Annual Report2014

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2014 will be remembered as a challenging year for the NAI, when, along with eleven other neurological organisations, we faced the loss of core funding under the SSNO scheme and the closure of the NAI by the end of the year unless the funding could be restored. NAI mobilised a hugely effective campaign with the support of its member organisations and the Disability Federation of Ireland and a decision was announced in July to extend a bridging fund to the organisations affected until June 2015. The significant demand in terms of time and staff resources required on the part of the NAI to sustain this campaign represent an important commitment to our own members as well as to the 700,000 people in Ireland living with a neurological condition and their families for whom NAI is the only dedicated umbrella

representing their needs across Irish society. The requirement to fight for support for our continued existence, and the threat to vital services provided by neurological

charities in 2014, makes the work of the NAI more important than ever in ensuring that the voice of people with neurological conditions in Ireland continues to be heard. NAI plans to continue its campaign to protect funding for organisations impacted by SSNO in the coming year, focusing on the issue as a key theme of National Brain Awareness Week.

The NAI workplan for 2014 was significantly impacted by the SSNO funding decision and the subsequent campaign. Nevertheless every effort was made by the dedicated staff and the board of the NAI to progress key areas of the operational plan with the result that 2014 represented an important series of achievements for the organisation. Among NAI’s successes in 2014 were the launch of the findings of the most extensive survey to date of the needs and experiences of people with neurological conditions and their carers in Ireland. The organisation carried out structured consultations with key stakeholders in order to inform comprehensive NAI submissions on the framework for universal health insurance and the review of medical card eligibility. There is an ongoing commitment to increasing the responsiveness of the organisation in terms of developing comprehensive policy submissions in order to increase the profile of the NAI and ensure that the needs and experiences of people with neurological conditions are widely reflected across the health and disability sector and this will continue in the coming year. Publication of a joint research study with the Irish Hospice Foundation and the organisation of a joint conference on brain research with the Irish Brain Council for Brain Awareness Week 2015 represent important achievements for the NAI in 2014 in terms of successful partnerships and collaboration.

Securing compliance with the Governance Code in 2014 represents the culmination of a comprehensive work programme within the NAI and represents an important achievement for the organisation in meeting a high standard in terms of good governance and accountability. We pay tribute to the commitment of the board and staff of the organisation to achieving this objective.

We warmly acknowledge the work of Chris Macey, Irish Heart Foundation as Chair of NAI and Donnchadh Whelan of Acquired Brain Injury Ireland who succeeded him in October 2014. They were responsible for leading the NAI throughout a demanding but very productive year for the organisation. Our work would not be possible without the dedication and commitment of our members, our board and staff and all those who believe in the vision and mission of the NAI.

We hope that you enjoy this report and look forward to your continued support in 2015.

FOREWORD

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NAI VISION A society where people with neurological conditions and their families can attain a high quality of life and where the supports and the services are in place to enable them to achieve this.

NAI MISSION STATEMENTNAI is a national network of organisations which provide services to, and represent the views and concerns of, people living with neurological conditions and their families. NAI, together with other relevant agencies and organisations, aim to put in place the best possible range of integrated services and supports for people with neurological conditions and their families.

NAI STRATEGIC OBJECTIVESBased on the priorities identified by its member organisations, the NAI core objectives for the period of the 2011 – 2015 Strategic Plan are as follows:

• To advocate for the full range of high quality supports and services required by people with neurological conditions and their families at both national and local levels.

• To build the profile of NAI and support member organisations to raise awareness of neurological conditions and their impact on individuals and families.

• To create a network infrastructure for NAI members through which information, support, initiatives and resources might be shared.

• To ensure that NAI develops effective partnerships and working relationships with other organisations across the health and disability sector, including the statutory sector, so as to facilitate the achievement of its objectives

• To make the NAI a sustainable organisation through securing ongoing core and project funds.

GOVERNANCENAI is committed to achieving and maintaining the highest standards of governance. NAI is registred as fully compliant with the Code of Practice for Good Governance of Community, Voluntary and Charitable Organisations in Ireland (The Governance Code).

