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O n T h e I n s i d e Thank You for Your Support .......................................... 2 2017 Fall Symposium .................................................. 3 Donations, In Honor, Memorials / New PD Podcast ............... 4 Singing as a Vocal Exercise ........................................... 5 Caregiver Corner: Speaking with Your Loved One's Phyicians... 5 Support Group Programs.............................................. 6 Voice & Movement Groups ........................................... 8 Are You Following NPF Ohio on Social Media? ..................... 9 Calling All Parkinson's Advocates! .................................. 10 PD Ohio Research Presentation / Tips for Easing Anxiety ...... 10 Newsletter Renewal Form ........................................... 11 Partners / Team Hope™ FUNdraising / Help Line ...... Back page Volume 37 Issue 10 October 2017 “Mood” continued on page 4 New Resource Book: Mood: A Mind Guide to Parkinson’s Disease Part One of a series highlighting our resourcess A Diabetes Drug to Treat Parkinson’s? Our book, Mood: A Mind Guide to Parkinson’s Disease includes information, tips and stories that provide answers and remind you that you are not alone on this Parkinson’s journey. This guide includes these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research from the Parkinson’s Outcomes Project — the largest clinical study of PD in the world — found that, taken together, depression and anxiety have the greatest impact on the health of people with PD, even more than the movement challenges. • Fight fatigue, which can be a symptom of anxiety, depression and Parkinson’s; avoid over-scheduling; regularly exercise (both physical and mental); plan ahead; know your limits. Recently a small study published in the journal Lancet suggested that Exenatide, a medication used to manage diabetes (more specifically, a glucagon-like peptide-1 receptor stimulator) may slow the progression of Parkinson’s. Exenatide is being studied as a neuro- protective pharmacological treatment for people living with Parkinson’s. Exenatide has shown neuro-protective benefits in animal models, but not in humans. To see if this diabetes therapy has disease modifying effects in people with Parkinson’s, British investigators performed a double- blind, placebo-controlled study on 62 patients. Of those, 30 received two-milligram injections of Exenatide, and 32 received a placebo once a week for four months. Both groups then stopped the study drugs for three months for what is called a “wash out” period. • Recognize depressive disorder symptoms: You may be feeling more than just sad. If you feel slower or restless, have difficulty concentrating or decreased energy, or experience changes in appetite or sleep, you might be depressed. • Do these three things every day to help improve your mood: Exercise! Have a social interaction — in person or over the phone. Do something you enjoy — listen to your favorite album, meditate or watch a funny movie. Track your symptoms. People with Parkinson’s sometimes feel anxious before they get their next dose of medication. Keep notes and share them with your doctor, who can help you manage “off”-state anxiety. The primary outcome was an improvement of motor symptoms, as measured on the Unified Parkinson Disease Rating Scale (a scale used in clinical studies to measure behavior, activities of daily life, motor symptoms and other components over the course of PD). A Parkinson’s motor score was calculated at the beginning of the study and after the intervention. Study results showed an improvement of one point on the Unified Parkinson Disease Rating Scale among the Exenatide group, and a decline of 2.1 in the placebo group. Here’s What You Need to Know This is an exciting finding suggesting Exenatide provides some neuro-protection to people with Parkinson’s. However, because the results of this small study are preliminary, there is not enough data to prove neuro- protection. The bottom line is that Exenatide is a promising drug, but larger trials are needed to determine if it indeed has disease modifying effects in people with Parkinson’s. National Reach, Local Touch

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Page 1: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

On The Inside

Thank You for Your Support .......................................... 22017 Fall Symposium .................................................. 3Donations, In Honor, Memorials / New PD Podcast ............... 4Singing as a Vocal Exercise ........................................... 5 Caregiver Corner: Speaking with Your Loved One's Phyicians ... 5Support Group Programs .............................................. 6

Voice & Movement Groups ........................................... 8Are You Following NPF Ohio on Social Media? ..................... 9Calling All Parkinson's Advocates! ..................................10PD Ohio Research Presentation / Tips for Easing Anxiety ......10 Newsletter Renewal Form ...........................................11 Partners / Team Hope™ FUNdraising / Help Line ...... Back page

Volume 37 Issue 10 October 2017

“Mood” continued on page 4

New Resource Book: Mood: A Mind Guide to Parkinson’s DiseasePart One of a series highlighting our resourcess

A Diabetes Drug to Treat Parkinson’s?

Our book, Mood: A Mind Guide to Parkinson’s Disease includes information, tips and stories that provide answers and remind you that you are not alone on this Parkinson’s journey. This guide includes these tips for people with Parkinson’s and tips for care partners.

Tips for People with Parkinson’s• Treat depression. Research from the Parkinson’s Outcomes Project — the largest clinical study of PD in the world — found that, taken together, depression and anxiety have the greatest impact on the health of people with PD, even more than the movement challenges. • Fight fatigue, which can be a symptom of anxiety, depression and Parkinson’s; avoid over-scheduling; regularly exercise (both physical and mental); plan ahead; know your limits.

