Biomedical Research Data and Information: Recent Developments at NIH

Jerry SheehanNational Library of Medicine

Elaine CollierNational Center for Research Resources

National Institutes of Health

National Academies Board on Research Data and Information November 30, 2010, Washington, DC

Many ongoing activities of interest to BRDI

• Genomic Sequence Sharing Policy

• Genetic Testing Registry

• Clinical Trials Information

• Public Access Policy

And some recent announcements. . .

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NCRR Activities

• Enabling National Networking of Scientists and Resource Discovery– VIVO– Eagle-I

• CTSA Informatics

• BIRN

• Animal Resource information - LAMHDI

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Genetic test means an analysis of human DNA, RNA, chromosomes, proteins, or metabolites, if the analysis detects genotypes, mutations, or chromosomal changes. Genetic test does not include an analysis of proteins or metabolites that is directly related to a manifested disease, disorder, or pathological condition.

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NLM 175th Anniversary

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More information on data/ information sharing at NIH

NIH Data Sharing Policies http://sharing.nih.gov/

NIH Public Access Policy http://publicaccess.nih.gov/

NIH GWAS Policyhttp://grants.nih.gov/grants/gwas/

ClinicalTrials.govhttp://www.clinicaltrials.gov

National Library of Medicine National Center for Research Resourceshttp://www.nlm.nih.gov http://www.ncrr.nih.gov