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2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

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Page 1: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Supported by

Skin Health Australia Report Card

2016 SHARC Report

Page 2: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Table of contentsForeword 3

Executive summary 4

About the 2016 SHARC Report 8

What do you think about your skin? 10

What problems do you have with your skin? 14

Focus on psoriasis 17

How do you treat your skin conditions? 23

Do you check your skin? 25

Do you understand the risk of skin cancer? 27

How do you maintain healthy skin? 30

Does your skin affect your quality of life? 32

Comments from survey participants 34

About Galderma 35

About the Skin & Cancer Foundation Inc 36

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Foreword The 2016 Skin Health Australia Report Card – the 2016 SHARC Report – provides a valuable reference for Australians. In a nation where skin health issues are particularly important, the SHARC report delivers revealing evidence of the health of our skin, what we think about our skin, and how we are caring for and protecting our skin.

This is the third year that we

have commissioned a

national population survey.

The survey tracks attitudinal

and behavioural changes

related to the skin health of

the Australian population, and

the results are analysed and

published as the SHARC Report.

This year’s report is exciting. It

allows a comparison of data

over three years, so we can

now know whether a result

seen last year was a change

from an average, or the start

of a trend. Some interesting

trends have been identified.

The third iteration of the

SHARC Report has once

again illustrated that the

methodology and analysis

of our survey remain rigorous.

It is clear that the SHARC Report,

and the data which underpins

it, is becoming an increasingly

valuable resource for our key

stakeholders including

policymakers, dermatologists,

general practitioners, allied

health professionals, and of

course, individual Australians.

This year’s SHARC Report shows

that the incidence of psoriasis

is increasing in Australia. We

would like to highlight the

situation in Australia where

those with severe psoriasis are

disadvantaged in comparison

to those in other developed

countries. Australian patients

need to endure a greater

degree of severity of psoriasis

to access advanced treatments

compared to patients in

other countries.

Our focus on psoriasis should

not, however, detract from

other skin health issues of

concern. For instance, Australia

has the highest rate of

melanoma in the world, a

situation that needs continued

awareness and action. The

SHARC report shows there is

room to improve our attitudes

towards and knowledge of

skin and skin health. By doing

so, we can take better care of

ourselves as individuals,

families and communities in

relation to skin health.

The Skin & Cancer Foundation

Inc is Australia’s leading centre

for the specialist treatment of,

and research into, skin disease.

Established in 1987, we are a

not-for-profit organisation that

provides specialist clinical

treatment, education and

research for a wide variety of

skin diseases, skin cancer and

melanoma.

If you took part in the survey,

we thank you. If you’re reading

this report, we also thank you.

And we welcome you to join

us in our mission to improve

the skin health of our nation.

Associate Professor Chris Baker

Immediate Past President, Skin & Cancer Foundation Inc

President, Australasian College of Dermatologists

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Executive summary 2016 HighlightsAs the 2016 Skin Health Australia Report Card is our third SHARC Report, we are seeing a number of concerning trends which lead us to believe that Australians could be doing a whole lot better to look after their skin health.

We are particularly

concerned that:

• There’s a clear trend over

the three years of the

report of a rise in those

reporting a skin condition

(from 41% in 2014 to 43% in

2015 and 46% in 2016).

• Skin cancer was the skin

condition of highest

concern to participants

(41%), yet a surprising 49%

say they have no concerns

about skin cancer or sun

spots at all.

• Sunburn is an important risk

factor for melanoma (a

person’s risk for melanoma

doubles if they have had

more than five sunburns

at any age), but 66%

of respondents were

unexpectedly sunburned

in the last two years (the

figure rises to 76% within the

25- to 34-year-old age

group).

• 36% of respondents do not

currently protect themselves

from the sun by wearing a

hat or using sunscreen.

• Many Australians still

believe that sunburn mostly

happens on hot, sunny

summer days during the

hottest time of day,

dismissing risks associated

with sunburn that happens

on cloudy, cool days. They

do not understand UV risk.

• When asked when sun

protection is important, many

respondents did not indicate

key factors: 31% did not

identify a high UV as a

factor to take into account

for sun protection; 41% did

not identify when it is sunny,

and 49% the time of day.

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• Although 56% of those

surveyed work sometimes,

regularly or always outdoors,

the provision of protection

measures by their employers

is still patchy. Only 48%

of employers provide

sunscreen, 35% protective

clothing, 26% sunglasses

and 25% gloves.

• Unhealthy skin and

common skin problems

may be signs of other, more

significant health problems.

But of those who have skin

problems, 35% consider

them cosmetic only, and

20% don’t know if they see

these as medical or

cosmetic problems.

• Nearly one in five

respondents (19%) say

they experience itchy skin,

equivalent to just over

3.7 million Australians

adults. More than 20% of

the population don’t seek

any treatment for it and

14% work out their own

treatment, rather than see

a healthcare professional.

• Itchy skin can be a sign

of skin disease and

inflammatory skin disease

can often disguise other

underlying health factors

that need a professional

medical opinion and

diagnosis. For example,

itchy skin could be a sign of

allergies or associated with

asthma. If your skin is itchy

or inflamed, it’s important

to get it checked out by a

healthcare professional.

• There is an upward trend in

the reported incidence of

psoriasis, from 5% in 2014 to

6% in 2015 and 8% in 2016.

On the other hand, we are

encouraged that:

• 68% of respondents

personally check their skin

for signs of skin disease

• The large majority of

Australians have a good

understanding of how to

maintain skin health. For

example, 80% believe in

drinking water to maintain

skin health, 79% in protecting

themselves from the sun,

75% in ensuring they have

good nutrition and 70% in

using a moisturiser.

• Just over 7 in 10 Australians

moisturise (with more

women moisturising, 90%,

than men, 54%).

• While employers' provision

of sun protection measures

could be better, the

percentage of those whose

employers provided them

with no protection from the

sun at all shrunk from 44% in

2014 to 39% in 2015 and 30%

in 2016.

• It was also reported that

employers are providing

sunscreen and moisturiser

more often.

Here are other highlights

of the results from the 2016

SHARC Report.

What we think of our skin

• Unhealthy skin is an

important concern for

Australia, rating fourth in a

list of nine general health

conditions.

• Yet, 84% of respondents

consider their skin ‘very

healthy’ or ‘healthy’.

• 56% are happy with the

way their skin looks.

• 71% of respondents

describe their skin as very

fair or fair.

• 67% of respondents say

they burn ‘always’, ‘easily’

or ‘moderately’.

There is an upward trend in the

reported incidence of psoriasis,

from 5% in 2014 to 6% in 2015

and 8% in 2016.

‘’

5

6

7

8

%201620152014

REPORTED INCIDENCE OF PSORIASIS

5

6

8

5

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• 9% say they never tan and

always burn, but this figure

jumps to 19% among the

18 to 24 age group.

• Most respondents (74%)

describe their skin as

‘moderately marked’

by moles, freckles

and sunspots.

• The top three current skin

concerns of respondents

are signs of ageing, dry skin

and signs of sun damage.

• People worry about

different skin issues at

different times of their

lives; younger people are

concerned about acne,

and people start to worry

about signs of ageing in

their skin when they enter

the 45–54 age group.

• Men are twice as likely than

women to say they don’t

have concerns about their

skin’s appearance.

Skin cancer monitoring and

prevention

• 68% of respondents

personally check their skin

for signs of skin disease

(meaning that 32% of the

adult population do not

do this).

• 44% also have someone

else check their skin.

• 68% were either very

confident or confident they

can identify possible skin

cancer.

• While many Australians know

that drinking water (80%),

protecting themselves from

the sun (79%), ensuring they

have good nutrition (75%)

and using a moisturiser

(70%) are good ways to

maintain skin health, only a

smaller number put that

into action with 67%

drinking water, 64%

protecting themselves from

the sun and 58% using a

moisturiser.

• 53% identify that minimising

alcohol consumption

contributes to healthy skin,

but only 32% do this.

