A Qualitative Study of the Perceptions of Coronary Heart Disease Among

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    PATIENT EDUCATION AND INFORMATION NEEDS

    A qualitative study of the perceptions of coronary heart disease among

    Hong Kong Chinese people

    Choi Wan Chan, Violeta Lopez and Joanne WY Chung

    Aims and objectives. The aim of this study was to investigate the perceptions of coronary heart disease among a sample of Hong

    Kong Chinese people.

    Background. Coronary heart disease is increasing among Chinese populations. Reducing coronary heart disease risk is highly

    dependant on a persons evaluation of the risks and lifestyle behaviour. However, Chinese perceptions of coronary heart disease

    and the risks have been underexplored.

    Design. A qualitative study was conducted using focus group interviews.

    Method. Focus group interviews were tape recorded and transcribed. The data were analysed using content analysis.

    Results. The results show that the Hong Kong Chinese participants underestimated the severity of coronary heart disease.Perceptions of risk of coronary heart disease were influenced by the risk factors, symptoms, age, optimism, levels of suffering

    from coronary heart disease and reliance on medical professionals. Most of the participants perceived that this is because of

    inadequate understanding of coronary heart disease and lack of resources for coronary heart disease health education.

    Conclusion. Societal readiness is paramount in imparting accurate coronary heart disease knowledge to mediate the perception

    of coronary heart disease as a major health problem that affects the Chinese population.

    Relevance to clinical practice. Understanding the Chinese participants perceptions of coronary heart disease is vital in devel-

    oping illness prevention and health promotion strategies to increase their levels of knowledge of coronary heart disease risk

    factors reduction.

    Key words: coronary heart disease, focus groups, Hong Kong Chinese, nurses, qualitative, risk

    Accepted for publication: 18 January 2010

    Introduction

    Heart disease as coded by the World Health Organizations

    International Classification of Diseases, Ninth Revision (ICD-

    9) is the second major cause of death in Hong Kong. More

    than 68% of all deaths from heart disease results from

    coronary heart disease (CHD) (Hospital Authority 2006).

    Deaths from CHD have increased over the years between

    19812005, rising from 2103 deaths in 19813719 deaths in

    2003 and 4003 deaths in 2005 (Hospital Authority 2004,

    2006). According to Lam et al. (2002, 2004), the causes of

    CHD-related deaths in Hong Kong were because of the

    economic development and concomitant westernisation. This

    is further supported by Ko et al. (2007) who reported that the

    increase mortality of CHD in Hong Kong was because of the

    peoples increasing adoption of unhealthy lifestyle habits,

    smoking, physical inactivity and unhealthy dietary habits.

    Beaglehole (2001) projected that CHD will remain one of the

    Authors: Choi Wan Chan, PhD, MNS, RN, Research Associate,

    Research Centre for Nursing and Midwifery Practice, Australian

    National University; Violeta Lopez, PhD, RN,FRCNA, Professor and

    Director, Research Centre for Nursing and Midwifery, School of

    Medicine, Australian National University, ACT, Australia; Joanne

    WY Chung, PhD, RN Chair Professor and Head, Department of

    Health andPhysical Education,The HongKong Instituteof Education,

    Hong Kong, China

    Correspondence: Choi Wan Chan, Research Associate, Research

    Centre for Nursing and Midwifery Practice, Australian National

    University, The Canberra Hospital, Building 6, Level 3, East Wing,

    Yamba Drive, Garran, ACT 2605, Australia. Telephone:

    (614) 2412 5223.

    E-mail: [email protected]

    2010 Blackwell Publishing Ltd, Journal of Clinical Nursing, 20, 11511159 1151doi: 10.1111/j.1365-2702.2010.03526.x

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    leading causes of death in 2020. As such, if preventive

    medicine is to make a difference to human well-being, then

    CHD in Chinese populations must be urgently addressed.

