2017ANNUAL REPORT

THE ARC OF MADISON CORTLAND GUIDING PRINCIPLES

The Arc of Madison Cortland‘s sole purpose lies in the support of people with special needs…

PEOPLE COME FIRST

At The Arc of Madison Cortland, all people are valued and productive members of society and must be

treated with dignity and respect…

WE RESPECT EACH OTHER

The Arc of Madison Cortland constantly adapts to the unique

and varying needs of each individual…

WE ENCOURAGE CREATIVITY

At The Arc of Madison Cortland, growth is a life long process,

and hope for the future is vital to that growth…

WE NEVER STOP LEARNING

The Arc of Madison Cortland contributes to and receives from our public resources…

WE ARE A PART OF THE COMMUNITY

At The Arc of Madison Cortland, people are supported, appreciated,

and aware that everyone’s role is important…

WE ARE A TEAM!

Jack CampbellExecutive Director

WE MUST EMBRACE THESE CHANGES WITH A HEAVY DOSE

OF ADVOCACY TO ENSURE THAT WHAT WE HAVE WILL

NOT BE LOST AND WHAT WE NEED CAN BE CREATED.

A N N U A L R E P O R T | 3

A MESSAGE FROM THEEXECUTIVE DIRECTORAfter more than 40 years of working at The Arc and in this field, I’m amazed at how quickly the current environment is changing. Recently, someone used the analogy that trying to manage the changes at the Office for People with Developmental Disabilities (OPWDD), and the Federal Government is like managing quicksand. I won’t disagree with that assertion, and I will take it one step further. If you are a family member or person in need of supports and services, you are trying to access services in a new and challenging environment. Additionally, it has challenges created by the government all in the name of providing better services at a lower cost. What we see happening in the Intel-lectual and Developmental Disability (I/DD) system is a transformation of the legacy supports like traditional residential and day supports to a more person-centered truly integrated system of services and supports.

In 2017 we witnessed the growth of Self-Direction, which encompasses Fiscal Intermediary and Broker Services. In addition, Madison County funded a community-based connection with The Arc and Madison-Oneida BOCES with its nine component school districts. This opened the door for us to focus our efforts on transitioning students out of school into adult services with a Roadway to Employment program.

The significant change that is currently being imposed upon our field is the transition of Medicaid Service Coordi-nation (MSC) to Care Coordination. Care Coordination now incorporates the long-term care supports of habilitative services that we are accustomed to with the rehabilitative and primary/specialty care supports that are accessed through the NYS Department of Health. This change and migration from the tradi-

tional supports that OPWDD has been primarily responsible for over 35 years opens the door for New York State to put all services and supports under the 1115 Waiver Program with the federal government. This is consistent with what other states are currently doing. Care Coordination now falls under the auspice of the New York State Depart-ment of Health (NYDOH), not the Office for People With Developmental Disabilities (OPWDD). This is a major step toward Managed Care in the field of Intellectual and Developmental Disabilities (I/DD). Nine Arc chapters and three independent providers of I/DD formed a new entity called Care Partners of Central New York. This entity was formed in response to the changes that are taking place toward Care Coordination and Managed Care.

We are one of the twelve member organizations that have aligned with LIFEPlan Care Coordination Organiza-tion (CCO). LIFEPlan is one of seven CCOs formed in New York State by voluntary providers to orchestrate the MSC to Care Coordination transition. Care Partners of Central New York, the twelve local agency organizations, believes that collectively their partnership of providers can advocate, from a grass-roots level, best for families and people needing support. We also believe that

we can best work with a large managed care organization providing a diverse network of services and supports in a large geographic footprint that spans from the North County to the Southern Tier and across Central New York.

Change and transition are always very difficult, especially for those directly impacted by the change. We experience change through the course of our lives. When we graduate from high school or college, when we get married and when we have children are all examples of life-changing events that we embrace. At the risk of sounding too Pollyanna, the system transformations that I have just described are also life-changing events.

Ultimately, The Arc of Madison Cortland has set a course to work with families, people we support, and stakeholders in the community to work toward a system-wide transformation that will continue to provide a diverse array of person-centered supports and services.