Skin conditions

• The most common current

skin condition is itchy skin

(19%) with acne and

eczema/dermatitis tied in

second place (12%) and 10%

of participants reporting

skin cancer/sun spots.

• Most skin conditions are

longstanding with the

largest share of those with

skin conditions reporting

having them for over

five years.

• 45% of respondents have a

skin allergy or sensitivity. The

most common reported

allergy is to nickel, as found

in cheap jewellery.

• The most common specific

skin problem is dry or scaly

legs or hands.

• To treat conditions, most

respondents, 54%, see their

GP, 31% see a skin specialist

or dermatologist and 30%

see their pharmacist; 37%

either did not seek treatment

or worked out their

treatment on their own.

Skin health affects the quality

of life of Australians

• Issues with the skin can

affect socialising, playing

sport, wearing clothes,

sexual activities, and

relations with partners, close

friends and relatives. Skin

affects our quality of life.

• In the week before the

survey, 41% of respondents

were embarrassed or

self-conscious because

of their skin health. The

share of those who were

‘a lot’ embarrassed, or

self-conscious, was 9%,

considerably higher than

reported in previous years.

• 42% found their skin itchy,

sore, painful or stinging.

• 20% said their skin had an

effect on their social and

leisure activities, made it

difficult to play sport (15%),

created problems with a

partner, close friend or

relative (14%), or caused

sexual difficulties (12%).

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Skin health is a workplace issue

• More and more Australians

consider skin conditions in

terms of choosing their

occupation (31%, up from

27% last year and 19% the

year before).

• 55% are employed in jobs

that sometimes, regularly or

always require them to be

outdoors, yet 52% of

employers do not provide

sunscreen, 65% do not

provide protective clothing,

74% do not provide

sunglasses and 75% do not

provide gloves.

• Yet it was reported that

employers are providing

sunscreen more often (rising

from 35% in 2014 to 38% in

2015 and 48% in 2016) as

well as moisturiser (from

10% in 2014 to 13% in 2015

and 19% in 2016).

Psoriasis

SHARC illustrates a consistent upward trend in the prevalence

of psoriasis, from 5% to 2014 to 6% in 2015 and 8% in 2016. This

indicates that nearly 1.6 million Australian adults have some

form of psoriasis. This is important information as previous studies

on the prevalence of psoriasis have been done only in certain

locations, and many years ago. This increase is statistically

significant. Possible reasons for this change include increases

in incidence, awareness or diagnosis.

Men and women are affected

about equally by psoriasis. Of

those who have psoriasis, 33%

report having no effect on the

Dermatology Life Quality Index

(a measure of quality of life),

28% report a small effect, 17%

a moderate effect, and 18% a

very large effect. 78% of those

reporting having psoriasis

consider their skin healthy,

possibly because it

is being treated.

Despite the higher numbers of

respondents with psoriasis

reporting their skin as healthy,

most adults with psoriasis try to

hide their condition, and it

causes not only physical

discomfort and pain but

emotional trauma. This year’s

SHARC Report provides further

information on living with

psoriasis, its effects on the

quality of life, and how it

affects work life.

For Australians who suffer from

serious psoriasis, biologics

treatments offer fast and

comprehensive relief. Yet,

access to these new drugs is

restricted by having to score

higher on the Psoriasis Area

and Severity Index than

overseas counterparts. The

Skin & Cancer Foundation Inc

believes this situation should

change and will continue to

raise awareness of this issue,

arguing the case for change.

Nearly 1.6 million Australian adults

have some form of psoriasis.‘ ’7

Page 8: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

About the 2016 SHARC ReportAs with previous SHARC

Reports, the main issues that

our third SHARC Report

examined by the population

survey are:

• Perceptions: What do

Australians think about

their skin?

• Awareness: What are

Australians’ awareness

of and problems with

skin health?

• Attitudes and knowledge:

What are Australians

attitudes towards skin

conditions? What is their

knowledge of how to keep

skin healthy?

• Actions: How do Australians

treat skin conditions? If they

seek help, who do they go

to? How do they check the

health of their skin and

how often? How do they

keep their skin healthy?

• Prevention: How do

Australians prevent skin

conditions, problems

and disease?

• Quality of life: How do

skin health issues affect

Australians’ quality of life.

The SHARC Report is based on

the results of a national

population survey that tracks

changes in attitude and

behaviour in the Australian

population regarding skin

health, conducted by the

professional research and

advisory firm, StollzNow

Research. The survey was

carried out in August 2016

and was commissioned by the

Skin & Cancer Foundation Inc

and funded by an untied

education grant from

Galderma Australia.

About the Skin & Cancer Foundation IncThe 2016 SHARC Report was commissioned by the Skin &

Cancer Foundation Inc (the Foundation), a Melbourne-based,

not-for-profit organisation that provides specialist clinical

treatment, education and research for a wide variety of skin

diseases, skin cancer and melanoma.

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Page 9: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

About those surveyedFor a representative snapshot

of Australians and skin health,

over 1,000 people participated

in the survey from across the

country, with an even number

of males and females

responding. The mix of

participants (gender, age,

location, income, employment

status and household

composition) is very similar

to last year.

Survey respondents come

from all age groups, with more

participants in the three age

groups between the ages of

25 and 54 (25 to 34; 35 to 44

and 45 to 54). This year, we will

be able to learn more about

the skin issues of older people:

7% of responses are from

those 75 years old and over

compared to last year’s report

with only 1% from this age group.

All of Australia was represented, although with only 2 of 1,002

participants from the Northern Territory, they don’t show up in

the chart. »

Figure 1: Age range of survey participants

55 to 64

15%

45 to 54

18%

25 to 34

18%

18 to 24

13%

65 to 74

10%

75 & over

7%

35 to 44

19%

Figure 2: Geographical representation of participants

SA

8%

Qld

18%WA

10%

Tas

3%

NSW

34%

Vic

25%

ACT

2%

NT

0%

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Other survey questions

asked about participants’

employment, living situation

and income. Those who took

the survey are mostly employed

full-time (38%) with a significant

number employed part-time

(22%) or retired (21%). Students

make up 5% of participants,

slightly down from 7% in 2014

and 2015. Most participants

live as part of a couple without

dependants (35%) or with

dependants (29%) and a

smaller number (17%) live

alone. A small number, 8%,

live with their parents or in a

shared household, 6%, and 5%

are single parents.

The household incomes of

participants were divided into

23% making from $20,000 to

$50,000, and 30% from $50,000

to $100,000. Reporting under

$20,000 are 6%, 21% make over

$100,000, 10% over $150,000

and 11% prefer not to say.

What do you think about

your skin?Survey respondents were asked to indicate which of nine health conditions they were concerned about. Unhealthy skin rates fourth out of nine concerns, after back pain, dental health and blood pressure.

In all three years of the survey, back pain is the

highest concern followed by dental health;

allergies are the lowest concern with bowel

health the second to last. Concern about the

other five conditions fluctuates. Unhealthy skin

was the sixth highest concern in 2014, the third

highest in 2015, and this year is fourth.

Table 1: Which of these health

conditions are you concerned about?

Back pain 36%

Dental health 32%

Blood pressure 30%

Unhealthy skin 28%

Cholesterol 27%

Headaches 25%

Arthritis 24%

Bowel health 22%

Allergies 21%

I do not have any concerns 16%

Survey respondents were also asked to think

about their skin and then describe it according

to skin pigment, type and sensitivity, response

to sunlight and blemishes.

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The survey asked Australians to describe their skin

pigment. 71% of our survey respondents described

their skin pigment as ‘fair’ or ‘very fair’. The

majority of Australians get sunburnt easily and

need to check for skin disease. The number of

those who describe their skin pigment as ‘black’

doubled to 2%, from 1% in both 2014 and 2015.

Most respondents describe their skin type as

‘normal’ (48%) with similar proportions describing

opposite problems: ‘dry’ (31%) and ‘oily’ (21%).