    Changes in health and lifestyle play an important role in

    reducing CHD mortality and morbidity (Stampfer et al.

    2000, Knoops et al. 2004, Yusufet al. 2004). The perception

    of disease influences the way people process their health risks

    and as such is fundamental in bringing about personal

    judgments that guide health changes (Weinstein 1988,

    Weinstein & Sandman 1992, Bandura 1997, Glanz et al.

    2002, Pender et al. 2002). Research has shown that the

    perception of CHD has an important effect on personal risk

    formulation (Hunt et al. 2000, DeSalvo et al. 2005), the

    prediction of preventive behaviour (Ali 2002) and changes

    towards a healthy lifestyle (Hampson et al. 2000, Weinman

    et al. 2000, Gump et al. 2001). However, little is known

    about perceptions of CHD among Chinese populations,

    which constitute about one-fifth of the worlds population

    (Daily Almanac 2007a,b) and among which the mortalityand morbidity of CHD are increasing (Beaglehole 2001). It

    has been highlighted that health promotion and interventions

    are more effective when they are based on a clear under-

    standing of the cultural and ethnic perspectives that inform

    health perceptions and behaviour (Hunt et al. 2000). There-

    fore, the aim of this study was to explore perceptions of CHD

    in a sample of Hong Kong Chinese people.

    Methods

    Sampling method and sample

    Convenience and snowball sampling methods were used. To

    obtain a broad range of views and opinions, the sample

    contained three target populations: a low-risk public (LRP)

    group, a multiple risk factors (MRF) group and a myocardial

    infarction (MI) group. The three target populations were

    grouped according to the eight CHD risk factors identified by

    Shepherd et al. (1997) including: personal history of CHD,

    high blood pressure, or diabetes; family history of CHD;

    smoking history; excessive alcohol consumption; high cho-

    lesterol level; exercise 30 minutes/day less than once a month;

    self-report of poor eating habit and attitude; and poorattitude about healthy lifestyle. The LRP participants who

    had three or less CHD risk factors were recruited from the

    public domains (e.g. community centres, churches, university

    compounds). The MRF participants had four or more CHD

    risk factors with or without a history of CHD, and the MI

    participants had a medical diagnosis of MI. Participants in

    the MRF and MI groups were recruited from one cardiac

    rehabilitation and prevention centre in the community-based

    hospital. All of the participants were aged 18 or over. These

    target populations were grouped prior to the focus group

    interviews. Furthermore, in view of possible regional differ-

    ences in views and opinions of the study topic, the partici-

    pants were recruited from three geographical areas including

    Hong Kong Island, Kowloon and New Territories to max-

    imise the generalisability of findings among the Hong Kong

    population.

    Same sex focus group interviews were conducted to

    facilitate open discussions to occur as participants felt at

    ease during the conversation instead of in a position of being

    passive and/or dominant, if they are in a group with mixed

    genders (Grbich 1999). This also addresses some cultural

    norms and issues in the Hong Kong Chinese society as the

    male being more dominant than women (Cheung 1997) and

    that the Hong Kong Chinese women have been reported to

    have higher level of self-esteem and better adjustments in the

    consequences of their diseases than men (Ng et al. 2003).

    The study sample consisted of different target populations,both genders and a broad age range. Morgan (1997) suggests

    that the difference in attributes of the participants both

    within and across groups is important in the determination of

    the number of focus groups. One focus group may not reflect

    either the unusual composition of that group or the dynamics

    of that unique set of participants, while more than one focus

    group could provide a safe ground to conclude the data and

    to reflect usual and unusual data (Carey 1995, Morgan

    1997). Therefore, 12 focus groups were initially planned until

    data saturation is achieved.

    After data saturation had been achieved, the sample

    consisted of 18 single-gender focus groups (nine male and

    nine female groups). Data saturation was the stage at which

    no new information emerged from the focus group interview

    data, and the researcher obtained repeated data from the

    focus group participants (Polit & Hungler 1995).