Recently a small study published in the journal Lancet suggested that Exenatide, a medication used to manage diabetes (more specifically, a glucagon-like peptide-1 receptor stimulator) may slow the progression of Parkinson’s. Exenatide is being studied as a neuro-protective pharmacological treatment for people living with Parkinson’s. Exenatide has shown neuro-protective benefits in animal models, but not in humans. To see if this diabetes therapy has disease modifying effects in people with Parkinson’s, British investigators performed a double-blind, placebo-controlled study on 62 patients. Of those, 30 received two-milligram injections of Exenatide, and 32 received a placebo once a week for four months. Both groups then stopped the study drugs for three months for what is called a “wash out” period.

• Recognize depressive disorder symptoms: You may be feeling more than just sad. If you feel slower or restless, have difficulty concentrating or decreased energy, or experience changes in appetite or sleep, you might be depressed. • Do these three things every day to help improve your mood: Exercise! Have a social interaction — in person or over the phone. Do something you enjoy — listen to your favorite album, meditate or watch a funny movie. Track your symptoms. People with Parkinson’s sometimes feel anxious before they get their next dose of medication. Keep notes and share them with your doctor, who can help you manage “off”-state anxiety.

The primary outcome was an improvement of motor symptoms, as measured on the Unified Parkinson Disease Rating Scale (a scale used in clinical studies to measure behavior, activities of daily life, motor symptoms and other components over the course of PD). A Parkinson’s motor score was calculated at the beginning of the study and after the intervention. Study results showed an improvement of one point on the Unified Parkinson Disease Rating Scale among the Exenatide group, and a decline of 2.1 in the placebo group.

Here’s What You Need to KnowThis is an exciting finding suggesting Exenatide provides some neuro-protection to people with Parkinson’s. However, because the results of this small study are preliminary, there is not enough data to prove neuro-protection. The bottom line is that Exenatide is a promising drug, but larger trials are needed to determine if it indeed has disease modifying effects in people with Parkinson’s.

National Reach, Local Touch

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StaffDaniel E. Davis, MBA, CHES, LSW • Executive DirectorLaura Gasbarro • Moving Day® Cleveland CoordinatorJennifer Mathews • Events and Volunteer Coordinator

Anne Wallis, MSW, LSW • Program Manager

2017 Board Members Jerry Yarov, Jerry Yarov & Associates • Board President

Tom Graffeo, Alliance Hospitality • Secretary Bill Perdan, Parker • Treasurer

Dr. Janet Bay, OhioHealthDr. Deb Kegelmeyer, OSU

Scott Rider, Rider + Reinke Dr. Dave Ruedrich, MaternOhio

Lori Wengerd, Home Care Assistance

National Parkinson Foundation | Ohio2800 Corporate Exchange Dr., Suite 265

Columbus, OH 43231Office Hours: Monday — Friday 9:00 — 5:00Office: 614.890.1901 • Fax: 614.890.1904

Toll Free: 866.920.6673www.parkinsonohio.org

Parkinson News is a monthly publication of the National Parkinson Foundation Ohio. Comments,

Suggestions, and Article submissions may be sent in Word format, to: [email protected], or mailed to our office to the attention of: Dan Davis, Editor.

© 2017 National Parkinson Foundation Ohio. All rights reserved.

Mission Statement We make life better for people with Parkinson’s

through expert care and research. Everything we do helps people actively enjoy life with their friends, families, children and grandchildren until there is

a tomorrow without Parkinson’s.

This newsletter is not intended as legal or medical advice nor to endorse any product or service. It is

intended to serve as an information guide.

Come Join UsThe monthly Foldin’ and Addressin’ will be Tuesday, October 24, 2017. Come join us at 11:00 AM or when

you can, and stay as long as you want at The Covenant Presbyterian Church, 2070 Ridgecliff Road (at Redding

Road), Upper Arlington, OH 43221. Bring a friend. The tasks involved are simple and easy. We usually finish by 3:30 PM. During that time everyone has an opportunity to chat and have a refreshment or two.

The facility is wheelchair accessible.