Figure 3: Skin pigment

Olive

27%

Very fair

10%

Black

2%

Fair

61%

Figure 4: Skin type

Normal

48%

Oily

21%

Dry

31%

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Do you think of yourself as having sensitive skin? While 55% of

survey respondents describe their skin sensitivity as normal, 31%

describe their skin as sensitive to the sun and 22% as sensitive to

products. Participants could answer yes to more than one

category so the shares don’t add up to 100%.

A very common issue in Australia is worrying about getting

burned by the sun. A total of 67% of respondents say they burn

‘always’, ‘easily’ or ‘moderately’; of those, 9% ‘never tan’ and

‘always burn’. However, among the age group from 18 to 24, this

figure of 9% jumps to 19%! A total of 7% of respondents say they

rarely burn and 2% say they never burn.

A very common issue in Australia is

worrying about getting burned by the sun.‘ ’

0 10 20 30 40 50 60

Figure 5: Skin sensitivity

Normal

Sensitive to the sun

55%

31%

22%Sensitive to products

0 5 10 15 20 25 30 35

In the sun, I rarely burn and tan profusely

In the sun, I burn minimally and tan well

In the sun, I burn easily and tan minimally

In the sun, I burn moderately and tan uniformly

In the sun, I never burn

In the sun, I never tan and always burn

Figure 6: Response to sunlight

33%25%24%9%7%2%

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Finally, it’s interesting to read how survey respondents describe

their various moles, freckles and sunspots. The vast majority

consider themselves right in the middle, with 74% ‘moderately

marked’. Those rating their skin as clear were 20%. Those who

consider themselves ‘very marked’ were 6%. These figures are

about the same as in 2014; in 2015, 4% more respondents

considered their skin clear rather than moderately marked.

There were differences in descriptions of skin by age. Those 75

and over have the highest percentage of skin that is ‘very

marked’ (12% compared to an average of 6%), while

the percentage of those who consider themselves

‘moderately marked’ is highest among the 35

to 44 year age group (79%). Those in New

South Wales and Queensland have the

highest percentage of ‘very marked’

skin (8%) compared to only 3% in

South Australia.

Figure 7: Blemishes

Clear – no molesor markings

20%

Very marked –moles, freckles,

sunspots

6%

Moderately marked – moles, freckles, sunspots

74%

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Page 14: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

What problems do you have with your skin?Our survey participants think they have healthy skin. 84% of the respondents this year consider their skin ‘very healthy’ and ‘healthy’ and only 15% consider their skin unhealthy. This indicates that nearly 3 million adult Australians believe they have unhealthy skin.

More men (89%) than women (79%) consider their skin healthy,

and those 18 to 24 have the highest proportion of those who think

their skin is unhealthy (20%, much higher than the 15% average).

Interestingly, while over half of the respondents say they have a

problem with skin health (54%), it’s evident from the results that

people can consider their skin healthy, even with a skin problem.

This may be because they are treating the problem.

56% of respondents are happy with the way their skin looks (32%

said they aren’t happy and 12% say they didn’t know). More

women than men are not happy with the way their skin looks

(38% vs 26%) but people seem more at peace with their skin in

older age groups: between 58% and 63% were happy with how

it looks between the ages of 45 and 74; higher than the younger

age groups (and higher than those age 75 and over).

What makes skin unhealthy?

The survey asked participants both whether they have a problem

with skin health and if they have skin conditions. The top three

skin problems that respondents believe make their skin unhealthy

are acne/pimples/blackheads (36%), dryness (30%) and skin

cancer/sun spots (19%).

Table 2: The most common

specific problems for those

with skin health problems

Dry or scaly hands 28%

Dry or scaly legs 27%

Roughness on hands 19%

Pimples on the face 19%

Dry or scaly face 18%

Sun-damaged face 18%

Wrinkled on the face 18%

Dry or scaly arms 15%

Pimples on back 14%

One of the biggest

misconceptions is that skin

health is a cosmetic problem

and therefore does not require

medical attention. Just over

one-third of respondents (35%)

consider their skin problems

'cosmetic' only; over one-

quarter (27%) consider them

'both medical and cosmetic';

about one-fifth (18%) think of

them as only ‘medical’

problems; and 20% ‘don’t know’.

There’s a clear trend over the

three years of the report of a

rise in those reporting a skin

condition (from 41% in 2014 to

43% in 2015 and 46% in 2016).

14

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The following skin conditions were reported as a current

concern (respondents could choose more than one):

Percentages ranged from 40% of respondents who are concerned

about signs of ageing to 27% who worry about signs of sun

damage. 14% worry about skin cancer or growth and 12% say

they do not have any concerns about the appearance of their

skin. Concern for other conditions ranges from 10% to 13% of

participants saying they are concerned about dull skin, rashes,

too much hair and prominent blood vessels.

Women are more concerned than men about most skin

conditions, including signs of ageing, dry skin, signs of sun

damage, acne, dull skin and redness; men are more concerned

about hair loss and thinning, and skin cancer or growth. Men

are twice as likely as women to say they don’t have concerns

about their skin’s appearance.

Different concerns at different stages of life see 18- to 24-year-

olds extremely worried about acne (61%), with that figure

dropping to 39% by the next age group (25 to 34). People don’t

really start to worry about signs of ageing in their skin until they

hit the 45 to 54 age group; 50% start to worry, then this figure

rises to 60% and above in the older age groups.

Worrying about a skin

condition is not the same as

having one. Presented with

a list of 10 skin conditions, a

large majority of participants

had no concerns about any

of them: 88% had no worries

about hives and urticaria, 84%

had none about rosacea and

82% none about psoriasis.

The largest share of worried

participants was related to

skin cancer and sun spots

(41%), itchy skin (22%), skin

infections and eczema/

dermatitis (17%) and acne

(16%). Psoriasis rated of less

concern with 11% of survey

respondents worried about it.

Skin cancer is the highest

concern for SHARC participants,

and so it should be, considering

the prevalence of melanoma in

Australia and the consequences

of late diagnosis.

However, 49% said they have

no concerns about skin cancer

and sun spots at all, which is

concerning! Since almost 1 in

10 participants (or 2.4 million

Australians) have skin cancer

or sun spots, it’s a condition

that should have high visibility

and high concern among

all Australians.

0 5 10 15 20 25 30 35 40

Figure 8: Top 11 skin conditions

40%38%27%24%23%19%17%15%15%14%14%

Signs of ageing

Dry skin

Signs of sun damage

Hair loss or thinning

Pimples/acne/blackheads

Dandruff

Finger or toenail problems

Discolouration

Large pores

Redness

Skin cancer or growth

15

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The most common current skin

condition was itchy skin (19%),

followed by acne and eczema/

dermatitis (12% each) and 10%

with skin cancer/sun spots.

These skin conditions make up

more than half of the identified

current conditions by those

who have a skin condition.

While last year’s survey

showed younger age groups

had skin conditions more

frequently, this year’s survey

shows a higher share only

among those in the 18 to 24

age group (55% compared

to the average of 46%).

The skin conditions are mostly

longstanding. Of the ten

conditions used in the

questionnaire – eczema/

dermatitis, psoriasis, skin

infection, warts, tinea, hives or

urticaria, skin cancer/sun spots,

itchy skin, acne and rosacea –

the largest group in most

categories have had the

condition for over five years

(with about 50% or over of those

with acne, eczema/dermatitis,

and psoriasis having these

conditions for over five years).

Only skin infections and tinea

are generally short lasting, up

to six months.

A significant minority of survey

participants (45%) have some

sort of skin allergy to different

materials, or it causes some

irritation. For those that have

skin allergies, the most

commonly reported issue, by

17%, is nickel, such as found

in cheap jewellery. Between

12% to 16% reported allergies

to clothes washing powder,

sticking plaster, bandaids and

tapes; cleaning products

including dishwashing liquid;

and fragrances.

