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November 2018 1 Beth Barol,  PhD,  LSW,  BCB [email protected] November  2018 How do you identify here today? Direct supports including friends and family Agency Administrators Clinicians Teachers Governance

Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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Page 1: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

November 2018

1

Beth Barol, PhD, LSW, BCB

[email protected]

November 2018

How do you identify here today?

Direct supports including friends and family

Agency Administrators

Clinicians

Teachers

Governance

Page 2: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

November 2018

2

My Biography situating myself in the saga

Setting up the supporters

Eric

Ann

Ralphy

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3

Burnout

Disempowerment of others

Tying one’s sense of self to the progress of the person being ”suported”

Not ‘building the bench’

Not reaching out for supports

Not holding the community responsible for its share

Not sustainable

Multiple losses

“If we could read the secret history of our enemies, we should find in each man's life sorrow and suffering enough to disarm all hostility” Henry Wadsworth Longfellow 

Page 4: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

November 2018

4

Learning from Biographical Timelines – Pointing to Trauma

With thanks to Herb Lovett

Page 5: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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Being subjected to an experience you did not ask for, cannot stop, or escape from

Being subjected to an unusual (outside of the ordinary) experience (not uncommon)

Being subjected to a real or perceptual life threatening experience

The subjective experience that involves intense fear, helplessness, and horror

Being separated from family

Being moved from home

Disturbance of typical neurological pathways

Experiences of loss and unresolved grief

Being seen as “different”

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Trauma and traumatic responses underlie many of the behaviors that challenge us the most. 

Direct supporters are rarely trained on how to support people in recovering from trauma.

Agency decision‐making sometimes is incongruent with what we know about healing trauma. We accidentally make things worse.

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November 2018

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RECOVERY CAN ONLY TAKE PLACE IN THE CONTEXT OF RELATIONSHIPS; IT CAN NOT OCCUR IN ISOLATION. (JUDITH HERMAN)

There is great power in being with people, sitting quietly together, listening, and staying with them even when the person is very upset.

This all requires mutual trust.

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For some people their only hope for being seen, heard, and known is with the caregivers who come to their home everyday.

Those individuals who have the most challenging behavior need someone or hopefully more then one person to hang in there with them through all the ups and down.  These caregivers are Social Therapists.

Friends

Supervisors

Peers

Clinicans

Page 9: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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Strength of Internal SupportsStrength of Internal Supports

Strength of External SupportsStrength of External Supports

StrongStrong

WeakWeak

WeakWeak

StrongStrong

PTSDPTSD

Traumatic IncidentTraumatic Incident

ResilienceResilience

Training focused on regulations – med admin, documentation, restrictive procedures, etc.

Direct Supporters have little training in trauma and how it lives in a person’s physical body.

Page 10: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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Where do you go to decompress and sort things out?

How often are these opportunities available?

Trauma’s biological impact is the foundation for people’s emotions, thoughts, and actions.

Relationship between body and cognition.

Can make a difference by acting on body.

Page 11: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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The single most important issue for traumatized people is to find a sense of safety in their own bodies,

Bessel van der Kolk

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https://www.youtube.com/watch?v=mtRrxNTnyh8

Peter Levine’s video (3:50 min)

http://peterlevine.kajabi.com/fe/85661‐peter‐levine‐explains‐trauma

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November 2018

13

Many people we support have moments when they are overwhelmed, agitated, or quick to ignite into anger or withdrawal.

Many direct supporters feel powerless to help the person in a way that leads towards a calmer, happier life for all involved.

As supporters we can have our own trauma stories triggered in this work, and we can experience vicarious traumatization in the face of people’s behaviors and their unfolding stories.

Page 14: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

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The Parasympathetic Nervous System – Everyday Approaches

https://www.youtube.com/watch?v=Yda8RtOcVFU

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https://www.youtube.com/watch?v=VFKVVP8KXd4

BREATHINGYogaMeditationBiofeedbackNeurofeedbackArtConversations

Baths/ShowersExerciseGardeningMassageMusicDrummingPets

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Practice for the Social Therapist and the People they support: Constructing a meaningful life for everyone

Providing Safety

Creating meaningful daily life

Working with a “game plan” Valuing daily routines

Maximizing Self Esteem

Building real capacities

Page 17: Barol - Supporting the Supporters - Amazon S3...Trauma and traumatic responses underlie many of the behaviors that challenge us the most. Direct supporters are rarely trained on how

November 2018

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What do you do to have fun?

How often can you do it?

What can you do when you can’t do that and still have fun?

How many things can you think of that you could do with someone here, that is fun, rewarding, and helps the person grow, develop, and heal emotionally?

