Anthony Nolan Donor Recruitment Guide

8/6/2019 Anthony Nolan Donor Recruitment Guide

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DONORRECRUITMENTGUIDE


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YOUR

CHANCETO SAVE

A LIFE


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Every single day, children and adults are

diagnosed with lie-threatening blood

diseases like leukaemia. For many, the only

thing that can save them is a transplant

o stem cells rom a healthy donor.

But theres a catch. The donation has to

come rom a person who has the same

tissue type as the patient. They could be

anywhere in the world, rom any country

and come rom any background could

you be that person?

Help us save lives by joining theAnthony Nolan Register so i that

somebody needs you, you can be the

person to give them the hope o lie.

Be a match, save a lie.


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COULD I

BECOME ADONOR?

If you had the

chance to save

someones lIfe, why

wouldnt you do It?James Marsh, stem cell donor


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l Are you aed 18-40?

l Are you in ood health?

l Do you weih at least 8st?

l Do you live in the UK and plan to stay hereor at least the next three years?

l I you were one day ound to be a match,could you take a ew days o work to cometo a clinic in London to donate (all reasonableout-o-pocket expenses are covered)?

l Will you commit to stayin on the AnthonyNolan Reister until you are 60?

l Are you prepared to donate anonymously toany patient, anywhere in the world?

We have over 400,000 potential donors on ourreister but we still only nd matches or halo patients who need a transplant. I you cananswer yes to all o the ollowin, then please

do somethin antastic and join our reister.

Our top priority is always the health o ourdonors. For this reason there are certainhealth issues that can prevent you romjoinin. For more inormation visitwww.anthonynolan.or or call to speak tosomebody condentially on 0303 303 0303 oremail [email protected]


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I feel proud of

what Ive done. It

was really sImple

and Id do It agaIn.Alex Flint, stem cell donor

HOW DO IJOIN THE

REGISTER?


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Its easy to join our reister and become apotential donor. But its still somethin youneed to think about. Chanin yourmind ater youre asked to donate could

be devastatin or the person relyin ona donation to save their lie.

HOW TO JOIN:

1 Talk throuh your decision with your

amily and riends. They can help youdecide i its somethin you really want todo. It also means that it wont come as asurprise to them i youre asked to donate.

2 Complete an application orm. You cando this in one o three ways: a) onlineat www.anthonynolan.or b) by phone

on 0303 303 0303 or c) at one o ourRecruitment Events held across the UK

3 Use one o our saliva kits to spit in.This will tell our medical sta back at thelaboratory what tissue type you are.

4 Thats it! Once your tissue type has been

identied, well et in touch to let youknow youre on the reister and ready topotentially save the lie o a person with alie-threatenin illness

Find out where your next local RecruitmentEvent is bein held or complete an onlineapplication orm at www.anthonynolan.or


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they saId I was a match

and would I donate?

I really looked

forward to It.Matt Davies, stem cell donor

WHAT

HAPPENS IFI'M ASKED TO

DONATE?


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Many o our previous donors say they eltnervous and excited when they ot the call.For them, the best part was knowin theycould be the one to save a persons lie.

Heres what will happen i its you:

Beore you donate well take blood samplesto conrm i you really are a match. Youll thenbe iven a ull medical examination to makesure youre ready.

Choosing how you donate

Youll have a choice o two methodsalthouh you should be willin to donateusin either.

Peripheral blood stem cell collection donating through a vein in your arm

What happens?

A nurse will come to your home or oceto ive you injections over three days.These injections help your body produceand release stem cells into your blood.Youll then come to a hospital in Londonto make the donation but you wont needan overniht hospital stay or a eneralanaesthetic. Your blood is taken throuh atiny tube in your arm, and the cells aredonated by passin the blood throuh amachine. Side eects can include fu-likesymptoms and achin but theyre usuallymild and last just a couple o days.


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Bone marrow donation donating stemcells taken rom bone marrow in the pelvis.What happens?

Youll come to a hospital in London whereyoull spend two nihts. Youll be iven aeneral anaesthetic and doctors will takesome o your bone marrow rom your pelvisusin a needle and syrine. Youll probablyexperience tiredness and a little bruisinaterwards but this enerally passes ater

about a week.

