeth Allman Massoudff Ms. Ellen Bromley McFarlandff Mrs. Erin McMillan

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National MS Society, Greater New England Chapter ∫ Annual Report ‘13

ff Mr. & Mrs. Michael Mingolelliff New York Life Foundationff Ms. Piper McNealyff Mr. Mark Nunnellyff Mr. Eric R. Olanderff Mr. Andrew S. Parlinff Robin & Peter Matt Charitable Foundationff Mr. Maurice Samuelsff Mr. & Mrs. Ronald Schramff Mr. & Mrs. Robert E. Shapiroff Ms. Terrie Tadsenff The Meelia Family Foundationff Mrs. Debra J. Threlfallff Mr. Michiel Westerkampff Ms. Sarah Young

Champion $2,500 - $4,999ff Ms. Amy Avergunff BAE Systems Employee Community Fund, Inc.ff Mr. David C. Baldwinff Mrs. Chris Basiliereff Mr. Mark W. Begorff Bob and Linda Kearney Charitable Fundff Mr. Steven Bowmanff Boyle Transportationff Mr. & Mrs. Adam Brodskyff Mr. & Mrs. Daniel Browneff Ms. Mary E. Brunetteff Mr. Michael S. Bujnowskiff Dr. James L. Campbell, Jr.ff Mr. Louis M. Caputoff Ms. Katie Cardilloff Mr. Clark Chandlerff Mr. Norman C. Chesterff Mr. Richard F. Connolly, Jr.ff Mrs. Sue & Mr. Michael Curtinff Mr. Philip Derickff Mr. Anthony Everettff Mr. Thomas M. Feeleyff Mr. David J. Frammff Ms. Donna Frantzff Mrs. Jan & Mr. Tom Fullerff Mr. & Mrs. Robert Gartyff Ms. Stephanie Gertzff Jerome M. Goldstein

ff Mr. Jeffrey B. Hawkinsff Heidelberg Engineeringff Ms. Irene Haleyff Mr. Donald J. Hockman, Sr.ff Mrs. Melissa A. Huntff Ms. Mary E. Jalbertff Jordan L. Shapiro Trustff Ms. Courtney Kelleighff Mrs. Kate Kelloggff Mr. William Keoughff Ms. Joann S. Kramerff Mr. Jacob P. Lipconff Mr. Rodney Lukowskiff Ms. Maggie R. Lundff Ms. Cathy MacPherson ff Mr. Edward M. Manleyff Mr. Brian McKenzieff Mr. Michael E. Morinff Ms. Kristin W. Mugfordff Mr. Stephen Mugfordff Mr. David W. Murrayff Mr. Michael Olafssonff Mr. James E. Oneillff Mrs. Barbara R. Palmerff Mr. Charles M. Palmerff Mrs. Kristen L. Pareff Mr. James W. Parmeleff Mrs. Ginny Perronff Mrs. Michelle L. Pimentelff Mr. Janardhan Reddyff Mr. Wayne S. Reisnerff Mr. Eric S. Ritvoff Ms. Karen O. Shanleyff Mr. Edward Shugrueff The Admundsen Group, Inc.ff The Allyn Foundation, Inc.ff The Janey Fund Charitable Trustff TJX Companiesff united Way of Massachusetts Bay & Merrimack Valleyff united Way of Greater Portlandff united Way Of Tri-County, Inc.ff Ms. Marjorie Van Houtenff Mark & Nicole Vecchiottiff Mr. Michael D. Wardff Ms. Helyn Wynyard

ff Mr. Andrew Zimmon

pacesetter $1,000 - $2,499ff Mr. Edward N. Akiyamaff Alan & Elizabeth Kopin Family Fundff Mr. George Albrecht, Jr.ff Ameriprise Financial Annual Giving Campaignff Mr. David G. Andrewsff Mr. Dean Andrewsff Mr. Peter Anticoff Arbella Insurance Companyff Mr. Peter Ardenff Mr. Peter Arestyff Mr. Armando Assisff Dr. Lisa Atkinsonff Miss Ruby G. Baker-Poveromoff Mr. Mark Baldwinff Ms. Marguerite Baldwinff Dr. Robert T. Baldwinff Mrs. Joanne M. Balshiff Ms. Brenda Barbourff Ms. Marie B. Barrettff Barrington Foundationff Mr. Julius Baskysff Ms. Gale Beatonff Mr. Brian Berubeff Mrs. Kathy Belisleff Ms. Mary Lou Bennettff Mr. Matthew H. Bensonff Mr. John B. Bergenff Mr. Jeffrey Berkowitzff Mr. Kenneth Bickfordff Big Y Foods, Inc.ff Mrs. Marguerite E. Bilmsff Ms. Robi Blumensteinff BNY Mellon Community Partnershipff Ms. Cyndi Bolcomeff Mr. James J. Bolgerff Mr. Daniel C. Bouchardff Mrs. Tina L. Bouchardff Mr. James G. Boudreauff Mr. Andre D. Bouffardff Mr. Todd Bourellff Mr. Michael C. Braunff Ms. Janie Bravermanff Mr. Ross R. Brewerff Mr. C Kevin Bridgesff Ms. Janet Brochuff Mr. Mike L. Brochu