More women report being

irritated or allergic than men

(66% vs 44%). Older people are

much higher than the average

in being not affected by skin

allergies and irritations: 70% of

those 65 to 74 and 77% of those

75 and over are not affected.

Could they be tougher? Less

aware? Or have allergies and

skin irritation been on the rise

in the last century?

The most reactive materials,

those reported as causing either

significant or severe problems

are oral medications

recommended by pharmacies

(42%), nickel (37%), topical

medications suggested by

pharmacies (35%) and

fragrances (25%).

1 Quirk CJ. Skin disease in the Busselton population survey. Med J Aust. 1979; 1(12):569–70.

2 Kilkenny M, Stathakis V, Jolley D, Marks R. Maryborough skin health survey: prevalence and sources of advice for skin conditions. Australas J Dermatol. 1998; 39(4):233–7.

3 Plunkett A, Merlin K, Gill D, Zuo Y, Jolley D, Marks R. The frequency of common non-malignant skin conditions in adults in central Victoria, Australia. Int J Dermatol 1999; 38:901–8.

4 Plunkett A, Marks R. A review of the epidemiology of psoriasis vulgaris in the community. Australas J Dermatol. 1998; 39(4):225–32.

People worry about

being shunned and

can be subject to

misconceptions.

‘’

40

50

%201620152014

4143

46

PEOPLE WITH A SKIN CONDITION16

Page 17: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Focus on psoriasisPsoriasis is a common chronic skin condition that is not well understood and needs more attention from policymakers as well as a higher level of public awareness.

Caused by a dysregulated

immune system, psoriasis

affects women, men and

children of all ages, from

newborn babies to the aged.

Psoriasis is driven by an

overactive immune system

and most commonly causes

skin cells to multiply too quickly,

resulting in thick, scaly and

inflamed areas of skin.

Gaps in global data on

psoriasis make prevalence

difficult to estimate, though

one source proposes over

125 million people are affected.

In Australia, the estimates of

prevalence

have varied widely for many

years, so the SHARC Report

providing a consistent and

reliable measure is a welcome

service. A 1979 review of 1,037

adults in Busselton, WA showed

a prevalence of 2.3%, a figure

which has since been used

widely.1 A 1996 survey of 416

adults in Central Victoria

showed a prevalence of 4.5%.2

A 1997–98 study of 1,457 adults

in the same location showed

a prevalence of 6.6% (4.5%

among women and 8.9%

among men).3 A 1998 systemic

review of incidence and

prevalence reported a range

from 0.3% to 2.5%.4

The 2016 SHARC Report shows

self-reported prevalence

increasing over the last three

years from 5% to 6% and this

year to 8%, which is the

equivalent of nearly 1.6 million

adult Australians.

The condition onset usually

occurs in people in their early

twenties; with a smaller peak

onset in people between 55

and 60 years of age. Many

cases of psoriasis are mild, but

for some, the consequences

are severe. Immense physical

discomfort from cracked and

bleeding skin can lead to

psychological suffering,

including depression,

loneliness and thoughts of

suicide. The condition can

interfere with social and work

life, relationships, sport or a day

at the beach or even simple

actions like choosing what to

wear. People worry about

being shunned and can be

subject to misconceptions –

including that psoriasis is

contagious, caused by poor

hygiene, is the fault of the

person suffering it, or is related

to leprosy. » 17

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But there is a brighter outlook, as there are many

drugs in the pipeline to treat psoriasis including

injectables, tablets and biologics, which are

drugs that come from living cells cultured in a

laboratory. This offers the possibility for people

to participate in clinical trials.

For those who suffer from serious psoriasis,

biologic treatments offer fast and comprehensive

relief but there is, however, a problem in Australia.

To be eligible for subsidy or reimbursement of

these drugs under the Pharmaceutical Benefits

Scheme, those with psoriasis must have tried

3 out of 4 common drugs (UV, cyclosporine,

methotrexate and acitretin) and found them

ineffective or had significant side effects; and

they must score greater than 15 on the Psoriasis

Area and Severity Index (PASI), a tool which

allows assessment of the degree of psoriasis

and how much of the body is affected.

And yet, an expert panel convened in Australia

in 2012 recommended that moderate and severe

psoriasis be defined as a PASI score greater than

10. In New Zealand and the United Kingdom,

eligibility for biologics is available to those who

score 10 and above. In other words, the Australian

Government requires Australians to suffer much

more than their overseas counterparts before

they can get the treatment they deserve.

The Skin & Cancer Foundation Inc believes that this situation should change.

Survey results on psoriasisThere is a consistent upward trend in the

number of respondents reporting having

psoriasis, from 5% in 2014 to 6% in 2015 and

8% in 2016, equivalent to 78 people of the

1,002 survey respondents. This indicates that

nearly 1.6 million adult Australians have

some form of psoriasis. This rise is statistically

significant. Possible reasons for this change

include an increase in incidence, awareness

or diagnosis.

The largest proportion of people reporting

psoriasis were from New South Wales (37%) and

Victoria (29%). Those with psoriasis describe

their skin as fairer than those without psoriasis

(68% vs 60%) and more frequently sensitive

to products applied to the skin (31% vs 22%).

They are more likely to have drier skin (41% vs

30%), but sensitivity to sunlight (in terms of

burning and tanning) is not significantly

different to those without psoriasis.

Men and women are affected about equally

by psoriasis. Of those who have psoriasis, 33%

report having no effect on the Dermatology

Life Quality Index (DLQI), 28% report a small

effect, 17% a moderate effect, and 18% a very

large effect. In most cases, current psoriasis

activity is classified as quite mild; those who

experience a very large DLQI effect are in the

minority. On the other hand, this represents

a large number of people: about

285,000 Australians.

The mean DLQI score for those with psoriasis

of 6.1 was more than twice that of those

without psoriasis (2.9), indicating that the

adverse effect on quality of life for those

with psoriasis is to a much greater degree.

Of those who report having psoriasis, 78%

consider their skin healthy, possibly because it

is being treated (85% of those without psoriasis

consider their skin health as healthy or very 18

Page 19: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

healthy). At the same time,

42% of those with psoriasis

report they are unhappy with

the way their skin looks,

compared to 31% of the

population without psoriasis.

About 60% seek treatment

from their GP, 29% from a skin

specialist, and 24% from

pharmacists. A proportion

of those with psoriasis use

microdermabrasion and

alpahydroxy acid containing

preparations for skin care, at

three to four times the rate of

those without psoriasis.

Half of those surveyed with

psoriasis have had the condition

for more than five years,

although the remainder were

evenly spread from those

recently aware of their condition

(less than three months) to

having the condition up to five

years. Of all the skin conditions

listed in the SHARC survey, those

with psoriasis had it for the

longest duration.

Some people with psoriasis

report other skin conditions, for

example eczema/dermatitis

(41%), itchy skin (37%), skin

cancer/sun spots (22%) and

acne (21%).

Those with psoriasis are affected

by skin allergies and irritations

(71%) more than those without

psoriasis (43%). Sticking plaster,

bandaids and tapes (28%) and

perfume (26%) are problems

for those with psoriasis, and

cause problems more than

twice as frequently than for

people without psoriasis.

5

6

7

8

%201520152014

PSORIASIS UP CLOSE

SEEKING TREATMENT

0

10

20

30

40

50

60

70

80

71%

43%

Those with PSORIASIS

are affected by SKIN ALLERGIES &IRRITATIONS MORE than those without PSORIASIS

Psoriasis’ affects QUALITY OF LIFE

SMALL EFFECT

MODERATEEFFECT

Peop

le w

ith

psor

iasi

s

Peop

le w

itho

ut

psor

iasi

s

Prevalence of skin allergies & irritations

31%WITHOUT

PSORIASIS

42%WITH

PSORIASIS

HALF

>5YRS

of those surveyedwith psoriasishave had it

60%29%24%

see a skin specialist

speak to a pharmacist

see a

GP

Are people unhappy with how their skin looks?