National Parkinson Foundation | OhioThank You for Your SupportDear Friends, On behalf of the Board of Trustees of the National Parkinson Foundation (NPF) Ohio Chapter and the individuals and families touched by Parkinson’s, I want to thank you for your support over the years. Due in large part to the financial support from people like you, we have been able to add a Program Manager and Events and Volunteer Coordinator to our team in Columbus and a Moving Day® Coordinator in Cleveland. These additional staff members have increased our impact throughout Ohio. Chapter highlights include: • Sent monthly newsletter to nearly 3,000 people and partner agencies • Distributed 1,820 “10 Early Warning Signs” brochures, many of which were distributed through expanded community partnerships • Distributed 2,070 educational books from the NPF “Rainbow book” series • Delivered 300 Aware in Care Hospital Kits • Expanded Parkinson’s Educational Seminars into more areas throughout Oho • Continued Parkinson CareLine to support the caregiver and individuals and families • Awarded a total of $45,000 in grant funding to support 10 Parkinson’s voice and movement programs throughout the state Our national research priorities continue to focus on allowing people with Parkinson’s to enjoy healthier, fuller, more rewarding lives. Highlights include: • NPF researchers determined that certain NPF Centers of Excellence use medication approaches that work better. For example, simpler medication regimens – such as using levodopa alone, for as long as possible – may reduce falls. • NPF scientists for the first time identified the clinical protocol that’s effective in treating psychosis. We found that the ideal treatment is a complex combination of interventions. We believe that through this work, we can alleviate the suffering of the many people with advanced Parkinson’s who may develop psychotic symptoms. • NPF researchers demonstrated that early physical therapy is linked to better long-term outcomes. (This finding validates NPF’s 15-year history of advocating for team care.) People who are referred early for physical therapy are more likely to start exercising, which is a critical tool in successfully managing Parkinson’s. I want to encourage you to make a gift to help ensure that people struggling with Parkinson’s, and their caregivers, will benefit from our services and research findings TODAY. Included with this newsletter is a donation envelope. Any amount will go a long way in helping our vision become a reality. You can also donate online at www.ParkinsonOhio.org. Thank you for your commitment to our mission to make life better for people living with Parkinson’s.

Sincerely, Daniel E. Davis, MBA, CHES, LSW Executive Director National Parkinson Foundation Ohio Chapter

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Page 4: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

DonationsPatricia Bates Dale and Christine Cochran Jim and Priscilla Meeks William and Patricia Miller Ann Payne William and Marianne Thompson

In HonorIn Honor of Mrs. Annette Turner Birthday Alan and Sandra Katz

MemorialsThomas Amicon The Abernethy Family Tom and Jenny Brymer Jeri Diehl-Cusack Jeffrey Lemichuk Barbara Ulen Dr. Richard Gemma Kathleen Funderburgh Donald Hammond Robert and Regina Carney Daniel and Dixie Cook Marion and Julia Evans Happy Trails Dance Club Connie Hammond Dale Hammond Nadine Hammond David and Janet Parent Lavaughn Ritterbeck Ronda Seligman Tom and William Slack Franklin and Edith Smith Jesse and Lynn VanFossen

Lillian Hankison Debra Duncan and Steve Hankison Stephan and Jeryl Monroe Carolyn Ricketts Robert and Enid Searls Virginia and Gene Swick Maryethel Hunkins Edward Hunkins Glen Meek June Meek Philip L. Minic Sr John and Cindy Casparro Margaret Schlabach Ruth Schlabach David Spitler Susan Miller

4

Tips for Care Partners• Seek help. Depression is not a weakness; it is an illness. The same therapies that can help the person with Parkinson’s can help you, too. • Discuss any changes in your loved one’s mood or interests with the health care team. • Remind yourself that you are not responsible for making your loved one happy all the time. If you try, it can lead to caregiver burnout. Report depression, anxiety or other mood changes to the doctor and therapist. • Remember that apathy is a PD symptom, and that your loved one isn’t necessarily being lazy or making

“Mood” continued from page 1

excuses. Apathy can be one of the most frustrating PD symptoms for caregivers. • Recognize warning signs of caregiver fatigue: ignoring your own health needs; feeling isolated or anxious about the future; not being able to concentrate or make decisions. Along with Mood, the Parkinson’s Foundation recently published Cognition and Psychosis to help people with PD and caregivers through these changes. Call Ohio Chapter office at 614-890-1901 or our toll-free Helpline at 1-800-4PD-INFO (473-4636) to order any of our educational materials or to speak to a Parkinson’s specialist.

Have you heard our NEW podcast series, “Substantial Matters: Life and Science of Parkinson’s?” Hosted by Dan Keller, Ph.D., a new 15-minute episode airs every other week featuring interviews with Parkinson’s experts. Visit www.parkinson.org/podcast for more information.

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Caregiver Corner: Having a Voice When Speaking with Your Loved One’s PhysiciansBy Jane H. Davis

Jane H. Davis, a registered nurse, volunteer, author, speaker and spousal caregiver, asked her online caregiver support group for tips and ideas for having a voice when speaking with your spouse’s physician. Here are a few of their responses: • Best advice - get Medical Power of Attorney (MPOA) and General POA that are effective immediately. Take pad and pen to write questions and answers and anything doc says. And make sure the office knows it's okay to talk with you. There should be a HIPPA form on file that gives docs nurses permission to speak with you and anyone else your spouse designates. • I always discuss the things I want to talk about at the appointment with my spouse prior to his visit so he doesn't feel like I am completely taking over. I always go with him to appointments too. His doctors are also aware that I am his caregiver and administer all his meds, so that really helps as well. There are times too that during appointments my spouse tried to minimize changes in his condition and I did speak very freely at that point. He knows that we are a team and I have his best interest at heart. • I am my husband’s legal guardian. It helps tremendously in all areas.