    Data collection and focus group interviews

    After gaining approval from the university and hospital ethics

    committees, the researcher recruited the participants by

    approaching the community, cardiac rehabilitation and

    prevention centres, churches and universities student com-mon room. The recruitment of participants was also

    facilitated by the person in-charge of the centres. For

    snowball method of recruitment, those eligible participants

    who consented to participate in the study were requested to

    ask other people in their universities, neighbourhood or

    community centres to contact the researcher if they were

    willing to participate in the study. Each eligible participant

    recruited was given detailed explanation of the nature and

    CW Chan et al.

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    purpose of the study. They were also informed that partic-

    ipation was on a voluntary basis and that they could

    withdraw from the study at any time. They were assured

    their confidentiality and privacy would be maintained. They

    were also given time to ask questions regarding the study.

    Those who agreed to participate were asked to sign the

    consent form. Demographics and health history data includ-

    ing information of CHD risk factors were collected, so that

    grouping could be determined according to their levels of

    CHD risk prior to focus group interviews.

    The focus group interviews were mostly conducted in the

    community centres and the cardiac rehabilitation and pre-

    vention centres. Focus group interviews were conducted

    during an eight-month period from November 2003June

    2004. Each interview lasted between 6090 minutes. An

    interview schedule was used to focus the discussion on the

    perceptions of CHD. The interview started with questions

    such as Could you tell me what you understand about

    coronary heart disease? and Do you think CHD poses athreat to your health? Follow-up questions were then raised

    to explore the initial answers of the participants further.

    The first author served as a neutral and non-directive

    moderator who guided the interviews, raised the follow-up

    questions and managed the group dynamics by encouraging

    quiet participants to share their views, ensuring that outspo-

    ken participants did not bias the discussion and encouraging

    respondents to elaborate on views that differed from the

    predominant opinion. All interviews were conducted by

    the first author in Chinese and were audiotaped with the

    permission of the participants.

    Prior to data analysis, the first author listened carefully to

    each tape several times to obtain a sense of the meaning of

    that data. Then, the audiotaped interviews were transcribed

    verbatim into Chinese and then translated into English.

    Data analysis

    The focus group data were analysed using content analysis.

    Content analysis is a dynamic form of analysis that assigns

    verbal data categories and subcategories through the coding

    of words, phrases and themes from the interview scripts

    (Sandelowski 2000, Berg 2007). Data were subjected toboth manifest and latent content analysis, where the

    manifest level of analysis was the coding of directly

    observable descriptions and the latent level of analysis

    was the coding of significant underlying meanings (Boyaat-

    zis 1998, Berg 2007). Two researchers analysed the

    qualitative data independently. The codes and categories

    that were generated from the data were continually revised

    and systematically applied in an ongoing analytical process.

    The two independent researchers discussed the analysed

    data to ensure that they were reliably interpreted and that

    the data gave a valid representation of the phenomena

    under study (Berg 2007). The audiotaped interviews and

    verbatim quotes from the participants were also used as

    evidence to confirm the trustworthiness of the qualitative

    data.

    Results

    Demographic data

    The total sample consisted of 100 participants (LRP = 57,

    MRF = 27, MI = 21). The sample consisted of 52% men

    and 48% women, age range was 1888 years old (M = 56 5;

    SD 201). There were 10 LRP and four in each of the MRF

    and MI focus groups. Details of the demographic back-

    ground of the focus group participants are summarised in

    Table 1.

    Qualitative findings

    Based on the descriptions of the participants perceptions of

    CHD, the data were divided into three categories: (1)

    perceived seriousness of CHD, (2) perceived risk of CHD

    and (3) perceived opportunities to understand CHD.