37%

29%

34%

WHERE DO MOST AUSTRALIANS WITH PSORIASIS LIVE?

NSW

VIC

OTHER

2011-2016

18%

17%

28%

VERYLARGEEFFECT

Reporting of psoriasis has increased This may be because

increase in incidence, awareness or diagnosis5

6

8of an

19

Page 20: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

The results of the 2016 SHARC survey confirm what

we know about psoriasis. It negatively impacts

one’s quality of life and causes problems in all

aspects of one’s life. The DLQI was used to ask

whether a respondent’s skin caused any problems

over the preceding week. The results show that

psoriasis has an effect, ranging from ‘a little’ to

‘very much’ in the answers to all ten questions

on the index, with greater levels of problems

than people without psoriasis.

Psoriasis is particularly a problem at work or

studying. It interferes with daily activities like

shopping or looking after the home or garden,

as well as social and leisure activities, and

influences the choice of clothes worn. Psoriasis

also creates problems with close friends and

family and can cause sexual difficulties.

The survey also hinted at the stigma experienced

by people with psoriasis. People with psoriasis

consider themselves less at risk of sunburn. This

may be because they are more careful with their

skin, and may skirt these activities, such as being

outside in summer or going to the beach, just

to avoid revealing their skin condition to others.

Psoriasis negatively effects work life. People with

psoriasis reported a skin condition had some

degree of influence on their profession, 46%

compared with 28% without psoriasis. Time off

work because of a skin condition was reported

by 17% of those with psoriasis compared to 10%

without psoriasis.

Why talk about psoriasis?• Psoriasis is a common condition but may go

undiagnosed due to a lack of awareness.

• It can have severe emotional and

psychological effects, along with

the physical discomfort and pain.

• Psoriasis has a genetic predisposition, and

is related to the body’s immune system but

the exact cause is unknown. There’s no cure.

For these reasons, psoriasis research needs

more funding.

• Psoriasis can come out of the blue. Triggers

can include stress and illness, and dry or

cold weather, obesity, alcohol, smoking

and some medications.

• Yet the symptoms can be treated.

Treatments include moisturisers, creams,

vitamin D and UV therapy, though patients

need to be diligent about following through.

But psoriasis is complex, and treatment likely

will need to be different for each person.

• The 2010 Psoriasis Uncovered study showed

that 71% of Australian adults with psoriasis try

to hide their condition, mostly because of

embarrassment and fear of stigma.

• People with psoriasis should be involved in

developing policy and programmes related

to the condition, and have their voices

heard for raising awareness about psoriasis

and contributing to effective advocacy.

Australians with severe

psoriasis cannot access

effective treatments as

easily as their counterparts in

countries like New Zealand

and the United Kingdom.

20

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Profile: Josh Nguyen At age 25, Josh was diagnosed with psoriasis. At its worst, Josh’s psoriasis covered nearly 85% of his body. The condition has had a heavy physical and psychological impact on his life. Now, ten years later, with successful biologics treatment, and the birth last year of his son, Jacob, Josh describes being ‘in a really good place’ where ‘every day is normal’ and he’s ‘busy and happy.’

It wasn’t always this way. He was self-conscious at first, and tried to cover up his condition. ‘For years, my closest friends didn’t know that I had psoriasis,” Josh recounts. ‘Eventually, they started asking questions and I could see the looks on their faces when they learnt what it is I have and what it’s like to live with psoriasis. I could see them realise what a big deal it is.’

Life was made worse because stress was the biggest trigger of psoriasis, so that when it came on, Josh would end up having to juggle multiple stressful events, which could be ‘overwhelming’.

But Josh actively sought treatment, as well as seeking out support groups, including on social media. He receives a lot of support from his family as well as from his physicians. He recommends talking about psoriasis with others – it helped him to start to cope with his condition – as well as to not give up on finding a treatment option and to see a dermatologist as soon as possible.

‘Please seek help straight away,’ he advises, ‘and don’t let psoriasis run your life.’

‘Don’t let psoriasis run your life.’

21

Page 22: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Profile: Margaret Colquhoun Margaret is 65 years old, and lives in a small country town in Victoria called Coleraine. She keeps up an active and busy lifestyle, visiting family members in Melbourne and Ballarat, including three grandkids, and studying at a distance for a Master of Arts degree.

Psoriasis has been a huge part of her life, since she was 11 years old. She’s been through times in her life when she said she ‘couldn’t put a 20 cent piece on my skin without it touching some psoriasis’. Margaret explained that she felt ashamed of the condition for many years and it caused terrible issues for her self-esteem as a child and teenager.

She also told us how uncomfortable psoriasis has been. At one time, she had a period of constant itching that led her to be suicidal. Margaret points out that psoriasis affects multiple areas of health – skin and psychological health – but also that other health issues are more prevalent in people with psoriasis.

But Margaret never gave up. She just kept trying until she found something, and after going through many, many different treatments, she participated in a clinical trial of biologic injections that were successful in reducing psoriasis coverage to only 1% to 2% of her body. She continues the same treatment today.

From her experience of living with psoriasis for over 50 years, Margaret would like to see greater awareness so people understand how difficult psoriasis is to manage as a condition, that it costs money and takes time, and yet it’s not contagious nor something to be ashamed of.

‘It’s just skin that peels off’, she explains. At the same time, she feels psoriasis is ‘a condition that still doesn’t receive the attention it deserves’.

‘Psoriasis still doesn’t receive

the attention it deserves.’

22

Page 23: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

How do you treat your skin conditions?While most skin disease can be effectively managed with medical treatment, avoiding things that irritate the skin and minimising stress, it’s also important to seek professional advice.

To treat skin conditions, survey respondents seek help from

various healthcare professionals depending on the condition.

For most skin conditions, people primarily see their GP, though may

seek multiple sources of treatment. For skin cancer/sun spots, about

the same number of people see a skin specialist as a GP. For

conditions including warts and tinea, people are as likely to see

a pharmacist as a GP. The highest number of those who worked

out their own treatment was in relation to itchy skin and acne; those

with itchy skin were the most likely of people with any condition

to not seek treatment at all. This year, there was a higher share

of those seeking treatment for acne from GPs than in the two

previous years.

0 10 20 30 40 50 60

Figure 9: Seeking treatment for skin conditions

54%31%30%21%16%11%9%8%

GP

Dermatologist/skin specialist

Pharmacist

No treatment

I worked it out myself

Internet

Surgeon

Beauty therapist/health food store

23

Page 24: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

As for the treatments

themselves, the most popular

was a non-prescription (49%)

or prescription (48%) cream or

ointment, though other

significant interventions include

freezing (18%), prescription

tablets (17%), surgery (16%)

and modification of diet (15%).

A small number of people, 34

of the over 1,000 participants,

have tried a complementary

or alternative therapy for their

skin condition, such as cupping.

Prescription treatments were

generally recommended by

medical practitioners. For

over-the-counter treatments,

half or more of those who used

them chose the product

themselves. Similarly, of the 14

respondents who modified

their diet to address a

skin

condition, 9 of them chose to

do this themselves without

recommendations from

healthcare professionals.

Table 3: Have you received

any of the following treatments

for your condition?

Treatment %

Cream/ointment/

lotion/gel – non-

prescription/over-the-

counter

49

Cream/ointment/

lotion/gel – prescription

48

Freezing 18

Tablets – prescription 17

Surgery, e.g. biopsy or

removal

16

Diet modification 15

No treatment 13

Tablets – non-

prescription/over-the-

counter

9

Laser 5

Complementary/

alternative therapy

2

The Foundation is worried about

the large number of Australians

who are not treating skin

conditions or who are not

seeking professional advice.

As described above, 41% of

respondents worry about skin

cancer and sun spots, and some

of them are self-checking and

having second opinions;

however, more common skin

problems are being overlooked.