ff Mr. Karl Broehmff Ms. Mary N. Brooksff Mr. Michael Brooksff Mrs. Melanie A. Brosseauff Mr. Dale Brownff Ms. Carliss Brownff Ms. Marcia Brownff Mr. Remi Browneff Dr. Amy Brumfieldff Mr. Robert Brunelleff Ms. Deborah J. Bryanff Mr. Bernard Byrnesff Mr. Ralph Cadmanff Mr. Anthony Callinaff Mr. Dale Carletonff Mr. Paul J. Carneyff Mr. Roy E. Carpenter, IIIff Mr. J.M. Carvalho, IIff Mr. Christopher Caseyff Mr. and Mrs. J. R. Caseyff Castanea Partners, Inc.ff Ms. Fay M. Chandlerff Mr. Stephen E. Champagneff Mr. Amit Chandraff Charles W. Benton Company Inc.ff Ms. Nicole Charltonff Mrs. Stephanie M. Cherensonff Mr. & Mrs. S. Woodworth Chittickff Mr. Paul Ciampaff Mr. Emilio Ciasulloff Dr. Christine Clemson ff Dr. Maurice Cohenff Dr. Randy Comfortff Commonwealth Surgical Solutionsff Mr. Steven Connollyff Mrs. Melissa Conroyff Ms. Amy B. Cookff Ms. Marian u. Coppersmithff Mr. Frank Corcoranff Mr. William J. Coughlinff Ms. Marg A. Corjayff Mrs. Carolyn Coulterff Ms. Deborah A. Cousinsff Ms. Denise Croninff Mr. Ken Crottyff Ms. Samantha Cummingsff Jory Curranff Ms. Julie Curtis

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ff Mr. Donald Cutlerff Ms. Debra A. Dantesff Ms. Ann M. Davisff Mr. Daryl C. Dawsonff Dr. Glen E. Davisff Mrs. Marna Davisff Mr. Michael M. Davisff Mr. Ray J. DeBloisff Mrs. Kathleen M. DeLucaff Ms. Joann M. Denisoff Mr. Peter J. deSilva, Sr.ff Ms. Julie A. Devineff Mr. Leo E. Devineff Mr. Sean Dohertyff Mr. Matthew R. Doughertyff Ms. Vicki L. Drougasff Mr. Jay L. Duffnerff Mr. Justin M. Dunieff Mr. Kevin J. Dunnff Mr. John C. Dunneff Mr. Robert Dupontff Mrs. Marilyn L. Duvalff Mr. Stephen R. Duvalff Dr. Susan Ebbsff Mrs. Jeannet Eiermannff Mr. David Eikenberryff Elden Mandler Gift Fundff Ms. Barbara A. Emersonff Mr. David Erbff Mr. Ethan Evansff Mr. Michael Ewaldff Mrs. Joy M. Farrff Mr. Joseph Fasslerff Ms. Sally Fasslerff Mr. Daniel P. Feheleyff Mr. John A. Ferriss, IIIff Mr. E. Michael Fitzsimonsff Ms. Janice Fiskeff Flower Foods Bakeries Groupff Mr. James F. Fournierff Mr. Michael Foyff Dr. Thomas J. Fraites, Jr.ff Ms. Anne Francisff Ms. Mildred Friedmanff Ms. Regina C. Fuertesff Mr. Lyle Fulkersonff Ms. Jennifer B. Fultonff Ms. Jane M. Gagneff Mr. Ken Galeuciaff Mr. George Galvin