    Perceived seriousness of CHD

    Many of the LRP, MRF and MI participants underestimated

    the seriousness of CHD, as they believed it to be an invisible

    disease with minimal suffering. In terms of the perceptions of

    the participants regarding the impact of CHD in a societal

    context, a distinct lack of the awareness of CHD was dem-

    onstrated because stroke, severe acute respiratory syndrome

    (SARS), hypertension and diabetes were all perceived as being

    more significant diseases. For example, SARS, as an infec-

    tious and incurable disease, was perceived to be more urgent

    and much more serious, which influenced the perceptions of

    the participants that led them to underestimate the serious-

    ness of CHD as one LRP male participant said:

    I think the impact of CHD when compared with SARS is that the two

    are different. To me, the degree of danger of CHD is small. (LRP,

    group 3, male)

    Being rendered immobile and physically dependent on others

    as a result of stroke was perceived to engender greater

    suffering than death. A MRF male participant who had a

    history of both minor stroke and CHD gave a typical

    response in underestimating the severity of CHD, which he

    saw as being less important than stroke as pointed out:

    Patient education and information needs Qualitative study of the perceptions of CHD

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    I am afraid of the recurrence of stroke. I am really afraid of it, as I do

    not know why I had a stroke. I saw stroke patients with paralysis in

    the arms and legs who couldnt walk well. If I had it, then I would

    suffer a lotCoronary heart disease is already there [laughed]. I am

    really afraid of [stroke]. (MRF, group 3, male)

    The suffering that results from hypertension and diabetes was

    also commonly emphasised by participants with an over-

    whelming perception that hypertension would lead to stroke,

    which would eventually cause suffering. Participants with

    diabetes also emphasised the serious complications arisingfrom the disease and were preoccupied by the Chinese cultural

    belief that eating is a kind of fortune and joy and their

    suffering is a result of dietary restrictions. When this result was

    compared with other groups for similarities and differences,

    their underestimation of the severity of CHD were similar.

    Perceived risk of CHD

    CHD risk factors such as eating habits, regular exercise,

    family history of CHD, obesity, stress, menopause, diabetes

    and high blood cholesterol were all reported in the risk for-

    mulations of the participants. Participants who believed that

    they were not subject to CHD risk factors perceived them-

    selves to be at a low risk of developing CHD. Both male and

    female participants, in the LRP, MRF and MI groups, who

    were able to identify their own risk factors of developing the

    disease reported fear about the perceived risk of CHD, as

    demonstrated by verbatim quotes such as:

    I think I have many risk factors that include work pressure, diet and

    no fixed time for rest. I have them all. I have been a fat boy since I

    was a child. I have thought that I would get it one day. And I smoked

    a lot previously. (MRF, group 3, male)

    Another LRP female participant said:

    Because I am overweight and do not exercise, I know I am at risk. I

    worry that I will have that problem [heart disease]. (LRP, group 1,

    female)

    The presence of CHD symptoms was used by some partic-

    ipants to evaluate their risk of CHD. According to their

    descriptions, participants who had experienced CHD symp-

    toms perceived themselves to be at risk of CHD, whereas

    those who believed that they did not have any symptoms of

    CHD did not see themselves as being at risk of developing the

    disease. This condition was exemplified by the words of one

    MRF male participant, who recalled that he had underesti-

    mated his own risk in the past. He had ignored his doctors

    suggestion to undergo a cardiac investigation because he did

    not have any chest pain and other bodily symptoms when he

    said:

    I did not do it [cardiac catheterisation] as I didnt think that I had a

    problem. I thought that it was psychological problem. I did not have

    pain here [pointing to the chest]. I did not have any problems

    anywhere in the body. (MRF, group 3, male)

    Age was another factor used by participants in calculating

    their risk of CHD. Many of the participants who perceived

    themselves to be too young to have CHD reported a low risk

    of CHD. However, few of the older participants had a

    different opinion of their own risk. They had a low

    perception of their risk of CHD and cited that they had

    Table 1 Demographic background of the

    focus group participantsLow-risk public

    Multiple risk

    factor group

    Myocardial

    infarction group

    10 Focus groups

    (n = 57)