• I write down concerns that either one of us has. I have always gone to my hubby’s doctor’s appointments and have always been able to give input, even before I had a MPOA. Really, I think most doctors like to see the full picture so they can better treat their patients. • I created a patient binder with all my husband’s info. We have a “clinic notes” section to write in what we talk about with the doctors, and what follow up needs to happen. I have a time line of everything which is helpful for me to keep dates straight. The last time he had to go to the ER, the EMT asked if he could take it with him in the rescue. When I got there the nurse had it and was already entering his history into the computer. If you go prepared with a binder containing meds list, recent doctor/hospital visit discharge reports, medical history, etc., and provide more details, the doctor will listen to you and even ask questions. • The trick is to not contradict your spouse but to phrase things in a way that add additional information.

Keep your voice at the medical appointments for your loved one. In saying that, be considerate of all they are going through, it is very difficult on them. (We know how difficult it is on us). It is a fine line that we must walk on when caring for our loved ones. We want to encourage them to hold onto their dignity throughout this Parkinson’s journey.

Do you sing in the shower? With the car radio? If so, you have exercised your voice! Because Parkinson’s Disease is a neurodegenerative movement disorder, many people with PD notice changes in the muscles that effect the voice, face, mouth, tongue, and breath. This leads to poor breath support, decreased vocal volume and tone quality, and difficulty articulating. Singing is a fun and effective way to exercise and strengthen these muscle areas which may result in speech that is louder, clearer, slower, and more intelligible. If you’ve ever been a part of a choir, you have learned some voice warm ups that can be effective in therapeutic singing. Here are a few tips:

1. Breath is fuel for the voice, and proper breathing technique is helpful for proper vocal production, whether singing or speaking. Practice deep breathing from the diaphragm.Sit up tall with your shoulders back and relaxed. If you are breathing correctly, your shoulders will remain at rest, your abdomen will expand on the inhale, and contract on the exhale. Inhale through your nose for 4 counts, then exhale through your mouth for 4 counts. Gradually increase the number of exhale counts, to 6, 8, or 10. Move your arms smoothly upward on the inhale, and downward on the exhale. 2. Choose a mid-range note. Inhale as above, then sing “ah” on that note. Sing loudly and open your mouth wide. First hold the “ah” for 4 counts, then increase to holding it as long as you can. Repeat on vowel sounds “ee”, “oo” and “oh”. 3. Choose a note in low to mid range, choose a vowel sound, and move up and down the steps of 5 notes (1 2 3 4 5 4 3 2 1). This is a typical choral vocal warm up. Progress by starting each set one note higher than the last. Finally, add consonants to the beginning of each vowel (ba, da, la, ma, ha etc) 4. Sing the ABC song, slowly and loudly. Focus on and exaggerate the movement of your lips, mouth, cheeks and tongue. 5. Choose an easy, familiar melody, and replace the words with nonsense syllables (zinga, hee ha, shoo bee, etc) or real words that exercise mouth and tongue (dilly

Singing as a Vocal ExerciseBy Pam Richardson, MT-BC, facilitator of the Central Ohio Tremble Clefs

“Vocal” continued on page 10

Page 6: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

BROWN COUNTY

BUTLER COUNTY

CABELL COUNTY, WV

CHAMPAIGN COUNTY

CLARK COUNTY

CLERMONT COUNTY

CUYAHOGA COUNTY

DARKE COUNTY

FAIRFIELD COUNTY

FRANKLIN COUNTY

First Tuesday at 4:00 pm Villa Georgetown Nursing & Rehab 8065 Dr. Faul Road, Georgetown, 45121 Nikki Pelvit, 513.378.4178

Second Thursday from 5:00 pm to 6:30 pm UC Health Physicians Office South, Womens Center Community Room, 4th floor, 7675 Wellness Way Michanne Davis, 513.475.8792

Third Tuesday of the Month at 6:00 pm Cabell Huntington Hospital1340 Hal Greer Blvd., Huntington, WV Teresa Sexton, 304.526.2695

Caregiver Group First Monday of the Month at 9:45 am (If a holiday, the meeting moves to the Second Monday) Vancrest of Urbana, 2380 US 68 Lorie Edwards, 937.653.7679

Second Tuesday of the Month from 1:00 pm to 2:00 pmUnited Senior Services 125 W Main St., Springfield, 45502Linda Sauers, 937.521.3009

Third Friday from 10:00 am to 11:00 am Panera Restaurant 876 Eastgate N. Drive, Cincinnati, 45245 Patty Ahern, 513.260.8495

First Wednesday at 2:00 pmCleveland Heights Recreation CenterOne Monticello Blvd., Cleveland Heights, 44118David Brandt, 440.742.0153October 4, 2017 - The speaker will be Molly Scott, RN, University of Toledo, speaking on Parkinson’s Disease and the management of “off” episodes.