ff Mrs. Candice M. Garabedianff Ms. Katherine Garayff Mr. David J. Garretsonff Dr. Mark G. Gilchristff Mrs. Kathleen M. Goebenff Mr. Bruce Goodmanff Mr. Craig Goodmanff Mr. Jonathan Goodmanff Mr. Martin Glazerff Mr. David Grabelff Mr. Frank Gradyff Ms. Loriellen Grandeff Mr. Paul Grantff Mr. Robert B. Grantff Mr. Bob C. Grieshaberff Mrs. Heather L. Griffinff Mrs. Julie H. Griswoldff Ms. Jennifer Grunbeckff Ms. Amy M. Gussackff Gustave G. and Valla Amsterdam Foundationff Drs. John & Olga V. Guttagff Mr. Stephen Hainesff Mr. Alan K. Halfengerff Ms. Diane M. Hallff Mr. John A. Hamelff Mr. Robert Hannaff Mr. Harry A. Hanoianff Mr. Dennis P. Hanoldff Dr. Daniel S. Harropff Ms. Holly Hatchff Mr. Michael Hatfieldff Ms. Phyllis Troupe Hawkinsff Mr. Randolph G. Hawthorneff Mr. Philip C. Hayesff Mr. Galit Heimlichff Ms. Karen Heitingff Ms. Gretchen & Mr. Xavier Heraultff Ms. Ruth Henryff Mr. Sean Hethermanff Mr. Robert J. Hickeyff Mr. Jim Hildebrandtff Mr. Steven Horowitzff Ms. Rebecca Houdeff Mrs. Margaret C. Houldingff Mr. John N. Howardff Ms. Patricia Howardff Ms. Mary A. Irishff Mr. Raymond B. Jacoby

ff Mr. Vladimir Jelisavcicff Mr. Rafael Jimenezff Mr. David A. Johnsonff Mr. Joshua Johnsonff Mr. Robert E. Johnsonff Mr. Kenneth Jonesff Mrs. Susan S. Josephff J.P. Morgan Chase Bank NAff Mrs. Suzan S. Kaitzff Mr. Michael Kaneff Mrs. Madelline S. Kangff Ms. Joan Kaplanff Dr. Jonathan D. Kaplanff Ms. Wendy B. Kapiloffff Mr. William E. Katzff Mr. Stephen L. Kauferff Mrs. Elizabeth Keeganff Ms. Julie Kelleherff Dr. John Kelleyff Mr. Matt Kelleyff Mr. & Mrs. Brandon Kellyff Mr. Scott Kellyff Mr. Thomas Kellerff Kimberly Clark Foundationff Mrs. Diane Kingff Mr. and Mrs. Michael Kingff Mr. William J. Kingston Jr.ff Mr. James P. Kirbyff Ms. Carole Knightff Mr. Stuart Koenigsbergff Ms. Michelle Krassopoulosff Mr. Louis W. Krueff Ms. Ann M. Kuderff Mrs. Jill G. Lagaceff Dr. Robert M. Lallyff Mr. Mark Lapmanff Mr. Allen Larsonff Mr. Michael LaVitaff Ms. Joanne L. Lavoieff Mr. Paul Lebelff Mr. John Leethff Mr. Paul Leiteff Mr. Craig Lewisff Mr. & Mrs. Kurt Liberatoreff Mr. Richard A. Libertyff Mr. James Liburdaff Mrs. Terry C. Lindseyff Mr. Michael J. Linnaneff Long Term Care Partners LLCff Mr. James Lipcon

ff Mr. Tyke A. Lothropff Ms. Elizabeth M. Loughlinff Mr. Phil H. Loughlinff Mr. Paul S. Lowryff Mr. Robert P. Luckeyff Mr. David Lurieff Mr. Walter E. Lynchff Ms. Michelle Maclellanff Mrs. Susan Madiganff Ms. Paige Magrattenff Mr. James A. Manzi, Jr.ff Mr. Philip Marksff Robert & Cynthia Marrff MathWorksff Mr. Ihab J. Massoudff Mr. Robert Matejekff Ms. Kirsten Mayff Mr. David McCarthyff Mr. Mark McConnellff Mr. Thomas McCormickff Ms. Beberly McDonaldff Mr. David McElhinnyff Mr. Kevin McGuirkff Mrs. Jennifer McKenzieff Mr. Scott McMenimenff Ms. Kara Meadeff Mr. William McMeekinff Ms. Hope T. Meelyff Mr. Joseph McMullenff Mr. John J. McNamaraff Ms. Patricia McSweeneyff Mr. Stephen McSweeneyff Ms. Barbara Meikleff Mr. Theo Melas-Kyriaziff Mr. Wilfred Mercadoff Ms. Denise Messineoff Mr. Jack R. Meyerff Mr. Glen Misiaszekff Ms. Elizabeth Michelenaff Middlesex Central District Medical Societyff Ms. Cassandra Milhoneff Mr. Daniel Minrzff Mr. David Momborquetteff Ms. Nicole M. Monfredoff Mrs. S. G. Montroneff Ms. Judith A. Mooreff Mrs. Leanne Mooreff Ms. Nancy Mooreff Mr. & Mrs. John J. Morgan, Jr.