    4 Focus groups

    (n = 22)

    4 Focus groups

    (n = 21)

    Gender n (%)

    Male 28 (49) 11 (50) 13 (62)

    Female 29 (51) 11 (50) 8 (38)Mean age SD (range) 496 235 (1888) 645 83 (4477) 667 84 (4578)

    Education: n (%)

    No formal education 9 (158) 5 (227) 4 (190)

    Primary 12 (211) 8 (364) 10 (476)

    Secondary 18 (316) 6 (273) 4 (190)

    Postsecondary 4 (70) 0 (00) 3 (143)

    Degree or above 14 (246) 3 (136) 0 (00)

    Employment status: n (%)

    Currently working 16 (281) 2 (91) 3 (143)

    Retired 23 (404) 15 (682) 14 (667)

    Homemaker 10 (175) 5 (227) 4 (190)

    Student 8 (140) 0 (00) 0 (00)

    CW Chan et al.

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    earned enough of life as the reason for this as one MRF

    female participant recounted:

    There is no need to be afraid. I am now 70 years old What need is

    there to be afraid of? I have earned [my life] already. (MRF, group 4,

    female)

    Being optimistic about the risk of CHD was identified as a

    factor that led both male and female participants to negate

    their own personal risk of CHD. This is typified by the

    statement of a male MI participant who believed his

    optimistic character negated his future risk of CHD, despite

    the fact that he had a history of MI, was older and was still a

    current smoker.

    The level of suffering caused by CHD emerged as a factor

    mediating the perception of the risk of CHD. Several

    participants believed that CHD as a disease causes little

    suffering, which made them less likely to view CHD as a

    threatening disease and hence undermined their perception of

    the risk of CHD.Some of the participants stated that they were highly

    dependent on their doctors to look after their health, which

    they felt reduced the risk and threat posed by CHD. An MI

    participant who had depended on doctors to look after his

    health in the past stated that he had overlooked the role of

    diabetes and hypertension in increasing his risk of developing

    CHD until he suffered a cardiac event.

    An analysis of the data on risk factors and symptoms

    across the three populations revealed the LRP participants

    to be more likely to describe themselves as being at a low

    risk of CHD, as they believed they did not have any risk

    factors and had not experienced any CHD symptoms. In

    contrast, the MRF and MI participants were more likely to

    describe themselves as being at a high risk of CHD or of the

    recurrence of CHD, as they were able to identify the risk

    factors that applied to them and had experienced CHD

    symptoms. In terms of age as a factor in risk perception, the

    majority of the LRP participants perceived themselves as to

    be less at risk of CHD because of their young age. However,

    because of their perception of having earned enough of

    life, the two groups of LRP participants and three groups of

    MRF and MI participants who were older had a similarly

    low perception of their risk of CHD. Optimism, perceptionsof the level of suffering arising from CHD and reliance on

    medical professionals were also factors that affected the

    perception of risk among the participants, with the LRP

    participants being more likely to adopt these factors to

    negate their personal risk of CHD than participants in the

    MRF and MI groups.

    The descriptions of the participants clearly demonstrated the

    influences of CHD risk factors, CHD symptoms, age, opti-

    mism, the level of suffering caused by CHD and reliance on

    medical professionals in the estimation of their personal risk

    and of the threat posed by CHD. Of these issues, risk factors,

    symptoms and age were frequently used by most of the LRP,

    MRF and MI participants in evaluating risk, although the

    various groups of participants had a differentperception of the

    contribution of these factors to the risk of CHD.

    Perceived opportunities to understand CHD

    Many of the participants felt that they lacked access to

    information about CHD, which was consistently reported by

    different age groups and across all of the target populations.