THE VISION AND MISSION OF THE NAI

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MOVING FORWARD IN 2014 IN ADVOCATING FOR THE FULL RANGEOF HIGH QUALITY SUPPORTS AND SERVICES REQUIRED BY PEOPLE

WITH NEUROLOGICAL CONDITIONS AND THEIR FAMILIES

WORKING AS PART OF SPECIFIC INITIATIVES TO DEVELOP A FRAMEWORK OF SERVICES TO MEET THE NEEDS OF PEOPLE WITH NEUROLOGICAL CONDITIONS

NATIONAL CLINICAL PROGRAMMES The national clinical programmes in neurology and rehabilitation medicine represent an important opportunity for the NAI to work in partnership with clinicians and with the health services to develop responses to meet the needs of people with neurological conditions and their families. NAI was invited to be a member of the programme team to work directly with these programmes. A new programme manager for both programmes, Edina O Driscoll, commenced work in March 2014 and from the beginning developed a positive and active working relationship with NAI. Edina has a strong background in neurological care, working as the Director of the Brain Injury programme in the National Rehabilitation Hospital. The decision was taken by the NAI Board mid year to specifically allocate part of the NAI Development Manager’s time to working with the Programme Manager and this was welcomed by both programmes. This commitment allowed NAI to play an active role in:

a) Preparing draft models of care for both programmes in advance of stakeholder consultations in 2015

b) NAI will work with the neurology programme to design and carry out a national survey of neurology centres nationwide, examining area such as staffing, bed complement, waiting lists for diagnostic testing, access to services in the community and challenges facing each centre. The survey findings will be included in the model of care and will be published in 2015.

NATIONAL NEUROREHABILITATION STRATEGYThe NAI had campaigned throughout 2013 for the establishment of an implementation group for the national neurorehabilitation survey. NAI took part in a round table consultation took place in May 2014 along with statutory and voluntary providers to develop an outline implementation framework for the neurorehabilitation strategy. The NAI organised a consultation with its members on this draft framework once the draft was made available in November 2014. NAI will work to have member’s feedback incorporated into the framework and will press for a consultation on the draft plan involving all stakeholders in 2015. NAI met with Minister Kathleen Lynch on 19th June 2015 to highlight the critical concerns of the umbrella that so little progress has been made on the strategy since its publication in 2011 and 2015 represents the final year of the three year implementation period outlined in the strategy. NAI requested a commitment from the Minister for ring fenced funding for the development of community neurorehabilitation teams and will continue to campaign on this issue in the coming year.

CARRYING OUT RESEARCH TO INFORM THE NAI ADVOCACY AGENDA IN RELATION TO THE NEEDS OF PEOPLE WITH NEUROLOGICAL CONDITIONS AND THEIR FAMILIESIn March 2014, as part of events to mark National Brain Awareness Week, the NAI published the findings of its landmark survey “Living with a Neurological Condition in Ireland”. With over six hundred respondents,

the survey represents the largest to date exploring the needs of people with neurological conditions and their carers as a group within Irish society. The survey examined a wide range of areas including

CARRYING OUT RESEARCH TO INFORM THE NAI ADVOCACY AGENDA IN RELATION TO THE NEEDS OF PEOPLE WITH THE NEEDS OF PEOPLE WITH NEUROLOGICAL CONDITIONS AND THEIR FAMILIESIn March 2014, as part of events to mark National Brain Awareness

the survey represents the largest to date exploring the needs of people with neurological

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access to health services, satisfaction with aspects of care and treatment and the impact of living with a neurological condition on financial and emotional wellbeing and participation in everyday activities. Importantly, the survey focused on examining the impact of the recession on people with neurological conditions in response to concern that people with neurological conditions were suffering a “double blow” of the effects of austerity, facing cuts to healthcare supports, benefits and entitlements on top of the long standing lack of specialist neurological care services in this country. The survey findings provided a valuable evidence base for the NAI to inform its 2015 pre budget submission but also represent a core information resource going forward as the most comprehensive insight into the needs and experiences of Irish people with neurological conditions to date.