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National MS Society, Greater New England Chapter ∫ Annual Report ‘13

ff Ms. Mary E. Morrisonff Ms. Lori Morrowff Mr. Chris Morseff Mr. William F. Mullenff Mrs. Jodie F. Muellerff Mr. John D. Mulattieriff Mr. Dan M. Mungovanff Mr. Philip Murrayff Mr. Esteban B. Neelyff Mr. Kevin F. Neillff Mr. Donald D. Nelson Jr.ff Dr. John Neuhauserff Mr. Charles S. Nolanff Mr. Laki Nomicosff Mr. Kenneth J. Novackff Mr. Micheal Novogratzff Mr. Charles Nowlinff Mr. Christopher O’Connorff Ms. Mary Alice O’Connorff Mr. Tom O’Deaff Mr. John F. O’Donnellff Ms. Elizabeth O’Haraff Mrs. O’Mahony & Sons Electrical, Inc.ff Ms. Anne Marie O’Reillyff Mr. William Osbornff Mrs. Patricia Ostremff Ms. Aideen O’Sullivanff Ms. Elizabeth Overbayff Mr. Jason M. Paineff Mr. David Parkerff Mr. Nicholas Pascaleff Ms. Kate Patton-Regalff Mr. Luis H. Perezff Mr. Anthony P. Petersonff Mr. William M. Peverillff Mr. uy Phuff Mr. Mark A. Phillipsff Ms. Tanya L. Pintoff Mr. Peter A. Podurskiff Ms. Amy Puchrik-Viensff Ms. Jane S. Pyeff Mr. Tim Quillff Ms. Susan Ragonff Rebecca W. Wise, Goldsmiths, Inc.ff Mr. Josh Reynoldsff Mr. Mark P. Reynoldsff Mr. Tim Reynoldsff Mrs. Kristin Reed

ff Mr. Peter Reedff Mr. Tomas Reveszff Ms. Frances Richardsff Alex Rigopulosff Mr. Christopher Riordanff Mr. Jonathan P. Ritzff Dr. Edgar Robertsonff Mr. Rod Rodriguesff Mrs. Lisa A. Rolfeff Roth Family Foundationff Ms. Jennifer Rootff Mr. Steve Roszakff Mr. Terry W. Rothermelff Ms. Judith Rubinff Ms. Roberta L. Rubinff Mr. Marc E. Rudickff Mr. George Ruegerff Ms. Lisa Russellff Mr. John Rutherfordff Mr. Louis F. Ryanff Mr. Salvatore Salamoneff Mr. & Mrs. Richard P. Salinskyff Ms. Laura L. Sandersff Mr. Robert Schlagerff Mrs. Eleanor Sandlerff Mr. Edmund Sassoonff Ms. Keily Sawyerff Ms. Helen Saylesff Ms. Carol Schneiderff Ms. Karen S. Schullerff Mrs. Judith B. Schumacherff Ms. Arlene N. Scozzariff Mr. Curwood Sessoms, Jr.ff Mr. Manhar C. Shahff Ms. Lisa Shapiroff Mrs. Helen Sharplesff Mr. Timothy Sheehanff Mr. Donald L. Shulmanff Mrs. Nadia A. Silvaff Mr. Michael A. Simpsonff Mr. Andrew Slifkaff Mr. Daniel L. Smithff Mrs. Meredith S. Smithff Mr. Michael Smithff Ms. Marguerette Smylieff Mr. Jonathan Sohnisff Ms. Jacqueline Sonnabendff Ms. Carolyn Soulesff Ms. Anne Spencerff Dr. Robert M. Spillane

ff Mr. Benjamin Sprecherff Starbucks Coffee Partner Giving Programsff Ms. Cynthia A. Stedmanff Ms. Betty Steenff Mrs. Melissa L. Sternlichtff Mr. Frank M. Stiegerff Ms. Rhoda Stoneff Mr. Donald Sullivanff Mr. George Sullivanff Mr. Robert J. Sullivan, Jr.ff Mr. Wilbert Tauzinff Dr. Lansing Taylorff Ms. Sandra J. Teckff Mr. Stevan Tempestaff Mr. Robert Terkanianff Mr. Eugene F. Thayerff Mr. John F. Theroff The Rhode Island Foundationff The Stone Soup Fundff Theta Xi Housing Corporationff Mr. William H. Thornff Ms. Pilar Tiampoff Mr. Donald L. Tocciff Mr. J. Tolbertff Mr. Bernard Tolsma Sr.ff Mr. Matthew C. Torreyff Mr. Michael R. Trottaff Ms. Kimberlee Tynanff united Way of Mid-Maineff Mr. Stephen urquhartff Mr. Scott usechekff Valley Of The Sun united Wayff Mr. Bob Viarengoff Mrs. Patricia M. Vigeantff Dr. Vissia Vigliettaff Mr. Leslie P. Vitaleff Mr. Arend W. Vosff Mr. & Mrs. Edward R. Walterff Ms. Erin Walkerff Mr. William Walsh, Sr.ff Mr. H. Wangff Mr. James M. Wardff Mr. Richard Watsonff Mr. Scott Wayneff Mr. Kevin C. Websterff Mrs. Carol Weinerff Mr. Craig L. Weinerff Mrs. Tricia O. Wellinsff Miss Catherine M. Wells

