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Building a Stronger and More Inclusive Ontario Part 2: Understanding the link between
Age-Friendly and Compassionate Communities
May 31, 2018
Presented by: Julie Darnay, Manager of Partnerships and Communities of Practice, Denise Marshall BSc., MD, CCFP(PC), FCFP Medical Director, Niagara West Palliative Care Team and McNally House HospiceDeborah Sattler, Lead, Windsor Essex Compassion Care Community and
Polling Questions #1: Before we start
2
Learn about the “Compassionate Community” movement
Theory
Learn about provincial and local resources, tools and opportunities
Gain insights on how Compassionate Communities complement Age-Friendly and Dementia-Friendly
Scale Up
Compassionate Communities in Action: Windsor-Essex experience
Practice
Objectives for Today
3
Who We Are
4
We are part of an International Movement that wants to improve the Quality of Life …
One PersonOne Neighborhood,
One Community, One Population … at a time
• 50% of Ontarians who die do not access palliative care
• Misperceptions about HPC• ‘healthy living’ has become ‘health services’• ‘good death’ has become ‘managed death’• The ‘social’ element in general, is missing
• Lack of availability of HPC services – large inequities
• 40% more deaths each year by 2020 that will contribute to a demandin palliative care. Relying solely on a formal system response to the predicted increase in demand for PC in the future will be challenging
• Caregiver burnout is a key contributor to trips to the emergency room in the last stages of life.
• 25% of seniors live alone and social isolation is linked to poor health and poor quality EOL care.
• Preventable waste and avoiding ED visits in the last month of life could save 11.1M/year for the Ontario Health Care system
Reality #1: Death, Dying and Loss
Reality #2: Most Care is Social
Meaningful life-long care as seen by the person within their environment
Reality #3: Social Isolation is Harmful
7
Theory
8
Our Response: Compassionate Communities
• Developing public health principles first alongside institutional priorities
• Working with the public health sector
• Employing collaborative models
• Mainstreaming death & dying as a ‘life and living’ issue – avoiding ghetto-ing mortality
Dr. Alan Kellehear
Public Health Approaches to End of Life Care
HPCO Slide Masters
Health Promoting Palliative Care
• Goes beyond illness- involves the well, and wellness
• Includes schools, workplaces, businesses, unions, places of worship, media, leisure groups, clubs etc
• Recognizes limits to service provision
• Restores end of life care to the wider public health sphere of policy, practice, and language
• Principle that end of life care is everyone’s responsibility
• Uses partnership and population based approaches
1. Schools – Will have guidance documents for dying, death, loss and care.
2. Workplaces – Will have guidance documents for dying, death, loss and care.
3. Trade Unions – Will have guidance documents for dying, death, loss and care.
4. Churches and Temples – Will have at least one dedicated group for End Of life (EOL) care.
5. Hospices and Nursing Homes – will have community development programs that focus on EOL care and will involve local area citizens.
6. Museums and Art Galleries – will hold exhibitions on the experience of ageing, dying, death and loss or care.
7. Our city will celebrate and highlight the most creative compassionate organization, event or individual(s) through an incentive scheme, for example a “Mayor’s Award.”
Compassionate City Charter
12
7. Through various forms of media, our city will publicly showcase our local government policies, services, funding opportunities, partnerships, and public events that address our compassionate concerns. As well, all EOL services will be encouraged to share this material.
8. Our city will work with local social or print media to encourage an annual city-wide short story or art competition to raise awareness of ageing, dying, death, loss or caring.
9. All services and policies will demonstrate an understanding of how diversity shapes the experience of ageing, dying, death, loss and care.
10.We will encourage and support institutions for the homeless and the imprisoned to have support plans in place for EOL care.
11.Our city will establish and review these targets and goals in the first two years. Thereafter will add one new sector annually to our action plan.
Compassionate City Charter
13
HPCO Slide Masters
Practice
15
16
Working Together23 Sponsors; 100+ partnersIT’S A SOCIAL MOVEMENT
Improving Lives, Strengthening CommunityVision: “Working together to make ourselves, our citizens and our community more well”
Community Challenge Prove the difference we make: 500+ new members served each year Target of 5 to 10% year over year measurable improvement in population quality of life
17
Collective Impact Approach
• Wellness Hubs and end of life programs in hospices and community centres
• Compassionate neighbourhoods
• 1ST Annual Shining the Light on Compassion Awards: MP, MPP, Mayors, Town Councillors
• Compassion choir,
• Short story, video and song contests, photo and art exhibits, reading events, neighbourhood quality of life challenge
• Community Dialogue series
• Education events and workshops
• Calling All Faith Leaders: Time to talk
• Initial conversations with schools, businesses and trade unions
• Public marketing and advertising, print, social media and radio coverage, and navigation to address “compassionate concerns”
CCC Community Events
19
Scale Up
20
Hospice Palliative Care Ontario is leading the new provincial strategy called
“Compassionate Communities”
to catalyze whole person care throughout the province of Ontario, to benefit patients, family caregivers, and the formal health care system.