How will you eel aterwards?

Our donors oten tell us that the side eectslast a ew days, but the pride at havinhelped save a lie stays with them orever.we will reimburse all reasonable out-o-

pocket expenses includin payin or andarranin all travel and accommodationrequirements. For more details call0303 303 0303.


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'I HAD SUCH

gOOD SUPPORTTHAT I HADNO DOUBTS.DONATINg WAS

PAINLESS, AT THEMOST A SLIgHTDISCOMFORT.'Sabina Raza, stem cell donor


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WHY WENEED YOU

By the time youve nishedreadin this, someone, somewhere,

will have been dianosed witha lie-threatenin blood or bone

marrow disease. But how does atransplant o stem cells help?


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Bone marrow is spony tissue ound insideour bones. It produces vital stem cells. Stemcells in turn produce red blood cells, whichcarry oxyen around the body; white blood

cells, which ht inection; and platelets,which help stop bleedin. I bone marrowis damaed or destroyed by a disease andits subsequent treatment, it can have acatastrophic eect on the body.

A transplant o healthy stem cells rom a

matchin donor is oten the last hope ormany people with this type o disease.The stem cells are injected into the patientsblood stream where they bein to producenew blood cells.

For the transplant to work, the donorneeds to be a close match with the person

receivin their stem cells.

While some people will fnd that matchwithin their amily, nearly three-quarters arelet desperately searching to fnd a match ina stranger. They rely on us to nd that match.We rely on people like you to join our reister

and help save more lives.Every year, around 1,400 people turnto Anthony Nolan to fnd a donor topotentially save their lie. Were able tomatch around hal with a suitable donor.

Hal is not enouh. The only way we etmore matches is to et more people on ourreister. We urently need your help.

This could be your chance to save a lie.


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PERIPHERALBLOOD STEMCELL (PBSC)COLLECTION

POTENTIAL RISKS OF THE DONATION

Side eects may include mild fu-like symptomssuch as headaches, and muscle and bone painwhich are normally alleviated by a non-aspirincontainin medication. Symptoms usuallydisappear within 24 hours o the last injection.


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Blood stem cells are also ound in the bloodstream (peripheral blood), but in muchsmaller numbers.

On consecutive days, donors receive threeo the 4 day series o injections o syntheticrowth actor (g-CSF) at work or at homeiven by a trained nurse. This rowth actorstimulates production and movement oblood stem cells to the peripheral blood.

Youll have the ourth course o injections inLondon the day beore the rst collection.

A needle is inserted into veins in each o

your arms and the blood is passed throuha leucapheresis machine which removes whiteblood cells and a small amount o plasma only.Youll undero this procedure as an outpatient(4-5 hours total in a London hospital).

There may be one or two collections onsuccessive days. I a second collectionis required this will involve 4-5 hours inhospital on the second day.

Usually, youre able to resume normalactivities ater two days.

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POTENTIAL RISKS OF THE DONATION

l inection, or injury at the needle insertion sites

l adverse reaction to the eneral anaesthetic

All risks are very rare.

BONEMARROWHARVEST


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Blood stem cells are produced in bonemarrow which is ound in the centre o alllare bones.

Youll be iven a eneral anaesthetic. Bonemarrow is withdrawn rom the centre othe pelvic bone usin a sterile needle andsyrine.

Youll spend two nihts in a London hospitaland are able to return home 24 hours aterdonatin.

Short term eects may include tiredness,localised discomort in the lower backand bruisin.

Usually, youre able to resume normalactivities ater two days.

We ask you to have a ull blood count our

weeks ater donation to ensure normal levelshave returned. The bone marrow cells willreplace themselves within weeks.