Caregiver GroupFourth Tuesday of the month at 2:00 pm Versailles Health Care Center 200 Marker Rd., Versailles, 45380Joan Siegel, 937.295.3947

Power over Parkinsons Second Wednesday at 4:00 pm Versailles Health Care Center200 Marker Road, Versailles, 45380 Shannon Condon, 937.526.0130

6

Support Group ProgramsPlease contact the facilitors listed to confirm the meeting is still being held. Do you attend a group that isn’t listed that should be?

Is there no group in your area and you’re interested in starting one? Call the NPF Ohio Office 1-866-920-6673.

Third Wednesday of the Month at 1:00 pm SOCIL Building, 418 S. Broad St., Lancaster Diane Palmer, 740.653.0332 and Sharon Waldo

Central Ohio Partners and Caregivers Fourth Thursday of the Month at 1:00 pm Panera Bread, 4519 N. High St. Susan Hervey, 614.372.5360ALL caregivers are welcome.

Parkinson’s and Lewy Bodies Disease for CarePartnersThird Thursday of the Month at 10:30 am Gerlach Center, 3724 Olentangy River Rd. Dianne Kennedy, Alzheimers Association, 614.457.6003 Respite care provided by professionals from Home Care Assistance. Please call for information or reservations.

El DopasSecond Monday of the Month at 1:00 pm Worthington United Methodist Church600 High St., Worthington Susan Hervey, 614.372.5360October 9, 2017 - Dr. Reversa Joseph, Ohio State University, Movement Disorders Neurologist, will discuss medications newly approved by lthe FDA.

El Dopas “Parkinson Partners” Last Monday of the Month at 6:30 pm Hunan Lion, Bethel Rd. Call Maureen Haney, 614.451.0982, for reservations.All caregivers are welcome.

Grove CityThird Wednesday of the month at 1:00 pmEvans Senior Center4330 Dudley Ave, Grove CityAnnie Wallis, 614.890.190

Hilliard: National Church Residences at Mill Run Third Monday of the Month at 7:00 pm 3550 Fishinger Rd., Hilliard Larry and Lois Schaaf, 740.909.4242

Reynoldsburg Fourth Thursday of the Month at 10:30 am Reynoldsburg United Methodist Church, 1636 Graham Rd. Carmel Jenkins, 614.861.2571 & Maureen Patterson, 614.833.0980October 26, 2017 - The program will be “Supplements and Parkinson’s Disease”.

Riverside First Wednesday of the Month at 12:15 pm Gerlach Center in the upstairs meeting room. Annie Wallis, MSW, LSW, Program Manager NPF Ohio 614.890.1901

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Centerville Group Last Wednesday from 2:30 pm to 3:30 pm St. Leonard Franciscan Wellness Center 8200 Provincial Way, Centerville, 45458 Dawn Arrowood, 937.439.7145

Parkinson’s Disease Support ClubSecond Tuesday of each Month 4:30 pm to 6:00 pmNeuroRehab and Balance CenterYankee Medical Building Conference Room(Across from the hall from the NRBC waiting room)7677 Yankee Street, Centerville, Ohio 45459Bryan Dalton, PT, DPT, Physical Therapist, 937.401.6109

Fourth Wednesday of the Month from 3:00 pm to 4:00 pm Genesis Healthplex on Maple Avenue, ZanesvilleRhonda Forrestal, 740-455-5151

Third Tuesday of the Month at 1:00 pmPickaway Senior Center, 2105 Chickasaw Dr., CirclevillePat Hughey, 740.420.8231

Third Wednesday of the Month at 2:30 pm Waterford Retirement Center 1296 S. Trimble Rd, MansfieldEnid Reis, 419.756.3703 & Albert Roggio 419.756.5257Questions: Call Albert or Becky Roggio at 419-756-5257October 18, 2017 - There will be a video with Dr. Heydrick.

Last Thursday of the Month at 1:30 pm Hillview Retirement Center, 1610 - 28th St., Portsmouth Bill Miller, 740.574.5281

Third Wednesday of the Month from 12:00 noon to 1:30 pmBrookdale Montrose, 100 Brookmont Rd., Akron, OH 44333Includes lunchMelissa Todd, 330.666.4545

Second Tuesday of the Month at 1:30 pm First United Methodist Church, Mill’s Lounge, 207 S. Court St. Betty Crowder, 937.747.3703

Second Tuesday of the Month at 1:30 pm First United Methodist Church303 S. Main St., Franklin 45005 Rose Wurst, Coordinator, 937.231.3362October 9, 2017 - Dr Richard Kirstine, Opthalmologist with the Cincinnati Eye Institute will be the speaker. His topic is “Visual Disturbances in Parkinson’s Disease”.