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“At the hands of a social therapist, every moment of a person’s life becomes rich with meaning. Trust is built, and root causes to challenging behaviors get figured out. Sometimes it takes years to help a person to fully recover; yet few people do fully recover without the support of committed people in their lives.” (Barol & Focht‐New, in press)

I have come to the conclusion that human beings are born with an innate capacity to triumph over trauma. I believe not only that trauma is curable, but that the healing process can be a catalyst for profound awakening—a portal opening to emotional and genuine spiritual transformation. I have little doubt that as individuals, families, communities, and even nations, we have the capacity to learn how to heal and prevent much of the damage done by trauma. In so doing, we will significantly increase our ability to achieve both our individual and collective dreams. (Peter Levine)

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Amen, D. (1998). Change your brain, change your life. New York: Three Rivers Press. 

Arnsten, A., Mazure, C. M., & Sinha, R. (2012). This is your brain in meltdown. (Cover story). Scientific American, 306(4), 48‐53.

Barol B. & Seubert, A. (2010). Stepping stones: EMDR treatment of Individuals with intellectual and developmental disabilities and challenging behavior. Journal of EMDR Practice and Research. 4(4), 156‐169.

Bloom, S. Sanctuary Model for Organizations: The Sanctuary Model represents a

Theory‐based, trauma‐informed, evidence‐supported, whole culture approach that has a clear and structured methodology for creating or changing an organizational culture.  www.sanctuaryweb.com

Childhood Trauma (Bruce Perry) www.childtrauma.org

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Fisher, S. (2014). Neurofeedback in the treatment of developmental trauma. New York, NY: Norton and Company.

Focht‐New, G., Clements, P.T., Barol, B., Service, K. & Faulkner, M. (2008). Persons With developmental disabilities exposed to interpersonal violence and crime:  Strategies and Guidance for assessment. Journal of Psychiatric Mental Health Nursing. 44(1), 3‐13.

Focht‐New, G., Barol, B., Clements, P.T., Faulkner, M. & Service, K. (2008). Persons with developmental disabilities exposed to interpersonal violence and crime:  Approaches for intervention (Part II of II). Journal of Psychiatric Mental Health Nursing. 44(2), 89‐98.

Hanson, R. (2009). Buddha’s brain: The practical neuroscience of happiness, love, & wisdom. Oakland CA: New Harbinger Publications, Inc.

Herman, J. L. (1997). Trauma and recovery – From domestic abuse to political terror. New York, NY: Basic Books. 

Levine, P.A. (1997.) Waking the tiger:  Healing trauma.  Berkley, CA:  North American Books.

Levine, P.A. (10 mins)https://www.youtube.com/watch?v=AFUZHz6_0XE&spfreload=10

Levine, P.A. (25 mins) – Ray’s Storyhttps://www.youtube.com/watch?v=bjeJC86RBgE&spfreload=10

Perry, B.D. (2009). Examining child maltreatment through a neurodevelopmental lens: Clinical applications of the neurosequential model of therapeutics. Journal of Loss and Trauma, 14, 240‐255

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Perry, B., & Szalavitz, M. (2006). The boy who was raised as a dog. New York, NY: Basic Books.

Perry, B. video (52 min) – Early Childhood Brain Development –https://www.youtube.com/watch?v=DXdBFFph2QQ&feature=em‐share_video_user

Perry, B. video (1 hour) –https://www.youtube.com/watch?v=M6kDeBaJi0M&feature=em‐share_video_user

Perry, B. (14 min)– Seven slides about the brainhttps://www.youtube.com/watch?v=uOsgDkeH52o&feature=em‐share_video_user

Rothschild, B. (2000). The body remembers: The psychophysiology of trauma and trauma treatment. New York, NY: Norton.

Siegel, D, (2010). Mindsight: The new science of personal transformation. New York: Random House.

Siegel, D. Mindfulness and neural integration: Trauma, brain, and relationship (17 min): http://www.youtube.com/watch?v=LiyaSr5aeho

van der Kolk, B. (2014). The body keeps the score. New York, NY: Viking.  ISBN: 978‐0‐670‐78593‐3

van der Kolk, B. Childhood Trauma, Affect Regulation and Borderline (1 hour): http://youtu.be/N2NTADxDuhA

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Judith Lewis Herman, Trauma and Recovery: The Aftermath of Violence ‐ From Domestic Abuse to Political Terror

Peter A. Levine. (n.d.). AZQuotes.com. Retrieved July 07, 2017, from AZQuotes.comWeb site: http://www.azquotes.com/author/46208‐Peter_A_Levine

(Bessel van der Kolk. (n.d.). AZQuotes.com. Retrieved July 07, 2017, http://www.azquotes.com/quote/878022)