SUMMARY OF FINDINGS

1. ACCESS TO CRUCIAL SERVICES FOR PEOPLE WITH NEUROLOGICAL CONDITIONS IS NOT IMPROVING AND FOR SOME SERVICES IS BECOMING MORE DIFFICULT: 27% could not access personal assistant services 25% could not access respite care 24% could not access psychology services

The following services have become more difficult to access over the past three years: Aids and appliances: 47% PA services: 47% Day services: 46% Respite services: 45%

Across a range of neurological care services, over a third of respondents have found it more difficult to access services over the past three years.

A comparison with 2011 findings show an increase in the percentage of people reporting that they could not access a service.

Respite Services: the percentage of people who could not access this service increased by 21% between 2011 and 2014

Adaptation to Home: increased by 17%

2. PEOPLE WITH NEUROLOGICAL CONDITIONS ARE BEING FORCED TO PAY FOR BASIC CARE PRIVATELY, AND AT SIGNIFICANT COST TO THEM Over 40% of respondents reported paying for physiotherapy, neurology and aids and equipment privately.

3. CHANGES TO BENEFITS AND ENTITLEMENTS HAVE IMPACTED SIGNIFICANTLY ON PEOPLE WITH NEUROLOGICAL CONDITIONS 21% of people have had their medical card withdrawn over the past three years while 38% reported that they were refused a medical card.

One third of respondents reported a significant impact of cuts to personal assistant and home help hours and HSE transport services.

Over 40% reported a significant impact of the changes to mobility allowance, increased costs of medications and cuts to home care packages.

4. PEOPLE WITH NEUROLOGICAL CONDITIONS AND THEIR FAMILIES ARE WORRIED ABOUT THEIR FUTURE AND THE IMPACT OF FURTHER CUTS 46% reported that worry about future cuts in health services and in benefits and entitlements is having a significant effect on them.

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MAKING SUBMISSIONS ON KEY AREAS OF POLICY DEVELOPMENT THAT HAVE THE POTENTIAL TO IMPACT ON PEOPLE WITH NEUROLOGICAL CONDITIONS AND THEIR FAMILIES AND THE ORGANISATIONS THAT REPRESENT THEM.

The NAI operational plan for 2014 focused on increasing the responsiveness of the organisation in terms of developing comprehensive policy submissions in order to increase the profile of the NAI and ensure that the needs and experiences of people with neurological conditions are widely reflected across the health and disability sector.

NAI prepared the following submissions in 2014 and copies of all reports and submissions can be found at http://www.nai.ie/go/resources/nai_documents

1. NAI Submission on Part 4 of the Disability Act (genetic testing)2. NAI submission on Advanced Care Directives3. NAI submission on the proposed framework for Universal Health Insurance. The submission was informed by a consultation meeting engaging the views of health professionals in the areas of neurology and neurore habilitation as well as consultation with NAI member groups4. NAI submission to the review on Medical Card Eligibility. This submission was informed by the findings of a national survey carried out by the NAI inviting the views of people with neurological conditions, health professionals and organisations working with people with neurological conditions and their families. 5. NAI pre budget submission 2015

NATIONAL BRAIN AWARENESS WEEK 2014

The NAI launched the findings of its landmark survey “Living with a Neurological Condition in Ireland” as its keynote event for National Brain Awareness Week 2014. The event on 11th March in the Oak Room of the Mansion House featured a panel of political representatives who commented on the findings. There was coverage of the launch in the Irish Times and Irish Examiner, a number of parliamentary questions and comments were raised in the Dáil in relation to the survey and NAI organised a series of meetings with individual health spokespeople around the findings of the research.

MOVING FORWARD IN 2014 IN BUILDING THE PROFILE OF NAI AND SUPPORTING MEMBER ORGANISATIONS TO RAISE AWARENESS OF NEUROLOGICAL CONDITIONS

AND THE IMPACT ON INDIVIDUALS AND THEIR FAMILIES

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BRAIN AWARENESS WEEK 2014 IN BRIEF

Over 50 events were organised nationwide including an evening of public lectures in the Science gallery organised by the NAI with support from Novartis.

