ACT On Alzheimer's: Every Minnesotan Makes A Difference

Act on Alzheimer's

ACT on Alzheimer's is a statewide, voluntary collaboration that includes over 50 organizations and 150 individuals seeking to prepare for the budgetary, social, and personal impacts of Alzheimer’s disease.

Genesis of ACT on Alzheimer’s

• 2009 Legislative Mandate for Alzheimer’s Disease Working Group (ADWG).

• Legislative Report Filed in January 2011.

• ACT on Alzheimer’s is second generation of work focused on implementation.

COLLABORATIVE STRUCTURE

• No one organization owns/operates the initiative:

Leadership Council(36: Advisors, Strategists, Champions)

Management Steering Committee(10: Organizations Actively Involved in Day

to Day Operations; Make Decisions on Cross Cutting Issues)

Operations(150+: Executive, Project Manager, Five

Leadership Groups, Communications, Fiscal Sponsor, Host)

ACT ON ALZHEIMER’S is a statewide collaboration seeking to prepare Minnesota

for the budgetary, social and personal impacts of Alzheimer’s disease and related dementias

by achieving the following goals:

INCREASE EARLY IDENTIFICATION OF

DEMENTIA AND IMPROVE

ONGOING CARE

IDENTIFY AND INVEST IN

PROMISING APPROACHES

THAT REDUCE COSTS AND

IMPROVE CARE

RAISE AWARENESS AND REDUCE STIGMA BY

ENGAGING COMMUNITY

SUSTAIN CAREGIVERS WITH INFORMATION,

RESOURCES AND

IN-PERSON SUPPORT PREPARE AND EQUIP

COMMUNITIES TO SUPPORT

RESIDENTS WHO ARE

TOUCHED BY DEMENTIA

IDENTIFY AND INVEST IN PROMISING

APPROACHES• SYNTHESIZE CURRENT AND FUTURE

DIRECT AND INDIRECT COSTS OF DEMENTIA

• IDENTIFY AND INVEST IN PROMISING APPROACHES THAT CONTROL COSTS AND IMPROVE CARE

• IN PERSON CAREGIVER SUPPORT AND CARE TRANSITIONS

INCREASE EARLY DETECTION AND IMPROVE QUALITY CARE

• DEVELOP AND DISSEMINATE A PRACTICE TOOL THAT SUPPORTS PROVIDERS IN ASSESSING, DIAGNOSING AND TREATING DEMENTIA

• FOSTER EFFECTIVE LINKAGES BETWEEN CLINICAL AND COMMUNITY BASED ORGANIZATIONS

• DEVELOP AND INFUSE DEMENTIA CONTENT INTO HEALTH CARE HOMES AND HEALTH PROFESSIONAL CURRICULA

• FOSTER DEMENTIA AS AN ORGANIZING PRINCIPLE OF CARE

 

SUSTAIN CAREGIVERS

• ENHANCE STATE RESOURCES AND INFORMATION FOR PERSONS WITH DEMENTIA AND THEIR CAREGIVERS (MINNESOTAHELP.INFO AND SENIOR LINKAGE LINE)

• ENHANCE CARE NAVIGATION AND EXPAND IN-PERSON CARE CONSULTATION RESOURCES

ENGAGE AND EQUIP COMMUNITIES FOR THE IMPACT

ACT on Alzheimer's has developed a Community Tool Kit to assist communities in becoming dementia capable so they can support their residents who are touched by Alzheimer’s disease.

DEMENTIA CAPABLE COMMUNITY

A dementia capable community is informed, safe and respectful of individuals with dementia and their families, provides supportive options, and fosters quality of life.

DEMENTIA CAPABLE COMMUNITY

CommunityAwareness

Diagnosis, Medical

Management and Quality

Care

Information, Counseling,

Education, Life Planning

Community Supports

Local Government

Planning

DEVELOPING DEMENTIA CAPABLE COMMUNITIES

A tool kit is available and can be used for:• Convening key community leaders and

members to form a Community Team.• Assessing current strengths and gaps in

dementia capability.• Identifying community goals and planning

possible ways to act.• Acting Together to pursue priority goals and

foster community readiness for dementia.

PILOTACTION COMMUNITIES

• St. Louis Park/Hopkins Coalition

• St. Paul Neighborhood

• West Central Dementia Area Network (Willmar Area)

• Walker Community Coalition (Walker, MN)

• Twin Cities Jewish Community Alzheimer’s Task Force

ROLE OF ACTION COMMUNITIES

Convene a Team

Assess the Community

Synthesize Results

Prioritize Goals and Implement

Measure Progress

• Planning and convening

• Support of local coordinator

• Communications

• Technical assistance

• Goal prioritization and implementation planning

• Tracking and evaluating progress

• Publicizing results

ACT ON ALZHEIMER’S: SUPPORT OF COMMUNITIES

FIRST STEPS FOR COMMUNITY ACTION

Consider Readiness

Identify Convenerand Local Coordinator

Convene Planning Team to Craft Team

Hold Kick Off Event and Call to Action

Convene Team to Assess

Every Minnesotan Makes a Difference