Inflammatory skin disease

comes in various forms, from

rashes, itchy skin and redness

that occur on occasion to

chronic conditions like

psoriasis, rosacea and

eczema or dermatitis.

Nearly one in five respondents,

19%, say they experience itchy

skin, equivalent to just over 3.7

million Australian adults. Itchy

skin can be a sign of skin

disease and inflammatory skin

disease can often disguise

other underlying health factors

that need a professional

medical opinion and diagnosis.

Yet over 20% don’t seek any

treatment for it, and another

14% work out their own

treatment. If your skin is itchy

or inflamed, it’s important

to get it checked out by

professionals. Most people

don’t realise that it might be a

sign of more serious health

problems. For example, itchy

skin could be a sign of asthma

or allergies.

24

Page 25: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Do you check your skin?Of those surveyed, 68% personally check or monitor their skin for signs of skin disease such as moles, skin cancer or rashes – we call this ‘skin-checking’. We actively encourage Australians to be aware of their skin health and to do skin-checking but it needs to be followed up with a visit to the doctor to get a professional opinion. Only 44% also have someone else check or monitor their skin for signs of skin disease.

The survey found that women (70%) were a little

more diligent than men (67%) when it comes to

self-checking. About 3 in 10 respondents check

weekly and just less than this check monthly.

About 2 in 10 check daily! One in ten check

every three months; 6% check every six months

and the same amount check annually.

Although on average, 77% of those who self-

check do so either daily, weekly or monthly, this

ranges from the most diligent (87% of those 75

and over and 82% of 18 to 24 year olds) to the

least diligent (69% of those 25 to 34 years old).

Last year, it was the 35- to 44-years-olds who

were least diligent, but they’ve increased their

share this year from 68% to 78% who self-check

daily, weekly or monthly.

Respondents check their skin where it’s easiest

to see, with the highest shares checking arms

(82%) and legs (74%). But they also check their

necks (70%), head (63%) and back (51%); 42%

check under their arms, 26% the soles of their

feet, and 24% their buttocks. It is essential to

check every part of your body.

According to this year’s SHARC survey, 44% get

someone else to check or monitor their skin for

signs of skin disease such as moles, skin cancers

and rashes. This was the same share as in 2014,

though the share dipped last year down to 38%.

When respondents had other people check their

skin, it was usually their GP (55%) and often their

partner (40%) though many also went to skin

cancer clinics (27%) and dermatologists (14%).

25

Page 26: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

When it comes to other people checking one’s skin, the

frequency is less. While 93% of those who self-check do so every

six months or more frequently, this figure drops to 40% for having

someone else check your skin at this same frequency. An

additional 37% have someone check their skin every six to

twelve months.

The reasons people do not have skin checks vary. The biggest

share of respondents, 37%, say it’s because their skin does not

have anything that looks suspicious, while 30% say that it's never

occurred to them to do that; 21% report that they do it themselves;

19% say they limit their sun exposure or don’t go out in the sun,

and 18% lay the blame on their doctors who don’t do these skin

checks when they are visited by patients. Interestingly, cost is a

factor for 12% of respondents.

0 10 20 30 40 50 60

Figure 10: Who else checks your skin?

55%

40%

27%

14%

GP

Partner

Skin Cancer Clinic

Dermatologist

26

Page 27: 2016 SHARC Report - Microsoft the 2016 SHARC Report 8 What do you think about your skin? 10 What problems do you have with your skin? 14 Focus on psoriasis 17 How do you treat your

Do you understand the risk of skin cancer?The early detection of skin cancer means that it can nearly always be successfully treated, and it is great to see that most people are now regularly checking their skin. We would love to move the 68% figure of Australians who check their skin to 100%.

Melanoma has been called Australia’s national

cancer with the highest incidence in the world.

Australians experience 12 times the global

average rate of melanoma. Queensland’s

incidence rate is higher than anywhere else

in the world. More than 13,000 Australians were

expected to be diagnosed with melanoma

in 2016, and the number increases slightly

each year.

KPMG reported in ‘Advanced Melanoma –

The real cost of Australia’s national cancer’

that the estimated cost to the nation of

advanced melanoma in 2014 was $422 million.5

The Australian Institute of Health and Welfare

estimates that over 1,700 people (1,210 men

and 530 women) will die of melanoma in 2016.

It is the third most commonly diagnosed

cancer for both men and women.

Another question in the SHARC survey was

that if people are checking their skin, are they

confident that they can identify possible skin

cancer? This was positive, with 68% either very

confident or confident (higher than last year’s

63%), though with 29% not confident and 3%

with ‘no idea’, some public and self-education

about suspicious lesions or spots would be useful.

There was no clear trend in terms of confidence

among age groups. While the average of those

who were confident or very confident in

identifying skin cancer was near the overall

average of 68% in most age groups, only those

aged 65 to 74 were particularly confident (78%).

On the other hand, more education, awareness

or experience is leading people to be more

confident at a younger age. While last year,

confidence rose from the age of 45, this year,

all age groups had similar confidence levels.

When asked at what age respondents think

people are at the highest risk of getting skin

cancer, the majority said ‘any age’ (41%) while a

roughly equal share (12 to 13%) guessed between

the age groups of 25 to 34, 35 to 44 and 45 to 54.

Skin cancer and melanoma occur at any age,

though the common cause of UV exposure has

a cumulative effect.

Another key result of the survey is that Australians

need to understand sunburn risk during everyday

activities. While 54% answered ‘every day’ was

the most important time to protect oneself from

the sun, 38% said the period between September

and April. These results are much the same as in

the previous two years.

In fact, those in northern Australia must protect

themselves every day of the year, while those

in southern Australia must protect themselves

between September and April.

5 KPMG (2014) ‘Advanced Melanoma – The real cost of Australia’s national cancer’, http://www.melanomapatients.org.au/wp-content/uploads/MPA_the_real_cost.pdf, accessed 20 October 2016 27

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Skin cancer risk isn’t confined to hot, sunny

summer days. Sunburn can occur where and

when you least expect it and there is still

significant threat of UV rays during the cooler,

non-summer months of the year in southern

Australia. Tasmanians often underestimate the

rate of being sunburnt because it is cooler there.

While some might think that the risk of sunburn

depends on whether your skin pigment is light

or dark, what is most relevant is the amount of

time in the sun, the date and time of day, and

your location in Australia.

Respondents correctly identified factors that

should be taken into account when trying to

protect themselves from the sun, noting in order

of most importance the UV index, how sunny it

is, and the time of day.

Still, the Foundation is concerned that most

Australians still don’t understand UV and

generally believe that skin cancer risk is

confined to hot, sunny summer days.

Table 4: Which of the following should you

take into account when you are trying to

protect yourself from the sun? (Multiple

answers were allowed)

%

When the UV index is high 69

When it is sunny 59

Time of day 51

When it is hot – over 30 degrees 51

Time of year/season 45

When it is warm – 20 to 29 degrees 36

When it is cloudy 35

When the UV index is low 15

When it is cool – under 20 degrees 14

Sunburn is a known risk factor for melanoma

and skin cancer. You are vulnerable to the sun

at different times of day and in different seasons,

even when it is cloudy. People often spend longer

outside than they initially anticipate, especially

when gardening.

Know your facts about melanoma• Detect it and treat it early!

Melanoma causes the most

deaths of any skin cancers,

but if it’s recognised at an

early stage, with treatment,

it can almost always be

treated successfully.

• Know your risk factors!

A person’s risk for

melanoma doubles if he or

she has had more than five

sunburns at any age. And

one or more blistering

sunburns in childhood or

adolescence more than

double a person’s chances

of developing melanoma

later in life. Melanoma is

particularly deadly for

young Australians, though

incidence in people over

60 is also very high and

increasing. It is the most

common cancer in young

Australians aged 15 to 39

years old and in 20 to

34-year-olds, melanoma

kills more young Australians

than any other single cancer.

• It’s a serious issue!

In Australia, an average of

30 people will be diagnosed

with melanoma every day,

and 1 in 17 Australians will

be diagnosed with

melanoma before age 85.