NAI’s Brain Awareness Week events received coverage on RTE’s Morning Edition programme, Newstalk’s George Hook show, RTE radio’s Sean O Rourke programme and The Late Debate on RTE radio.

PRESENTATION ON NEUROLOGICAL CARE TO JOINT OIREACHTAS COMMITTEE ON HEALTH

NAI was invited to present to the Joint Oireachtas Committee on Health and Children in a special hearing on neurological care services on 11th February 2014 organised by Senator John Crowne. The NAI was invited to provide an overview of key critical issues in relation to services for people with neurological conditions in Ireland. NAI addressed the committee on the following issues:

1. Ireland could address a critical issue in relation to neurorehabilitation services by putting in place the community neurorehabilitation teams recommended in the national neurorehabilitation strategy published in 2011. To date there is only one such team in the country, based in the Mid West and no new teams have been developed despite the commitment in the strategy to put in place a nationwide network of community neurorehabilitation teams. The steady erosion of community based therapy provision and the lack of new investment will significantly hamper the establishment of these teams. Case management is essential for those with complex needs such as people with acquired brain injury to avoid the type of disjointed care experienced by these individuals. 2. Cuts in community health services are critically impacting on people with neurological conditions who are among the most dependent on such supports. Cuts to home care packages are forcing people to stay in acute units or be discharged home with inadequate care. Either way it leads to long term pressure on the acute system. 3. The medical card is a vital portal to health services for those with chronic illness. Not having a medical card excludes people with neurological conditions from many of these supports. The current crisis in relation to discretionary medical cards is impacting significantly on people with neurological conditions 4. Ireland is uniquely reliant on not for profit organisations to provide neurological health services that are normally provided by the State in other jurisdictions. The reality is that the infrastructure of community based neurological care is hugely reliant on the services provided by patient organisations. Disability organisations have seen a 15% drop in their funding in recent years and many have had to close or curtail services to people with neurological conditions.

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THE KEY MESSAGES SUMMARISED TO THE COMMITTEE WERE:

1. Community aftercare for people with a neurological condition in Ireland has historically been underdeveloped and underresourced and well below what is routinely available in other countries

2. The services that are in place are being decimated by cuts to community health services which are significantly affecting the quality of care available for people with neurological conditions in this country.

NAI LOCAL ELECTION CAMPAIGN 2014

NAI launched a campaign for the Local Elections in May 2014, providing a prompt card for voters and calling on candidates to pledge their support for issues affecting people with neurological conditions. NAI member organisations in the South East used their neurological wellness day to highlight neurological issues in the run up to the local elections by inviting local election candidates to hear the issues impacting on people with neurological conditions both in the local area and nationally.

NEUROLOGICAL WELLNESS DAYS 2014

Once again in 2014, the neurological wellness days initiative provided an important opportunity to bring NAI member organisations together around the country in a collaborative focus aimed at promoting self management and supported self care among people with neurological conditions and their families. Wellness days took place in Kilkenny, Galway and Limerick during the months of April and May.

The event in Kilkenny used the opportunity to raise much needed awareness among local candidates in the run up to the local elections. On the day the importance of speaking to your local politician and telling them your issues and needs was raised. The day was opened by Patrick Little, the CEO of Migraine Association of Ireland.

LOCAL ELECTIONS 2014

Vote for Better Neurological Services

OVER 700,000 PEOPLE IN IRELANDLIVE WITH NEUROLOGICAL CONDITIONS SUCH AS STROKE, MIGRAINE, EPILEPSY, DEMENTIA, ACQUIRED BRAIN INJURY,

MULTIPLE SCLEROSIS AND PARKINSON’S DISEASE.