ff Ms. Maryalyce Westeenff Mr. Todd H. Wetzelff Mr. William B. Widlundff Miss Leah Williamsonff Dr. Paul K. Williamsonff Dr. Alex Whiteff Ms. Arlyn Whiteff Mr. Kevin A. Whiteff Mr. Michael Woodmanff Mr. Jeffrey Woolbertff Ms. Kelly Wypychff Ms. Jessica Yorksff Ms. Cynthia Zagieboyloff Mr. Thomas & Mrs. Kristin Zarrella

BequestsThe following are individuals whose estate gifts provided for our mission-driven activities.ff Charles H. Holleyff Clement Lottiff Anna L. Brandtff Marion L. Reedff Jerome Goldsteinff Ellen McGrath

For information about making a planned gift or becoming a member of the Lawry Society, please contact Jonathan Nierman at 781-693-5150.

tributesThe Greater New England Chapter of the National Multiple Sclerosis Society is gratified to receive many contributions in honor of, or in memory of more than 1,000 individuals during fiscal year 2013. While space does not permit us to acknowledge all of these wonderful intentions in this publication, please know that we do recognize the heartfelt emotion that goes into each of these gifts, and we thank you for assisting our efforts while honoring those you care about.

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Chapter programs Corporate Sponsorsff Acorda Therapeuticsff Bayerff Biogen Idecff Braintree Rehabilitation Hospitalff Genzymeff Heidelberg Engineeringff Novartisff Pfizerff Questcor

ff TEVA Neuroscience

event SponsorsBike MS

presenting sponsor Cape Cod Getaway

ff Allspeed Cyclery & Snowff Alpine Shopff Atlantic Physical Therapyff Back Bay Bicycleff Bar Harbor Bank & Trustff Bar Harbor Bicycle Shopff Berkshire Bike & Boardff Biogen Idecff Blue Cross Blue Shield of Vermontff Cadillac Mountain Sportsff Criterium Engineersff Cycle Loftff Cycle Maniaff Data Associatesff Dimension Dataff DR Powerff Earl’s Fitness Cycleryff Eastern Mounntain Sportsff EMD Milliporeff Enel Green Power N.A.ff Fit Werxff Freeport Ski & Bikeff Genzymeff Greylock Outdoorsff Gus’ Bike Shopff Hillside Lumber/Smiling Hill Farmff International Bicycle Center

ff J.P. Morganff Kennebunkport Biclycle Companyff Key Bankff Landry’s Bicyclesff Momentaff Naked Juiceff Novartisff Ordinary Cyclesff PowerBarff Questcorff Quinn’s Bike & Fitnessff Roger’s Ski & Sportff Ski Haus of Vermontff Ski Rack Sportsff Wheelworks

Challenge Walk MSff Edible Arrangementsff EMD Serono/MS Lifelinesff Life Extensions ff Novartis - Gilenya

Walk MS

presenting sponsor

ff Abbvieff Acorda Therapeuticsff Bates Fullum Ins. Agencyff Bayerff Bernie & Phylsff Blue Cross Blue Shield of Vermontff Burns & McDonnellff Camden Real Estate Companyff CES INCff Darling’s Autoff EMD Serono/MS Lifelinesff Enterpriseff Freedom Credit unionff Frontstreet Shipyardff Genzymeff Hampden Bankff Home Instead Careff Independence Home Care Incff Industrial Roofing Companiesff Insurance Center of NE

ff Life Extensions ff Microsoftff Norton Insuranceff Nortrax/John Deereff Novartisff Reliant Medical Groupff Roux Agencyff Spectrum Medicalff Sturdy Memorial Hostipal

Boston Volvo Village 5K road raceff Adesa Boston ff Bank of America’s Dealer Financial Services ff Boston Volvo Village - Ray Cicolloff Brian Millerff Busa Wine & Spirits ff Carfaxff Filis and Bob Casey ff HarborOne Credit union ff Mullane, Michel and McInnesff O’Connor and Drewff Pinacle Finanical Groupff Sovereign Bankff The Martins Companies, Inc.