PERSONS SERVED:

100148229869

188428197132

Residential Services (IRA)

Habilitation Programs & Services

Employment & Vocational Services

Article 16 Clinic Services

Family Support Services

Medicaid ServiceCoordination, FI, & Brokerage

Respite Services

Transportation Services

Our Team:

327

107

Full-time

Part-time

Article 16 Clinics

Service Coordination

Alternatives VocationalServices

Community and FamilyServices

Residential Services

Workcenter

Waiver Services

Other

OPERATING EXPENSES

$22,460,564

Article 16 Clinics

Service Coordination

Alternatives VocationalServices

Community and FamilyServices

Residential Services

Workcenter

Waiver Services

Other

OPERATING REVENUES

$22,440,098

4 | A N N U A L R E P O R T

A MESSAGE FROM THEARC BOARD PRESIDENTAs President of the Board of Directors of The Arc of Madison Cortland, I have a unique perspective of the changes that are occurring before us. Also in my role as chair of the Legal Committee of The Arc of New York, I have also had the ability to advocate in several ways from both a chapter perspective and The Arc of New York perspective. I am so proud of the accomplishments this chapter has been able to maintain in the face of a changing and trans-formative environment. Even with the challenges associated with rate rationalization, transitions of MSC to Care Coordina-tion, along with residential waitlists, our chapter has remained strong through it all, with advocacy and making our voices heard.

The Arc of New York along with a number of other provider associa-tions (NY Alliance, Upstate Cerebral Palsy, LIA, etc.) are preparing legal actions on behalf of people we support and their families. We intend on finding common ground with New York State on issues like residential waitlists and developing new traditional residential home opportunities. If a family or person we support needs traditional supports and services, the Office for People with Developmental Disabilities (OPWDD) and New York State Department of Health (NYDOH) are obligated to respond and provide for that. If the family or person in need of supports and services needs nontraditional supports and services, or as OPWDD character-izes it, “transformational services” like self-direction, then they need to fund that adequately.

As advocates working with support organizations, we must speak loudly and clearly to get the message to New York State that any less than what a family needs is unacceptable. All of this translates to our most precious resource in supporting people and families, the Direct Support Professionals (DSPs). For too long New York State has taken the DSPs for granted. We won an important battle with the bFair2Di-rectCare Campaign, but we have not won the war. Our advocacy for DSPs must continue over the next four years to force New York State to bring DSPs to a living wage. There is no reason that New York State DSP employees should be earning 33% more than DSPs in nonprofit agencies like The Arc of Madison Cortland who perform the same exact job duties.

I pledge that in my dual roles at the Madison Cortland Chapter and The Arc of New York that I will spearhead this advocacy. More importantly, no one person can do it alone.

Randy Schaal,President, The Arc of Madison Cortland

Board of Directors

The Arc of Madison Cortland Board of Directors:

Randy Schaal - PresidentCharles Stevens - Vice PresidentGary Gibbons - Vice PresidentJoseph Zifchock - TreasurerDeborah McGowan - SecretaryMelinda BoweDiane BrownMaureen LouisCynthia RoachEdward Scoville, Sr.

Directors Emeritus:David LewisEdward ShivePhyllis LittleEric Stickels

Executive Director:Jack C. Campbell

Assistant Executive Director of Quality, Compliance & Programs:Barbara McDermott

Assistant Executive Director of Business/CFO:Perry J. Courto

Building Futures Foundation Board of Directors:

Brett Zielasko - President & ChairCharles Stevens - Vice President & Vice ChairMichael West - TreasurerKelly Karram - SecretaryJames BetroJack C. CampbellBrian HurleyDouglas KalletRaymond LewandowskiCarol NeveuEric Stickels

WE ALL MUST RAISE OUR

VOICES TO MAKE A DIFFERENCE

FOR THE FAMILIES, PEOPLE WE

SUPPORT, AND ALL OF OUR

EMPLOYEES.

A N N U A L R E P O R T | 5

6 | A N N U A L R E P O R T

FEBRUARY bFair2DirectCare Advocacy – The Arc of Madison Cortland participated with board members, self-advocates and partner organizations in advocating in Albany with our legislators to demand living wages for the DSPs that work tirelessly to provide exceptional care.Sensory Room - Cortland day hab program develops a new relaxation room.

APRIL Spring 2017 SANYS U - The School of Grassroots Advocacy in New York State provides self-advocates and their support staff an engaging curriculum that is designed to show individuals with disabilities and direct support professionals the importance of self-advocacy and help develop future leaders for the self-advocacy movement.

JUNE Community Service Awards –The Arc of Madison Cortland congratulates Meredith Mertens for winning the Floyd Bennett Advocacy Award.New Large Bus –The transportation department applied for the NYSDOT 5310 grant to fund one large bus

JANUARY NYSARC Trust Recreation and Guardianship Grants awarded – The NYSARC Trust Recreation Grant provided a variety of experiences to more than 200 individuals in 2016. The agency’s person-centered philosophy was realized with this grant as people had many trip options to choose from.