28

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Yet the number of people who did not choose

the factors above indicates a need for more

awareness education: 31% did not identity a

high UV as a factor to take into account for sun

protection; 41% did not identify when it is sunny,

and 65% when it is cloudy.

Interestingly, women identified the time of day and

the time of year as factors more than men (57%

vs 46% for the former; 50% vs 39% for the latter).

While the 2016 SHARC results show that 31% of

participants did NOT identify a high UV index

as a reason to protect yourself from the sun, this

lack of knowledge seems endemic in Australia.

With similar results to the SHARC surveys, a 2014

report6 in the Australasian Journal of Dermatology

noted that in Melbourne, UV is theoretically

highest at the time of the summer solstice

(21–22 December) and the months of December

and January have the highest UV radiation. Yet

only 12% of 668 participants knew the former

and 38% knew the latter. Further, 25% answered

May–August, when UVR is negligible in

Melbourne, or they had no idea.

It’s also important to raise knowledge of this

issue for Australians residing in cooler parts of

southern Australia, where UV radiation levels

may be high even when the temperature is

relatively cool. Any time the UV index is above

a moderate level of 3 requires people to

undertake some sun protection.

Table 5: Which of these are places/situations

where you consider yourself at risk of sunburn?

%

At the beach 84

Being outside in summer 82

Playing sport 67

At a BBQ on a cloudy day in summer 61

Driving 46

At a BBQ on a clear day in winter 42

Being outside in winter 30

Sitting in the shade in summer 21

Similarly, all of these situations above can place

people at risk of sunburn, even though the ones

at the top of the list are the most likely.

Who is getting sunburnt and how? Perhaps

younger people are more active and spend more

time outdoors, as those 25 to 34 were most likely

to be sunburnt unexpectedly (76%) and once

participants hit the age of 55, they reported being

unexpectedly sunburnt less. An average of 66%

of participants were sunburnt unexpectedly in

the last two years.

Awareness of the risk of these situations declined

slightly from 2014 to 2015 and again to 2016. Is

this lack of knowledge the reason why 66% of

those surveyed reported being unexpectedly

sunburnt in the last two years? Respondents

reported getting sunburnt while gardening (27%),

going for walks (26%), at the beach (24%),

driving (17%) and watching an event (16%).

6 Wong CC, Liu W, Gies P and Nixon R (2014) ‘Think UV, not heat!’ Australasian Journal of Dermatology. 2014 Dec 12. doi: 10.1111/ajd.12272 29

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How do you maintain healthy skin? The 2016 SHARC Report asked if Australians know how to protect themselves from skin damage, and then whether they turn that knowledge into action. The results? The SHARC Report revealed Australians have a good understanding of steps needed to maintain healthy skin, yet struggle to implement these steps in daily routines.

Respondents showed a good understanding of

how to maintain skin health.

Table 6: Which of these items do you believe

will help maintain skin health?

%

Drink water 80

Protect from sun, e.g. Wear a hat,

use sunscreen

79

Good nutrition 75

Treat dryness, e.g. use a moisturiser 70

Don’t smoke 66

Minimise alcohol 53

Minimise exposure to irritants, e.g. soap,

detergents, irritating chemicals at home

or work

51

A slightly smaller number of participants each

year identified the actions above to maintain

skin health. For example, minimising alcohol

consumption was identified by 60% in 2014, 58%

in 2015 and 53% this year.

Similarly, less respondents are taking these

actions. While there was always a difference

between identifying actions to maintain skin

health and then actually doing them, our

participants this year are not as active in

maintaining their skin health. Those who drink

water for skin health declined from 74% in 2014

to 67% in 2016; those who minimise drinking

alcohol declined from 40% in 2014 to 36% in

2015 and to 32% in 2016.

Table 7: Which of these do you currently do

to maintain your skin health?

%

Drink water 67

Protect from sun, e.g. Wear a hat,

use sunscreen

64

Treat dryness, e.g. use a moisturiser 58

Don’t smoke 54

Good nutrition 53

Minimise exposure to irritants 34

Minimise alcohol 32

It seems that with age comes wisdom. Those in

the age range from 45–64 appear to drink the

most water on a daily basis (70% to 74%). The

survey also finds that respondents aged 55 and

over are the most active in protecting

themselves from the sun by using a hat and

regularly applying sunscreen (77% and up).

In contrast, the percentage of younger adults

(18 to 24) that wear a hat and use sunscreen

to maintain skin health is only 49%.

Most Australians (over 7 in 10) use a moisturiser,

which hasn’t changed over the last two surveys.

There is a higher share of 25- to 34-year-olds who

moisturise than other age groups (80%). There

was a significant difference between women

(90% who moisturise) and men (only 54%).

30

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Most respondents moisturise

daily (59%) or every other day

(22%) or once a week (15%).

A minority (43%) use other skin

care products with the most

common one being sunscreen.

Of this minority, 59% who

moisturise also use sunscreen

and 58% also use a cleanser.

Of those who use moisturiser

on their bodies, they use it

especially on their face (85%),

arms (67%), legs (61%) and

neck (55%). Perhaps the chest

being covered most of the

time is the reason it receives

less attention (33%) and the

back is hard to reach (21%)

though the head received the

same share (21%) as the back.

Table 8: Top 5 skin care products

used other than moisturiser

%

Sunscreen 59

Cleanser 58

Day cream 45

Facial scrubs 45

Make-up 43

Unsurprisingly, not as many

men use facial scrubs (25%) as

women (53%), or use cleanser

(25% vs 72%) and day cream

(22% vs 55%) though 4%

use make-up of some sort

(compared with 59% of women).

Roughly one-fifth of participants

don’t spend any money on

skin products or services each

month; 11% spend $1–5; 17%

spend $5–10, and the biggest

share spend $11–20 (21%). 17%

spend $21–50 and 16% spend

over $50 a month including

1% who spend over $200.

Most respondents, 56%, are

happy with the way their skin

looks, of which 60% of men are

happy and 51% of women.

Very few have sought

cosmetic

treatments to change the

appearance of their skin in

the previous 12 months.

Facial peels were done by

7% of respondents, 5% tried

dermabrasion and laser

treatment, 3% of respondents

had body or hand peels,

botox or dermal fillers.

On the other hand, these

approaches are becoming

less popular every year; the

share of those who had done

none of these increased from

11% in 2014 to 14% in 2015 and

17% in 2016. These approaches

are most popular among those

ages 25 to 34, and more

popular in New South Wales

than any other state or territory.

10

15

20

%201620152014

11

1417

PEOPLE WHO HAVE NOT HAD COSMETIC TREATMENTS

31

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Does your skin affect your quality of life?The SHARC survey asks if issues with your skin affect your quality of life. The survey used the Dermatology Life Quality Index (DLQI)7 to understand how your skin affects your quality of life. The DLQI finds the effect of skin issues, ranging from no effect or a small effect to a moderate, very large or extremely large effect, on different areas of a person's life.

These are important results. Your skin health is

important to you, and it affects a significant

number of Australians while they work, study and

socialise. Using the DLQI, survey participants

were asked to think about the week previous to

the survey. During this week:

• About 41% of survey respondents were

embarrassed or self-conscious because of

their skin (up from 38% last year and 30%

the year before). Those who were ‘a lot’

embarrassed or self-conscious was 9%,

considerably higher than previous years.

• 18% said their skin health interfered with

shopping or looking after their home

or garden.

• 42% found their skin itchy, sore, painful

or stinging (the same share as in last

year’s survey).

• 20% said it had an effect on their social and

leisure activities. This figure was higher for the

younger age groups: 31% of 18- to 24- year-

olds, and 33% of 25- to 34-year-olds.

• A skin issue made it difficult for 15% to

participate in sport.

• 50% more people reported sexual difficulties

in the last week caused by their skin health

this year compared to last year (12% of those

surveyed, up from 8%).

