Breast, Ovarian, Uterine or Metastatic Breast Cancer · 2020-05-15 · 7pm Lehigh Valley Ovarian Cancer Support Group 21 12pm New Treatment Options for Uterine Cancer Webinar 6pm

DEDICATED EXPERIENCED SUPPORT

s h a r e c a n c e r s u p p o r t . o r g

Free Services for Women Affected by

Breast, Ovarian, Uterine or Metastatic Breast Cancer

Helpline • Support GroupsEducation • Online Communities

LatinaSHARE (Servicios Gratis en Español)

844.ASK.SHARE844.275.7427

PROGRAM GUIDE MAY-JUNE 2020All Support Groups and Programming Now Available Online and/or by Phone

844.ASK.SHARE 1

A Note from our CEO:Dear Friend,

We are here to support you when you need us. SHARE provides empowering medical information and a community of understanding and knowledgeable

women who help you navigate the cancer experience. That is our reason for being!

As our new Program Guide goes to print, we are addressing the challenges of the Covid-19 pandemic. We know this situation is particularly stressful for those whose lives are affected by cancer, and you may have urgent questions. Please don’t hesitate to call our Helpline: 844.ASK.SHARE, and be sure to share our Help-line number with those who have been diagnosed (and their caregivers) who may be encouraged to learn of our services. Our volunteers and staff are ready to help!

As you will see in the coming pages, we are offering a full range of services that can be accessed online and by phone, so you can go to our programs from home during this period. From informative webinars, to exercise classes, to support groups, please explore whatever may be most helpful to you.

On an inspiring note, we are now welcoming those impacted by uterine/ endometrial cancers, as well as breast, metastatic and ovarian cancer to SHARE with a full range of services and events.

And now, I am excited to share our new program guide with you. We have dramatically updated the format, which we hope will make it easier for you to participate in our enriching and informative programs. This is your community and we invite you to be a part of everything we have to offer.

Please reach out to me at [email protected] to share your thoughts. We want our communications to be as easy-to-navigate and helpful for you as possible!

With warm regards,

Carol Evans

TABLE OF CONTENTSWelcome to SHARE ............................................................inside front cover

May Calendar ............................................................................................. 2-3

June Calendar ............................................................................................ 4-5

Introducing SHARE’s New Uterine/Endometrial Cancer Support Program!...... 6

When I Heard the Heart Shattering Words: “You Have Cancer.” .................. 7

Thank You to our Sponsors ............................................................................ 8

!Bienvenidos a LatinaSHARE! ........................................................................ 9

LatinaSHARE Calendario de mayo .........................................................10-11

LatinaSHARE Calendario de junio ..........................................................12-13

About SHARESHARE is a national nonprofit that supports, educates, and empowers women affected by breast, ovarian, uterine, or metastatic breast cancer, with a special focus on medically underserved communities. All of SHARE’s services are provided in both English and Spanish, including national Helplines in 20 languages, support groups, expert-led educational programs, clinical trial assistance, community outreach, online communities, corporate education, advocacy, caregiver support, and survivor-patient navigation. For more information please visit sharecancersupport.org.

SHARE on Social Media

SHARE日本語プログラムは現在、オンラインでのサポート・ミーティングを提供しています。通常のミーティングの時間に、スマホやコンピュータを使ってご参加いただくことが可能です。詳細は、ヘルプライン347−220−1110にお問い合わせいただくか、https://sharejp.org/support-meetingをごらんください。

4th Fridays, 12:30-2pmMay 22 and June 26 2nd Fridays, 6-7:30pm May 8 and June 12

SHARE Japanese Program

@SHARECancerSupport

@SHARELatina

@SHAREAAAProgram

@SHARECancerSupport

@LatinaSHARE

@SHAREing

During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only.

Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org.

sharecancersupport.org latina.sharecancersupport.org

2 sharecancersupport.org 844.ASK.SHARE 3

Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)

SUNDAY

3

10

5pm Riverdale Breast Cancer Support Group

17

24

MONDAY

12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 3pm Ask a Gyn-Onc Anything Online4pm Telephone MBC Support Group6pm DCIS Support Group 8:30pm Telephone Breast Cancer Support Group

4

12:30pm MBC Support Group 4pm Telephone MBC Support Group

11

12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm Uterine Cancer Support Group 8:30pm Telephone Breast Cancer Support Group

18

4pm Telephone MBC Support Group

25

TUESDAY

5pm Breast and Ovarian Cancer Support Group for Women of African Descent6pm Caregiver Support Group

5

3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group

12

4pm Breast and Ovarian Cancer Support Group for Women of African Descent

19

3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group

26

WEDNESDAY

6pm Newly Diagnosed Ovarian Cancer Support Group 8pm Video MBC Support Group for Young Women

