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57th Annual Meeting COLOGNE
June 26-29 2013
Officers and Executive Committee members President and Chair
Dr Margareta Dahl
Sweden
Hon Secretary
Mrs Rosemary Batchelor
UK
Membership Secretary
Dr David Nash
USA
Hon Treasurer
Mr Roger Strachan
UK
Publication Secretaries
Dr Marcus Pauly Dr Deborah Sival
Germany The Netherlands
[email protected] [email protected]
Web Master
Mr Waheed Ashraf
UK
Ordinary Members
Dr Jo Glazier Mrs Gill Yaz
UK UK
[email protected] [email protected]
Dr Sven Mattsson
Sweden
Folic Acid Spokesperson
Miss Carole Sobkowiak
UK
[email protected] USA Corresponding Member co-opted member Dr Steven Dombrowski Prof. Pat McAllister USA USA
Local organizing committee
Priv.-Doz. Dr. Reinhold Cremer ([email protected]) Dr. Marcus Pauly ([email protected]) Monika Funken Alexandra Ekamp Loretta Kuhl Marie Antoinette Ritter
On behalf of the Society for Research into Hydrocephalus and Spina Bifida, the local organizers would like to thank our sponsors for the meeting
Gold-Sponsors
Silver Sponsors
Bronze Sponsors
Other Sponsor (in alphabetical order) Berollka Grachtenhaus Apotheke Hollister Medical Service Otto Bock Prowalk R82 Roggendorfer Kinderhilfe Patricia 1997 e.V.
Welcome to Cologne
The 57th Annual Meeting of the Society for Research into Hydrocephalus and Spina Bifida will be held in Cologne, Germany, at the kind invitation of
Kliniken der Stadt Köln gGmbH
I wish you a warm welcome to Cologne for the SRHSB 57th Annual Scientific meeting, which will be opened on Thursday morning by Professor Christian Schmid from the Kliniken der Stadt Köln gGmbH. Cologne, which is located on both sides of the Rhine River, is a major cultural centre of the Rhineland. To mark the start of the meeting, you are invited to the Welcome Reception for delegates on Wednesday evening, which takes place at Historical Town Hall at the invitation of Lord Mayor Jürgen Roters. The social programme includes a boat trip on the River Rhine and visits to some cultural and historical buildings,mainly Cologne Cathedral. The main scientific programme, which starts on Thursday morning, offers a broad spectrum of different current issues included in oral papers, special sessions, special lectures and a poster session. Those of you who have arrived on Tuesday will be able to choose from two pre-meetings on Wednesday morning: Experimental Hydrocephalus and Clinical Case reports. Details and start times for both the pre-meetings and the main meeting are in the programme. During the meeting, the Executive Committee and the Chairs of the sessions will decide on the prize-winners in the following categories: best oral presentation [scientific and clinical], best poster [scientific and clinical] and a President’s Prize. Prize-winners will be informed after the meeting. I am pleased to announce that Dr Montserrat Guerra from Chile has won the Casey Holter Essay Prize 2013, and this will be presented at the Annual Dinner of the Society on Friday. A global and multidisciplinary view of children and adults with spina bifida and hydrocephalus is necessary and highly important. The Local Organising Committee has worked hard to ensure that the meeting will be the best possible place to exchange experiences, to start scientific collaboration or simply to discuss clinical problems with colleagues I hope that you enjoy both the scientific and the social parts of the meeting. We welcome you whether or not you are a member, but if you are new to the Society we hope that you will consider joining us. Margareta Dahl President, SRHSB
Venue: RehaNova
Neurologische/Neurochirurgische Rehabilitationsklinik Köln GmbH
Ostmerheimer Straße 200
51109 Köln-Merheim
Seminar rooms, Exhibition of sponsors
Lecture
hall
Schedule of Events /Outings during the SRHSB Meeting Cologne Wednesday June 26th
• Scientific program: Premeetings: Experimental Hydrocephalus and Clinical Case studies
• 14.00 Executive Committee Meeting in Seminar Room 1 • 17.00 AGM in Lecture Hall
