Agenda Day 1Wednesday, February 1, 2017Patient Lounge 7:00am - 10:00pm Deer Valley Room

Exhibits 8:00am - 8:00pm Ballroom Foyer

TIME AGENDA PRESENTERS ROOM

9:00-11:00a Nursing Advisory Board Meeting By Invitation Only Cottonwood

9:00-11:00a Meet & Greet Activity (optional) Patient/Caregivers Deer Valley

11:00a-12:30p Lunch & Networking All Guests Salons F-J

12:30-12:40p Welcome Aram Hezel, University of Rochester and Juan Valle, University of Manchester

Salons A-E

12:40-1:00p Patient Perspective Lisa Layton Salons A-E

Research1:00-1:15p Immunotherapy Lipika Goyal, Massachusetts

General Hospital (MGH)Salons A-E

1:15-1:30p Chemotherapy Juan Valle, University of Manchester, UK

Salons A-E

1:30-1:45p Surgery Flavio Rocha, Virginia Mason Medical Center

Salons A-E

1:45-2:00p The Role of Palative Care Emma Fattakhov, Orange Regional Medical Center

Salons A-E

2:00-2:10p Panel Discussion Lipika Goyal, Juan Valle, Flavio Rocha, Emma Fattakhov

Salons A-E

2:10-2:20p Patient Perspective Gary Rosen Salons A-E

2:20-3:00p Breakout Sessions All Guests

Session I What is a Bile Duct? Renuka Iyer, Roswell Park Cancer Center

Cottonwood

Session II Mindfulness & Integration of CAM Therapies

Heidi Lowitzer, Buffalo General Medical Center & Monica Del Rosso, Orange Regional Medical Center

Salons A-E

Session III Caregiving 101 Lauren Rosati, Johns Hopkins University

Snowbird, 2nd Fl.

Session IV Overcoming Financial Burden Junko Fowles, University of Utah Solitude

3:00-3:15p Break & Networking All Guests Salons F-J

3:20-3:30p Patient Perspective Lisa Crane Salons A-E

Clinical Trials3:30-3:40p Clinical Trials Explorer Overview Andy Macias Salons A-E

3:40-3:50p Emerging Med Overview Courtney Hudson, Emerging Med Salons A-E

3:50-4:00p Cure Forward Overview Martin Naley, Cure Forward Salons A-E

4:00-4:10p Clinical Trials Coordinator Overview Nasra Giama, Mayo Clinic Salons A-E

4:10-4:20p Panel Discussion Andy Macias, Courtney Hudson, Martin Naley, Nasra Giama

Salons A-E

4:20-4:30p CCA Patient Assist Mobile App Maureen Collins, Boston Scientific Salons A-E

4:30-4:40p Patient Advocacy Update Marion Schwartz, Cholangiocarcinoma Foundation

Salons A-E

4:40-4:50p Drive Away Cholangio Andy Macias Salons A-E

4:50-5:00p Patient Perspective Patty Corcoran Salons A-E

5:00-6:00p Advocating for Yourself and Others Sam Martineau, Branden Lee Salons A-E

6:00-7:00p Dinner & Networking All Guests Salons F-J

7:00-10:00p Karaoke All Guests Salons A-E

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15Cholangiocarcinoma Foundation - 2017 Annual Conference

SUBJECT TO CHANGE. Be sure to check the conference app for schedule changes.

Agenda Day 2 Thursday, February 2, 2017Patient Lounge 7:00am - 10:00pm Deer Valley RoomExhibits 8:00am - 8:00pm Ballroom Foyer

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TIME AGENDA PRESENTERS ROOM

6:30-8:15a Breakfast All Guests Salons F-J

7:00-8:00a Medical & Scientific Advisory Board Meeting

By Invitation Only Solitude

8:00-8:10a Welcome to the Conference Conference Chairs Salons A-E

8:10-8:20a Cholangiocarcinoma Foundation Update

Stacie Lindsey, Cholangiocarcinoma Foundation

Salons A-E

8:20-8:30a Patient Perspective Matt Reidy Salons A-E

Introductory Session8:30-9:10a State of Art - Genetics & Emerging

TherapiesAndrew Zhu, MGH and Katie Kelley, UCSF

Salons A-E

9:10-9:50a State of Art - Models & Emerging Technologies

Aram Hezel, University of Rochester & Nabeel Bardeesy, MGH

Salons A-E

9:50-10:00a Panel Discussion Andrew Zhu, Katie Kelley, Aram Hezel, Nabeel Bardeesy

Salons A-E

10:00-10:20a Break & Networking All Guests Salons F-J

Pathways to Therapy10:20-11:00a WNT Pathway Luke Boulter, University of

Edinburgh, UKSalons A-E

11:00-11:30a FGFR Pathway Elizabeth Smyth, Royal Marsden Hospital, UK

Salons A-E

11:30-11:50a Grantee Report: FGFR Pathway & Therapeutic Resistance

Lipika Goyal, MGH Salons A-E

11:50-12:00p Grantee Report: A Hippo and FGFR Autocrine Pathway in CCA

Sumera Rizvi, Mayo Clinic Salons A-E

12:00-12:20p Panel Discussion Luke Boulter, Elizabeth Smyth, Lipika Goyal, Sumera Rizvi

Salons A-E

12:20-12:30p Patient/Caregiver Perspective Sarah Bennett & Linda Fleischer Salons A-E

12:30-1:15p Lunch & Networking All Guests Salons F-J

Debate: Photodynamic Therapy1:15-1:35p PDT: For the Motion David Loren, Thomas Jefferson