6

1pm Topic-Driven Round Table on Ovarian Cancer Online6pm Uterine Cancer Support Group for Women of African Descent

13

5pm Ongoing Ovarian Cancer Support Group

20

9:30am Bronx Breast Cancer Support Group 6pm Post-Treatment Breast Cancer Support Group 6pm Topic-Driven Round Table on DCIS Online

27

MAY 2020THURSDAY


7

1:30pm Westchester Breast and Ovarian Cancer Support Group6pm Telephone MBC Support Group7pm Queens Breast Cancer Support Group

14

6pm Aromatase Inhibitors and Tamoxifen Support Group 6pm Telephone MBC Support Group7pm Lehigh Valley Ovarian Cancer Support Group

21

12pm New Treatment Options for Uterine Cancer Webinar6pm Telephone MBC Support Group

28

FRIDAY1

6pm Japanese Breast Cancer Support Group

8

15

12:30pm Japanese Breast Cancer Support Group

22

29

SATURDAY

10:30am Long Island Ovarian Cancer Support Group

2

9

16

23

30

NOTES

MAY 2020


31

Breast

Event Color Key

Uterine

Ovarian

Metatastic Multiple



Please note that all events and support groups will be held online or by telephone. Please note that all events and support groups will be held online or by telephone.

Please note that all listed times are in Eastern Daylight Time.

During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only. Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org. Exercise For Cancer Patients and Survivors with Moving for Life will take place via Zoom every Monday and Thursday in May and June from 12-1pm.Staten Island Ovarian Cancer Support Group scheduled for 5/20 will reconvene at a later time.

Please Note: All events are Eastern Daylight Time.


Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427) Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)

SUNDAY

7


14

21


28

MONDAY

12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm DCIS Support Group

8:30pm Telephone Breast Cancer Support Group

1


8

12:30pm MBC Support Group 4pm Telephone MBC Support Group6pm Uterine Cancer Support Group 8:30pm Telephone Breast Cancer Support Group

15


22

12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm What’s the Latest in Breast Cancer Treatment? Webinar

29

TUESDAY

5pm Breast and Ovarian Cancer Support Group for Women of African Descent6pm Caregiver Support Group

2

3:30pm Brooklyn Breast Cancer Support Group 6pm Living with Mortality and Finding Meaning Webinar6pm Ongoing Breast Cancer Support Group

9

4pm Breast and Ovarian Cancer Support Group for Women of African Descent

16

2pm Research Update on MBC Webinar3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group

23

30

WEDNESDAY

6pm Newly Diagnosed Ovarian Cancer Support Group 8pm Video MBC Support Group for Young Women

3

1pm Topic-Driven Round Table on Ovarian Cancer Online 6pm Uterine Cancer Support Group for Women of African Descent

10

5pm Ongoing Ovarian Cancer Support Group

17

9:30am Bronx Breast Cancer Support Group 6pm Post-Treatment Breast Cancer Support Group 6pm Topic-Driven Round Table on DCIS Online

24

JUNE 2020THURSDAY


4

1:30pm Westchester Breast and Ovarian Cancer Support Group6pm Telephone MBC Support Group7pm Queens Breast Cancer Support Group

11

6pm Aromatase Inhibitors and Tamoxifen Support Group 6pm Telephone MBC Support Group7pm Lehigh Valley Ovarian Cancer Support Group

18


25

FRIDAY5

6pm Japanese Breast Cancer Support Group

12

19

12:30pm Japanese Breast Cancer Support Group

26

SATURDAY

10:30am Long Island Ovarian Cancer Support Group

6

13

20

27

NOTES

JUNE 2020



Breast

Event Color Key

Uterine

Ovarian

Metatastic Multiple

Please note that all events and support groups will be held online or by telephone. Please note that all events and support groups will be held online or by telephone.

Please note that all listed times are in Eastern Daylight Time.

During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only. Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org.

Exercise For Cancer Patients and Survivors with Moving for Life will take place via Zoom every Monday and Thursday in May and June from 12-1pm.Staten Island Ovarian Cancer Support Group scheduled for 6/17 will reconvene at a later time.

Please Note: All events are Eastern Daylight Time.

6 sharecancersupport.org

Our new program is kicking off with a Uterine Helpline, support groups and educational events, with additional programs to be added in the coming months. As a national nonprofit, SHARE has been supporting, educating, and empowering women affected by breast and ovarian cancer for over 44 years. We are excited to add uterine cancer to SHARE’s efforts.