That’s less than one in seven of the population, so it’s likely you or someone close to you is or will be affected. But research by the Neurological Alliance of Ireland (NAI) shows a chronic lack of access to services people with these conditions need to maximise their quality of life. For example:• 42% have had their medical card withdrawn and half were refused a medical card• Two-thirds were affected by changes to mobility allowance and home care packages• Over 70% found it difficult or impossible to access respite care or personal assistance services.• Half found it difficult or impossible to access physiotherapy, speech and language therapy or occupational therapy.• Just one community team in the whole country provides local neurorehabilitation services vital to enable people to continue living in their own homes.

The statistics prove there has been a significant deterioration in these vital services over the last three years.

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At the wellness event in Galway Mags Mullraney of Move4Parkinsons Association spoke of her own story and her own diagnosis and life after it. With many NAI members involved with information stands, it was a day of creating and sharing awareness throughout the different groups. Discussed were government policies on disability, access and the lack of it and living well within the community.

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With the wellness event in Limerick, the tone of the day was set with an inspiration talk by Lorraine Lally on ‘Living With Epilepsy’. Workshops were designed around wellness, healthy living, diet, reflexology, set dancing and nutrition. The motto of ‘Putting People First’ was as always well received and greatly appreciated by all who attended.

Sinead Bradley represented the NAI at wellness days in Galway and Kilkenny and was responsible for co-ordinating this initiative within NAI.

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NAI POLICY ADVOCACY AND CAMPAIGN FORUM

The NAI developed a new initiative in 2012 with the aim of providing a platform for member organisations to engage directly with the NAI to raise issues, share information and identify opportunities to influence policy and effect change. The NAI policy advocacy and campaign forum met on a quarterly basis throughout 2014 and provided members with an opportunity to engage actively with other NAI members in the development of policy submissions, share information about individual campaigns and receive updates on NAI activities.

NAI CAMPAIGN FOR THE RESTORATION OF SSNO FUNDING TO NAI MEMBER ORGANISATIONS

The removal of funding in June 2014 to all twelve NAI member organisations in receipt of funding under the SSNO scheme placed an immediate and significant onus on the NAI, as an umbrella organisation to respond to the needs of its members on this issue. NAI mobilised a sustained active campaign both through the media and through contact with individual political representatives to have the funding cuts reversed, highlighting the direct impact on people with neurological conditions and their families. A “bridging fund” was announced in July 2014 extending existing levels of SSNO funding to a number of health and disability organisations, including all twelve NAI member groups, until June 2015. Working to secure a sustainable solution to funding vital neurological organisations and services that have been impacted by the SSNO funding decision will be a key area of focus for the NAI in the coming year.

JOINT NAI & CARE ALLIANCE LAUNCH OF SURVEY FINDINGS FOR CARERS WEEK JUNE 2014

NAI agreed to a joint launch with Care Alliance of the findings of its 2014 survey “Living with a Neurological Condition in Ireland” in relation to family carers.

LIVING WITH A NEUROLOGICAL CONDITION IN IRELAND: FAMILY CARERS

In a survey of over 170 family carers, 82% reported being impacted by cuts to home care packages over the past three years, 77% by cuts to respite services and 70% by cuts to home help. Over one fifth of carers could not access respite at all.

42% of family carers had given up work to look after the person with a neurological condition while 64% reported a significant fall in family income since the onset of the condition.

MOVING FORWARD IN 2014 IN CREATING A NETWORK INFRASTRUCTUREFOR NAI MEMBERS THROUGH WHICH INFORMATION, SUPPORT,

INITIATIVES AND RESOURCES CAN BE SHARED

MOVING FORWARD IN 2014 IN IN ENSURING NAI DEVELOPS EFFECTIVE PARTNERSHIPS AND WORKING RELATIONSHIPS WITH OTHER ORGANISATIONS ACROSS THE HEALTH AND DISABILITY SECTOR, INCLUDING THE STATUTORY

SECTOR, SO AS TO FACILITATE ACHIEVEMENT OF ITS OBJECTIVES

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NAI & THE IRISH HOSPICE FOUNDATION: LAUNCH OF REPORT ON JOINT RESEARCH STUDY AND ROUND TABLE EVENT ON PALLIATIVE CARE AND NEUROLOGICAL CONDITIONS

The NAI and Irish Hospice Foundation brought together a number of individual NAI member organisations in a joint research project examining the palliative care needs and experiences of people with neurological conditions from the perspective of staff and volunteers working in these organisations.