Climb to the top - Bostonff CrossFit Southieff Reebok Crossfit Backbayff uppababy

Fashion platesff Designer Bathff Dunkin Brandsff Harvard Pilgrim Health Careff iCapitalff Interstate Electricalff Janie Bravermanff Low Profileff Novartisff Signature Solutionsff Walsh Mechanical

MS Harborfestff Bon Tonff Horizon Beverageff Kit Watson/ Watson Enterprises

ff Narrow Straits Piloting Servicesff Saco Biddeford Savings ff Thompson and Bowie ff Westwind Foundation

passes for ms

Women on the Move luncheon - Maineff Biogen Idec ff EMD Serono & Pfizerff Maine Medical Centerff Martin’s Point Health Care

event SupportersDinner of Champions - Vermontff AC Hathorneff Blue Cross Blue Shield Vermontff Bowl New Englandff Burlington Labsff Champlain Collegeff DEW Constructionff Firetech Sprinkler Corpff Fletcher Allen Health Careff Gravel & Sheaff Grippin Donlan & Pinkhamff GW Tatro Companyff Hickok & Boardmanff Hinesburg Sand & Gravelff J.L. Davis Realtyff Jory Curranff KPMGff Lake Champlain Transportation Co.ff Merchants Banksff Northfield Savings Bankff Paul Frank & Collinsff People’s united Bankff Richard Tarrant Foundationff Saint Michaels Collegeff SymQuestff TD Bankff university of Vermont

Milestones - Bostonff ADD, Inc.ff AHA Consulting Engineers

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National MS Society, Greater New England Chapter ∫ Annual Report ‘13

We apologize for any mistakes or omissions, and ask that you contact us so that we can correct our records for future publications.

ff Ann & Hope, Inc.ff Atlantic Product Servicesff Atlas Water Systemsff Avison Youngff Bernie & Phyl’s Furnitureff Best, LLCff Bingham McCutchen, LLPff Biogen Idec, Inc.ff Boston Globeff Boston Steel & Mfg, Co.ff Bowdoin Constructionff Camin Cargoff Cassidy Turley FHOff CBS Boston’s WBZ-TV & myTV38ff Centerline Capital Groupff Chapman Construction|Designff Citizen’s Energry Corpff Columbia Construction Companyff Commodore Buildersff Consigli Constructionff Continental Wingateff Crane & Co., Inc.ff Creative Office Pavillionff Cube 3 Studio, Inc.ff D.J. Cronin, Inc.ff Dacon Corporationff DGI Communicationsff DiCicco, Gulman, & Co, LLPff Diversifed Funding, Inc.ff Diversified Project Managementff Dyer Brown and Associatesff Eastern Bankff Eaton Hudsonff ECSff Elaine Constructionff Elkus Manfrediff Erland Construction, Inc.ff George E. Warren Corporationff Giarrusso Norton Cooley & McGloneff Global Companies, LLCff Gordon Brothers Groupff Goren, Wolff & Orenstein, LLCff Goulston & Storrs

ff Griffin Greenhouse & Nursery Suppliesff Haworthff J. Calnan & Associatesff Jofran, Inc.ff JP Morganff Karp Family Foundationff Kirby Offshore Marineff Klaussner Home Furnishingsff Laraine Cohen Levy Family Foundationff Manko Gold Katcher & Fox, LLPff Martignetti Companiesff McCall & Almyff Middlesex Savings Bankff Milton Catff Mintz Levinff Morrissey & Co.ff National Amusementsff New England Developmentff NIC Holding Corp.ff Novartisff Offices Resourcesff Old Neigborhoods Foodff Phyl Fundff Pinnacle Financial Groupff Pullman & Comley, LLCff R.G. Vanderweill Engineers, LLPff Rackemann, Sawyer, & Brewsterff Reinauer Transportation Co, LLCff Re-streamff Richard Slifkaff Riemer & Braunstein, LLPff RJ Kellyff Rubenstein Familyff Rubin and Rudman, LLPff Sasaki Associates, Inc.ff Saul Ewingff Sealyff Sherin & Lodgen, LLPff Spagnolo Gisness & Associations, Inc.ff Structure Tone, Inc.ff Suffolk Construction

ff The Druker Company, Ltdff The Gutierrez Companyff The Rhode Island Foundationff uS Trustff Vantage Buildersff Videolink, Inc.ff Vinson & Elkins, LLPff WB Engineers & Consultantsff Wells Fargoff Winter Street Architects

In Kind donationsBike MSff Applebees’sff Bartlett Orchidff Boston BodyWorkerff Cape Cod Bagelff Cape Cod Potato Chipsff Constellation Wineff Costcoff Creed Iceff Cronig’s Marketff Dangelo’sff Dippin Donutsff Fanini’s Bakeryff Freihffers Bakeryff Gritty’sff Hyannis Ice Creamff Irving/Circle Kff Izze Sparkling Juiceff Knight Productionsff Magic Hatff Maine Magazineff Mainely Meat Barbequeff Mama Dimatteo’s Restaurantff Mount Dessert Island Ice Creamff North Country Productsff Pittsfield Bus Companyff Poland Springff Premier Education Groupff Price Chopperff South Shore Music Circusff Starbucks Coffeeff Terry’s Bikesff university of New Englandff Wachusett Brewery