HPCO Compassionate Communities Provincial Strategy
21
Ontario’s Approach
• Core components: • A charter to bring together all
levels of governments, business, community groups, grass-roots and service leaders
• A program for life-long care to address all aspects of well being
• A measurement tool to track individual and community progress
Taking a Health Promoting Palliative Care Approach
Expands our approach to health care to include the community as genuine partners – not simply as targets of our service provision
➢MOVING FROM: direct services, clinical, face-to-face, bedside, acute care, or institutional approaches
➢MOVING TO: community, health promotion, partnership, population based approaches
HPCO Slide Masters
24
Compassionate Communities CoP
• Connect individuals across Ontario that are actively involved in a structured Compassionate Community project or interested in learning more
• Offers an infrastructure to support these individuals in sharing knowledge and information
• Offers a forum for building a broad network of Ontario communities committed to improving population health outcomes for aging and EOL
HPCO Provincial Project Management Office• Offering mentorship and coaching in project implementation, technology,
policy, research, incubator test site
Expert Leadership Team• Supports and advises on recommended Ontario approaches, tools,
resources, promotion, awareness, etc.
Project Members• begun community engagement and/or• identified a project sponsor and/or• secured resources or funding
General Membership• Open to any individuals interested in, considering or working in a
structured organization participating in a Compassionate Community/City initiative in Ontario
CC CoP Structure - Implementation
26
Community Research Collaborative• Connects like-minded Ontario researchers and offers an
infrastructure to support these individuals in sharing knowledge and information
• Develops and shares research and evaluation approaches for adoption by existing and emerging CC implementation communities
• Involves 25+ Researchers
CC CoP Structure - Research
27
Polling Questions #2: Join our research
28
International Leadership
Public Health Palliative Care International
National Leadership
Pallium Canada
Provincial Leadership
Hospice Palliative Care Ontario
International, National, Provincial Alignment
29
30
Common Goals and Principles
Overlapping Core
Characteristics, Goals & Vision
Value Of Persons' Lived
Experience, Wisdom, and Contributions
Broad Coalition of Stakeholders
Engaged
Global Reach & International
Support
Emphasizing Inclusion and Accessibility
Mechanisms of Promotion & Mentorship
Opportunities
Importance of Physical
Environment
Alzheimer Society of Saskatchewan,2017
Strengths and Evidence- based
Domains Age-friendly Dementia Friendly Compassionate Communities
Purpose In an age-friendly
community, the
policies, services and
structures related to
the physical and social
environment are
designed to help
seniors “age actively.”
The community is set
up to help seniors live
safely, enjoy good
health and stay
involved.
Dementia Friendly
community is a place
where people living with
dementia are understood,
respected and supported.
People will be aware of and
understand dementia, and
people living with
dementia will be included
and have choice and
control over their day-to-
day lives and level of
engagement.
Using a Healthy Communities
framework, the
Compassionate Community’s
movement ensures seniors
and people with life-altering
conditions and their
caregivers live well from
diagnosis to death.
The community is set up to
enable people of all ages to
actively participate
in community activities and
treats everyone with respect
and compassion, regardless
of their age, status or level or
type of disability, across their
lifespan.
Aligned Purposes
32
LHIN AGE FRIENDLY
COMMUNITIES
DEMENTIA FRIENDLY
COMMUNITIES
COMPASSIONATE
COMMUNITIES
ERIE ST CLAIR XXX X
WATERLOO
WELLINGTON
XX X XX
HNHB XXXXXXX X XX
MISSISSAUGA HALTON XXX X
TORONTO CENTRAL X X XX
CENTRAL XXXX XX
SOUTH EAST XXXXXXXX XXX XX
SOUTH WEST XX
CHAMPLAIN XXXXXX XX X
NORTH SIMCOE
MUSKOKA
XXXXXX X
CENTRAL EAST XX
NORTH EAST XXXXXXXXXXX XX X
NORTH WEST XXXX X X
Common LHIN/Community Locations
33
Opportunities to work together
• Work together as provincial and local coalitions on key and aligning messages attempting to change social norms and influence policy
• Align with education and workplace learning (engaged youth = future leaders)
• Build a network of Ontario learning communities committed to improving population health outcomes across the life-span (inclusive of healthy aging, dementia and EOL sub-groups)
• CREATE A MOVEMENT
Strategies to Move Forward
Enable
• Promote education
• Association and agency leadership
Mediate
• Support local adoption
• Engage local, regional and provincial leaders
Advocate
• Advocacy common messages
• Incorporating common messages into association/organizational policy
Discussion
Polling Questions #3: What’s Next
37
Julie DarnayManager, Partnerships and Communities of Practice
1-800-349-3111 ext. 30
Hospice Palliative Care Ontario
2 Carlton Street, Suite 707
Toronto, ON M5B 1J3
www.hpco.ca
Contact Information