• A skin issue created problems with a partner,

close friend or relative for 14%, up from 10%

last year.

• Skin health prevented just 4% from working

or studying in the previous week to the survey

though it was a ‘little’ or ‘a lot’ of a problem

for 13% at work or studying.

• About 28% said their skin influenced the

clothes they wore (much higher than last

year’s 18%). This figure was higher for the

younger age groups: 31% of those ages

18 to 24, and 39% for those ages 25 to 34.

• 17% of respondents found it a problem to

treat skin issues (for example, by making

their home messy or taking up time).

It’s obvious that skin health issues are affecting

a large number of people. In fact, the DLQI results

over the last three surveys show a clear trend

that in all nearly all aspects of life, respondents

report the effect of skin conditions on their quality

of life as larger. A skin condition interfered with

shopping or looking after the home or garden,

influenced what clothes were worn, affected

social and leisure activities, made it more

difficult to play sport, prevented or had been a

7 © Dermatology Life Quality Index. Finlay, AY and Khan GK, April 1992 www.dermatology.org.uk. The DLQI must not be copied without the permission of the authors.

30

40

50

%201620152014

30

3841

PEOPLE WHO ARE SELF-CONSCIOUS OF THEIR SKIN32

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problem at work or studying,

created problems with a

partner or close friends or

relatives, or caused sexual

difficulties. Only the DLQI score

for treatment of skin causing a

problem remained about the

same from year to year.

As reported above, while most

people with skin conditions are

not extremely or moderately

affected, overall, respondents

reported a slightly larger

effect each year.

How skin conditions relate to

work is an interesting issue. 31%

of respondents chose their

occupation based on an issue

related to a skin condition

(higher than last year’s response

of 27% which was much higher

than the previous year’s

response of 19%).

Of these, 4% were extremely

influenced and 5% moderately.

Men were more likely than

women to say their choice of

occupation was influenced by a

skin condition (34% vs. 29%). 11%

of respondents had to miss work

in the last 12 months because

of a skin condition. About one-

third missed two to five days,

and 30% six to ten days.

Awareness about the skin

condition of someone else in

their workplace has risen, from

12% of respondents in both

2014 and 2015 to 16% in 2016.

Respondents believe that

these colleagues would suffer

embarrassment (47%), the

condition would have an

effect socially (32%), they

would be absent from work

more often than others (9%),

and the condition would affect

their capacity to work (9%).

Australia is a country where

people sometimes have to

work outdoors.

Table 9: Does your

employment require you to

work outdoors?

%

Never 44

Sometimes 40

Regularly 11

All the time 4

This is a different profile of

participants than previous years,

where 53–54% never had to

work outside, and 30–31%

sometimes had to. Those who

have to work outdoors all the

time dropped from 6–7% to 4%.

A much higher percentage of

men sometimes, regularly or all

the time work outdoors (about

63%) than women (47%). Those

from South Australia work the

most outdoors (67% working

outdoors at least sometimes)

of the states and territories;

those from ACT (38%) and

Victoria and Tasmania (46%

each) work the least outdoors

(never working outdoors).

If people do have to work

outside, their employers

generally do not provide them

with protection, although

there are improvements over

previous years.

Table 10: Does your employer

provide you with any of the

following?

%

Sunscreen 48

Protective clothing, e.g.

hats, sun-protective shirts

35

Sunglasses 26

Gloves 25

Moisturisers 19

Skin checks 10

None of these 30

48% of employers (compared

to 38% last year) provided

sunscreen (which was 3% higher

than the year before) and 19%

compared with 13% provided

them with moisturisers (which

was 3% higher than the year

before). Those whose employers

provide them with no protection

at all dropped from 44% in 2014

to 39% in 2015 and 30% in 2016.

These statistics demonstrate a

very favourable trend.

The Skin & Cancer Foundation

Inc is already working with

a range of employers and

sporting groups to raise

awareness about both skin

health and responsibilities if

their workers are required to be

outside; however, it remains an

issue that requires attention.

33

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Comments from survey participantsIt was great to get comments from so many respondents. About 80 of our over 1,000 survey respondents had comments on the survey, up from 50 last year. Many found the survey ‘good’, ‘very good’ and ‘great’, and even ‘enjoyable’. Participants also commented on the professionalism of the survey and that it was ‘expert’.

A number commented on the way survey

helped raise awareness of skin health among

the Australian population. ‘I feel there is not

enough awareness about skin health and having

regular skin checks,’ said one participant, while

others said that the survey reminded them of

‘the importance of checking my skin more

regularly for any changes’ and ‘reminded me

about looking after my skin’.

Some interesting comments were that one

person found it embarrassing and difficult to

talk to health professionals about skin problems

because of being a man, while another reminded

us that skin care is not always easy; they’d ‘like

to do more for my skin but money and time are

huge factors’.

A few comments were that the survey was

‘thought provoking’ and ‘a good reminder to

look after my skin, particularly with summer

approaching.’ Another found the survey a good

way to raise awareness that some people may

suffer from their skin.

Two different people spoke of the need for

care, empathy and self-confidence, to be

happy with who you are and not to judge

others based on their appearance.

Two responses highlighted the need for attention

in the workplace, including skin protection in

occupational health and safety, and the damage

to skin caused by chemicals in the workplace.

One notable comment came from an older

participant who said ‘My skin problems are all

age-related, and at 78, I can live with them.’

Our sincere thanks to all our survey participants,

and all those who gave us extra comments.

We’re grateful to you for contributing to our

national understanding of skin health issues.

My skin problems are

all age-related, and

at 78, I can live with them.‘ ’34

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About Galderma For the third year, the SHARC Report has been commissioned with the support of an untied education grant to the Skin & Cancer Foundation Inc from Galderma.

Galderma is a global

dermatology company, part

of Nestle Skin Health, which

is focused on developing

medical solutions for the skin.

Galderma has a particular

focus on acne, rosacea,

psoriasis and other steroid-

responsive dermatoses,

onychomycosis (fungal nail

infections), skin cancer, sun

protection, and medical

aesthetic and corrective

solutions for skin senescence.

The company has 36 wholly

owned affiliates, over 6,500

employees and is present

in over 100 countries.

Today, Galderma is a global

leader in the research and

development of scientifically

defined and medically proven

solutions for the skin, hair and

nails, partnering with healthcare

professionals around the world

to meet the needs of people

throughout their lifetime.

35

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About the Skin & Cancer Foundation Inc The Skin & Cancer Foundation Inc (the Foundation) is Australia’s leading centre for the specialist treatment of and research into skin disease. Established in 1987, we are a not-for-profit organisation that provides highly specialised clinical treatment and care, education and research for a wide variety of skin diseases, skin cancer and melanoma.

Diseases of the skin are one

of Australia’s major public

health problems. Every day,

dermatologists see people with

a wide range of skin conditions;

some are debilitating and

profoundly affect their self-

esteem and the ability to

socialise and work. The

Foundation is proud to help

these Australians achieve their

full potential through better

skin health.

Headquartered in Melbourne,

the Foundation has become

Australia’s largest centre of

excellence in dermatology.

Our core activities are:

1. To provide patient-focused,

world-class dermatological

treatment and care

2. To lead the promotion of skin

health in the community

through education in

dermatology including

dermatologists, registrars,

GPs and other healthcare

professionals

3. To achieve global

outcomes by conducting

and contributing to world-

class dermatology research

The Foundation conducts

clinical trials and world-class

research that are published

and presented internationally.

This allows us to make significant

advancements in skin disease

treatments and patient care.

We also provide education and

updates to dermatologists,

specialist trainees, medical

students, general practitioners,

other healthcare professionals

and the community.

You can always visit our

website or contact us for more

information about skin health

and sun protection:

www.skincancer.asn.au

Skin & Cancer Foundation Inc

80 Drummond Street

Carlton VIC 3053

t: 03 9623 9400

e: [email protected]

www.skincancer.asn.auPublished October 2016