MARCH Advocacy Victory - Governor Cuomo joined the coalition’s rally in Albany to announce his support of bFair2DirectCare. He has surpassed our request of $45 million by committing to provide $55 in the budget! Direct Support Professionals received a base salary increase of 6.5% in 2018!

MAY Ribbon Cutting Ceremonies & Building Dedication – The Ribbon Cutting Ceremonies for both 165 Main Street and 634 Birchwood Drive took place on May 31st and included a building dedication to former Executive Director, Raymond Lewandowski. Cortland Article 16 Clinic - The Article 16 Clinic in Cortland moved from the JM Murray Center to The Arc of Madison Cortland’s 16 Crawford St. facility in Cortland.

AUGUST The Arc of Madison Cortland Launches New Commercial - Spectrum was at The Arc August 21st to video the new commercial.LIFEPlan - In coordination with other agencies, LIFEPlan is approved as our Care Coordination Organization.

OCTOBER Working with BOCES - The Arc and Madison-Oneida BOCES with 9 school districts focus efforts on students transitioning out of school to adult services with a Roadway to Employment program.NYSARC became The Arc of New York - We joined 700 state and local Chapters across the country who brand with @TheArcUS to strengthen our collective voice.

DECEMBER Workforce Transformation Plan Approved – An integrated workforce was approved and applied at Alternatives Industry. New Program - The Office For the Aging approved an adult respite program and Fidelis approved a social model day program at 165 Main Street.

JULY Madison County ADA Celebration with Matt Hamill, UFC Mixed Martial Artist – The 27th Annual ADA Celebration was held on July 27th at the Kallet Civic Center, Oneida. Journey Along the Erie Canal - A 12-day bike ride along the beautiful Erie Canalway trail to raise awareness for the benefit of employment for all New Yorkers and to raise funds toward building employment opportunities and empowering people with disabilities.

SEPTEMBER OPWDD 2017 Works for Me Awards Ceremony - WSYR News Channel 9 who employs Richard Lamb from The Arc of Madison Cortland, was selected as a 2017 Works For Me 2nd place winner.NYSRA Annual Awards - Our very own superstar Michelle Wolfe was nominated and received the Thomas A. Maul Self Advocacy Award September 28th.

NOVEMBER Transition to Caregiving Organi-zation Medicaid Service Coordination (MSC), Self-direction and Fiscal Intermediary prepare for the transition of MSC to Care Coordination Organi-zation (CCO). A Night of Bourbon and Bidding 2017 – Our 2nd annual fundraising gala was held at Vernon Downs on November 4th. The live and silent auctions raised more than $40,000!

2017 MILESTONES

SOCIAL MEDIA STATS IN 2017:

211 New Facebook page likes 7,565 Facebook likes on our content

10,416 Video views on Facebook Facebook fans from 20 different countries around the World

Comments on Facebook1,005

A N N U A L R E P O R T | 7

The Building Futures Foundation exists for one increasingly important reason: to raise money through philanthropic gifts from our community and compassionate donors like yourself, who want to ensure that people with developmental disabilities live a happy and healthy life within their community. We are dedicated to following the guiding principles of The Arc of Madison Cortland and allocate founda-tion resources to fund programs and services that may not otherwise be funded due to reductions in government funding and other financial hardships. That mission sounds simple however with the current landscape that The Arc of Madison Cortland has to operate in, it has become more and more difficult to achieve this. Despite these challenges, Building Futures Foundation is more dedicated than ever to fight the good fight and ensure that critical programs and services continue to enrich the lives of those with special needs and their families. Whether our Foundation is providing financial support to send the Madison County Motivators to the Self Advocacy Association of New York State’s annual conference

in Albany, or funding for the performances of the Sunshine Choir, Wind Dancers, and Mighty Fortress Dance Groups, we understand the far-reaching positive effects that these activities have on The Arc of Madison Cortland, the people we support and their families. It is for this reason that the Building Futures Foundation exists, and for this reason that your generosity is more important than ever before. On behalf of the Building Futures Foundation, we thank you for your contributions and pledge to continue fighting alongside self-advocates and their families and those who can’t always fight for themselves.

Total Revenue: $65,007Total Expenses: $25,241

A MESSAGE FROM THEBFF BOARD PRESIDENT

Brent Zielasko,President, Building Futures

Foundation Board of Directors