Did You Know?• Uterine cancer includes two main types of

cancer:m Endometrial cancer occurs in the lining of

the uterus and accounts for over 90% of all uterine cancer cases. Due to this high percentage, the names “uterine cancer” and “endometrial cancer” are often used interchangeably.

m Uterine sarcoma occurs in the muscles of the uterus or other tissues that support the uterus; this cancer is more aggressive and harder to treat than endometrial cancer.

• Uterine cancer is the most common type of gynecologic cancer and the fourth most common cancer in the United States.

• Over 65,000 women are expected to be diagnosed with the disease this year.

• If diagnosed at an early stage, the 5-year survival rate for women with uterine cancer is 95%.

• Abnormal vaginal bleeding is the most common symptom of uterine cancer.

To learn more about the disease, please visit our website at: https://www.sharecancersupport.org

Support GroupsSupport groups are a low-pressure, empow-ering opportunity to exchange experiences, information, and kindness with women who understand what you’re going through—to hear and be heard. Research shows that women with a strong community of support have better health outcomes.

Uterine Cancer Support Group for Women of African Descent

Remote By Phone – Wednesday, 6-7:30pm ET May 13th & June 10th

Uterine Cancer Support GroupRemote By Phone – Monday, 6-7:30pm ET May 18th & June 15th

Uterine Cancer HelplineWomen may call the helpline after receiving a new diagnosis, recurrence or worrisome symptoms. Make better sense of what’s happening by talking about feelings, treat-ment plans, or whatever is on your mind with someone who understands because they’ve been through it too. SHARE’s Uterine Helpline is available weekdays, 10am-4pm and 5-9pm ET. Call 844.582.6005.

Volunteer with SHARE!If you are a uterine or endometrial cancer survivor and would enjoy giving back to women in need of support, please email [email protected] or call 844.582.6005 for more information.

My cancer journey began in 2013. I was 33 years old, and had just gotten married six months prior to being

diagnosed with uterine cancer. Being diag-nosed with stage 1c uterine cancer changed my life and body forever.

I had experienced two months of heavy bleeding and severe lower back pain. One morning after waking up feeling seriously weak, I made the decision to go visit the emergency room. At the hospital the doctors were giving me the runaround, but the most devastating part was how dismissive they were to me. The ER doctors tried to tell me the heavy bleeding may be just a change in my menstrual cycle, stress, or something emotionally wrong that I may not be aware of. They told me that I should go home and take a couple of ibuprofens to help with the pain, drink some fluids and get plenty of rest. I fiercely explained to the ER doctors that the symptoms were completely out of the norm for me, that I am very attuned with my body, and that I wasn’t going home without tests being performed. I had been working as a licenced practicing nurse (LPN) for 12 years, so I was aware of my patient rights.

Forty-five minutes after I refused to go home, a medical technician performed a transvaginal ultrasound on me. I waited anx-iously for more than two hours for the doctors to give me the results. The transvaginal ultra-sound showed my uterus was enlarged. At that point I had not yet been diagnosed with uterine cancer, but at least now the doctors who had initially blown me off knew that there was something wrong.

The emergency room doctors wanted me to see a gynecologist as an out-patient, so I immediately made an appointment. After viewing the results of the transvaginal ultrasound the GYN performed a procedure named Dilation and Curettage (D&C) on me. A week later my results were in and I heard the heart shattering words from my doctor: “You have cancer.”

I didn’t hear anything else that was said afterwards. I was devastated; I cried every sin-gle day for four months. I was put on Megace

tablets 360 mg as treatment, which is a pro-gestogen sometimes used to treat endome-trial cancer. I experienced some terrible side effects from being on megace, such as 30 lbs of weight gain, always feeling cold - even in 90 degree weather, and developed an itchy burning rash all over my face. The rash on my face made me feel very insecure, which I had never been before.

After taking megace to treat endometrial cancer, the cancer went into remission. I visit-ed my doctor every three months for a biopsy, and during my 3rd biopsy it was revealed that the cancer had recurred. Once again I was devastated. At age 35 I had a hysterectomy, which meant that I would never be able to bear my own children.

My life has been forever changed due to cancer, but it hasn’t stopped me from living my happiest life. While I’m no longer working as a nurse, I am working in an area of women’s health. In 2018 after battling ovarian cancer I was introduced to SHARE, an organization that supports, educates and empowers when affected by breast, ovarian, metastatic breast cancer, and endometrial/uterine cancer. As a part of the uterine cancer program team I get to advocate and help support women affected by this disease, and say I survived uterine cancer!

Introducing SHARE’s New Uterine/ Endometrial Cancer Support Program!