• Coach transfer from hotels to town hall. 19.00: Welcome
reception in the historic town hall (Hansa Saal), invited by Lord Mayor Jürgen Roters represented by Mayor Elfi Scho-Antwerpes
Thursday June 27th • Scientific program in the Reha Nova Clinic. Coach transfer from
the hotels to the congress venue, lunch at the Reha Nova • Accompanying persons program: • 09.30 Fun Train from hotels through the historic old town to the
10.30-12.00 Chocolate Museum, guided tour • 12.30-13.30 Lunch in the “Peters Brauhaus” • Coach transfer to hotel
Afternoon:
• Society Outing: Boat trip on the river Rhine
Society photo
Ascend to the Cologne Cathedral Towers (sorry no elevator) or visit to the Roman-German Museum at the Cathedral Square
• Dinner in the typical Cologne brewery restaurant “Stapelhaus“ • 9.30 pm Guided night tour through Cologne Cathedral with organ
recital by Professor Boenisch, organist of Cologne Cathedral • 11.00 pm Coach transfer to hotels
Friday June 28th
• Coach transfer from hotels to congress venue Reha nova • Scientific program • Lunch and sponsored tea time at Reha Nova • Coach transfer to hotels
• Accompanying persons program: • 0930 Coach transfer from hotels to “Schloss Augustusburg“ in
Brühl (30 km from hotels) • 10.30-13.00 Guided tours through Schloss Brühl and the Max
Ernst Museum in Brühl • 13.15-14.15 Lunch in the “Bistro Chez Max”, • 14.30 coach transfer back to Cologne city center
Afternoon: • 15.30-17.00 Visit to “Farina Gegenüber“, Cologne‘s oldest
perfume factory • 17.00 Coach transfer to hotels
Evening
• 18.30 Society Dinner: Coach transfer from hotels to Schloss Lerbach in Bensberg , There may be an opportunity for another Society photo. Music: Blech Harmoniker
Saturday June 29 • Scientific program, coach transfer from hotels to congress venue,
lunch package. • Accompanying persons program: Free for shopping or other
activities.
Scientific Programme Wednesday 26
th June 2013
08.00 – 13.00: Pre-meetings 08.00: Experimental Hydrocephalus Chaired by Hazel Jones in Lecture Hall 09.00: Clinical Case Studies Chaired by Roger Bayston and Marcus Pauly in Seminar Room I 14.00: Registration: Hall infront of the Lecture Room 14.00: Executive Committee Meeting in Seminar Room I 16.30: Annual General Meeting in Lecture Hall 18.30: Welcome Reception at Historic Town Hall
By invitation of Lord Mayor Jürgen Roters, represented by Mayor Elfi Scho-Antwerpes
Thursday 27th
June 2013 08.45: Opening of meeting by Professor Christian Schmidt, Kliniken der Stadt Köln gGmbH Margareta Dahl, President of the SRHSB 09.00-10.30 Session 1: Current issues Chaired by Margareta Dahl and Helen Williams 09.00 Paper 1: Does the use of antimicrobial External Ventricular Drainage catheters lead to false – negative cultures and missed diagnosis of ventriculitis? Waheed Ashraf, Roger Bayston, Brian Richards, Catherine Ortori University of Nottingham, UK 09.15 Paper 2: Neurosurgery in East Africa: a trainee’s experience Alison Henderson Queen’s Medical Centre, Nottingham, UK 09.30 Paper 3: The forthcoming study in NTD genetics in Estonian population Ann Paal, Tiit Nikopensius, Kirsti Pedak Tallin Children’s Hospital, Tallin, Estonia
09.45 Paper 4: Ethical, Social and Medical Aspects for Treatment of Hydrocephalus and MMC in Eritrea Dieter Hellwig, Elisabeth Poenitz-Pohl International Neuroscience Institute, Hannover, Germany 10.00 Paper 5: The Influence of Reference Pressure on Fluctuations of the ICP Kalyan Raman Northwestern University, Evanston, USA 10.15 Paper 6: Localisation and identification of bacteria in the skin of patients after surgical skin preparation Lisa Whittington, Roger Bayston, Waheed Ashraf, Brigitte Scammell University of Nottingham, UK 10.30 Coffee/tea break 11.00-12.45 Session 2: Hydrocephalus and shunts Chaired by Roger Strachan and Ian Pople 11.00 Paper 7: Atrial shunt incompetence - an increasing danger Alfred Aschoff, Paul Kremer, Hedwig Steiner-Mitz Heidelberg, Germany 11.15 Paper 8: Can we overcome overdrainage in ventriculopleural shunting by choice of valves? Barbara Vienenkotter, Alfred Aschoff Heidelberg, Germany 11.30-12.00 Special Lecture [1] The Neurosurgical management of Chiari II malformation Priv. Doz. Dr Martina Messing-Jünger Asklepios Kinderklinik Sankt Augustin, Germany 12.00 Paper 9: Aquaporin-4 expression in the brain of several cases of congenital human hydrocephalus Agustin Castaneyra-Perdomo, Leandro Castaneyra-Ruiz, Ibrahim Gonzalez-Marrero, Juan M Gonzalez-Toledo, Emilia M Carmona-Calero University of La Laguna, Tenerife, Spain 12.15 Paper 10: Is the hydrocephalic cerebrospinal fluid a friendly host for neural stem cell transplantation? Esteban M Rodriguez, Cesar Gonzalez, M Clara Jara, Karin Vio, Roberto Gonzalez, Montserrat Guerra, Eduardo Ortega, Jaime Jaque, Sara Rodriguez, Paula Salazar, Pat McAllister, Conrad Johanson Universidad Austral de Chile, Valdivia, Chile 12.30 End
Lunch at Reha Nova Clinic (Atrium)
Thursday afternoon and evening: Society Outing Friday 28
th June 2013
08.30-10.30 Session 3: Spina Bifida and Urology Chaired by Gill Yaz and Professor Thomas Boemers 08.30 Paper 11: The effects of a therapeutic camp: program for promotion of self-management of disability on functionality and self-concept of children with spina bifida Maria Isabel Costa Malheiro, Maria Filomena Mendes Gaspar, Luisa Barros Nursing College of Lisbon, Lisbon, Portugal 08.45-09.15 Special lecture [2] Surgical therapy of neurogenic bladder Professor Dr. Thomas Boemers Kinderkrankenhaus, Kliniken der Stadt Köln gGmbH, Germany 09.15 Paper12: Spend a penny independent – a multidisciplinary project SRHSB 2009 Sven Mattson, Gunilla Glad Mattsson University Hospital and IKE, Linkoping, Sweden 09.30 Paper 13: Leak point pressure assessment in spina bifida patients after bladder neck tightening procedure Varun Hathiramani, Janani Krishnan, Parag Karkera, Santosh Karmarkar Lilavati Hospital and Research Centre, Mumbai, India 09.45 Paper 14: The impact of repeated Botulinum toxin type A injection into the bladder muscle in the therapy of neurogenic detrusor overactivity in children with spinal dysraphism Markus Hüppelshäuser, Ingo Bonn, Albert Kaufmann Zentrum fur Kontinenz und Neuro-Urologie Kliniken Maria Hilf Mönchengladbach, Germany 10.00 Paper 15: Erectile dysfunction in boys with spina bifida Varun Hathiramani, Janani Krishnan, Parag Karkera, Santosh Karmarkar Lilavati Hospital and Research Centre, Mumbai, India 10.15 Paper 16: Choice of method does not solve independence – a study on treatments of neurogenic bowel dysfunction in children with myelomeningocele Peter Wide, Gunilla Glad Mattsson, Hilde Arneberg, Mona Skevig, Finn Sommer, Peder Drott, Sven Mattsson University Hospital and IKE, Linkoping, Sweden
10.30 Coffee/tea break 11.00-12.30 Session 4 : Folate/folic acid Chaired by Carole Sobkowiak and Montserrat Guerra 11.00 Paper 17: Knowledge and peri-conceptional use of folic acid for the prevention of neural tube defects in ethnic communities in the UK – a systematic review and meta-analysis Jordana Peake, Andrew J Copp, Jill Shawe University College London, UK 11.15-11.45 Special lecture [3] Brain control of health: hard wiring, control issues and the effect of poor brain development Dr Jaleel Miyan Neurobiology Research Group, University of Manchester, UK 11.45 Paper 18: Folate transport mechanisms in the fetal brain and their key role during development Alicia Requena Jimenez University of Manchester, UK 12.00 Paper 19: Fingerprint changes in CSF composition associated with different aetiologies in human neonatal hydrocephalus Irum Naureen, Kim Woodruff, Kh A Irfan Waheed, Conor Mallucci, John Goodden, Suresh Victor, Jaleel Miyan University of Manchester, UK 12.15 Paper 20: A potential role for folate in normal pressure hydrocephalus Kim Woodruff, D Abraham, R W Lea, R Allcock, M N Anser, A Golash, M Myers, Jaleel Miyan University of Manchester, UK 12.30 End Lunch at Reha Nova Clinic (Atrium) 13.45-15.30 Session 5: Orthopaedic aspects of spina bifida Chaired by Rosemary Batchelor and Lisa Raman 13.45 Paper 21: Living with spina bifida in adulthood. Results of a survey concerning medical care, social and work situation Helmut Peters, Anne Bredel-Geissler, Jana Konrad, Reinhold Cremer Landeskrankenhaus AÖR Hartmühlenweg, Mainz, Germany