Young Onset Support Group Second Saturday of February, May, August and November Times and places vary. Patty Ahern, 513.260.8495 Caregiver Group Last Monday of the Month from 10:00 am to 11:00 am Panera Restaurant, 8420 Winton Road, Cincinnati, 45231 Gay Volz, 513.931.7148 Evergreen Third Monday of the Month at 6:30 pm Evergreen Retirement Community230 West Galbraith Rd., Cincinnati, 45216 Patty Ahern, 513.260.8495 Kenwood First Thursday of the Month at 6:30 pm Good Shepherd Lutheran Church 7701 Kenwood Road, Cincinnati, 45236 Patty Ahern, 513.260.8495 Bridgeway Pointe/Drake Last Saturday, January to October, 10:00 am First Saturday in December Bridgeway Pointe, 2nd floor meeting room 165 West Galbraith Road, Cincinnati, 45216 Carol Simons, 513.474.4441

Second Wednesday of the month at 1:00 pm Prime Time Center, 300 Lovers Ln., Steubenville Judy Owings, 740.314.5197

Third Wednesday of the Month at 1:30 pm The Rehabilitation & Wellness Center1375 Yauger Rd., Mt. Vernon Jason Mentzer, Rehab & Wellness, 740.393.9875

First Tuesday of the Month from 4:15 pm to 5:15 pmMentor Senior Center, 8500 Civic Center Rd., MentorPhyllis Hinkel, [email protected], 440.679.1594

Third Sunday of the Month at 2:00 pm Licking Memorial Hospital, 1320 W. Main St., Newark John Stover, 740.967.3809

HAMILTON COUNTY

JEFFERSON COUNTY

KNOX COUNTY

LAKE COUNTY

LICKING COUNTY

MAHONING COUNTYFRANKLIN COUNTY cont'd

MONTGOMERY COUNTY

MUSKINGUM COUNTY

PICKAWAY COUNTY

RICHLAND COUNTY

SCIOTO COUNTY

SUMMIT COUNTY

UNION COUNTY

WARREN COUNTY

Westerville First Wednesday of the Month at 1:30 pm Westerville Senior Center, 310 W. Main St., Westerville Debra Tehrani, Concord Counseling, 614.882.9338October 4, 2017 - Care and Share Meeting. New Members Welcome.

Young with Parkinson’s GroupMeeting every other Month at 5:30Location changes, call or email for detailsAnnie Wallis, 614.682.9900, [email protected] Social gathering for Patients and Caregivers under 60

Second Thursday from 2:00 pm to 4:00 pmPark Vista Retirement Community1216 5th Avenue, YoungstownBetty Crafter-Royal, 330.746.0188

“Support Groups” continued on page 9

Page 8: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

KNOX COUNTY

LAKE COUNTY

ALLEN COUNTY

ATHENS COUNTY

CLARK COUNTY

CUYAHOGA COUNTY

FAIRFIELD COUNTY

FRANKLIN COUNTY

CHAMPAIGN COUNTY

FRANKLIN COUNTY cont'dRock Steady Boxing of Central Ohio Title Boxing Club Grandview955 W. 5th Avenue, Columbus, OH 43212Classes will be offered Wednesdays: 10:00 am and Sundays at 3:00 pm. Call in advance for enrollment information. For further details call Cheryl at 614.595.3250.

Rock Steady BoxingTitle Boxing Club Westerville131 Huber Village Blvd., Westerville, OHWednesday 10:00 am to 11:00 am; Saturday 11:00 am to 12:00 pmPlease call 614.949.6203 to schedule your assessment before beginning the class.

TREMBLE CLEFS SINGING GROUP Tuesdays: 2:00 pm to 3:15 pmParkside Village Senior Living Community, 730 N. Spring Rd., Westerville, 43082 Park in the lot, go in the front doors and veer to the right into the large activity room. Pam Richardson, 614.421.8267; [email protected]

Upper Arlington Delay The DiseaseWednesdays: 2:00 pm to 3:00 pmArlington Court Rehab1065 NW Professional Plaza, Upper Arlington614.451.5677

Delay the DiseaseOhio Living Westminster ThurberThursdays: 11:00 AM Auditorium717 Neil Ave., Columbus, 43215Krista Sylvester, 614.228.8888, Ext. 453

Delay the Disease Exercise Class Tuesdays & Thursdays: 10:30 am to 11:30 am Waterford United Methodist Church20595 Waterford Rd., FredericktownRobert Sorey, 740.403.3669

Better Every DayEvery Tuesday 3:00 pm to 4:00 pmMentor Senior Center, 8500 Civic Center Road, MentorPhyllis Hinkel, [email protected], 440.679.1594*$34 for a two month session.