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JoInIng the regIster took

lIttle consIderatIon once

I knew the Impact It could

have on somebodys lIfe.Derek Amoako, donor

ABOUT

ANTHONYNOLAN


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Anthony Nolan was set up in

1974 by Shirley Nolan, to fnd a

bone marrow donor or her son

Anthony. Sadly, Anthony diedaged seven without a donor being

ound. However, the unique work

o Anthony Nolan has continued,

fnding liesaving matches or over

5,000 patients with leukaemia

That wouldnt have been

possible without our donors and

supporters. To fnd out how

you can help, visitwww.anthonynolan.orgor call 0303 303 0303

Data protection

Any inormation you ive us will be treatedas strictly condential, in accordance withthe Data Protection Act 1998.

For more inormation, visit our websitewww.anthonynolan.or


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FREQUENTLY

ASKEDQUESTIONS


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Q:w I ii i i ? (pi

(pbsc) )?

A: Most health conditions requirin blood stemcell transplantation benet more rom receivinPBSC while a ew respond better to bone marrow.

Q:I i i?

A: Its not as bad as many people think. PBSC donorsusually have fu-like symptoms while they are

ettin the injections to stimulate their productiono stem cells. These will usually o away within24 hours o the last injection. Ater bone marrowharvests, short term lower back discomortis common.

Q:w i i ?

A: Your donation o stem cells will be inused intothe recipients blood stream the same day youdonate. I the recipients body accepts them, thestem cells will start producin healthy blood cells.This will allow the body to do liesavin thins likecarry oxyen round the body and ht inection.

Please note, as Anthony Nolan is linked to otherreisters around the world, your donation could besent to a patient in need abroad.

Q: I I , i i ?

A: The body beins to replace the stems cells

immediately with levels returnin to normal ateran averae o 21 days.


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Q: I 41 . w I ji i?

A: It costs at least 125 to add each person to ourreister. It can take many years or a person to beidentied as a match but we have to remove themwhen they reach the ae o 60. We need to makesure that our potential donors can stay on thereister or as lon as possible. I you would liketo support us today please consider completina direct debit orm to ive 5 a month and youllhelp us save more lives across the UK. Other ways

to support Anthony Nolan include volunteerinor undraisin which is ound online atwww.anthonynolan.or.

Q:I I , i I ?

A: No, both you and the person you are helpin

will remain anonymous. This makes sure no oneeels under pressure. For two years ater theprocedure, you will be able to contact the personyou donated to and they will be able to contactyou, but only throuh messaes sent via our team.Ater two years, and only i both o you aree, youcan exchane contact details.

Q:w i ?

A: Men tend to be bier and produce more stemcells than women, makin them preerred donors.Almost three-quarters o our donors are men, but

men count or less than hal o those on the reister.This is why we urently need to recruit more.


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Q:w i ii i?

A: The best match is most likely to come romsomeone o the same ethnic roup. The number opeople rom black and ethnic minority backroundson our reister are nowhere near enouh to savethe lives o those who need transplants.

Q:I I i a n ri?

A: No it does not. Even i you are an oran orblood donor, you will still need to o throuh theAnthony Nolan donor recruitment process to jointhe reister.

Q:d I ?

A: No. Unlike oran donation, we can only takestem cell donations while the donor is still alive.


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HELP US

SAVE LIVESIN OTHER

WAYS

'helpIng a famIly

who were tryIng

to save theIr dad?

It was lIfe-changIng.'Juliette Kelvin, stem cell donor


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By joinin our donor reister you

could be a liesaver. And i youcould help us by ivin a direct

debit to Anthony Nolan then wecan save more lives across theUK. I you provide a match or

a person in need, you will havedone a truly remarkable thin.

I you are not a match this time,by sinin up to a direct debito 5 per month, you could help

us nd the person who is.

To support us in this waycomplete the direct debit sectionat the end o the application

orm or visitwww.anthonynolan.org/

donatenow


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India Farmer, received a stem cell transplant

'I CANT THANK INDIASDONOR ENOUgH.

THE SIMPLE ACT OFJOININg THE REgISTERSAVED HER LIFE.'mum, Jo Farmer


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2-3 Heathate PlaceLondon NW3 2NU

0303 303 0303

Portrait photoraphyby Nick David.

The Anthony Nolan Trustis a reistered charity

no 803716/SC038827

Documents

Anthony Nolan Donor Recruitment Guide