1
Conclusions Catheter-associated infections and catheter blockage were the most frequent complications in our paediatric patients with CVC. Despite of the low CLABSI rate when compared with pooled mean CLABSI rate (1.7 per 1000 CVC days) for all paediatric haematology-oncology units reported in 2010 National Healthcare Safety Network, staff training and patient edu- cation on CVC care should be reinforced to minimize infection. Moreover, continuous surveillance of the CVC complications is essential to improve infection control and quality of patient care. THE STATE OF DENTAL VISIT AND ORAL HEALTH CARE IN CHILDHOOD CANCER SURVIVORS N. Ito a , E. Suzuki a , C. Kawakami b , F. Inoue c a Shukuutoku University, School of Nursing & Nutrition, Chiba, Japan b Toho University, School of Nursing, Tokyo, Japan c Millefeuille Child Cancer Frontiers, Chairperson, Chiba, Japan Purpose/objective To research the state of dental visits * dentists' attitude/response when they are reported patients' cancer experience, their knowledge in child- hood cancer/ treatments and late effects, and managing skills for cancer survivors, how survivors manage their dental health care as well. Materials and methods Mailed questionnaires to 204 survivors who live in a district (Chiba pre- fecture) in Japan. The questionnaire was prepared drawing on some lit- eratures about the state of dental visits, late effects related to mouth from childhood cancer treatments, and pediatric dental health. Results 79 respondents including hematological malignancy. Age; 29 school chil- dren, 16 in 20's, 11 in 30's, 18 in adolescence. Time from completion of treatment; 29 are 11 years and 28 are 3 years - 10 years. 50 visit dental clinics (46 for dental check, 44 for tooth decay, 9 for hypotrophy of dental root, 9 for missing teeth and 2 for enamel hypopla- sia). They reported some troubles including being easy to have a decay, hypotrophy of dental root’‘poor secretion of salivaand irregular teeth.A 30 years old survivor reported he had milk teeth still now. 54 reported to dentists that they were cancer survivors and most of them received treatment without any uncomfortable response and uneasiness, although some were rejected treatment from the dentists or were referred to other medical institutions. 78 keep brushing teeth every day including 20 who have been careful dental health care after childhood cancer experience. Conclusions Need for education of dental health care to patients and their families during hospitalization. Need to give information about childhood cancer treatments and late effects to dentists because more than 60% visit den- tist's ofce. They visit a dentist whom they used to visit before diagnosis of cancer and keep good communication with the dentist. It is important to conrm if patients have trustworthy dentist at the time of discharging from the hospital. A GLOBAL WEB-BASED PROGRAMME ABOUT CANCER IN LANGUAGE SPECIFIC FOR STAFF, A SICK CHILD AND THEIR FAMILY M. Jenholt Nolbris a , B. Wee Sævig b , J. Challinor c , I. Skärsäter d , L.Z. Abramovitz e a Centrum for Children's Right, Queen Silvia's Children's Hospital Sahlgrenska University, Gothenburg, Sweden b The Norwegian Cancer Society, The Norwegian Cancer Society, Bergen, Norway c Department of Physiological Nursing, University of California, San Francisco, USA d School of Health and Social Sciences Halmstad University, Sahlgrenska Academy Gothenburg University, Gothenburg Halmstad, Sweden e UCSF Medical Center, University of California, San Francisco, USA Purpose/objective To have expert paediatric oncology nurses to inform and explain childhood cancer diagnoses, treatments, side effects, situations and feelings, by developing a web-based programme. Materials and methods The programme will be developed and tested in three steps. Step 1 is to develop a web portal with animated pictures of cancer themes based on the See Hear Doprogramme in Sweden and Norway. Step 2 is to add text and audio in several languages for each theme (such as Arabic, English, Spanish). Step 3 is to develop two informational sections on the web portal: one section for staff and for the patient and family. The staff, children and families will evaluate each section as appropriate before the programme is published on the web portal. A participatory design method is going to be used. The programme will also be offered to nurses in the International Society of Paediatric Oncology and nursing working group of the Pediatric Oncology in Developing Countries committee for translation into their native languages. Results Expected result is that the web portal can easily be downloaded via computer, iPad or mobile and can be used twofold. Staff can use this programme for self-education and for working with the child and family. The child and family can use the web programme in various situations during the child's cancer treatment, e.g., explaining the diagnosis to family members, schoolmates, families' networks, during phone calls using an interpreter or for persons with a visual or auditory disability. Conclusions Goal of the project is to globalize childhood cancer education and infor- mation with a web-based programme including pictures, text and audio in various languages. The programme is designed to consider the professional's information and the child and family's needs and participation. The active role of all stakeholders to ensure cultural relevance is key to this project. SEARCH FOR A GOOD FIT BETWEEN NURSING PRACTICE AND ELECTRONIC NURSING RECORDS: BENEFITS AND LIMITATIONS OF NURSING RECORDS ON A PEDIATRIC HEMATO-ONCOLOGY WARD E. Willems a , V. Van de Velde a , K. Goethals a , Y. Benoit a , G. Laureys a a Paediatric Hemato-oncology and SCT, University Hospital Ghent, Ghent, Belgium Purpose/objective Nowadays, electronic charting is widely used in healthcare. The electronic patient le has been introduced on our ward since May 2011 to improve workow and quality of documentation. Two years after implementation, the benets and limitations of electronic nursing records are identied. This will contribute to the accurate selection of a future electronic system in our hospital. Abstracts / European Journal of Oncology Nursing 17 (2013) 892899 898

A global web-based programme about cancer in language specific for staff, a sick child and their family

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Abstracts / European Journal of Oncology Nursing 17 (2013) 892–899898

Conclusions

Catheter-associated infections and catheter blockage were the mostfrequent complications in our paediatric patients with CVC. Despite of thelow CLABSI rate when compared with pooled mean CLABSI rate (1.7 per1000 CVC days) for all paediatric haematology-oncology units reported in2010 National Healthcare Safety Network, staff training and patient edu-cation on CVC care should be reinforced to minimize infection. Moreover,continuous surveillance of the CVC complications is essential to improveinfection control and quality of patient care.

