Awni MusharbashMD

Associate Professor

Ibn-alhaytham amp KHCC

Amman-Jordan

1st PAPNS 23-25 Nov 2015 Riyadh

Jordan Population 8 million

50 below age of 25 years of age

22 Universities

4 medical schools

8 nursing schools

1 school of rehabilitation sciences

gt100 Hospitals

Neurosurgery in Jordan 1962 Dr Anton Tarazi (Canadian trained)

1969 Dr Ahmed Hania Dr Tawfiq abu rub

1973 Dr ishaq Maraqa (KHMC)

1975 Dr Sartawi (Canadian Trained)

1977 Prof Maani (Jordan University)

1983 1st Residency program in NS at JU

-Now Six-

Prof Maani lecture

Almost 60 Neurosurgeons (80) are working in the 4 different medical sectors in Jordan

4 Pediatric Neurosurgeons ( fellowship and training in Pediatric neurosurgery) till now

In 1999 pediatric neurosurgery started to be independent from general Neurosurgery as a subspecialty at JUH

Pediatric NeurosurgeryPrehistoric man trephined skulls to release evil

spirits from within

The field of neurosurgery has evolved significantly

especially in the past few decades not least of which is

Paediatric Neurosurgery

Child Nerv Syst 200016809

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Jordan Population 8 million

50 below age of 25 years of age

22 Universities

4 medical schools

8 nursing schools

1 school of rehabilitation sciences

gt100 Hospitals

Neurosurgery in Jordan 1962 Dr Anton Tarazi (Canadian trained)

1969 Dr Ahmed Hania Dr Tawfiq abu rub

1973 Dr ishaq Maraqa (KHMC)

1975 Dr Sartawi (Canadian Trained)

1977 Prof Maani (Jordan University)

1983 1st Residency program in NS at JU

-Now Six-

Prof Maani lecture

Almost 60 Neurosurgeons (80) are working in the 4 different medical sectors in Jordan

4 Pediatric Neurosurgeons ( fellowship and training in Pediatric neurosurgery) till now

In 1999 pediatric neurosurgery started to be independent from general Neurosurgery as a subspecialty at JUH

Pediatric NeurosurgeryPrehistoric man trephined skulls to release evil

spirits from within

The field of neurosurgery has evolved significantly

especially in the past few decades not least of which is

Paediatric Neurosurgery

Child Nerv Syst 200016809

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Neurosurgery in Jordan 1962 Dr Anton Tarazi (Canadian trained)

1969 Dr Ahmed Hania Dr Tawfiq abu rub

1973 Dr ishaq Maraqa (KHMC)

1975 Dr Sartawi (Canadian Trained)

1977 Prof Maani (Jordan University)

1983 1st Residency program in NS at JU

-Now Six-

Prof Maani lecture

Almost 60 Neurosurgeons (80) are working in the 4 different medical sectors in Jordan

4 Pediatric Neurosurgeons ( fellowship and training in Pediatric neurosurgery) till now

In 1999 pediatric neurosurgery started to be independent from general Neurosurgery as a subspecialty at JUH

Pediatric NeurosurgeryPrehistoric man trephined skulls to release evil

spirits from within

The field of neurosurgery has evolved significantly

especially in the past few decades not least of which is

Paediatric Neurosurgery

Child Nerv Syst 200016809

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Almost 60 Neurosurgeons (80) are working in the 4 different medical sectors in Jordan

4 Pediatric Neurosurgeons ( fellowship and training in Pediatric neurosurgery) till now

In 1999 pediatric neurosurgery started to be independent from general Neurosurgery as a subspecialty at JUH

Pediatric NeurosurgeryPrehistoric man trephined skulls to release evil

spirits from within

The field of neurosurgery has evolved significantly

especially in the past few decades not least of which is

Paediatric Neurosurgery

Child Nerv Syst 200016809

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric NeurosurgeryPrehistoric man trephined skulls to release evil

spirits from within

The field of neurosurgery has evolved significantly

especially in the past few decades not least of which is

Paediatric Neurosurgery

Child Nerv Syst 200016809

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Development

Neuroanasthesia

Neuroimaging

Neuromonitoring

Neuromicroscopy

Neurosurgery 65a92009

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Do we need pediatric neurosurgeons

Outcomes under the care of pediatric subspecialty

regardless of discipline are better

Curr opinpediatr2005407

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

ISPNGoal and mission

To promote the health and welfare of children requiring neurosurgical care throughout the world