The report was launched at a round table event in November 2014 chaired by Professor Orla Hardiman and featuring presentations from research projects using funding from the Irish Hospice Foundation to engage in individual initiatives to develop guidelines around palliative care in specific neurological conditions, increase understanding of palliative care needs and introduce services to meet the requirements of people with progressive neurological conditions.

The launch of the joint report and the round table event in 2014 represent the continued valuable collaboration between the NAI and the Irish Hospice Foundation to highlight awareness and promote the development of specialist responses to the palliative care needs of people with advancing neurological conditions.

NAI CONTRIBUTE TO EUROPEAN TOOLKIT FOR BUILDING NEUROLOGICAL ALLIANCES

The NAI was one of three European neurological alliances which were chosen to inform the development of the European Federation of Neurological Associations information guide to organisations interested in developing neurological alliance within their own countries.

Stronger Connected: A Guide to Building Neurological Alliances was launched in September 2014 and provides information on the value of neurological alliances as well as the challenge of agreeing and sustaining a common agenda, and securing funding in the longer term.

IRISH BRAIN COUNCIL COLLABORATION ON JOINT CONFERENCE ON BRAIN RESEARCH

NAI are members of the Irish Brain Council and worked closely with the council in the second half of the year to develop a joint conference on supporting and promoting Brain Research in Ireland which will be held in March 2015 as the keynote event for National Brain Awareness Week.

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NAI CAMPAIGN TO HAVE ITS SSNO FUNDING RESTORED IN 2014

The NAI made a comprehensive application for funding to the SSNO scheme advertised in early 2014 but all twelve neurological charities including NAI, already in receipt of the funding under a number of previous rounds, had their applications turned down. An emergency meeting of the Board in July 2014 concluded that NAI would have to lay off both its staff and effectively cease active operations by the end of the year unless funding was restored.

The success of the NAI in 2014 in mobilising an effective campaign, with the support of its members, to restore funding to organisations under the SSNO scheme provided a temporary reprieve for the organisation to the period up to June 2015. However, sustainable core funding to supports its activities continues to be a critical concern for the organisation going forward into 2015.

NAI ACHIEVED COMPLIANCE WITH GOVERNANCE CODE

NAI achieved compliance with the Governance Code in August 2014 following a two year workplan to achieve compliance across the range of areas required by the Code. Securing registration as an organisation which is fully compliant with the code represents an important achievement for the NAI in terms of recognition as an organisation meeting a high standard in terms of good governance and accountability. Compliance with the code is increasingly a requirement when applying for or continuing to receive public sector funding in Ireland.

MOVING FORWARD IN 2014 IN MAKING THE NAI A SUSTAINABLE ORGANISATION THROUGH SECURING ONGOING CORE AND PROJECT FUNDING

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As highlighted in the foreword to this annual report, 2014 was an extremely challenging year which led to critical uncertainty when SSNO funding was withdrawn and bridging funding (temporarily) restored. Nevertheless stringent budgeting and sound financial management including diversification of funding sources ensured that sufficient income was available to meet our annual objectives. Overall income was increased in 2014 from 2013 levels but expenditure was carefully managed given the uncertainty surrounding core funding into 2015. The board have developed contingency plans to address this continued uncertainty beyond the period of bridging funding in June 2015 and at year end the organisation maintained reserves of €75,000.