When I Heard the Heart Shattering Words: “You Have Cancer.”

by Nefa-Tari Moore

BREAKING THE MYTHSMyth: Endometriosis is a risk factor for

endometrial/uterine cancer.

FACT: Endometriosis doesn’t carry an increased risk for endometrial cancer, despite the similar names.

Myth: A pap test will detect uterine cancer.

FACT: The pap test only detects cervical cancer and not any other gynecologic cancer.

844.ASK.SHARE 7

Nefa-Tari Moore


Para los meses de mayo y junio, SHARE/LatinaSHARE ofrecerá a nuestros grupos de apoyo en persona solamente la opción de llamada de conferencia. Esto significa que, en lugar de reunirse en persona, tanto los participantes como los facilitadores pueden llamar a través de un número gratuito durante el horario de su grupo regular. Para obtener más información, llame a nuestra línea de ayuda al 844.ASK.SHARE

SHARE SPONSORSSHARE gratefully acknowledges major support

from the following corporations and foundations:

Aaron & Marion Gural FoundationAbbVie IncAdmore Air Conditioning Corp.AFK GroupAstraZenecaAvon Foundation for WomenBader Media GroupCelgeneCerami & Associates, Inc.Clovis Oncology Inc.Clune Construction CompanyDune Medical DevicesThe Durst OrganizationEisai, Inc.Empire Architectural Metal Corp.Empire Dragons NYCEvensonBest LLCFashion Targets Breast CancerFred Geller Electrical, Inc.Gardiner & TheobaldGartnerGenentech, Inc.Genomic Health, Inc.Godosky & Gentile, PCHenegan Construction Co., Inc.HOK Architects/5 Bryant ParkJaros Baum & BollesJones Lang LaSalle Americas, Inc.JRM Construction Management, LLCKnoll, Inc.Lee & Associates NYCLilken AssociatesEli Lilly and CompanyMacroGenicsMerckMorphotekMt. Sinai-St. Luke’sNew York City Association of Hotel

ConciergesNew York City Department of Health

and Mental HygieneNew York City Department for the AgingNew York Community TrustNew York State Department of Health

Newmark & Company Real EstateNovartisOffice ResourcesLaura & Isaac Perlmutter Cancer CenterPfizer Inc.Plaza Construction, LLCPrincipal GroupProCirc, LLCProtivitiPuma Biotechnology, Inc.Regional Cancer Care Associates,

Central Jersey DivisionSkadden, Arps, Slate, Meagher &

Flom, LLPSL Green Realty CorpSpeed RackSpring OB/GYN, PCSteelcaseSwim Across AmericaSyndax Pharmaceuticals, Inc.The Switzer GroupThe Craig B. Tate FoundationTeknion, LLCTesaroBeth C. Tortolani FoundationTurner Construction CompanyUBSUnity International GroupWB WoodWeill Cornell Breast CenterWebMDXyster Consulting Inc.

Calendario de Grupos de Apoyo para Mujeres con Cáncer de Seno, Cáncer de Ovario, y los Cuidadores

SHARELatina

@LatinaSHARE

CONTÁCTENOSlatina.sharecancersupport.org844.275.7427

LatinaSHAREUna nota de nuestra CEO:Queridos Amigos,

Estamos aquí para ayudar cuando nos necesite. SHARE brinda información médica enriquecedora y una comunidad de mujeres comprensivas y conocedoras que

ayudan a navegar la experiencia del cáncer. Esa es nuestra razón de ser!

A medida que se imprime nuestra nueva Guía del programa, entendemos los desafíos de la pandemia de Covid-19. Sabemos que esta situación es particularmente estresante para aquellos cuyas vidas se ven afectadas por el cáncer, y es posible que tengan preguntas urgentes. No dude en llamar a nuestra línea de ayuda: 844.ASK.SHARE, y asegúrese de compartir nuestro número de línea de ayuda con aquellos que han sido diagnosticados (y sus cuidadores) a quienes se puede animar a conocer nuestros servicios. ¡Nuestros voluntarios y personal están listos para ayudar!

Como verá en las páginas siguientes, ofrecemos una variedad de servicios a los que se puede acceder en línea y por teléfono, para que pueda acceder a nuestros programas desde su hogar durante este período. Desde seminarios web informativos hasta clases de ejercicios y grupos de apoyo, explore lo que sea más útil para usted.

En una nota inspiradora, ahora damos la bienvenida a las personas afectadas por los cánceres de útero / endometrio, así como el cáncer de mama, metastásico y de ovario a nuestro programa SHARE con una amplia variedad de servicios y eventos.