    This was typified by one of the verbatim quote where a young

    male participant in one of the LRP groups reported that it

    was difficult to locate CHD information:

    Those pamphlets are not so detailed and are quite simple. They are

    only 12 pages and cover only some of the issues and preventive

    methods. On the Internet, ah sometimes ah you cannot be sure

    [whether] it is right or not and it may be not up to date. So, I feel it is

    difficult to find a means of knowing exactly what CHD is. (LRP,

    group 2, male)

    The participants also expressed that CHD is a disease that is

    difficult to understand. For example, a male MI participant

    who had undergone a cardiac rehabilitation programme

    emphasised that as a lay person, he had found the disease

    difficult to understand as stated:

    Put simply, for the general public and from a laymans perspective, it

    means that my heart has a problem. I did think that. But I didnt

    think that it was heart disease, because my knowledge of heartdisease was inadequate. Heart disease comes in many forms, such as

    CHD, myocardial infarction, heart failure. Now I know about them,

    as I have read about them. At that time though, I had no idea what

    they were and what the symptoms were. (MI, group 1, male)

    Other participants reported that although they had seen

    posters and banners about CHD, they did not really benefit

    from it because of misconception and misunderstanding

    related to CHD as reported in category 1 - perceived

    seriousness of CHD. They believed that CHD causes little

    suffering compared with other diseases.

    Discussion

    To date, there has been little information about Hong Kong

    Chinese perceptions of CHD. In this study, three main

    categories of perceptual information about CHD have been

    identified, namely, perceived seriousness of CHD, perceived

    risk of CHD and perceived opportunities for better under-

    standing CHD. This contributes to improve our understanding

    Patient education and information needs Qualitative study of the perceptions of CHD

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    of how CHD is perceived by Hong Kong Chinese people.

    However, it must be noted that the current findings were

    obtained from a single Hong Kong Chinese sample compiled

    using the convenience and snowball sampling methods, and

    these limitations should be acknowledged in generalising the

    results to other populations.

    The Hong Kong Chinese participants in this study heavily

    emphasised the concepts of physical independence and

    mobility, suffering and the dichotomy of curable vs. incurable

    disease in relation to the perceived severity of CHD. Stroke,

    hypertension, diabetes and SARS were all regarded as more

    serious health problems than CHD, which is consistent with

    findings from previous studies where CHD was repeatedly

    under-reported as a major health concern (Gabhainn et al.

    1999, Mosca et al. 2000, Vanhecke et al. 2006). In addition,

    the participants in this study likened CHD to a sudden event

    with minimal suffering that leads to a peaceful and silent

    death, a romantic idea about CHD that may also account for

    the similar underestimation of CHD severity by all riskgroups. This indicates that public awareness about CHD

    must be increased and accurate messages about CHD

    imparted through public education without delay.

    Risk factors, symptoms, age, optimism, level of suffering

    from the disease and reliance on medical professionals were

    all considered by the participants in evaluating their risk of

    CHD. It is possible that the phenomenon of optimistic bias

    may explain the perceptions of the participants who reported

    themselves as being at a low risk of CHD. Optimistic bias or

    unrealistic optimism refers to people who tend to underes-

    timate their own risk of disease and is a phenomenon that has

    been widely reported in the literature (Avis et al. 1989,

    Marteau et al. 1995, Van Tiel et al. 1998, Green et al. 2003,

    Moran et al. 2003, Vanhecke et al. 2006).

    The perceived CHD risk attributed to the various risk

    factors among the present sample of participants was quite

    consistent with the results of a previous study (Perkins-Porras

    et al. 2006), in that a high percentage (72%) of participants

    with a positive family history of CHD attributed heart disease

    to heredity, a high percentage (85%) of obese participants

    attributed CHD to being overweight and almost half (49%)

    of the sedentary participants attributed it to a lack of exercise.