MS Challenge Walkff Cabot Creameryff The Country Music Ranch & Saloonff The Salter School

Harborfestff AGA Correaff Ben & Jerry’sff Bronson AVff Cozy Harborff Dangelo’sff Easterly Winesff Free Range Fishff Frito Layff Global Petroleumff Hannafordff Hannafordff Huhtamakiff Kentucky Friend Chickenff Longhorn Steak Houseff Maine Magazineff Newicks Lobster houseff Poland Spring ff Portland Press Heraldff Portland Yacht Servicesff Shawsff Shipyardff The Works Bakeryff Tim Hortonsff Walmart

Boston Volvo Village 5K road raceff Greater Boston Running Companyff Marathon Sportsff New Balance

Climb to the top - Bostonff Blue Glass Café

Dinner of Champions - Vermontff Argento & Laraine Fine Jewelryff Burlington Free Pressff Farrells Distributing Co.ff JB Stongs Steakhouseff Mc Soley Mc Coy & Co.

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link up for MSff John and Mary Lucey

Marathon Strides against MSff Boston Bodyworker

MS plane pullff Federal Expressff Portland Jetport

Walk MSff 99 Restaurantff All Cycleff Annie’s Cateringff Bagel Centralff Big Top Deliff Brick oven Bakeryff Burlington Free Pressff Campus Cuisineff Canteen Servicesff Cape Cod Potato Chipsff Caribou Big Cheese Pizzaff Caribou Pizza Hut ff Casco Bay Vendingff Chili’sff Coca-Cola ff Coffee Cornerff Coffee Pot Caféff Country Kitchenff Country Kitchen Plazaff DiAngelos Pizzaff DJ Mark Watsonff Dominos Pizzaff Ducktrapff Dunkin Donutsff Fairmount Marketff Federal Distributorsff Federal Jacksff Frederick’s Southside ff Frito Layff Georgio’s Pizza/Doughnut Shopff Gerry No. 5/Every Little Breezeff Grants Bakeryff Hannafordff Hole in the Walk Bakeryff Irving/Circle Kff Italian Bakery Productsff Jade Palace

ff Knight Productionsff La Bottega Saladinoff Labadie’s Bakeryff Labree’s Bakeryff Laconia Bakeryff Laconia Iceff Lewiston House or Pizzaff Little Ceasarsff Maine Magazineff Michaud Distributorsff National Distributorsff Paneraff Papa John’s Pizzaff Paradis Shop ‘n Saveff Pepsi Cola Bottling Co.ff Pizza Hutff Poland Springff Price Chopperff Reno’s Family Restaurant ff Sal’s Pizzaff Sam’s Italian Foods, Inc.ff Shaw’sff Starbucks Coffeeff Subwayff Tasty Cakesff The Bagel Placeff The Great Impastaff Tim Hortonsff Town & Country Foodsff union St. Marketff Vintage Caféff Wal-Martff WHSNff Za Pizza Market

Media Sponsorsff ABC22/Fox44 Burlingtonff Burlington Free Pressff Channel 7 WHDH-TVff Maine Magazineff NESNff Points East Magazineff Portland Press Heraldff WCSH6 Portlandff WCVB-TV5 Bostonff WHOM 94.9 FM Portlandff WHSN 89.3 FM Bangorff WMuR-TV9 Manchester

ff Worcester Business Journalff Worcester Telegram & Gazetteff WWLP-TV22 Springfield

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National MS Society, Greater New England Chapter ∫ Annual Report ‘13

We mobilize people and resources to drive research for a cure and to address the

challenges of everyone affected by MS.

partners in MS Carethe following are recognized by the national MS Society as a partner in MS Care: Center for Comprehensive Care.

partners Multiple Sclerosis Center at Brigham and Women’s Hospital Brookline, Massachusetts

the Mt. auburn Hospital Multiple Sclerosis Comprehensive Care Center Cambridge, Massachusetts

the Multiple Sclerosis Clinic at newton-Wellesley Hospital Newton, Massachusetts

the Multiple Sclerosis Center at the university of Massachusetts Memorial Medical Center Worcester, Massachusetts

the Multiple Sclerosis Center at Beth Israel Deaconess Medical Center Boston, Massachusetts

lahey Clinic Multiple Sclerosis Center Lexington, Massachusetts

MS Center at St. elizabeth’s Medical Center Brighton, Massachusetts

MS Center of northern new england Fletcher allen Hospital uHC Campus Burlington, Vermont

partners pediatric MS Center at the Massachusetts General Hospital for Children Boston, Massachusetts