NAI FINANCIAL REPORT 2014

NAI FINANCIAL REPORT 2014

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2014

NAI Financial Report 2014

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2014

Unrestricted General Funds

Restricted Funds Other

Restricted Funds CRAGA

Total 2014

Total 2013

€ € € € € INCOMING RESOURCES Grants – Restricted – CRAGA - - 49,737 49,737 56,520 Membership fees 4,700 - - 4,700 3,882 Other Income – Unrestricted donations 29,887 - - 29,887 15,184 Total Incoming Resources 34,587 - 49,737 84,324 75,526 ADMINISTRATION COSTS 34,587 - 53,955 88,542 98,245 TOTAL EXPENSES 34,587 - 53,955 88,542 98,245 NET RESOURCES - - (4,218) (4,218) (22,719)

BALANCE SHEET AS AT 31 DECEMBER 2014

2014 2013

€ €

FIXED ASSETS

Tangible assets 433 649

CURRENT ASSETS

Debtors 13,327 370

Cash at bank in hand 107,627 84,770

120, 954 85, 140

CREDITORS

(amount falling due within one year) (46,972) (7,156)

NET CURRENT ASSETS 73,982 77,984

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2014 CONTINUED

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NAI FINANCIAL REPORT 2014

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2014 CONTINUED

TOTAL ASSETS LESS CURRENT LIABILITIES 74,145 78,633

RESERVES 74,145 78,633

(accumulated surplus)

TOTAL ACCUMULATED FUNDS 74,415 78,633

NAI Financial Report 2014

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2014

Unrestricted General Funds

Restricted Funds Other

Restricted Funds CRAGA

Total 2014

Total 2013

€ € € € € INCOMING RESOURCES Grants – Restricted – CRAGA - - 49,737 49,737 56,520 Membership fees 4,700 - - 4,700 3,882 Other Income – Unrestricted donations 29,887 - - 29,887 15,184 Total Incoming Resources 34,587 - 49,737 84,324 75,526 ADMINISTRATION COSTS 34,587 - 53,955 88,542 98,245 TOTAL EXPENSES 34,587 - 53,955 88,542 98,245 NET RESOURCES - - (4,218) (4,218) (22,719)

BALANCE SHEET AS AT 31 DECEMBER 2014

2014 2013

€ €

FIXED ASSETS

Tangible assets 433 649

CURRENT ASSETS

Debtors 13,327 370

Cash at bank in hand 107,627 84,770

120, 954 85, 140

CREDITORS

(amount falling due within one year) (46,972) (7,156)

NET CURRENT ASSETS 73,982 77,984

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NAI BOARD

The Board of NAI is made up of members of the umbrella.

Chair: Ava Battles MS Ireland

Vice Chair: Shona Logan King The Rehab Group

Treasurer: Peter Murphy Epilepsy Ireland

Honorary Secretary: Richard Stables Headway

Aisling Farrell: Irish Motor Neurone Disease Association

Mary Fox: Enable Ireland

Dr Andrea Higgins: Bloomfield Health Services

Grainne McGettrick: Acquired Brain Injury Ireland

Chris Macey: Irish Heart Foundation

Clair Kelly: Muscular Dystrophy Ireland

NAI STAFF

Magdalen Rogers: NAI Development Manager

Sinead Bradley: Administrative Assistant and Communications and Events Officer.

OUR PEOPLE

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NAI MEMBER ORGANISATIONS

FULL MEMBERSAcquired Brain injury Ireland

Alzheimer Society of Ireland

Aphasia Ireland

Aware

Bloomfield Health Services

Cheshire Ireland

Chronic Pain Ireland

Dystonia Ireland

Enable Ireland

Epilepsy Ireland

Friedrich’s Ataxia Association of Ireland

Headway

Huntington’s Disease Association of Ireland

Irish Heart Foundation

Irish Hospice Foundation

Irish Motor Neurone Disease Association

Migraine Association of Ireland

Move4Parkinsons

Multiple Sclerosis Society of Ireland

Muscular Dystrophy Ireland

Neurofibromatosis Association of Ireland

North West MS Therapy Centre

Parkinson’s Association of Ireland

Post-Polio Support group

Syringomyelia Support group of Ireland

Spinal Injuries Ireland

Spina Bifida Hydrocephalus Ireland

The Rehab Group

ASSOCIATE MEMBERSBrain Tumour Ireland

PSPA Ireland

Irish Association of Speech and Language Therapists

Irish Institute of Clinical Neurosciences

Myaware

Irish Society of Physicians in Geriatric Medicine