“PARK” Parkinson’s Activity and Rehabilitation KlinicFridays: 1:30 pm to 3:00 pmRobert Kann, PT 419.236.2419 Vancrest of Delphos, 1425 E. 5th St., Delphos, 45833

The Parkinson’s Exercise Project (PEP!) ClassEvery Tuesday and Thursday 3:00 pm to 4:00 pm Brooke Vaughan, PT 740.593.1210 or [email protected] Ohio University, Grover Center, E216

“PARK” Parkinson’s Activity and Rehabilitation KlinicThursdays: 12:30 pm to 2:00 pmRobert Kann, PT 419.236.2419 Vancrest of Urbana, 2380 US-68, Urbana, 43078

United Senior Services Exercise ClassTuesdays and Thursdays at 2:00 pm 125 W Main St., Springfield 45502Linda Sauers, 937.521.3009

Spinning for PD Thursdays 10:00 am to 11:00 amWarrensville Heigths YMCA, Warrensville Heights OhioLearn more by calling InMotion: 216.342.4417

Rock Steady Boxing Title Boxing Club Pickerington864 Refugee Rd., Pickerington, OHTuesday 10:00 am to 11:00 am; Saturday 1:00 pm to 2:00 pmPlease call 614.949.6203 to schedule your assessment before beginning the class

Dance for PD Mondays from 11:30 am to 12:30 pmFlux + Flow200 Crestview RoadColumbus, OH 43202

Delay the Disease Exercise Classes (Dublin) Mondays: 1:00 pm to 2:00 pmTrillium Place, 3500 Trillium Crossing, Dublin

Group Speech Therapy Sessions First and third Wednesdays: 10:00 am to 11:00 amSecond and fourth Wednesdays: 1:30 pm to 2:30 pmMimi Gelacek, PhD Speech Therapist, Columbus Speech and Hearing Clinic, 510 East North Broadway, ColumbusSenior Star at Dublin Retirement Village - Delay the DiseaseThursday: 11:30 am to 12:30 pmDRV Fitness Center, 6470 Post Road, Dublin, 43016Kisha Gunn 614.764.2800

Voice & Movement Groupsribbon indicates the group is funded by the National Parkinson Foundation Ohio

Page 9: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

MARION COUNTY

MONTGOMERY COUNTY

PIKE COUNTY

ROSS COUNTY

SCIOTO COUNTY

LORAIN COUNTY

LICKING COUNTY MUSKINGUM COUNTY

WARREN COUNTY

Delay the Disease YMCA Pataskala (hosted by Pataskala Oaks)Tuesdays and Thursdays from 11:30 am to 12:30 pmPataskala YMCA West Branch, 355 West Broad StreetFor more information, call 740.927.9888, ext. 228

Delay the Disease Kingston of Vermilion4210 Telegraph Lane, Vermilion, OH 44089Contact: Andrea D’Amore, 440.244.7502, EXT. 5032kingstonhealthcare.comPRICE: $80 per 8 Week Session

Rock Steady Boxing, Delay the Disease and Yoga University Hospitals PD Boot Camp Wellness Program To get started in these classes, schedule a free wellness assessment by calling Maria Pujolas at 440.328.3446 or by emailing [email protected]

Delay the Disease Marion Family YMCA645 Barks Road East Mondays and Wednesdays: 9:45 am to 10:45 amSaturdays: 9:00 am to 10:00 am. Classes are $10 per 7 week sessions for Marion YMCA members, $50 per 7 week session for non-members. Financial Assistance is available for those that qualify. First trial class is free. For more information, contact Heather Wright, 740.725.9622

Parkinson’s Circuit Class (Cycling) Tuesdays and Thursdays from 11:30 am to12:30 pmKettering Recreation Center2900 Glengarry Dr., Dayton, OH 45420Contact: Karin Nevius, 937.293.4348

Rock Steady Boxing Exercise ClassEvery Tuesday at 10:00 am to 11:30 am. I.B.E.W. Hall, 5805 Frazeysburg Rd., ZanesvilleRhonda Forrestal, PT 740.455.5151Aquatics Parkinson Exercise ClassEvery Thursday from 10:00 am to 11:00 am

Muskingum Recreation CenterZane State College Campus, Newark Rd., ZanesvilleRhonda Forrestal, PT 740.455.5151

Delay the DiseaseEvery Tuesday 1:30 pm to 2:30 pmPike County Senior Center402 Clough St., Waverly, 45690Instructor: Judy Bright, 740.947.5555

Exercise Class Every Monday, Wednesday and Friday at 10:30 am Chillicothe Fitness and Racquet Club1245 Western Ave., Chillicothe Misty Allen, 740.773.4928 or 740.779.3000 A Monthly Calendar of support group meetings and exercise classes is available at the class.