First meeting 1973 Japan

Child nerv syst 2010261256

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Evolution of pediatric neurosurgery

The evolution of the process by which pediatric neurosurgery is identified is quite different in the various countries

Depends on cultural environmental socioeconomic and the age distribution status of the population

Child nerv syst2010261256

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric Neurosurgical Carebull In advanced countries modern advanced adequate

and efficient

bull Newly industrialized countries modern and advanced in selected centres but inadequate and inefficient in general

bull Underdeveloped countries very limited

Child nerv syst2010261256

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric Neurosurgery As most of the countries in the region Pediatric neurosurgery used to be a

part of the general neurosurgical practice

Neurosurgeon with gt 60 of his work are patients lt 18 years is considered pediatric neurosurgeon

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric Neurosurgery Brain Development

Water content

Myelination

Blood volume

Autoregulation

Muscles of neck

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric neurosurgical pathologies Congenital anomalies

Craniofacial syndromes

Tumors

Hydrocephalus

Epilepsy

Vascular disease

Infections

Trauma

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

ControversiesType of shunt Endoscopy

Craniopharyngioma management

Chiasmatic ndashhypothalamic glioma

Tethered cord without untethering

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Spina bifida clinicPediatric Neurosurgeon

Pediatric Orthopedic

Pediatric Urologist

Pediatric Nephrologist

Nurses

Physio-OT

Social worker

Neuro Psychologist

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Epilepsy programmePediatric Neurologist

Pediatric Neurosurgeon

Pediatric Neuroanasthesia

Nurses

Social worker

Neuropsychology

Physio-OT-Speech

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric Neuro-oncology program

Pediatric Neurosurgeon

Neuro-oncologist

Neuropathologist

Radiation Oncologist

Neuroradiologist

Nurses

Psychiatrist

Social worker

Neuropsychology

Physio-OT-Speech

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

PatientNeurosurgeon Radiation

Oncologist

Key (players) for a paediatric neuro-oncology program

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Pediatric Neuro-oncology program was started in 2001

It is affiliated with The Hospital for Sick Children in Toronto

All cases operated upon or not are discussed in a monthly teleconference

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

National Cancer RegistryJCR is a population-based registry

Benign cases (behavior code 0) or borderline cases (behavior code 1) of CNS tumors were collected but not entered in the Cancer Registry and kept in special paper folder

IARC Yearly report last in 2011

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

The most frequent types of cancer by genderall agein Jordan

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Distribution of childhood cancers by agein Jordan

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

MethodsIRB approved study

JCR data (2001-2010) amp KHCC-CR (2007-2010)

1- Primary CNS tumors

2- lt 18 years at diagnosis

3- Tumor sites C70 71 72 75

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Results587 patients (59males)

Third were non-Jordanians

Of 388 Jordanians

-Male female 14

-Median age 71 yrs (range 02-178 yrs)

91 were C71 tumors

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

ResultsMedian follow up 53 years (range 0-14yrs)

67 were alive

388 Jordanians

178 patient (44) were diagnosed (2007-2010)

80 were ldquoseenrdquo at KHCC

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Future

-Establishment of a separate paediatric neurosurgical department (section) in all major hospitals

-Neurosurgical residents rotation not less than six months as part of their six years training

-Fellowship programmes in pediatric Neurosurgery amp to be recognized by a certified board

-Establish a Journal of Pediatric Neurosurgery by the society

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

educational activities

As part of ISPN -Yearly Arab Pediatric Neurosurgical Society meeting

Not only will enhance medical competence in medical knowledge and skills but also in

management team building professionalism interpersonal communication technology teaching and accountability

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Educational

Twinning programmes are encouraged

Every aspect of the patient and family centered care we provide - is carefully planned to accommodate all concerned

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Conclusions

Subspecialties should be our goal in neurosurgery as there is always a lot to learn and a lot to do

Pediatric multidisciplinary clinics and discussions are the base for success

Efficient Arab Pediatric Neurosurgical Society is mandatory to enhance better care of our kids

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

International journal of Cancer 2007Nov 5

Closing the survival gap Implementation of medulloblastoma protocols in a low-income country through a twinning program

Qaddoumi I Musharbash A Elayyan M Mansour A Al-Hussaini M Drake J

Swaidan M Bartels U Bouffet E

Future of Pediatric Neurosurgery is Promisingin our region

Thank you