UniversitySalons A-E

1:35-1:55p PDT: Against the Motion John Bridgewater, University College London Hospital, UK

Salons A-E

1:55-2:05p PDT: Rebuttal David Loren & John Bridgewater Salons A-E

2:05-2:15p Delphi Panel Update Renuka Iyer, Roswell Park Cancer Center

Salons A-E

2:15-2:25p International CCA Research Network Update

Milind Javle, MD Anderson Cancer Center and Mitesh Borad, Mayo Clinic

Salons A-E

2:25-2:50p Break & Networking All Guests Salons F-J

2:50-3:20p Epigenetic Gene Control Hao Zhu, UT Southwestern Medical Center

Salons A-E

3:20-3:50p IDH Pathway Susan Pandya, Agios Pharmaceuticals

Salons A-E

3:50-4:00p Grantee Report: Metabolic Reprogramming by IDH

Lee Shi, MGH Salons A-E

Cholangiocarcinoma Foundation - 2017 Annual Conference16

SUBJECT TO CHANGE. Be sure to check the conference app for schedule changes.

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17Cholangiocarcinoma Foundation - 2017 Annual Conference

Agenda Day 2 (continued)

Thursday, February 2, 2017Patient Lounge 7:00am - 10:00pm Deer Valley Room

Exhibits 8:00am - 8:00pm Ballroom Foyer

TIME AGENDA PRESENTERS ROOM

4:00-4:30p Panel Discussion Hao Zhu, Susan Pandya, Lei Shi Salons A-E

4:30-5:00p Global Focus Ghassan Abou-Alfa, Memorial Sloan Kettering Cancer Center

Salons A-E

5:00-7:00p Dinner and Poster Session All Guests Salons F-J

6:00-7:00p VIP Reception By Invitation Only Brighton, 2nd Fl.

7:00-9:00p ICRN Industry Night By Invitation Only Alta/Snowbird, 2nd Fl.

Agenda Day 3

Friday, February 3, 2017Patient Lounge 7:00am - 6:00pm Deer Valley Room

TIME AGENDA PRESENTERS ROOM

8:45a-1:00p SLC Sightseeing Tour PRE-REGISTERED Patients/Caregivers

Meet in Lobby

10:00a-9:00p Charming Charlie Event All Guests 56 South Rio Grande Street

TIME AGENDA PRESENTERS ROOM

6:30-8:30a Breakfast All Guests Brighton, 2nd Fl.

7:00-8:00a International CCA Research Network Meeting

By Invitation Only Park City Room, 2nd Fl.

8:00-8:10a Welcome to the Conference Conference Chairs Salons A-C

8:10-8:30a Broad Institute Nabeel Bardeesy, MGH Salons A-C

8:30-9:00a Targeting the Immune Response & Stroma

David DeNardo, Washington University

Salons A-C

9:00-9:30a Adoptive Cell Therapy Eric Tran, NIH Salons A-C

9:30-10:00a Checkpoint Inhibition John Bridgewater, University College London Hospitals, UK

Salons A-C

10:00-10:45a Panel Discussion David DeNardo, Eric Tran, John Bridgewater

Salons A-C

10:45-11:00a Break & Networking All Guests Salons A-C Foyer

2016 in Review and the Year Ahead11:00-11:15a Nursing Advisory Board Update Susan Acquisto, The Bili

Project FoundationSalons A-C

11:15-11:45a Surgery, Transplantation R. Mark Ghobrial, Houston Methodist

Salons A-C

11:45-12:15p Radiation Joseph Herman, MD Anderson Cancer Center

Salons A-C

12:15-12:45p Chemotherapy Juan Valle, University of Manchester, UK

Salons A-C

12:45-1:00p Panel Discussion R. Mark Ghobrial, Joe Herman, Juan Valle

Salons A-C

SUBJECT TO CHANGE. Be sure to check the conference app for schedule changes.

SUBJECT TO CHANGE. Be sure to check the conference app for schedule changes.

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Agenda Day 3 (continued)

Friday, February 3, 2017Patient Lounge 7:00am - 6:00pm Deer Valley Room

The people pictured here are some of the many friends and relatives of Agios employees who have been affected by cancer. All of us at Agios are passionate about transforming patients’ lives. This is our vision and what motivates, inspires, and drives us.

Agios is passionately committed to the fundamental transformation of patients’ l ives through scientif ic

leadership in the f ield of cancer metabolism.

AGIOS IS PROUD TO SUPPORT THE CHOLANGIOCARCINOMA FOUNDATION

Font Used: Variable RegularColor Blue: Hex: #038087 CMYK: 93, 23, 4, 0 PMS 7461 / Black

w w w . a g i o s . c o m

TIME AGENDA PRESENTERS ROOM

Conference Closing Box Lunches Available in the Salons A-C Foyer

1:00-1:10p Scientific Conclusion Aram Hezel, University of Rochester

Salons A-C

1:10-1:20p Clinical Conclusion Juan Valle, University of Manchester

Salons A-C

1:20-1:30p CCF Conclusion Stacie Lindsey, Cholangiocarcinoma Foundation

Salons A-C

2:00-3:00p Partners Meeting By Invitation Only Brighton, 2nd Fl.

2:00-3:00p Engaging Patients in CCA (EPIC) By Invitation Only Park City, 2nd Fl.

3:00-4:00p Patient Advisory Board By Invitation Only Brighton, 2nd Fl.

3:00-4:00p PCORI Steering Committee By Invitation Only Alta, 2nd Fl.

6:00p Patient Lounge Closes Patients/Caregivers Deer Valley

SUBJECT TO CHANGE. Be sure to check the conference app for schedule changes.