Y ahora, estoy emocionada de compartir nuestra nueva guía de programas con usted. Hemos actualizado drásticamente el formato, y esperamos que le sea más fácil participar en nuestros programas enriquecedores e informativos. Esta es tu comunidad y te invitamos a ser parte de todo lo que tenemos para ofrecer.

Porfavor comuníquese conmigo a [email protected] para compartir sus pensamientos. ¡Queremos que nuestras comunicaciones sean lo más fáciles de navegar y útiles para usted!

Un cordial saludo,

Carol Evans

8 sharecancersupport.org


Registrarse en latina.sharecancersupport.org o 844.275.7427

DOMINGO

3

10

17

24

LUNES

4

11

11am El cuidado de su mascota durante su tratamiento

1pm Moving for Life

18

25

MARTES

5

10am Make the Road Brooklyn

2pm Orlando

12

19

2pm Orlando26

MIÉRCOLES

6

2:30pm La nutrición y Cáncer

13

20

2:30pm Cáncer en la Familia

2:30pm La enfermedad de Alzheimers

27

LatinaSHARE MAYO 2020Registrarse en latina.sharecancersupport.org o 844.275.7427

JUEVES

7

10am New York Presbyterian/Columbia

14

2:30pm El masaje oncológico

21

11am Los beneficios de los súper alimentos

28

VIERNES1

10am Newark

2:30pm Make The Road NY: Queens

8

12:30pm Metropolitan Hospital

2:30pm Moving for Life

15

2:30pm Linfedema y su sistema Inmunológico


22

29

SABADO2

2:30pm Conozca su cuerpo a través del automasaje

9

16

23

30

NOTAS

LatinaSHARE MAYO 2020

31

Porfavor tenga en cuenta: todos los eventos son horario de Hora del Este. Porfavor tenga en cuenta: todos los eventos son horario de Hora del Este

Event Color KeySettlement Health

Mt. Sinai Dubin

Newark Beth Israel

Metatastic/Caregiver

NYP/Columbia

Lincoln Medical

Westchester

Mt. Sinai Downtown

Metropolitan HospitalOrlando

Moving for Life

Breast/Ovarian

Brentwood

Mt. Sinai Morningside

Make The Road Brooklyn

Make The Road Queens

Porfavor tenga en cuenta: todos los eventos son horario de stroksHora del Este.

En los meses de mayo y junio, LatinaSHARE ofrecerá a sus grupos de cáncer de seno y ovario solamente la opción de llamada de conferencia para los programas educacio-nales. Todos podrán participar llamando al 866.210.1669 y marcar el código de participante: 705953


Registrarse en latina.sharecancersupport.org o 844.275.7427

DOMINGO

7

14

21

28

LUNES1

8

15

22

29

MARTES2

1pm Servicios para cuidadores

2pm Orlando

9

16

2pm Orlando23

30

MIÉRCOLES3

2:30pm Neuropatía10

17

2:30pm Escritura Creative Para la Sobreviviente

2:30pm Escritura Creative Para la Sobreviviente

24

LatinaSHARE JUNIO 2020Registrarse en latina.sharecancersupport.org o 844.275.7427

JUEVES4


11

2:30pm Cáncer de Seno y la cirugía

18


11am Mt. Sinai Dubin

25

VIERNES5

2:30pm Make The Road NY: Queens

11am Pet therapy & Caring for your pet during treatment

12

12:30pm Violencia doméstica

19

2:30pm Neuropatía


26

SABADO6

2:30pm Brentwood13

20

27

NOTAS

LatinaSHARE JUNIO 2020

Event Color KeySettlement Health

Mt. Sinai Dubin

Newark Beth Israel

Metatastic/Caregiver

NYP/Columbia

Lincoln Medical

Westchester

Mt. Sinai Downtown

Metropolitan HospitalOrlando

Moving for Life

Breast/Ovarian

Brentwood

Mt. Sinai Morningside

Make The Road Brooklyn

Make The Road Queens

Tenga en cuenta que todos los eventos y grupos de apoyo se realizarán en línea o por teléfono. Tenga en cuenta que todos los eventos y grupos de apoyo se realizarán en línea o por teléfono.

Porfavor tenga en cuenta: todos los eventos son horario de stroksHora del Este.

En los meses de mayo y junio, LatinaSHARE ofrecerá a sus grupos de cáncer de seno y ovario solamente la opción de llamada de conferencia para los programas educacio-nales. Todos podrán participar llamando al 866.210.1669 y marcar el código de participante: 705953

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Documents

Breast, Ovarian, Uterine or Metastatic Breast Cancer · 2020-05-15 · 7pm Lehigh Valley Ovarian Cancer Support Group 21 12pm New Treatment Options for Uterine Cancer Webinar 6pm