THE STATE OF DENTAL VISIT AND ORAL HEALTH CARE IN CHILDHOODCANCER SURVIVORS

N. Ito a, E. Suzuki a, C. Kawakami b, F. Inoue c

a Shukuutoku University, School of Nursing & Nutrition, Chiba, Japanb Toho University, School of Nursing, Tokyo, JapancMillefeuille Child Cancer Frontiers, Chairperson, Chiba, Japan

Purpose/objective

To research the state of dental visits * dentists' attitude/response whenthey are reported patients' cancer experience, their knowledge in child-hood cancer/ treatments and late effects, and managing skills for cancersurvivors, how survivors manage their dental health care as well.

Materials and methods

Mailed questionnaires to 204 survivors who live in a district (Chiba pre-fecture) in Japan. The questionnaire was prepared drawing on some lit-eratures about the state of dental visits, late effects related to mouth fromchildhood cancer treatments, and pediatric dental health.

Results

79 respondents including hematological malignancy. Age; 29 school chil-dren, 16 in 20's, 11 in 30's, 18 in adolescence. Time from completion oftreatment; 29 are �11 years and 28 are 3 years - 10 years.50 visit dental clinics (46 for dental check, 44 for tooth decay, 9 forhypotrophy of dental root, 9 for missing teeth and 2 for enamel hypopla-sia). They reported some troubles including ‘being easy to have a decay’,‘hypotrophy of dental root’ ‘poor secretion of saliva’ and ‘irregular teeth’. A30 years old survivor reported he had milk teeth still now. 54 reported todentists that they were cancer survivors and most of them receivedtreatment without any uncomfortable response and uneasiness, althoughsome were rejected treatment from the dentists or were referred to othermedical institutions.78 keep brushing teeth every day including 20 who have been carefuldental health care after childhood cancer experience.

Conclusions

Need for education of dental health care to patients and their familiesduring hospitalization. Need to give information about childhood cancertreatments and late effects to dentists because more than 60% visit den-tist's office. They visit a dentist whom they used to visit before diagnosis ofcancer and keep good communication with the dentist. It is important toconfirm if patients have trustworthy dentist at the time of dischargingfrom the hospital.

A GLOBAL WEB-BASED PROGRAMME ABOUT CANCER IN LANGUAGESPECIFIC FOR STAFF, A SICK CHILD AND THEIR FAMILY

M. Jenholt Nolbris a, B. Wee Sævig b, J. Challinor c, I. Skärsäter d,L.Z. Abramovitz e

aCentrum for Children's Right, Queen Silvia's Children's Hospital SahlgrenskaUniversity, Gothenburg, Swedenb The Norwegian Cancer Society, The Norwegian Cancer Society, Bergen,NorwaycDepartment of Physiological Nursing, University of California, San Francisco,USAd School of Health and Social Sciences Halmstad University, SahlgrenskaAcademy Gothenburg University, Gothenburg Halmstad, SwedeneUCSF Medical Center, University of California, San Francisco, USA

Purpose/objective

To have expert paediatric oncology nurses to inform and explain childhoodcancer diagnoses, treatments, side effects, situations and feelings, bydeveloping a web-based programme.

Materials and methods

The programme will be developed and tested in three steps. Step 1 is todevelop a web portal with animated pictures of cancer themes based onthe ‘See Hear Do’ programme in Sweden and Norway. Step 2 is to add textand audio in several languages for each theme (such as Arabic, English,Spanish). Step 3 is to develop two informational sections on the webportal: one section for staff and for the patient and family. The staff,children and families will evaluate each section as appropriate before theprogramme is published on the web portal. A participatory design methodis going to be used. The programme will also be offered to nurses in theInternational Society of Paediatric Oncology and nursing working group ofthe Pediatric Oncology in Developing Countries committee for translationinto their native languages.

Results

Expected result is that the web portal can easily be downloaded viacomputer, iPad or mobile and can be used twofold. Staff can use thisprogramme for self-education and for working with the child andfamily. The child and family can use the web programme in varioussituations during the child's cancer treatment, e.g., explaining thediagnosis to family members, schoolmates, families' networks, duringphone calls using an interpreter or for persons with a visual or auditorydisability.

Conclusions

Goal of the project is to globalize childhood cancer education and infor-mation with a web-based programme including pictures, text and audio invarious languages. Theprogramme isdesigned toconsider theprofessional'sinformation and the child and family's needs and participation. The activerole of all stakeholders to ensure cultural relevance is key to this project.

SEARCH FOR A GOOD FIT BETWEEN NURSING PRACTICE ANDELECTRONIC NURSING RECORDS: BENEFITS AND LIMITATIONS OFNURSING RECORDS ON A PEDIATRIC HEMATO-ONCOLOGY WARD

E. Willems a, V. Van de Velde a, K. Goethals a, Y. Benoit a, G. Laureys a

a Paediatric Hemato-oncology and SCT, University Hospital Ghent, Ghent,Belgium

Purpose/objective

Nowadays, electronic charting is widely used in healthcare. The electronicpatient file has been introduced on our ward since May 2011 to improveworkflow and quality of documentation.Two years after implementation, the benefits and limitations of electronicnursing records are identified. This will contribute to the accurate selectionof a future electronic system in our hospital.