14.00 Paper 22: Intensive Physiotherapy and Home Based Vibration Training in Children with Spina Bifida Christina Stark, Olivier Semler, Ibrahim Duran, Eckhard Schoenau Children’s Hospital, University of Cologne, Germany 14.15-14.45 Special lecture [4] Surgical management of spinal deformities in patients with spina bifida Dr Kiril Mladenov Asklepios Kinderklinik Sankt Augustin, Germany 14.45 Paper 23: Treatment of fractures in patients with spina bifida – standards and pitfalls Stephan Stoehrer, Marcus Pauly, Ulrike Brokmeier, Wolfram Kluwe, Urs von Deimling, Gerd Horneff, Michael Szallies Asklepios Kinderklinik Sankt Augustin, Germany 15.00 Paper 24 Lower extremities deformation in children with spina bifida, reasons of its development Stanislav Ivanov The Turner Scientific and Research Institute for Children’s Orthopaedics, Saint Petersburg, Russia 15.15 Tea/coffee break 15.45-16.15 Poster viewing Moderator: Pat McAllister Poster 1: Prenatal surgery of myelomeningocele Anna Maroto, Elena Carreras, Mar Melendez, Silvia Arevalo, Cesar Galo Garcia-Fontecha, Jose Luis Peiro, Ampar Cuxart Hospital Universtari Vall d’Hebron, Barcelona, Spain Poster 2: Conjoint twins with spina bifida separated successfully Sangram Singh, Milind Joshi, Advait Prakash, Bhavesh Doshi, Tanmay Vyas Sri Aurobindo Institute of Medical Sciences, Indore M.P, India Poster 3: Longterm follow-up [18-22 years] of 110 patients with adjustable Medos valves Agnieszka Piotrowicz, Christoph Benesch, Alfred Aschoff Universitatsklinikum Schleswig-Holstein, Germany Poster 4: Our 25 year Experience with 789 Patients with Gravitational Valve-assisted CSF shunts Barbara Vienenkotter, Alfred Aschoff Heidelberg, Germany Poster 5: Therapeutic possibilities for reducing infections of external ventricular drainage systems in children with hydrocephalus internus A Zerche, K Roefke, K Grosse Helios-Klinik, Erfurt, Germany
Poster 6: Spina bifida: a co-relation of the level of lesion with the GMFCS/FMS level in children and adolescents affected by spina bifida – a retrospective study Snehal Deshpande,Nargis Khan, Santosh Karmarkar, Alaric Aroojis Rehabilitation, Education and Research Centre, Vashi, Navi Mumbai, India Poster 7: Challenges in paediatric case management Elisabeth Habbel, Alexandra Ekamp Children’s Hospitals Sankt Augustin and Cologne , Germany Poster 8: Progressive subluxation and dislocation in the hip joint in children with spina bifida Stanislav Ivanov The Turner Scientific and Research Institute for Children’s Orthopaedics, Saint Petersburg, Russia The following are extra posters on display:
Evaluation of a Camp Program for Promotion of Self-management of disability by Children with Spina Bifida and their Parents. Maria Isabel Costa Malheiro, Maria Filomena Mendes Gaspar, Luisa Barros Nursing College of Lisbon, Lisbon, Portugal Effects of a Camp Program for Promotion of Self-management of disability on Functionality, Self-Esteem and Self-Concept on children with Spina bifida. Maria Isabel Costa Malheiro, Maria Filomena Mendes Gaspar, Luisa Barros Nursing College of Lisbon, Lisbon, Portugal
16.15-17.30 Session 7: Experimental hydrocephalus [1] Chaired by Hazel Jones and Jo Glazier 16.15 Paper 25: Using the neurosphere assay to study the biology of NSCs and NPCs in normal H-Tx rats M Clara Jara, Montserrat Guerra, Roberto Gonzalez, Karin Vio, Paula Salazar, Conrad Johanson, Pat McAllister, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile 16.30 Paper 26: Neurospheres formed by neural stem cells and neural progenitor cells collected from the hydrocephalic CSF express the same junction pathology as the ventricular zone cells undergoing disruption Montserrat Guerra, Nicole Lichtin, M Clara Jara, Roberto Gonzalez, Karin Vio, Cesar Gonzalez, Eduardo Ortega, Jaime Jaque, Sara Rodriguez, Alexander Ortloff, Paula Salazar, Pat McAllister, Conrad Johanson, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile
16.45 Paper 27: Common neuropathological events are present in different forms of human foetal-neonatal congenital hydrocephalus A J Jimenez, M D Dominguez-Pinos, M D Gomez-Roldan, M I Martinez-Leon, J M Perez-Figares University of Malaga, Malaga, Spain 17.00 Paper 28: Postnatal neurogenesis is impaired in hydrocephalic HTx rats Karin Vio, Francisca Castillo, Montserrat Guerra, Paulina Fuentes, Nichole Lichtin, Sara Rodriguez, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile 17.15 Paper 29: Kaolin-induced hydrocephalus accelerates amyloid deposition and vascular disease in transgenic rat expressing high levels of human APP Gerald D Silverberg, Miles C Miller, Edward G Stopa The Warren Alpert Medical School of Brown University, Rhode Island, USA 17.30 End – close of sessions 19.30 Annual Dinner at Schlosshotel Lerbach, Bergisch-Gladbach
Saturday 29th
June 2013 09.00-10.45 Session 8: Spina bifida Chaired by Marcus Pauly and Sven Mattsson 09.00 Special lecture [5] Sensitization and allergy against natural rubber latex Professor Dr Monika Raulf-Heimsoth Institut für Prävention und Arbeitsmedizin, Deutsche Gesetzliche Unfallversicherung, Ruhr University Bochum, Germany 09.30 Paper 30: Attitude toward chronic illness on quality of life in young adults with spina bifida Patricia Braun Department of Nursing, Northern Illinois University, USA 09.45 Paper 31: Enhanced executive functioning following goal management training in adults with spina bifida myelomeningocele Jan Stubberud, Donna Langerbahn, Brian Levine, Johan Stanghelle, Anne-Kristine Schanke Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway
10.00 Paper 32: Longitudinal muscle ultrasound data from pre- to postnatal life Renate J Verbeek, Krystyna M Sollie, Petra B Mulder, Johannes H van der Hoeven, Natalia M Maurits, Oebele F Brouwer, Chris-Peter Sentner, Deborah A Sival University Medical Center, University of Groningen, The Netherlands 10.15 Paper 33: Perinatal management of neural tube defects: the neonatologist’s perspective Beatrix Wiebe Asklepios Klinik St Augustin, Germany 10.30 Paper 34: Perinatal management of neural tube defects: the neonatal intensive care nurse’s perspective Claudia Ditscheid Asklepios Klinik St Augustin, Germany 10.45 Coffee/tea break 11.15-12.30 Session 9: Experimental hydrocephalus [2] Chaired by Deborah Sival and Esteban Rodriguez 11.15 Paper 35: An inflammatory response is associated to the progression of foetal onset hydrocephalus in the HTx rat Paulina Araya, Karin Vio, Montserrat Guerra, Sara Rodriguez, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile 11.30 Paper 36: The role of Foxc1 in telencephalic vascular development Sachiko Iseki, Thanit Prasitsak, Masato S Ota Graduated School of Medical and Dental Sciences, Tokyo, Japan 11.45 Paper 37: Role of primary cilia in the chick development Takayuki Inagaki, Gary Schoenwolf University of Utah, Salt Lake City, USA 12.00 Paper 38: A cell junction pathology of neural stem cells leads to the disruption of the ventricular zone in the pallium of the hydrocephalic HTx rat Roberto Gonzalez, Nicole Lichtin, Montserrat Guerra, Alexander Orttlof, Francisca Castillo, Karin Vio, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile 12.15 Paper 39: The disruption of the ventricular zone that occurs in foetal life of the hydrocephalic HTx rat is followed by a second disruption in the postnatal life. Alexander Ortloff, Nicole Lichtin, Montserrat Guerra, Karin Vio, Esteban M Rodriguez Universidad Austral de Chile, Valdivia, Chile
12.30 Invitation to Uppsala, Sweden from Margareta Dahl 12.45 Closing Remarks – Margareta Dahl A packed lunch will be provided at the Reha Nova Clinic (Atrium)
