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8th Annual Developmental Disabilities Public Policy Conference in

Sacramento

Sunday March 8th and Monday March 9th, 2015 (Legislative Visits on March 10th, 2015)

Holiday Inn Capitol Plaza Hotel 300 J Street

Sacramento, CA 95814

Hosted by The Arc and United Cerebral Palsy

California Collaboration

Conference Partners

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Conference Agenda Sunday March 8, 2015

Day One Morning Plenary: 8:30 am to 12:00 pm

(Sponsored by The Arc San Diego)

Introductions/Overview Richard Fitzmaurice, President, The Arc California

8:30 am

The 10 Campaign: The Lanterman Coalition’s Campaign to Begin the Developmental Services System Recovery Tony Anderson, Executive Director, The Arc California and Director of The Arc UCP California Collaboration

9:00 am

The Lanterman Act: Yesterday and Today, A Story of Hope or Fear? Dion Aroner, California Assembly Member (1996-2002); Partner, Aroner, Jewel, and Ellis

10:00 am

Break

10:45 am

California Early Start Policy Primer: Where Do We Go From Here? Marie Poulsen, Ph.D., University of Southern California; Chair, Early Start Interagency Coordinating Council

11:00 am

Break

11:50 pm

Day One Lunch Keynote: 12:00 pm to 1:30 pm

(Sponsored by The Arc Ventura)

Nunzio (Bob) Perotti Recognition Award (posthumously) and the 30 Year Anniversary of the ARC v DDS Decision Lunch Keynote: It’s Not About the Four Walls: The Settings Rule From CMS and the Federal Policy That Will Change Everything Laura Brackin, Ph.D., Brackin and Associates

12:30 pm

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Day One Afternoon Plenary: 1:30 pm to 5:30 pm

(Sponsored by Fred Jones and Kathleen Reed) The ASAN Policy Agenda: Nothing About Us Without Us Ari Ne’eman, President and Co-Founder, Autistic Self Advocacy Network

1:30 pm

Panel: Decision-Making and the Conservatorship Question Judy Thomas, Director, California Compassionate Care Coalition and Laurel Mildred, Mildred Consulting, authors of “Thinking Ahead Matters: Supporting and Improving Healthcare Decision-Making and End-of-Life Planning for People With Intellectual and Developmental Disabilities” Tom Coleman, Legal Director and Nora Baladarian, Ph.D., Disability and Abuse Project, Spectrum Institute Ari Ne’eman, President and Co-Founder, Autistic Self Advocacy Network Melissa Crisp-Cooper, Faculty, Office of Developmental Primary Care, Department of Family and Community Medicine, University of California, San Francisco

1:50 pm

Break

3:00 pm

Recent Court Decisions and the Impact on People With Disabilities Marty Omoto, Director and Organizer, California Disability Community Action Network

3:15 pm

An Update From The Arc of the United States and Personal Remarks From a Parent Who Dreams of a Bright Future for His Daughter Ron Brown, President, The Arc of the United States

4:00 pm

Wrap-Up Richard Fitzmaurice, President, The Arc California

4:45 pm

Reception: “Speakers Unplugged”

5:00 pm

Lifetime Achievement Award Wes Chesbro, Former Senator (1998-2006) and Assembly Member (2008-2014)

6:00 pm

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Conference Agenda Monday March 9, 2015

Day Two Morning Plenary: 8:30 am – 12:30 pm

(Sponsored by Therap) Introductions/Overview Tony Anderson, Executive Director, The Arc California and Director of The Arc UCP California Collaboration

8:30 am

The Current State Budget Status Scott Graves, California Budget Project

8:45 am

Leadership Award Assembly Member Dr. Shirley Weber, “Leadership for Change”

9:45 am

The Legislative Analyst’s Office: The Budget and Supports for People With I/DD and Their Families Rashi Kesarwani, Legislative Analyst’s Office

10:00 am

Break

10:35 am

Senator of the Year 2014 Senator Jim Beall

10:55 am

Sea Change in Employment Services (The New Workforce Innovation and Opportunity Act, HCBS Settings, etc.) Joe Xavier, Director of the Department of Rehabilitation

11:15 am

Day Two Lunch Keynote: 12:00 pm to 1:20 pm Santi Rogers, Director, Department of

Developmental Services

(Sponsored by UCP of the North Bay) Department of Developmental Services Director Santi Rogers

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Monday March 9, 2015 Afternoon Breakouts: 1:30 pm to 3:10 pm

(Sponsored by California Supported Life Network)

Break Out#1

1:30 pm

Self-Determination

Jim Knight, Assistant Deputy Director Department of Developmental Services

Diablo Room

The ABLE Act

Stephen Dale, JD Dale Law Firm

El Dorado Room

Coordinated Approaches to Health Services

Dr. Clarissa Kripke Office of Developmental Primary Care, Department of Family and Community

Medicine, University of California, San Francisco Fresno Room

Break Out #2:

2:20 pm

In-Home Supportive Services:

How the State’s Biggest Olmstead Program Is Surviving Today Karen Keeslar, California Association of Public Authorities

Diablo Room

The Current State of Providing Supported Living Services in California

California Supported Living Network Jacquie Dillard-Foss, STEP

Carol McKinney, Harmony Home El Dorado Room

Efforts in Managed Care: The Impact on People with Intellectual and

Developmental Disabilities David Donohue

Vice President of Innovative Solutions LifeShare Management Group, LLC

Fresno Room

Break

3:10 pm

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Monday March 9, 2015 Afternoon Plenary: 3:30 pm to 6:00 pm

(Sponsored by AT&T)

Leadership Award Assembly Member Brian Mainschein, “Leadership for Change” Criminal Justice and Employment

3:30 pm

National Public Policy, The New Language Study, and Part Two of the United Cerebral Palsy Policy Study Stephen Bennett, President and CEO of the United Cerebral Palsy (UCP) National Office

3:40 am

The Arc & UCP San Diego v Douglas, Delgadillo Chad Carlock, JD Law Offices of Chad Carlock

4:30 pm

Criminal Justice System: The Arc of the US National Center on Justice and Disability How Are People with I/DD Treated: As Victims and Defendants Teresa Anderson, Moderator, The Arc California Leigh Ann Davis, Program Manager, The National Center on Criminal Justice and Disability™ (NCCJD), The Arc of the United States

5:20 pm

Closing Remarks Richard Fitzmaurice, President, The Arc California

Celebration Reception Leadership Award Senator Fran Pavley, “Leadership for Change”

6:00 pm

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Closing Reception

Join us for a reception where you can talk further with your fellow advocates about tomorrow’s legislative visits. Don’t forget to chat with our great sponsors.

Conference Partners

The California Supported Living Network

AT&T Fred Jones and Kathleen Reed

Event Sponsors

The Arc San Diego United Cerebral Palsy of the North Bay

The Arc Ventura Therap

LifeShare

Exhibitor Sponsors Placer ARC

G2 Insurance Hogan Insurance

Pharmacy Alternatives

Please take the time to visit with our sponsors. They play a critical role in enabling us to provide you with a sustainable high-quality public policy conference. Thank you!

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Conference Partners

Event Sponsors

Exhibitor Sponsors

Scholarship Sponsors Jim Baldwin

Rebecca Leinhart Fred Jones and Kathleen Reed

The Law Offices of Chad Carlock, Esq.