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leadershipan outstanding group of key volunteers serve on the Chapter Board of trustees and Clinical advisory

Committee to establish the Chapter’s goals and strategic direction, and to guide the staff as they deliver on the

promise of the Society’s mission.

executive Committee

Douglas E. Bryant Chairman

Robert E. Shapiro Immediate Past Chair

Piper R. McNealy 1st Vice Chair

S. Woodworth Chittick Vice Chair

Mary E. Jalbert Vice Chair

Eli Rubenstein** Vice Chair

David A. Gladstone Treasurer

Michael A. Mingolelli, Jr. Assistant Treasurer

Joan Kaplan Clerk

Management

Lori Espino President (Effective January 1, 2014)

Arlyn A. White President & CEO (Retired December 31, 2013)

Linda Guiod, RN, MSSMC Executive Vice President of Chapter Programs, Services & Advocacy

Renee Shea Vice President, Finance & Administration

Brenda Barbour Associate Vice President, Volunteer Development

Steve Sookikian Associate Vice President, Communications

trustees

Charles S. Bean, IIIAdam J. BrodskyLinda Buchwald, MD Research Advocate

Louis Caputo Douglas K. ClarkeTravis P. D’AmatoDavid M. Dawson, MDJack EnrightAnthony EverettJoseph P. FallonLyle FulkersonJan FullerPeter A. Galligan*Robert T. Garty, CFAJames E. HoyesKenneth A. JonesRobert KeeleyEli Lipcon Cathy MacPhersonPaige MagrattenRobert L. W. McGrawMichael J. PattersonBob J. PiconeKate Patton RegalLarry RubinRonald B. SchramGail M. Kelly SheehanRichard B. Slifka*Patricia A. ThorpePaul F. Van HoutenAndrew Zimmon

trustee CouncilCharlene A. AntonellisClark ChandlerArthur J. ColliasRobert A. DiPalmaJames J. DunlopSue Ellen EpsteinNeal F. FinneganDavid HatchAlbert J. KanebWilliam H. KeoughJohn Herbert SullivanMarjorie Van Houten Elise G. WatermanHoward L. Weiner, MDEric M. Wolf

Clinical advisory Committee

Ellen Lathi, MD CHAIRMAN

Biljana Beretich, MD AREA CO-VICE CHAIR, MAINE

Alexandra Degenhardt, MD AREA CO-VICE CHAIR, MAINE

Ann Cameron Cabot, DO AREA VICE CHAIR, NEW HAMPSHIRE

Angela Applebee, MD AREA VICE CHAIR, VERMONT

Phil Aitken, MDLaine Andrew, PhDPaula Bellin, MDRoberto Bompressi, MDLinda Buchwald, MDGuy Buckle, MDDouglas Buxton, MDClaudia Chaves, MDTanuja Chitnis, MDDavid Dawson, MDNeeta Garg, MD

Barbara Green, PhDSue Kasser, PhDJoshua Katz, MDR. Phillip Kinkel, MDEric Klawiter, MDJames Lehrich, MDNancy Lowenstein, OTR, BCNSandra McGrath, APRNSarah Minden, MDSteven Moskowitz, MDDavid Moultrup, LICSWPaul Muscat, MDBrant Oliver, NP, DNJohn PierceDavid Rintell, EdDPeter Riskind, MD, PhDArthur Safran, MDAlexius Sandoval, MDKathryn Seasholtz, DOLynne Stazzone, NPJames Stevenson, MD, PhDRichard Toran, MDAlissa Towle, PTJohn Weaver, MDHoward Weiner, MD

* National Director** National Chairman

- This list is as of the Annual Meeting, October 26, 2013

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National MS Society, Greater New England Chapter ∫ Annual Report ‘13

Chapter Headquarters101A First AvenueWaltham, MA 02451

Maine74 Gray RoadFalmouth, ME 04105

new Hampshire1 Bedford Farms Drive, Suite 105Bedford, NH 03110

Southeastern Massachusetts3119 Cranberry Highway, Unit 5EEast Wareham, MA 02538

Vermont75 Talcott Road, Suite 40Williston, VT 05495-8122

1-800-344-4867

www.MSnewengland.org

[email protected]

Facebook.com/MSnewenglandYouTube.com/MSNewEnglandTweet @MS_newengland

Contact us

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Walk MS: Burlington

STOP THE DISEASE RESTORE WHAT’S BEEN LOST END MS FOREVER

www.MSnewengland.org