Aap Ki Antara

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    IMFAR, 21 May 2010, Philadelphia

    Nidhi Singhal, PhD

    Tamara Daley, PhDMerry Barua

    Action For AutismNational Centre for Advocacy, Research, Rehabilitation and Training

    New Delhi, India

    COI: None

    The Impact of the Popular Media on

    Awareness: Aap Ki Antara

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    Autism in India

    Considered rare; an illness of modern civilization

    Delays and misdiagnosis

    High use of pharmacological and alternate therapies:

    Pranic healing, Reflexology, Astrology, Acupressure, Yoga,

    Ayurveda, Homeopathy

    Lack of appropriate and adequate intervention centers

    Schools not geared to meet special needs

    Significant economically disadvantaged population

    Low awareness levels and high stigmatization

    www.autism-india.org

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    Media Penetration

    1998 2004 2005

    Television sets

    Cable connections

    70 million

    25 million

    105 million

    52 million

    119 million

    62 million

    Total television viewership: 415 million; amongst world'shighest

    (CII-KPMG, 2007)

    www.autism-india.org

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    June 2009:

    An Indian television

    network with a reach ofabout 120 countries andaccess to over 500 millionviewers globally

    launched a nightly soapopera called

    Aap Ki Antara

    (Yours truly, Antara)

    http://localhost/var/www/DATA/AFA/Research/Aap%20Ki%20Antara/AAK%20videos/-Aapki%20Antara%20September%2001,%202009.flv
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    www.autism-india.org

    Three minute

    'testimonial' from afamily member of aperson with autism

    Number of a seven-hour

    telephone helpline

    (MonFri, 1pm8pm)

    Address for website of

    national Indian autismorganization: Action forAutism

    Each episode concluded with

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    Selected a five-week sample period(Sep-Oct 09) after the initial launch

    Documented calls

    Coded content and background data aboutcaller/child

    Used website analytics to compare sampleperiod and pre-launch period

    www.autism-india.org

    Method

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    Documentation of basic information

    a. Location of the caller

    b. Age of the person of concern

    c. Sex of the person of concern

    d. Relationship of caller to person of concern

    Additional information

    a. Purpose of the call

    b. Knowledge of autism prior to the serial

    c. Nature of services person of concern currently

    receives

    www.autism-india.org

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    Results:Call Summary

    During initial months:

    (JunAug 09) > 50 calls / day

    During the five week sample period:(SepOct 09) = 336 calls total

    Average of approx 15 calls / day

    www.autism-india.org

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    Who is Calling

    0

    5

    10

    15

    20

    25

    30

    35

    40

    Mother

    Father

    Grandparent

    A

    unt/uncle

    Sibling

    Self

    Other

    relative

    No

    n-relative

    37.9

    30.7

    2.5

    5.9 6.2

    0.9

    3.4

    12.4Per

    centage

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    North, 38.9

    South, 6.5Central, 16.4

    East, 17.9

    West, 18.5

    OutsideIndia, 1.9

    All figures are in percentage

    Location of Caller

    (including Dubai, Nepal, Pakistan, Thailand, & Italy)

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    Location of Caller

    0

    2

    4

    6

    8

    10

    12

    14

    16

    18

    2.5

    0.3

    3.14

    0.3

    2.8

    0.6

    16.4

    0.3

    4

    5.6

    0.60.6

    2.23.1

    0.9

    2.8

    13.6

    0.3

    2.8

    7.4

    4.3

    10.8

    0.9

    8

    1.9

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    Reason for Call

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    Diagnosis

    Don't know

    No diagnosis

    CP

    "Delay, slow, will be OK with age"

    Other (seizures, blind, braindamage)

    MR, Down's

    ASD

    0 10 20 30 40 50

    3.6

    28.6

    3.1

    7.1

    8.5

    14.3

    34.8

    Percentage

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    Of the callers with a child diagnosed withautism

    48% of children did not attend any school 36% attended a special school

    16% attended a regular school

    Services

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    65% of all callers reported that they were notaware of autism prior to watching

    Aap Ki Antara

    Awareness

    www.autism-india.org

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    During sample period (Sep Oct 09) sitereceived 7,781 visits from:

    129 countries and territories

    79% of these were new visitors

    42% of the visits were from India (79 cities)

    27% were from the U.S. (51 states)

    Website Traffic

    www.autism-india.org

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    Compared to a five week period before showwas launched (Apr May 09):

    An increase of 35% total number of visitors

    An increase of 30% of first time visitors

    97% increase in people accessing the site

    through direct entry of website address

    Website Traffic

    www.autism-india.org

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    Television as a medium can be a powerfulsource for raising awareness

    Includes penetration in rural areas where access toservices is limited

    Popularity of show independent of accuracy ofportrayal

    Can serve as a reference point

    Validation of personal experience

    www.autism-india.org

    Implications

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    Next Steps

    Documenting awareness of AAK through intakeinformation sheets

    Small awareness study on My Name is Khan

    Applied for funding for an IVR+phonecounseling helpline

    Developing 30 second spots for TV and theaters

    www.autism-india.org

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    Thank You!

    Nidhi [email protected]

    Tamara [email protected]

    Action For [email protected]

    www.autism-india.org

    mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]