    Reliance on medical professionals as a factor in determin-ing the evaluation of the risk of CHD among the participants

    may be because of the cohort effect, in that the sample of

    participants who were older had greater faith in medical

    judgments of illness and were of a generation that tends to

    view doctors as a source of authority. However, defence

    mechanism may also be a factor, in that by depending on a

    doctor to look after their health, they in effect freed

    themselves from being preoccupied with any risk or threat

    of disease and thus placed themselves outside of the param-

    eters of increased risk of CHD.

    The finding that CHD is difficult to comprehend is

    consistent with previous studies, where both layman and

    patients with CHD reported having difficulty in articulating

    the processes that contribute to CHD, which consequently

    resulted in misconceptions about the disease (Wiles &

    Kinmonth 2001, Karner et al. 2003, Angus et al. 2005).

    The lack of accessible information about CHD knowledge

    and how to prevent CHD found in this study concur with the

    result of the study of Farooqi et al. (2000) in the South Asians

    living in the UK and the result of Steenkiste et al. (2004)

    among the Dutch people. In both of these studies, the

    participants reported that information about the prevention

    of cardiac disease was insufficient. There are plausible

    explanations for our findings. First, the understanding of

    CHD among lay people and patients and their need for

    information about CHD have been underexplored. This

    would lead to incongruence between the CHD informationand health messages that are delivered by healthcare profes-

    sionals and the information that is expected by lay people and

    patients. This is a phenomenon that has been consistently

    highlighted in the literature (Wiles & Kinmonth 2001, Angus

    et al. 2005, Allmark & Tod 2006) and indicates a pressing

    need for health professionals to explore the understanding of

    CHD among lay people and patients and their informational

    needs and to provide information that can be easily under-

    stood, interpreted and used.

    The second possible explanation is that there are few

    effective public health education programmes and campaigns

    devoted to CHD as a result of increased attention being paid

    to other recent health problems in Hong Kong, such as

    SARS and avian influenza. This may have contributed to a

    decrease in awareness of CHD among the public and the

    disengagement of the public from a socially facilitating

    environment where they can acquire opportunities to secure

    better knowledge and information about CHD. To prevent

    CHD, it is important to promote a facilitating environment

    where people can share common social concerns, discuss

    issues such as health, illness and healthy behaviour in

    relation to CHD and gain informational support to promote

    CHD health and prevent the disease. Adequate and effectivepublic campaigns are urgently needed to create an environ-

    ment where people can understand and increase their

    awareness of CHD and its prevention.

    Conclusion

    The present qualitative study adds knowledge to the

    literature by demonstrating that the severity of CHD is

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    underestimated by the Hong Kong Chinese population, that

    the population has an unrealistic optimism about the disease

    and that there is an inadequate understanding of CHD, all of

    which have created a lack of societal readiness to engage in

    coronary health promotion and disease prevention. Thus, the

    study highlighted that societal readiness to impart accurate

    CHD information among Chinese populations is vital in

    coronary healthcare for containing CHD, achieving well-

    being and decreasing the health costs of heart disease,

    especially as Chinese people constitute such a large portion

    of the worlds population.

    This study reports findings on the perceptions of CHD

    from a single sample and used the convenience and snowball

    sampling methods to recruit participants, which limits the

    generalisability of the results. More research among Chinese

    populations is therefore suggested, as this is a largely

    underexplored area.

    Relevance to clinical practice

    Understanding the Hong Kong Chinese participants percep-

    tions of CHD is vital in developing illness prevention and

    health promotion strategies to increase their levels of knowl-

    edge of CHD risk factors reduction.

    Acknowledgements

    We acknowledge with gratitude the men and women who

    participated in this study. Their willingness to be interviewed

    provided us with useful information. Special thanks to

    Dr Fielding, Prof Thompson, Dr Yu and Prof Twinn for

    their preliminary advice. We are also grateful to the anon-

    ymous reviewers for their very helpful comments of this

    manuscript.

    Contributions

    Study design: CWC; data collection: CWC; data analysis:

    CWC, VL, JC and manuscript preparation: CWC, VL, JC.