Delay the Disease Exercise Class SciotovilleSecond and Third Thursday of the Month at 1:30 pm Berean Baptist Church, Family CenterWinchester & Bloom Streets, Sciotoville Cliff and Carol Baser, Instructors

Delay the Disease Exercise Class Tuesdays at 5:00 pm SOMC Life Center, 1202 - 18th St., PortsmouthMason GroupEvery Thursday at the Mason Community Center5:00pm for exercise5:30pm for chair volleyball

Are you following NPF Ohio on Social Media?

“Like” us on facebook at www.facebook.com/NPFOhio for daily research updates, reminders about events, information about new resources and programs and more!

“Follow” us on Instagram at www.instagram.com/NPFOhio for pictures from events and ways to join the conversation about Parkinson’s Awareness!

WOOD COUNTY, WVSecond Saturday of each Month at 1:30 pmVienna Public Library, 2300 1st Avenue, Vienna, WV 26105Larry Ice, 304.917.4710

“Support Groups” continued from page 7

Third Thursday at 6:00 pm Mason Community Center, 6050 Montgomery Rd., Mason, 45040 Carry In Dinner at 6:00pm. Speaker & discussion follows. Jane Herrington, 513.754.8430

WARREN COUNTY cont'd

Page 10: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

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Calling All Parkinson's Advocates!We are looking to increase our advocacy efforts at the state and national level.

If you are interested in getting involved, please contact Annie at [email protected]

or 614-890-1901

dally, sing song, baby bottle, double bubble, etc). Examples of melodies are Twinkle Twinkle Little Star, Mary Had a Little Lamb, or London Bridge.

In addition to the oral motor benefits of singing, some neuroscience research shows that music can trigger the release of dopamine, a chemical produced by the brain that is diminished in people with Parkinson’s Disease. Singing in a group has also been studied as a way to forge feelings of connection and inclusion. “Happiness” from You’re a Good Man, Charlie Brown (words/music by Clark Gesner) says: “Happiness is singing together when day is through, and happiness is those who sing with you.” Consider exercising your voice in a fun, supportive environment with the Tremble Clefs choir! Pam Richardson, MT-BC Neurologic Music Therapist [email protected]

“Vocal” continued from page 5

Page 11: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

Cut along dotted line and return

Newsletter Renewal Form

Please continue my subscription Cancel my subscription

Please replace my paper subscription with email submittal: _______________________________________________

Your contribution is tax deductible. Please make your check out to National Parkinson Foundation Ohio (in U.S. dollars) and enclose with this form and mail to 2800 Corporate Exchange Dr., STE 265, Columbus, OH 43231.

Join our premier 12-week class

register today!

To receive more information or register for the program, call the Delay the Disease office at (614) 566.1189 for information or registration.

© OhioHealth Inc. 2017. All rights reserved. FY17-117-30-10848. 01/17.

If you have been diagnosed with Parkinson’s disease and are able to stand from a seated position independently, we welcome you to participate in our premier 12-week McConnell — OhioHealth Delay the Disease program.

This Parkinson’s specific group exercise class meets twice each week, which includes a weekly educational presentation. You will also receive physical assessments before and after the program to document your progress.

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Page 12: 2017 Board Members - Parkinson's Foundation · these tips for people with Parkinson’s and tips for care partners. Tips for People with Parkinson’s • Treat depression. Research

The NPF Helpline is open Monday through Friday from 9:00 AM to 5:00 PM EST. HELPLINE: English/Español 1.800.4PD.INFO (1.800.473.4636) Get your PD questions answered.

Address Service Requested

2800 Corporate Exchange Dr., Suite 265Columbus, OH 43231

October 2017

Platinum Gold SilverPartner: Partners: Partners:

On The Inside

The NPF Helpline is open Monday through Friday from 9:00 AM to 5:00 PM EST. HELPLINE: English/Español 1.800.4PD.INFO (1.800.473.4636) Get your PD questions answered.

Address Service Requested

2800 Corporate Exchange Dr., Suite 265Columbus, OH 43231

National Reach, Local Touch

Have Fun. Give Hope. Beat Parkinson's!

Team Hope™ is the National Parkinson Foundation’s community FUNdraising program that allows people in the community to raise funds and awareness for Parkinson’s however they like. These community fundraisers take the lead in planning their own event or participating in an endurance race. Decide what you would like to do and turn it into a Team Hope™ fundraiser!

When you plan your own event or participate in an endurance event it is a great accomplishment for you, but it means so much more for the one million Americans living with Parkinson’s disease. For more information to get started with your Ohio Team Hope™ event, contact the NPF Ohio Chapter at 614.890.1901 or [email protected].