    Conflict of interest

    There are no conflicts of interest.

    References

    Ali NS (2002) Prediction of coronary heart

    disease prevention behaviors in women:

    a test of the health belief model. Wo-

    men and Health 35, 8396.

    Allmark P & Tod A (2006) How should

    public health professionals engage withlay epidemiology? Journal of Medical

    Ethics 32, 460463.

    AngusJ,EvansS,LapumJ,RukholmE,Onge

    RS, Nolan R & Michel I (2005) Sneaky

    disease: the body and health knowledge

    for people at risk for coronary heart

    disease in Ontario, Canada. Social

    Science and Medicine 60, 21172127.

    Avis NE, Smith KW & Mckinlay JB

    (1989) Accuracy of perceptions of

    heart attack risk: what influences

    perceptions and can they be changed?

    American Journal of Public Health 79,

    16081612.Bandura A (1997) Self-efficacy: The Exer-

    cise of Control. W. H. Freeman and

    Company, New York.

    Beaglehole R (2001) Global cardiovascular

    disease prevention: time to get serious.

    Lancet 358, 661663.

    Berg BL (2007) Qualitative Research

    Methods for the Social Sciences. Pear-

    son, New York.

    Boyaatzis RE (1998) Transforming Quali-

    tative Information: The Thematic

    Analysis and Code Development. Sage

    Publications, Thousand Oaks.

    Carey MA (1995) Comment: concerns in the

    analysis of focus group data. Qualita-tive Health Research 5, 487495.

    Cheung FM (1997) Gender role develop-

    ment. In Growing up the Chinese Way

    (Lau S ed.). The Chinese University

    Press, Hong Kong, pp. 4568.

    Daily Almanac (2007a) China: History,

    Geography, Government and Culture.

    Available at: http://www.infoplease.

    com/ipa/A0107411.html (accessed 15

    December 2007).

    Daily Almanac (2007b) Total Population of

    the World by Decades, 19502050.

    Available at: http://www.infoplease.

    com/ipa/A0762181.html (accessed 15December 2007).

    DeSalvo KB, Gregg J, Kleinpeter M, Peder-

    sen BR, Stepter A & Peabody J (2005)

    Cardiac risk underestimation in urban,

    Black women. Journal of General

    Internal Medicine 20, 11271131.

    Farooqi A, Nagra D, Edgar T & Khunti K

    (2000) Attitudes to lifestyle risk factors

    for coronary heart disease amongst

    South Asians in Leicester: a focus group

    study. Family Practice 17, 293297.

    Gabhainn SN, Kelleher CC, Naughton FC,

    Flanagan M & McGrath MJ (1999)

    Socio-demographic variations in per-

    spective on cardiovascular disease andassociated risk factors. Health Educa-

    tion Research 14, 619628.

    Glanz K, Rimer BK & Lewis FM (2002)

    Health Behavior and Health Education

    Theory, Research and Practice. Jossey-

    Bass A Wiley Imprint, San Francisco.

    Grbich C (1999) Qualitative Research in

    Health. Sage Publications, London.

    Green JS, Grant M, Hill KL, Bizzolara J &

    Belmont B (2003) Heart disease risk

    perception in college men and women.

    Journal of American College Health

    51, 207211.

    Gump BB, Matthews KA, Scheier MF,Schulz R, Bridges MW & Magovern GJ

    (2001) Illness representations according

    to age and effects on health behaviors

    following Coronary Artery Bypass

    Graft Surgery. Journal of the American

    Geriatrics Society 49, 284289.

    Hampson SE, Andrews JA & Barckley M

    (2000) Conscientiousness, perceived

    risk and risk-reduction behaviors: a

    Patient education and information needs Qualitative study of the perceptions of CHD

    2010 Blackwell Publishing Ltd, Journal of Clinical Nursing, 20, 11511159 1157

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